The (old) what “The only UK charity devoted to research in to leukaemia, lymphoma, and myeloma”

The (old) what

“The only UK charity devoted to research in to leukaemia, lymphoma, and myeloma”

Why we are here

We’re here to beat blood cancer

Our Vision

Mission• We stop people dying from blood

cancer• We make patients lives better• We stop people getting blood cancer

in the first place

How

What

Why

So what did we do last year?

We said we would prioritise patient need

• Project initiation document, collaborative effort, approved by PIMSC

• Resourcing approved and team recruited• Three key strands under way expert opinion-

researchers and clinicians, patient opinion and understanding our own portfolio.

• Focus groups and one to one interviews• Initial findings discussed at the Board in May

We said we wanted to achieve a step change in income

• LTP, Blenheim, Frankie & Benny’s, Calendar Girls, SCBI

• Wickes & the tool kit!• Launch of DFP• Gift aid claim

We said we would leverage resource through partnership

• £600,000 donation from CWC

• Up to £5m support for a gene therapy trial from TSB

• Over 20 drugs provided free for TAP

We said we would improve reach reputation and brand

• 50,000 Patient Information booklets• Unique users of OPS up 140%• Patient pages reaching 300,000 people pa• 620,000 unique people visited web (up

49%)• Facebook likes up 20%

We said we would strengthen the organisation

• £7.7M from balance sheet to patients in 3 years

• PDR introduced, self awareness for all• PDR training facilitated by us!!• Pay & Grading review• Chairman & 2 Trustees recruited• Full governance review

Patient Plans• Invested £28.2 million (gross) in research &

trials• TAP extension• Launched online patient services• Set up a Medical Advisory Panel• Established new patient services team and

increased clinician and patient engagement• Key meetings & events - Karen Kennedy, Medcity, George Freeman, Sean Duffy

  FY14Pre-audit

FY13Actual

FY14 Budget

  £’m £’m £’m

Income      

Fundraised income (inc Trading) 13.3 11.7 14.1

Legacies *6.5 6.5 6.5

19.8 18.2 20.6

Investments 1.7 1.7 2.0

Other income (Property sale) - 0.5 -

  21.5 20.4 22.6

Expenditure (extract)

Research Commitments 22.6 29.0 22.4

Deferred commitments (3.9) (3.9)

Patient Benefit expenditure 1.7 1.4 1.9  20.4 26.5 24.3

How

What

Why

Patient plans 2015• We will begin to respond to emerging data from PPN• Trials Acceleration Programme will move from a pilot to a

programme• First, first in human trial• More phase 3 trials• Start conversations about leadership international trials• Bringing together patient data and technology in new exciting

ways • More unique visitors to OPS, more active users and more patient

posts• More reach and engagement with the clinical community and our medical advisory panel

Patient plans 2015

• Speakers House Dinner

• Engagement with manifesto teams

• Contribution to development of life science agenda

Prioritising Patient Need Plans 2015

• Year 1 report May 2014• Patient voice and expert opinion report

January 2015• Definitive incidence and survival stats July

2014• Comprehensive snapshot of research portfolio

July 2014• Prioritisation methodology March 2015• Policy priorities from PPN

Step change in income 2015

• Business Improvement • New fundraising areas • Know Our Audiences • Innovation • Fit for purpose • Naming review 

Reach, Reputation & Brand 2015

• Downing Street reception• Naming review• Online-offline communications mix• Website visitors, social media followers,

contacts on Civi, sign ups to BEAT

Partnerships

• Map what other charities do for patients• Demonstrate value charity can bring to

life science agenda• LLR-HMRN-Sanger• Role in AMRC, NCRI, NCIN etc• Statutory funding

Strengthening the Organisation 2015

• Financial risk model• Embed PDR and define the link with performance

assessment• Self awareness programme for everyone• Core skills development• Review HR policies• External staff survey• Board development• Ground floor!

  FY15Budget

FY14Pre-audit

  £’m £’m

Income

Fundraised income (inc Trading) 14.7 13.3

Legacies 6.9 *6.5

21.6 19.8

Investments 1.8 1.7

Other income (Property sale) - -

23.4 21.5

Expenditure (extract)

Research Commitments 32.3 22.6

Deferred commitments (6.3) (3.9)

Patient Benefit expenditure 2.5 1.7  24.3 20.4

So why do I feel so confident? I joined LLR in 1999.• This is my cousin Rob, in 1999  he was given a 75% 

chance of survival, he didn’t make it but today he would have a 95% chance of survival.

• 15 years ago if you had Chronic Myeloid Leukaemia, you needed a transplant , like Geoff, today you are given a drug every day and can expect normal life expectancy• 15 years ago if you had myeloma, there were pretty much no treatments, now we can prolong life and the quality of life between episodes even though it’s not curable.

I could go on…

“ Leukaemia & Lymphoma Research is a tidal wave of warmth that engulfs you, just as you are feeling most alone”

Life is a gift to be used wisely and lived fiercely