Evolving Directions & InitiativesSecwepemc NationInjury Surveillance & Prevention Program

Mary McCulloughThree Corners Health Services SocietyWilliams Lake

BC Injury Research and Prevention Unit Teleconferencing Series – Thursday, July 16, 2009

• The Secwepemc Nation• Our Beginning / Our

Vision• Injury Surveillance Cycle• ACCISS Background• OCAP• Project Phases• Years 1-2-3• Outcomes To Date• Project evaluation• Evolving Directions

-1Year

-2Year

-3Year

OurBeginning

Information Overview

Secwepemc Nation

• Recognition of the limitations associated with regional, provincial and national level health data

• Driven by an interest to collect and manage our own health data

• Injury surveillance viewed as a means to address a significant health issue while providing a means to build our capacity to manage our health data.

OurBeginning

Our Beginning - 2003

COMMUNITYCENTERED

SYSTEM CHARACTERISTICS

Aboriginal

Community

Centered

Injury

Surveillance

System

(ACCISS)

SYSTEM CHARACTERISTICS

COMMUNITY CENTERED • Uses a minimal

dataset approach• Tailored data management

processes • (based on individual

community needs)• Both ‘paper-based’ &

‘electronic’

Aboriginal

Community

Centered

Injury

Surveillance

System

(ACCISS)

Minimal Dataset Approach

WHO

is getting injured?

WHENdo injuries happen?

WHATare the

circumstances leading to an

injury?

HOW & WHYare injuries happening?

WHERE

are the injuries happening?

AgeDate of Birth

GenderCommunity of Injury

Community of ResidenceDate of Injury

Time of Injury () box

Minimal Dataset Approach (other data variables)

Additionalcircumstances

Cause of injury

Intent of injury

Nature & type of injury

Outcome

OCAP Principles - pulls together key principles advocated by Aboriginal people for years

• Ownership-a community owns information collectively in the same way as an individual owns his/her personal information (cultural knowledge/information/data

• Control-First Nations are within their rights in seeking control over all aspects of research & information management processes that impact them

• Access-First Nations must have access to information/data about themselves & their communities regardless of where it is currently held

• Possession-identifies the relationship between a people & their information (possession or stewardship)

Emerged in 1998 as OCA - by the National Steering Committee of the First Nations and Inuit Regional Longitudinal Health Survey

INJURY SURVEILLANCE CYCLE(focuses on linking knowledge with action)

Secwepemc Injury Surveillance Project Cycle

Collecting

Analyzing

Sharing &Using

Interpreting

Year - 3

Year - 1

Year - 2Year - 3

injury prevention training & action

planning

ACCISS user manual

advisory input-health data reports

& projectsknowledge transfer

opportunities

project evaluation

best-better practices

integration project

Growing & Evolving Capacity Building Opportunities

Phase Three(Broadening the Scope of the Project)

Year-1Develop data access protocolsFacilitate inter-jurisdictional access to services

Year-2Conduct feasibility testing

Year-3Enhance comprehensivenessof injury dataIncrease knowledge re: health data management Develop model (inter-jurisdictional data management & planning)

Challenges and Roadblocks

Role adaptation for community health practitioners

Start-up dates

Geographic diversity of project communities

Sustainability

Population sensitivities

Data collection points

Stagesof

Learning

AWARENESS

with awareness

comes reasoning

UNDERSTANDING

with understanding

comes accountability

KNOWLEDGE

with knowledge

comes courage

Elder:

Mark Philips

Peterborough ON, Turtle Clan

WISDOM

with wisdom

comes responsibility

1. To identify key implementation barriers & facilitating factors

2. To gain insights about key project learnings & promising practices

3. To identify factors related to community readiness to begin implementation of ACCISS

4. To identify & describe project outcomes

5. To explore external partnership interests

6. To explore from a community-based perspective, ACCISS database capabilities & usefulness

Secwepemc Injury Surveillance ProjectEvaluation Objectives

CAPACITY BUILDINGVISION: to reduce the burden of injury in our Nation

ACHIEVED OUTCOMES (2004-2007)

• (initiated) increased awareness in communities about injuries

• increased commitment to injury prevention

• effective data collection

• sharing & use of data

SHORT(1-2 yrs)

• ongoing programming initiated

• knowledge-based planning using injury data

• enhanced analysis & report generation skills

• community development activities in evidence

INTERMEDIATE (3-5 yrs)

• ongoing programming

• active community engagement

•policy development

•inter-connected initiatives

• community-based & Secwepemc program planning established

LONG(6-10 yrs)

• emerging culture of safety•Injury trends actively monitored to evaluate injury prevention strategies & activities•continued impact on the burden of injury• transferred skill sets contributing to improving health, safety & well-being

Evolving Directions & Initiatives