LASA Congress Adelaide, 2019

Kim Thoday, Educator and Senior Consultant, Meaningful Ageing Australia

2

Mission To enable access to high quality pastoral and spiritual care for all older people in Australia

Unique, effective resources & education

Advocacy & engagement

Member snap shotArcare

Anglicare SA

Baptcare Vic/Tas

BaptistCare NSW/ACT; WA

Bethanie WA

Blue Care Qld

Bupa Care Services Australia

Calvary Aged Care & Retirement Services

Carrington Centennial Care NSW

Catholic Healthcare Ltd NSW

Churches of Christ Care Qld

ECH

Echuca Community for the Aged

Eldercare Incorporated SA

Kalyra Communities (James Brown)

Maroba Caring Communities NSW

McLean Care

Mercy Health

Mercy Community Services SEQ

Kirkbrae Vic

lllawarra Retirement Trust (IRT) NSW

Outlook Gardens Vic

Multicultural Aged Care Inc, Geelong

Prescare Qld

Resthaven Incorporated SA

Roper Gulf Regional Council, NT

Royal Freemasons’ Benevolent Institution

Southern Cross Care SA/NT, Broken Hill, NSW, Qld, Tas

St Basil’s Homes

St Hedwig Village

SummitCare NSW

The Salvation Army Aged Care Plus NSW

Uniting NSW/ACT

Uniting AgeWell Vic/Tas

Villa Maria Catholic Homes

Warramunda Village

Research Consultants

Ann Harrington Associate Professor - Flinders University

Bruce Rumbold Director - La Trobe University Palliative Care Unit

Bruce Stevens Professor - Charles Sturt University

John Swinton Professor - University of Aberdeen

Richard Egan Senior Lecturer – University of Otago

Richard Fleming Professor – University of Wollongong

Rosalie Hudson Associate Professor – University of Melbourne

What is Spirituality?

What immediately comes to mind for you?

6

Spirituality:

The sphere of our

ultimate concerns

Mediated through

Relational:

Community

Intimacy

Service

Nature

God/Spirit Political Activism:

Social Justice

Environment

Gender

LGBTI

New Age:

Inner Journey

Festivals (Burning Man)

Gnostic groups

Astrology

Science Sport

The Arts

Music, art, poetry, drama,

dance

Counter-cultural:

Communal

Alternative lifestyle

Sectarian

Eastern:

Yoga

Meditation

Mindfulness

Monastic

Religion:

Worship

Scripture

Welfare

Theology

Doctrine

© 2016 Kim Thoday, Meaningful Aging Australia – Educator/ Senior Consultant

Spirituality is the way we seek and express meaning and purpose; the way we experience our connection to the moment, self, others, our world and the significant or sacred.

Spirituality VideoSpirituality is more than religion: Meaningful Ageing Australia

New Aged Care Standards

New Aged Care Standards connections with a spiritual

care approach

• Maintain an older person’s identity (Standard 1)

• Help older people to make connections with others (Standard 1)

• Partner with consumers (Standard 2)

• Optimise health and wellbeing (Standard 2, 3, 4)

• Understand what is ‘right’ for each consumer (Standard 3)

• Understands each person’s needs, goals and preferences (Standards 3, 4)

• Optimise quality of life (Standard 4) including Requirement:

(4.2) services and supports for daily living promote each consumer’s emotional, spiritual and psychological well-being

• Creates a sense of belonging, safety and comfort(Standard 5, supported to give feedback 6)

• Have a workforce that is kind, caring and respectful of each person’s identity, culture and diversity (Standard 7)

• Risk management supports consumers to live the best life they can (Standard 8)

Aged Care Quality and Safety CommissionGuidance and Resources for Providers to support the new Aged Care Quality Standards January 2019

“Consumers who need help to stay at home or who live in residential care could also be experiencing a reduced sense of purpose and meaning. Approaches that promote emotional, spiritual and psychological well-being will minimise the risk of stress, depression or anxiety, and help consumers experience meaning and purpose. This could be through specific pastoral care, cultural, or religious activities that are meaningful to the individual consumer, or through everyday encounters that promote a sense of connection and community…. Promoting empathy, compassion and connection between the consumer and members of the workforce in their day to day interactions, will support this approach.” (p78)

Requirement 4.2 Services and supports for daily living promote each consumer’s emotional, spiritual and psychological well-being.

• purpose and identity p79

• meaningful relationships p80

• meaningful activities p78,79

• connection with other organisations to meet needs for meaning and purpose p85

• organisation’s meaning and purpose p137

Also…

And…

Definition – identity – includes spiritual needs p5

1.1 Consumers’ spirituality accepted p10

2. Consumers say they have been listened to and their care and services are planned around what is important to them, such as …spirituality p31

2.6 How does the organisation monitor that a consumer’s assessment and care planning includes the consumer’s social, cultural, language, religious, spiritual, psychological and medical needs? p31

3.1, 3.2 and 3.3 intent optimising the consumer’s health and wellbeing including spiritual and emotional life p48

timely response at end of life if in spiritual distress p55

4.2 services and supports for daily living…spiritual wellbeing p70

How does the workforce build and maintain trust with each consumer? p77

Do interactions …meet their emotional, psychological and spiritual needs, goals and preferences? p77

How does the organisation help consumers access a diverse range of spiritual care practitioners to meet their needs, goals and preferences? This may include community leaders, cultural or religious communities, chaplains or pastoral care practitioners. p77

And…

Strategic documents, policies and procedures show how the organisation provides services and supports to help consumers’ emotional, psychological and spiritual wellbeing. p78

5.1 Consumers say they have spaces to interact with others and spaces for quiet reflection. They also have spaces for religious or cultural practices and private spaces if they need p97

7.1 Workforce has the right blend of skills p122

7.2 Evidence of the organisation’s recruitment processes that consider value based requirements such as a caring and compassionate nature.p124

7.3 Consumers say the workforce is able to meet their social, cultural, religious, spiritual, psychological and medical care and support needs.p125

And…

https://www.agedcarequality.gov.au/sites/default/files/media/Full%20Standards%20Guidance%201-8%20Updated%20180119.pdf

Message for Boards, CEOs and Executive Staff

ConnecToA tool for spiritual screening & exploring what is meaningful

Inviting a deeper conversation

Self Reflection

You are going on a journey

…maybe never to return home, and could only take three things with you, what would they be?

Why?

The process of transition into a residential facility.

Imagine yourself in the situation

What might you be feeling?

What things confront you?

Transitioning from the familiar to the unknown is a great challenge

Remember for new residents, it’s a strange place. They are confronted by all these new faces. You might have to introduce yourself a few times! Introduce yourself and your role.

Its all about the R word: RELATIONSHIP

But relationships take time and: listening, observing, understanding

and kindness; when vulnerability meets kindness, restoration begins

Ultimate concerns begin to emerge:

Identity, Relationships and Belonging

Meaning and Self-worth

A Message for Personal Carers

Meaningful Ageing Australia resources to support your work

Most are free for members

Thank you especially to:- the older people who reflected on their experience of

frailly with us: May, Dennis, Margaret, John, Helen and Rosa

- the following organisations for their input and feedback: Aurrum Aged Care, Baptcare,Brightwater, Churches of Christ Care QLD, Multicultural Services Centre of Western Australia, Nurse Watch, Tanunda Lutheran Home, The Salvation Army Aged Care Plus and Uniting AgeWell

- Meaningful Ageing Australia Research Consultants Bruce Stevens, Bruce Rumbold, John Swinton, Richard Egan; and also to Elizabeth MacKinlay.

Launch 2019

“very valuable”

“all staff and volunteers should go through this”- trial participants

Spiritual Care Considerations

• Aboriginal and Torres Strait Islanders• Catholics and end of life care• Intellectual disability• Jehovah’s Witness spirituality • Jewish end of life care• Lesbian, gay, bisexual older people• Muslims in home based care• Muslims in residential aged care• Staff mutual support with grief • Transgender and intersex older people• Transition into residential aged care• If someone says they want to die…and more

“Thank you for your outstanding work. Your resources haves become a fundamental part of our work.”Member survey Nov 2017

Intergenerational Reminiscence:A Leader’s Guide for Aged Care Organisations & Secondary Schools. Our 2016 Award winner

Dementia-specific Christian Worship Services Handbook

“Since beginning with Dementia Services, our staff are noticing a reduction in disruptive behavioursat meal times and less anxiety between residents.”

Spirituality of Dying Workshop: Facilitator’s Guide

• Introduction

• Exploring personal experiences of dying and their impact

• Identifying the terminal phase of dying

• Refreshed understanding of spirituality and spiritual care

• Cultural considerations

• Communication skills with a focus on listening

• Resources

• Conclusion including self-care ideas

• Evaluation

Partners: UnitingCare Qld, Uniting NSW/ACT, Uniting Vic/Tas, Uniting AgeWell

Due for launch 2019

Hard copy with PPT

Tech Connect: Staying Meaningfully Connected in Aged Care – A Leader’s Guide

“Very clear presentation, and easy to follow. The document articulates well both the rationale and the practical application aspects. It also makes for good reading to have Pat’s story woven throughout” - Member review

Modules available for you to use, or we can deliver them:

- Qualities and values- Presence and listening skills- Understanding spirituality and religion- Learning about the relational spirituality model- Working with the relational spirituality model- Spiritual care for the person with dementia- Spiritual Care as intentional, empathic, responsive listening - Listening to stories

“This manual lays it out so clearly that even the newest person creating a robust and high functioning spiritual care volunteer team has every chance of success”- Volunteer Program Manager

Launched at Parliament House Canberra by Hon Ken Wyatt, Minister for Aged Care & Senior Australians

Prayers and poems for the bedside

Newsletter – open access

• Monthly public newsletter plus occasional other updates

empowerment campaign – questions for aged care

Select Page

See me. Know me.

I believe family is the most important thing.

If you’re looking for aged care, make sure they not only see you but know you

As we age, some people only see lines and grey hair rather than the

stories, feelings, beliefs and experiences that make us who we are.

When choosing the right aged care it’s important to find an organisa-

tion that will see beyond the surface and get to know who you are –

know what gives you purpose, know what you believe and know what

connects you to life. If you or a loved one are looking for the right

aged care make sure they not only see you but know you.

www.seemeknowme.org.au

References

Berman, A, Snyder, S, Levett-Jones, T, Dwyer, T, Hales, M, Harvey, N,

Luxford, Y, Moxham, L, Park, T, Parker, B, Reid-Searl, K & Stanley, D (eds.)

(2012). Kozier and Erb's Fundamentals of Nursing, Vols 1-3, 2nd Australian

ed, Pearson, Australia.

Fletcher, J. (2016). Understandings and perceptions of spirituality held by

multidisciplinary professionals involved in a community-based palliative care

organization: Implications for professional practice. (Unpublished doctoral

dissertation). Australian Catholic University, Aquinas Campus: Ballarat,

Australia.

Meaningful Ageing Australia (2016). National Guidelines for Spiritual Care in

Aged Care. Meaningful Ageing Australia: Melbourne.

Puchalski, C., Ferrell, B. (2010). Make health care whole: integrating

spirituality into patient care. West Conshohocken: Templeton Press.

Further reading• Agli, O., Bailly, N. Ferrand, C. (2015). Spirituality and religion in older adults with dementia: a systematic review. International Psychogeriatrics. 27(5):715-725

• Ballard C.G., O’Brien J. (2001) Dementia: Management of Behavioural and Psychological Symptoms. Oxford University Press, Oxford.

• Beuscher, L. and Grando, V. T. (2009). Using spirituality to cope with early-stage Alzheimer’s disease. Western Journal of Nursing Research, 31: 583–598

• Carr, T., Hicks-Moore, S., Montgomery, P. (2011). What’s so big about the ‘little things’: A phenomenological inquiry into the meaning of spiritual care in dementia. Dementia, 10(3) 399–414

• Daly, L., & Fahey-McCarthy, E. (2014). Attending to the spiritual in dementia care nursing. British Journal of Nursing. 23(14), 787-791.

• Katsuno, T. (2003). Personal spirituality of persons with early-stage dementia. Dementia: The International Journal of Social Research and Practice. 2:315–335

• Killick J., Allan K. (2001). Communication and the Care of People with Dementia. Open University Press, Buckingham.

• Killick, J., (2004). Dementia, Identity, and Spirituality, Journal of Religious Gerontology, 16:3-4, 59-74.

• Lawrence R.M. (2003). Aspects of spirituality in dementia care: when clinicians tune into silence. Dementia. 2:393–402

• Koenig, H. (2007). Religion, spirituality and medicine in Australia: research and clinical practice. Medical Journal of Australia, 186(10): S45-S50

• MacKinlay, E. (2012). Palliative Care, Ageing and Spirituality: A Guide for Older People, Carers and Families. London: Jessica Kingsley

• MacKinlay, E., & Trevitt, C. (2010). Living in aged care: Using spiritual reminiscence to enhance meaning in life for those with dementia. International Journal of Mental Health Nursing. 19(6):394-401

• Shamy E. (2003) A Guide to the Spiritual Dimension of Care for People with Alzheimer’s Disease and Related Dementias. More Than Body, Brain and Breath. Jessica Kingsley Publishers, London & New York.

• Snyder L. (2003) Satisfactions and challenges in spiritual faith and practice for persons with dementia. Dementia. 2:299-313

• Vance D, Moore B, Farr K, Struzick K. (2008) Procedural memory and emotional attachment in Alzheimer disease: implications for meaningful and engaging activities. J Neuroscience Nursing. 40:96-102

Stay in touchadmin@meaningfulage.org.au

03 8387 2274

Facebook @MeaningfulAgeing

Twitter @MeaningfulAge

seemeknowme.org.au