Fighting Mr. Parkinson with Data: Round Three

Self-Tracking and Parkinson’s Disease

How-To SessionRound Three

Kevin Krejci@kevinkrejciJune 20, 2015Quantified Self Expo 2015

Who am I?Who am I?Who am I?Who am I?

image: (cc) emdotKevin Krejci @kevinkrejci @WorldPDCongress @fujitsulabs

Who am I?Who am I?Who am I?Who am I?

image: (cc) emdotKevin Krejci @kevinkrejci @WorldPDCongress @fujitsulabs

Who am I?Who am I?Who am I?Who am I?

image: (cc) emdotKevin Krejci @kevinkrejci @WorldPDCongress @fujitsulabs

Who am I?Who am I?Who am I?Who am I?

image: (cc) emdotKevin Krejci @kevinkrejci @WorldPDCongress @fujitsulabs

Visit our booth!!

What am I fighting?What am I fighting?What am I fighting?What am I fighting?

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What am I fighting?What am I fighting?What am I fighting?What am I fighting?

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What am I fighting?What am I fighting?What am I fighting?What am I fighting?

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Popular assumption:movement disorder

What am I fighting?What am I fighting?What am I fighting?What am I fighting?

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Popular assumption:movement disorder

What am I fighting?What am I fighting?What am I fighting?What am I fighting?

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Rock Steady Boxing SF Popular assumption:movement disorder

Only a movement disorder?Only a movement disorder?Only a movement disorder?Only a movement disorder?

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Only a movement disorder?Only a movement disorder?Only a movement disorder?Only a movement disorder?

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My Long Term GoalsMy Long Term GoalsMy Long Term GoalsMy Long Term Goals

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•Win the Fight (within 12 rounds)

My Long Term GoalsMy Long Term GoalsMy Long Term GoalsMy Long Term Goals

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•Win the Fight (within 12 rounds)

•Optimize productivity and QOL

My Long Term GoalsMy Long Term GoalsMy Long Term GoalsMy Long Term Goals

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•Win the Fight (within 12 rounds)

•Optimize productivity and QOL

•Slow PD progression

My Long Term GoalsMy Long Term GoalsMy Long Term GoalsMy Long Term Goals

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•Win the Fight (within 12 rounds)

•Optimize productivity and QOL

•Slow PD progression

•Help find the cause and cure…

Why do self-tracking?Why do self-tracking?Why do self-tracking?Why do self-tracking?

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We’re all unique…We’re all unique…We’re all unique…We’re all unique…

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We’re all unique…We’re all unique…We’re all unique…We’re all unique…

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Even People with Parkinson’s (PwPs)…

Remember Cholera?Remember Cholera?Remember Cholera?Remember Cholera?

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Popular assumption: airborne illness

Connecting the dots…Connecting the dots…Connecting the dots…Connecting the dots…

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Connecting the dots…Connecting the dots…Connecting the dots…Connecting the dots…

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Connecting the dots…Connecting the dots…Connecting the dots…Connecting the dots…

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Big discovery!

Connecting the dots…Connecting the dots…Connecting the dots…Connecting the dots…

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It starts with the plumbing…

My QS HeadacheMy QS HeadacheMy QS HeadacheMy QS Headache

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Connecting cables…

My QS HeadacheMy QS HeadacheMy QS HeadacheMy QS Headache

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Connecting cables…

My QS HeadacheMy QS HeadacheMy QS HeadacheMy QS Headache

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Connecting cables…

Then Connecting DataThen Connecting DataThen Connecting DataThen Connecting Data

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Then Connecting DataThen Connecting DataThen Connecting DataThen Connecting Data

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Importing from CSVs…

Then Connecting DataThen Connecting DataThen Connecting DataThen Connecting Data

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Importing from CSVs…From apps that allow it…

Discovery!Discovery!Discovery!Discovery!

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My finger tapping speed…

Discovery!Discovery!Discovery!Discovery!

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And typing speed is improving!

And my sleep qualityAnd my sleep qualityAnd my sleep qualityAnd my sleep quality

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Is also improving!

Looking at my sleep dataLooking at my sleep dataLooking at my sleep dataLooking at my sleep data

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I found some patterns…

Quality depends on many Quality depends on many thingsthings

Quality depends on many Quality depends on many thingsthings

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Alcohol bad. Bodyboarding good…

Dancing is good!*Dancing is good!*Dancing is good!*Dancing is good!*

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*Partial list of variousexercise, routines, nutrition and supplements…

Even rain helps…Even rain helps…Even rain helps…Even rain helps…

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And good for California.

Even rain helps…Even rain helps…Even rain helps…Even rain helps…

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And good for California. More rain dances?

When Connecting the DotsWhen Connecting the DotsWhen Connecting the DotsWhen Connecting the Dots

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The patterns emerge…

When Connecting the DotsWhen Connecting the DotsWhen Connecting the DotsWhen Connecting the Dots

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The patterns emerge…And discoveries happen…

When Connecting the DotsWhen Connecting the DotsWhen Connecting the DotsWhen Connecting the Dots

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Good sleep helps my fingers do their walking…

Sleep impacts PD Sleep impacts PD symptomssymptoms

Sleep impacts PD Sleep impacts PD symptomssymptoms

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Sleep impacts PD Sleep impacts PD symptoms*symptoms*

Sleep impacts PD Sleep impacts PD symptoms*symptoms*

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*but PD also impacts sleep…

Checked my own Checked my own plumbingplumbing

Checked my own Checked my own plumbingplumbing

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Stool Test…

Checked my own Checked my own plumbingplumbing

Checked my own Checked my own plumbingplumbing

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Stool Test… Not absorbing my brain nutrients…

Long-chain fatty acidsLong-chain fatty acidsLong-chain fatty acidsLong-chain fatty acids

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Long-chain fatty acidsLong-chain fatty acidsLong-chain fatty acidsLong-chain fatty acids

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Good for PD!

Long-chain fatty acidsLong-chain fatty acidsLong-chain fatty acidsLong-chain fatty acids

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Good for PD!

Long-chain fatty acidsLong-chain fatty acidsLong-chain fatty acidsLong-chain fatty acids

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Good for PD!When properly digested…

Connecting the dots…Connecting the dots…Connecting the dots…Connecting the dots…

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Connecting the dots…Connecting the dots…Connecting the dots…Connecting the dots…

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Another big discovery!

DiscoveriesDiscoveriesDiscoveriesDiscoveries

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DiscoveriesDiscoveriesDiscoveriesDiscoveries

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•Everything is connected!*

DiscoveriesDiscoveriesDiscoveriesDiscoveries

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•Everything is connected!*

*Except for my apps & devices

DiscoveriesDiscoveriesDiscoveriesDiscoveries

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•Everything is connected!*

•Sleep and productivity?

*Except for my apps & devices

DiscoveriesDiscoveriesDiscoveriesDiscoveries

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•Everything is connected!*

•Sleep and productivity?

•The gut and the brain?

*Except for my apps & devices

DiscoveriesDiscoveriesDiscoveriesDiscoveries

image: (cc) emdot @kevinkrejciKevin Krejci

•Everything is connected!*

•Sleep and productivity?

•The gut and the brain?

*Except for my apps & devices

• Need CSVs and open APIs

RecommendationsRecommendationsRecommendationsRecommendations

image: (cc) emdot @kevinkrejciKevin Krejci

RecommendationsRecommendationsRecommendationsRecommendations

image: (cc) emdot @kevinkrejciKevin Krejci

•Start simple!

RecommendationsRecommendationsRecommendationsRecommendations

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•Start simple!

• Figure out what troubles you most

RecommendationsRecommendationsRecommendationsRecommendations

image: (cc) emdot @kevinkrejciKevin Krejci

•Start simple!

• Figure out what troubles you most

• Find out what might help

RecommendationsRecommendationsRecommendationsRecommendations

image: (cc) emdot @kevinkrejciKevin Krejci

•Start simple!

• Figure out what troubles you most

• Find out what might help

• Experiment and track

RecommendationsRecommendationsRecommendationsRecommendations

image: (cc) emdot @kevinkrejciKevin Krejci

•Start simple!

• Figure out what troubles you most

• Find out what might help

• Experiment and track

• Pen and paper is OK

RecommendationsRecommendationsRecommendationsRecommendations

image: (cc) emdot @kevinkrejciKevin Krejci

•Start simple!

• Figure out what troubles you most

• Find out what might help

• Experiment and track

• Pen and paper is OK

• Just do it!

RecommendationsRecommendationsRecommendationsRecommendations

image: (cc) emdot @kevinkrejciKevin Krejci

•Start simple!

• Figure out what troubles you most

• Find out what might help

• Experiment and track

• Pen and paper is OK

• Just do it!

• And share your results!

RecommendationsRecommendationsRecommendationsRecommendations

image: (cc) emdot @kevinkrejciKevin Krejci

•Start simple!

• Figure out what troubles you most

• Find out what might help

• Experiment and track

• Pen and paper is OK

• Just do it!

• And share your results!

• Us snowflakes have a lot in common too…

Starting Simple and Starting Simple and SubjectiveSubjective

Starting Simple and Starting Simple and SubjectiveSubjective

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Starting Simple and Starting Simple and SubjectiveSubjective

Starting Simple and Starting Simple and SubjectiveSubjective

image: (cc) emdot @kevinkrejciKevin Krejci

Starting Simple and Starting Simple and SubjectiveSubjective

Starting Simple and Starting Simple and SubjectiveSubjective

image: (cc) emdot @kevinkrejciKevin Krejci

Starting Simple and Starting Simple and SubjectiveSubjective

Starting Simple and Starting Simple and SubjectiveSubjective

image: (cc) emdot @kevinkrejciKevin Krejci

Starting Simple and Starting Simple and SubjectiveSubjective

Starting Simple and Starting Simple and SubjectiveSubjective

image: (cc) emdot @kevinkrejciKevin Krejci

mPowermPowermPowermPower

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mPowermPowermPowermPower

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A great place to start for both PD patients and control groups (the rest or you!)

Come to Portland!!Come to Portland!!Come to Portland!!Come to Portland!!

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Learn and Teach*Learn and Teach*Learn and Teach*Learn and Teach*

image: (cc) emdot @kevinkrejci @WorldPDCongress @fujitsulabsKevin Krejci

Learn and Teach*Learn and Teach*Learn and Teach*Learn and Teach*

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•Let’s connect the dots together and stop PD in its tracks!

Learn and Teach*Learn and Teach*Learn and Teach*Learn and Teach*

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•Let’s connect the dots together and stop PD in its tracks!

•Just like the dot connectors did with Cholera

Learn and Teach*Learn and Teach*Learn and Teach*Learn and Teach*

image: (cc) emdot @kevinkrejci @WorldPDCongress @fujitsulabsKevin Krejci

•Let’s connect the dots together and stop PD in its tracks!

•Just like the dot connectors did with Cholera

•Then I’ll really sleep better!

Round 4 QS HomeworkRound 4 QS HomeworkRound 4 QS HomeworkRound 4 QS Homework

image: (cc) emdot @kevinkrejciKevin Krejci

Round 4 QS HomeworkRound 4 QS HomeworkRound 4 QS HomeworkRound 4 QS Homework

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Enzymes, probiotics, uBiome, and more stool tests!Master data visualization tools…

Round 4 QS HomeworkRound 4 QS HomeworkRound 4 QS HomeworkRound 4 QS Homework

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Enzymes, probiotics, uBiome, and more stool tests!Master data visualization tools… And read a good book!

Behind every boxer…

There are a lot of people to thank…

Wife and kids (Esther, Kai and Alani)

Mom and Dad

Brother and Sister

Extended Family and Relatives

Friends and Followers

Colleagues and Management at Fujitsu, @Nifty, and RocketSpace

World Parkinson Coalition

Rock Steady Boxing SF

The Parkinsons Institute

Physical Therapy Select

SoulWorks

23andMe

PatientsLikeMe

UCSF Neurology Department

The Working Stiffs Support Group

Ambulatory Parkinson’s Disease Monitoring (APDM)

Michael J. Fox Foundation

Davis Phinney Foundation

National Parkinson Foundation

Parkinson Disease Foundation

Parkinson’s Action Network

The App and Platform Developers

The Gadget Makers

And last but not least…

YOUand the rest of the

Quantified Self community!

YOUand the rest of the

Quantified Self community!

YOUand the rest of the

Quantified Self community!

THANK YOU!!!

Get Engaged!