haemophilia facts and figures

SOURCES

1. National Hemophilia Foundation website, accessed May 2015. http://www.hemophilia.org/About-Us/Fast-Facts

2. World Federation of Hemophilia website, accessed May 2015. http://www.wfh.org/en/page.aspx?pid=637

3. World Federation of Hemophilia website, accessed May 2015. http://www.wfh.org/en/page.aspx?pid=653

4. Centers for Disease Control and Prevention website, accessed May 2015. http://www.cdc.gov/ncbddd/hemophilia/facts.html

5. World Federation of Hemophilia. WFH Report on the Global Survey, 2013; 3. Figures adjusted for population growth. http://www1.wfh.org/publications/files/pdf-1591.pdf

6. Garrido C et al. Quality of Life and Well-Being of People with Haemophilia and Parents Managing Haemophilia: HERO Study Analysis Haemophilia 2012; 18(3):177.

7. Forsyth AL et al. Haemophilia Experiences, Results and Opportunities (HERO) Study: survey methodology and population demographics. Haemophilia 2014; 20:44–51.

8. Cassis FRMY et al. Haemophilia Experiences, Results and Opportunities (HERO) Study: Influence of haemophilia on interpersonal relationships as reported by adults with haemophilia and parents of children with haemophilia. Haemophilia 2014; 20:e287–295.

Find out more at changinghaemophilia.com

INHIBITORY ANTIBODY

25–30% of children with severe haemophilia A develop inhibitors.3

Inhibitors are a serious medical condition that prevent factor concentrate treatment from working. A different type of clotting factor called a bypassing agent can be used instead.

1–6% of people with haemophilia B develop inhibitors.3

HAEMOPHILIA WORLDWIDE

PEOPLE HAVE HAEMOPHILIA1

OF THEM HAVE BEEN DIAGNOSED5

420,000

180,000

HAEMOPHILIA TYPES

1 in 10,000 is born with Haemophilia A– a lack of clotting factor VIII.2

1 in 50,000 is born with Haemophilia B– a lack of clotting factor IX.2

YOU HAVEHAEMOPHILIA IF

your blood does not have enough clotting factor, a protein in the blood that controls bleeding.1

HAEMOPHILIA MEN & WOMEN

HAEMOPHILIA FACTS

WOMEN CARRY AND PASS ON THE HAEMOPHILIA GENE4

MOST HAEMOPHILIAPATIENTS ARE MEN4

say pain recently interfered with

their lives6

are in constant pain6

have limited mobility6

are worried about being able to support a

family in the future8

report psychological/

psychiatric conditions7

47%

report a negative impact of

haemophilia on employment7

80%50%

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