#1VOICESUMMIT REPORT

JUNE 2019

#1VOICESUMMIT 2019 REPORT 2 / 14

What a treat it is to be able to help bring so many fantastic

people together!

Thanks to each and every one of the 48 participants, from 24

different countries, for making the 2019 #1VoiceSummit the best

yet! This year’s summit – our 6th in a row – took place on 25-26

June at Lundbeck headquarters in Copenhagen. And it showed,

once again, how working together is the key to making a

difference for people with poor brain health.

New sources of inspiration and a focused agenda

As per previous years, #1VoiceSummit participants came from

different international or national advocacy groups from the

mental health and neurological diseases communities. All

passionately share one goal: improving brain health worldwide.

For the first time, the #1VoiceSummit also counted speakers

from disease areas outside psychiatry and neurology. We had

the pleasure of having representatives from the American Heart

Association as well as EURORDIS-Rare Diseases Europe to

share their experiences with us.

With the help of interactive panel discussions and hands-on

learning workshops in the areas of fundraising and awareness

raising, we found much common ground, learned from each

other and hope to have built a stronger community.

What’s in this report

You will find a high-level summary of the speakers’

presentations. Along with this report, we are also sending the

speakers’ slides, the workshop templates, and the participation

list to all attendees.

Since its launch, Lundbeck’s #1VoiceSummit has gathered

more than 130 advocacy representatives from more than 100

organizations and 36 different countries.

The #1VoiceSummit has three specific objectives:

• Provide an opportunity for attendees to meet peers and

learn from each other’s expertise and experience.

• Identify potential areas of collaboration with one another

• Hear about new advocacy insights to help us build.

sustainable and stronger advocacy communities.

Let’s speak with one voice!

Lundbeck is dedicated to restoring brain health so that every

person can be their best. We believe that only by working

together will we be able to drive the change needed to address

the health inequalities prevailing in this disease area.

Let’s continue to speak with one voice to put an end to the

stigma of brain disease. And to provide hope to every single

person impacted by it.

Please share your thoughts and pictures online

by using the hashtag #1VoiceSummit

#1VOICESUMMIT 2019

By speaking together with one voice,

instead of as fragmented players with

separate agendas, we will:

• Make a bigger and more

credible impact

• Reach more stakeholders

• Learn from each other

• Use our resources efficiently

• Make a difference

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FROM NOISE TO ONE VOICE

Anders Schroll, Vice President, Corporate Communication

& Public Affairs, Lundbeck, Denmark

Anders welcomed the participants with a message of optimism

and gratitude for the work the brain health community is doing.

He pointed out, that for the first time leaders around the world

have included mental health as part of the UN Sustainable

Development Goals (Goal #3, Target 3.4). And celebrities,

actors, rappers, CEOs, athletes, royal families and other

prominent figures are starting to speak up to reduce

discrimination. That’s important, he said, not just from a stigma

standpoint, but also because more than 700 million people

around the world are living with poor brain health1. Furthermore,

poor mental health is costlier, than cancer, diabetes and

cardiovascular disease combined2.

Fortunately, many policy makers are open to guidance. And one

of the key reasons Lundbeck holds the #1VoiceSummit is to

encourage participants to work together and define what the key

priorities for policy makers are. Because, Anders stressed,

unifying with one voice will secure progress.

“There’s one word that comes to my mind, and that’s “hope”. I think that we are at

a turning point these years. One of the reasons is that now, due to your great work,

brain health, mental health, neurological and psychiatric diseases are starting

to come up on the public agenda.”

Lundbeck is tireless in its efforts to find new and better

treatments of brain diseases that the brain health community is

looking for. Lundbeck is also committed to making sure there’s a

community around people living with brain disease that is ready

to provide support.

One simple thing that we all can do to grow our personal brain

health, Anders said, is based on the “ABC model of mental

health”: Act, Belong and Commit. He expressed his hope that

every single attendee feels part of a larger community – one

that, together, can bring meaningful change to the whole world.

The ABC-model for mental health: Act, Belong, Commit

References:

1. IFPMA, Position Paper. Mental and Neurological Disorders Addressing a Global Health Priority, 2012

2. World Economic Forum, The Global Economic Burden of NCDs, 2011

DAY ONE

The keynote speech on the first day of

the #1VoiceSummit focused on the “why

speaking with one voice” is important

and on a Fundraising Masterclass.

The morning was kicked-off with a

Brain Health Wish Tree exercise to

“break the ice” on a warm summer day.

As part of this, attendees introduced

themselves, answered one of three

assigned questions and later put their

answers on a “Brain Health Wish Tree”:

What does brain health mean to

you?

What are your hopes for brain

health?

What excites you the most about

the future of brain health?

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WHY SHOULD WE SPEAK WITH ONE VOICE?

Charlene Sunkel, CEO, Global Mental Health Peer Network

(GMHPN), South Africa

At age 19, Charlene was diagnosed with paranoid

schizophrenia. Her journey has taken her from experiencing

great loss to becoming a passionate global voice for the rights

of people with mental health conditions – and it includes a long

list of impressive credentials. In 2018, she founded the GMHPN,

a global mental health care user organization working to ensure

that people with lived experience with mental health conditions

have the platform to share their experiences, views, opinions

and perspectives in a well-established, sustainable structure.

“Nothing about us, without us.”

Why work together with people with lived experience?

Charlene emphasized that when we assemble the collective

expertise, skills and experience and speak with one voice, we

can achieve goals more effectively and efficiently, while

attracting more attention and increasing credibility. To ensure

that real needs and challenges are reflected in health and policy

plans, however, it is crucial to have people with lived experience

as key partners.

And collaborating effectively requires camaraderie, commitment

and determination, as well as respect and trust.

“The most powerful partnership is working

together with persons with lived experience.”

According to Charlene, the overall benefits of working together

with people with lived experience, include:

• Improved overall health outcomes.

• Decreased burden on health systems.

• Positive effect on economy.

• Improved quality of life, reclaimed dignity and active

participation in the community for people with lived

experience.

More specifically, people with lived experience can be key

partners in:

• Ensuring compliance with national and international

human rights instruments.

• Reducing coercion and harm.

• Being involved in research.

• Reducing stigma and related discrimination

• Providing peer support.

• Participating in the development, design, review,

implementation, monitoring and evaluation of mental

health care and services.

What should the community be advocating for?

Charlene encouraged all attendees to get involved in the

existing global advocacy initiatives and campaigns. To speak

with one voice, she highlighted 14 different topics to advocate

for together:

• Ensure lived experience is at the heart of action.

• Build stigma- and discrimination-free communities

• Invest in mental health.

• Improve the understanding of the causes/risk factors

of mental health conditions.

• Ensure affordable, accessible and effective treatments

• Ensure quality mental health care and services.

• Deinstitutionalize and reintegrate people living with

mental illness into the community.

• Ensure a human rights, recovery and person-centered

approach.

• Ensure equity and equality in health/mental health.

• Include mental health in universal health coverage.

• Support governments to implement national policies,

plans and legislation.

• Integrate mental health more seamlessly into NCDs to

reduce morbidity and mortality.

• Utilize strong partnerships – all relevant stakeholders

to work together in reducing stigma and discrimination

and improving mental health literacy.

• Strengthen integrative approaches to implementing

and scaling up high-quality services to individuals

affected by conflict and humanitarian crises.

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FUNDRAISING MASTERCLASS PANEL

Moderator: Dan McCarthy, Senior Director, Lundbeck

Canada

Speakers: Steve Weiss, Vice President, Media Advocacy,

American Heart Association, US; Nikki Bayliss, Head of

Development, Alzheimer’s Disease International, UK

As Dan quoted Hank Rosso, “Fundraising is the gentle art of

teaching the joy of giving.” But according to both a recent

Patient View survey of patient organizations around the world

and a show of hands, groups within the field of brain health

believe more could be done in the area! Steve and Nikki shared

their insights.

“We can’t overemphasize the importance of diversification when it comes to fundraising.

Don’t put all your eggs in one basket!”

Five principles to a good fundraising strategy

Steve Weiss, Vice President, Media Advocacy, American

Heart Association, US

Steve shared five principles of good fundraising:

1) Embedding the funding strategy in the organization’s

strategy (current status analysis, long-term objectives, and

barriers and drivers to success).

2) Putting a process in place that treats fundraising as a daily

part of the organization’s remit instead of treating it as an add-

on. A fundraising process should include prospecting (identify-

ing and analyzing donors’ needs and what to offer them),

planning and reaching out, and cultivating and engaging donors.

3) Ensuring open, honest dialogue with funders about

expectations, respective roles and reporting process.

4) Being transparent about your funding sources with a sound

reporting system.

5) Diversifying funding through an ideal, sustainable mix of

donors to ensure long-term sustainability.

Steve went on to give examples of different sources of funding,

while underlying the importance of independence.

1) Corporations: EURORDIS was shown as a great example

on how to manage corporate funding successfully by ensuring a

sound and transparent policy is in place; by securing that

corporate funders represent circa only 30% of their donor-mix

and by including companies beyond the healthcare sector

alone; and by leveraging in-kind support from corporations

within their area of expertise (e.g. PR firms helping with PR

projects, etc).

2) Individuals: people want to help, be involved and to donate!

In the age of Instagram and of the ”selfie”, give the opportunity

to individual donors to do something fun and memorable that

they can post on their social media channels. For example, the

Irish depression association, Aware asks people to link their

climb or a skydiving jump to donations to Aware. The Stella

Foundation in South Korea was shown as another example of

an organization that puts together fun events while leveraging

the Stella Foundation’ brand and merchandise, therefore also

providing a sense of community amongst its participants! In

addition, the Stella Foundation has incorporated their online

shop in their website directly. This is a win-win all around: it

spreads the word and fights stigma; increases brand awareness

for the organization and generates additional funding!

Finally, in many countries, individuals can donate to specific

charities in their tax return forms – taxes are compulsory, and

this is a great way to position your organization on every

citizen’s radar! For example, in Portugal, individuals can either

donate 0.5% of the taxes they owe the state to an NGO

(including mental health organizations) or contribute via the tax

return form from their own pocket. The mental health

organization “Encontrar-se” (a member of the World Federation

for Mental Health), is currently featuring on the list of the 3000

Portuguese NGOs benefiting from this tax-related funding

opportunity. In Ireland, if individuals donated to Aware they can

potentially get tax relief. Similar provisions also exist in France

and the association PromesseS is leveraging them too.

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3) Public sector: while having the advantage of allowing to

cover core costs and sometimes providing substantial funding,

the process can be somewhat lengthy and burdensome from an

administrative perspective. It can also be difficult to manage

potential conflict of interests and be vulnerable to policy-change.

4) Trusts and foundations: foundations are generally seeking

to give money away! It is important though that you assess the

return on investment (ROI) of sending an application, i.e. how to

balance the potential size of the funding with the resources

needed for applying and reporting. The Wellcome Trust or the

Calouste Gulbenkian Foundation were shown as examples of

Trusts and Foundations with an interest in mental health. But

there are many more to be explored in the world and in Europe!

Moving on to how to make the best fundraising case, Steve

stressed that, taken into account different charity organizations

are competing for funding and are often targeting the same

funders with similar projects, it is therefore crucial, that

advocacy groups identify their unique selling proposition (USP).

For that purpose, three questions should be answered:

• What do you do well?

• What your donors want?

• What do your competitors do well?

“Your sweet spot should be the intersection between what you do well (better than your competitors) and what your donor wants”

Finally, Steve emphasized the importance of answering the

question “what’s in it for them” (WIIFT) when approaching

potential donors. To do that, ask yourself three questions:

• What are the funder’s concerns: what are they selling,

what are the barriers to what they are selling, etc?

• How does the funder define value?

• How can the funder shine?

“Data alone does not drive contributions”

Avoid these 5 mistakes in fundraising:

1. Heavy reliance on small donors supporting small projects with little return on investment for your organization 2. No easy access to old proposals you can leverage and learn from 3. Budget proposal lacks clarity and transparency and does not include fees or costs 4. Generic proposal that neither differentiates enough (Unique Selling Proposition, i.e. USP) nor focuses on the What’s In It For Them, i.e. WIIFT 5. Forget to apply the 80%-20% rule (roughly 80% of donations are given by 20% of donors; focus on growing those 20%) References:

• 5 Common Fundraising Mistakes Even INGOs Make,

Proposals for NGOs

• 10 Nonprofit Fundraising Mistakes to Avoid, Donorbox

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FUNDRAISING MASTERCLASS PANEL (CONTINUED)

Our fundraising journey at Alzheimer’s Disease

International (ADI)

Nikki Bayliss, Head of Development, ADI, UK

Nikki, from Alzheimer’s Disease International (ADI), shared

ADI’s fundraising journey as a case study on how the advocacy

group embraced diversification to secure independence from

one donor or one industry sector alone.

Overall, since 1984, ADI is on an upward trajectory and has

been successful in generating increasingly higher levels income,

beyond its membership, via corporate partners and through

ADI’s international conference.

As a membership organization, all ADI’s members provide

annual dues, which support regional meetings, training and offer

one to one support as required. The dues are aligned to the size

of the member association and are scaled accordingly. ADI will

continue to generate income from members, but this will plateau

as the majority of new member associations will be small

organizations. To avoid “fundraising cannibalization” between

ADI and member associations, ADI focuses on pitching to

multinationals and leaves corporate national subsidiaries and

local companies to its members.

With regards to corporate funding, ADI has enjoyed long

standing support from many pharmaceutical companies and will

continue to do so. But just as there is a risk in being too

dependent on one funder, there is also a risk in being too

dependent on one industry sector. Hence, ADI has embarked

on a strategy aiming to branch out to new industry sectors (e.g.

care providers, tech companies, nutrition, financial planning),

trusts and foundations a much broader range of supporters, e.g.

partnership with the London School of Economics (LSE) that

enabled ADI to access institutional funding.

“But just as there is a risk in being too dependent on one donor, there is also a risk in being too

dependent on one industry sector.”

Although, ADI does not yet have full capacity to focus on

individuals as funders, ADI is launching a 5 000-employee

multinational company partnership to encourage employee

fundraising to support World Alzheimer’s Month. The income

generated will be split 50%-50% with ADI’s members!

“Underpinning this is a planning framework that has clear targets for approaching prospects each month, an annual calendar that aligns our fundraising with the delivery of our work, and a

process of constantly evaluating our ability to engage our supporters in the right way.”

Read more about fundraising:

• Templates for Developing a Fundraising

Strategy, ELINET

• Fundraising Startegies and Best practice

sharing, ELINET, 2015

• Building a Digital Fundraising Strategy,

Emily Davis Consulting, 2016

• 10 Tips for Setting up a Merchandise

Program for your NGO, Fairware, 2013

• Benchmarking the Patient Movement,

Patient View, 2018

• What's Your Donor Value Proposition?

GuideStar blog by Candid, 2009

Potential websites to help with

fundraising, including merchandise:

• Fundly.com

• Gofundme.com

• Everyaction.com

• JustGive.org

• Bonfire.com (specialises in merchandise)

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FUNDRAISING MASTERCLASS WORKSHOP

Participants were split into small groups for a Fundraising

Masterclass Workshop inspired by the TV show Dragon’s

Den/Shark Tank/Lion’s Dungeon. Each group’s task was to

prepare a mock-up fundraising five-minute pitch to present to a

panel of potential funders, who all had different personas and

concerns. Each pitch presentation was followed-up with a

discussion with the panel of funders and the rest of the

audience.

Pitches presented by the groups:

• Anti-stigma podcast campaign: “Turning a million voices

into One Voice”.

• Anti-stigma awareness campaign on schizophrenia.

• Anti-stigma campaign on “Grand Talk” to facilitate inter-

generational communication on brain health with toolkits.

• Anti-stigma awareness campaign: “We are all the same”.

• Anti-stigma campaign: “Change your view on Brain.

Health: if you’re going to talk the talk, then walk the

walk”. Walks on depression, oncology and schizophrenia

with a final event with signage of a petition.

• Speed-friending campaign: focus on loneliness and

depression with speed-dating format to meet peers.

• Anti-stigma campaign: “More than a number” in

partnership with Finnish hockey players and treating

funders as more than a number too.

• Local Clubhouse: integrated at the heart of the city, with

magic music room, retreat area and community space.

• Clubhouse setup: a clubhouse with activities targeted at

policy-makers.

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FROM NOISE TO VOICE: RAISING AWARENESS

TOGETHER

Moderator: Almudena Fraga, Global Customer Engagement,

Lundbeck, Denmark

Speakers: Simona Bellagambi, Board Member, EURORDIS

Rare Diseases Europe, Italy; Nikki Bayliss, Head of

Development, Alzheimer’s Disease International, UK; Steve

Weiss, Vice President, Media Advocacy, American Heart

Association, US

Following the viewing two videos on World Mental Health Day,

Almudena opened the session by setting the scene with regards

advocacy groups’ usage of online resources and highlighting

some social media trends: in terms of content, make sure it is

tailormade to your audience and that it naturally creates

engagement (rather than “begging” for it and spamming your

audience with calls to action!). The more relevant your content

is, the more your reach will be organic (i.e. unpaid for).

Internally, leverage your employees/volunteers’ stories.

Externally, partner with other groups and influencers. In terms of

format, video is king and subtitles a must (especially as most

people view videos with the sound off). The exception to the

video rule is Instagram, which is a highly visual platform that

works primarily with pictures. All content across the platforms

should be suitable for mobile phone. More specifically:

• Facebook: Third most searched website, with 50% of its

users logging in daily for an average of 30 minutes. For

advocacy groups, Facebook is a platform to engage

membership, fundraise and raise awareness. 30% of

Facebook’s ad audience is aged 25-34. In many

countries, Facebook has fundraising tools at disposal.

• YouTube: Second most used website after Google. It is

mostly used for learning, relaxation and entertainment.

35+ and 55+ are the fastest growing YouTube

demographics. 20% of YouTube users will leave a video

if it has not hooked them in the first 10 seconds.

• Twitter: Government affairs and media platform. Many

advocacy groups leverage to interact with politicians.

• Instagram: Users <35 make up more than 70% of

Instagram’s active accounts worldwide. 81.6% of people

click on ads on Instagram, which according to research,

is great for the organizations who seek donations.

The floor was then opened to the panelists who focused on

different aspects and learnings of their awareness.

Rare Disease Day: Bringing the rare disease community

together beyond fragmentation

Simona Bellagambi, Board Member, EURORDIS-Rare

Diseases Europe, Italy

Simona explained that, similarly to brain diseases, although

many of the rare diseases are very different from one another,

the community faces many of the same challenges – including

isolation, barriers to participating in society and a heavy burden

on families. Launched in 2008, Rare Disease Day was

established to bring together the community and find common

ground with patient-led messages relevant across borders and

diseases! The process starts early, and each year, the

campaign key messages are co-created with the national

member organizations, at least 9 months in advance.

DAY TWO

Day two of the summit started by

recognizing winners of the Fundraising

Masterclass Workshop. It was difficult

to choose from the many great mock-up

fundraising pitches.

Afterwards, we focused on raising

awareness, with a panel of three

speakers, followed by three parallel

awareness campaign workshops.

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Rare Disease Day has a strong visual identity and unifying

brand, which helps bring the community closer together. It is

used in all types of Rare Disease Day events from advocacy

meetings to fundraising events. All the campaign branded

assets are free to download from the website and many

materials can be adapted locally.

“We lead Rare Disease Day, but we don’t own it!”

Rare Disease Day is celebrated in more than 100 countries with

thousands of events worldwide from lighting up the Empire

State Building to a face-paint social media campaign with the

EU Commissioner for Health. Looking ahead at Rare Disease

Day 2020, the priorities are:

• Building a strong and active grassroots rare disease

community

• Focusing on strategic partnerships and fundraising

capacity-building

• Integrating policy and communication into the

campaign

• Harnessing youth mobilization and social media

“Co-creation is key. Our materials are free and can be adapted at local level”

World Alzheimer’s Month: preparation is everything

Nikki Bayliss, Head of Development, Alzheimer’s Disease

International, UK

Last year’s World Alzheimer’s Month included events in 84

countries, such as memory walks for fundraising, buildings lit up

to raise awareness, events in public spaces to celebrate

dementia-friendly communities and memory cafés. But it is

mainly a digital campaign. Planning for the following year’s

campaign already starts during the current campaign. The

agreement on the theme for the year ahead – is done exactly 12

months beforehand.

Nikki shared the year-long timeline for planning and executing

World Alzheimer’s Month (WAM). Milestones include:

• Assembling the World Alzheimer Report, which is at

the heart of the campaign.

• Approaching potential sponsors.

• Developing downloadable campaign assets.

• Creating a media guide with tips and guidance

• Launching the campaign website.

• Providing a “one-stop shop” toolkit that details how to

support and design one’s own campaign.

• Holding webinars to train members (thanks to pro-

bono PR agency).

• Making final materials available for download in

multiple languages.

• Holding World Alzheimer’s Month – and

simultaneously re-start the cycle by selecting the

future theme of the WAM campaign.

“We send out an event form to all of our

members so that we can collate the events that will take place throughout September”

Once the assets are ready, members are urged to translate and

are invited to training webinar sessions. ADI’s campaign website

also includes the opportunity for campaign leads to submit and

advertise their WAM initiative on ADI’s global event calendar.

Read more on about social media trends • Top 20 Social Networks by Active Users, Inner Architect,

2019

• Ten Social Media Trends that will matter the most in

2019, Search Engine Journal, 2019

Read more about Facebook • Facebook Social Good

• Facebook by the Numbers: Stats, Demographics & Fun

Facts, Omnicore, 2019

• The Top 20 Valuable Facebook Statistics, Zephoria, 2019

• 41 Facebook Stats That Matter to Marketers in 2019,

Hootsuite, 2019

Read more about YouTube • 10 Tips and Tricks to Improve Your YouTube Content in

2019, Quick Sprout, 2019

• 22 YouTube Stats That Matter to Marketers in 2019,

Hootsuite, 2019

• 52 Fascinating and Incredible YouTube Statistics,

Brandwatch, 2019

• YouTube by the Numbers: Stats, Demographics & Fun

Facts, Omnicore, 2019

Read more about Twitter • How to Get Followers on Twitter, Lifewire, 2019

• 28 Twitter Statistics All Marketers Need to Know in 2019,

Hootsuite, 2019

Read more about Instagram • Instagram for Business

• Instagram Trends 2019, The Preview App, 2019

• Top Instagram Demographics That Matter to Social Media

Marketers, Hootsuite, 2019

• 10 Secrets to Being Awesome on Instagram for Nonprofits,

The Balance Small Business, 2019

• 49 Incredible Instagram Statistics you Need to Know

Brandwatch, 2019

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WORLD HEART DAY: MORE THAN AN AWARENESS DAY –

HOW TO MAKE WORLD HEART DAY EVERY DAY?

Steve Weiss, Vice President, Media Advocacy, American

Heart Association, US

Led by the World Heart Federation, World Heart Day unites

people in the fight against cardiovascular disease and for heart-

healthy living. To drive the campaign worldwide, a steering

committee of member organizations is appointed.

In 2018, it resulted in 671 known activities, >9,000 customized

posters, and > 42,000 assets downloaded.

The campaign slogan “For my heart, for your heart, for all our

hearts”, encourages people to make a specific promise to

improve heart health. The campaign also focuses on recruiting

“heart heroes,” who can serve as ambassadors.

Steve shared ideas for activities including activities targeted at

children, e.g. conduct letter-writing campaigns to local health

officials, draw get-well cards for recovering heart attack patients.

In addition, he listed some tips for successful awareness

campaigns:

• Keep it simple – simple messages, goals.

• Make it fun – don’t take it too seriously.

• Be inclusive – invite others to join you.

• Tell stories – make it about people, families.

• Make it easy – simple instructions, toolkits, templates.

• Allow for creativity – give your partners/members the

ability to implement new ideas.

• Make it sustainable – carry it over throughout the year.

“Make the awareness live around the year, and not just on one day.”

Tips to leverage your awareness day every day

1. Keep it relevant all year round

• Weave the theme into everything you do

• Emphasize that the challenges are every day,

not just one day

2. Make it a (friendly) competition

• Give volunteers an incentive to fundraise, post,

hold events, get attention

3. Appoint ambassadors

• Recognize your most active volunteers

• Empower them to carry the message on

throughout the year

4. Maintain the narrative on social media

• Convene a social media working group

• Organize collective social media efforts on a

regular basis

• Urge partners to share stories, messaging

5. Develop a promotional calendar

• Leverage events, moments throughout the year

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AWARENESS CAMPAIGN WORKSHOPS: SPEAKING WITH

ONE VOICE

Following the panel discussion, all attendees were split into

three parallel workshops. Within each workshop, each group

had to put together a narrative and a message house on their

topic. Each group presented their work to the workshop plenary

and everyone voted for the best communication narrative.

Workshop on Brain Health

• “No wellness without brain wellness”: investing in the

wellbeing of the population is the cornerstone of a society.

National policy impact. Economic case.

• “Employment allows people to stay well”: campaign

towards Italian policy-makers communicating on how to

avoid isolation, unemployment and unnecessary burden

through community support and clubhouses.

• “A better life for elderly people”: campaign on better

collaboration between hospitals, doctors, nursing homes

and caregivers to give the aging population better lives.

• “Better lives”: campaign on symptoms and treatments,

using patient cases and statistics as arguments.

Workshop on Mental Health Promotion

• “Changing attitudes: Let’s start creating prosperous

societies”: focusing on policy-makers and how without a

clear understanding of mental health there cannot be

sustainable development to live up to the Sustainable

Development Goals.

• “Training primary healthcare professionals”: to

recognize, refer and manage mental disorders and identity

suicidal behavior as well as to convey hope in their

communication with their patients with chronic disease.

• “Workplace Health is Mental Health”: focusing on policy-

makers and businesses and advocating for financial

incentives and promote best practices to help create a

culture of mental health at work.

• “Take the First Step to Mental Health”: recovery is one

phone call away – every dollar invested creates better

health outcomes so make your donations work.

Workshop on Suicide Prevention

• “Young Heart”: a social media campaign coupled with

educational seminars for parents to increase their know-

ledge of issues around suicidal behavior among youth.

• “Save Suicide Prevention Reporting”: to educate people

how to communicate safely and responsibly about suicide.

• “Save a City – Just Ask”: losing 800 000 people to

suicide is the equivalent to “losing” a city every year, e.g.

Copenhagen. The campaign would illustrate cities being

“wiped” out every year. It would ask politicians “can we

afford to lose Copenhagen?”, it would encourage. families

to “Just ask – and be attentive” and healthcare

professionals to implement guidelines and communication.

• “Save Me – I’m Fine”: whose logo is an ambigram that

retains meaning when viewed from different angles; meant

to visualize the hidden pain.

CLOSING REMARKS

Before the closing remarks, a video from the Italian organization

“Coordinamento Toscano” was played, showcasing the

celebrations of World Mental Health Day 2018 in Italy. The

meeting was closed with a call to continue working

collaboratively in implementing the “ABC model for mental

health” and an invitation to sing along, with one voice, the song

“You’ve Got a Friend” by Carole King.

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THANK YOU FOR JOINING US!

It has been a pleasure spending two days with such committed

delegates from advocacy groups around the world passionately

working towards the same goal: to improve and restore brain

health. Thank you so much for joining us. Along with this report,

you will find the speakers’ slides, the workshop templates and

the participation list. You are free to use the templates.

We hope to see you at next year’s #1VoiceSummit.

“I find that we have the same problems – every organization talks about the same things that we talk about in our job. Somehow it was a good feeling – that we are not alone.” Olavi Sydänmaanlakka, The Finnish Central Association for Mental Health, Finland “The summit is helping me know how to organize our resources to help patients. Most of our members are doctors, so we are not good at how to train people, how to fundraise, how to deal with the media. I think this conference helps me a lot.” Sun Yongan, Alzheimer’s Disease Chinese, China “I feel like I learned so much about which social media platforms are the most popular across the world. I’m very familiar with what’s popular in Korea . . . so it was really cool to see which ones are the most popular across the world. I can bring that knowledge back if we want to grasp bigger global ideas.” Kathryn Bokyung Park, Stella Foundation, South Korea “I’m really enthused about the energy, the ideas, the personnel – so much good quality information that’s coming to us… it’s really collaborating and bringing it together for us. And then being able to explore ideas and expand them in the workshops, that’s been really valuable. It’s been a really good toolkit.” Jacinta Hastings, Gamian-Europe, Ireland “Brain health is everyone’s business. It’s good for everyone to put aside our differences and work together.” Porsche Poh, World Federation for Mental Health, Singapore “We want to hear what other organizations have to say and to network, with a view toward collaboration in the future.” Ariadni Ntinou, EPIONI Greek Carers Network, Greece “The networking, the getting to know people, the partnership is important for us to get our job done in mental health, and I think this is a great opportunity to allow people to come together and learn in the process.” Deborah Maguire, World Federation for Mental Health, US

The #1VoiceSummit brings international and local advocacy

groups that are passionate about improving brain health. It

provides an opportunity for attendees to:

• Meet peers and learn from each other’s expertise and

experience.

• Identify potential areas of collaboration with one

another.

• Hear about new advocacy insights to help us build

sustainable and stronger advocacy communities.

Lundbeck is dedicated to restoring brain health so that every

person can be their best. We believe that only by working

together will we be able to drive the change needed to address

the health inequalities prevailing in this disease area.

The #1VoiceSummit has become a natural extension of our

work to improve the lives of people with poor brain health as

well as their families, physicians and the community around

them. We call it Progress in Mind.

H. Lundbeck A/S

Ottiliavej 9

2500 Valby

Denmark

Corporate Communication

Tel. +45 36 30 13 11

information@lundbeck.com

www.lundbeck.com

CVR number 56759913

Please share your thoughts and pictures online

by using the hashtag #1VoiceSummit