Edition #38 july 2013 central western nebraska

Proudly serving over 8,500+ families Since June 2010!!-- NOW Across all of Nebraska!!!

June is Father's Day

What's Where???

Important Tidbits for Families pages 2 - 6State-Wide page 6

Bellevue, Cedar Bluff & Columbus page 7Fremont & Grand Island page 8

Gretna & Hastings page 9Lincoln pages 10 - 15

Norfolk pages 15 - 16North Platte page 16

Omaha pages 16 - 24Resources for Families pages x

Classifieds page 29

Help us Expand our Reach, Pass us along to families you know who could use this information!!! 402-327-2500

8055 O Street, Suite S110Lincoln, NE 68510

www.heartlandspeech.com

Find us on FACEBOOK too!

Check out any event

changes, after publication additions & MORE

at our blog:

www.ohanakidsnews.

blogspot.com

For more information, or advertising rates

please contact us at:

[email protected]

FACEBOOK too!!

Thanks for Reading OKN!!

Special Needs Mom's

You may think us “special moms” have it pretty rough. We have no choice. We just manage life when things get really tough. We've made it through the days we thought we'd never make it through. We've even impressed our own selves with all that we can do!

We've gained patience beyond measure, love we never dreamed of giving. We worry about the future but know this “special” life's worth living! We have bad days and hurt sometimes, but we hold our heads up high. We feel joy and pride and thankfulness more often than we cry.

For our kids, we aren't just SUPERMOMS, No, we do so much more :) We are cheerleaders, nurses, and therapists who don't walk out the door. We handle rude remarks and unkind stares, with dignity and grace. Even though the pain they bring cannot be erased.

Therapies and treatment routes are a lot for us to digest, We don't know what the future holds, but give our kids our best. None of us can be replaced, so we don't get many breaks. It wears us out, but to help our kids, we'll do whatever it takes!

We are selfless, not by choice you see. Our kids just have many needs. We're not out to change the world, but want to plant some seeds. We want our kids accepted. That really is our aim. When we look at them, we just see kids. We hope you'll do the same.

-- April Vernon

Edition #38 July 2013 Central & Western Nebraska Edition

Edition #24 May 2012

Proudly serving over 8,500+ families -- NOW Across all of Nebraska!!!

May is Better Speech & Hearing MonthMay 9 is National School Nurse Day

May 13 is Mother's Day

What's Where???

Important Tidbits for Families pages 2 - 6

State-Wide page 6Bellevue, Cedar Bluff & Columbus page 7

Fremont & Grand Island page 8Gretna & Hastings page 9

Lincoln pages 10 - 15Norfolk pages 15 - 16

North Platte page 16Omaha pages 16 - 24

Resources for Families pages xClassifieds page 29

Help us Expand our Reach, Pass us along to families you know who could use this information!!!

Check out any event changes, after publication

additions & MOREat our blog:

www.ohanakidsnews.blogspot.com

For more information,

or advertising ratesplease contact us at:

[email protected]

FACEBOOK too!!


Special Needs Mom's






-- April Vernon





What's Where???













[email protected]

FACEBOOK too!!


Special Needs Mom's






-- April Vernon

This edition Covers ALL BUT these counties:

Washington, Dodge, Saunders,

Douglas, Sarpy, Cass, Otoe, Lancaster, Johnson,

Nemaha, Pawnee, Gage, Jefferson & Saline.

See pg 3 for

What’s Where?

Check out our website at www.ohanakidsnews.com

Whew! Well here is the July Edition of O’Hana Kids News.

I encourage you to take time to read through the Important Tidbits sections AND the State Wide Information Section. Of course whatever metro you are closest to you

want to read the information for that also!!

There is SOOOO much information here, you will want to make sure you read it thoroughly J

As always if you have any suggestions or ideas on what I should do with OKN PLEASE let me know as I ALWAYS take each and every one into consideration.

I am always on the hunt for new information to add to OKN, so if you know of an event or support

group, or other information that is beneficial to families like ours PLEASE let me know!!!

THANK YOU FOR MAKING OKN WHAT IT IS TODAY!!!!

“Every child deserves a chance to play baseball!”

2012 Summer Session Begins Saturday, May 19 th !

Games are held every Saturday at

9am, 10:30am & Noon

Games last approx. 1 hour

The season lasts 7 weeks (to June

30th)

All Games are played in the ALLPLAY

Complex, located in Seymour Smith

Park at 6802 Harrison Street in

Omaha.

This complex features barrier free

design & level surfaces. The Miracle

Field & playground are covered with

rubber surfaces to soften any falls.

These surfaces are perfect for

wheelchairs, walkers, braces & use by

people who are visually impaired.

Ages from 4 - 20+. Athletes disabilities

include autism, cerebral palsy, spina

bifida, visual impairments, muscular

dystrophy, dwarfism, multiple

sclerosis, spinal cord injury, down

syndrome, amputations & other

physical & mental & cognitive

disabilities!

REGISTER TODAY!!!

For More Information go to:www.ALLPLAY.org or

call Bruce Froendt at 402-305-5020

Page 3

IMPORTANT TIDBITS FOR FAMILIES Learn how to adapt toys to use with a switch/button/BigMacThis workshop is for ANYONE!! You will learn how to easily & cost effectively turn the toys that your child already has, & isn't using because of physical limitations, into toys that are adapted to your child!! You will learn how to install a jack into a single function toy & convert it into a toy that is operated with a switch. You will learn how to assemble a switch. You will make a detachable cord that runs from the toy to the switch. You will be able to do this, AND you will go home with a working switch toy & switch. Best of all, your child's toy will look professionally adapted, by YOU!! You have seen that the switch operated toys are sometimes 8x as much to order, than if you could buy the toy & put the switch in for a few dollars, yourself. Dates/Times will be determined when I have 4 or more people interested in the class. This class is FREE, however donations of any kind are appreciated. Contact Aaron today at [email protected] for more information!

A & D Waiver – Aged & Disabled Waiver

Is YOUR child on this? Is YOUR child eligible to be on this?If your child is on this waiver, do you know that it makes your income guidelines non-existent? No cap on your income. Just have to use the 2 hours minimum respite each and every month, so you don't lose your A&D Coverage. Do you know that you can add your child, to your private

health insurance (non-medicaid), and if you are on the A&D Waiver, you can get those

premiums paid for for BOTH you and your child, through the HIPP program? Has to be the

same family policy, but they will cover all the insurance premiums for your entire family!!

For us this was $1,200 in premiums, because we are self-employed, don't have a corporate medical plan, and it was killing us. By talking with another mom, I found out about this program, and we are waiting on our reimbursement to arrive!! So cool. For 5 years we were told that our income dictated the medicaid that our son received, for us that meant we had to either stay in this little income box of like $45,000 or make an additional $100,000 to cover the expenses in therapy and medical services that our sons receives on an annual basis minimum. The guidelines to be on the A&D Waiver, I do not know for sure what they are. If you want to know, I can find out, just email me. I know that my son qualifies, and if has something to do with being fed solely by g-button, and being non-independent. If you want the contact information for the HIPP program, just shoot me an email on that also, or ask your Service Coordinator specifically about it. There are many programs out there available to help families like ours out. We just need to get the word out there for families to access that information. If you know of a program, that would benefit families, email me.

[email protected] We will research it and get the correct information out to all

the families.*

Parent Group with kids with combined hearing & vision lossThe Nebraska Technical Assistance Project on Deaf-Blindness has conducted training this year specific to parents of children who have a combined hearing & vision loss. The training has been in partnership with the National Consortium on Deaf-Blindness (NCDV2.0). A total of 7 parents have participated in a series of training activities from May 2011 through October 2011. They are now working on their leadership goals & have another planned meeting in April 2012, as well as ongoing meetings in the future. They are called the Nebraska DB Parent Leadership Team, & have provided lots of support to the state deaf-blind project. It is the intent of this team to provide one-on-one interaction either via phones, technoloty or face to-face with other parents in the state who have a child birth to age 21 with a combined hearing & vision loss. If you want to be connected to one of these parents, please contact Teresa Coonts at the number and email listed above. This is an exciting group of parents working & learnin together for the purpose of supporting other families in the future.

When contacting our advertisers, please tell them you found them HERE!!!

Make sure to let people know how you found out about these events, activities & advertisers!!Tell ‘em, O’Hana Kids’ News pointed you their way!!!

Easter

Seals Nebraska

2012 Summer

Respite Camp Dates

June 10 - 15 Young Adults, ages 23-39

June 17 - 22 Adults, age 40+

June 24 - 29 Youth, ages 6 - 13

July 10 - 13 Military Youth, ages 7 - 16, Offutt AFB

July 15 - 20 Teens, ages 14 - 22

July 22 - 26 All Ages

MORE INFORMATION: 1(800)650-9880, ext. 1128www.campeastersealsne.com

All camps are held at the BSA

Camp Eagle near Fremont, NE.

Miracle League Baseball

~ Omaha ~

We believe that

O’Hana Kids News is not responsible for any events,. Including cancellations, or changes after print. It is your responsibility to verify the information provided through the contact information provided. You can check the blog at www.ohanakidsnews.blogspot.com or our Facebook page as we try to update those with any information changes that have occurred after publishing.





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[email protected]

FACEBOOK too!!


Special Needs Mom's






-- April Vernon

C l a s s i f i e d s B u y , S e l l , T r a d e , G i v e A w a y o r N e e d

WISH LIST FOR VODEC: Bingo Machine & Cards, Karaoke Machine, Portable Stereo, CD’s, DVD’s for movie nights, Popcorn Machine, Pinatas & Sugar Free Candy, Craft Items (including: construction paper, glue, markers, beads, jewelry making kits, scrap booking supplies), Play Money for educational purposes, color printer, sporting equipment (including: handicapped ramp for bowling, basketballs, shot put balls 6 & 8 lbs, cones, tennis balls, bocce ball set, baseballs, baseball bats, baseball gloves, soccer balls, bowling bags, bowling balls, stop watches, clipboards, jerseys, pom-poms, cheerleading uniforms, shirts for coaches, fishing gear), coolers, cookbooks, roasters for food & food serving equipment. Contact Pam Monsky at [email protected]

Used AFO’s and braces of any kind – if your child has outgrown the shoes, afo’s, braces, etc and they are sitting just taking up space, please email heather at [email protected] they will be collected and distributed overseas via a local orthopedic specialist who travels and fits children with this special equipment that is not available to them.

FOR SALE: Wheelchair Accessible Van : 1996 Chrysler Town & Country, 128,000 miles. Adapted to fit 2 wheelchairs side by side in the middle row, and also the front passenger can have a wheelchair there. Ramp is off the side door. Asking $10,000. Call Katie Noland at 402-650-0348 if interested.

FOR SALE: Adapted Toys! Aaron has toys available that he has already adapted and are ready to go! Contact Aaron today at [email protected] for more information! FOR SALE: Motorized Scooter & 9 additional wheelchairs. Located in Auburn. If financial assistance is needed, please call & talk to Angela, because there are resources available to help or alleviate the cost. Call Angela at 402-274-9362 for more information.

To a Good Home: Riftin Pacer K501 Model Walker, includes saddle, bars, front walking bars & back helper bars, Call Katie Noland at 402-650-0348 if interested

To a Good Home: Child’s size wheelchair, call Susannah LaCroix at 402-496-1000

To a Good Home: Power wheel chair for a small adult, contact Sandy Houser at [email protected]

To a Good Home: Wheelchair for child, call Amy at 402-212-8931 for more information on it

To a Good Home: We have 149 unopened cans of Isosource 1.5 Cal G-tube feeding formula, these are 375 calorie cans. Expiration date is August 12, 2013. These are all for FREE just looking for them to be put to use. You can call Jess Parker at 402-601-8280 or [email protected] for any questions you may have. My mother passed away in October, this is the formula she was using. Do you have something you want to get rid of or no longer have use

for? How about something that you need?

Email me to place that information right here in O’Hana Kids News! [email protected]

DISCLOSURE:

With ANY equipment specific to your child,

PLEASE have your PT/OT involved to ensure that it is a good fit for the child!





What's Where???













[email protected]

FACEBOOK too!!


Special Needs Mom's






-- April Vernon

A Special Sitter was inspired by our ongoing journey of parenting our

family, which includes 2 kids with special needs, & we

believe that our experiences can help you experience the fullness of blessings we have received as we have raised our

family.

Services Offered: Companionship Services Personal Care Services Home Helper Services

For More Information Contact Richard Troia 402-‐697-‐8400 x201

[email protected]

See “Our Story” on Page 8

Page 3 Learn to Adapt Toys to Use with a Switch/Button/BigMac This workshop is for anyone! You will learn how to easily &cost effectively turn the toys that your child already has, & isn’t using due to physical limitations, into toys that are adapted to your child! You will learn how to install a jack into a single function toy & convert into a toy that is operated with a switch. You will learn how to assemble a switch. You will make a detachable cord that runs from the toy to the switch, and best of all your child’s toy will look professionally adapted, by YOU! This class is FREE, however donations of any kind are appreciated. Contact Aaron today at [email protected] for more information!! 1/2013

HIPP Program Do you know that you can then add your child, to your private health insurance (non-medicaid), and then you can get those premiums paid for through the HIPP program? As long as your child is on Medicaid, and if the child is on your family health insurance policy, they will cover the entire premium for your family!!! If your child isn’t on this, I would contact your DHHS coordinator to find out if this is an option for your child. I know that if your child is fed via g-button, j-button more than I think 50% of their daily intake, or have a catheter, these are both automatic qualifiers for kids. If you want more information I would contact your Services Coordinator, if you need help getting answers let me know and we can work through it together! Let’s get the word out about this program!! Contact me at [email protected] for more information.

Exceptional Parent Magazine This is a magazine for parents of children with developmental disabilities & other special needs. You can get a digital edition of this magazine, just go to www.eparentdigital.com type in the EMAIL: [email protected] & use the PASSSWORD: specialneeds to access editions digitally.

Handmade Gowns, IV Covers, G-button covers & more!!! Check this out!! If you have a child who is routinely in the hospital for various things (like mine is J) then you need to check this lady out!! Go to www.tubiewhoobies.com or you can visit them on Facebook at www.facebook.com/tubiewhoobies Sure Steps SMO Orthotics Sure Steps makes tennis shoes that are made to fit SMO’s. Contact them at www.suresteps.net for more information. Advocacy Page for Parent’s of Children with Disabilities Now parents are invited to check out a page on Mosaic’s website www.mosaicinfo.org/services/research/CollaborativeCorner.html make sure you check out this new resource available to all our families





What's Where???













[email protected]

FACEBOOK too!!


Special Needs Mom's






-- April Vernon

Join our mailing list, contact us at

[email protected] TODAY!!


What’s Where???

Classifieds page 2 Important Tidbits for Families pages 3 – 9 Summer Camp Information pages 10 - 15

State-Wide pages 16 - 17 Chadron page 17

Columbus & Grand Island page 18 Kearney & Norfolk page 19 Outreach Clinics page 20 Schuyler & York page 21

Resources NOW ON WEBSITE ONLY due to their sheer size!!!

Important Tidbits for Famil ies

Independent Consultant

Heather Ackman 402-‐227-‐5304 imapamperedchef @yahoo.com

All orders help support O’Hana Kids News!!!

!

!

!!!!!NEBRASKA!RESPITE!NETWORK!

!Are$you$a$caregiver$for$a$loved$

one$with$a$disability?$Are$you$

interested$in$working$with$other$individuals$with$a$disability?$$

The$Nebraska$Respite$Network$<$Eastern$Service$Area,$covers$all$of$

Nebraska$is$seeking$individuals$to$

provide$respite$for$individuals$with$

disabilities$across$the$lifespan.$CNA/$

CMA$and$bilingual$skills$desired,$but$not$required.$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$$

Call$(402)$996<8444$today$and$speak$

to$Elizabeth$or$Kay,$or$e<[email protected]$$$$$$$$$$$$$$$$$$$$$$

who$can$direct$you$to$$$$$$$$$$$$$$$$$$$$$$$$$$$$$

where$you$need$to$go!!





What's Where???













[email protected]

FACEBOOK too!!


Special Needs Mom's






-- April Vernon

Parent 2 Parent Mentor’s Wanted!!! Nationally over 80% of parents of children with disabilities, who were mentored by an experienced parent, reported it to be the most helpful source of information o coping with the challenges of raising a child with special needs. Mentored parents report that the support of a fellow parent was so unique & personalized that it could not have come from any other source! As the mother or father of a child with developmental disabilities, you have unique parenting experiences. Through time, training, & trial & error, you have gained valuable skills. Use your knowledge to help another parent on the journey by becoming a mentor. Parent to Parent (P2P) programs link parents of children, adolescents & adults with developmental disabilities together with experienced & informed veteran parents who understand the day-to-day experiences of raising a child with special needs. Parent to Parent Omaha is offered by Ollie Webb Center, Inc., a local non-profit agency. We are seeking parent mentors who are coping well with their child’s situation & view him or her as a valuable & developing person. Consider becoming a mentor if you’d like to help parents cope with the joys & challenges of having a child (of any age) with special needs. The time commitment involves contacting another parent (in person, by mail, e-mail or telephone) once every 2 weeks within the first 8 weeks, & as mutually agreed thereafter. You have the knowledge & experience. We provide the training as a framework to share your wisdom. The next training will be held soon & will include: Guidelines for Helping Families; Creative Coping Skills & Resiliency; Survival Tactics for Parents of Children with Special Needs; What Helps Families in High Stress Situations & Crisis; Tips for Extended Family & Siblings; Tips for Locating Community Services; Information on Parent to Parent USA; Cultural Competence & Family Centered Care; & Principles of Family-Professional Collaboration. (4/2012) To talk to someone about becoming a mentor, please contact Annie Anderson at 402-346-5220, ext 23 or [email protected] or you can mail your name, address, phone number & e-mail to: Ollie Webb Center, Inc., 1941 South 42nd Street, Suite 122, Omaha, NE 68105

Tech Tots & Tech Tools Programs Sponsored by UCP The Tech Tots Lending Libraries provide developmental toys, adapted toys and devices to children with developmental and physical disabilities, at no cost to families. UCP of Nebraska offers over 700 adapted toys & technologies for children and teens through 4 locations (listed below). The toys are housed in libraries located in respite or rehab services environments. Primary use of the program is through families that use services at the center, and is also available to the general public. The toys are available to be taken home to reinforce learning. We have heard from families that have participated in this program consistently and the value it has brought to them. After one family in particular, has been using the program by taking 3-4 items home for their child with Cerebral Palsy. After a month of using these items, they return the items and “refresh” them with something new and interesting. It has helped increase the exposure and learning for that child by continually offering new tools. These same adapted toys are cost-prohibitive to many families, as they typically cost more than 5 times the base cost of the toy without adaptation. UCP has partnered with AT4ALL to make the entire inventory visible online. AT4ALL is offered by the Assistive Technology Partnership. A family can view the items, request them for loan, and then simply pick them up at the location. Simply go to www.AT4ALL.com, click on “Children’s Equipment” in the category. All items available for checkout from UCP of Nebraska Tech Tots Partners (& a few other agency programs) will come up. You can refine the search by location by selecting one of the UCP of Nebraska sites. Under Programs, scroll down to find the UCP Tech Tools locations. Children’s adapted items available through other agencies can also be found on this website! Locations for Tech Tots and Tech Tools: (All these are listed in Resources in Back of OKN) Children’s Respite Care Center NW, 2010 N. 88th Street, OMAHA 402-496-1000 ask for Sarah Tselentis Children’s Respite Care Center SW, 13336 Industrial Rd, Ste 101, OMAHA 402-895-4000 ask for Sarah Tselentis Madonna Rehabilitation Hospital, 5401 S. Street, LINCOLN 402-486-8617 ask for Michelle Wiggins Children’s Rehab Center, 3004 W. Faidley Avenue, GRAND ISLAND 308-398-5170 ask for Carole Ostdiek Faith Regional Health Services Rehab Services, 1500 Koenigstein, NORFOLK 402-644-7348 ext. 7396 Ask for Nikki Fischer Hearing Care Helpers www.Accessibility.net purchased the rights to use Hearing Care Helpers as the name of its new division and I wanted to introduce you to its new website. The web site is fully dedicated to AfterShokz right now but have secured distributorships for the leading products to offer powerful amplified telephones, Bluetooth headsets, amplified neckloops, mobile accessories and listening systems for people with hearing loss and those looking for a remarkable listening experience. We are here to help the blind and visually impaired and deaf and hard of hearing communities www.HearingCareHelpers.com Introducing Nebraska- LowVision.com http://www.nebraska-lowvision.com


OUTPATIENT

PEDIATRIC THERAPIES PT, OT, SPEECH & FEEDING

Specialized Summer WorkshopsSpecialized Summer WorkshopsSpecialized Summer WorkshopsSpecialized Summer Workshops

SENSORY ART EXPERIENCE Your child will explore arts and crafts through the senses (for ages 6+).

CALL 402.496.1000 For more information or to

register today! Together, we can do anything.Together, we can do anything.Together, we can do anything.Together, we can do anything.

O’Hana Kids’ News is not responsible for

any events; including cancellations, or

changes after print. It is your

responsibility to check with each contact

to verify the information that we have

provided to you.

Page 4

IMPORTANT TIDBITS FOR FAMILIES *

Munroe Meyer/ AAP iPad Lending LibraryThe Munroe Meyer Speech Department in partnership with Autism Action Partnership has created an iPad and iPod lending library. The purpose behind this library is to provide families affected by ASD the opportunity to try iPads and iPods as communication devices before they go to the expense of purchasing their own. If you have a family member or know a family who may benefit from this program, please have them contact me to set up a screening. During the screen, the family will have the opportunity to try the iPad or iPod as well as several communication applications and accessories. If one of the devices is deemed as a viable option for the child, we will set up a 30 day loan of the device and the appropriate application. During the 30 days, the family will be required for 2 follow up/training sessions. One will be scheduled midway through the trial and the other will be scheduled for the end of the trial period. During the last scheduled session, we will determine if the trial was a success and will begin the process of securing funding (insurance, grants or private pay options). This is an incredible opportunity for the community and we are excited to offer this program!! Contact Jennifer Brock at [email protected] or 402-559-6460 for more information. 12/11

NCDHH – The Nebraska Commission for the Deaf and Hard of Hearing The mission of the Nebraska Commission for the Deaf and Hard of Hearing is to provide advocacy, communication access and information to enhance awareness and services for improving the quality of life for all who experience hearing loss. The Vision Statement of NCDHH is: Being a proactive state agency, the Commission works towards building support, cooperation and understanding regardless of hearing ability resulting in fairness and equality for all Nebraskans. Make sure to check out our website at www.ncdhh.ne.go v *

Dental Research Study for Children with DisabilitiesThe Department of Pediatric Dentistry at the Munroe-Meyer Institute is conducting a research study evaluating ways in which dentists can help children with disabilities feel more relaxed and calm during dental treatment. The researchers are seeking children between the ages of 2 to 10, who need dental work done. Children who participate receive a $25 gift card to Wal-mart. Children can be seen at MMI or at the new dental clinic at Children’s Hospital. The project is funded by the National Institutes of Health. Please contact Dr. Keith Allen at 402-559-5756 or Kristi DeHaai, MS at 402-559-4498 to learn more about how to enroll your child in this research.*

Caregiver Day for Rural Nebraska Families in Cass CountyO'Hana Kids News is looking to put together a day where caregivers can come for a few hours and have a massage, see a chiropractor, have a great meal, maybe a mani or a pedi, possibly have someone doing hair. Just a day where us caregivers can get done in just a couple of hours, something that makes us happy :). I haven't seen anything in Cass County or south of there, for caregivers. If any families would be interested in something like this, PLEASE either give me a call or send me an email. I will base even doing this on how many people contact me about it. I know the need is there. Just let me know. I am interested in any comments you have regarding what you would like in a short day like this also. Is childcare something to look at too? Just let me know, Heather Ackman 402-227-5304 or [email protected]


Make sure to let people know how you found out about these events, activities & advertisers!!

Tell ‘em, O’Hana Kids’ News pointed you their way!!!

At ProCare3, we treat children

with many different diagnoses,

including but not limited to:

Developmental Delays

Torticollis

Autism Spectrum Disorder

Sensory Integration

Speech Delays

Cerebral Palsy

Hypotonia

Sports & Orthopedic Injuries

We offer

Warm Water Aquatic Therapy!!

Millard Pediatric Clinic

13336 Industrial Road, Ste. 105

Omaha, NE 68137

Contact us TODAY for a tour

or a FREE Screening!

(402)330-3211 Ext. 108

www.procare3.com

We are Open 6 Days a Week,

Monday through Friday

with extended hours

from 7am - 7pm

Need Saturday hours?

Ask us about those too!!


Heather Ackman

402-227-5304

www.pamperedchef.biz/

heatherackman

Now planning

Wedding Showers!!!Call today for your spot!!

Can be done Online Now!!

Page 5 Radio Show by Adult with Asperger Syndrome “Parents Corner” is a radio show, co-hosted by Brian King, LCSW. Brian is an adult with Asperger Syndrome, who also has 3 boys on the ASD spectrum. Brian will be sharing his parenting strategies and discussing them with a panel of parents. Here is a link with all the details you’ll need to tune in & call in if you’d like. http: tinyurl.com/3gm58h7 Check it out & pass it along. His address is: PO Box 994, Chicago, IL 60186 if you’d like to write to him.

Heart Heroes Capes for kids with CHD, a Nebraska Non-Profit Every year, approximately 40,000 infants are born in the US with Congenital Heart Defects (CHD). CHD is the most frequently occurring birth defect & the leading cause of birth-related deaths. More than 50% of children with CHD will require at least 1 invasive surgery in their lifetime. In the US, twice as many children die from CHD each year, than all forms of childhood cancers, combined! Needless to say, the survivors of CHD wear their scars, like badges of honor. They are our “Heart Heroes”. Heart Heroes, Inc., is a non-profit organization that originated by a few Nebraska moms, who had children with CHD. After trying to coax their children through cardiology appointments & heart surgeries, they took comfort in the wondrous powers of “super hero” capes to comfort their children, & Heart Heroes was founded! Now hundreds of Heart Hero capes have been draped around the little shoulders of CHD children everywhere. Consider donating a Heart Hero Cape to a child with CHD by going to www.heartherocapes.com to donate a cape. There is a perpetual wait list of children who need their capes to conquer their fears & give them courage. You can also join our Heart Heroes Facebook Group to see pictures of many of the cape recipients & hear their stories. Contact the Co-Founders of Heart Heroes at [email protected]. “Children hold our hands for a moment, but our hearts forever.” ~Anonymous Gluten Free/Casein Free Diet Website Just received this information that a parent went through and put their information into a website of all the diet information they have for gluten free/casein free. I haven’t checked it out, but take a look. It is http://www.lincolntent.com/GFCF.html Financial Resource for Families – FirstHand Foundation This is a resource for families with uncovered medical needs for their children. Families can apply for individual financial assistance if they meet the Foundation’s eligibility criteria. Check it out at www.firsthandfoundation.org Collaborative Corner on Mosaic’s website Check out the Collaborative Corner on Mosaic’s website at www.mosaicinfo.org/services/research/CollaborativeCorner.htm Resources and publications are updated regularly. Please contact Tara Harper at [email protected] if you have any questions or need additional information! Villa Marie Home and School for Exceptional Children Villa Marie Home and School for Exceptional Children provides a loving, home-like atmosphere for up to 22 children, both day students and boarders. Students enjoy comfortable dormitories (4 students to a room), excellent recreational facilities, a chapel and spacious grounds. The Villa Marie staff provides total 24 hour-a-day supervision. Villa Marie follows the Lincoln Diocesan Catholic School calendar. The school has 3 well-equipped classrooms, a library, up-to-date computers, a Smart Board in each classroom and a variety of audio/visual aids. Villa Marie is approved by the Nebraska Department of Education and all teachers are certified in Special Education. The developmental program at Villa Marie works towards preparing students to function effectively in social situations, to live independently, & to use their skills in productive employment. Specific areas of development include social and emotional development, vocational training, appearance, health and hygiene, and community involvement. Requirements for attendance are: Children with special needs between the ages of 7 & 18 but no students older than 16 will be accepted as new students, Students must be on an Individual Education Plan (I.E.P. & not require one-on-one paraprofessionals, Three step process for entrance (1. Parent interview, 2. Student visit during school, 3. Application for entrance including tuition negotiation) For More Information on Villa Marie Home and School Contact Sister Peggy Kucera, Principal at 402-786-3625 or [email protected]





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[email protected]

FACEBOOK too!!


Special Needs Mom's






-- April Vernon

This edition is FREE!!! Pass it along!! Join our mailing list, contact us at [email protected]





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Page 2

IMPORTANT TIDBITS FOR FAMILIES

Radio Show by Adult with Asperger Syndrome “Parents Corner” is a radio show, co-hosted by Brian King, LCSW. Brian is an adult with Asperger Syndrome, who presented here in the area back in January. Brian also has 3 boys on the ASD spectrum. Brian will be sharing his parenting strategies and discussing them with a panel of parents. Here is a link with all the details you'll need to tune in and call in if you would like http:tinyurl.com/3gm58h7 Check it out and pass it along. His address is: P.O. Box 994, West Chicago, IL 60186 if you would like to write to him.

Project Lifesaver in Sarpy CountyThe Sarpy County Sheriff’s Office implemented Project Lifesaver in 2008 to help locate missing persons. Children with Autism or Down Syndrome, who are at risk to wander, can have their safety greatly enhanced through this program. Project Lifesaver emphasizes relationships between specially trained Sheriff’s personnel and individuals enrolled in the program BEFORE the need may arise for a rescue. During an initial home visit, Project Lifesaver enrollees are fitted with a personalized wristband transmitter and family members are provided with a comprehensive overview of the program. Trained in communicating with individuals with special needs, deputies will schedule a monthly home visit to inspect and maintain the equipment and get to know the enrollee better on a more personal basis. The cost to participate in this program is minimal, at $10 a month. For more information on Project Lifesaver, contact Lt. Griger at 402-593-2288.

Heart Heroes Capes for children with CHD, a Non-Profit here in NebraskaEvery year approximately 40,000 infants are born in the US with Congenital Heart Defects (CHD). CHD is the most frequently occurring birth defect and the leading cause of birth-related deaths. More than 50% of children with CHD will require at least one invasive surgery in their lifetime. And in the US, twice as many children die from CHD each year than from ALL forms of childhood cancers, combined! Needless to say, the survivors of CHD wear their scars like badges of honor. They are our “Heart Heroes”. Heart Heroes, Inc., is a non-profit organization that originated by a few Nebraska moms, who had children with CHD. After trying to coax their children through cardiology appointments and heart surgeries, they took comfort in the wondrous powers of “super hero” capes to comfort their children, and Heart Heroes was founded. Now, hundreds of Heart Hero capes have been draped around the little shoulders of CHD children everywhere. Consider donating a Heart Hero Cape to a child with CHD by going to www.heartherocapes.com to donate a cape. There is a perpetual wait list of children who need their capes to conquer their fears and give them courage. You can also join our Heart Heroes Facebook Group to see pictures of many of the cape recipients and hear their stories. Contact the co-founders of Heart Heroes at [email protected].

“Children hold our hands for a moment, but our hearts forever.” ~ Anonymous

Exceptional Parent MagazineMagazine for parents of children with developmental disabilities and other special needs. You can get a digital edition of this magazine, Just go to www.eparentdigital.com type in the EMAIL: [email protected] and use the PASSWORD: specialneeds to access editions digitally. This information is also listed in the back of OKN under Website Resources.

Leaps & Bounds Pediatric Therapy NEW 2 nd LOCATION Leaps and Bounds Pediatric Therapy, located in Lincoln, has now added a South-West location in Lincoln, in addition to their North location in Lincoln. The new clinic is located at 7945 S. 15th St., Suite D (just east o f14th Street, between Pine Lake Road and Yankee Hill Road). Physical Therapy, Occupational Therapy & Speech Therapy services are available at BOTH locations! Please call 402-742-7400 to schedule an appointment at either locations. We look forward to seeing you!

Make sure to let people know how you found out about these

events, activities & advertisers!!Tell ‘em, O’Hana Kids’ News pointed you their way!!!

Pediatric speech, language & feeding therapy

Specializing in Autism

Specializing in Deaf/Hard of Hearing & Cochlear Implants

Specializing in Late Talkers & Developmental Delay

402-327-25008055 O Street, Suite S110

Lincoln, NE 68510



NORTH LOCATION2550 Superior St. Suite 160

Lincoln, NE

SOUTH-WEST LOCATION7945 S. 15th St. Suite D

Lincoln, NE

NEW

2 LOCATIONSTo best Serve You!!!

* Physical Therapy * Occupational Therapy *

* Speech Therapy *

Call 402-742-7400 to schedule an appointmentat either location, TODAY!

The Nebraska Respite Network

Do you know about the Lifespan Respite Subsidy Program?

This program pays for respite services (someone to come into the home to care for a person with special needs, to give the primary caregiver a temporary break). The program serves people of all ages. It is for people who are NOT receiving the services from another

government program.

Who Needs This Program? Caregivers who need a temporary break from providing care to persons of any age, with special needs. Examples of special needs are developmental & physical limitations,

emotional or behavioral disorders, chronic illness. Alzheimer’s disease & related health concerns, or persons at risk of abuse & neglect. Eligibility is based on income guidelines. HOWEVER, if you have expenses directly related to the disability, these can usually be subtracted from the counted income. The person applying must have a caregiver.

The program will provide up to $125 per client per month!!

How do I become a Respite Provider? How do I get qualified for the Lifespan Respite Subsidy Program? What if I need help finding a respite provider, so I as a Caregiver,

can have a break? Contact the Nebraska Respite Network by contacting a Respite Network Coordinator in

your area (see below) or call 1-‐866-‐RESPITE

Eastern Service Area Serving Douglas & Sarpy

Coordinator

Elizabeth Chentland (402)996-‐8444

[email protected]

Southeast Service Area Serving Thayer, Jefferson, Gage, Otoe, Cass, Pawnee, Richardson, Johnson, Nemaha, Lancaster, Saline, Fillmore, York, Seward, Polk, Butler & Saunders

Coordinator Misti McInteer (402)434-‐3494 ext. 103 [email protected]

Central Service Area

Serving Harlan, Franklin, Webster, Clay, Nuckolls, Phelps, Kearney, Adams, Buffalo, Hall, Hamilton, Merrick, Howard, Sherman, Custer, Valley, Greeley, Blaine, Loup, Garfield, Wheeler

Northern Service Area

Serving Washington, Dodge, Colfax, Platte, Nance, Boone, Antelope, Holt, Rock, Brown, Cherry, Keya Paha, Boyd, Knox, Cedar, Burt, Dixon, Dakota, Thurston, Cuming, Stanton, Madison, Pierce & Wayne

Coordinator Sue Bochart, For BOTH Service Areas

(308)745-‐0780 ext. 145 [email protected]

Southwest Service Area

Serving Dundy, Hitchcock, Red Willow, Furnas, Gosper, Dawson, Lincoln, Logan, Thomas, Grant, Hooker, Arthur, Keith, Perkins, Chase, Hayes, & Frontier

Coordinator Helena Janousek

(308)345-‐4223 (308)345-‐4990

[email protected]

Western Service Area Serving Sheridan, Garden, Deuel, Sioux, Cheyenne, Morrill, Box Butte,

Dawes, Scottsbluff, Banner & Kimball

Coordinator Sherri Blome (308)432-‐8190

[email protected]






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Page 7 Parent Group – Kids with combined hearing & vision loss The Nebraska Technical Assistance Project on Deaf-Blindness has conducted training this year specific to parents of children who have a combined hearing & vision loss. The training has been in partnership with the National Consortium on Deaf-Blindness (NCDV2.0). A total of 6 parents have participated in a series of training activities from May 2011 through October 2011. They are now working on their leadership goals. They are called the Nebraska DB Parent Leadership Team, & have provided lots of support to the state Deaf-Blind project. It is the intent of this team to provide one-on-one interaction either via phones, technology or face-to-face with other parents in the state who have a child birth to age 21, with a combined hearing & vision loss. If you want to be connected to one of the parents, please contact Teresa Coonts at 402-595-1810 or [email protected] This is an exciting group of parents working & learning together for the purpose of supporting other families in the future.

Bikes and Trykes of Central Nebraska We are a local chapter of AMBUCS, a national service organization composed of a diverse group of men and women dedicated to creating mobility and independence for people with disabilities. Our mission is to provide AmTrykes for area children and adults with disabilities, who otherwise would not be able to ride a bike or tryke. We are dedicated to “Celebrating the Abilities of People with Disabilities”. Our chapter representative is a 4 year old boy with Cerebral Palsy, his name is Jaden. Jaden has a twin brother, Kaden, who does not have any disabilities. When their family went on bike rides, Jaden had to be pushed in a stroller, which usually caused many tears. Jaden didn’t understand why Kaden got to ride a bike, and he had to be pushed in a stroller. Jaden was fitted for an AmTryke and he now gets to ride along, so he can be just like his brother. The AmTryke has not only helped Jaden’s self-esteem, but it has also increased his muscle tone, coordination, muscle strength and balance. If you know of someone who would benefit from an AmTryke please have them contact us. We are also requesting help from you so we can help other children like Jaden. When a disabled individual receives the gift of an AmTryke, the whole family benefits. If you would consider donating toward an AmTryke, please contact us also. We are located at 3004 West Faidley Avenue, GRAND ISLAND; 308-398-5170 or [email protected] You can also check out the website www.ambucs.org

“Love That Goes the Distance” Providing for special needs now & into the future! Planning for the long-term care of a loved one with special needs requires thought and preparation. The fact is, when it comes to the future needs of a family member with a disability, the possibility that they nay outlive you is something that must be considered, especially when the individual is a minor or adult child. Preparations include estimating possible future care-giving costs, as well as making sure all assets are managed properly to best benefit your loved one. Special protection when you need it most! Sometimes families neglect inheritance issues for special needs family members because they assume siblings or related caregivers will simply step in and take over the care giving duties should the need arise. Even if families have reached an agreement on care giving responsibilities, it is still important to address the management and division of assets and to have your preferences clearly and legally defined. You also want to be sure you understand all of the legal guidelines so that your loved one with special needs does not lose benefits from government sources. For instance, many people are not aware of that with Supplemental Security Income (SSI), a single, disabled person cannot own more than $2,000 in assets. One component you might want to consider when setting up your long-term financial plan is the establishment of a “Special Needs Trust” funded with a form of life insurance. A “Special Needs Trust” is established to ensure that the disabled individual’s inheritance will supplement, not replace, any government assistance programs they may be eligible for. Aspects of a “Special Needs Trust” include: Appointing someone to take care of your loved one’s property and money, Designating a guardian for children less than 18 years of age, Integrating the wishes spelled out in the trust with the remainder of the parent’s estate plan. Get the help you need now for future peace of mind. A “Special Needs Trust” is just one tool that can help you address financial issues making life much easier for your loved one and their future caregivers. With proper planning, your love, and your money, will be set to go the distance. For additional information on “Special Needs Trusts” it is important to consult with an attorney in your state of residence who specializes in special needs estate planning. For more information on preparing for your loved one with special needs’ future, you can contact Cecilia Loose, Prudential at (402)861-3676.





family.



[email protected]


ABC Signing Kids Teaching Beginning Sign Language to Kids of All Abilit ies in South East Nebraska. Why Learn Sign Language? In addition to the fun you will have discovering a new and enriching language together, there are many benefits of signing with your child. Enhances Communication Skills in Babies and Toddlers. Even young children can learn basic ASL vocabulary quickly & easily with Signing Time Academy Classes & products. “Terrible Two’s” aren’t so terrible when your toddler can communicate what he wants. Improves Reading Skills. Studies indicate that children who sign have an increased interest in reading & may even read early. Benefits Children with Special Needs. Many children with special needs have difficulty with communication & speech. Sign Language encourages connection, reinforces positive self-image & fosters inclusion & acceptance. Sign Language is an effective tool for all types of learning styles: auditory, visual & kinesthetic/Tactile. For more information Call Angie Willey, Certified Instructor at 402-499-4022 or [email protected] You can also go to www.abcsigningkids.weebly.com Friend of Autism Award Call for Nominations Do you know an educator who demonstrates remarkable dedication to individuals with Autism Spectrum Disorders? Nominate them for the ASD Network Friend of Autism Award. Submissions should include details of how the nominee exhibits the following qualities. Commitment: Has the education of families and children and youth with ASD as a primary focus & provides opportunities that enable students with ASD to reach their potential. Vision: Sees potential in all individuals, readily adapts to change and accepts all individuals with ASD and their strengths and needs. Innovation: Is aware of empirically supported practices in the field of Autism Spectrum Disorders and shows a willingness to adapt and use resources creatively. Inspiration: Displays positive interactions with students & parents, and actively influences peers with their energy & enthusiasm. Please include contact information for the nominee and the person(s) submitting the nomination. Nominations can be submitted via email to: Annette Wragge at [email protected] or by mail to: Annette Wragge, UNL, 253F Barkley Center, Lincoln, NE 68583-0738 Nomination Deadline is March 8. The award will be presented during the Thursday evening dinner at the 2013 ASD State Conference. The conference will be held on April 11 & 12 in Kearney at the Youness Convention Center. “Our Story” The Beginning of A Special Sitter As parents of four children, two with special needs, we understand your challenges in raising special needs children. As parents, our God given responsibility is to train our children for life. As a parent, you

experience highs & lows as your children grow through the seasons of life. We learned early, that these highs & lows are amplified when you are caring for a child with special needs. You want to attend your children’s sporting events, teacher conferences, & musical performances. You want to continue to date your spouse, because a strong marriage creates a strong family. Like us, you probably have asked yourselves, “How do we create & maintain this balance when most of our time & energy is devoted to caring for our child with special needs?” Our desire is to help you answer that question so your family can experience the fullness of blessings available to your family because of your child with special needs. A Special Sitter was inspired by our ongoing journey of parenting or family & we believe our experiences can help you experience the fullness of blessings we have received as we have raised our family. – Kimberly and Richard Troia, Co-Founders of A Special Sitter. Need any help, please call us today at 402-697-8400 x201 or [email protected]

Respite Care Available for Air Force Families * FREE to them * U.S. Air Force (USAF) Exceptional Family Member Program (EFMP) families stationed throughout the country have children who require unique child care considerations due to the child’s special needs. Finding & paying for quality child care for children with special needs can also present significant challenges for military families. The U.S. Air Force EFMP program has established a quality respite program for families with children having special needs & who are enrolled in the USAF EFMP. USAF EFMP Respite Care is specifically designed for Air Force families who have children diagnosed with moderate or severe special needs under EFMP. This includes exceptional family member children whose medical conditions require assignment near major medical facilities in the continental United States, or whose needs are complex and require specialized community of care. What is included in the USAF EFMP Respite Care? Respite care hours vary between 8 – 20 hours per month based on the Airman’s status and EFM’s condition (moderate or severe). Your choice of an approved in-child’s home or licensed Family Child Care or Child Care Center. (Approved providers are background screened and have the following pre-service training: CPR, First Aid, Medication Dispensation, & Child Abuse Recognition & Prevention as well as subject matter training in the care of children with special needs. To begin the application process, call Child Care Aware toll-free at 1-800-424-2246 or email [email protected] for a Respite Care Step by Step instruction form. Or call the EFMP Office at 402-294-4329 for more info!





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Physical Therapy Occupational Therapy

Speech Therapy

2 LOCATIONS To Best Serve You!!

SOUTH-WEST LOCATION

7945 S. 15th St., Suite D LINCOLN, NE

NEW NORTH LOCATION 4640 Bair Ave

In Superior Pointe Shopping Center LINCOLN, NE

Call 402-742-7400 To schedule an appointment At either location, TODAY!!

Thank You to all L&B Families for their support as we begin

our 6th year of service in North Lincoln, Now at a NEW

Location, & WELCOME to all New Families

to L&B South!!

AUTISM! It Is Treatable

________________________

Proven Effectiveness at the

Lovaas Institute Midwest

The Lovaas Institute Midwest is offering intensive early intervention services with behavior therapy for children with autism. The Lovaas Institute has been the leader in the field of intensive early intervention since the early 1970’s, and is world renowned for its groundbreaking outcome study in 1987. Since that time, Dr. Lovaas and his associates have helped start numerous behavior therapy programs around the world, under the auspices of the NIMH-sponsored replication project. As a result, we are excited by the recent outcomes that fellow replication sites have found as they completed studies in Wisconsin and California. In turn, the Lovaas Institute Midwest is known for its innovations that include the language matrix, dynamic programming, clinical social skill programming, and parent-training. Our aim is to further advance the effectiveness of early intervention through the best possible treatment for your child and research for all children.

Contact us to receive an extensive review paper of the research in Applied Behavior Analysis for Autism.






provided to you.

Page 5

IMPORTANT TIDBITS FOR FAMILIES*

ALLPlay Baseball for Kids with Special NeedsWe are looking for children with disabilities to play in our incredible ALLPLAY Miracle League Baseball League. Last year we have over 150 kids play baseball and we are looking for MORE!! See our ad to the left for more information, and check us out at www.ALLPLAY.org You can also call Bruce at 402-305-5020.

Parent 2 Parent Mentor's Wanted – Please ReadNationally over 80% of parents of children with disabilities who were mentored by an experienced

parent reported it to bet he most helpful source of information on coping with the challenges of

raising a child with special needs. Mentored parents report that the support of a fellow parent was so

unique and personalized that it could not have come from any other source!

As the mother or father of a child with developmental disabilities, you have unique parenting experiences. Through time, training, and trial and error, you have gained valuable skills. Use your knowledge to help another parent on the journey by becoming a mentor. Parent to Parent (P2P) programs link parents of children, adolescents and adults with developmental disabilities with experienced and informed veteran parents who understand the day-to-day experiences of raising a child with special needs. Parent to Parent Omaha is offered by Ollie Webb Center, Inc., a local nonprofit agency. We are seeking parent mentors who are coping well with their child’s situation and view him or her as a valuable and developing person. Consider becoming a mentor if you’d like to help parents cope with the joys and challenges of having a child (of any age) with special needs. The time commitment involves contacting another parent (in person, -mail or telephone) once every two weeks within the fist 8 weeks and as mutually agreed thereafter. You have the knowledge and experience. We provide training as a framework to share your wisdom. The next training will be held soon and will include: Guidelines for Helping Families; Creative Coping Skills and Resiliency; Survival Tactics for Parents of Children with Special Needs; What Helps Families in High Stress Situations and Crisis; Tips for Extended Family Members and Siblings; Tips for locating Community Services; Information on Parent to Parent USA; Cultural Competence and Family Centered Care; AND Principles of Family-Professional Collaboration. To talk with someone about becoming a mentor, please contact Annie Anderson at 346-5220 ext. 23 or [email protected] or mail your name, address, phone number and e-mail to: Ollie Webb Center, Inc | 1941 South 42nd Street | Suite 122 | Omaha, NE 68105 ?

O'Hana Kids News is giving away POGO cards!! MAY THEY ARE FREE!!!OKN has leftover POGO cards from our fundraiser. Lincoln expires i6/30/2012 and Omaha expires 8/31/2012. We would love to start selling the newest POGO cards but first want to get rid of the ones we have. Therefore from here on our until they are gone, first come first served they are FREE!! Just let me know via email at [email protected]. We have POGO cards for Lincoln and Omaha both. If you have never used a POGO card, you are missing out. In just as little as 1 use you can recoup the $5 you paid for the card, and still have a year to use the remainder of the card. My family uses a POGO card on a regular basis, but have never been able to use everything on the card, and it usually saves us several hundred dollars a year in what we can use. Here is a sample of what you get: McDonalds's; Burger King, Runza, Many other fast food places, coffee shops, Pizza Hut; Valentino's, Domino's Pizza & many other restaurants; Golf at many area courses; Big Red Store; Russwood Auto Center (Lincoln); Oil Changes; Russ' Supermarket ($5 off $50 purchase x 3, Lincoln), Saltdogs, & so many other places to save money with I can't even list them all! So how can YOU get YOUR POGO card???? Just shoot us an email or leave us a message (information on front page) and we will let you know that your POGO card is on its way!! Limit of 1 per city per email address!! Thank You!!!!*


Building Better Futures

The Alexis Verzal Children's Rehabilitation Hospital is dedicated to the unique needs of children.

Providing advanced technology and compassionate care for a variety of rehab needs, inpatient or

outpatient.

Learn more at www.Madonna.org

O. Ivar Lovaas, Ph.D.founded Lovaas Institute

The Lovaas Institute Midwest2925 Dean Parkway, Suite 300, Minneapolis, MN [email protected] – 612.925.8365

www.lovaas.com

Check out any event

changes, after publication additions & MORE

at our blog:

www.ohanakidsnews.

blogspot.com

For more information, or advertising rates

please contact us at:

[email protected]

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Advertise

Here!!

Looking for

Advertisers in the

Central/Western

Parts of NE

Only $25 a month

No Contracts!!

Contact Heather at 402-227-5304 ohanakidsnews

@gmail.com





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O’Hana Kids News is not responsible for any events,. Including cancellations, or changes after print. It is your responsibility to verify the information provided through the contact information provided. You can check the blog at www.ohanakidsnews.blogspot.com or our Facebook page as we try to update those with any information changes that have occurred after publishing. Check out our website at

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Page 9

Limb Loss Awareness Kits These will be available to the public during the month of April. April is Limb Loss Awareness Month. The kit will include a yard sign stating our Just Ask! Awareness theme and other items (to help grab attention of passing traffic) along with simple setup instructions. The idea is to have families request the kits so that we can bring awareness to the entire state. These kits can be requested by contacting the Nebraska Children with Limb Differences (NCULD) Association at [email protected] They are FREE of cost and will be mailed right to your front door! WANTED: Children with Limb Differences to write their story for NCULD’s Book!! The NCULD family is publishing a book and we need some more limb different kiddos to help us write it! How many times have you been asked, “What happened to your hand, arm, leg, __________ (fill in the blank)?” Now is your child’s chance to tell their story! What will make this book so great is that it will incorporate the many different approaches we’ve taken to answer this very question. From Maycee’s “WHAT?! I’m missing my hand? To Micah’s “There were these four ninjas . . .” sense of adventure to Braedyn’s “God just made me this way” wisdom, we’re sure to get a variety of enduring and witty child-friendly answers. We’ll wrap up the book by tying it in with our current awareness campaign, “Just Ask?” with an encouraging word about “just asking” about someone’s difference, no matter what it might be, in a simple and considerate way. Your child’s story can be about anything they can imagine that explains the question, “What happened to your ________ (fill in the blank)? Please keep your child’s story under 100 words. You can submit the final draft to [email protected] along with a favorite picture of your child. You can send an illustration for the story as well if you’d like. Submissions are due NO LATER THAN APRIL 12!! This can be a great family project with parents and siblings chiming in with ideas too! Have fun, be imaginative, but mostly, just be YOU! All proceeds will benefit the Nebraska Children with Limb Difference organization. Each child author will be named and will receive a copy of the finished product! Happy writing!!!


Special Blend

Family Resource Center (SBFRC)

A Special Sitter Co-‐Founder, Richard Troia,

announces the opening of the Special Blend Family Resource Center (SBFRC). The purpose of the SBFRC is to

assist Special Blend Families with navigating the complexities of life created by their unique situation. A Special Blend Family is a family of special needs & non-‐special needs individuals, & parents doing their best to maintain their

relationship & balance the needs of all family members.

SBFRC provides the following services:

1. Estate and Tax Planning, including Special/Supplemental Needs Trust (SNT) & Life Care Planning.

2. Educational Services including Individualized Educational Placement (IEP) Assistance, & Individuals with Disabilities Education Act (IDEA)

For more information please contact Richard Troia at

[email protected] based in Omaha

NEW

RESOUR

CE

PROJECT EXPLORE SUMMER CAMP

Sunday, June 30 to Saturday, July 6 Camp Starts at 3:30 p.m. on Sunday, & ends at 9:00 a.m. on Saturday

WHERE: Camp Kitaki, LOUISVILLE COST: $470 Space is Limited! Register TODAY!!

Project EXPLORE has the unique purpose of providing learning disabled or attention deficit youth between ages of 8 & 17, with a positive summer camp experience. It is specifically designed for children who have been identified with a learning disability, attention deficit disorder, Autism,

Asperger’s, or like disorders, without primary emotional or behavioral problems. Campers will be involved in small groups of 10 children who are led by 2 staff. Campers experience nature & participate in camp activities that emphasize the enhancement of self-‐esteem. Camper relationships

help develop the realization of the unique capabilities in each individual.

FOR MORE INFORMATION: Call D’Arcy Goodrich at 402-‐334-‐1677 or proj-‐[email protected]

2013 Easter Seals Camp Dates

July 11 – 12: Military Youth with Disabilities ONLY, ages 7 – 17, Offutt AFB, Base Lake

July 14 – 19: Teens, ages 14 – 22 July 21 – 26: All Ages

For more information on these camps: Mike Tufte 402-930-4053

Easter Seals Nebraska's new online registration is now open. Please stop by www.campeastersealsne.com to register. Make sure you check out the

new links at the top of the homepage, as well as the PHOTOS link. Remember summer is almost here!!!

Page 10

Camp Abilities Nebraska July 21 – 26, 2013

Camp Abilities Nebraska is a week-long residential sports camp for youth you are blind, visually impaired or deaf-

blind. Youth will explore sports & recreational activities in a safe environment with instructors who have experience in adaptive techniques.

COST: $300; Scholarships are available & NE residency NOT required! REGISTRATION: Begins NOW & Ends May 1; LIMITED to 20 CAMPERS!!!

MORE INFORMATION or TO MAKE A DONATION: Call Kristal Platt, Camp Director at

402-498-6365 or [email protected] or visit www.BoysTownHospital.org/HearingServices/EducationalOutreach





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2013 SUMMER CAMPS

OUTPATIENT PEDIATRIC THERAPIES

PT, OT, SPEECH & FEEDING

Specialized Summer WorkshopsSpecialized Summer WorkshopsSpecialized Summer WorkshopsSpecialized Summer Workshops

SENSORY ART EXPERIENCE Your child will explore arts and crafts through the senses (for ages 6+).

CALL 402.496.1000 For more information or to

register today! Together, we can do anything.Together, we can do anything.Together, we can do anything.Together, we can do anything.

2013 SUMMER CAMPS





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-- April Vernon

True Buddy Farms Home of Luv A Lamb

2013 Summer Farm Camps & Clinic Schedule

WHERE: 13714 South 84th Street, Papillion, NE Just south of Hwy 370

COST: All Farm Camps & Clinics Cost $10 Per Person Ages 4 & Up

Farm Camp Day -‐ Call For Date Call to Book a Farm Tour, We’ll Find a Date for Your Group

• Tour the farm, wash and walk sheep, pet the animals, learn about farm life.

Sheep Shearing Camp – Call to Book a Shearing Camp, We Start as Early as APRIL

• Learn about wool, help shear a sheep, make an art project out of wool.

Cowboy Dave Camp –Wednesday July 17 (6 -‐ 8 PM) • Learn life lessons with Cowboy Dave, an educational presenter -‐

www.cowboydave.org • Teaching traditional values to the youth of today, and he does it the

cowboy way!

Vet Clinic Camp –Wednesday July 24 (2 – 4 PM)

• July 24 – Dr. Olsen of Plattsmouth Animal Clinic will present how to pursue a veterinary career,

& share a documentary about his time in South Africa fulfilling a veterinary internship.

Sheep Enrichment Workshop Thursday July 11 (10 AM – 12 PM)

• Even the sheep need to have fun. Help us make toys for the sheep!

Ice Cream Making – Friday July 19 (10 AM -‐ 12 PM) • Learn how to make ice cream from sheep milk and goat milk.

PLEASE CONTACT US FOR QUESTIONS, RESERVATIONS & REGISTRATION FORMS:

[email protected] (402)578-‐2388 www.luvalamb.com

Registration is Required, with Full payment. We reserve the Right to Cancel & Payment Will Be Refunded

SaturDAY Camp For ages 5 to 13

COST: $35 per camper July 20, 2013

9:00 am to 4:00 pm

Registration information available at: www.hiskidscamp.org

For More Information or Questions: Josh Rausch at [email protected]

For all programs, each camper is paired with a trained “Buddy” to be with them during their ENTIRE camp experience.

“Buddy” training is specifically designed for their camper to meet & challenge each camper’s abilities, creating an “I

can do it!” attitude!

2013

SUMMER &

DAY CAMP

Resources for Families

Are now listed ONLY on the website www.ohanakidsnews.com

because of their sheer size J






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2013 SUMMER CAMPS

Lincoln Park and Recreation 2013 ADAPTIVE RECREATION

SUMMER CAMPS

For More Information: Kerry Zingg at 402-441-7877 or [email protected]

Monica Manning at 402-441-7948 or [email protected]

If the applicant hasn’t previously attended any Easterday Recreation Center Programs, please bring your

competed registration into Easterday Recreational Center at 6130 Adams, LINCOLN.

Please call one of the above ladies to arrange a time to do that.

SUMFUN DAY CAMP LOCATION: Antelope Shelter and Auld Pavilion, LINCOLN

TIME: 9:00 am to 2:30 pm Offered for school-age youth with special needs ages 5 – 21.

Activities offer opportunities for developing skills & social interaction in a fun environment. Campers are expected to participate in group

activities, & interact with their peers. We incorporate activities that focus on healthy lifestyles & fitness (active games, sports & swimming) &

nature exploration (field trips, crafts, & activities in parks). Campers are assigned to site groups according to age, after registration

is completed.

CREATIVITY CAMPS Designed for teens & young adults with special needs ages 13 & up.

Art Extravaganza Camp LOCATION: Easterday Recreation Center, 6130 Adams, LINCOLN

TIME: 1:15 – 4:15 pm Campers will receive instruction on painting, drawing, ceramics &

pottery. Campers will each have time to present their art work during a Student Art Show on Friday, July 26 from 3:30 - 4:00 pm at Easterday.

Drama Camp

LOCATION: Auld Pavilion, LINCOLN TIME: 9:30 am – 3:00 pm

Campers will modify a children’s play, work on sets, props, & costumes. Campers will have a performance on August 2 from 2:30 – 3:00 pm at

Auld Pavilion.

Our Camps have a staff ratio of 1:5 If your child has a 1:1 ratio at school, you are responsible to provide a person to attend the camp with your child J.

Staff who work at our camps are hired for their experience, training & interest in working with youth

with disabilities. Many are college students working on education & special education degrees. Volunteers provide additional assistance. We will work with

personal staff or aides to adapt equipment, encourage campers, & provide any other assistance, which may be

needed. Once maximum enrollment is reached, applicants will be placed on a waiting list.

Resources for Families Are now listed ONLY on the website www.ohanakidsnews.com


Camp YouCan

Saturday & Sunday September 7 & 8

9:00 am Saturday to 3:00 pm Sunday

YMCA Camp Kitaki Located between Omaha & Lincoln

COST: $80

For children ages 7 – 21

With epilepsy

This is for kids to have a day full of fun and adventure!

It’s also a time to meet and develop relationships with

other children who have epilepsy.

There is so much to do there: Boating, Fishing, Archery, Games, Arts & Crafts, Zip

Line & Ropes Course!! To register or for further information

go to: www.epilepsylife.org

or Contact Camp Directors Meg & Kael Busing 402-‐770-‐3936 402-‐210-‐3121

HETRA 2013 Summer Schedule

OMAHA Barn Summer Camp ** Just Added** WHERE: OMAHA BARN, 4906 S. 180th St, OMAHA

VALLEY BARN, 29430 Ida Street, VALLEY COST: $50 per day or $200 for the entire week TIME: All Camps are 9:00 am to 11:00 am

CONTACT: Edye at [email protected] or Amanda at [email protected] or the office at 402-‐359-‐8830

Students must be at least 5 years of age to attend. If your student requires assistance with toileting, ambulation, or may experience behavioral issues, a caregiver will need to be present at all times.

July 22 -‐ 26 Omaha Summer Camp

Jimando Farms Summer Camps WHERE: Jimando Farms, County Road 8, Yutan, NE

COST: $30 for Driving Lessons & $50 for Horse Camps CONTACT: Rachel at [email protected] today to reserve your spot!

July 13 2:00 – 4:00 pm Horse Camp July 16 9:00 – 11:00 am Horse Camp July 20 2:30 – 4:30 pm Driving Lessons August 6 – 8 9:00 – 11:00 am 3 Day Camp September 7 2:00 -‐ 4:00 pm Horse Camp September 21 2:30 -‐ 4:30 pm Driving Lessons October 5 2:00 -‐ 4:00 pm Horse Camp October 19 HETRA’s Annual Fall Festival

ALL THIS INFORMATION CAN BE FOUND ON HETRA’S WEBSITE AT:

www.Hetra.org

2013 SUMMER CAMPS





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Resources for Families are now listed ONLY on the website www.ohanakidsnews.com


The Barn 2013

Summer Camps

Camps are for ALL AGES & Run 9:00 am to 3:00 pm Daily

July 8 – 12 July 15 – 19 July 22 – 26

July 29 – August 2 August 5 -‐ 9

Camp size is from 5 to 10 campers. We have found that this number allows for more one on one interaction and less waiting by the campers. Campers will

experience a variety of sensory activities, outdoor activities, and many typical camp events to enhance sensory integration opportunities. Summer camp provides an opportunity for the kids to interact with peers, and build on the skills they have been learning all year through individual therapy, school, and other special services. Socialization with peers within a

community setting is important for kids with sensory integrative disorders and The Barn summer camps provide that privilege in a safe and nurturing

environment. Campers develop a close relationship with camp counselors and therapists as well as the other campers. Your child will need to bring a swim suit, a change of clothing, sack lunch & drink. The campers will be interacting in many activities

throughout the week.

For More Information or to Register 402-‐301-‐6829

[email protected]

Camp Quality

USA

Camp Quality USA, Inc., provides year-‐round support programs for

children with cancer and their families. Programs include our signature

week long camp and other year-‐round programs such as reunions and ski camps. Each camp is volunteer run and community funded.

Camp Quality gives families a much needed rest, knowing that the highest quality program has been selected for their child – a companion will be assigned to ensure the child’s safety and the finest medical supervisors are provided at each camp to administer medications and on-‐site

care.

Campers at Camp Quality range from 4 years of age through 17 and vary in stages of their

treatment or remission. They are children who smile, laugh, play and have dreams for a bright

future.

The Companions are the lifeblood of the camp. They are the around-‐the-‐clock caretaker for the campers and ensure the most enjoyable, safe, relaxing, and restoring experience possible for each child. Each companion, at least 18 years of age, is interviewed, background checked, and

trained BEFORE camp!!

Camp Quality provides all the year-‐round programs at NO COST to families. The camp is

run 100% on donations, supplies, & volunteer hours.

Would you like to Volunteer? Or know more about Camp Quality or even Register for an upcoming Camp?

Caleb Rogers 712-‐310-‐8177

[email protected]





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2013 SUMMER CAMPS





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-- April Vernon

2013 SUMMER CAMPS

For More Information or Questions: Meaghan Walls at 402-496-1000 or [email protected]

COST for Each Camp:

Non CRCC Summer Camp Enrolled $100 CRCC Summer Camp Enrolled $50

SUMMER ART ADVENTURE For Ages 6 & Up

Wednesdays, July 10 – 31 TIME: 1:00 to 2:30 pm

REGISTRATION DUE JULY 1 Location: 13833 Industrial Road, OMAHA

Your child will explore arts & crafts through the senses by engaging in a multi media art experience lead by two Occupational Therapists. Our instructors are able to adapt the environment and activities to your

child’s needs to ensure an enjoyable experience.

2013 SUMMER WORKSHOPS

Camp Theme Weeks Available For Campers Ages 6 – 21 with Special Needs of ALL Abilities!

July 1 – 5 “It’s a Party in the USA” July 8 – 12 “Adventure on the High Seas” July 15 – 19 “Mad World of Science” July 29 – August 2 “ Superhero Training Camp” August 5 – 9 “CRCC’s Got Talent”

CRCC's Summer Sensations is a unique camp experience designed to fit the needs of children with all ranges of abilities. More than just fun-‐filled, CRCC is committed to the continued growth & development of each child. An amazing team of therapists (OT, PT, Speech & Feeding) can work with the children to maintain & improve their skills in whatever area is needed with the added convenience of being on site with the children at the center. Also, CRCC offers a modified program for those children whose sensory or behavioral needs require more adaptation or structure.

Returning campers can tell you all about the awesome activities & fieldtrips, they look forward to each year! This is the perfect mix for an Exciting & Fun Filled Summer!!!

For More Information or to register for one week or ALL of them J Lori Maire at 402-‐895-‐4000 or [email protected]

Registration is required in advance of camp!!





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Telehealth for Pediatric Epilepsy Clinic MORE INFORMATION: 308-865-7742 for information & appointments DECRIPTION: Telehealth offers a chance to participate in an exciting and growing part of this nation’s health care. It reduces travel hours and away time from work; and brings individuals together in order to provide healthcare services and educational opportunities that might otherwise be inaccessible. Through technology, individuals are able to see and talk to one another from sites across Nebraska. Currently, all pediatric neurologists and epileptologists in Nebraska are located in the urban areas at the far eastern edge of the state. Through telemedicine connections, patients can go to their nearest telehealth site and be linked directly with a board certified pediatric neurologist in Omaha. Travel time is greatly reduced and access is easier for both the patients and the healthcare provider.

Counselors Needed for Camp Abilities Nebraska July 21 - 26

MORE INFORMATION: Contact Camp Director Kristal Platt at 402-498-6365, [email protected] or visit http://www.boystownhospital.org/hearingservices/EducationalOutreach/Pages/Camp-Abilities-Nebraska.aspx. DECRIPTION: Camp Abilities Nebraska is a residential sports camp for youth ages 9 – 19 who are blind, visually impaired or deaf-blind. Applicants with experience in the areas of Adaptive Physical Education and Special Education, or other relevant disciplines are needed; staff orientation is July 20-21. Positions may fill quickly, so apply as soon as possible, preferably by July 1. A $150 stipend is offered for the week of camp. Camp Abilities Nebraska is co-sponsored by Boys Town National Research Hospital and Outlook Nebraska, Inc.

Parents of Children Between the Ages of 5-12 Diagnosed with ASD NEEDED for Online Study at Queen’s University

MORE INFORMATION: Laurel DAult at [email protected] or (613)533-2894 TO PARTICIPATE: Go to www.tinyurl.com/QueensASDstudy and enter the password asdstudy DECRIPTION: This study will require you to complete questionnaires about your child’s behaviors and emotional responses. It takes about 30 – 90 minutes to complete depending on depth of your answers. The study is being conducted by Dr. Elizabeth Kelley’s ASD lab at Queen’s University. The study is completely confidential and non-invasive.

Study Participants NEEDED: Recruiting teachers & related service professionals MORE INFORMATION: Richard Simpson at 785-864-0507 or [email protected] or Stephen Crutchfield at [email protected] DECRIPTION: Teachers and related service professionals needed to participate in a study on intervention methods and teaching strategies used with students with autism spectrum disorders (ASD). Interested participants should contacts us. We will contact respondents to give details about the study and to make sure they qualify to participate. The questionnaire will ask about use of various interventions designed for use with children with ASD. It will take about 10 – 15 minutes to complete the questionnaire. Participants names, names of school districts, or other specific identifying information will not be disclosed in any way through this study (we are only interested in group data). Study Participants MUST: Hold state approved provisional or full licensure or endorsement in special education or a related service area such as occupational therapy; Have a minimum of one year teaching experience with at least one student with ASD; Have current contact with at least one elementary age student with ASD

Handbag Needs Questionnaire: Inclusive Design for Wheelchair Users MORE INFORMATION: Contact Sandra Starkey at [email protected] you can call also at (573)882-9585 you can fill the survey out online at https://docs.google.com/forms/d/1r7nBRHjAswREf6k0TFLj8fDcHSCBxpM-RrFE4fwZBQU/viewform?sid=67e7bc8740e77d8e&token=3zkRbj0BAAA.NE5X68wLliCPxpCb_bDT0w.Z9t9G78Y_5kblUTjRogAQQ (note: email [email protected] for link) DECRIPTION: Sandra is a P.h.D. student at the University of Missouri, Columbia. She is looking for families to participate by filling out a survey about the type of bag they use with their wheelchairs.

Specialized Training Of Military Parents (S.T.O.M.P.): Survey for Military Families regarding disabilities TO PARTICIPATE: Go http://surveymonkey.com/s/stompmedicaid ONLY FOR MILITARY FAMILIES DECRIPTION: S.T.O.M.P. is involved in a very important survey. We need your help to disseminate it. What is the survey, and why is it important? Military families face many challenges as part of their desire to assist others and defend our freedoms. It is complicated further when there is a family member with more significant needs. Needs that can’t always be met by the military. One such challenge is accessing Medicaid. Since there are many ways Medicaid can support an individual with disabilities it is one resource military families try hard to access. However, because of wait lists and other complications, these families can face barriers to access. STOMP has been asked to help identify some of the potential barriers as well as some possible solutions to this challenge. The Monkey Survey Link here will provide us with information to help in this process. We recognize it will take Legislative change both at the local and National level and this survey will help mold the language that will be put forth on this issue. We are not in this alone. We have the support of many from the Department of Defense and Military Caucus who are willing to move this forward. However, the voice of Families is essential and you have the ability to assure it is heard. Please disseminate this survey to all military families you know. They can either be active duty or retired. Share the link and ask them to do so as well. Take the survey yourself and know that your voice is part of this great effort. Find us on FACEBOOK at STOMP – Specialized Training of Military Parents

State-Wide INFORMATION

A t S nyder Ch a r l e son Th era py S er v i c es , P .C .

Speech, Occupational & Physical

Kid Ability

(402) 391-5002 www.snydercharleson.com

Therapy for Kids!

Check out our website at www.ohanakidsnews.com TODAY!!





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Advertise

Here!!

Looking for

Advertisers in the

Central/Western

Parts of NE

Only $25 a month No Contracts!!

Contact Heather at 402-227-5304 ohanakidsnews

@gmail.com

Page 17

Autism Parent Resource Joni King is a parent, who was involved in the Autism Support Group PETALS in Chadron. While the support group is no longer meeting, she has many resources available to her that would benefit families with children on the spectrum. Feel free to call her if you have any questions pertaining to your child, with Autism. Her number is 308-430-1597.

Chadron Information

State-Wide JULY Events

Nebraska’s Annual Deaf-‐Blind Summer Institute

July 22 – 26, 2013 WHERE: University of Nebraska – Lincoln, East Campus

TIME: 8:30 am – 4:00 pm Daily

Focus is on children with significant disabilities including those with or without sensory disabilities

July 22 -‐24, is a 3 day session

“All Children Can Read – Let Us Show You How! Literacy Instruction for Learners with Multiple Disabilities, Including Deaf-‐Blindness”

July 25 “Sensory Processing: Behavior, Memory, Language, & Learning

Introduction to the READY APPROACH”

July 26 “Let’s Create Some Tools!” & “Updates on DB Project”

For More Information:

Teresa Coonts, Project Director Nebraska Deaf-‐Blind Project at 402-‐595-‐1810 or [email protected]

Norma Tinstman, Adm. Assistant at 402-‐595-‐2177 or [email protected]

Co-‐Sponsored by:

Nebraska Project for Children with Deaf-‐Blindness Nebraska Department of Education, Special Education

Educational Service Unit #3 University of Nebraska -‐ Lincoln

Page 18

July (Date Not Available at time of printing, call for more information) People First Meeting LOCATION: The Arc of Platte County, COLUMBUS TIME: 7:00 – 8:30 pm MORE INFORMATION: 402-563-1699 or [email protected] DECRIPTION: We will be having a talent show! Everyone is encouraged to share something about a hobby or talent that they have!

June 27 to August 8 “Time to Talk” A 6 week series ATTENTION PARENTS “Is your child having difficulty interacting with others or conversing with friends?” LOCATION: Wiggles & Giggles Therapy for Kids, 2108 13th STreet, COLUMBUS TIME: 10:30 am to Noon COST: $60 for the 6 weeks, MORE INFORMATION: 402-562-3341 DECRIPTION: “Time to Talk” will take place at our office within the community. The group will meet for 90 minute sessions/once per week for 6 weeks (No session on July 4). For ages 10 an up. We will focus on: Building connections with other, Problem solving, Feeling awareness and expression, Conflict resolution, Working and Interacting together.

Tech Tots Toy Lending Library based in Grand Island, For families in Central Nebraska there is a Tech Tots Toy Lending Library available to you at Children’s Rehab Center in Grand Island. Tech Tots provides developmental toys, adapted toys and devices to children with developmental and physical disabilities. Tech Tots is a FREE service!! You can check out toys to use in your home for 1 month. Tech Tots Toy Lending Library is a program of UCP Nebraska. Play is an essential component of growing up, and is the most important work explored by children. As children engage in play, they practice and master specific physical, psychological, emotional and creative skills necessary for understanding and interacting with the world around them. As children all have different abilities, so too are their methods of operating devices and accessing information. The use of adapted toys and devices decrease physical barriers and social barriers to play, enabling children at varied functional levels to actively explore and achieve some independence. By equalizing play through these modifications, children learn about the cause-effect relationships and practice creative problem solving. As children recognize their abilities through the work of play, they gain the self-confidence necessary for handing challenges in

all areas of daily living. This is a wonderful opportunity for your child! To access the Tech Tots Lending Library call Children’s Rehab Center in Grand Island at 308-398-5170 and ask for Carole Ostdiek. July 14

Autism Support Group (2nd Sunday Monthly) LOCATION: Third City Christian Church, GRAND ISLAND TIME: 2:30 – 4:30 pm MORE INFORMATION: Contact Brandi at [email protected] DECRIPTION: Come join us for our Autism Support Group!

July 20

Respite Saturday (3rd Saturday Monthly) LOCATION: Third City Christian Church, GRAND ISLAND TIME: 8:30 am to 11:00 a m MORE INFORMATION: Contact Bridgett at 308-381-8844 with # of children attending DECRIPTION: Respite for families.





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Columbus JUNE Events


Grand Island INFORMATION

This edition is FREE!!! Pass along!! Join our mailing list, contact us at [email protected]

Grand Island JULY Events





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Families CARE Located in Kearney, is one of six family organizations across the State serving those that are parenting children/youth with emotional, behavioral, or mental health challenges. We offer peer support; in fact every employee/advocate at Families CARE is parenting, or has parented a child with emotional, behavioral, or mental health challenges. Families CARE is a non-profit organization, providing advocacy, resources, support, and education as we work with parents, along with a mission to Empower parents in the Behavioral Health System of Care. For more information on Families CARE in Kearney 308-237-1102 or [email protected]

July 9 Transitions through Early Childhood LOCATION: First Presbyterian Church, 4511 6th Avenue, KEARNEY TIME: 6:30 – 8:00 pm MORE INFORMATION: PTI Nebraska at 402-346-0525 DECRIPTION: Helping your child transition

July 18 Autism Society of NE Kearney Support Network (Meets every 3rd Thursday) LOCATION: First United Methodist Church, 4500 Linden Drive (Sojourners Room – Upstairs), KEARNEY TIME: 7:00 – 8:30 pm MORE INFORMATION: Heidi at [email protected] DECRIPTION: Childcare is available, siblings included. Email is childcare is needed, 3 days before meeting date so appropriate supervision will be available. Thanks!

Tech Tots Toy Lending Library based in Norfolk For families in North Eastern Nebraska there is a Tech Tots Toy Lending Library available to you at Faith Regional Health Services Rehab Services. Tech Tots provides developmental toys, adapted toys, and devices to children with developmental and physical disabilities. Tech Tots is a FREE service!! You can check out toys to use in your home for 1 month. Tech Tots Toy Lending Library is a program of UCP Nebraska. Play is an essential component of growing up and is the most important work explored by children. As children engage in play, they practice and master specific physical, psychological, emotional and creative skills necessary for understanding and interacting with the world around them. As children all have different abilities, so too are their methods of operating devices and accessing information. The use of adapted toys and devices decrease physical barriers and social barriers to play, enabling children at varied functional levels to actively explore and achieve some independence. By equalizing play through these modifications, children learn about the cause-effect relationships and practice creative problem solving. As children recognize their abilities through the work of play, they gain the self-confidence necessary for handing challenges in all areas of daily living. This is a wonderful opportunity for your child! To access the Tech Tots Lending Library call Faith Regional Health Services Rehab Services at 402-644-7348 and ask for Nikki Fischer.






provided to you.

Page 2

IMPORTANT TIDBITS FOR FAMILIES

Radio Show by Adult with Asperger Syndrome “Parents Corner” is a radio show, co-hosted by Brian King, LCSW. Brian is an adult with Asperger Syndrome, who presented here in the area back in January. Brian also has 3 boys on the ASD spectrum. Brian will be sharing his parenting strategies and discussing them with a panel of parents. Here is a link with all the details you'll need to tune in and call in if you would like http:tinyurl.com/3gm58h7 Check it out and pass it along. His address is: P.O. Box 994, West Chicago, IL 60186 if you would like to write to him.

Project Lifesaver in Sarpy CountyThe Sarpy County Sheriff’s Office implemented Project Lifesaver in 2008 to help locate missing persons. Children with Autism or Down Syndrome, who are at risk to wander, can have their safety greatly enhanced through this program. Project Lifesaver emphasizes relationships between specially trained Sheriff’s personnel and individuals enrolled in the program BEFORE the need may arise for a rescue. During an initial home visit, Project Lifesaver enrollees are fitted with a personalized wristband transmitter and family members are provided with a comprehensive overview of the program. Trained in communicating with individuals with special needs, deputies will schedule a monthly home visit to inspect and maintain the equipment and get to know the enrollee better on a more personal basis. The cost to participate in this program is minimal, at $10 a month. For more information on Project Lifesaver, contact Lt. Griger at 402-593-2288.

Heart Heroes Capes for children with CHD, a Non-Profit here in NebraskaEvery year approximately 40,000 infants are born in the US with Congenital Heart Defects (CHD). CHD is the most frequently occurring birth defect and the leading cause of birth-related deaths. More than 50% of children with CHD will require at least one invasive surgery in their lifetime. And in the US, twice as many children die from CHD each year than from ALL forms of childhood cancers, combined! Needless to say, the survivors of CHD wear their scars like badges of honor. They are our “Heart Heroes”. Heart Heroes, Inc., is a non-profit organization that originated by a few Nebraska moms, who had children with CHD. After trying to coax their children through cardiology appointments and heart surgeries, they took comfort in the wondrous powers of “super hero” capes to comfort their children, and Heart Heroes was founded. Now, hundreds of Heart Hero capes have been draped around the little shoulders of CHD children everywhere. Consider donating a Heart Hero Cape to a child with CHD by going to www.heartherocapes.com to donate a cape. There is a perpetual wait list of children who need their capes to conquer their fears and give them courage. You can also join our Heart Heroes Facebook Group to see pictures of many of the cape recipients and hear their stories. Contact the co-founders of Heart Heroes at [email protected].

“Children hold our hands for a moment, but our hearts forever.” ~ Anonymous

Exceptional Parent MagazineMagazine for parents of children with developmental disabilities and other special needs. You can get a digital edition of this magazine, Just go to www.eparentdigital.com type in the EMAIL: [email protected] and use the PASSWORD: specialneeds to access editions digitally. This information is also listed in the back of OKN under Website Resources.

Leaps & Bounds Pediatric Therapy NEW 2 nd LOCATION Leaps and Bounds Pediatric Therapy, located in Lincoln, has now added a South-West location in Lincoln, in addition to their North location in Lincoln. The new clinic is located at 7945 S. 15th St., Suite D (just east o f14th Street, between Pine Lake Road and Yankee Hill Road). Physical Therapy, Occupational Therapy & Speech Therapy services are available at BOTH locations! Please call 402-742-7400 to schedule an appointment at either locations. We look forward to seeing you!



Pediatric speech, language & feeding therapy

Specializing in Autism

Specializing in Deaf/Hard of Hearing & Cochlear Implants

Specializing in Late Talkers & Developmental Delay

402-327-25008055 O Street, Suite S110

Lincoln, NE 68510



NORTH LOCATION2550 Superior St. Suite 160

Lincoln, NE

SOUTH-WEST LOCATION7945 S. 15th St. Suite D

Lincoln, NE

NEW

2 LOCATIONSTo best Serve You!!!

* Physical Therapy * Occupational Therapy *

* Speech Therapy *

Call 402-742-7400 to schedule an appointmentat either location, TODAY!






provided to you.

Page 4

IMPORTANT TIDBITS FOR FAMILIES *

Munroe Meyer/ AAP iPad Lending LibraryThe Munroe Meyer Speech Department in partnership with Autism Action Partnership has created an iPad and iPod lending library. The purpose behind this library is to provide families affected by ASD the opportunity to try iPads and iPods as communication devices before they go to the expense of purchasing their own. If you have a family member or know a family who may benefit from this program, please have them contact me to set up a screening. During the screen, the family will have the opportunity to try the iPad or iPod as well as several communication applications and accessories. If one of the devices is deemed as a viable option for the child, we will set up a 30 day loan of the device and the appropriate application. During the 30 days, the family will be required for 2 follow up/training sessions. One will be scheduled midway through the trial and the other will be scheduled for the end of the trial period. During the last scheduled session, we will determine if the trial was a success and will begin the process of securing funding (insurance, grants or private pay options). This is an incredible opportunity for the community and we are excited to offer this program!! Contact Jennifer Brock at [email protected] or 402-559-6460 for more information. 12/11

NCDHH – The Nebraska Commission for the Deaf and Hard of Hearing The mission of the Nebraska Commission for the Deaf and Hard of Hearing is to provide advocacy, communication access and information to enhance awareness and services for improving the quality of life for all who experience hearing loss. The Vision Statement of NCDHH is: Being a proactive state agency, the Commission works towards building support, cooperation and understanding regardless of hearing ability resulting in fairness and equality for all Nebraskans. Make sure to check out our website at www.ncdhh.ne.go v *

Dental Research Study for Children with DisabilitiesThe Department of Pediatric Dentistry at the Munroe-Meyer Institute is conducting a research study evaluating ways in which dentists can help children with disabilities feel more relaxed and calm during dental treatment. The researchers are seeking children between the ages of 2 to 10, who need dental work done. Children who participate receive a $25 gift card to Wal-mart. Children can be seen at MMI or at the new dental clinic at Children’s Hospital. The project is funded by the National Institutes of Health. Please contact Dr. Keith Allen at 402-559-5756 or Kristi DeHaai, MS at 402-559-4498 to learn more about how to enroll your child in this research.*

Caregiver Day for Rural Nebraska Families in Cass CountyO'Hana Kids News is looking to put together a day where caregivers can come for a few hours and have a massage, see a chiropractor, have a great meal, maybe a mani or a pedi, possibly have someone doing hair. Just a day where us caregivers can get done in just a couple of hours, something that makes us happy :). I haven't seen anything in Cass County or south of there, for caregivers. If any families would be interested in something like this, PLEASE either give me a call or send me an email. I will base even doing this on how many people contact me about it. I know the need is there. Just let me know. I am interested in any comments you have regarding what you would like in a short day like this also. Is childcare something to look at too? Just let me know, Heather Ackman 402-227-5304 or [email protected]




At ProCare3, we treat children

with many different diagnoses,

including but not limited to:

Developmental Delays

Torticollis

Autism Spectrum Disorder

Sensory Integration

Speech Delays

Cerebral Palsy

Hypotonia

Sports & Orthopedic Injuries

We offer

Warm Water Aquatic Therapy!!

Millard Pediatric Clinic

13336 Industrial Road, Ste. 105

Omaha, NE 68137

Contact us TODAY for a tour

or a FREE Screening!

(402)330-3211 Ext. 108

www.procare3.com

We are Open 6 Days a Week,

Monday through Friday

with extended hours

from 7am - 7pm

Need Saturday hours?

Ask us about those too!!


Heather Ackman

402-227-5304

www.pamperedchef.biz/

heatherackman

Now planning

Wedding Showers!!!Call today for your spot!!

Can be done Online Now!!

Kearney Information

Norfolk Information


Resources for Families Are now listed ONLY on the website www.ohanakidsnews.com


Kearney JULY Events





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Page 20

2013 OUTREACH CLINICS For Children with Special Health Care Needs

Nebraska Department of Health

KEARNEY Contact: Carol Florang, RN

211 West 33rd Street, Kearney, NE 68845 (308) 698-1250

August 28 & 29 Staff: Lois Starr, M.D., UNMC; Julianne Hartmann, M.S., UNMC; Gathje

November 6 & 7 Staff: Lois Starr, M.D., UNMC; Sara Fisher, M.S., UNMC; Nancy Foster, Ph.D., UNMC

NORTH PLATTE Contact: Kathy Schweitzer

200 S. Silber, North Platte, NE 69101 (308) 535-8238 or [email protected]

August 2 & 3, 2013 Staff: Eric Rush, M.D., UNMC; Amber Carter, M.S., UNMC; Nancy Foster, Ph.D., UNMC

October 18 & 19, 2013 Staff: Bruce Buehler, M.D., UNMC; Beth Conover, M.S., UNMC; Nancy Foster, Ph.D., UNMC

December 13 & 14, 2013 Staff: Eric Rush, M.D., UNMC; Amber Carter, M.S., UNMC; Nancy Foster, Ph.D., UNMC

SCOTTSBLUFF – MHCP & Genetics MHCP Contact: Lana Parmenter Genetics Contact: Sandy Preston, RN P.O. Box 540, Gering, NE 69341-0540 3700 Avenue B, Scottsbluff, NE 69361

(308) 436-6969 or [email protected] (308) 630-1126 or [email protected]

August 9, 2013 MHCP August 10, 2013 Genetics Staff: Bruce Buehler, M.D., UNMC; Dani Bishay, M.S., UNMC; Brett Kuhn, Ph.D., UNMC November 15, 2013 MHCP November 16, 2013 Genetics Bruce Buehler, M.D., UNMC; Rachel Smith, M.S., UNMC; Cate Jones-Hazledine, Ph.D., UNMC






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Page 21

July 27 FREE RESPITE Day at Riverside Zoo Discovery - - - REGISTER PLEASE LOCATION: Riverside Zoo, 1600 S Beltine Hwy W, SCOTTSBLUFF TIME: 10:00 amt o 1:00 pm MORE INFORMATION: Sherri Blome at 866-737-7483 or Stacey Ferguson or Brittain Trave, or Aidalyn Williams at 308-635-3427 DESCRIPTION: Join us for a day of Discovery! This is a FREE RESPITE EVENT! Feel free to leave the children and parents enjoy a few hours of “ME TIME” RESPITE will provide child-care FREE! Siblings are WELCOME too! Please supply your child with: Sun screen, strollers for those children who use them, towels and swim wear if your child is going to the splash page. Please bring any other supplies your child(ren) may need. Registration starts at 10:00 am, we will be taking a walk through the zoo, visiting the animals exhibits. There will be an animal show, craft stations, and splash pad. SACK LUNCHES PROVIDED! If your child has special dietary needs please let us know that when you register.

July 3, 10, 17, 24 MFLC Days For Military Families LOCATION: 202 East 5th St., YORK TIME: 8am to 8pm MORE INFORMATION: Contact Renee Duffek at 402-219-2446 at [email protected] DECRIPTION: MFLC Consultation services are provided at no charge, with no records kept. Eligible individuals include military service members & their significant others (children & adults), whether legally related or not. This is a short-term solution focused consultation, not psychotherapy. If possible please call ahead to schedule an appointment. You can schedule on a different date if the one listed doesn’t work.

Scottsbluff JULY Events





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York JULY Events

“Every child deserves a chance to play baseball!”

2012 Summer Session Begins Saturday, May 19 th !

Games are held every Saturday at

9am, 10:30am & Noon

Games last approx. 1 hour

The season lasts 7 weeks (to June

30th)

All Games are played in the ALLPLAY

Complex, located in Seymour Smith

Park at 6802 Harrison Street in

Omaha.

This complex features barrier free

design & level surfaces. The Miracle

Field & playground are covered with

rubber surfaces to soften any falls.

These surfaces are perfect for

wheelchairs, walkers, braces & use by

people who are visually impaired.

Ages from 4 - 20+. Athletes disabilities

include autism, cerebral palsy, spina

bifida, visual impairments, muscular

dystrophy, dwarfism, multiple

sclerosis, spinal cord injury, down

syndrome, amputations & other

physical & mental & cognitive

disabilities!

REGISTER TODAY!!!

For More Information go to:www.ALLPLAY.org or

call Bruce Froendt at 402-305-5020

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IMPORTANT TIDBITS FOR FAMILIES Learn how to adapt toys to use with a switch/button/BigMacThis workshop is for ANYONE!! You will learn how to easily & cost effectively turn the toys that your child already has, & isn't using because of physical limitations, into toys that are adapted to your child!! You will learn how to install a jack into a single function toy & convert it into a toy that is operated with a switch. You will learn how to assemble a switch. You will make a detachable cord that runs from the toy to the switch. You will be able to do this, AND you will go home with a working switch toy & switch. Best of all, your child's toy will look professionally adapted, by YOU!! You have seen that the switch operated toys are sometimes 8x as much to order, than if you could buy the toy & put the switch in for a few dollars, yourself. Dates/Times will be determined when I have 4 or more people interested in the class. This class is FREE, however donations of any kind are appreciated. Contact Aaron today at [email protected] for more information!

A & D Waiver – Aged & Disabled Waiver

Is YOUR child on this? Is YOUR child eligible to be on this?If your child is on this waiver, do you know that it makes your income guidelines non-existent? No cap on your income. Just have to use the 2 hours minimum respite each and every month, so you don't lose your A&D Coverage. Do you know that you can add your child, to your private

health insurance (non-medicaid), and if you are on the A&D Waiver, you can get those

premiums paid for for BOTH you and your child, through the HIPP program? Has to be the

same family policy, but they will cover all the insurance premiums for your entire family!!

For us this was $1,200 in premiums, because we are self-employed, don't have a corporate medical plan, and it was killing us. By talking with another mom, I found out about this program, and we are waiting on our reimbursement to arrive!! So cool. For 5 years we were told that our income dictated the medicaid that our son received, for us that meant we had to either stay in this little income box of like $45,000 or make an additional $100,000 to cover the expenses in therapy and medical services that our sons receives on an annual basis minimum. The guidelines to be on the A&D Waiver, I do not know for sure what they are. If you want to know, I can find out, just email me. I know that my son qualifies, and if has something to do with being fed solely by g-button, and being non-independent. If you want the contact information for the HIPP program, just shoot me an email on that also, or ask your Service Coordinator specifically about it. There are many programs out there available to help families like ours out. We just need to get the word out there for families to access that information. If you know of a program, that would benefit families, email me.

[email protected] We will research it and get the correct information out to all

the families.*

Parent Group with kids with combined hearing & vision lossThe Nebraska Technical Assistance Project on Deaf-Blindness has conducted training this year specific to parents of children who have a combined hearing & vision loss. The training has been in partnership with the National Consortium on Deaf-Blindness (NCDV2.0). A total of 7 parents have participated in a series of training activities from May 2011 through October 2011. They are now working on their leadership goals & have another planned meeting in April 2012, as well as ongoing meetings in the future. They are called the Nebraska DB Parent Leadership Team, & have provided lots of support to the state deaf-blind project. It is the intent of this team to provide one-on-one interaction either via phones, technoloty or face to-face with other parents in the state who have a child birth to age 21 with a combined hearing & vision loss. If you want to be connected to one of these parents, please contact Teresa Coonts at the number and email listed above. This is an exciting group of parents working & learnin together for the purpose of supporting other families in the future.



Easter

Seals Nebraska

2012 Summer

Respite Camp Dates

June 10 - 15 Young Adults, ages 23-39

June 17 - 22 Adults, age 40+

June 24 - 29 Youth, ages 6 - 13

July 10 - 13 Military Youth, ages 7 - 16, Offutt AFB

July 15 - 20 Teens, ages 14 - 22

July 22 - 26 All Ages

MORE INFORMATION: 1(800)650-9880, ext. 1128www.campeastersealsne.com

All camps are held at the BSA

Camp Eagle near Fremont, NE.

Miracle League Baseball

~ Omaha ~

We believe that





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Edition #38 july 2013 central western nebraska