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Annual Report 2014/2015
Supporting Families in Mental Illness
New Zealand Incorporated
National Council President John van der Heyden SFNZ Registered Office: 2A Burmah St, Aramoho. Whanganui 4500, NZ Auditor: Venter and Hull Chartered Accountants Ltd, Whanganui Accountants: Belton Smith & Co. Whanganui Solicitor: Palairet Law, Wellington
Vision: To carry a message of hope for family, whānau of people who are experiencing a major mental illness
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Contents Mission ............................................................................................................................... 3 Purpose .............................................................................................................................. 3 Values ................................................................................................................................. 3 Code of Family Rights ......................................................................................................... 3 Charitable Status ................................................................................................................ 4 SFNZ Corporate Membership (Member Organisations) .................................................... 4 Governing Body: National Council ..................................................................................... 4
Personnel 2014 / 2015 ........................................................................................................... 4 National Council: ................................................................................................................ 4 Patron: ................................................................................................................................ 5 Key Relationships built with: .............................................................................................. 5
Contact Information ............................................................................................................. 11 Thank You to Our Funders and Supporters ...................................................................... 12
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Supporting Families in Mental Illness New Zealand Incorporated
Mission To provide a community based service to support, educate, inform and advocate for families, whānau, people and communities affected by mental illness and addictions.
Purpose To provide support for families of persons affected by major mental illness, and to advocate on their behalf on matters affecting the person, family, whānau and caregivers.
Values Family, Whānau Focus: Family is the focus for our services and the primary consideration in our work. We promote early intervention and identification, and recovery and hope for people, families, whānau and communities affected by issues associated with mental illness and addictions. Respect: Respect means recognition of diversity, compassion and professionalism in all of our dealings; inclusiveness, collaboration and transparency that build trust in our relationships with service users, members, staff, stakeholders, and the community and helps eliminate discrimination and stigma. The inherent dignity, worth and rights of families and whānau, their expertise in dealing with their situation and their right to be listened to and make informed choices is paramount. Quality: We set high standards for ourselves and strive to meet them in a professional manner that incorporates innovation, leadership, and bring satisfaction to our clients and stakeholders. We are committed to on-‐going learning, innovation and effective, accountable management. Cultural sensitivity: We recognise the importance of protection, participation and partnership under the Treaty of Waitangi. We recognize the importance of cultural and ethnic diversity and that individuals, groups, family and whānau expectations that SFNZ demonstrate sensitivity.
Code of Family Rights We advocate for, promote, support and strongly urge government to legislate for the rights of families and whānau when dealing with mental illness. The Code of Family Rights is therefore a foundation document for our organisation (see-‐ http://www.supportingfamiliesnz.org.nz/SFMI%20code%20of%20family%20rights%20brochure.pdf)
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Charitable Status SFNZ is a Charitable Trust with incorporated status. Charity Registration Number CC47015.
SFNZ Corporate Membership (Member Organisations) As at 30 June 2015, SFNZ has a membership of 17 individually incorporated societies or charitable trusts with charitable status and are governed by volunteer committees and salaried operational staff. Each member organisation offers a range of services to family, whānau and people who experience mental illness e.g. support groups, information, education, housing and advocacy to family and whānau.
Governing Body: National Council SFNZ governance body is the National Council, a democratically elected board with members nominated and elected by branches annually at the AGM. All members serving on the National Council act in a voluntary capacity. It consists of a President, Vice-‐President and no less than five and no more than seven councilors. Its primary function is to set strategic direction and provide leadership and vision.
Personnel 2014 / 2015 National Council: John van der Heyden (President) Ernie Tait (Vice President) Jim Crowe Sandra Terewi Kate Yesberg Lance Burdett Gary Sturgess John Dickson
SUB COMMITTEE COUNCIL MEMBERS Advocacy John van der Heyden, Jim Crowe, Strategic Plan update Gary Sturgess, John Dickson, Sandra
Terewi, Kate Yesberg Finance John van der Heyden, Ernie Tait Housing Research John Dickson, Kate Yesberg Empathear Lance Burdett, Kate Yesberg, John
Dickson Fundraising John van der Heyden, Lance Burdett
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Patron: Ken Mason
Nature of Business: To provide information, support, education and advocacy for families, whānau of people experiencing a major mental illness. Key Relationships built with: Rod Bartling: MoH Group Manager, MHS Improvement, Sector Capability and Implementation Hon Peter Dunne: Associate Minister of Health John Crawshaw: Director of Mental Health in New Zealand Platform: The national mental health and addiction network of community organisations NZ Carers Alliance: A coalition of 44 national non-‐profits, which met for the first time in
November 2004 to call for a Carers' Strategy for New Zealand. By working together, the Carers Alliance achieved its goal in April 2008, when the Government launched the New Zealand Carers' Strategy and five year Action Plan.
Comcare : Comcare Trust is an innovative, forward thinking organisation that is recovery focused and builds on people's strengths by taking a practical approach to supporting people to be independent.
Lifewise: Lifewise in Rotorua offers a residential programme – Te Ara Ora, the Pathway to Wellness for people and their whanau experiencing mental health or addictions.
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President’s Report Tihe mauri ora! Tēnā koutou, tēnā koutou, tēnā koutou katoa Behold the breath of life! Greetings, greetings, greetings to everyone Dear Members,
Thank you all for the opportunity to serve you as President of SF National Council. I am grateful to members of SF National Council, our network of Managers and staff and of course our families and whānau for their work and support. It is my pleasure to offer you this report. It is with gratitude and regret that I record the resignation from National Council of John Dickson, Jim Crowe and Lance Burdett. Each in their own way have contributed in significant and valued ways to our work. I thank each for their efforts. During the year National Council through Fiona Perry our National Coordinator we have provided two more ‘narrative reports’ to the Ministry of Health. This is regarded by the Ministry as a high value product in that it provides an overview of DHB services and the work of our people in SFNZ directly from the regions. The voice of our families and whānau is heard by the decision-‐makers. So a big thanks to Managers and staff who help by providing responses to our survey. And a big thanks to Fiona for producing the six monthly report. What we can do in this report is give an overview of the impact in our communities of our services. This is increasingly important because reporting on contracts continues to focus on activities, inputs, costs and the allocation of time. From these very demanding and time consuming reporting mechanisms all we can see it that a service was delivered at a certain cost for a certain number of people. The narrative on the other hand can show the outcomes we achieve at the local community level. As an example of the value of this work, Fiona has been appointed to the inaugural meeting of a Ministry of Health project to develop population outcomes for mental Illness and Addiction services. Following your direction at our last AGM to explore opportunities for a more cohesive national entity, National Council has continued dialogue with our membership. The aim is to help boost our individual society’s resilience in the face of increased pressure by government to reduce the number of local contracts. We held a very positive Hui in August and following that a steering committee and working party have been formed. We look forward to a progress report at this AGM on options. We must continue the momentum because we may lose control of our destiny if we don’t. Take for example the situation in the Deep South. Four individual incorporated SF societies were directed by the DHB to form one body as individual contracts would not be
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renewed in their current state. A trust was formed to organise the transition with resistance from the smaller incorporated societies. The change is now complete. The shift from four member based incorporated societies with the core value of fellowship to a single trust focussed on business objectives is significant. While we are assured that members of the trust will retain a commitment to families, the family membership control is lost. The research into 'Barriers to access for housing for people with mental illness' retains a guide to identify opportunities for government and non-‐government stakeholders to improve their performance in the provision of appropriate accommodation people with mental illness, and related respite accommodation. The SF Housing Trust is pleased to report that contracts remain in place with ComCare NZ in Christchurch and LifeWise in Rotorua. We are assured that family members are well cared for in suitable long-‐term housing. Our social media presence continues to expand to share information, promote the services for Supporting Families Member Organisations and other key stake holders. In conclusion I would like to congratulate our National Council members, local governance committees, managers and staff and families, whānau and volunteers for their magnificent contribution in 2014/15. Āpiti hono tātai hono, rātou te hunga mate ki a rātou Tātou te hunga ora ki a tātou Tēnā koutou, tēnā koutou, tēnā tātou katoa I pay tribute to those who have passed before us I give thanks to those of us living Greetings to everyone
John van der Heyden National Council President
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National Coordinator’s Report Tēnā koutou katoa, As I sit down to write about the last 12 months, I am mindful of the contributions and support made by SF member organisations to the national organisation by contributing not only to the narrative report but to any request for information or suggestions. In June, as part of the information gathered for the Narrative Report member organisations were asked to consider whether poverty was having a negative impact on family and whānau affected by mental illness, and the response was a resounding yes. While there have been attempts to define and measure poverty in New Zealand, and it is acknowledged that the social welfare system has been effective in reducing poverty in the elderly and for families without children, coverage in the media regarding the ‘working poor’ has highlighted that there are still disparities. Increased housing costs in the main urban areas is one factor that impacts on disposable income. The impact of these social determinants of health have also been considered as part of the ‘Equally Well’ Project. Equally Well1 is a project lead by Te Pou and Platform Trust, with support from Dr. Helen Lockett. Equally Well, is a national programme that seeks to work collaboratively to improve the physical health outcomes for people who experience mental health and or addiction issues, by considering the social determinants of health alongside physical and mental wellbeing. We support the aims of this collaborative project and would like to see the principles extended to the family and whānau. Information gathered as part of preparing the narrative report has also provided me with an opportunity to contribute a family and whānau perspective at the forum, which might not otherwise be represented.
The report, Accommodating people with serious mental illness: can we do better?, prepared by David Pickens, asked respondents to consider how the current system is working and what could be improved. In preparing the report, David spoke with a number of key stakeholders very wide overarching look at current systems, policy and provision of social housing. Sitting alongside this are a number of other initiatives including the government’s own review of social housing, and the Productivity Commission’s review of the provision of social services. John Dickson and Kate Yesberg have been evaluating the responses received to date and continue to speak with stakeholders.
In October, we took the brave step to talk about suicide openly at our Conference ‘Suicide is it time for Openness’. Judge Neil MacLean (retired), the Chief Coroner spoke about his role, and how legislation determines what information can be reported. Judge Maclean’s view that by encouraging appropriate discussion could potentially model the way young people deal with subject on social media. Achieving a balanced approach could be one way to progress the debate and encourage the development of robust media guidelines to encourage and educate responsible reporting.
1 http://www.tepou.co.nz/improving-‐services/physical-‐health
As I sit down to write about the last 12 months, I am mindful of the contributions and support made by SF member organisations to the national organisation. The ongoing commitment to provide ma-terial and stories that represent the experience of family and whānau when accessing mental health services for the narrative report helps to give family a voice, and an opportunity to explore some of the issues family experience. In June, as part of the information gathered for the Narrative Report member organisations were asked to consider whether poverty was having a negative impact on family and whānau affected by mental illness, and the response was a resounding yes. While there have been attempts to define and measure poverty in New Zealand, and it is acknowledged that the social welfare system has been effective in reducing poverty in the elderly and for families without children, coverage in the media regarding the ‘working poor’ has highlighted that there are still dis-parities. Increased housing costs in the main urban areas is one factor that impacts on disposable income. The impact of these social determinants of health have also been considered as part of the ‘Equally Well’ Project.
Equally Well[1] is a project lead by Te Pou and Platform Trust, with support from Dr. Helen Lockett. Equally Well, is a national programme that seeks to work collaboratively to improve the physical health outcomes for people who experience mental health and or addiction issues, by considering the social determinants of health alongside physical and mental wellbeing. We support the aims of this collaborative project and would like to see the principles extended to the family and whānau. Information gathered as part of preparing the narrative report has also provided me with an oppor-tunity to contribute a family and whānau perspective at the forum, which might not otherwise be represented.
The report, Accommodating people with serious mental illness: can we do better?, prepared by David Pickens, asked respondents to consider how the current system is working and what could be im-proved. In preparing the report, David spoke with a number of key stakeholders very wide overarch-ing look at current systems, policy and provision of social housing. Sitting alongside this are a number of other initiatives including the government’s own review of social housing, and the Productivity Commission’s review of the provision of social services. John Dickson and Kate Yesberg have been evaluating the responses received to date and continue to speak with stakeholders.
In October, we took the brave step to talk about suicide openly at our Conference ‘Suicide is it time for Openness’. Judge Neil MacLean (retired), the Chief Coroner spoke about his role, and how leg-islation determines what information can be reported. Judge Maclean’s view that by encouraging appropriate discussion could potentially model the way young people deal with subject on social media. Achieving a balanced approach could be one way to progress the debate and encourage the development of robust media guidelines to encourage and educate responsible reporting.
[1] http://www.tepou.co.nz/improving-services/physical-health
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Chris Bowden and Anne Embury at Conference
Chris Bowden delivered a very entertaining yet thought provoking address based on his research into how to connect and find creative ways to need for all those bereaved by suicide to talk, something that is not always easy to do. Chris suggests that some of the current support groups and programmes may not be effective, accessible or reaching those in need. I would like to thank Greg Dobson, Corinda Taylor, Sarah Davies, Alison Sohier, Moira Clune, Kiwa and Huataki Whareaitu, and Brontё Jeffries for their fabulous contribution, that helped make the conference a success. Overall the feedback was very positive, the mood was congenial, some participants going so as to say it was the best conference they had ever attended. Top marks must go to the team at the James Cook Grand Chancellor Hotel for their excellent venue and high quality of catering. Nothing was too much trouble. Empathear, the APP designed by Sarah Mohktar to emulate auditory hallucinations experience by voice hearers, was released to SF member organisations on a trial basis, to test and iron out any bugs. While the system of accessing the APP, via Google Beta Testers Group, proved to be cumbersome some valuable feedback has been gathered. Development of the APP has progressed slowly to ensure that any large scale release will be trouble free and working without any bugs. Through social media (Facebook, PINTEREST, Twitter, and LINKEDIN), I am able to connect with a wider audience, promote local initiatives and promote the website. Followers on all platforms, including the website, has increased over the last 12 months and has included
Chris Bowden delivered a very entertaining yet thought provoking address based on his research into how to connect and find creative ways to need for all those bereaved by suicide to talk, something that is not always easy to do. Chris suggests that some of the current support groups and programmes may not be effective, accessible or reaching those in need. The need to talk openly about suicide is part of an ongoing discussion nationwide regarding how best to support people in times of distress.
I would like to thank Greg Dobson, Corinda Taylor, Sarah Davies, Alison Sohier, Moira Clune, Kiwa and Huataki Whareaitu, and Brontё Jeffries for their fabulous contribution, helped make the conference a success. Overall the feedback from the conference was very positive. Despite a difficult topic, the mood was congenial, some participants going so as to say it was the best conference they had ever attended. Top marks must go to the team at the James Cook Grand Chancellor Hotel for their excellent venue and high quality of catering. Nothing was too much trouble.
Empathear, the APP designed by Sarah Mohktar to emulate auditory hallucinations experience by voice hearers, was released to SF member organisations on a trial basis, to test and iron out any bugs. While the system of accessing the APP, via Google Beta Testers Group, proved to be cumbersome some valuable feedback has been gathered. Development of the APP has progressed slowly to ensure that any large scale release will be trouble free and working without any bugs.
Through social media (Facebook, PINTEREST, Twitter, and LINKEDIN), I am able to connect with a wider audience, promote local initiatives and promote the website. Followers on all platforms, including the website, has increased over the last 12 months including contact from family members seeking assis-tance. In most cases these have been forwarded to a local member organisation. Family and whānau, who have used the website or Facebook to make contact have been very complimentary about the speedy response they have received when a referral has been passed on. Well done!
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contact from family members seeking assistance. The response from individual member organisations to referrals and, requests for information via social media has been fabulous, fast and family members using social media to make contact have been very complimentary about the service they have received. Well done! Once again, I have enjoyed travelling around visiting individual offices. It is a real privilege to see where and how each organisation works. Earlier in the year, I attended a regional meeting held in Auckland and met team members working in Northland, Auckland, Waikato and Taranaki. Each community presents different challenges from isolated rural communities with very little in the way of infrastructure to urban populations where English is a second language, the passion and commitment shown by SF staff is the same. I would like to thank the managers and staff of each member organisation who have made me welcome when I have visited, shared expertise and attended the conference in Wellington. In particular, I would like to thank SFNZ Chair John van der Heyden and National Council for their confidence and support. Hei konā mai Fiona
Fiona Perry National Coordinator
Once again, I have enjoyed travelling around visiting individual offices. It is a real privilege to see where and how each organisation works. Earlier in the year, I attended a regional meeting held in Auckland and met team members working in Northland, Auckland, Waikato and Taranaki. Each community presents different challenges, from isolated rural communities with very little in the way of infrastructure to urban populations where English is a second language, despite these differences the passion and commitment shown by SF staff is amazing.
I would like to thank the managers and staff of each member organisation who have made me welcome when I have visited, shared expertise and attended the conference in Wellington. In particular, I would like to thank SFNZ Chair John van der Heyden and National Council for their confidence and support.
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Contact Information AORAKI -‐ 77 Grey Road, Timaru Ph: 03-‐684 4523 Fax: 03-‐684 4524. Email: [email protected]
AUCKLAND -‐ 423 Great North Road, PO Box 78-‐122. Grey Lynn, Auckland Ph: 09-‐378 9134 Fax: 09-‐378 6783. Email: [email protected]. Web: www.sfauckland.org.nz
CANTERBURY – 275 Hereford Street, PO Box 22098. Christchurch 8140 Ph/Fax: 03-‐366 9284. Email: [email protected]
CENTRAL OTAGO -‐ 28 Ashworth Street, PO Box 356. Alexandra Ph: 03-‐448 9303 Fax: 03-‐448 9026. Email: [email protected]. Web: www.sfcentral.co.nz
EASTERN BAY OF PLENTY – Pou Whakaaro -‐ 28 Commerce Street, PO Box 523. Whakatane Ph: 07-‐308 9430 Fax: 07-‐308 9432. Email: [email protected],nz
MANAWATU – 160 Cuba Street, PO Box 5010. Palmerston North Ph: 06-‐355 8561 Fax: 06-‐355 8562. Email: [email protected] : Web: www.manawatusf.org.nz MARLBOROUGH-‐ 4 Scott Street. Blenheim Ph: 03-‐577 5491 Fax: 03-‐577 5492. Email: [email protected], NELSON – Suite 6, Level 1 Alma House, 83A Buxton Square, Nelson Ph/Fax: 03-‐546 6090 Admin Ph: 03-‐545 8162. Email: [email protected]. Web: www.sfnelson.org.nz
OTAGO -‐ 34 Prince Albert Road, PO Box 4003, St Kilda. Dunedin Ph: 03-‐455 5973 Fax: 03-‐455 0035. Email: [email protected]. Web: www.supportingfamiliesotago.co.nz
SOUTHLAND -‐ 366 Dee Street, PO Box 475. Invercargill Ph: 03-‐218 2100 Fax: 03-‐218 2104. Email: [email protected],
TARANAKI -‐ Level 3, Brougham House, 50 Devon Street West, PO Box 8291.Central New Plymouth Ph: 06-‐757 9300 Fax: 06-‐757 3670 Email: [email protected]
WAIKATO-‐ Ground Floor, YWCA Building, 28 Pembroke Street. Hamilton Ph: 07-‐839 7069 Fax: 07-‐839 0175. Email: [email protected],
WAIRARAPA -‐ 323 Queen Street, PO Box 2110, Kuripuni. Masterton Ph: 06-‐377 3081 Fax: 06-‐377 5263. Email: [email protected]. Web: www.sfwai.org.nz
WAITAKI -‐ Community Mental Health Service, 2 Trent Street, Private Bag 50059. Oamaru Ph/Fax: 03-‐434 1130. Email: [email protected]
WANGANUI -‐ 40 Guyton Street PO Box 7035 Mid Ave Post Office. Wanganui Ph/Fax: 06-‐345 3301. Email: [email protected],
WELLINGTON -‐ Atareira, Level 1, 2 Lukes Lane, PO Box 355. Wellington, 6144 Ph: 04-‐499 1049 Fax: 04-‐499 1063. Email: [email protected]. Web: www.atareira.org.nz
WEST COAST -‐ 132 Tainui Street, PO Box 500. Greymouth Ph: 03-‐768 4290 Fax: 03-‐768 4265. Email: sfnz-‐[email protected],
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Thank You to Our Funders and Supporters Funders SFNZ would like to thank the Ministry of Health for its ongoing support. Grants: SFNZ appreciates the support we have received and would like acknowledge grants we received from the following:-‐
Donations SFNZ also wishes to thank those individuals who generously gave donations to help our work. Bequests SFNZ appreciates the support from people who have left funds through bequests.
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Thank You to Our Funders and Supporters Funders SFNZ would like to thank the Ministry of Health for its ongoing support. Grants: SFNZ appreciates the support we have received and would like acknowledge grants we received from the following:-‐
Donations SFNZ also wishes to thank those individuals who generously gave donations to help our work. Bequests SFNZ appreciates the support from people who have left funds through bequests.
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www.supportingfamilies.org.nz
New Zealand
SUPPORTINGFAMILIESin Mental Illness
