#Hpm TweetChat 10/10/12

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10/12/12 1:hpm - Healthcare Social Media Transcript

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#hpm transcript

Healthcare Social Media TranscriptFrom: Wed Oct 10 18:00:00 PDT 2012

To: Wed Oct 10 19:15:00 PDT 2012

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aliciabloom welcome to #hpm tweetchat! let's get started tonight with some introductions. . .Wed Oct 10 18:01:57 PDT 2012

ctsinclair RT @aliciabloom: its #hpm tweetchat time! tonight, well discuss recent news coverageabout family caregiving & the aging population #HPMWed Oct 10 18:02:01 PDT 2012

ctsinclair @aliciabloom Hey Alicia! #HPMWed Oct 10 18:02:11 PDT 2012

kkehl731 RT @jfclearywisc: RT @ssmithaahpm: Researchers Wring Hands as U.S. Clamps Down onDeath Record Access http://t.co/JXx3dqus#hpm

Wed Oct 10 18:03:06 PDT 2012

aliciabloom @ctsinclair hi there! thanks for joining tonight. i need some future dates for you to host!#hpm

Wed Oct 10 18:03:09 PDT 2012

ctsinclair Christian Sinclair, palliative doctor, Natl Hospice Medical director for Gentiva. Tweets are mown #HPMWed Oct 10 18:03:12 PDT 2012
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ctsinclair @aliciabloom I always enjoy hosting so I'm game, just give me some dates by email and Ican confirm. Tanks for organizing #HPM

Wed Oct 10 18:04:15 PDT 2012

ctsinclair I appreciated being able to watch the debates last week. Thanks for the respite. #HPMWed Oct 10 18:04:34 PDT 2012

AnkurB_MD What You need to Know about Your Serious Illness and #Palliative Care: @TJCommissionasks U 2 Speak UP! #HPM#Cancerhttp://t.co/qjreaXtt

Wed Oct 10 18:04:57 PDT 2012

aliciabloom MSW, LSW practicing in hospice & palliative care in Philadelphia. love fall weather. happy tbe hosting tonight! #hpm

Wed Oct 10 18:05:11 PDT 2012

aliciabloom @ctsinclair that's great. i'll e-mail you later this week! #hpmWed Oct 10 18:05:35 PDT 2012

aliciabloom @AnkurB_MD are you joining us tonight? #hpmWed Oct 10 18:05:50 PDT 2012

ctsinclair @AnkurB_MD@rfberry@jfclearywisc@equijada@hollyby Might you join us for chattonight? #HPM

Wed Oct 10 18:06:31 PDT 2012

ctsinclair @aliciabloom Ha I thought the same thing. Odd how connected we are! #HPMWed Oct 10 18:06:53 PDT 2012

aliciabloom @ctsinclair high five! #hpmWed Oct 10 18:07:38 PDT 2012

jfclearywisc jim cleary, @uwhealth#palliative care & @painpolicy (PPSG) joining #hpm chat for the nexhour

Wed Oct 10 18:07:39 PDT 2012

AnkurB_MD @aliciabloom@ctsinclair Raincheck tonight! Will be flying out in a lil bit - gotta a red eyeoverseas.. have fun #hpm pals!

Wed Oct 10 18:08:04 PDT 2012

aliciabloom @jfclearywisc hi jim! thanks for joining. what time zone are you in these days? #hpmWed Oct 10 18:08:17 PDT 2012

aliciabloom @AnkurB_MD safe travels! hope to see you here again soon. #hpmWed Oct 10 18:08:38 PDT 2012
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ctsinclair @aliciabloom We will meet in person soon, I'm sure. #HPMWed Oct 10 18:09:07 PDT 2012

aliciabloom @ctsinclair i thought you were coming to Philly this fall...? #hpmWed Oct 10 18:09:41 PDT 2012

jfclearywisc @aliciabloom Sitting quitely in Madison WI, trying to get off Central European time. #hpmWed Oct 10 18:09:52 PDT 2012

ctsinclair @jfclearywisc Hey Jim. If you any access to some good journal articles on chronic pain I'dlove to see them. Writing a chapter #HPMWed Oct 10 18:09:55 PDT 2012

ctsinclair @aliciabloom Thought I was as well. Looks like it got changed #HPMWed Oct 10 18:10:15 PDT 2012

ctsinclair @jfclearywisc Your head must spin with your travel #HPMWed Oct 10 18:10:32 PDT 2012

aliciabloom as folks trickle in, i'll say that the inspiration for tweetchat tonight is from two pieces in the@nytimes this week.... #hpmWed Oct 10 18:10:55 PDT 2012

ctsinclair Quiet night so far Tonight. Once we get started I'm sure it will liven up #HPMWed Oct 10 18:11:21 PDT 2012

aliciabloom T1: "How in the World Will We Care for All the Elderly?" (http://t.co/GafAvJQZ) raisesimportant points for consideration in #hpmWed Oct 10 18:12:43 PDT 2012

ctsinclair T1 this topic has a international flavor to it as well. @jfclearywisc should be all over that#HPMWed Oct 10 18:14:01 PDT 2012

ctsinclair RT @alociabloom T1: "How in the World Will We Care for All the Elderly?"(http://t.co/Etd0Iqk3#HPM

Wed Oct 10 18:14:43 PDT 2012

aliciabloom so true! #hpmglobal RT @ctsinclair: T1 this topic has a international flavor to it as well.@jfclearywisc should be all over that #hpmWed Oct 10 18:14:43 PDT 2012

ctsinclair T1 I have always felt that caring for our elderly could really help in regards to labor issuesand unemployment, if paid a fair wage #HPM

Wed Oct 10 18:15:25 PDT 2012
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aliciabloom T1: share initial thoughts & impressions of the data presented, and discuss the impact #hpmcan have on the needs highlighted

Wed Oct 10 18:15:50 PDT 2012

ctsinclair T1 sadly our professional caregivers in the US are understaffed and underpaid anddisrespected leading to lots of turnover #HPM

Wed Oct 10 18:16:06 PDT 2012

ctsinclair T1 and anecdotally if not statistically we are moving towards less of a extended network offamily caregivers #HPMWed Oct 10 18:16:45 PDT 2012

aliciabloom T1: this really struck me- "worldwide, more than 46 percent of people aged 60 years andover have disabilities" #hpm

Wed Oct 10 18:17:27 PDT 2012

ctsinclair "People live longer, w/ more chronic illness, in poorer health, requiring more attention fromfamily members and costly medical care." #HPM

Wed Oct 10 18:18:09 PDT 2012

aliciabloom @ctsinclair T1 i agree with that. it seems families are struggling more & more to meetcaregiving needs. major financial implications. #hpm

Wed Oct 10 18:18:24 PDT 2012

ctsinclair @aliciabloom Is that including minor disabilities like needing glasses occasionally? I haveseen that listed as disability Before #HPM

Wed Oct 10 18:19:03 PDT 2012

jfclearywisc @ctsinclair So really interesting issue. THe number of wage earners/aged person is a publi

health metric. Japan already very very low. #HPMWed Oct 10 18:19:14 PDT 2012

ctsinclair @aliciabloom More likely to find both adults I workforce and not in domestic caregiving role#HPM

Wed Oct 10 18:19:49 PDT 2012

aliciabloom @ctsinclair is "costly medical care" always necessary & appropriate? i think that's a key weneed to consider on many levels #hpmWed Oct 10 18:19:50 PDT 2012

ctsinclair @jfclearywisc I have heard that about Japan. #HPMWed Oct 10 18:20:10 PDT 2012

ctsinclair @aliciabloom Tat was a slightly loaded if not mostly true assessment in our currentexecution of health care #HPM

Wed Oct 10 18:20:44 PDT 2012

that's the challenge RT @ctsinclair: @aliciabloom More likely to find both adults I workforce
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aliciabloom and not in domestic caregiving roles #hpmWed Oct 10 18:20:57 PDT 2012

jfclearywisc @aliciabloom Reason for focus on #NCDs (non communicable diseases) CVS, Cancer,Diabetes, lung, then arthrits, mental health .....#hpm

Wed Oct 10 18:21:01 PDT 2012

ctsinclair @aliciabloom It is almost like a given assumption because it is a cliche the reader is likely toexpect #HPM

Wed Oct 10 18:21:21 PDT 2012

aliciabloom @ctsinclair it was a little loaded...but i couldn't help it. #hpmWed Oct 10 18:21:38 PDT 2012

ctsinclair @aliciabloom Although the human labor of caring for someone with declining function canrival very expensive surgeries #HPM

Wed Oct 10 18:21:52 PDT 2012

anetto I read that RA causes annual spending of $1015 vs $624 for healthy in Ontario (CommunityHealth Survey linked to insurer) #hpmWed Oct 10 18:22:18 PDT 2012

ctsinclair @jfclearywisc I really have to get over not liking that term NCD since I see it more often#HPM

Wed Oct 10 18:22:20 PDT 2012

ctsinclair @aliciabloom If only you could see my eyes roll when I read that. Like a ferris wheel. #HPMWed Oct 10 18:22:50 PDT 2012

jfclearywisc @aliciabloom Caregiving becoming key topics in healthcare. e.g. Need for caregiver is onereason women use #Hospice less at #EOL. #hpmWed Oct 10 18:22:56 PDT 2012

lfettig How the Poor Die- George Orwell 1946 http://t.co/gB07tYL7#hpmWed Oct 10 18:23:01 PDT 2012

jfclearywisc RT @anetto: I read that RA causes annual spending of $1015 vs $624 for healthy in Ontario(Community Health Survey linked to insurer) #hpm

Wed Oct 10 18:23:25 PDT 2012

aliciabloom @ctsinclair it's very true that the actual cost of providing 24 hour care to someone isincredibly high #hpm

Wed Oct 10 18:23:25 PDT 2012

ctsinclair @anetto pressing RA=rheumatoid arthritis. That seems not too bad of a difference honestly#HPM

Wed Oct 10 18:23:36 PDT 2012
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ctsinclair @anetto RA drugs can be expensive #HPMWed Oct 10 18:23:47 PDT 2012

ctsinclair @lfettig Come join us for chat Lyle. #HPMWed Oct 10 18:23:58 PDT 2012

aliciabloom @ctsinclair uh-oh. . .i made your eyes roll like a ferris wheel? #hpmWed Oct 10 18:24:24 PDT 2012

ctsinclair @anetto presuming not pressing * #HPMWed Oct 10 18:24:27 PDT 2012

ctsinclair @aliciabloom No the NYT journalist #HPMWed Oct 10 18:25:04 PDT 2012

anetto @ctsinclair That is excluding drug costs which are not covered unless you are 65+ #hpmWed Oct 10 18:25:08 PDT 2012

aliciabloom @ctsinclair oh, phew! #hpmWed Oct 10 18:25:44 PDT 2012

ctsinclair @anetto Ok that makes much more sense to me now. #HPMWed Oct 10 18:26:22 PDT 2012

aliciabloom @jfclearywisc that's interesting. what makes a need for caregiver lead women to usehospice less? #hpmWed Oct 10 18:26:34 PDT 2012

ctsinclair @jfclearywisc yes please explain #HPMWed Oct 10 18:28:06 PDT 2012

aliciabloom any final thoughts on T1...? #hpmWed Oct 10 18:28:07 PDT 2012

equijada Hi folks, joining late #hpmWed Oct 10 18:29:09 PDT 2012

jfclearywisc @ctsinclair WOmen outlive men. SO if living at home alone, many hospices may decline toprovide service. #HPMWed Oct 10 18:29:56 PDT 2012

aliciabloom hey @equijada! better late than never. we're just wrapping up T1 and we'll start T2 in amoment. #hpm
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Wed Oct 10 18:29:56 PDT 2012

aliciabloom @jfclearywisc@ctsinclair that's unfortunate. we don't decline service to someone becausethey live alone & assist with long-term plans #hpmWed Oct 10 18:31:08 PDT 2012

ctsinclair @jfclearywisc That is a shame #HPMWed Oct 10 18:31:59 PDT 2012

aliciabloom T2: Caregiver, Plus MD or RN touches on the reality of family caregiving, which has manyimplications for #hpm (http://t.co/G5mi6sPl)

Wed Oct 10 18:32:22 PDT 2012

ctsinclair RT @aliciabloom: "thats unfortunate. we dont decline service to someone bc they live alone& assist with long-term plans" same here #HPM

Wed Oct 10 18:32:47 PDT 2012

aliciabloom @ctsinclair that's good to hear. if the patient is better off because we're there providingservice, then we should support them #hpmWed Oct 10 18:34:17 PDT 2012

aliciabloom T2: give the @nytimes piece a quick read, then share initial reactions & discuss how yousee this impact your patients/families #hpmWed Oct 10 18:36:34 PDT 2012

ctsinclair T2 I'm impressed by the learning capacity of many of our family caregivers when it comes tadvanced treatments in the home #HPM

Wed Oct 10 18:38:03 PDT 2012

jfclearywisc @aliciabloom T2: really surprised me when I came to US: reliance on family caregivers forin-home hospice #hpmWed Oct 10 18:38:18 PDT 2012

aliciabloom RT @ctsinclair: T2 impressed by the learning capacity of many of our family caregiverswhen it comes to advanced treatments in the home #hpm

Wed Oct 10 18:38:39 PDT 2012

aliciabloom @jfclearywisc what does it look like across the globe? more in-home support providedthrough the hospice? #hpm

Wed Oct 10 18:39:05 PDT 2012

aliciabloom T2: many of my patents' families talk about all the "on the job training" they've received-- "i'mpractically a nurse now." #hpm

Wed Oct 10 18:39:41 PDT 2012

jfclearywisc @ctsinclair Agree they learn to do many tasks. But we don't factor cost of this "informalhealth care providing" in US healthcare $$$ #HPM

Wed Oct 10 18:39:52 PDT 2012
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aliciabloom T2: family caregiving needs are only going to increase as our aging population grows overthe next several decades #hpm

Wed Oct 10 18:41:04 PDT 2012

aliciabloom Significant emotional toll on family caregivers: Its hard to do something thats personallyinvasive and painful, she said #hpmWed Oct 10 18:43:38 PDT 2012

equijada t2: Really starting to appreciate the stress of family caregiving. I underestimated it in thepast.. #hpm

Wed Oct 10 18:45:44 PDT 2012

ctsinclair @jfclearywisc No this cost is not factored in AT ALL! #HPMWed Oct 10 18:46:35 PDT 2012

ctsinclair @equijada Agree with you there. I always respected it and thought I gave family caregivingit's due, but still underestimated #HPM

Wed Oct 10 18:47:16 PDT 2012

aliciabloom On the other hand, data shows many family caregivers felt they were making an importantcontribution & felt closer to the patient #hpm

Wed Oct 10 18:47:19 PDT 2012

ctsinclair RT @aliciabloom: Significant emotional toll on family caregivers: Its hard to do somethingthats personally invasive and painful, #HPM

Wed Oct 10 18:47:29 PDT 2012

ctsinclair @jfclearywisc do you not see family reliance as much internationally #HPMWed Oct 10 18:47:59 PDT 2012

aliciabloom it's almost as if the cost of family caregiving isn't considered a cost, but rather anexpectation. #hpm

Wed Oct 10 18:48:03 PDT 2012

ctsinclair @aliciabloom Family caregiving like anything in life has benefits and burdens #HPMWed Oct 10 18:48:24 PDT 2012

ctsinclair @aliciabloom Often patients see only emir burden to family caregiver, not the reward incaring #HPMWed Oct 10 18:48:48 PDT 2012

aliciabloom RT @ctsinclair: Family caregiving like anything in life has benefits and burdens #hpmWed Oct 10 18:49:06 PDT 2012

ctsinclair RT @aliciabloom: "...the cost of family caregiving isnt considered a cost, but rather an
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expectation." the medical system agrees #HPM

Wed Oct 10 18:49:50 PDT 2012

aliciabloom @ctsinclair it's one of the greatest stresses to patients-- they don't want to be a burden totheir family #hpmWed Oct 10 18:50:06 PDT 2012

jfclearywisc RT @aliciabloom: @ctsinclair it's one of the greatest stresses to patients-- they don't want tbe a burden to their family #hpmWed Oct 10 18:50:21 PDT 2012

aliciabloom it was a small but mighty group tonight. as the hour comes to close, please share finalthoughts. . . #hpmWed Oct 10 18:52:22 PDT 2012

ctsinclair @aliciabloom With our small group I could quote Margaret Mead, but that quote is overused#HPM

Wed Oct 10 18:54:26 PDT 2012

aliciabloom @ctsinclair#truth#hpmWed Oct 10 18:54:59 PDT 2012

ctsinclair Final thought via W. Buffett "predicting rain doesn't help, building arks does." #HPMWed Oct 10 18:55:42 PDT 2012

aliciabloom @ctsinclair plus, i think it's more than the allowed 140 characters. #hpmWed Oct 10 18:55:46 PDT 2012

equijada Final thought: Glad I have great kids. #hpmWed Oct 10 18:55:49 PDT 2012

ctsinclair That was slightly paraphrased. #HPMWed Oct 10 18:56:15 PDT 2012

ctsinclair RT @equijada: Final thought: Glad I have great kids. "I'm glad you do to." #HPMWed Oct 10 18:56:28 PDT 2012

aliciabloom final thought/recommendation: treat yourself to a pumpkin spice latte this week. consider itseasonally appropriate self-care. #hpmWed Oct 10 18:56:41 PDT 2012

jfclearywisc RT @aliciabloom: Signif emotional toll on family caregivers: Its hard to do something thatspersonally invasive & painful, she said #hpmWed Oct 10 18:56:53 PDT 2012

@equijada :) #hpm
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aliciabloom Wed Oct 10 18:57:05 PDT 2012

ctsinclair @aliciabloom I can shorten it "only a few people change the world. Be one of them." Meadabridged. #HPM

Wed Oct 10 18:57:27 PDT 2012

equijada @ctsinclair@aliciabloom I picture them caring for me in the future #hpmWed Oct 10 18:57:49 PDT 2012

aliciabloom thank you all for joining & hope to see you next week. same time - same place. good night!#hpmWed Oct 10 18:58:49 PDT 2012

equijada Many people can change the world, we're part of them - Anti-Mead #hpmWed Oct 10 18:58:51 PDT 2012

equijada @aliciabloom thanks for hosting! have a great evening. #hpmWed Oct 10 19:01:13 PDT 2012

ctsinclair @aliciabloom Great job creating an engaging environment Alicia! #HPMWed Oct 10 19:04:26 PDT 2012

lfettig 30-Day Readmissions among Seriously Ill Older Adults http://t.co/JXU3d6Nt#hpmWed Oct 10 19:04:59 PDT 2012
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