Empowering patients to manage their own health data

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    29-Nov-2014

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Lightning talk at the 2012 Indivo X User's Conference: using Indivo to back Livestrong's cancer management apps can give patients true control over their health data.By Joris van Dam, Novartis Institutes for BioMedical Research

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  • 1. Empowering patientsto manage their own health dataJoris van DamNovartis Institutes for BioMedical Research1

2. Imagine a world... Where I can access all information about my personal health, no matter who happens to have measured it whether it comes from my family doctor, the clinician, the lab, ... Where I can share that information over and over and over again, with my family doctor, my clinician, the lab technician, my nurse so I can spare myself the wait for untimely faxes to come through, the effort of providing the same information over and over and over again, the discomfort of having to run painful tests multiple times. Where I can actually use that information to track my own progression, to manage my own health. Where I can add to that information with my personal experiences, how I feel so that next time the doctor asks me how I have been, I can actually give a pretty accurate answer....where I am in full control of my personal Health Data2 | LIVESTRONG SMART DFCI NIBR pilot |Indivo X Annual Users Conference | June 2012 | Business Use Only 3. But that is not the world we live in today:3 | LIVESTRONG SMART DFCI NIBR pilot |Indivo X Annual Users Conference | June 2012 | Business Use Only 4. Such world also holds tremendous promise forfacilitating research and advancing science Green Button Share / Upload My Data4 | LIVESTRONG SMART DFCI NIBR pilot |Indivo X Annual Users Conference | June 2012 | Business Use Only 5. The LIVESTRONG SMART DFCI NIBR pilotDoing well by doing good.5 | LIVESTRONG SMART DFCI NIBR pilot |Indivo X Annual Users Conference | June 2012 | Business Use Only