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Free fundraising pack from Parkinson's UK (formerly the Parkinson's Disease Society) - full of information and advice about organising your own fundraising event
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www.parkinsons.org.uk
Parkinson’sDiseaseSociety
fundraising pack
Parkinson’s Disease Society
With your help, we can continue our work to support people with Parkinson’s and their carers, and achieve our goal of a future free from Parkinson’s.
This pack contains everything you need to help you get started with your fundraising – if you have any questions or if we can help in any way, please give the PDS Events team a call on 020 7932 1342 or email events@parkinsons.org.uk
Thank you for supporting the
Here’s what you can do
“I’m always so touched and impressed by the efforts
our supporters go to in raising money for the PDS –
without you we couldn’t continue the vital work that we do.
We’ve made excellent progress in research and improvements
in the care and treatment of people with Parkinson’s, but there
is so much still to be done to prevent and help alleviate its
distressing effects. Thank you so much for your support.” Jane Asher, PDS President
For more information call 020 7932 1342 or email events@parkinsons.org.uk
Parkinson’s Disease SocietyThe Parkinson’s Disease Society is entirely funded by voluntary donations. That means people like you raising funds to support us – and it means we can continue our work for all people affected by Parkinson’s.
Since 1969, the Parkinson’s Disease Society has been working with and for people with Parkinson’s and those close to them. We have over 30,000 members, more than 35,000 supporters, and over 330 local branches and support groups across the UK. And we have you – welcome to the team!
About the
What is Parkinson’s disease? Parkinson’s disease
is a progressive neurological condition – for which there is
currently no cure.
Parkinson’s is caused by the loss of cells in the brain that
produce dopamine – a chemical that allows people to
perform smooth, co-ordinated movements by transmitting
messages between nerve cells and muscles. When a high
percentage of these dopamine-producing cells is lost, the
symptoms of Parkinson’s appear.
What are the symptoms of Parkinson’s? There are three main symptoms of Parkinson’s.
Tremor – although this is a main feature of the condition,
up to 30% of people with Parkinson’s do not have
a tremor.
Slowness of movement (bradykinesia) – people with
Parkinson’s may find that they have difficulty starting
movements or that performing movements takes longer.
Stiffness or rigidity of muscles – this can affect many
everyday tasks and can sometimes be quite painful.
Dr Wilkinson, recipient of a PDS Career Development Award, Queen’s Square, London
“Thanks to the PDS, I can focus on an
important area of Parkinson’s research
that has not been fully investigated.”
There are 120,000 people with Parkinson’s in the UK.
There is no cure.
Where your money goesResearch We have invested over £40million researching the cause, prevention
and cure of Parkinson’s – as well as looking at ways to improve treatments and
the lives of those with the condition.
Information We provide advice and information on all aspects of Parkinson’s,
including drug treatments, surgery, therapies, social and health care rights, benefits,
insurance, employment, driving, holidays and respite care.
Advice We have a freephone Helpline (0808 800 0303) staffed by nurses and specialist
advisors offering information, support and a sympathetic ear. We currently answer around
20,000 calls per year.
Education We provide education to health and social care professionals to
increase their understanding of this complex condition.
www.parkinsons.org.uk/events
“When I called the Helpline, I had all my questions answered by someone who was
comforting and easy to talk to. This made such a big difference.
Knowing that the PDS exists and can support you is hugely important.”Harry, North East Wales Branch member
£2 covers the cost of sending out a free copy of our DVD ‘Being there’
to someone newly diagnosed with Parkinson’s.
£12 will enable one of our Support Workers to give expert advice
on benefits to a person with Parkinson’s.
£15 will pay for a Parkinson’s Disease Nurse Specialist to spend an
hour working with someone with Parkinson’s.
£25 will pay for a PDS Helpline nurse to take calls for one hour.
£150 will fund a Parkinson’s Disease Nurse Specialist for a day.
£1,000 will fund a cutting edge research project into Parkinson’s
disease for a week.
“When I looked at the PDS website and saw all the help that’s available, I wanted
to do something positive. I decided to go on their Namibia trek and as part of my
fundraising I organised a Party for Parkinson’s at a local club. My family and
friends helped out and we had a lot of fun!”
Paul Martin, PDS fundraiser
Never miss an opportunity Make sure that you
have a sponsorship form with you all the time; you never
know who you’ll bump into. Also, try to collect cheques
and donations from people up front so you don’t have to
chase them afterwards!
Sponsorship forms Make sure the first donation at
the top of each of your sponsorship forms is a generous one
– people tend to match the donations already on the form.
Tell everyone If you have a personal reason for raising
money for the PDS, tell people about it. You’ll be surprised
by the support you receive.
Do use an official PDS sponsorship form. Our form
is designed with all the necessary legal wording to allow
us to claim Gift Aid on your sponsors’ donations. If the
sponsorship form does not have the official Gift Aid
statement we will not be able to make the claim to the
Inland Revenue.
Do photocopy the blank sponsorship form or just
give us a call if you need more.
Do send your completed sponsorship form in with your
money. We can’t claim the Gift Aid without the form.
Don’t create your own sponsorship forms; just let
us know if you need extra copies.
What is Gift Aid? The Gift Aid scheme is really
simple. If your sponsors are UK taxpayers and agree to
Gift Aid their donations to the PDS, we can claim back
the tax they have paid on that donation. This means we
can increase the value of your sponsorship by approximately
a quarter – more money for the PDS at no cost to you or
your sponsors.
Please note that the following conditions apply to amounts
that we can claim Gift Aid on:
• the person donating the money must have paid income
or capital gains tax equal to, or greater than the amount
we will claim.
We can’t claim Gift Aid on:• the price paid for an item, e.g. goods from stalls or raffles
• the price paid for tickets or the right to attend an event
• any deposits or registration fees
• donations made by close family members for some
adventure fundraising events such as our overseas
challenges. In these cases we will make sure you
receive all the information necessary to allow you to take
advantage of the Gift Aid scheme.
getting started Fundraising:
Sponsorship formsdos & don’ts
For more information call 020 7932 1342 or email events@parkinsons.org.uk
There are lots of ways you can raise money for the PDS. Here are some tips
from other fundraisers to help you get started.
www.parkinsons.org.uk/events
What is Justgiving? Justgiving is the 21st-Century version of the sponsorship form!
At www.justgiving.com you can set up your very own
webpage for free, add all the details of your event and
then email a link to all your friends, family and colleagues
– who can sponsor you quickly and securely online.
How to set up your page All you need to do to set up your page is visit:
www.justgiving.com/parkinsons/raisemoney
then just click ‘create your page’ and follow the instructions.
Why we love Justgiving• Justgiving will send an automatic thank you email to
everyone who donates via your page.
• You will receive an update email for every donation
made on your site, making it easy to keep track of
your sponsorship total.
• You can raise money from friends and family you might
not see very often.
• You don’t have to worry about catching people with full
wallets or chasing them for cheques after your event.
Our top tips for making the most of your Justgiving page
Get personal Make your page as compelling
as possible by adding your own photograph and
text. Explain what you’re doing and why it’s so important
to you.
Set an example It can be intimidating to be
the first person to donate to a blank page, so before
sending an email to your entire address book, make
sure you ask your close friends and family to donate.
People also tend to match the donations that already
appear on the page, so get your most generous
supporters at the top of the list!
Keep your page up to date and remind people it’s there Change your picture, add some
new details about how your training or planning is going,
or write about how it all went after the event – your
webpage can be a great way to keep your supporters
feeling involved!
Use your email signature Set up an email
‘signature’ that will automatically appear at the bottom
of all your messages. Add some information about your
fundraising and include a link to your Justgiving page.
For more information call 020 7932 1342 or email events@parkinsons.org.uk
What are you going to do? Keep it simple –
often the most straightforward ideas are the most
successful. If your event goes well, you can always repeat
it and build on it next time round. It is easier to combine
your fundraising with something you love doing. If you
are a member of a football team, you could organise a
five-a-side tournament. If you enjoy going to car boot sales,
why not ask friends and family to donate items for you to
sell at a stall? If you are always having friends round for
dinner, you could hold a Party for Parkinson’s!
When are you going to have your event? Make sure that your event doesn’t clash with anything
else, or use other events as your inspiration, e.g.
a football-themed party on the day of the FA Cup,
or a tennis tournament during Wimbledon fortnight.
Who is the event aimed at? Think about
whether the event is just for friends and family, or if you
would like to reach a wider group of people. If so, think
about who you might like to invite, for example, local
football or rugby clubs, youth groups or families?
There are many ways of contacting people – posters,
local press releases, email, and newsletters…
Where are you going to hold your event? If you want to hold the event in a hired hall or building,
it is a good idea to meet with the manager or owner before
you start organising the event. If you let them know that
you are fundraising for the PDS, they may even donate
the use of the venue for free!
You need to consider how many people are going to
attend and what facilities you need to provide for them
– catering, car parking, disabled access?
How are you going to raise money
from the event? It is important to plan your
budget from the start. Make a list of everything you
will have to pay for, what it will cost, and how much
you think you can raise. Ensure that you will make
more money than you spend. If you are organising a
large event, speak to local companies about donating
items or providing sponsorship.
After the event Make sure that you send thank
you letters to everyone who came along or supported
you and, if appropriate, let them know how much was
raised. We’d love to hear how everything went too,
so don’t forget to give the Events team a call or send
us an email afterwards. Please send us your photos
as we’re always on the look out for good pictures of
our fundraisers!
fundraising eventOrganising your own
What? Who? Where? How? When? You can do almost anything you like, to
support the PDS!
But no matter what you choose to do, planning is very important and there
are some key points to consider when organising your own event.
www.parkinsons.org.uk/events
Holding a raffle There are different types of
lotteries or raffles, and there are specific rules and
regulations for each. The easiest way to avoid any
complicated issues is to follow these simple tips:
• Hold your raffle draw during your event.
• Only sell the tickets to guests at the event.
• Don’t spend more that £250 on raffle prizes, but
remember if the prizes are donated there is no limit
on the value – so go and ask shops and businesses
in your area for their support.
If you would like to organise a larger raffle or sell tickets
to the public, please do give us a call to make sure you
stay within the necessary rules.
Public collections Holding a collection can be a
great way of raising money and awareness of the PDS
and we can provide collection tins and permission cards.
If you want to hold a collection in a public place, please
contact us so that we can make sure it doesn’t clash
with any other local collections by our supporters.
If you want to have a collection in your town centre or
high street, you will need permission from your local council
and you must contact them well in advance – be aware
that this type of collection is very popular and there may
be a waiting list.
If you want to hold a collection on private land – e.g. in a
pub, train station or sports club – you need the permission
of the owners. Bear in mind that big supermarket chains
have their own requirements and it can take a while to be
offered a collection time.
Alcohol Some police and local councils now require
licences for raffles and lotteries with alcoholic prizes.
Either check with your local police station or avoid alcoholic
prizes unless you have a licence.
If you are intending to serve alcohol at your event, you
will need a licence. For more information on how to gain
an ‘Occasional Permission Licence’, contact your local
police station.
Health and safety Safety is the most important
thing to think about. The PDS cannot support any event
that puts people at risk. You must consider the safety of
yourself, volunteers and the general public above all else.
You may need to carry out a risk assessment before your
event to identify possible hazards, but we can offer you
more advice, so please give us a call!
Insurance Some venues may require you to have
public liability insurance. The PDS has public liability
insurance that will cover both the Society and its members.
If you would like a copy of our certificate, please give us
a call.
The PDS also has personal injury insurance, which would
cover anyone injured at an event, subject to there being
no evidence of negligence. Negligence could be claimed if
it was discovered that the injured person was unsuitable
for the event, insufficiently trained or was supplied with
inadequate or faulty equipment for the task being carried out.
The legal bits
Preparation Reading local papers/events guides/
parish magazines and listening to, or watching, local
broadcast programmes is excellent research for deciding
which media to contact. Does the paper/programme
have a regular slot that publicises events?
How to contact the media When you have
decided which papers and programmes to target, find
out who to contact. When you call a paper or broadcaster,
simply say that you want to talk to someone about a
forthcoming local charity event and they will put you
in touch with the right person. The best way to get your
information across to a journalist is to prepare a press
release. If you can enclose a photograph as well, this
will help convey your message.
Please remember to mention the PDS website
www.parkinsons.org.uk and Helpline 0808 800 0303
when talking to any journalist.
Celebrities/ VIPs Asking local celebrities to endorse
your fundraising can often attract support and media interest
– and it can give a great boost to your fundraising too.
High profile, nationally recognised celebrities are often
difficult to contact, so if you know a local footballer,
newsreader, radio DJ or your MP or Mayor, why not
approach them? They can help in a number of ways:
they might attend your event, provide a quote for your
press release or even make a donation.
Remember, many celebrities receive a huge number of
requests for their support and always need to be contacted
well in advance. To make your request stand out, be sure
to include all the details of the event, a clear suggestion
of what you would like them to contribute, and why you
are fundraising for the PDS.
If you would like any help or advice on how to promote
your fundraising in the media, please contact the
Communications team on pr@parkinsons.org.uk or
call 020 7963 9370.
Please let us know of any media coverage you receive
and how you went about it – you could provide some
top tips for other fundraisers!
promote my fundraising?How do I
For more information call 020 7932 1342 or email events@parkinsons.org.uk
To make the most of your fundraising, let as many people know about it as
possible. Put up posters in shops or clubs, speak to your local newspaper or
radio station, or ask your friends to pass on the message. Not only will you get
more people to support you, but you will also raise the profile of the PDS and
awareness of Parkinson’s.
www.parkinsons.org.uk/events
Membership is open to anyone with an interest in Parkinson’s.
We have more than 30,000 members for whom the Society is the
main source of accurate information on Parkinson’s and the issues
that surround the condition.
The more members we have, the louder our voice in the campaign
for a better quality of life for people with, and those affected by,
Parkinson’s disease.
For more information on the benefits of membership and how to
become a member of the PDS, please call 020 7932 1344.
eBay A great way to support our work is to sell unwanted presents
and other belongings through ‘eBay for charity’. Almost anything can be
sold on ‘eBay for charity’ and you can decide how much of the final sale
price is directed to the PDS. For more information, please get in touch
with our Events team on 020 7963 9319 or events@parkinsons.org.uk
Direct Debit Regular donations mean that the Parkinson’s Disease
Society can plan ahead with our medical research programme and the
provision of services for people with Parkinson’s, their families and carers.
If you would like to give a small monthly amount straight from your bank
or building society account, Direct Debits are easy to arrange.
For more information on setting up a regular gift, please call our
Donor Services team on 020 7932 1303.
Recycling Supporters of the PDS can raise money to help people
with Parkinson’s and help the environment at the same time.
Simply recycle your mobile phones and printer cartridges through the
Recycling Appeal. Recycling just two printer cartridges could pay for the
postage of a copy of ‘Being There’, our DVD for those newly diagnosed
with Parkinson’s.
For more information on recycling please call 020 7932 1357 or email
events@parkinsons.org.uk
support the SocietyOther ways
For more information call 020 7932 1342 or email events@parkinsons.org.uk
Please send your money as a cheque All cheques should be made payable to the Parkinson’s Disease Society
unless we advise you otherwise. We also accept postal orders and CAF (Charity Aid Foundation) vouchers or similar.
Don’t send cash through the post! Please bank any cash that you are given and send us a cheque for the
amount. If you have used a collection tin, please ask someone to count the money with you as a witness before banking it.
Please include any completed sponsorship or donation forms with your money, so that we can
claim the Gift Aid on donations.
We recommend that you send all cheques etc by recorded post You’ve worked so hard to raise
it, and you don’t want to worry about it going missing!
Use the reply form at the back of this pack When sending in your donations, we ask that you
use this form to help us with our record keeping. We want to make sure that the money you have raised is added to your
personal fundraising total, and that we can send you a receipt and a thank you for all your hard work.
Please send everything to us at: Events Team
Parkinson’s Disease Society
215 Vauxhall Bridge Road
London SW1V 1EJ
to the PDSSending money
You’ve worked hard, had fun and done some fantastic fundraising – so here’s
how to send us your money!
www.parkinsons.org.uk/events
Notes
Recommended