POTENTIAL OF CANCER REGISTRATION DATA FOR RESEARCH/AUDIT Thursday 3 September 2009

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POTENTIAL OF CANCER REGISTRATION DATA FOR

RESEARCH/AUDIT

Thursday 3 September 2009

Time is of the Essence

Ireland 2008 – Size of DatasetsCancer Registries

• 29,000 Cancer Cases

• 11,000 Cancer Deaths

• 94,000 Living with Cancer (1994-2004) excluding Non-Melanoma Skin Cancer

• 450,000 Cases to date

Patient – Demographic Details/Comorbidity Disease Services Used, eg diagnostics Screening histories Geography of Disease Treatment Survival Quality of Life

Range of Data Items

Expect the UnexpectedThe Patient - Communication

• Referral to dieticians, especially GUT cancers

• Note that discussion with patient

• Information re diagnosis/prognosis in GP letter

• Speed GP communication with MDT management systems

• Psycho-social referrals

• PSA Tests on Population Level*• Barrett’s Oesophagus*• Colorectal Polyp Register • Service Pathways*

*All Ireland

Unique Datasets Risk Assessment

• NCI Cancer Prevention Fellowships• NCI Cancer Prevention Summer School• Barrett’s Consortium• International Assn Research Cancer• European Network Cancer Registries

International Linkages

www.qub.ac.uk/NICR

Biobanks Census – N.I. Longitudinal Study GP Research Database Cancer Waits/MDTS N I TELLUS Study

Potential For Linkage Other Datasets

Tellus Study(Arsenic Levels)

Changing Cancer Services- New Clinical Data Sources

CaPPs: Patient Pathway View

CaPPs: Patient Pathway View

CaPPS MDM Screen: Staging Work Up

CaPPS: Treatment screen

CaPPS: Clinical Nurse Specialist/AHP

CaPPS: Follow up screen

• Surveillance of Early Disease• Modelling Future Trends• Economics of Cancer• Patient Experience• Service Quality

• Improved Services for Patients

Research Areas

N. Ireland CancerMulhouse BuildingGrosvenor RoadBelfastBT12 6BJ

Tel 028 9063 2573Fax 028 9024 8017Email nicr@qub.ac.ukWeb www.qub.ac.uk/nicr

National Cancer Registry IrelandBuilding 6800Cork Airport Business ParkKinsale RoadCorkIreland

Tel 00 3532 1431 8014Fax 00 3532 1431 8016Email info@ncri.ie Web www.ncri.ie

CaPPS: Monitoring Cancer Targets

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