Got Healthcare? Important tools and resources for successful youth

to adult health care and management

Stephanie Hood, B.A. – Transition CoordinatorMeredith Pyle – Title V CSHCN SpecialistMaryland Office for Children with Special Health Care Needs

Health Care Transition is:• Health care transition is helping young people with

special health care needs plan their move from the child-centered health care system to the adult-centered health care system. Some ways that this is done include:– Youth’s current doctors and health care providers

discussing the youth’s changing health care needs as they become an adult and eventually seeing adult providers

– Doctors and other health care providers encourage youth’s development of self-management skills and knowledge

– Families, youth, and providers working together on a written Transition Plan(s)

Some quick facts…• Many Maryland families report that their

YSHCN do not receive the services they need to successfully transition to health care, work, and independence.– In 2006 only 37.4 %; Maryland ranked 42nd (NS-CSHCN)

YSHCN ages 12-17 whose families report that… Maryland % Nation %

doctors and other health care providers have discussed eventually seeing providers who treat adults

10.8 11.9

doctors and other health care providers have discussed youth’s health care needs as he/she becomes an adult

46.5 46.2

doctors and other health care providers usually or always encourage development of self-management skills and knowledge

75.4 78.0

Transition Planning

• Developing a transition plan for YSHCN is an important tool in the process of moving to adulthood

• Including health care in the transition plan, or developing a separate health care transition plan with care providers, is crucial.

• Health care transition planning should be done by youth, families, and providers.

Transition Planning Resources for Youth

AGES 12 – 14 “New Responsibilities” AGES 15 – 17 “Practicing Independence” AGES 18 & UP “Taking Charge

Transition Planning Resources for Youth

1. http://www.gottransition.org/youth-resources2. http://healthytransitionsny.org/skills_media/tool_show3. http://cshcn.org/planning-record-keeping/teen-care-noteb

ook

Transition Planning Resources for Parents and Families

1. http://www.gottransition.org/families-information2. http://www.waisman.wisc.edu/wrc/pdf/pubs/TAHC.pdf

3. http://new.dhh.louisiana.gov/assets/docs/OCDD/publications/

EmergencyPreparednessTheTakeandGoEmergencyBook.pdf

Transition Planning Resources for Providers

1. http://www.communityinclusion.org/pdf/man8.pdf2. http://web.syntiro.org/hrtw//index.html3. http://www.gottransition.org/providers-best-

practices

Questions?

For questions or additional information, contact:

Stephanie Hood, Transition Coordinator at Maryland’s Office for Genetics and Children with Special Health Care Needs at shood@dhmh.state.md.us or 410-767-5298