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Data Collection for Virtual Evidence-Based Programs
PARTNERS IN CARE FOUNDATION
What programs
are we offering?
• Chronic Disease Self-Management Program Toolkit
• Tomando Control de Su Salud Toolkit
• Diabetes Self-Management Program
• Bingocize®
• Tai Chi for Arthritis (forthcoming)
• Chronic Pain Self-Management (forthcoming)
PARTNERS IN CARE FOUNDATION
Current Process
Gather names and phone numbers of
potential participants
Workshop facilitator conducts outreach
calls to enroll participants
Participants are enrolled into
workshops and provided workshop
details
Telephonic or Zoom?
Telephonic
FACILITATOR calls participants to
administer intake surveys
Zoom
MODERATOR conducts tech set-up calls and administers
intake surveys
Facilitator conducts reminder calls to
participantsWorkshop BeginsAfter workshop ends
EXTERNAL FACILITATOR
administers post-session surveys
PARTNERS IN CARE FOUNDATION
• Paid subscription
• HIPAA Compliant1. Signed Business Associate Agreement (BAA)
2. Survey encrypted
3. Secure Survey Share Links (SSL) – default, added security available
https://help.surveygizmo.com/help/hipaa
PARTNERS IN CARE FOUNDATION
Data Collected2017 ACL CDSME & Falls Prevention Grantee
• ACL Required pre- and post-session surveys
• Client Intake Form (Title III-D funding)
• Participant Attendance
• Pre and post self-reported social isolation and loneliness
• Additional Post-Session Questions
• Participant satisfaction related to telephonic/virtual modality
PARTNERS IN CARE FOUNDATION
Tracking Attendance
• Required program attendance sheets utilized
• SurveyGizmo formatted to auto generate Participant ID based on responses to questions
PARTNERS IN CARE FOUNDATION
Connecting pre- and post-session surveys
PARTNERS IN CARE FOUNDATION
Social Isolation
Campaign to End
Loneliness Survey
Validated; Three Likert scale-type questions from “Strongly Disagree” to “Strongly Agree” with an option for “I don’t know”
1. I am content with my friendships and relationships
2. I have enough people I feel comfortable asking for help at any time
3. My relationships are as satisfying as I would want them to be
https://www.campaigntoendloneliness.org/
PARTNERS IN CARE FOUNDATION
Additional Post-Session Satisfaction Questions1. On a scale from 1-5, how satisfied were
you with the workshop with 1 being “Very Dissatisfied” and 5 being “Very Satisfied”?
2. Have you participated in an in-person workshop series in the past?
3. In the future would you prefer to attend workshop series to be done over the phone, on the internet, or in-person
4. Would you recommend this workshop to a family member/friend?
5. On a scale from 1-5, how satisfied were you with the workshop leader with 1 being “Very Dissatisfied” and 5 being “Very Satisfied”
6. [Open Ended] How has this workshop helped you?
PARTNERS IN CARE FOUNDATION
Additional Options for Measuring
Social Isolation
• De-Jong Giervald Loneliness Scale
• Full scale: 11 items
• Short form: 6 items
• UCLA Loneliness Scale: 20 items
PARTNERS IN CARE FOUNDATION
Lessons Learned
Familiar names and voices matter
Use a scheduling tool to manage facilitator and moderators’ time and responsibilities
Plan for appropriate resources to meet participants’ linguistic needs
Plan for multiple methods of disseminating surveys dependent upon participants’ access to internet and email
Be flexible
PARTNERS IN CARE FOUNDATION
Contact Us!
• Dianne Davis, Vice President, Community Wellness
• Christy Lau, Senior Director, Community Wellness
Jen Paquet • Regional Coordinator, Central and Mid-Coast Maine
www.healthylivingforme.org
Overview Maine Network Virtual Implementation Soft Launch Data Collection Security
Virtual Implementation Active Living with Chronic Conditions Toolkit
Better Health Now
Tai Chi for Arthritis and Falls Prevention Virtual Tai Chi for Health and Balance
Soft Launch Network Resources
Zoom, SharePoint, Outlook
Initial Launch Intentionally Scaled Down Number of Programs Marketing Implementation Guides
Virtual Data Collection Enrollment and Registration
Self-Registration Phone Registration
Specific Requirements Internet Connection, Device, Webcam, Microphone
Virtual Data Collection Survey Data Collection
Acknowledgements Waiver for Physical Movement Privacy Notices
Attendance After Final Session
Security Leaders – Volunteers and Staff
Digital Security Contracted Vendors Community Providers
Website Access
More informationJen Paquet
[email protected](207) 620-1642
Jennifer [email protected]
(207) 620-1657
AREA AGENCY
ON AGING
Matter of Balance
Tai Ji Quan: Moving For Better Balance
Stepping On
Living Well with Chronic Conditions*
Living Well with Diabetes*
Living Well with Chronic Pain
Diabetes Prevention Program
Arthritis Foundation Exercise Program
Stay Active & Independent for Life
* Culturally appropriate Spanish versions available
Data Collection
✓ Participant registration on yourjuniper.org
✓ Privacy Policy Notice
✓ Liability waiver
✓ NCOA pre- and post-survey forms
Securetechnology
platform
▪ Web portal for finding and registering for classes
▪ Back-end MIS for class management
▪ Referral and payment systems
▪ Analytics for tracking results
Data Security
▪ HIPAA Compliant
▪ HITRUST Security Framework
▪ Data collection, management, and analysis
▪ Registration yourjuniper.org
▪ Secure JotForm
▪ Secure video Zoom
HIPAA Compliant JotForm
