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It Starts with One: Self-care & Retention. April 19, 2012. For Audio: Dial-in#: 866.394.2346 Participant Code: 4182576142#. Welcome & Introduction Agenda. Welcome & Introductions, 5 mins in+care Campaign Overview, 5 mins Self-care and Retention, 15 mins Learning from Each Other, 15 mins - PowerPoint PPT Presentation
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It Starts with One:
Self-care & Retention
April 19, 2012
For Audio: Dial-in#: 866.394.2346 Participant Code: 4182576142#
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Welcome & IntroductionAgenda
Welcome & Introductions, 5 mins in+care Campaign Overview, 5 mins Self-care and Retention, 15 mins Learning from Each Other, 15 mins Promoting Self-care through Partners in+care, 5 mins
Conversation and Q&A opportunities throughout webinar
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At the end of this webinar, you will know more about . . . What is self-care The role of self-care in retention Practical strategies for using self-care to support
retention How to use Partners in+care to support self-care and
retention
Welcome & IntroductionLearning Topics
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Welcome & IntroductionGround Rules for Webinar Participation
Welcome This is a “public event.” If you have confidentiality
concerns . . .- Your names appear on-line in the list of webinar
registrants--consider just listening to the audio or viewing the webinar at a later time after it is posted at incarecampaign.org
- All webinars are recorded--do not use identifying information when asking questions
For Audio: Dial-in#: 866.394.2346 Participant Code: 4182576142#
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Welcome & IntroductionGround Rules for Webinar Participation
Actively participate and write your questions into the chat area during the presentation; we will also pause for conversation during the webinar
Do not put us on hold Mute your line if you are not speaking (press *6, to
unmute your line press #6) Slides and other resources will be available on our
website at incarecampaign.org
For Audio: Dial-in#: 866.394.2346 Participant Code: 4182576142#
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Welcome & IntroductionIntroduce Guests
Deloris DockreyDirector of Community OrganizingHyacinth AIDS FoundationNew Brunswick, NJ - [email protected]
Michael HagerManager, TA/DisseminationNQC, NY, NY – [email protected]
Bob TracyNQC Peer ConsultantSt. Paul, MN – [email protected]
Mike MaginnExecutive Director, Friends of People with AIDSPeoria, IL – [email protected]
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The goal of the in+care Campaign is to bring patients back to care and keep others from falling out of care.
In+care Campaign Overview Welcome
For more information: www.incarecampaign.org
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In+care Campaign Overview A Little More Information about in+care
Five Parts
Webinars/Meet Authors
Coaches
QI Projects &Data
Champions
Partners
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The Role of Self-care in RetentionWhat is retention?
For more information about retention, visit the in+care Campaign website: www.incarecampaign.org
Stay in care / Return to care
Retention –having a routine for seeing your doctor/health care provider on a regular schedule
Doing this persistently – year-after-year-after-year
There is a relationship—a seemingly obvious relationship— between regular medical visits and improved health and reduced mortality. Research published in 2010 provides the first data to demonstrate the survival advantage of regular HIV care. [Giordano, 2010]
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The Role of Self-care in RetentionModel for Chronic Care
YOU
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The Role of Self-care in RetentionChallenges to Retention & Self-care
Personal. [e.g. disease knowledge, perceived illness, acceptance]
Structural [help remembering appointments, transportation] Financial
[insurance, public support – housing, food, etc.]
For more information about self-care, visit the NQC website: http://nationalqualitycenter.org/index.cfm/5943
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Improve engagement & retention through self-care education: [personal]
Improve knowledge; dispel negative beliefs
High level of health literacy
Patient education combined with relationships
The Role of Self-care in RetentionEducation Promotes Retention
Visit www.incarecampaign.org – “Resources Tab” to learn about effective retention initiatives.
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The Role of Self-care in RetentionSupport Promotes Retention
Visit www.incarecampaign.org – “Resources Tab” to learn about effective retention initiatives.
Improve engagement & retention: [structural & financial]
Reminder calls or texts
Transportation or other supports
Insurance that enables routine access to health care; know how to use care
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Additional Questions? Contact us at [email protected]
The Role of Self-care in RetentionConversation
What “supports” work best?
Any questions?
What self-care strategies do you
use to stay in care?
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Learning from Each OtherStories of Experience
Self-care education
Resource barriers
Lack of experience with routine health care
Personal strategies
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Learning from Each OtherSuccess Stories from the Field
Download “Making Sure” at http://nationalqualitycenter.org/index.cfm/6176/13886
Order Copies: [email protected]
Offer “Making Sure” MCM clients
“Making Sure” curriculum / Self-care and advocacy skills
• Personal definition of quality• Introduction to clinical measures of quality• Learn about HIV• Seeking advice• Problem-solving and taking action; practicing health-promoting behaviors• Communication skills• Finding and valuing support of others peer support /
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Learning from Each OtherSuccess Stories from the Field
Download “Making Sure” at http://nationalqualitycenter.org/index.cfm/6176/13886
Order Copies: [email protected]
• Improve routine visits with HIV care provider and routine viral load measurement
• Use curriculum to introduce “retention” and clinical measures for “retention” to help assess quality
Adapting “Making Sure” for Partners in+care
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Learning from Each OtherStories of Experience
For more information: Contact Mike Maginn – [email protected]
Promoting Self-Care & Retention through . . .
Health education and self-care skill development Emotional support
Activities include . . .
Train peer navigators for state of Illinois 3-day training Prepare for formal or informal system support [i.e. work employment or volunteer peer support]
Central IL Friends of People Living with AIDS
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Learning from Each OtherStories of Experience
Activities include . . .
Variety of tools for reflection & expression Advocacy skills [ID practical needs, advocacy plan, communication skills] Therapist, navigator, peer-to- peer experiences & support
Promoting Self-Care & Retention by . . .
Addressing impact that depression, isolation or stress can have on delaying care or inconsistent use of care
For more information: Contact Deloris Dockrey – [email protected]
The Wellness Community
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Learning from Each OtherStories of Experience
Visit www.incarecampaign.org – Resources Tab to learn about effective retention initiatives.
What do we do to keep ourselves in care?
I want to strengthen my community. [Mike]
I just need to make sure I can get to the clinic without much hassle. [Bob]
I work on developing good communication and a good relationship with my provider and clinic staff. [Deloris]
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Additional Questions? Contact us at [email protected]
Learning from Each Other Conversation
Any questions?
What’s your self-care plan to stay in
care?
What are some of the common
characteristics?
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Partners in+careImproving Retention through Self-care
Visit Partners in+care web page
Sign-up to join the Partners in+care network
Encourage others to join the network
Visit www.incarecampaign.org – Partners Tab
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Partners in+careImproving Retention through Self-care
www.incarecampaign.org
Submit your tips Describe the strategy
you use Post on Partners
in+care web page Need to be signed up
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Partners in+care Webinar Series
in+care – Homelessness and Retention – Apr 26 [2 pm ET]
Partners in+care - Sharing the Benefits of Care: Reaching Out to Others – May 24 [2 pm ET]
Partners in+care - Making Retention Easier: Creating Systems that Work – Jun 28 [2 pm ET]
Partners in+care Webinar Archive at www.incarecampaign.org - Retention: Partners Make It Happen – Mar 22 - It Starts with One: Self-care and Retention – Apr 19
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Partners in+care What We Will Accomplish
Share what we know so we all get better at: Seeing our doctor and HIV care providers on a regular
basis Reaching out and supporting others so they see their
doctors and HIV care providers on a regular basis – especially those who are new to HIV care or who have stopped regular visits
Making sure we all get the full benefit of care and treatment in order to improve our health
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Sign up to be a Partner!
Campaign Headquarters:National Quality Center (NQC)90 Church Street, 13th floorNew York, NY 10007Phone 212-417-4730
incareCampaign.org
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Partners in+care Selected References
Cheever, Laura. Engaging HIV-infected Patients in Care: Their Lives Depend on It, Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp 1500-1502. www.ceciliagrierson.org/puma/Retention%20in%20HIV%20Care%20%28Editorial%29.pdf
Giordano TP, Gifford AL, White AC Jr, et al. Retention in Care: A Challenge to Survival with HIV infection. Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp 1493-1499.
HIV AIDS Bureau. Self-Management and the Chronic Care Model. HRSA CARE Action. January 2006.
Rukeyser, Joseph. Making Sure You HIV Care is the Best It Can Be: A Consumer Quality of Care Training Workshop. National Quality Center. June 2002/Revised March 2010.