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POTENTIAL OF CANCER REGISTRATION DATA FOR
RESEARCH/AUDIT
Thursday 3 September 2009
Time is of the Essence
Ireland 2008 – Size of DatasetsCancer Registries
• 29,000 Cancer Cases
• 11,000 Cancer Deaths
• 94,000 Living with Cancer (1994-2004) excluding Non-Melanoma Skin Cancer
• 450,000 Cases to date
Patient – Demographic Details/Comorbidity Disease Services Used, eg diagnostics Screening histories Geography of Disease Treatment Survival Quality of Life
Range of Data Items
Expect the UnexpectedThe Patient - Communication
• Referral to dieticians, especially GUT cancers
• Note that discussion with patient
• Information re diagnosis/prognosis in GP letter
• Speed GP communication with MDT management systems
• Psycho-social referrals
• PSA Tests on Population Level*• Barrett’s Oesophagus*• Colorectal Polyp Register • Service Pathways*
*All Ireland
Unique Datasets Risk Assessment
• NCI Cancer Prevention Fellowships• NCI Cancer Prevention Summer School• Barrett’s Consortium• International Assn Research Cancer• European Network Cancer Registries
International Linkages
www.qub.ac.uk/NICR
Biobanks Census – N.I. Longitudinal Study GP Research Database Cancer Waits/MDTS N I TELLUS Study
Potential For Linkage Other Datasets
Tellus Study(Arsenic Levels)
Changing Cancer Services- New Clinical Data Sources
CaPPs: Patient Pathway View
CaPPs: Patient Pathway View
CaPPS MDM Screen: Staging Work Up
CaPPS: Treatment screen
CaPPS: Clinical Nurse Specialist/AHP
CaPPS: Follow up screen
• Surveillance of Early Disease• Modelling Future Trends• Economics of Cancer• Patient Experience• Service Quality
• Improved Services for Patients
Research Areas
N. Ireland CancerMulhouse BuildingGrosvenor RoadBelfastBT12 6BJ
Tel 028 9063 2573Fax 028 9024 8017Email [email protected] www.qub.ac.uk/nicr
National Cancer Registry IrelandBuilding 6800Cork Airport Business ParkKinsale RoadCorkIreland
Tel 00 3532 1431 8014Fax 00 3532 1431 8016Email [email protected] Web www.ncri.ie
CaPPS: Monitoring Cancer Targets
