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Jane Coad. Senior Research Fellow.
Centre for Child and Adolescent Health
University of the West of England, Bristol. 0117 331 0892 [email protected]
SUIR Launch. 30th June. 2009
.
Initiated & controlled = Full
participation
Children & young people
collaborated WITHadult led work
Children and young people consulted with
Audits, Consultation, Advisory Groups, Research
Undertook national review commissioned by Action for Sick Children (Coad & Houston 2007) that showed:
– Children and young people’s involvement was accepted in health care settings
– And greatest number were collaboration type examples
– Variety of types & techniques used
Case Exemplar
CONSULTATION
National
Own field work
Techniques
Story Telling with a character
Interview (4 in team)
Symbols and art materials to draw with/write on
Children and young people had good awareness of what they remembered and what they liked/did not like
Consultation took place using creative methods they knew and where they felt ‘safe’
Easy to use and develop in other settings
Reflection
Case exemplar
COLLABORATION
National
Own field work
• Children who lost their parents in Sri Lanka in the Tsunami and who live in an orphanage (140)
• Workshop in a ‘villa’ with 16 children aged 6 to 15 years to talk to them about the impact on their mental health and well being
• Young people volunteers
In practice
Techniques
Trained young people
Interviews
Symbols/post its
Dream webs
Pocket wallet
Young people were volunteers in a collaborative community based project
Took place where children they felt ‘safe’ & ‘fun’
Easy to develop in other settings
Reflection
Case Exemplar 3
SERVICE USER CONTROL
National
Own field work
• Young people aged 13 to 18 years from the North of Birmingham were given an opportunity to explore, using photography, what it meant to be young with a particular focus on the impact of their health outcomes.
• 3 settings were CAMHS facilities
In practice
In Practice?
• Co-author: John Needham • Began use of photos in 2005 in work • In 2009 four young people in Birmingham were volunteer
leads (2 were CAMHS users). • Helped them seek funding and gave training • All phases: from data collection + analysis + dissemination
Workshop 1 Consent/information/cameras handed 4 – 6 weeks later film collection & developmentWorkshop 2
Returned for art based data collection activity Not just what but why taken each photo
Techniques
• Photo elicitation techniques
• Photos and board work
Photographs were useful platform to explore children and young people’s worlds and views are incorporated into local children’s plan
Had undertaken project where researcher led but when YP led and controlled it added much more depth in findings (more IT orientated)
Took time to develop young people as leads but technique could be developed for other studies with this group
Reflection
Shared context and a variety of techniques toinvolve children and young people
Future Directions?
• UWE/CCAH and own programme! • Resources /Skills / Training • Politics and process • Listening and making a change • Thank you and rewards
References
Coad, J (2007) Using art-based techniques in engaging children and young people in health care consultations and/or research. Journal of Research in Nursing. Vol 12 (5) p487-497
Coad, J; Houston, R (2007) Involving children and young people in the decision-making processes of healthcare services. Action for Sick Children. London
Coad, J; Flay, J; Aspinall, M; Bilverstone, B; Coxhead, E; Hones, R. (2008) Evaluating the impact of involving young people in developing children’s services in an acute hospital trust. Journal of Clinical Nursing. 17. p3115-3122
Coad, J. Evans, R. (2008) Children and young people s engagement in the data analysis process A practical framework. Children and Society. January. Volume 2. Pp 41-52
Coad, J; Coad, N (2008) Children and young people’s preference of thematic design and colour for their hospital environment. British Journal of Child Health. March edition. Pp 33-48
