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Dysmelia covers many - EURORDISdownload2.eurordis.org/presentations/emm2012/WS1_T... · Dysmelia covers many conditions Many people with limb difference are amputees, not congenital

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Page 1: Dysmelia covers many - EURORDISdownload2.eurordis.org/presentations/emm2012/WS1_T... · Dysmelia covers many conditions Many people with limb difference are amputees, not congenital
Page 2: Dysmelia covers many - EURORDISdownload2.eurordis.org/presentations/emm2012/WS1_T... · Dysmelia covers many conditions Many people with limb difference are amputees, not congenital
Page 3: Dysmelia covers many - EURORDISdownload2.eurordis.org/presentations/emm2012/WS1_T... · Dysmelia covers many conditions Many people with limb difference are amputees, not congenital

No up-to-date website Dysmelia covers many

conditions

Many people with limb difference are amputees, not

congenital – some are both

No existing membership base

Reaching all small limb difference groups,

whatever their language

Terminology: Dysmelia is more widely used in

continental Europe, the UK and US use ‘limb

differences’

Page 4: Dysmelia covers many - EURORDISdownload2.eurordis.org/presentations/emm2012/WS1_T... · Dysmelia covers many conditions Many people with limb difference are amputees, not congenital

Inclusive

Visually attractive

Interesting

content

Page 5: Dysmelia covers many - EURORDISdownload2.eurordis.org/presentations/emm2012/WS1_T... · Dysmelia covers many conditions Many people with limb difference are amputees, not congenital
Page 6: Dysmelia covers many - EURORDISdownload2.eurordis.org/presentations/emm2012/WS1_T... · Dysmelia covers many conditions Many people with limb difference are amputees, not congenital

Twitter: DysNet – taken but

unused

Twitter: from DysNet_EU &

Dysmelia Network

To: DysNet_org and Limb

Difference Network

Page 7: Dysmelia covers many - EURORDISdownload2.eurordis.org/presentations/emm2012/WS1_T... · Dysmelia covers many conditions Many people with limb difference are amputees, not congenital

Finding Followers & Monitoring

Page 8: Dysmelia covers many - EURORDISdownload2.eurordis.org/presentations/emm2012/WS1_T... · Dysmelia covers many conditions Many people with limb difference are amputees, not congenital

DysNet is also on:

Page 9: Dysmelia covers many - EURORDISdownload2.eurordis.org/presentations/emm2012/WS1_T... · Dysmelia covers many conditions Many people with limb difference are amputees, not congenital

The New DysNet Site..