Upload
hadiep
View
216
Download
2
Embed Size (px)
Citation preview
1. Legal and Ethical Issues in Human Genetics
2. Confidentiality
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 1
3. Malpractice Law
4. Genetic Discrimination
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 2
5. Genetic Discrimination
6. Regulation of Human Genome Research
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 3
7. Gene Patents
8. Ethical Challenges in Genetic Testing
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 4
9. Views on Genetic Testing
10. Autonomy
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 5
11. Beneficence / Nonmaleficence
12. Legal Responsibilities of Health Care Providers
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 6
13. Case 3: Familial Adenomatous Polyposis
14. Familial Adenomatous Polyposis
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 7
15. Genetic testing for FAP
16. Case 3: Familial Adenomatous Polyposis
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 8
17. Ethical Principles of Concern:
18. Duty to Warn Third Parties Safer v. Pack (1996)
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 9
19. Duty to Warn Third PartiesSafer v. Pack (1996)
20. Duty to warn third parties, cont.
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 10
21. Duty to warn third parties, cont.
22. Duty to warn third parties, cont.
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 11
23. Ethical Issues to Consider:
24. Genetic Testing in Minors
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 12
25. Genetic Testing in Minors
26. Friedreich Ataxia Case 1
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 13
27. Freidreich Ataxia Case
28. Issues to consider:
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 14
29. Case: Hemophilia in the family?
30. Case: Hemophilia in the family?
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 15
31. Ethical Principles to Consider:
32. Case 1: CF Newborn Screening
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 16
33. Case 1: CF Newborn Screen
34. Case 1: CF Newborn Screening
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 17
35. Possible Explanations for Discrepancy:
36. How to proceed…
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 18
37. Ethical Principles of Concern:
38. Case: Known but unknowing patients with Factor V LeidenDefic...
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 19
39. Case: Known but unknowing patients with Factor V LeidenDefic...
40. Ethical Principles to consider:
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 20
41. Case 2: 14 year old female with lack of pubertal development...
42. Past Medical History
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 21
43. Physical Exam
44. Physical Exam, cont.
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 22
45. Work-up:
46. Follow-up
Tufts OpenCourseWare © 2007 Tufts University
Legal and Ethical Issues in Genetics
OCW: Genetics (L. Demmer) Page - 23