Embed Size (px)
Citation preview
A children's rights based approach to involving young people in research: An evaluation of a young people’s advisory group as a model for participation
Rebecca Dennehy, School of Public Health
30th November 2017
Patient and Public Involvement in Research (PPI)
• Research being carried out ‘with’ or ‘by’ members of thepublic rather than ‘to’, ‘about’ or ‘for’ them
• Article 12 of the UNCRC
•Methodological rigour, facilitate dissemination andimplementation of research findings, and positively impactthe young people involved
• Insight on young people’s involvement is lacking
Lundy’s Model of Participation
• Over 80% of young people own at least one form of mediatechnology
• In the last decade media attention to cases of suicide amongyoung victims of cyberbullying has pushed this phenomenonto the forefront of the public agenda
• 20-40% of young people report experiencing cybervictimisation
• 1 in 10 young people in Ireland report being victims ofcyberbullying
• Cyberbullying is associated with emotional stress, anxiety,depression. self-esteem, substance abuse, suicidal ideationand suicidal behaviour
Cyberbullying Overview
YPAG Process
Session 1
Building rapport
Session 2 Capacity Building
Session 3
Study Design
Session 4: Recruitment
11 focus groups 64
Young People
Session 5
Interpreting findings
Session 6
Final evaluation
and presentation
of certificates
• Guidelines for evaluating participation work with young people
• Planned at the outset and ongoing throughout the process
• Motivations, space, voice, audience, influence, process, impact, perceived outcomes, recommendations
• Participatory techniques used to collect data
• Co-analysis using principles of thematic analysis
• Framework approach
Evaluation Process
Hopes and fears
Tweet your thoughts-140 characters or less
What makes a group work well?
Worked well/didn’t work/could be improved?
Recommend to a friend?
Co-Analysis
Framework approach• Lundy’s Model of Participation • Additional aspects-motivations, perceived outcomes• Familiarisation, open-coding, categorisation, interpretation
Motivations-Subject Matter (Cyberbullying)
Relevance of Research
“We are going through it and it is something that concerns us”
Seeking knowledge and understanding
“To understand the impact cyberbullying has on people”
Cyberbullying fears
“Not being safe in your own home”
Altruism
“To help people cope and deal with cyberbullying”
“To help bullies understand the impact of their actions”
Opportunity for Action
“To find ways to prevent cyberbullying instead of ignoring it”
Motivations-Young People’s Perspective
Offer Young People’s Perspective
“The difference between what adults and young people think, that is a problem”
“People think it’s [cyberbullying] something different”
“To help you understand what it means to us”
Seeking Peer Perspective
“To share my view on cyberbullying and see if other people have the same view”
Motivations-Social Opportunity
To meet new people
Try a new experience
“To try a new experience and situations I am not used to”
Project Fears
Doubting value of participation
“Not helping at all with the project”
Won’t know what to do
Space
Opportunity to discuss relevant issues
“Good experience to talk about things that we hadn’t talked about in as much detail before”
No judgement
“You do not have any previous opinion of who we are so we can be just be completely open and honest and that is how you will see us”
Comfortable Environment
“Easy to put forward ideas”
Relaxed Atmosphere
“It was chill”
Voice
Knowledge and Understanding
“I feel that I have a better understanding of cyberbullying, better on a whole new level”
“I understand now not to take cyberbullying personally as I know the reasons behind it”
Peer Learning
“I found it interesting to see and share others views”
Audience
Feeling listened to
“That we were listened to”
Feeling understood
“You kind of know how we feel, how it works, a lot of older people wouldn’t”
Feeling valued
“They [research team] greatly appreciate your thoughts and opinions”
Influence
Contribution to Study
“You designed it around what we were saying”
“I think it made the results more accurate than if only an adult were to do it”
Making a Difference
“Really good way to make a difference”
“I feel like I have really changed something”
Outcomes for Young People
Fun Experience
“Really good fun experience”
“I can’t wait for what will come next”
“New friends and loads of fun”
“It was lit fam”
Learning
“Helped us to understand”
“It helped to give an insight into cyberbullying”
“It taught me ways to help”
“I told loads of people what I learned”
Personal Benefits
“Getting out of comfort zone”
“Good to try new things”
“Increased Confidence”
Recommendations
More sessions
“I wish there was more days we met up”
“Expand Topics of Conversation”
Wearing of school uniform
Additional food items (rice cakes, avocado, branded tea)
UCC Certificates
To Conclude…
• YPAG model an effective way of operationalising a rights-based approach to involving young people in research
• YPAG were motivated by the topic of cyberbullying and its relevance to their lives
• They felt enabled to share their views and felt listened to
• The young people felt that they had directly contributed to the study and that their involvement improved the findings
• They reported a positive experience and suggested that the approach should be used to explore other topics relevant to young people
References available on request
