www.lighthouselymphedema.org

LLN January 2012 Newsletter Coming up in 2012:

• Our patient stories book and our second cookbook now available!

Thursday, February 23rd

, 2012 - LLN Lymphedema Speaker Presentation 5:30 PM light refreshments provided; 6:00 PM Speaker & Q&A

Piedmont Hospital Richard H. Rich Auditorium, 77 Building

1968 Peachtree Road, N.W., Atlanta, 30309

' Janice N. Cormier, M.D., M.P.H., F.A.C.S

Associate Professor, Dept. of Surgical Oncology, Division of Surgery, and in the Dept. of Biostatistics, Division

of Quantitative Sciences, at the University of Texas, MD Anderson Cancer Ctr., Houston, TX

Dr. Cormier will discuss prospective data in her study of lymphedema in

melanoma patients.

Deb Cozzone, LLN Volunteer of the

Year for 2011 "This year, so many have done so much, but there is one person who definitely stands alone in her dedication to the Lighthouse Lymphedema Network. She not only spent endless hours committed to making our book a reality, but she is the administrator of our Bandages and Garment Fund. She is on the legislative committee, serves as our grant writer, and worked on the conference committee doing registrations and creating the name tags and questionnaire. We would like to recognize Deb Cozzone as the 2011 LLN Volunteer of the Year."

LLN BANDAGES & GARMENTS FUND UPDATE

The Bandages and Garments Fund has had a banner year. Due to the Susan G. Komen for the Cure grant and an excellent

year of fundraising activities, such as the Bill Goering Memorial and the Larry Hart Golf Outing and others, we have assisted a record 48 patients in 2011. This has almost doubled our 2010 number of 25 patients! In addition, numerous procedural changes have been made to enhance the application and follow up processes and additional therapists and providers are teaming up with the LLN to provide the best, most cost-effective coverage for our patients throughout Georgia.

In addition, the request for proposal for the Susan G. Komen for the Cure 2012-2013 grant has been submitted and is under

review. We will know the outcome of the grant request in March, 2012. If you need any information or an application for assistance, please contact our Bandages and Garments Fund Director, Deb Cozzone, through the Contact Us on the LLN

website or at the LLN main phone number, 770-442-1317.

LLN continues to support American Lymphedema Framework Project in South Africa

We are still collecting new or clean and gently-used bandages and compression garments for treatment of persons with

lymphedema (for the lymphedema treatment training project in South Africa led by Dr. Jane Armer of the University of

Missouri Medical School).” If you are have any materials to donate, please see the back page of our newsletter for contact

information. LLN is very happy to be able to share bandages and garments for this worthy international project!

2012 Lighthouse Lymphedema Network Calendar Dates to Remember:

• Friday, January 27 - LLN Legislative Day at the Georgia State Capitol, Atlanta, GA

• Saturday, January 28, 2012 - LLN Board of Directors meeting 9:45 AM (Bellmere Gardens event planning committee

meeting starts at 9:00 AM)

• Thursday, February 23rd, 2012 - LLN Spring lymphedema speaker presentation: Dr. Janice Cormier, surgical

oncologist at M.D. Anderson Cancer Center, 5:30-8:00 PM, light refreshments provided, Piedmont Hospital

Auditorium, Atlanta, GA

• Saturday, April 14, 2012 – Bellmere Garden Party & Tour Luncheon Fundraiser for LLN, $30/ticket, 1:00-3:00 PM,

10777 Bell Road, Johns Creek, GA

• Saturday, April 28th, Yard Sale to benefit LLN at the home of Audrey Woodruff (2695 Amberly Hills Trail, Dacula, GA

30019)

Also: for Healthcare Professionals only:

• Tenth NLN Conference, September 5-9, 2012, Omni Dallas Hotel, Dallas, TX. For more information go to

www.lymphnet.org

BELLMERE GARDENS LUNCHEON, TOUR AND PLANT SALE

FUNDRAISER BENEFITING THE LLN

Saturday, April 14, 2012, 12:00-3:00 PM, Cost: $30.00

Tickets go on sale February 15, 2012 No Longer Bound will be the nonprofit organization from whom we purchase plants.

LLN supports efforts to pass the National Lymphedema Bill (See www.LymphedemaTreatmentAct.org, info@LymphedemaTreatmentAct.org for regular updates)

LLN Director Joan White attended the National Lymphedema Bill Meeting in Washington, DC, November 2-5, 2011.

Left, Attendee Dr. Paula Stewart of Medical Director of HealthSouth Lakeshore Rehab Hospital, FL. At right, a group picture of enthusiastic supporters for the National Lymphedema Treatment Act, after the Congressional briefing in Washington. NLTA Director Heather Ferguson is in front (in red); LLN Director Joan White is 3rd from the left in the back row. Bill sponsor Rep. Larry Kissel (D-NC) is also in the back row.

Website: Clinical Trials for Lymphedema Patients See NLN’s website for more details on these clinical trials for which you may be eligible: http://www.lymphnet.org/patients/study.htm

1. Lymphedema Family Study, University of Pittsburgh, PA - a study to identify genes that contribute to inherited

lymphedema

2. Perspectives of Spouses/Partners of Women with Breast Cancer-Related Lymphedema, Miami University, Oxford,

OH – a study to help better understand health information use, health care decision making related to breast

cancer-related lymphedema, the impact of breast cancer-related lymphedema on couples’ sexual relationship, and

potential changes in perceived family or relationship quality of life

3. Breast Cancer Related Lymphedema Research Study, Vanderbilt University, Nashville, TN - a study to see how

different types of lymphedema treatment impact symptoms, quality of life, and arm swelling

Vendor Donations on the 14th Lymphedema Education & Awareness Day: Our sincere thanks to our supporting vendor-members for the following donations:

1. CircAid: a sample of their graduate, measure up, Juxta-fit, and Juxta-lite products 2. Solaris: $3,000.00 worth of Solaris products. 3. Bandages Plus: the book "100 Questions and Answers about Lymphedema." 4. Peninsula Medical Products: a Reid Sleeve product.

Four Pages of Pictures from LLN’s LE&A Day!

LLN PROUDLY ANNOUNCES THE PUBLICATION OF TWO NEW BOOKS!

This book was compiled so that people who have been

touched by lymphedema can share their stories, trials

and tribulations, sadness and disappointments, strength

and hopes. It is intended to encourage, educate, and

inspire patients and loved ones, who can feel isolated

and uninformed. We hope to increase awareness and

general knowledge of a condition that is often

overlooked and misdiagnosed, yet which can have

monumental physical and emotional impact on the lives

which it affects. Not every story has a happy ending, yet

there is hope. By sharing these stories with one another,

we can learn from the struggles and successes that

others have experiences, and can help each other to live

well with lymphedema.

As the center of family life is our kitchens, we hope you

will enjoy cooking, baking, and simply creating

memories from our recipes. This book is a collection of

recipes from members, family, and friends of the

Lighthouse Lymphedema Network. This cookbook makes

a great gift for all occasions, or just for you!

Both of these books will be available by credit card order through our website, http://www.lighthouselymphedema.org , or by contacting Beverly Thompson at 770-476-2671. Or, you can order our books by mail with this form & check

payable to: Lighthouse Lymphedema Network Books, 10240 Crescent Ridge Drive, Roswell, GA 30076

Name: First Last

Mailing Address:

City State ZIP Code

Preferred Telephone Number

Email Address

Number of Copies you would like to order:

The Puzzle _______ LLN Cookbook ______

$19.95 per copy $12.00 per copy

(+ $5/copy shipping) (+ $5/copy shipping)

$ Total Amount Enclosed (Check Payable to Lighthouse Lymphedema Network)

2011 DONATIONS & GIFTS In Memory: Baby Ginna Deborah Cox Kathryn Fowler William “Bill” Goering Fillis Gross Larry Hart Wylette Moody Robert Spencer Honoring: The LLN Board of Directors: Larry Ashmore Dolores Bradley, PhD Samantha Cannon Deb Cozzone Vicky Day Shelley Smith DiCecco Elaine and Gary Gunter Linda Harman Imogene Hart Laura Hoffman Gwen Forbes-Kirby Stephanie Kirkpatrick Jennifer Kitt Clint and Debbie Labarthe Vera Newman Charles Pat O’Connor Katie Russo Cole Sanders Stacy Saraydar Janie Smith Lisa Sollenberger DeCourcy Squire Sandi Stephens Beverly Thompson Shirley Tucker Trinity and Jonathan Maiden Jean Miller Carson Sollenberger Beverly Thompson Doug and Joan White Piedmont Lymphedema and Compression Therapists: Bernice Cohen Jackie Echols Laura Hoffman Gwen Forbes-Kirby Stacy Saraydar DeCourcy Squire

Donations: A Woman’s Place at Northside Hospital Grady Amason Larry Ashmore BSNmedical, Inc.

Bandages Plus William and Betty Bell Kenneth Bick Body of Health (Julie Mills) Helen Brown Bernice and David Cohen Nan and Keith Cooper Helen Cozzone Sara Danison Denver Fencing Center Peyton and Vicky Day Barbara Dickson Ellen Donelson Mary H. Dorrill Doris and Mike Dunn Virginia Fenlon Gloria Watts Cox Foundation Leslie M. Goering Monica Goering Robert Goering Margaret Gravitt Patricia Grey Elaine and Gary Gunter Sonja Holcombe William and Jane Hole Daniela and Graham Hand Julius Zorn, Inc. (JUZO) Susan G. Komen for the Cure (grant) Clint and Debbie Labarthe Dr. John Martin Berta Mebel MEDI, USA Mennonite Foundation, Inc. Ann Pomeroy-Meyer Pauline E. Meyer Microsoft Matching Gifts Program Robert and Jean Miller Robert Mullet Lola Neal Vera Newman Gayle Nowak Peninsula Medical Products James and Shirley Petersen PRIMERICA Margaret Queen Mary Sue Holcombe-Rigby Pauline C. Roux Rikki Salon Juliet Saraydar Michelle Scobie Barbara Snyder Solaris, Inc. Craig and Terry Sollenberger Southern Loss Association DeCourcy Squire Dan and Susie Tinkler Shirley Tucker Juanita Uhlin

Phyllis Walker Lindsey Walsworth Wilda Warren Robert and Pearl Weiss Doug and Joan White Philip and Jolene White Ron and Rene White Louise Wright Special thanks to our 14th State of Georgia Lymphedema Education & Awareness Program Exhibitors and Contributors: A Woman’s Place at Northside Hospital BSNmedical, Inc. Bandages Plus Bauerfeind USA, Inc. CircAid Medical Products, Inc. Julius Zorn, Inc. (JUZO) MEDI, USA Peninsula Medical Products Physiomed Pretty Please Healthcare PRIMERICA Solaris, Inc. Special thanks to our speakers: David Finegold, MD Leanne Fox, MD, MPH, DTM&H Young-sup Yoon, MD, PhD Elaine Gunter, MT(ASCP) Larry Ashmore, PhD Samantha Cannon, MSOT, CLT Vicky Day Shelley Smith DiCecco, PT, CSLT Rebecca Hammad Gwen Forbes-Kirby, PT, CLT-LANA Stephanie Kirkpatrick, MPT, CLT-LANA Debbie Labarthe Janie Smith, PT, CLT DeCourcy Squire, PT, CLT-LANA Our committee and volunteers: Dolores Bradley, PhD Deb Cozzone Gary Gunter Linda Harman Gwen Forbes-Kirby, PT, CLT-LANA Clint Labarthe Janet Nash Vera Newman Stacy Saraydar, PTA, CLT, CSLT Janie Smith, PT, CLT Beverly Thompson Joan and Doug White

Thank you, Lighthouse Lymphedema Network:

Please accept my gift/donation in appreciation for your efforts to support, educate, and create awareness about a serious medical condition called lymphedema.

Donor’s Name: ___________________________________________________

Address: ________________________________________________________________

Phone: (Home) (Work) (Cell) __________

E-mail: ________________________________________________________

Enclosed is my tax deductible donation of $_________, to be used for the General Fund _____, or the B.A.G. Fund ________

The Lighthouse Lymphedema Network is a 501(C) (3) non-profit organization. Please make all checks payable to the Lighthouse Lymphedema Network and mail to the LLN, 10240 Crescent Ridge Drive, Roswell, GA 30076. Call 770-442-1317 for information. You can also make a donation on-line by credit card: The donation page is: http://lighthouselymphedema.org/get-involved/donate.htm.

Change of Address Request: We try to keep our mailing list updated constantly; if you have any changes that should be made to your mailing or e-mail addresses, please send this information to the LLN address above, or by e-mail to elaine.gunter@comcast.net.

Remember: Don’t forget to give us your e-mail address if you want to be reminded about meetings, to receive the LLN newsletter as a PDF file (in color!), and to save mailing costs! elaine.gunter@comcast.net.

LLN’s website is http://www.lighthouselymphedema.org

Return service requested to: LLN Newsletter Editor 1625 Sprucewood Court Decatur GA 30033 USA