3
Home Dialysis Central (www.homedialysis.org ) You can find resources and links to websites with information on everything you need to know about home dialysis, including home dialysis equipment, dialysis facilities, and vascular access and buttonhole technique. Life Options (www.lifeoptions.org ) This website lets you read and print the “In Control” newsletter published by Nephrology News & Issues magazine. There are many other resources available on this website, including resources in Spanish. Kidney School (www.kidneyschool.org ) Learn more about different dialysis methods with this “easy to read” website that tells you about kidney failure, treatment options, diet, exercise, and working with kidney disease. “Kidney School is the site for information, inspiration, motivation, and empowerment.” The National Kidney Foundation (NKF) (www.kidney.org ) You can find up-to-date information on kidney disease, patient and professional education, dialysis options and news and events in the renal community. The NKF also publishes the well known “Family Focus Newsletter”. American Association of Kidney Patients (AAKP) (www.aakp.org ) This website, developed by patients, offers education and support for people with kidney disease. They want to help you become more active in planning and managing your treatment. The Renal Support Network (RSN) (www.homedialysis.org ) You can find the “Live & Give Newsletter” and YouTube mini-movies about kidney failure. This organization offers many programs and resources for people with kidney disease. Kidney Care Partners (KCP) (www.kidneycarepartners.org ) Look here to find answers to many of your questions. This website, sponsored by patient advocates, dialysis professionals, care providers and manufacturers, is designed to improve quality of care for people with kidney disease. Home Dialysis Websites for Professionals

List of Professional Resources

Embed Size (px)

Citation preview

Page 1: List of Professional Resources

Home Dialysis Central (www.homedialysis.org)You can find resources and links to websites with information on everything you need to know about home dialysis, including home dialysis equipment, dialysis facilities, and vascular access and buttonhole technique.

Life Options (www.lifeoptions.org)This website lets you read and print the “In Control” newsletter published by Nephrology News & Issues magazine. There are many other resources available on this website, including resources in Spanish.

Kidney School (www.kidneyschool.org)Learn more about different dialysis methods with this “easy to read” website that tells you about kidney failure, treatment options, diet, exercise, and working with kidney disease. “Kidney School is the site for information, inspiration, motivation, and empowerment.”

The National Kidney Foundation (NKF) (www.kidney.org)You can find up-to-date information on kidney disease, patient and professional education, dialysis options and news and events in the renal community. The NKF also publishes the well known “Family Focus Newsletter”.

American Association of Kidney Patients (AAKP) (www.aakp.org)This website, developed by patients, offers education and support for people with kidney disease. They want to help you become more active in planning and managing your treatment.

The Renal Support Network (RSN) (www.homedialysis.org)You can find the “Live & Give Newsletter” and YouTube mini-movies about kidney failure. This organization offers many programs and resources for people with kidney disease.

Kidney Care Partners (KCP) (www.kidneycarepartners.org)Look here to find answers to many of your questions. This website, sponsored by patient advocates, dialysis professionals, care providers and manufacturers, is designed to improve quality of care for people with kidney disease.

The Nephron Information Center (www.nephron.com)This website offers many resources for the nephrology community. Articles like “Zen & the Art of Dialysis at Home” discuss the home dialysis option and how it has impacted quality of life. There is also a dialysis facility locator to help you find facilities offering home options.

Websites supported by Dialysis Corporations:Davita (www.davita.com), Dialysis Clinic, Inc. (www.dciinc.org), Diversified Specialty Institutes (www.dsi-corp.com), Fresenius Medical Care (www.fmcna.com), North Shore-Long Island Jewish Health System (www.northshorelij.com), Quotidian Home Dialysis (www.quotidianhomedialysis.com), Renal Advantage (www.renaladvantage.com), Wellbound (www.satellitehealth.com/wellbound).

Home Dialysis Websites for Professionals

Page 2: List of Professional Resources

Agraharkar, M., Patiovany, M., Henry, S., & Bonds, B. (2003). Promoting use of home dialysis. Advances in Peritoneal Dialysis, 19:163 – 7.

Anonymous. (n.d.). Bibliography of literature on the clinical aspects of daily and nocturnal hemodialysis (abstracts provided when available). Available from: http://www.homedialysis.org/pros/links/ under the “Clinical Outcomes” section.

Coupe, D. (1998). Making decisions about dialysis options: an audit of patients’ views. EDTNA ERCA Journal, Jan-Mar; 24(1): 25-6, 31.

Dawborn, J. K. (1976). Home dialysis and renal transplantation in the management of chronic renal failure. Australian Family Physician, Nov; 5(10): 1343-6, 1350.

Dawborn, J. K. & Heale, W. F. (1976). Dialysis in the home. Medical Journal of Australia, Feb 7; 1(6): 156-60.

Dimkovic, N. & Oreopoulos, D. G. (2000). Chronic peritoneal dialysis in the elderly: a review. Peritoneal Dialysis International, May – June; 20(3): 276-83.

Elizabeth, J. L., Hanna, L., Walker, D., Milo, E., Koupatsiaris, T., De Vos, J. Y., Sedgewick, J., Pugh-Clarke, K., O’Kane, F., Treloar, G., Pegoraro, M., Marti, A., Muroma-Karttunen, R., Murcutt, G., Shaldon, S., Hoenich, N., Brooks, D., Pilley, K., Kuntzle., W., & Goovaerts, T. (2006). Pre-dialysis education and patient choice. Journal of Renal Care, Oct-Dec; 32(4): 214-20.

King, K. (1998). Educational factors affecting modality selection: a National Kidney Foundation study. EDTNA ERCA Journal, July – Sept; 24(3): 27-9.

King, K. (2000). Patients’ perspective of factors affecting modality selection: a National Kidney Foundation patient survey. Advances in Renal Replacement Therapies, Jul; 7(3): 261-8.

Kjellstrand, C. (2007). Bibliography of literature on daily hemodialysis and selected home hemodialysis. Available from: http://www.homedialysis.org/pros/links/ under the “Clinical Outcomes” section.

Kolodner, L., McCuan, E., & Levenson, J. (1976). Screening and supportive techniques for home dialysis in the treatment of renal failure, Journal of the American Geriatric Society, Jan; 24(1): 32-6.

Landreneau, K. & Ward-Smith, P. (2007). Perceptions of adult patients on hemodialysis concerning choice among renal replacement therapies. Nephrology Nursing Journal, Sept-Oct; 34(5): 513-9, 525.

Lockridge, R. S. (2004). Dosing dialysis: is more better? Dialysis in the 21st century. [Powerpoint presentation presented at NKF Sep 19, 2004] Available from: http://www.homedialysis.org/pros/links/ under the “Clinical Outcomes” section.

Marron, B., Martinez Ocana, J. C., Salgueira, M., Barril, G., Lamas, J. M., Martin, M., Sierra, T., Rodriguez-Carmona, A., Soldevilla, A., Martinez, F., & Spanish Group for CKD. Analysis of patient flow into dialysis: role of education in choice of dialysis modality. Peritoneal Dialysis International, Feb; 25 Supplement 3: S56-9.

Meenus, F., Raffestin, P., & Kourilsky, O. (2005). Choice of a dialysis method for patients with kidney failure. Presse Medicine [Article in French – PubMed English translation], Apr 23; 34(8): 596-600.

Mehrotra, R., Marsh, D., Peters, V., & Nissenson, A. R. (2003). Emphasizing patient choice: the modality selection project in ESRD Network 18. Nephrology News & Issues, Nov; 17(12): 30-6.

Mehrotra, R., Marsh, D., Vonesh, E., Peters, V., & Nissenson, A. (2005). Patient education and access of ESRD patients to renal replacement therapies beyond in-center hemodialysis. Kidney International, July; 68(1): 378-90.

Mendelssohn, D. C. & Pierratos, A. (2002). Reformulating the integrated care concept for the new millennium. Peritoneal Dialysis International, Jan-Feb; 22(1): 5-8.

Moran, J. (2007). The resurgence of home dialysis therapies. Advances in Chronic Kidney Disease, July; 14(3): 284-9.

Piccoli, G. B., Mezza, E., Burdese, M., Consiglio, V., Vaggione, S., Mastella, C., Jeantet, A., Maddalena, E., Martina, G., Gai, M., Motta, D., Segoloni, G. P., & Piccoli, G. (2005). Dialysis choice in the context of an early referral policy: there is room for self care. Journal of Nephrology, May-June; 18(3): 267-75.

Pollock, C. A., Cooper, B. A., & Harris, D. C. (2007). Early start peritoneal dialysis. Advances in Chronic Kidney Disease, July; 14(3): e27-e34.

Home Modality Option References

Page 3: List of Professional Resources

Reddan, D. N., Szczech, L. A., Klassen, P. S., & Owen, W. F. Jr. (2000). Racial inequity in America’s ESRD program. Seminars in Dialysis, Nov-Dec; 13(6): 399-403.

Rosansky, S. J. (1983). Choosing therapy for end-stage renal disease. American Family Physician, July; 28(1): 115-24.

Weil, C. M. & Gorgen, D. (1996). Losses, maintenance and recruitment of patients in a peritoneal dialysis home training program. American Nephrology Nursing Association Journal, Feb; 23(1): 29-33.