45
DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND DODDABALLAPUR Qualitative Final Report for TTCG By: Kantar Insights Division July 2019 1

DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

  • Upload
    others

  • View
    2

  • Download
    0

Embed Size (px)

Citation preview

Page 1: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND DODDABALLAPUR

Qualitative Final Report for TTCG

By: Kantar Insights Division

July 2019

1

Page 2: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Time to Change, Global (TTCG) has been working to end the

stigma and discrimination faced by people with mental health

problems since 2007. It has also supported many other

similar programs and campaigns across the world and co-

founded the Global Anti Stigma Alliance to tackle stigma.

A new global program has been set up in April 2018, to work

with countries that are members of the Commonwealth – To

offer support to people going through these experiences as

well as bring the communities; local organizations and nations

together to address mental health stigma and discrimination

in these regions.

The global program will work in partnership with local Non-

Government Organizations (NGOs) and people having gone

through similar experiences in various countries such as

Ghana, Nigeria, Kenya, Uganda and India to run and evaluate

pilot campaigns, as well as deliver wider global learning

aimed to develop an international anti-stigma ‘toolkit’.

This document entails the findings of the research

2

Background

Page 3: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

3

To decode the understanding & opinion of the target

audience towards various mental health problems and

stigmas associated with mental illnesses – which can be

used as inputs for the social marketing campaigns

Key Needs from Research

Our Approach

An exploratory module to understand the attitudes, beliefs, fears

and myths around mental illnesses. This will also bring forth the

level of awareness around mental illness

Page 4: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Target Group

4

Consumer Profile

• Male and Female

• SEC B/C/D

• Mix of Working and Non Working individuals

• Age:

• 18-24 years: Younger

• 25-35 years: Middle

• 36- 54 years: Older

• Live in Doddaballapur or surrounding villages (within 30km).

• DIs: With people having a relative, friend or colleague who suffers from mental

health problems such as:

• Depression

• Bi-polar disorder

• Schizophrenia

• OCD

Centre: Doddaballappur – Rural area surrounding 30kms (Thuruvunehalli, Ayyammanchalli,

Bashetty halli, Juganahalli, Neraligatta, Channaveeranahalli, Kuruballahalli, Samashethalli)

Language: Kannada

Male Female Total

Urban

Doddab

allapur

1 MGD, 18-

24 + 1 DI,

25-35

1 MGD, 25-

35+ 1 DI,

36-45

4

Rural

Doddab

allapur

1 MGD, 36-

45 + 1 DI,

18-24

1 MGD, 18-

24+ 1 DI,

25-35

4

Total 4 MGDs

+ 4 DIs

Sample Design – Qualitative – 4 MGDs + 4 DIs

Page 5: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Contents of the

Presentation

5

CH

AP

TE

R 1 Setting the

Context Understanding perceptions around mental health

CH

AP

TE

R 2 Understanding the

myths and stigmas around mental health

CH

AP

TE

R 3 Overview of the

Social Environment around Mental Health

CH

AP

TE

R 4 Concluding

thoughts on breaking the stigma around Mental Health

Page 6: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

6

CHAPTER 1

Setting the context – Let us

start by understanding what is

the meaning of Mental Health

in and around Doddaballapur…

Page 7: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Conceptually, mental health has started gaining importance as it is significant in ensuring the

overall wellbeing of a person; specially keeping away physical ailments caused by stress…

7

Stress free living ensures

physical well being

Higher educational attainment Greater Productivity

Dependability Better relationships and social standing

Mental wellness immediately translates into stress

free living which is perceived to be the biggest

reason of all ailments; hectic lifestyle and increasing

work pressure and rising greed results in stress.

Mental wellness is important as it

allows one to attain higher levels of

education which is also a crucial

factor for rising up the career ladder

Mental wellness helps one to be

more productive at work which

means better compensation and

higher standard of living

Mental wellness allows one to

take up more responsibilities in

life and fulfil them effectively –

example – taking care of family,

children and elders in the house

Mental wellness also translates into

healthier relationships and a good

social standing within one’s

neighbourhood and social circle

Page 8: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Respondent Speak

8

“Everything depends on one’s mindset. Some people will always be thinking bad and the work they do will also be the

same way. So their health gets spoilt automatically.- Younger Male

It is important to be stress free. Stress is the biggest problem. We here somewhere someone has met with an accident

and then we keep worrying that why my son hasn’t come home yet and all. Initially I did not have any illnesses but now I

worry so much about them that I have got diabetes. These are all stress induced illnesses – Older Female

We have to be mentally healthy, but as soon as children grow up we start getting problems one by one. When they are

young we are all strong but when they grow up we tend to get all kinds of illnesses. When children are young they listen to

you, but when they grow up they start making their own decisions and don’t listen to us, so the worries are piling up.- Older

Female

I will give a simple example. When everything is fine we will get up early and go to work. If there is any conflict in the

house and our mind is disturbed then we don’t feel like going to work. A man will be well balanced only when he is both

physically and mentally healthy. – Older Male

Page 9: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

…however when it comes to Mental health disorders, there is still limited understanding

around the whole issue and minimal differentiation between various types of disorders that

exist…

9

Understanding of symptoms is only limited to “Normal behavior vs

Abnormal behavior”

Confusion around how to differentiate between Nature of a person vs symptoms of a mental

disorder

Difficult to differentiate between short term

situational stress or a initial stages of a mental

disorder

Surface level knowledge of the different types of

disorders and their symptoms, with most mental issues called

‘depression’

“ My husband also reacts the same way; it is

difficult to control him; he worries about

every small thing and shout at people in the

family; he says he can’t be normal as he has

tensions all the time. I have to convince

him; it is common in the family; they should

not worry about that.- Older Female;

My father-in-law expired 6 months

ago; he was depressed and he did

not have any sense of who is in

front of him or who is talking to; he

was not normal; he behaved in a

different way – Caregiver, Older

Female

There is this old lady who keeps scolding

everyone in the house and draws Rangoli

(traditional Indian designs made with ground

rice) all the time, I have told her at times

don’t scold children, but she does not listen,

she is cleanliness obsessed; I feel that is

their nature – Younger Male

There is this person doing the same

thing over and over again. I don’t

know exactly what it is but it is some

mental problem for sure - Why do

they keep doing the same thing? –

Older Female

Page 10: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

…because of this, the causes are mostly attributed to external factors; however few intrinsic

elements are expected to make people more susceptible to mental health issues…

10

Stress related to work,

children, property and

finances

Some drastic incident in

personal life or an

accident

Adjustment issues within

a non-supportive

environment

Introverts driven by the habit of

overthinking everything and not

mingling with people

Low mental strength/

Resilience

Lifestyle related stress is

considered to be the most

important factor leading to

depression

Some kind of trauma;

either physical or

mental triggers the

ailment

Many people living in

hostile environments

find it difficult to cope;

specially women when

they move into a new

house after marriage

Few people attribute the issues

related to mental illness with low

resilience to face difficulties in life

Being possessed by

demonsStill perceived to be the work of

black magic or spirits; which is

outside ones control

Overthinking and not talking to people about

problems essentially associated with

introverts; regarded as easily succumbing to

mental health problems

TRIGGERED

BY

EXTERNAL

FACTORS

FOR FEW PEOPLE

INTERNAL

FACTORS

INCREASE

SUSCEPTIBILITY

Page 11: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Respondent Speak

11

“Some of them even have issues with their mother in law, like they keep nagging their daughter in law for everything and due to this the

daughters in law have even committed suicide. Yes. There are people who have reached to that level and taken such drastic step. I have

heard of it and even seen it- Older Female

There are some people who are introverts and they don’t share things with others, so these people are more prone to such things – Older

Female

Many people become this way as they overthink. There are people who have become so due to shock of their husband meeting with an

accident. Few think they are in shock while others think they are possessed by demons. They are possessed. They are not considered

mental patients. They are thought to have been possessed by demons, spirit, devil or black magic – Older Female

I have seen a person by name Venkatachala in Dibbapura, he has seen his father dying or killing of his father, from then till now he will not

mingle with people. He will not speak to people or mingle with them, he will be sitting alone, whatever work is there, he will do his work on

his own. He will not join anyone, he will not speak to anyone, he does his work, eats, sits alone and sleeps. He does nothing else. He

does not like people.- Younger Male

It happens after a sudden incident, shocking news or on witnessing something. On seeing some accident. If the surrounding environment

is damaging, they lose themselves in a delusion – Older Female

Page 12: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

It is perceived to be a slow and gradual process that keeps deteriorating the condition of an

individual from within and hard to identify symptoms during the initial stages further add to

the ambiguity…

12

Slow and Gradual Process

People understand that it is a slow

process (unless it involves a

major accident or severe case

incident); which makes it difficult

to pin-point the time it actually

started

No clear visible symptoms

until the problem has

worsened

It is difficult to identify people

suffering from mental disorders as

there are no drastic changes in their

behaviour during initial stages of the

problem; therefore it keeps getting

worse

“People won’t understand it is mental problem. They will feel “he will be okay after some

days, he is disturbed because of his work, he will be okay in future” they will ask what is the

problem, if he answers that is okay or else they will feel it because of some work tension.

They will leave him normally for days. If the same thing continues further, it might have get

to a serious to a level that he can’t express. – Younger Male

Mental problems don’t happen all of a

sudden. They grow into a severe illness

gradually. It's not like healthy today and

sick tomorrow – Older Female

Page 13: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

13

In Sum | Societal perception of a person who has been identified with some mental illness

greatly deteriorates…

Perceptions towards people before

they are identified as mentally illPerceptions towards people after they

are identified as mentally ill

Unreliable, unstable and erratic

Broken away from societal norms

Having no sense of time and place

Unkempt with no sense of personal

hygiene

Responsible Individual

Follows rules and norms of society

Has a regular routine

Well groomed and well maintained

Opinions are valued and included in

decision making Avoided and excluded; not seen as

having worthwhile opinions

Page 14: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

14

CHAPTER 2

Given this context, let us look at

the myths and stigmas associated

with mental health disorders…

Page 15: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Myth 1 | A person affected by a mental health disorder can never be perceived as normal again

or recover completely…

15

“As long as there are no problems, they lead a

normal life. If similar problems and worries

arise, they deteriorate. She has to continue

taking tablets – Older Female

Rather than curing them, people get adjusted

to them. Say for example we are a group of

people and one among us becomes like that

because of some sudden shock or so, what

we will do is we will start listening to them and

get adjusted to them but will not go in the way

where they can be cured. – Younger Male

Even if it gets completely cleared, he will have

a thought in his mind that “I had the problem, I

might get it again. It will be there in his

thinking always- Younger Male

Difficult Recovery - It is difficult to recover from a mental disorder and even if one is able to it is never complete; Only up to 90% recovery is possible

Possibility of Relapse - There is always a chance of relapse if subjected to similar conditions or if one stops taking their medicines

Life long scar -The scar of having suffered a mental disorder will always remain in the memory of the person and their family; which lowers their self confidence and making them unable to enjoy a normal life

Page 16: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

# marked by a lifelong labelling, a person

suffering from mental health disorder is

deemed unfit to work or lead a normal life,

so much so that they are not considered a

functioning section of society

16

Stigmas that amplify

the Myth….

Page 17: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

“Myth 2 | It is an area of expertise for priests and shamans over doctors and psychiatrists…

also highlighted as the initial reaction by people close to those suffering from mental illness

17

My grandmother never used to sleep and used to

remove her clothes. Then we went to the temple and

did a puja and she is alright now. She does her own

work. I have seen it in my own home. There is medical

science and also God’s science.– Older Female

In a situation like this people first go to God, then to

black magic, if that doesn’t work, then if someone says

that there is an elderly person who looks into such

things, they will take them there, even if that doesn’t

work, only then they go to doctors- Younger Male

It is because they have some mental illness; they think

that nobody in the family value them; nobody is

respecting them; it depends on their behaviour. My FIL

he used to scold kids; and talk to himself; after that he

used to ask for things; people in the village used to say

that he is possessed by ghost – Caregiver, Older

Female

Attributing the problem to spirits and black

magic

Relieves an individual from being subjected to any harsh

judgement from others by making them a victim; also shifts

the burden of guilt and shame to an external entity thereby

removing the scope of any personal defect leading to

mental disorder. Therefore reaching out to God; priests and

Shamans is a preferred mode of treatment.

Page 18: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

# a person suffering from mental health

disorder is unpredictable, unsafe and

unreliable. They are possessed and are

to be feared…

18

Stigmas that amplify

the Myth….

Page 19: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Myth 3 | Approaching doctors and psychiatrists aggravates the existing shame …

19

“When we see such things we feel pity and tell the

family members to consult the doctor and all but

what do the family members say, their nature is

like that. They say that she likes things clean.

They don’t want to go to doctor as people will start

talking – Older female

It is very difficult to treat them. They won’t do it.

They will throw the tablets. And they take the

thrown tablets and play with it. – Older Male

They call them mentally challenged if they are

taken to a doctor. The person feels they are

mentally challenged for having been taken to a

doctor. They won't be aware of their own mental

condition. They will go against their family for

taking them to see a doctor. Relationships are

affected. - Older Female

Attributing the problem to Science and

medical condition

Still an ambiguous concept to grasp for all. While

people appreciate the effectiveness of involving a

doctor, it does not relieve one of the shame surrounding

the subject; all the more it aggravates the problem with

no external entity to blame for; implying some personal

defect must exist within an individual

Page 20: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

# visiting a counsellor or doctor means

the condition has aggravated and is

beyond repair. It isolates and labels

them as inherently defective and

abnormal…

20

Stigmas that amplify

the Myth….

Page 21: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Myth 4 | It is also perceived to be genetically transferrable which affects the entire family…

21

“People might not marry their children. They will

not immediately agree when they see. They will

ask about their parentage. If they hear that

something like this happened in their house,

they will go away…how will society accept them.

What if something happens to the kids also?

When they take the daughter, the mental person

might come near their house. So, they don’t

want to keep any relation – Older Male

When our family member is affected, we feel

ashamed and try to keep it a secret If it's a

daughter, after marriage her husband's family

will tell that he has married a mental. If it's a

daughter in law, she is also taunted. If it's a son,

they won't show him to any doctor. They will be

aware, but will think about others opinions and

keep quiet – Older Female

Possibility of it running in the family

• Limited awareness and ambiguous

understanding of the issue leads people to

believe that it might be genetically

transferrable.

• This severely impairs the chances of getting

married for individuals who’s family member is

perceived to be mentally ill

Page 22: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

# a person suffering from mental health

disorder or any of his or her family member is

not suitable for marriage ….

# a person suffering from mental health

disorder brings shame to entire family

22

Stigmas that amplify

the Myth….

Page 23: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Myth 5 | Spending enough time with the affected person also increases the risk of transferring

the ailment to others…

23

“She is unhappy. Looking after her

father and being with him all the time,

she too has become like him. If

someone talks to her suddenly, she

also gets angry then cools down. He

was mistaken, then she calms –

Caregiver, Younger Male

After spending too much time with

them one might turn mental. Seeing

them repeatedly, he might think that

life is only this much, and joins them. –

Older Male

Spending time with a person suffering

from mental disorder is considered

unhealthy

• Spending significant amount of time with those

suffering from some sort of mental illness is

bound to have an impact

• It is expected to affect a mentally healthy

individual in an unhealthy manner

Page 24: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

# a person suffering from mental

health disorder shouldn’t be allowed

to mingle with others; specially

children ….

24

Stigmas that amplify

the Myth….

Page 25: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Myth 6 | People suffering from mental health disorder get used to getting help and sympathy

and therefore start acting that way …

25

“Yes, they are lazy; they won't do any work; they

won't like to do anything; they will just sit in one

place and eat on time …also I have seen…

They do not care about what others are saying.

They always think what I do is right…. The

person should do work responsibly. He does

not take interest in the work. He does not have

interest in anything … He does not know what

work to do. He makes mistakes in work. He got

a job of watchman at marriage hall. If someone

scolds him at work, he makes big fuss and

quarrels with them and comes…Still the work is

not complete. It is pending. He does not do it

on his own nor does he do it if someone tells

him to do it - Younger Male

People suffering from Depression make it

a habit and become lazy

• They prefer to stay in their own world as it has

become a habit and they don’t come out of it

even if they can

• Additionally they get a lot of attention and

sympathy which they get used to and therefore

think it is okay to not work and be taken care

of…

Page 26: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

# a person suffering from mental

health disorder is selfish, lazy and

doesn’t care/understand how tough

it is for others….

26

Stigmas that amplify

the Myth….

Page 27: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

27

Summarizing the attitudes towards Mental health disorders…

Attitudes that are strongly agreed upon

People with mental health problems can’t manage their lives – if they do manage then they’re not unwell

A lot of people with mental health problems are just lazy

People with mental health problems should stop moping about and get out to work like the rest of us

Depression is an excuse for everything

People with mental health problems should snap out of it

If you suffer from a mental illness you are weak

If I talk to someone who has a mental illness I might make it worse

Page 28: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

28

Summarizing the attitudes towards Mental health disorders…

Attitudes that are some-what agreed upon

The public are rarely at risk from people with mental health problems

Talking about mental health is important

People with mental health problems are more likely to harm themselves than others

Mental health problems are isolating

Attitudes that are not agreed upon

We shouldn’t be scared of people with mental health problems

Mental health problems are very common

People with mental health problems have brought it on themselves by not taking care of themselves

People with mental health problems can and do recover

People with mental health problems are not stupid

Page 29: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

29

CHAPTER 3

…Now let us understand how is the Social

Environment around Mental Health and

what is the attitude of people towards

those suffering ….

Page 30: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Mental Health Disorders attract a multitude of reactions from people ranging from positive to

negative …

30

In Doddaballapura; people mind their

own business; they don’t care others;

otherwise they are at home all the time;

they don’t go out anywhere; they watch

TV; but they don’t try to get knowledge

about this. – Younger Male

Mockery Sympathy

Care

Indifference Fear

Pity Disgust

Negative

Reactions

Positive

Reactions

We give solutions. We try to help them

out. We ask them why they are behaving

in such a way. We give assurance that

everything will be alright. We enquire

whether someone has said something to

them. – Older Female

The ones, who know about it, feel sorry.

People, who don't know about it, think that

they are faking it for gaining sympathy at

home. They think she is faking it to make

them look after her and to change their

minds. - Older Male

Page 31: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Unpredictable behaviour displayed by those suffering and ambiguity around symptoms of a

mental health disorder drives negative reactions ….

31

Limited Awareness about the symptoms

Limited understanding of the symptoms drives people to immediately react back

(many times in anger and disgust). They fail to understand that the individual is

suffering with mental health disorders

Unpredictable behaviour

Unpredictable behaviour of those suffering from mental health disorders generates

fear amongst others. People prefer to maintain some distance as they don’t know

how would this person react. They might instruct their children to stay away from

such people as well

Page 32: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Respondent Speak

32

“Recently I saw person when I was coming from NIMHANS [National Institute of Mental Health and Neuro Sciences]. He boarded a BMTC

bus. He was military man. He took voluntary retirement. He was not talking anything. Whenever I tried to talk to him, he said “Don’t talk too

much. Otherwise I will shoot you”. He won’t do anything but he will talk like that.- Older Male

Like Rajesh, we had a guy named Shankru. He studied well. B.Com. or BA. We were classmates when we were younger. I had gone to

my native. I met him and asked if he is fine. He had become mental but I didn’t know that. I was going on my vehicle. I stopped and asked

him are you fine? He scolded ‘l*afer’, directly. I am telling something that happened in real. He wasn’t a friend; he was a classmate. I

asked him if he is good. He told ‘mental’. He is the one who is mental and he scolds me badly. Someone else passed by. I asked him, why

is Umashankar speaking like this. He said that he is mental; don’t speak. – Older Male

Some people think that they are affected by evil spirit or such things. So they think that if I mingle with such person they will also get

affected by such evil spirits. They are afraid that such people will some time become violent and may attack the people. My father is an

example for such situation. My father wanted to beat me he beat my mother. I was taking him inside the house to have his food. But he

does not want to eat. So when I took him inside the house for have his food he took a stick and he came forward to beat me but by

mistake he beat my mother. So such people beat others when they become angry. – Younger Female

Page 33: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Limited understanding of the issue and unwelcoming attitude of family members drives people

to adopt a casual or an indifferent attitude ….

33

Limited Understanding of Causes and Triggers

Ambiguous understanding of the causes leading to mental health disorders

creates misunderstanding at multiple levels – E.g. One might feel a person is

faking things to garner attention

Unwelcoming attitude of family

Many a times people adopt an indifferent and non-interference attitude. This is

because, while they might want to offer help – families of these individuals try

their best to hide the issue and this unwelcoming attitude of family members

puts them off.

Page 34: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Respondent Speak

34

“Many people feel why should I get involved. I have my own problem, why should I worry about his problem. Why should I interfere in

unnecessary things. If I go there he keeps speaking and will not leave me. – Younger Male

Sometimes when there are people in the house they behave properly but as soon as they leave they behave differently. Sundays I cooked

chicken and the smell reached the nearby home and then she started calling us bad words due to it all day. When the daughter and son in

law get the chicken at home and cook that time she does not say anything. I don’t understand her and prefer to stay away – Older female

Some people take offense if we enquire. They will say that you don’t think we are taking care of them, we know very well how to handle

them why do you bother so much? Even if we tell them they will be like everything is good at our place .Sometimes when there are fights

and we ask the next day they answer this way your house has no problems we are having problems that is why we behave this way. We

feel it is better to not interfere, what else to do? – Older female

They will be living in their world. For example, every day before going to sleep we plan for the next day. But mentally ill people won’t have

any plans. They come at whatever time they want. They will wear same dress for many days. They will not talk to us properly. They don’t

want anything in life. If we ask them “When were you born?” they will say “Was I really born?...we wont know how to talk to them so we

dont” – Older Male

Page 35: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

However, personal relations and respect for elders in society drive the positive reactions

towards mental disorders….

35

Family

One’s family is expected to be the

primary support system by default.

People are bound to care for people

suffering from Mental Disorders owing to

the strong family ties.

Friends

In many cases family might not be the

only support system. Young males tend to

depend on their friends for support more

as they stay out of the house most of the

times; with their friends who know them

better while interaction with family is

limited to few hours

Neighbourhood

Majority of women having moved out of

their maternal home after marriage, find

solace in sharing their worries and

concerns with other women from their

neighbourhood. There is a sense of care

and concern that exists towards others

living in their area

Respect for Elders in Society

Even if not related directly via family or

friends, there is a basic sense of respect

towards elder members of the society -

this also drives sympathising with those

suffering from any mental health disorders

and providing basic level of care where

ever possible

Page 36: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

Respondent Speak

36

“There's a person in my village who is elderly. She went into depression. She was mentally-ill. She would not wear clothes at times and

won't have a bath while on periods. Someone else had to bathe her. She would hit with whatever was near at hand if we tried to talk. She

would add more rice or a full bottle of salt into boiling rice. She is fine but talks or laughs by herself. We try to help her, She eats whatever

we give and if we ask her to do some work she does it without any interest. She is depressed like a very old lady who is bedridden. People

have taken her to see many doctors but in vain – Older Female

Rather than family members, friends will be with him, at least 2 friends will be with him. The people who know which places he like, they

will take him to those places. Whatever he likes to eat, they might take him there to eat that. They will try to understand what stage he is in

and try to look out for hospitals and all that. Mostly friends because family members might not know so much because he goes out in the

morning, he will be back home only in the evening. The entire day he will be friends. If the person stays at home, then family identifies it

first. If he is a person who goes out, then friends will first come to know. - Younger Male

We like to share things. She shared her problems with me. By sharing and talking, solution can be found. But if she keeps it within herself

and thinks of committing a suicide, how will we be able to stop her? There are people with such a mentality as well, but we try to talk –

Older Female

Page 37: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

37

CHAPTER 4

Concluding thoughts – on

breaking stigmas around

mental health

Page 38: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

It is important to acquire a two fold approach to spread awareness and tackle problems related

to Mental Health Disorders

38

1. Reaching out to the

larger set of audience who

might not be directly

exposed to any mental

health issue

2. Reaching out to a)

people in the social

environment of b) those

suffering from mental

health disorders

Page 39: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

1. It is important to reach out to the larger population to dispel myths and stigmas

surrounding mental health disorders. Doing this will bring about awareness and

acceptability…

39

It will create awareness around mental health

as an increasingly more common ailment which

is affecting people everyday

It will educate them that with the right

treatment people can lead a normal and

productive life

It will help break stigmas around mental health

and create an inclusive environment for those

suffering from mental health disorder

Page 40: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

1. Therefore, to achieve the desired result it is important to understand what to communicate

and how to communicate it….

40

What should we

Communicate?

How should we Communicate?

1. Acknowledge and accept –

It is normal and affects many

of us

2. Understand & Adapt – It is

important to learn new

information around this and

be willing to let go of stigmas

3. Normalize & Create

conversations – Willingness

to discuss in public; part of

everyday conversations

• Short Term Channels –

• TV, Radio and Newspaper ads owing to

it’s reach; short bursts of repeated

information that is easy to recall

• Street plays that are high on

engagement and crowd pullers;

• Social media; (whatsapp and facebook)

for younger people

• Long Term Channels – Reaching out to

children and educating them about mental

health disorders like the way they are taught

about physical ailments and the importance

of doctors and medical treatment

Page 41: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

2.a It is important to reach out to people in social circles of those suffering from mental health

disorders as stigmas affects the entire family/social environment. Doing this will bring about

change in important ways…

41

It will make people understand that if the

problem exist within their social circle; they

must not be dismissed or take it lightly

It will educate them regarding the symptoms

that differentiate a mental health disorder with

situational stress

To guide them with respect to next steps as

most them don’t know what to do.

To generate hope by clarifying that it is an

ailment like any other physical disease which is

treatable

Page 42: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

2.a Therefore, to achieve the desired result it is important to understand what to communicate

and how to communicate it….

42

What should we

Communicate?

How should we Communicate?

1. Acknowledge and accept

– It is normal and affects

many of us; no point being

in denial

2. Understand and Act – It is

important to take the right

steps; dealing with

constraints

3. Become an agent of hope

and change – Spread the

right information

• Short Term Channels –

• Creating evangelists from local

population who understand and spread

the right information; breaking stigmas

• Street plays that are high on

engagement and crowd pullers;

• Social media; TV, Radio and

Newspaper owing to it’s reach

• Long Term Channels; - Create work

opportunities and skill trainings for those who

have suffered through mental health illness

so that they can lead an independent life

without becoming a burden on families

Page 43: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

2.b. Reaching out to those who might be suffering from mental health disorders will help them

in three ways…

43

First and foremost it is important to make them

understand that the problem exists; and how

they are feeling are the symptoms that

shouldn’t be dismissed

Secondly, it is crucial to guide them with

respect to next steps as most them don’t know

what to do.

Thirdly, it is of utmost importance to generate

hope by clarifying that it can be completely

cured; and is like any other physical ailment

that requires treatment from a qualified

professional

Page 44: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

2.b. Therefore, to achieve the desired result it is important to understand what to communicate

and how to communicate it….

44

What should we

Communicate?

How should we Communicate?

1. Don’t deny it’s existence

2. Reach out for help

3. Stay hopeful

Reaching out to them directly won’t have the

immediate impact as they don’t understand the

symptoms and live in denial

Therefore; it is advisable to reach out to them as a part

of general health check up and awareness camps; to

reach out to those who tend to avoid mental health

camps

- Pamphlets explaining issues and detailing out

symptoms, with helpline numbers for immediate

assistance and counselling

- Social media/TV/Radio ads to create content to

reinforce this message

Page 45: DECODING THE STIGMAS AROUND MENTAL HEALTH & … · 2019-12-03 · DECODING THE STIGMAS AROUND MENTAL HEALTH IN AND AROUND ... A new global program has been set up in April 2018, to

THANK YOU

45