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Children's CLinical Pathway Group Recommendations
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1
URGENT CARE
INTRODUCTION There were approximately 130,000 emergency
admissions for children and young people aged 0-15
in the North West in 2007/08. The rate of emergency
999 calls, for all ages, in the North West is above the
England average and has increased by 41% since
1999/00. This alarming year-on-year increase in use
of secondary care has been most pronounced
amongst children and is unsustainable given the
financial outlook
In 2007/08 28% of all emergency admissions were
discharged without an overnight stay, for the under-
16s the percentage was much higher at 47%. This
would suggest that many of these could have been
dealt with at lower cost in the community.
There are large variations by providers in the NW
which may be partly accounted by variance in
coding. However, a study by Tadros et al has
supported a behavioural influence demonstrating
only 22% of parents went to A&E because they
believed the clinical problem was best dealt with
there.
PARENT EXPERIENCE OF URGENT
CARE In order to help identify behavioural influences in the
NW the group has supported a study of parent
experience funded by the National Leadership
Council. Supported by the NW Service Experience
Directorate, insights have been captured from
parents in 5 children centres in Knowlsey in one of
the ten most deprived communities in England.
Inspiration Live Vital Sign Care Cards were used to
foster conversations with each of the 36 parents
involved in the project identifying their individual
emotional priority. The cards have already been
piloted successfully across the NW in the adult acute
setting and this was an opportunity to transfer the
learning to children’s services.
In each children centre, each parents' top emotional
priority card was selected in answer to the question:
1. ‘What is important to you when you use
health services with your child?’
Parents’ priorities were then investigated further,
gathering insights to support these priorities across
the urgent care pathway by asking two further
questions:
2. “What would a service look like to meet
these needs?”
3. “What are the barriers to you having that
experience now?”
Understanding was parents' top priority. Many
insights gathered where linked to this had and when
not gained, had an impact on their service usage.
Mixed messages from professionals were also a
common theme. This echoed a report by the Royal
College of Paediatrics and Child Health (RCPCH) that
researched the experience of parents and carers of
children with fever.
This project provides a template for measuring
parent experience to aid commissioners and fulfill
trusts’ statutory requirements to monitor patients’
experience and populate their ‘Quality accounts’.
This was not a satisfaction survey, as stated by the
Department of Health:
“Simple measures of patient satisfaction rarely
provide intelligence that can be acted upon to
achieve change. Nor are they reliable at capturing
change over time.”
Insights gathered from parents during this study are
included in the report to support the
recommendations. The full report and contact details
for further information can be found at
www.childrenscpg.wetpaint.com.
The alarming statistics on urgent care admissions
were also the genesis of a conference held in the NW
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on Urgent Care in June 2010. Delegates were from
across the NW and included clinicians and managers,
commissioners and providers, health and social care.
What was most remarkable was the consistency of
message and proposed solutions across the region. A
call to action was issued and has resulted in the
development of a Community of Practice- a network
who will continue to share challenges and solutions
through difficult times.
The recommendations of this community of practice
are followed by exemplars “of how to do it” from
across the region with contact details and further
information to include
QIPP templates
available at
www.childrenscpg.wet
paint.com. Finally there
are suggested metrics
against which to
measure progress.
The NHS Institute for
Innovation and
Improvement (III)
Focus on: Children and
Young People
Emergency and Urgent
Care offer a template
for pathway thinking and it is their “balloon diagram”
that is used to model our recommendations.
PATHWAY THINKING The bulk of the recommendations that follow aim to
tackle issues by working on prevention at the left of
this pathway. For example:
PROMOTING SELF-CARE:
1. antenatal education
2. practice baby packs/ postnatal education
3. working closely with health visitors
4. working closely with Children’s Centres and
other agencies
TARGETING THE MOST NEEDY:
1. know your population
2. stratify risk
3. appropriate education to meet the needs of
different groups e.g. teenage mothers.
4. address the needs of frequent fliers
5. analyse /audit inappropriate activity and tackle
it
PROMOTING PRIMARY CARE SERVICES:
1. appropriate triage and focused response
2. good Customer Services i.e. welcoming and
appropriate
3. good
consultation skills for
target group
4. standardise
care pathways and
consistent messages
across health team
and other agencies
LONG-TERM
CONDITIONS
1. detailed
shared care plans:
2. action plans for crises
3. appropriate dissemination across all health and
other agencies (electronic)
4. consistency of care plans across health (and
other agencies where appropriate)
5. plans that are understood by all
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PREVENTION
RECOMMENDATIONS
Integrated pathways across health and Local
Authorities to include the public health
agenda with a focus on prevention through
raising public awareness and educating
families to ensure we are providing
consistent messages to families.
Case management of “frequent fliers”
HOW CAN THIS BE ACHIEVED?
Parents and carers need to be made aware of the
services available to them to include preventative
work in the children centre (CC) and where to go if
your child is unwell through campaigns such as
Choose Well. Targeting children themselves is
another method such as the III emergency services
lesson plan that has been piloted successfully
in Camden.
Evidence shows children from deprived backgrounds
are five times more likely to die following an
accidental injury (2). If we can improve the health in
this population through accident prevention
programmes such as RoSPA, which targets accidents
in the home, shown to be the primary location for
accidents in under 5s, we are also accessing a
vulnerable population. The trauma and injury
intelligence (TIIG) utilise data from across services
which can help target interventions to those most in
need.
THE WIRRAL ACCIDENT PREVENTION SCHEME Since the introduction of its own safety equipment
scheme in 2004, in partnership across NHS and LA,
the Wirral has seen a steady decline in admissions
for accidental injuries.
THE BRITISH RED CROSS Paediatric First Aid courses are one of the most
popular and successful courses in some Children’s
Centres (CC) in the NW supporting evidence that
disadvantaged families do express interest in safety
prevention.(3) Cost is one of the biggest deterrents
for both CCs and parents.(4) However, working in
partnership with the voluntary sector like the British
Red Cross can address this with innovative projects
to increase the propensity to act of parents for
minimal costs as the sessions are run by volunteers,
increasing the outreach of the CC.
QUALITY MEASURES
We recommend mutually beneficial measures across
health and LA to support integrated working such as
missed school days due to ill health / hospital
admission.
HEALTH CARE IN THE COMMUNITY
”I’m sure my GP has told me where to go or the
info is there. It’s just I always go to the GP for
something so I’m distracted. I would go to the
Children’s Centre for information”
“I use the internet when I don’t understand what
they say. Sometimes it makes you panic more”
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RECOMMENDATIONS
Clear pathways into acute care with training
to ensure the delivery of consistent health
messages by health professionals to
eliminate the mixed messages described by
parents and carers using health services.
The use of case management teams to enable
children with long term conditions (LTCs) to be
managed in the community and to improve the
confidence of parents and carers to ensure quality
management of their child’s health.ChiMat’s disease
management information toolkit (DMIT) for asthma,
epilepsy and diabetes is a good practice toolkit
designed to help increase the efficiency of services
for children with LTCs.
HOW CAN THIS BE ACHIEVED?
The NW has the highest admission rates for children
with asthma in the UK. Asthma UK is confident that
approximately 75% of all asthma admissions are
avoidable with significant financial benefits
considering caring for people who experience an
asthma attack costs 3.5 times more than a person
whose asthma is well-managed.
Practice they have supported in the NW
include:
CHESHIRE EAST COMMUNITY HEALTH RESPIRATORY
SERVICE(5) An award winning service whereby each family is
case managed by an advanced paediatric nurse
practitioner receiving holistic assessment, health
education, support and on going advice in their
home setting to self manage their childs condition.
They received positive feedback from families and
have reduced GP consultations, hospital admissions
& antibiotic coverage children with respiratory
disease.
RAINFORD CHILDREN'S COMMUNITY ASTHMA AND
ANAPHYLAXIS SERVICE A school nurse initiative to empower school children
to self manage their asthma and life threatening
allergies. The service has successfully reduced A&E
attendances and admissions together with
medication costs within its current caseload of 403
children with only 7 reattending hospital following
their involvement with the service.
QUALITY MEASURES
Admission and attendance rates for children
with long term conditions such as asthma,
diabetes, epilepsy.
Missed school days as a result of a long
term condition.
PRIMARY CARE
RECOMMENDATIONS
Training of the primary and intermediate
care workforce to increase their
”They (NHS Direct) never call you back so I
just use the GP”
”If I don’t understand what they say at the GP or
Walk In Centre I just go to A&E”
“My baby was referred for an x-ray. The doctor
wouldn’t explain so I went and saw another doctor.
He explained things really well”
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competence and confidence in dealing with
the sick or injured child
Increased parents’ access to experienced
GPs with evening (after school) and drop-in
daytime clinics
Standardized care pathways made the rule
rather than the exception
Good customer services eg. welcoming
receptionists
HOW CAN THIS BE ACHIEVED?
MERSEY DEANERY
As part of routine clinical practice, over 1 in 4
patients seen by GPs are children. The
undergraduate training in Mersey Deanery for all GP
trainees include a period on a paediatric
department, equipping them with the competencies
in recognizing and dealing with the sick child once
they have qualified.
NATIONAL EDUCATION SCOTLAND- TRAINING
PROGRAMME Following a national consultation on the
competencies necessary for all practitioners dealing
with the sick or injured child, a core curriculum and
syllabus was designed. This was subsequently
delivered as an online course or a face-to-face 2-day
training programme with University accreditation.
More can be found on the NES website here.
CUMBRIA- PRIMARY/ SECONDARY CARE
COLLABORATION This has been pioneered by Cumbria PCT. The trust is
divided into six localities and a lead GP for children’s
services in each. Regular teaching sessions held
jointly with Paediatricians from the acute trust allow
for constructive feedback from all attendees and
case reviews to consolidate learning.
ON-LINE RESOURCES Making resources available to practitioners takes
advantage of self-directed learning
www.spottingthesickchild.com/ has the strengths of
Royal College recognition and the inclusion of CPD
and self assessment.
MAP OF MEDICINE www.mapofmedicine.com/ offers a visual
representation of evidence-based, practice-informed
pathways that is locally customisable. A key tool for
clinically-led service improvement programmes, the
Map has been shown to improve patient outcomes
and lower healthcare delivery costs. In the NW it has
been used most effectively in North Manchester to
model the asthma treatment after strong
collaborative work between secondary and primary
care.
QUALITY MEASURES
Referral rates from primary/ intermediate
care to secondary care
Training needs analysis of healthcare
practitioners to determine the percentage
with confidence and competence in key
clinical areas
Parent and children’s experience
URGENT CARE SERVICES
6
RECOMMENDATIONS
“single front door” for primary and
secondary care services with triaging to one
or the other according to need
Joint working and staff rotation between
A&E and Children’s services
A child-friendly environment
HOW CAN THIS BE ACHIEVED
SINGLE FRONT DOOR AT ARROWE PARK HOSPITAL On arrival in the hospital, children are triaged by an
experienced paediatric nurse and, depending on
need, referred to A&E or to a co-located primary care
centre on the same premises.
QUALITY MEASURES
Percentage use of a standardised
assessment process that improves the
quality of the assessment
Time to brief clinical assessment
(percentage achieved within 15 minutes)*
CHILDREN’S ASSESSMENT UNIT
RECOMMENDATIONS
Separate child observation and assessment
units with dedicated paediatric staff at all
times
Greater use of Advanced Nurse Practitioners
and senior nurses in a decision making
capacity
HOW CAN THIS BE ACHIEVED?
PANDA UNIT AT SALFORD ROYAL HOSPITAL The service is Consultant led, with a consultant
working in the unit from 9am till 10pm and on call
overnight. The unit has 6 Advanced Practitioners
who give a 24hour service. The national referral rate
for children from A&E to inpatient paediatric services
is 16%. At the PANDA the rate of referral is 4%.
QUALITY MEASURES
Referral rates to inpatient services
Time to clinical decision made by a
competent professional (percentage
achieved within two hours).
”I’ve been in and out of the hospital and always
get different messages. Some say bronchiolitis
others viral wheeze. No-one explains anything”
“Alder Hey always makes him better and explains
things”
“I go to Ormskirk as staff are more approachable
and you get good after-care”
”It’s important to me that A&E is comfortable
and safe like Alder Hey”
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DISCHARGE
RECOMMENDATIONS
The development of a Children’s
Community Nurse Team (CCNT) who
provide specialist care and support to
children and their parents at home for those
with continuing care needs and those with
acute illnesses/conditions.
Nurse-led clinics in community settings
A system whereby primary care clinicians
refer directly to the CCNT
Case management
HOW CAN THIS BE ACHIEVED?
GREATER MANCHESTER CHILDREN YOUNG PEOPLE
AND FAMILIES’ NHS NETWORK
A crucial component of the Making it Better
reconfiguration in Greater Manchester has been a
significant investment by PCTs into CCNTs. This
allows
To safely standardize practice
The review and development of clinical
protocols, guidelines and pathways and the
sharing of good practice.
The development of parental/carer/patient
information leaflets for common acute
conditions.
The development of enhanced specialist
clinical assessment skills
The development of nurse-led community
clinics across the region.
QUALITY MEASURES
Referral rates to CCNT from primary and
secondary care
CHILDREN’S SAFEGUARDING
RECOMMENDATIONS
better intelligence around safeguarding
Case management
HOW CAN THIS BE ACHIEVED?
LIAISON HEALTH VISITING, TRAFFORD
In Trafford there is a liaison health visitor service
which involves visiting the local hospital and picking
up all children's attendances to ensure that
information is sent out to the appropriate
professionals. The Liaison Health Visitors share an
office with the Named Nurse for Safeguarding
Children who all sit within the Children and Young
People's Service which promotes joined up working. .
“Doctors come across as authoritative, talking in
their own language. They need to put themselves
in a mother's shoes”
“I always go to A&E because the doctors are very
welcoming and said ‘Come any time’”
8
By providing information, to health professionals in a
timely fashion it allows for continuity of care in the
community and may prevent families reaching crisis
point. Moreover, In providing a robust system of
efficient and timely communication between
hospital and community services it allows for
assessment and early intervention in response to
identified needs.
ASSERTIVE OUTREACH, COPELAND,
CUMBRIA
In the face of rates of alcohol abuse amongst the
highest in the country, a cross-agency model has
been developed. Prior to the intervention, the local
hospitals were seeing 10 children attend A&E a
month with alochol related presentations..
A multi-professional approach has been taken to the
problems associated with underage drinking/hospital
admissions. Referrals are made to an experienced
oureach worker who offers advice and support and
signposting to specialised services. Over 100 referrals
have now been made to the Assertive Outreach
Workers and Specialised Services from Police, A&E
and other agencies.
This project has the capacity to reduce A&E
attendance and hospital admissions and has already
been well received.
Quality Measures
Percentage of staff dealing with children
and young
people with appropriate level of child
protection training
(95% of staff should be trained)
Evidence of multidisciplinary and multi-
agency collaboration and improvement
action, for example, joint initiatives
DATA SHARING
RECOMMENDATIONS
Appropriate sharing of personal
information between professionals in
different sectors should be facilitated and
suppported by a culture of tust and
common understanding
Relevant anonymised data such as localised
hopsital admission rates should be collected
routinely, shared between agencies. and
information sharing protocols (ISP) should
be place
Investing in shared IT systems which enable
staff from different agencies, parents of
children and competent youg people
themselves to have access to notes. The
system should be set up such that
individuals have access only to relevant
information.
HOW CAN THIS BE ACHIEVED?
CHAI CENTRE BURNLEY The Chai Centre is a combined children’s centre and
Healthy Living Centre, which is also the base for the
Burnley North Children & Families Integrated Team in
Lancashire. The health visitors and children’s centre
staff at the Chai Centre have worked together to
tackle potentially different approaches to data and
professional record keeping. They have done this
through effective co-location to aid communication;
record keeping training for children’s centre staff,
backed up by some coaching from health visitors,
and introducing shared record keeping; developing a
combined home visiting programme, which helped
health and centre staff see the benefits of working
together; and a process for staff to feed back
information to each other after all visits.
The benefits of this approach have included health
visitors being able to coordinate care, thereby giving
them a more manageable workload; an increase in
families accessing the service; and a seamless service
9
for users, with services delivered by the right person
to meet each family’s individual needs
HAUGHTON VALE AND THORNLEY
HOUSE MEDICAL CENTRES An explicit consent model is used overseen by the
local Care Record Development Board. It has
determined that parents may access the records for
children up to the age of 10. Children over 10 years
of age must have a discussion with the doctor and
the parent to determine who has access to the
records online. The practice website
www.htmc.co.uk provides details of the consent
process as well as providing information to help
patients understand the record and their health
using video, pictures and text as well as blogs with
user generated content. The information is
constantly updated to keep it fresh and patients are
encouraged to go there to access trusted information
24 hours a day 7 days a week whenever they need it.
The benefits include Patients and their children feel
much more empowered because they know what is
going on, can rectify mistakes in the record, see what
other communication is happening between
different service providers and be happy that things
are as they should be. Patients, staff and clinicians
report immense satisfaction from the service as it
supports a “Partnership of Trust” between patient
and clinican enhancing the patient experience. It has
resulted in greater productivity as Productivity
patients can view the results of tests online or go
over advice that has been given previously. Children
with chronic conditions who are Gillick competent
are able to order prescriptions online and hence take
greater responsibility of their own health. This helps
to improve concordance and compliance
CHILDREN, YOUNG PEOPLE AND
FAMILY INVOLVEMENT
RECOMMENDATIONS
Parent/Patient Reported Experience
Measure of urgent care services
HOW CAN THIS BE ACHIEVED?
The CPG have supported a service experience pilot
that is funded by the Northwest Leadership Academy
and supported by Inspiration North West. Care cards
have been piloted with great success across the
North West in the adult acute setting and the use of
the Care Cards within this project will enable the
transfer of learning to children’s services. Insights
have been captured from 5 childrens centres in a
locality in the Northwest using the Care Cards as a
means of fostering conversations with parents within
sessions to address 3 questions:
1. ‘What is important to you when you use health services with your child?’
2. What would a service look like to meet these needs?
3. What are the barriers to you having that experience now?
Examples of experiences captured from parents
demonstrating how these impact on service use are
demonstrated:
“Doctors come across as authoritative, talking in
their own language. They need to put themselves in
a mothers shoes”
“I wanted to understand why my daughter was
mottled. A nurse saying sats are fine means nothing
and doesn’t reassure you”
“Some say bronchiolitis, others viral wheeze. No-one
explains anything”
“If I don’t understand what they say at the GP or WIC
I just go to A&E”
“You can’t get past the receptionist to see the GP”
“You can’t get an appointment at the GP so I just use
the WIC”