Asian MS Newsletter Autumn/Winter Issue, 2012

7/30/2019 Asian MS Newsletter Autumn/Winter Issue, 2012

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Page 1 Multiple Sclerosis Society. Registered charity no 1139257/SC041990 Registered as a limited company in England and Wales(07451571)TO DONATE BY TEXT TO ASIAN MS: Send AMSS89 10 to 70070

Au tumn/Winter Issue 2012

Asian MS

Newsletter

IMPOSSIBLE IS NOTHING!The legal world always seemed so glamorous to me.Every week Id sit and watch Ally McBeal and think thatcould be me. I even went to the business card machinein the local supermarket and had my own cards printed

up at the age of 15. So when I left school, it was clear tome what I wanted to do. After finishing my A Levels, Iwent to study Law at university. And three years later Igraduated, ready to take on the legal world!

In my early 20s, Iwas diagnosedwith MS. I wasdevastated and

dreaded theworst. The illnesswas new to myenvironment. I didnot know anyonewho had MS andthere was ageneral lack ofunderstanding as

to what MS was.Due to mydiagnosis, I couldnot go on to do my Post Graduate which was mandatoryfor me to become a solicitor. As I was initially very weak,I could not over exert myself and found comfort inkeeping my mind occupied. In a way, I started feelingsorry for myself.

I was fortunate to have exceptional support frommy family and friends. In order to keep busy anddivert my mind elsewhere, I began to take upvarious courses including complementary

therapies. This was in the hope that I would beable to understand myself, my mind and mybody; to try and understand why this washappening to me. The courses did not give methe answers to my questions but they did teachme many things, including having a positivemind and an ambitious outlook. I was moving onand getting on with my life. My legal dreamsbehind.. Is this what I wanted?

A few years later, a conversation with my fatherchanged everything. He reminded me howmuch I wanted to study law and how hard Idworked during my degree. He was right but Iwas only one third of the way to becoming asolicitor. I had a lot of catching up to do andover the years doubts had built up in my mindas to whether I could still do it.

There was only one way to find out. I applied forthe post graduate course and to my surprise, Iwas accepted. A few weeks later, I was back atuniversity, studying the subject I loved. Goingback to studying was difficult not just adjustingback to lectures, coursework and exams, butalso having the loss of income, social life and,most, importantly coping with the MS.


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Looking back, it was not as hard as I thought. I hadsupport from organisations that I did not even knowoffered help. This gave me even moreencouragement. Throughout this time, all I couldthink was that I had to do this, not only for me but formy family. Today, Im working as a solicitor in a busylaw firm. I draft legal documents, negotiate deals and

represent clients in court just like the lawyers inAlly McBeal!

My message is simple, if you put your mind to it,nothing is impossible. Having MS, or in fact, anyother illness does not mean that your life has to stop.There may be obstacles and restrictions on yourjourney but the key is to stay positive.

Ms Dee Popat - LLB (Hons)

Do YOU have a

personal story to

tell?

If you would like othersto hear about your

personal journeywith MS then

please do get intouch with us here at Asian MS. [email protected]

FUNDRAISING FOR ASIAN MS

If you are interested in

fundraising for Asian MS, please

contact our fundraising officer, Mukesh

Jethwa [email protected]

We rely on donations to keep going so ifyou know of someone wanting to raisemoney for charity, why not suggest thatthey fundraise for Asian MS? There arefurther details in this newsletter abouthow to make a donation and what themoney is needed for.

Dee has been a member of Asian MS foraround two years. She has also beeninvolved in other MS charity work andorganised the L-Factor talent show whichraised 5,000. Shes always looking to do

more MS-related work when theopportunity arises.

She is also involved in other voluntarywork she is/has been the Secretary ofthe Young Lohana Association of NorthLondon, Cultural Secretary for the HinduCouncil in Brent, Chair of the IndependentCustody Visiting Panel (Harrow), a

volunteer with Ashiana (which helpschildren with learning difficulties), and amember of the Independent AdvisoryGroup for Harrow Police. She also enjoyssocialising, eating out and watchingmovies.

Deadline for the next edition of

the newsletter is 28th

February

2013. Please send your stories,

links, photos and news to

[email protected]
mailto:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]


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A message from the EditorSummer has come and gone very quickly

and what a summer it was. The Olympic

and Paralympic Games brought the

nation together and put the spotlight on

the amazing achievements of athletesfrom across the globe. I was lucky enough to see live

action from both events but I was particularly amazed at

the athletic ability of the wheelchair rugby players. What

a completely crazy and brutal sport! What many

Paralympic first-timers seemed to come away with was a

sense of anything is possible and achievable if you put

your mind to it.

This is what we try to encourage here at Asian MS, and

we would love to hear about your personal stories abouthow you have coped with your MS diagnosis. This is why

the front page for this edition has been given to one of

our members, Dee Popat, who continued to pursue her

dreams of going into the legal field post-diagnosis.

We are hoping to run a few fundraising events soon, so

please do keep us informed of any ideas. With Eid,

Navratri and Diwali having come and gone,

and Christmas fast approaching, please do

remember Asian MS when youre thinking

about making charitable donations during

these celebratory events.

Lastly, we rely on volunteers and there is

always more work than there are hands to

get it done! If youd like to get involved

please let us know. Specifically, were

currently looking for a Membership

Secretaryand a Website Editor.

Enjoy this edition and please pass it on to

anyone who you think may beinterested in our work.

-Trishna x

PS. Please dont forget to book your flu

jab, if you have MS! More details on p.13.

CONTENTS-Impossible Is Nothing: A Personal

Story.p.1-2

-A message from the Editor.p.3

-General News.p.4-5

-First Serve!: Tennis Tournament

Fundraiser..p.6

-A Chance To Get Involved.p.7-9

-Relapse Support Scheme.p.10

-Care & Support Update.p.11

-MS Society Awards.p.12

-Dates For Your Diary.p.13

-Paralympics Opening Ceremony; Launch of

WAMS.p.14

-Funding Support Opportunity; Getting Your

Flu Jab.p.15

-Recipe From Lubna; MS In The

Media.p.16

-General Information.p.17

-Latest Research & MS In The News.p.18

-Fundraising For Asian MS.p.19

-Useful Information.p.20


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GENERAL NEWS

International collaboration to speed up

research into progressive MSThe MS Society has joined an international collaborative effort

to speed up the development of treatments for people

with progressive forms of MS.

The International Progressive MS Collaborative was launched

on World MS Day in May by charities from the UK, USA,

Canada, Italy and the Netherlands, along with the MS

International Federation.

Researchers and medical experts from across the globe will

come together later this year to discuss priorities and identify

the research that is needed to get us closer to finding

treatments specifically for progressive MS.

Dr Doug Brown, the MS Societys Head of Biomedical

Research and a member of the Collaborative said: There are

currently no treatments for people with progressive MS to slow

the worsening of disability, and trials and studies to identify

potential treatments have so far been disappointing.

Thats why were delighted to be part of the International

Progressive MS Collaborative a proactive attempt by MS

charities around the world to find an urgent answer to this

problem.

It is hoped that by working together, MS charities can identify

research opportunities more quickly and effectively.

Amy Winehouse Foundation

funds short breaks for young

people with MS

The Amy Winehouse

Foundation has recently given

the MS Society a 10,000

donation, of which 5,000 is to

be spent on grants for short

breaks, respite care and

holidays for people with MS

aged 25 and under. If you know

anyone who may benefit from

this opportunity please ask

them to contact the Grants

Team on 020 8348 0700 or

[email protected]

For those with MS over 25,

grants for short breaks, respite

care and holidays are availablethrough the MS Societys Short

Breaks and Activities Fund.

More information about the fund

can be obtained from the

contact details above or by

phoning 0131 335 4050.
http://www.mssociety.org.uk/what-is-ms/types-of-mshttp://www.mssociety.org.uk/glossaryhttp://www.worldmsday.org/1000-faces/about/http://www.worldmsday.org/1000-faces/about/http://www.mssociety.org.uk/glossaryhttp://www.mssociety.org.uk/what-is-ms/types-of-ms


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GENERAL NEWS

MS Society Professional Study Grant

Programme

The study grant programme is available to all health and social

care staff who work with people affected by MS. The aim of the

programme is to enable health and social care staff to attend

courses or training events that will help them provide people

affected by MS with the highest possible standard of care and

support.

The Society can award up to 1,000 per application and will

usually contribute 50% of the total course fees; however this can

be exceeded in exceptional circumstances.

To apply for a grant, applicants must be members of the MS

Societys professional network, which they can join free on the

website at:http://www.mssociety.org.uk/ms-support/for-

professionals/join-the-professional-network

The grant application form can be found on the MS Societys

website athttp://www.mssociety.org.uk/ms-

resources/professional-grant-application-form

For more information about the Study Grant Programme and

other professional development opportunities please contact the

education department on 020 8438 0888 or email

[email protected]

CHRISTMAS IS COMINGThis years MS

Society Christmas

catalogue is now

available with a

fantastic selection of cards, gifts and

stocking fillers. All proceeds go

towards beating MS.

Catalogue order line - call 0844314 4384

Catalogue customer services - call

0844 314 4385

Browse and shop online - visit

www.mssocietyshop.co.uk

ONLINE CHATTER

Currently being discussed on the

Asians MS Facebook group:

-Getting your own MRI scan

-Vitamin D

-The Paralympic Games

-Asian attitudes towards disability

-Disease Modifying Drugs and other

medication

-Do you prefer cooler weather?

https://www.facebook.com/group

s/2416402103/?ref=ts
http://www.mssociety.org.uk/ms-support/for-professionals/join-the-professional-networkhttp://www.mssociety.org.uk/ms-support/for-professionals/join-the-professional-networkhttp://www.mssociety.org.uk/ms-support/for-professionals/join-the-professional-networkhttp://www.mssociety.org.uk/ms-support/for-professionals/join-the-professional-networkhttp://www.mssociety.org.uk/ms-resources/professional-grant-application-formhttp://www.mssociety.org.uk/ms-resources/professional-grant-application-formhttp://www.mssociety.org.uk/ms-resources/professional-grant-application-formhttp://www.mssociety.org.uk/ms-resources/professional-grant-application-formmailto:[email protected]:[email protected]://www.mssocietyshop.co.uk/http://www.mssocietyshop.co.uk/https://www.facebook.com/groups/2416402103/?ref=tshttps://www.facebook.com/groups/2416402103/?ref=tshttps://www.facebook.com/groups/2416402103/?ref=tshttps://www.facebook.com/groups/2416402103/?ref=tshttps://www.facebook.com/groups/2416402103/?ref=tshttp://www.mssocietyshop.co.uk/mailto:[email protected]://www.mssociety.org.uk/ms-resources/professional-grant-application-formhttp://www.mssociety.org.uk/ms-resources/professional-grant-application-formhttp://www.mssociety.org.uk/ms-support/for-professionals/join-the-professional-networkhttp://www.mssociety.org.uk/ms-support/for-professionals/join-the-professional-network


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FIRST SERVE!

In keeping with the MS Societystheme of KeepingActive, Asian MS Committee members Vicky Roseand Vinnie Kochhar, decided to raise money for theMS Society and Asian MS by holding a Tennis

Tournament and Lunch at the Chandos Lawn TennisClub, their local tennis club in Hampstead.

Having enlisted the professional help of another clubmember, Pam Henry, a Tennis Doubles Day wasorganised for a fine, crisp September morning.Around 30 members and non-members gathered atthe Club House, bright and early. Most contendersdonned the bright orange t-shirts of the MS Societyand warmedup with alittle pinkbubbly; thecompetitorstook to thecourts withgreatenthusiasm.The matches were hotly contested; the pride of

Chandos Tennis Club was at stake and there was thepromise of extravagant prizes.. Two hours later,two winners emerged, our own Greg Rack and aguest from Regents Park Tennis Club, Nancy.

Food also featured high on the agenda, in themorning guests were offered mini Danish pastries,home-made almond shortbread and exotic fruitplatters. Twenty other supporters and friends joined

in for lunch, which was a lavish affair and includedfatoush salad, avocado with wasabi mayo and aloochaat as starters; teriyaki salmon, Maharashtranchicken and aubergine miso to follow; and finally,New York cheesecake, chocolate tart and mangofool. Game, set and match to our Head Chef MadhviChanrai who generously donated her time andenergy! It was all washed down with fine wine froman anonymous donor!!

Then it was time to get down to the seriousbusiness of raising more funds via the silent auctionand the raffle. Many local businesses had donatedprizes. The Muscles from the Chandos coaching

team, had each donated a tennis lesson; theseprizes proved to be very popular and helped us toraise 400 from the raffle alone.

A special thanks to all the donors of the silentauction prizes, Gerry Defries, local artist for hispainting; Racing in Barbados; Mona Chander forthe Jimmy Choo Clutch; Kara Dressel for PilatesClasses; and our own Rajiv Taneja for tickets to aMan Utd match at Old Trafford. These donationsraised over 1000.

Thames Valley Sports deserve a special mentionfor their support and generosity in providing thetennis balls for the tournament and having a stall atthe event, which was manned by Asian MS memberand Thames Valley Sports owner, RameshGangotra.

The MS Society staff, Lee Dainty and SaherUsmani were a great reminder of why we werethere - to get loud about MS. Behind the scenesLaurence Tickell helped to make the whole eventcolour coordinated and MS themed.

Chandos Lawn Tennis Club provided their lovelyfacilities to enable us to raise over 3000 allbecause of the big heartedness of the members

and guests. Team Chandos were truly amazing,they know who they are.

A brief appearance by club Chairman, DavidBernstein, also Chairman of the FA ensured thatthe football fans at the club were also kept happy; agreat way to kick off the autumn and end theSummer of Sport.~Vinnie Kochhar, Asian MS Chair


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A CHANCE TO GET INVOLVED

Experiences and perceptions of healthcare

services from people with MS and their

clinicians

This study aims to gather the experiences of

people with MS of health care services andinvestigate what they feel has been helpful or

could be improved

What will participants be asked to do?

In this study you will be asked to talk to a

researcher about your experiences of health care

services for MS and your health care needs (for

both physical and psychological/emotionalsymptoms). This will last up to an hour. This can

take place in your home or work, or at a University

of Manchester building. We would like to make

taking part as convenient as possible for you,

however, please know that we cannot reimburse

your travel expenses.

A small group of people will be invited to take partin a follow-up interview six months and twelve

months after the original interview. You can take

part in the original interview without taking part in

the additional interviews.

If you are over 18 years old with a diagnosis of MS

and are living in the Greater Manchester region,

the study would be interested in hearing from you.

It runs from September 2012 to September 2013.

If you would like to find out more about this study

and would like to receive a participation

information sheet, please contact Abigail Methley

[email protected]

or on 07950-619368

THE MS REGISTER Have you signed up

yet?

The MS Register is a

ground-breaking study

designed to increase our

understanding of living withMS in the UK. You can take part by completing a

series of simple online questionnaires.

If you are over the age of 18 and living in the UK,

with a confirmed diagnosis of MS made by a

consultant neurologist, you are eligible to take part

in this study.

There are also a small number of pilot sites that arecollecting clinical information: Royal Victoria

Hospital, Belfast; Western General Hospital,

Edinburgh; St. Marys Hospital, London; Queens

Medical Centre, Nottingham; and Morriston

Hospital, Swansea.

http://www.ukmsregister.org

KEEP YOUR EYE OUT!

The MS Society maintains

a list of research studies

and clinical trials that are

currently recruiting

participants. If you are

interested please go to:

http://www.mssociety.or

g.uk/ms-research/get-

involved-in-research
mailto:[email protected]:[email protected]:[email protected]://www.ukmsregister.org/http://www.ukmsregister.org/http://www.mssociety.org.uk/ms-research/get-involved-in-researchhttp://www.mssociety.org.uk/ms-research/get-involved-in-researchhttp://www.mssociety.org.uk/ms-research/get-involved-in-researchhttp://www.mssociety.org.uk/ms-research/get-involved-in-researchhttp://www.mssociety.org.uk/ms-research/get-involved-in-researchhttp://www.mssociety.org.uk/ms-research/get-involved-in-researchhttp://www.ukmsregister.org/mailto:[email protected]


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My MS, My Needs: Understanding the needs of

people with MS in the UK

In early-November, the MS Society will launch one of

its largest ever surveys, to help it to understand how

well the UK is meeting the health and social care

needs of people with MS.

A short questionnaire will be posted to all the

Societys members who are over 18 and have MS, to

ask if they are able to access the care and support

they need.

The results will allow the Society to campaign for

change and work to develop services that better meet

the needs of people with MS.

The results will be announced during MS Week 2013,

and, as well as a national picture, we will analyse

results locally to understand the postcode lottery in

services for people with MS.

To analyse results locally, a large response is

essential. Everyones response matters and will be

used to support the Societys work for years to come.

Participating is easy - the questionnaire takes 15-20

minutes to complete.

For more information contact the research team at

[email protected] on 020 8438 0822.

Help the MS Society set future MS research

priorities

The MS Society is

leading a new

project to put people affected by MS at thecentre of setting research priorities. Through

this project the Society hopes to find the top 10

unanswered questions in MS research.

People affected by MS, MS professionals and

neurologists will identify the questions and set

the research priorities. This could include any

area of MS, from treatments for a particular

symptom to support for day-to-day life with MS.

This new priority setting partnership is

supported by the James Lind Alliance, an

independent, non-profit organisation. They

specialise in bringing patients, carers and

health care professionals together to identify

and prioritise unanswered questions. They will

guide this work to ensure an unbiased result.

The survey, which takes 10 -15 minutes to

complete, is an opportunity to ask questions

important to you which could help steer future

MS research. Take part in the survey at

www.mssociety.org.uk/JLA
mailto:[email protected]:[email protected]://www.mssociety.org.uk/JLAhttp://www.mssociety.org.uk/JLAhttp://www.mssociety.org.uk/JLAmailto:[email protected]


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Living with unpredictability in MS

This study aims to explore the question what is it

like to live with an unpredictable illness?

What will participants be asked to do?Participants who live in the Hull, Lincoln and

Nottingham area will be offered the choice between

having a face-to-face interview, a telephone

interview or attending a focus group.

Participants who live outside of these areas will be

asked to take part in a telephone interview.

The interviews/groups will be conducted using a

semi-structured format and will be recorded for later

analysis. Interviews will last about one hour; focus

groups will be held at a local venue and will last

about one and a half hours. Please note that it may

not always be possible to run local focus groups due

to numbers.

Each person will receive an introductory phone callto explain the study and answer any queries or

questions. Participants will then choose their

preferred way of taking part (if possible); once

consent has been given the participant can take part

in one interview/group.

If you have a diagnosis of MS and can speak

English, you will be eligible to participate. The study

runs from October 2012 to February 2013.

If you would like to find out more about this study

and would like to receive a participation information

sheet, please contact Hannah Wilkinson at

[email protected]

MS Activity Weekend

Friday 24th - Monday 27th May 2013For people with MS, their families andfriends

Choose from a variety of activities orrelax in the tranquil setting of thebeautiful Kielder Water & Forest Park.

3 Nights 317Includes accommodation, activities andall meals

Or book the Respite Care Package

(over 18)3 Nights 488Includes care, accommodation, activitiesand all meals

To book call 01434 250232 oremailenquiries@calvert-

kielder.com

www.calvert-trust.org.ukTips For Staying Healthy Over Winter

~Keep your Vitamin D levels topped up withsupplements

~Make sure your heating is working

~Eat lots of fruit and vegetables

~Keep up with your exercise routine

~Wash your hands to keep those bugs away

~Ensure you have sufficient medication athome
mailto:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]


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RELAPSE SUPPORT SCHEMEMentioned in the last newsletter, the MS Society isrunning a scheme which Asian MS is supporting. Thisis a great opportunity for our members to becomeinvolved in this innovative pilot scheme.

The Relapse Support Scheme was piloted in 2010 inEast Sussex and the participants all agreed that thisplanning process was worthwhile and made them feelmore in control of their lives and the situation. Thescheme is now being piloted with Asian MS to seewhether it will be successful with a wider group ofpeople. It is a scheme that assists individuals to planahead and avoid disruption to their day-to-day activitieswhen they have a relapse.

Symptoms when having a relapse cant be predicted.However, individuals can plan what support they mayneed should they have a relapse. The scheme willshow individuals how to plan and where support isavailable.

A trained volunteer from Asian MS will helpindividuals to decide how best to meet their non-medical needs during a relapse, the plan will then bewritten up and the volunteer will be the participantspoint of contact for help.

A small grant of 100 will be made available for theperson with MS to spend on providing support duringa relapse. They can use the money for almostanything they need, for example, contributing towardsthe cost of petrol if a colleague gives them a lift towork.

If you are interested or know anyone who has MS(this is open to all types of MS) and would like to getinvolved, please do email Saher at the MS Society [email protected] call her on 020 84380856.

Example of a Relapse Support Plan.

Name: Felicity Farmer(This is a lady that has small children, and works part-time. She has friends and family close byto support her)

What help do you think youwill need?

How oftendo you thinkyoull needthis supportper day /week?

Who is your 1stchoice whocan providethis supportfor you?

Who is thealternativeperson who canprovide thissupport if your1

stchoice isnt

available?

How much money to saythank you / pay for support?

Someone to drive the childrento school and home again

Twice a day My friendDonna, as herchildren go tothe sameschool

My friend Tracey 10 towards petrol

Shopping for food Twice a week My friend Pamas she can domy shopping atthe same timeas hers

My friend Tracey 5 bunch of flowers to say thankyou

Travelling to and from work ifI cannot drive

Twice perday

My colleaguePhilip lives nearby and I canshare a lift withhim

My dad 10 towards petrol

To save you looking for contact numbers when you need them, why not list them here so they can all be easily found.

Mum & Dad: 01273 555555 Donna: 01273 666666 Tracey: 01273 777777 Pam: 01273 888888 Peter: 01273

333333 Philip: 01273 444444 Jo: 01273 222222
mailto:[email protected]:[email protected]:[email protected]


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CARE AND SUPPORT UPDATESupported short breaks A new partnership with

Carers Trust and local Crossroads Care schemes

People affected by MS who live in England and Walescan now access care and support during their short

breaks and holidays, thanks to a new partnership

between the MS Society and Carers Trust.

Care will be provided by trained care support workers

from local Crossroads Care schemes, which are

network members of Carers Trust. They will come to

wherever you are staying, to provide that support for

you. Having someone else take over the caring

responsibilities for a while means that families can go

away together or people with MS can travel

independently safe in the knowledge that the main

family carer will get a chance to rest and recharge

their batteries.

This is a pilot project, so at the moment supported

short breaks can be taken at destinations in most ofWales, on the south coast of England and in East

Anglia.

To find out more about the service and how it works,

or to order an information leaflet, call 020 8438 0805

or [email protected].

Bond Holidays 2 for 1 MS taster weekends in

December

As a first step in a new partnership with Bond

Holidays, we are pleased to announce that people

with MS, their families and carers will be able to take

advantage of a 2 for 1 offer at their accessible

hotels in Blackpool or Lytham St Annes over any

weekend in December.

Weekend stays are 3 nights from Friday night toMonday morning. The price for two people is 179

for dinner, bed and breakfast.

Both hotels are accessible with ensuite wet floor

shower rooms, hoists and other specialist

equipment. Bond have a CQC-registered care

agency which can be booked for the stay if

personal care and support is needed during the

break.

Contact Bond Holidays to discuss a booking on

01253 341218 or [email protected]

Make sure you mention this offer when booking.

If you have any comments about Bond Holidays

or their accessible hotels, please call 020 8438

0805 or [email protected]

Find Me Good Care a new website helpingpeople make better choices about care andsupport

Find Me Good Care, has been developed by theSocial Care Institute of Excellence to help peopletake their first steps in seeking the right care. It

includes information and guidance on how tochoose and pay for care, together with a directoryof providers and the opportunity to providefeedback.

The MS Society is a partner of Find Me GoodCare, and will hopefully make it easier for peopleaffected by MS to make the choices that are rightfor them. More information:

www.findmegoodcare.co.uk.
mailto:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]://www.findmegoodcare.co.uk/http://www.findmegoodcare.co.uk/http://www.findmegoodcare.co.uk/mailto:[email protected]:[email protected]:[email protected]


12/20


The Closest I Shall Ever Get To A Paralympic Medal

-THE MS SOCIETY AWARDS,A Personal View by VinnieMy big chance to mingle with the stars came at theMS Societys Annual Awards Ceremony, held at theprestigious Royal Garden Hotel, Kensington on 25th

September. I was not sure how all the excitement oflast year could be beaten, Amrit Gajjar won theaward for Carer of the Year (having been nominatedby Asian MS.)

I thought the 2012 event would be a quieter affairand would be a chance to observe and network forAsian MS, as the spotlight would be elsewhereThis time, I was invited as I had been a Judge for the

MS Employer of the Year category. I had thoroughlyenjoyed the judging process, as it had been achance to learn about some of the gold starorganisations that create an excellent workingenvironment for staff and awareness of thefluctuating condition of MS. Our shortlist includedAXA Insurance, East Durham Homes and LloydsBanking Group but there were many otherorganisations who were also worthy of being

nominated.

The welcome drinks reception was the ideal time toraise the profile of Asian MS with new faces. So Ifound myself standing next to Janice Winehouse(mother of the legendary Amy) and rubbingshoulders with Oritse Williams of JLS pop groupfame. Top MS researchers present included Prof.Alastair Compston and Prof. Robin Franklin.

Volunteers were also honoured for fundraising orraising awareness and they enjoyed an afternoonthey would never forget. I felt extremely blessed tobe seated next to one of the youngest nominees,Rory Bailey. His mum had put him forward for theCarer of the Year Award. He has cared for his mumfrom the age of 14yrs but has also managed to passGCSEs and gain a place on a bricklaying course.How could he possibly do it all?

Another nominee was Richard Gau, in his 80sand sole carer for his wife who is severelydisabled by MS and is also diabetic. It was a

privilege to sit beside such smiling selflesspeople. So, when Kate Silverton announced thiscategory I thought how could you possibly choosebetween any of these heroes (not to mention thethird finalist Jan McDonald who was not on ourtable!)? An impossible task, but in the end thewinner was Rory. I remain touched by their storiesand struck by their good cheer and humility.

It was an inspiring afternoon and the icing on thecake was my photo with a silver Paralympic

medal and its true owner (!) Stephanie Millward.

She was the

winner of the MS

Inspiration of the

Year 2012. Being

diagnosed with

MS at the age of17 was no bar to

her winning 5 medals at the Paralympics in

swimming! I needed to get my hands on that

piece of silver and here is the proof.

I felt honoured to be with all these amazing

individuals and left the event on a high. I ran to

the cloakroom for my coat only to be stood behind

Prof. Giovannoni of Team G fame. I saw his name

tag and said I know you! YoureTrishnas hero

Gavin!! He laughed; yes he knew Trishna well

(our Newsletter Editor no less) and praised her for

all her hard work. At least I did not have to explain

about Asian MS to him.!

~Vinnie Kochhar (Asian MS Chair)


13/20


DATES FOR

YOUR

DIARY

MS Research Day

The 4th MS Research Day by ProfessorGavin Giovannoni and the NeuroimmunologyGroup at The Royal London Hospital willtake place on Saturday 2nd February from10am to 3pm.This year, the talks will cover topics rangingfrom symptom management and lumbarpunctures to updating you on the groups

siblings study. There will also be speakersfrom Queens Square as the group joinsUCLPartners.If you want to talk directly to a researcher, oryou just need a break and refreshments,theres a room for you to relax, have a hotdrink and talk to the team informally.You can stay in one place and heareverything, or you can move between rooms

if you wish. It will take place at ChurchHouse Conference Centre, Deans Yard ,Westminster, SW1P 3NZ. To book yourticket please go to:http://msday.eventbrite.co.uk/

MS Societys 60th Anniversary!

In 2013, the MS Society turns 60years old. It was founded by Maryand Richard Cave to support andempower people affected by MS.

The MS Society will be celebrating theachievements of everyone involved in theorganisation and looking forward to anexciting future.

Rather than take resources from vital research and

support, celebrations will be integrated into existing

events. MS Week, annual meetings, national fundraising

events and the MS Awards will all have extra 60th

sparkle. If you have any ideas about how to make

fundraising events that extra bit special then please email

them to:[email protected]**********************************

..NEWS FLASH..MS Society Chief Executive Simon Gillespie is

leaving the MS Society to become Chief Executive of

the British Heart Foundation (BHF). Asian MS would

like to wish him well in his new role.

**********************************

ASIAN MS NEEDS

YOUR HELP!

As we expand, Asian MS is in desperate

need of more volunteers to help us tocontinue offering our support and services.Communication with our membership is ofutmost importance to us and we arecurrently looking to appoint a MembershipSecretary and a Website Editor. TheMembership Secretary would be mainlyresponsible for dealing withcorrespondence and membership issues

(such as maintaining the membershipdatabase). The Website Editor would be incharge of updating the Asian MS website,particularly uploading e-editions of theNewsletter and Asian MS news. [email protected] are interested in either post and wouldlike further information. Emails should beaddressed to Vinnie Kochhar.
http://msday.eventbrite.co.uk/http://msday.eventbrite.co.uk/mailto:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]://msday.eventbrite.co.uk/


14/20


SANJAY AND VINNIE AT THE

PARALYMPIC OPENING CEREMONY

Firstly, it was an absolute privilege to have

received tickets via the first ballot. Following the

wonderful Olympic games, I was eagerly

anticipating the opening ceremony of theParalympics following the warm up.

I went with Vinnie - well she doesnt get out

much. It started with an unconventional trip to

Westfield to buy (for guess who) some overpriced

shoes. I suppose that was my good deed for the

day; I never realised I had such serenity!

We moved on to the fabulous stadium to absorbthe atmosphere. It

was kind of surreal

being there and we

had to keep

pinching ourselves

that we were. Even

before the

ceremony started,the music was great and as Police fans, it was

delightful to hear So Lonely played in such a

wonderful arena, however, Vinnie thought it was

hilarious to sing the words Sue Lawley.

Different folks different strokes!

Once the ceremony began, it was awe inspiring.

It was full of colour, fun and intelligence. It is very

difficult to capture in words, it was truly

magnificent. The Queen and the National Anthem

were very uplifting and yes Vinnie did stand

leaning on my chair!! It was certainly an

experience and magical moment that neither of

us will ever forget.

~Sanjay Chadha (Asian MS Co-Founder & CommitteeMember)

Launch of WAMS

Women Against MS, or WAMS, is a

group of MS Society volunteers who

believe that WAMS will become a tailored

support group that fits the needs of all

women

affected

by

Multiple

Sclerosis

in the

numerous

guises that women are expected to be -

mother, wife, lover ... an endless list.

The group is having its launch on 26th

January 2013 at the Charles Clore Centre

at Hampton Court Palace, East Molesey,

Surrey, KT8 9AU. It will run from

12.30pm-3.30pm and the programme will

include:

Welcome: Hilary Sears Chairman

of the MS Society

Jo Johnson: Author of Shrinking

The Monster

A glass of sparkling wine and

afternoon tea

Booking is currently closed due to

the events popularity. However, ifyou would like to be added to the

waiting list, then please go to:

http://wamslaunch.eventbrite.co.uk/?access=WAMS-VIP

or contactWAMS [email protected]

Tel: 07848 105191
http://wamslaunch.eventbrite.co.uk/?access=WAMS-VIPhttp://wamslaunch.eventbrite.co.uk/?access=WAMS-VIPhttp://wamslaunch.eventbrite.co.uk/?access=WAMS-VIPmailto:[email protected]:[email protected]:[email protected]://wamslaunch.eventbrite.co.uk/?access=WAMS-VIPhttp://wamslaunch.eventbrite.co.uk/?access=WAMS-VIP


15/20


Funding opportunity for

people with MS

National charity the MS Research and Relief Fundoffers grant funding for items including equipment,aids, adaptations, holidays and respite care.The fund can be used either to complement grantsawarded by the MS Society where a shortfall infunding exists, or as a single funding opportunity.The registered charity will consider applications forgrants for individuals and for groups.

For more information contact the charitys Grants

Manager, Dave Farham on 01670 505829 or

[email protected] visit

www.msresearchandrelief.org; or contact Julie

Gilson, MS Society Grants Manager at 020 8438

0950 [email protected]

FEEDBACK NEEDED!

Asian MS would like to receive

your feedback about

our newsletter.

Please go to the

following link tocomplete the survey:

http://www.surveymonkey.com/s/88H

DQL6

Protecting yourself

against the flu

Its that time of year again when everyone seems

to be coughing and sneezing. The flu season is

upon us and it is important for MSers to know

whether or not they should be getting their jab.

The current general advice is that people with MS

are eligible for a free flu jab on the NHS. These

are usually administered in your GPs surgery. You

should be able to speak to your MS Nurse,

Neurologist and/or GP about this. The flu jab is an

inactive vaccine so is generally safe for MSers,however, if you are on any kind of disease

modifying drug or symptomatic relief drug then you

need to speak to a medical professional first, to

ensure that there will be no interactions.

Please go to the following links for more

information:

https://www.wp.dh.gov.uk/immunisation/files/2012/08/2900359-Seasonal-Flu-A5_v1_0A.pdf

and

http://ms.about.com/od/treatments/a/flu_shot.h

tm

Dont wait for aflu outbreak toget your shot!
mailto:[email protected]:[email protected]://www.msresearchandrelief.org/http://www.msresearchandrelief.org/mailto:[email protected]:[email protected]:[email protected]://www.surveymonkey.com/s/88HDQL6http://www.surveymonkey.com/s/88HDQL6http://www.surveymonkey.com/s/88HDQL6https://www.wp.dh.gov.uk/immunisation/files/2012/08/2900359-Seasonal-Flu-A5_v1_0A.pdfhttps://www.wp.dh.gov.uk/immunisation/files/2012/08/2900359-Seasonal-Flu-A5_v1_0A.pdfhttps://www.wp.dh.gov.uk/immunisation/files/2012/08/2900359-Seasonal-Flu-A5_v1_0A.pdfhttp://ms.about.com/od/treatments/a/flu_shot.htmhttp://ms.about.com/od/treatments/a/flu_shot.htmhttp://ms.about.com/od/treatments/a/flu_shot.htmhttp://ms.about.com/od/treatments/a/flu_shot.htmhttp://ms.about.com/od/treatments/a/flu_shot.htmhttps://www.wp.dh.gov.uk/immunisation/files/2012/08/2900359-Seasonal-Flu-A5_v1_0A.pdfhttps://www.wp.dh.gov.uk/immunisation/files/2012/08/2900359-Seasonal-Flu-A5_v1_0A.pdfhttp://www.surveymonkey.com/s/88HDQL6http://www.surveymonkey.com/s/88HDQL6mailto:[email protected]://www.msresearchandrelief.org/mailto:[email protected]


16/20


Recipe from Lubna

Chicken Curry

Ingredients:

2lb/900g Chicken (on and off the bone)

2 large onions chopped1 tsp fresh ginger paste1 tsp fresh garlic paste1 tsp cumin (jeera) powder1 tsp coriander (dhaniya) powder1 tsp red chilli powder or to tasteSalt to taste1 tsp garam masala2 chopped tomatoes

2 tblsp vegetable ghee or oilFresh coriander to taste

Method:

-Cut the chicken into medium sized pieces. Heat theghee or oil in a large saucepan. Add the onion andfry until golden.

-Add the garlic and ginger paste and fry for a fewmoments. Add all the ground spices and fry for aminute, making sure the mixture does not stick to thebottom of the pan; add a splash of water if required.Then add the chicken, mixing it well with the spices.

-When the chicken has browned, add a cup of waterand salt to taste. Cover pan with lid and simmerover a low heat for 15 minutes.

-After 15 minutes, add the chopped tomatoes andcontinue to cook until the chicken is tender.

-When the chicken is cooked add chopped freshcoriander.

Serve with either rice, chappatis or naan bread.

Lubna, an Asian MS member since 2005, has

been kindly sharing her delicious recipes

with Asian MS.

She was diagnosed with MS following an

MRI scan in 1991, with symptoms having

included optic neuritis and fatigue. While

she feels that shes slowed down a great

deal as shes grown older, she is still able-

bodied and considers herself to be very

lucky.

She joined Asian MS after she met Shiv

(Asian MS Treasurer) at MS National Centre.

He was the first Asian person that shed met

who also had MS. She has previously servedon the Asian MS committee.

MS In the Media

Shift.ms has been involved

in the making of some

ground-breaking short films

about MS. They are

available to view on the

Shift.ms site and on the Shift.ms channel on

You Tube.

GALLOP:http://shift.ms/gallop/

BELONG:http://shift.ms/belong/

BLOGGINGRani, the Asian MS Publicity &Support Officer has her very own blog.Check her out at:

http://missranikaur.wordpress.com/
http://shift.ms/gallop/http://shift.ms/gallop/http://shift.ms/gallop/http://shift.ms/belong/http://shift.ms/belong/http://shift.ms/belong/http://missranikaur.wordpress.com/http://missranikaur.wordpress.com/http://missranikaur.wordpress.com/http://shift.ms/belong/http://shift.ms/gallop/


17/20


General InformationInformation

The MS Society has a range of publications

containing information and advice for carers and

families:

Caring for someone with MS: a handbook for

family and friends

MS in your life a guide for young carers

MS Carers: The mans guide to caring for

someone with Multiple Sclerosis

You can order these from the Information team

by calling 020 8438 0799 or from the online shop

on the MS Society website.

Financial assistance

There are two grant funds specifically for carers

Young Carers Fund

Carers Opportunities Fund.

There is also support for carers through the

Short Breaks and Activities Fund. Carers can

apply to this for funding towards short breaks

and holidays.Find out more from the Grants Team on 020

8438 0700 [email protected] visit

the grants pages on the website.

If you live in Scotland, please call 0131 335 4050

or [email protected]

Emotional support

The MS Helpline is available to give free and

confidential advice and support to anyone

affected by MS from 9am-9pm, Monday- Friday.

The helpline number is freephone 0808 800

8000. Please specify if you would like to speak

with someone from Asian MS and you will be

directed to one of our support officers.

New editions/modifications for MS Society

publications

Diet and Nutrition (MS Essentials 11,Fourth Edition August 2012)

Oral Health factsheet (September 2012,

download only)

For a list of all the MS Societys key

publications showing the latest editions

and revisions visit the website:

www.mssociety.org.uk/ms-resources/key-publicationsor call 0300

1000 801.

To contact the MS Society Information

Team: [email protected]

or call 020 8438 0799 (weekdays 9am-

4pm)

***********************************

If you would like a copy of the MS

Societys latest MSbooklet, which hasbeen translated into 12 languages

including Bengali, Farsi, Gujarati,

Hindi, Punjabi & Urdu, please contact

Saher Usmani on 0208 438 0856 or

[email protected]

They are also available on USB stick for a small fee.

***********************************

Please let Asian MS know if youwould like to submit a nomination

for the MS Society Awards 2013, aswe will be able to offer help and

support when filling out thenomination forms!
mailto:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]://www.mssociety.org.uk/ms-resources/key-publicationshttp://www.mssociety.org.uk/ms-resources/key-publicationshttp://www.mssociety.org.uk/ms-resources/key-publicationsmailto:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]://www.mssociety.org.uk/ms-resources/key-publicationshttp://www.mssociety.org.uk/ms-resources/key-publicationsmailto:[email protected]:[email protected]


18/20


LATEST RESEARCH & MS IN THE NEWSExclusive: MS drug 'rebranded' at up to 20 times the

price

http://www.independent.co.uk/life-style/health-and-families/health-news/exclusive-ms-drug-rebranded--at-up-

to-20-times-the-price-8209885.html

Scots scientist in MS breakthrough

http://www.heraldscotland.com/news/home-news/scots-

scientist-in-ms-breakthrough.19103935

Irish drug maker Elan spins off research arm

www.telegraph.co.uk/finance/newsbysector/pharmaceutica

lsandchemicals/9472275/Irish-drug-maker-Elan-spins-off-

research-arm.html

NHS is failing patients with neurological conditions, claims

report

http://www.guardian.co.uk/society/2012/aug/01/nhs-

neglect-neurological?INTCMP=SRCH

A single pill could treat Alzheimer's, Parkinson's AND

Multiple Sclerosis

http://www.dailymail.co.uk/health/article-2178306/A-single-

pill-treat-Alzheimers-Parkinsons-AND-multiple-

sclerosis.html#ixzz2BGHZLg4f

How Yoga Helps Multiple Sclerosis

http://www.huffingtonpost.com/2012/11/03/yoga-multiple-

sclerosis_n_2040444.html

Study: Infertility treatments can trigger MS symptoms in

women

http://www.examiner.com/article/new-study-when-multiple-

sclerosis-and-infertility-collide

Brain Research Could be Life-

Changer for Multiple Sclerosis

Patients

http://americannewsreport.com/brai

n-research-could-be-life-changer-

for-multiple-sclerosis-patients-

8816585

Scientists develop nanoparticle

method to help tackle major

diseases

http://www.independent.co.uk/news/

science/scientists-develop-

nanoparticle-method-to-help-tackle-

major-diseases-8327197.html

Genzyme touts positive results for

MS drug Lemtrada

http://www.bostonherald.com/business/technology/general/view/2022110

1genzyme_touts_positive_results_fo

r_ms_drug_lemtrada/

Research: Having MS and

Something Else

http://multiple-sclerosis-

research.blogspot.co.uk/2012/11/research-having-ms-and-something-

else.html?utm_source=feedburner&

utm_medium=email&utm_campaign

=Feed:+blogspot/WvYVL+%28Multip

le+Sclerosis+Research%29
http://www.independent.co.uk/life-style/health-and-families/health-news/exclusive-ms-drug-rebranded--at-up-to-20-times-the-price-8209885.htmlhttp://www.independent.co.uk/life-style/health-and-families/health-news/exclusive-ms-drug-rebranded--at-up-to-20-times-the-price-8209885.htmlhttp://www.independent.co.uk/life-style/health-and-families/health-news/exclusive-ms-drug-rebranded--at-up-to-20-times-the-price-8209885.htmlhttp://www.independent.co.uk/life-style/health-and-families/health-news/exclusive-ms-drug-rebranded--at-up-to-20-times-the-price-8209885.htmlhttp://www.heraldscotland.com/news/home-news/scots-scientist-in-ms-breakthrough.19103935http://www.heraldscotland.com/news/home-news/scots-scientist-in-ms-breakthrough.19103935http://www.heraldscotland.com/news/home-news/scots-scientist-in-ms-breakthrough.19103935http://www.telegraph.co.uk/finance/newsbysector/pharmaceuticalsandchemicals/9472275/Irish-drug-maker-Elan-spins-off-research-arm.htmlhttp://www.telegraph.co.uk/finance/newsbysector/pharmaceuticalsandchemicals/9472275/Irish-drug-maker-Elan-spins-off-research-arm.htmlhttp://www.telegraph.co.uk/finance/newsbysector/pharmaceuticalsandchemicals/9472275/Irish-drug-maker-Elan-spins-off-research-arm.htmlhttp://www.telegraph.co.uk/finance/newsbysector/pharmaceuticalsandchemicals/9472275/Irish-drug-maker-Elan-spins-off-research-arm.htmlhttp://www.guardian.co.uk/society/2012/aug/01/nhs-neglect-neurological?INTCMP=SRCHhttp://www.guardian.co.uk/society/2012/aug/01/nhs-neglect-neurological?INTCMP=SRCHhttp://www.guardian.co.uk/society/2012/aug/01/nhs-neglect-neurological?INTCMP=SRCHhttp://www.dailymail.co.uk/health/article-2178306/A-single-pill-treat-Alzheimers-Parkinsons-AND-multiple-sclerosis.html#ixzz2BGHZLg4fhttp://www.dailymail.co.uk/health/article-2178306/A-single-pill-treat-Alzheimers-Parkinsons-AND-multiple-sclerosis.html#ixzz2BGHZLg4fhttp://www.dailymail.co.uk/health/article-2178306/A-single-pill-treat-Alzheimers-Parkinsons-AND-multiple-sclerosis.html#ixzz2BGHZLg4fhttp://www.dailymail.co.uk/health/article-2178306/A-single-pill-treat-Alzheimers-Parkinsons-AND-multiple-sclerosis.html#ixzz2BGHZLg4fhttp://www.huffingtonpost.com/2012/11/03/yoga-multiple-sclerosis_n_2040444.htmlhttp://www.huffingtonpost.com/2012/11/03/yoga-multiple-sclerosis_n_2040444.htmlhttp://www.huffingtonpost.com/2012/11/03/yoga-multiple-sclerosis_n_2040444.htmlhttp://www.examiner.com/article/new-study-when-multiple-sclerosis-and-infertility-collidehttp://www.examiner.com/article/new-study-when-multiple-sclerosis-and-infertility-collidehttp://www.examiner.com/article/new-study-when-multiple-sclerosis-and-infertility-collidehttp://americannewsreport.com/brain-research-could-be-life-changer-for-multiple-sclerosis-patients-8816585http://americannewsreport.com/brain-research-could-be-life-changer-for-multiple-sclerosis-patients-8816585http://americannewsreport.com/brain-research-could-be-life-changer-for-multiple-sclerosis-patients-8816585http://americannewsreport.com/brain-research-could-be-life-changer-for-multiple-sclerosis-patients-8816585http://americannewsreport.com/brain-research-could-be-life-changer-for-multiple-sclerosis-patients-8816585http://www.independent.co.uk/news/science/scientists-develop-nanoparticle-method-to-help-tackle-major-diseases-8327197.htmlhttp://www.independent.co.uk/news/science/scientists-develop-nanoparticle-method-to-help-tackle-major-diseases-8327197.htmlhttp://www.independent.co.uk/news/science/scientists-develop-nanoparticle-method-to-help-tackle-major-diseases-8327197.htmlhttp://www.independent.co.uk/news/science/scientists-develop-nanoparticle-method-to-help-tackle-major-diseases-8327197.htmlhttp://www.independent.co.uk/news/science/scientists-develop-nanoparticle-method-to-help-tackle-major-diseases-8327197.htmlhttp://www.bostonherald.com/business/technology/general/view/20221101genzyme_touts_positive_results_for_ms_drug_lemtrada/http://www.bostonherald.com/business/technology/general/view/20221101genzyme_touts_positive_results_for_ms_drug_lemtrada/http://www.bostonherald.com/business/technology/general/view/20221101genzyme_touts_positive_results_for_ms_drug_lemtrada/http://www.bostonherald.com/business/technology/general/view/20221101genzyme_touts_positive_results_for_ms_drug_lemtrada/http://www.bostonherald.com/business/technology/general/view/20221101genzyme_touts_positive_results_for_ms_drug_lemtrada/http://multiple-sclerosis-research.blogspot.co.uk/2012/11/research-having-ms-and-something-else.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed:+blogspot/WvYVL+%28Multiple+Sclerosis+Research%29http://multiple-sclerosis-research.blogspot.co.uk/2012/11/research-having-ms-and-something-else.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed:+blogspot/WvYVL+%28Multiple+Sclerosis+Research%29http://multiple-sclerosis-research.blogspot.co.uk/2012/11/research-having-ms-and-something-else.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed:+blogspot/WvYVL+%28Multiple+Sclerosis+Research%29http://multiple-sclerosis-research.blogspot.co.uk/2012/11/research-having-ms-and-something-else.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed:+blogspot/WvYVL+%28Multiple+Sclerosis+Research%29http://multiple-sclerosis-research.blogspot.co.uk/2012/11/research-having-ms-and-something-else.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed:+blogspot/WvYVL+%28Multiple+Sclerosis+Research%29http://multiple-sclerosis-research.blogspot.co.uk/2012/11/research-having-ms-and-something-else.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed:+blogspot/WvYVL+%28Multiple+Sclerosis+Research%29http://multiple-sclerosis-research.blogspot.co.uk/2012/11/research-having-ms-and-something-else.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed:+blogspot/WvYVL+%28Multiple+Sclerosis+Research%29http://multiple-sclerosis-research.blogspot.co.uk/2012/11/research-having-ms-and-something-else.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed:+blogspot/WvYVL+%28Multiple+Sclerosis+Research%29http://multiple-sclerosis-research.blogspot.co.uk/2012/11/research-having-ms-and-something-else.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed:+blogspot/WvYVL+%28Multiple+Sclerosis+Research%29http://multiple-sclerosis-research.blogspot.co.uk/2012/11/research-having-ms-and-something-else.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed:+blogspot/WvYVL+%28Multiple+Sclerosis+Research%29http://multiple-sclerosis-research.blogspot.co.uk/2012/11/research-having-ms-and-something-else.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed:+blogspot/WvYVL+%28Multiple+Sclerosis+Research%29http://multiple-sclerosis-research.blogspot.co.uk/2012/11/research-having-ms-and-something-else.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed:+blogspot/WvYVL+%28Multiple+Sclerosis+Research%29http://multiple-sclerosis-research.blogspot.co.uk/2012/11/research-having-ms-and-something-else.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed:+blogspot/WvYVL+%28Multiple+Sclerosis+Research%29http://multiple-sclerosis-research.blogspot.co.uk/2012/11/research-having-ms-and-something-else.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed:+blogspot/WvYVL+%28Multiple+Sclerosis+Research%29http://multiple-sclerosis-research.blogspot.co.uk/2012/11/research-having-ms-and-something-else.html?utm_source=feedburner&utm_medium=email&utm_campaign=Feed:+blogspot/WvYVL+%28Multiple+Sclerosis+Research%29http://www.bostonherald.com/business/technology/general/view/20221101genzyme_touts_positive_results_for_ms_drug_lemtrada/http://www.bostonherald.com/business/technology/general/view/20221101genzyme_touts_positive_results_for_ms_drug_lemtrada/http://www.bostonherald.com/business/technology/general/view/20221101genzyme_touts_positive_results_for_ms_drug_lemtrada/http://www.bostonherald.com/business/technology/general/view/20221101genzyme_touts_positive_results_for_ms_drug_lemtrada/http://www.independent.co.uk/news/science/scientists-develop-nanoparticle-method-to-help-tackle-major-diseases-8327197.htmlhttp://www.independent.co.uk/news/science/scientists-develop-nanoparticle-method-to-help-tackle-major-diseases-8327197.htmlhttp://www.independent.co.uk/news/science/scientists-develop-nanoparticle-method-to-help-tackle-major-diseases-8327197.htmlhttp://www.independent.co.uk/news/science/scientists-develop-nanoparticle-method-to-help-tackle-major-diseases-8327197.htmlhttp://americannewsreport.com/brain-research-could-be-life-changer-for-multiple-sclerosis-patients-8816585http://americannewsreport.com/brain-research-could-be-life-changer-for-multiple-sclerosis-patients-8816585http://americannewsreport.com/brain-research-could-be-life-changer-for-multiple-sclerosis-patients-8816585http://americannewsreport.com/brain-research-could-be-life-changer-for-multiple-sclerosis-patients-8816585http://www.examiner.com/article/new-study-when-multiple-sclerosis-and-infertility-collidehttp://www.examiner.com/article/new-study-when-multiple-sclerosis-and-infertility-collidehttp://www.huffingtonpost.com/2012/11/03/yoga-multiple-sclerosis_n_2040444.htmlhttp://www.huffingtonpost.com/2012/11/03/yoga-multiple-sclerosis_n_2040444.htmlhttp://www.dailymail.co.uk/health/article-2178306/A-single-pill-treat-Alzheimers-Parkinsons-AND-multiple-sclerosis.html#ixzz2BGHZLg4fhttp://www.dailymail.co.uk/health/article-2178306/A-single-pill-treat-Alzheimers-Parkinsons-AND-multiple-sclerosis.html#ixzz2BGHZLg4fhttp://www.dailymail.co.uk/health/article-2178306/A-single-pill-treat-Alzheimers-Parkinsons-AND-multiple-sclerosis.html#ixzz2BGHZLg4fhttp://www.guardian.co.uk/society/2012/aug/01/nhs-neglect-neurological?INTCMP=SRCHhttp://www.guardian.co.uk/society/2012/aug/01/nhs-neglect-neurological?INTCMP=SRCHhttp://www.telegraph.co.uk/finance/newsbysector/pharmaceuticalsandchemicals/9472275/Irish-drug-maker-Elan-spins-off-research-arm.htmlhttp://www.telegraph.co.uk/finance/newsbysector/pharmaceuticalsandchemicals/9472275/Irish-drug-maker-Elan-spins-off-research-arm.htmlhttp://www.telegraph.co.uk/finance/newsbysector/pharmaceuticalsandchemicals/9472275/Irish-drug-maker-Elan-spins-off-research-arm.htmlhttp://www.heraldscotland.com/news/home-news/scots-scientist-in-ms-breakthrough.19103935http://www.heraldscotland.com/news/home-news/scots-scientist-in-ms-breakthrough.19103935http://www.independent.co.uk/life-style/health-and-families/health-news/exclusive-ms-drug-rebranded--at-up-to-20-times-the-price-8209885.htmlhttp://www.independent.co.uk/life-style/health-and-families/health-news/exclusive-ms-drug-rebranded--at-up-to-20-times-the-price-8209885.htmlhttp://www.independent.co.uk/life-style/health-and-families/health-news/exclusive-ms-drug-rebranded--at-up-to-20-times-the-price-8209885.html


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FUNDRAISING FOR ASIAN MSWhere do the funds go?

Asian MS is funded purely bydonations, which areused for variouspurposes. They includegrants for individuals tohelp them attend MS-related events, contributions to research

projects, and administration costs.

The Myelin Repair Project

One research initiative that has recentlyreceived a 1,000 donation from Asian MS is

the Cambridge Centre for Myelin Repair,which is being supported by the MS Society.The first stage of the research programmesaw the identification of a drug that could

potentially repair myelin, which is damaged in

people with MS. The project is now movinginto a second stage where researchers will

undertake pre-clinical research, with the aimof ultimately translating lab findings into a

clinical trial.

Asian MSare proud to announce that they now have the facilities to allow people to make donationsin an easier and quicker way.

Donations by credit card via the internet site justgiving.com:www.justgiving.com/AsianMS

How to make donations by text message :

Send a text message to 70070Remember to include the subject of the text: as AMSS89

and send it with the amount you wish to donate up to a maximum of 10

If you wish to donate 10 your message would read AMSS89 10

If you wish to donate 5 your message would read AMSS89 5 and so on.

You may donate with any number from 1-5, and the money will go directly to the MS Society, whichwill transfer the cash generated to Asian MS.

You can also raise funds every time you shop through EasyFundraising:

http://www.easyfundraising.org.uk/causes/asianms

We thank you kindly in advance for your support
http://www.justgiving.com/AsianMShttp://www.justgiving.com/AsianMShttp://www.easyfundraising.org.uk/causes/asianmshttp://www.easyfundraising.org.uk/causes/asianmshttp://www.easyfundraising.org.uk/causes/asianmshttp://www.justgiving.com/AsianMS


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Useful Information

General and Membership Enquiries:[email protected]

Website:http://www.mssociety.org.uk/ms-support/support-groups/asian-ms

Facebook:http://www.facebook.com/AsiansWithMS

Twitter:http://twitter.com/AsianswithMS

Saher Usmani, MS Society Support Groups Officer (please contact for hard

copies of this newsletter and MS information booklets in different languages):

0208 438 0856 [email protected]

Asian MS is a national support group for Asians withMS, their carers, friends and family. We seek to increase

awareness and dispel ignorance of MS in the Asian

community, as well as put fun and dignity into the lives

of Asians with MS and their carers. We also raise money

for people affected by MS within the Asian community.

We produce online and printed information in various

languages and offer an interpreting service.

Vinnie Kochhar Chair

Shiv - Treasurer

Trishna Newsletter Editor

Mukesh - Fundraising Officer

Rani - Publicity Officer/Support Officer

MS Society Website:http://www.mssociety.org.uk

MS Society Helpl ine:0808 800 8000

Asian MS JustGiving:www.justgiving.com/AsianMS

MS Regis ter:www.ukmsregister.org

MS Trust (chari ty that prov ides inform at ion about MS):

http://www.mstrust.org.uk/

MS Therapy Centres:http://www.msntc.org.uk/

Shift.ms (an online community for younger MSers):

http://www.shift.ms/index.php

MS Research Blog (run by Barts & The London Neuroimmunology Group):

http://multiple-sclerosis-research.blogspot.com
mailto:[email protected]:[email protected]:[email protected]://www.mssociety.org.uk/ms-support/support-groups/asian-mshttp://www.mssociety.org.uk/ms-support/support-groups/asian-mshttp://www.mssociety.org.uk/ms-support/support-groups/asian-mshttp://www.facebook.com/AsiansWithMShttp://www.facebook.com/AsiansWithMShttp://www.facebook.com/AsiansWithMShttp://twitter.com/AsianswithMShttp://twitter.com/AsianswithMShttp://twitter.com/AsianswithMSmailto:[email protected]:[email protected]:[email protected]://www.mssociety.org.uk/http://www.mssociety.org.uk/http://www.mssociety.org.uk/http://www.justgiving.com/AsianMShttp://www.justgiving.com/AsianMShttp://www.justgiving.com/AsianMShttp://www.ukmsregister.org/http://www.ukmsregister.org/http://www.ukmsregister.org/http://www.mstrust.org.uk/http://www.mstrust.org.uk/http://www.msntc.org.uk/http://www.msntc.org.uk/http://www.msntc.org.uk/http://www.shift.ms/index.phphttp://www.shift.ms/index.phphttp://multiple-sclerosis-research.blogspot.com/http://multiple-sclerosis-research.blogspot.com/http://multiple-sclerosis-research.blogspot.com/http://www.shift.ms/index.phphttp://www.msntc.org.uk/http://www.mstrust.org.uk/http://www.ukmsregister.org/http://www.justgiving.com/AsianMShttp://www.mssociety.org.uk/mailto:[email protected]://twitter.com/AsianswithMShttp://www.facebook.com/AsiansWithMShttp://www.mssociety.org.uk/ms-support/support-groups/asian-msmailto:[email protected]

Documents

Asian MS Newsletter Autumn/Winter Issue, 2012