MARCH 2017

6370 LBJ Freeway

Suite 170

Dallas, TX 75240

(972) 620-7600

www.daps.us

march speaker bio 2

parkinson’s awareness luncheon 2

board member profile 3

memorials, honors, donations 4

daps gems 5

inhaled levodopa 6

executive director’s message 6

group schedules 7

calendar of events 8

INSIDE

Life at the Table

Sandra Lewis combines her culinary expertise with her first-hand knowledge of

working in corporate America to share the “secret sauce” to living a healthy life

filled with meaningful work—life at the table. “I really do believe that the table is

the end game and the kitchen is the gateway to spending time at home,” she

said in her February presentation to the DAPS general membership. She

described her life raising two successful daughters as a single mom. “A family

is defined as ‘those who break bread together,’” she said.

“Gathering at the table connects

us to our past, to our present, to

our future,” said Lewis. “What’s

your favorite cheese?” she

asked.

DAPS members called out:

“Swiss!” “Cheddar!” “Bleu!”

“Brie!”

“Before they were cheeses, they

were the same four ingredients,”

said Lewis. “Milk, salt, rennet,

and culture is all they’re made of—all of them.” The differences in the various

types of cheese are due to the process of cheese making. And that’s a whole

lot like life—the outcome is a result of the process. The same can also be said

of the cheeses you don’t like. “What cheeses do you hate?” asked Lewis.

DAPS members were quick to call out: “Limburger!” “Feta!” “Jarlsberg!”

“Some cheeses are made with cow’s milk, and others use goat’s or sheep’s

milk. The culture is different for the different cheeses too,” she explained.

Before they’re made into cheese, they’re merely ingredients. Just like life,

the ingredients are the same for all, but the process defines the outcome.

In fact, you could say that the four letters in LIFE spell out the process to

finding satisfaction in life.

by Margaret B. Schroeder

Life continues on page 3

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MARCH

general

membership

meeting

Speaker:

Paul Markowitz

Topic:

Navigating the

Senior Care Maze

Monday, March 13, 2017

1:00 p.m.

University Park

United Methodist Church

4024 Caruth Blvd (at Preston)

Dallas, TX 75225

As always, light refreshments

will be served.

We look forward to seeing you!

See page 2 for speaker bio.

PAGE 2 · DAPS · MARCH 2017

MARCH speaker:

Paul Markowitz

Paul Markowitz is the founder of

Senior Living Specialists. Paul’s

services are free of charge to

individuals and families facing the

stressful situation of finding the

appropriate long-term senior living

option.

Paul will relate the touching story

about his 59-year-old mom and

how she inspired him to found his

company. He will also provide an

overview of the different senior

living options available, as well as

the top questions for families to ask

when touring facilities.

Senior Living Specialists has been featured on CBS News, D Magazine, and

The Dallas Morning News in stories about how his experience can help families

through this worrisome and difficult process.

Paul Markowitz with his mother.

Board of Directors

Chad Swank, Ph.D., President

Barbara Glass, Vice President

Ann Heidger, Secretary

Greg Wood, Treasurer

Jim Struble, Advisory Council Liaison

Dedicated to impacting and improving

the lives of those affected by

Parkinson’s disease

Newsletter

Jill Dominguez, Managing Editor

Pam Michel, Production Editor

The DAPS newsletter is published monthly as an

information guide only, and does not serve as legal or

medical advice. We welcome your feedback,

contributions or requests. Please send to or contact:

Jill Dominguez

Phone: 972-620-7600

jill@daps.us

www.daps.us · facebook.com/daps.us

Submissions must be received by the 1st of the month

preceding publication date and are subject to editing.

Advisory Council

Sarah Atwood

Jean Blomquist

Ben Casey

Carlie Dorshaw-Moe

Pat Goukler

Shirley Hand

Charlene Noe

Joyce Susman

Barbara Taylor

Cindy Weatherall

Medical Advisory Board

Shilpa Chitnis, MD, Ph.D.

Richard B. Dewey, Jr., M.D.

Richard L. Fulbright, Ph.D.

Dwight C. German, Ph.D.

R. Malcolm Stewart, M.D.

Gary L. Tunell, M.D.

Executive Director

Mike Miles

Dusty Berry

Chris Clausen

Bentley Foster

Harold Kellogg

Jo Klein

Mary Ellen Malone

Chick Martin

Fred Ransdell

Terry Spear

Heather Stevens

Marilyn Stewart

Bob Vlach

Mark your calendar

For the DAPS Luncheon

On April 3rd at 12:30 pm.

Join us for a catered lunch; $10 per person.

Reservations are REQUIRED.

RSVP at http://bit.ly/2017PAL

by 12:00 noon of Friday, March 31.

Snacks at the February General Meeting

were provided by

MARCH 2017 · DAPS · PAGE 3

L is for Lead: Be a storyteller. Hemingway said, “A man’s

life story told is a novel.” What’s your story?

I is for Inspire: You are like a shepherd, helping your family

be the best they can be.

F is for Feed: Physically as well as spiritually. You are

powering people with positivity.

E is for Encourage: Encourage others to do good works.

“True satisfaction can’t be bought,” said Lewis. “It can be

cultivated at the table, and in the process we transform not

only ourselves, but our friends and family as well,” she said.

Lewis’ mission is speaking and teaching. “I find people can’t

be at their table because they don’t know how to be in their

kitchen,” she said. Building culinary skills leads to building a

sense of community. The table is the setting for our

community in which we share the stories of our lives. We

can share the day-to-day experiences of life and restore

body, soul, and spirit together. “I encourage you to be a

cheesemaker,” she said, “because the best connection

happens at the home table.” For more information, see

www.lifeatthetable.com.

Life continued from front page

Yesterday is history. Tomorrow is a mystery. Today is a gift.

That is why we call it the present.

~author unknown~

Knowing that this is one of Jo’s favorite quotes is a good

indicator of the kind of person she is. Jo is a new member

of the DAPS Board of Directors and she is jumping in with

both feet. A Parkinsonian herself, Jo says she enjoys

being around others with PD and that it’s easy to feel

close to people when you are both vulnerable with the

same disease.

In March 2013, after dealing with tremor and balance

issues, Jo retired from a successful career in strategic

services for healthcare companies including Novation

(now called Vizient) and Abbott Laboratories. While at

Novation, she conducted joint research with Arizona State

University (ASU) in healthcare supply chain management.

She became Chairman of the Mark McKenna Healthcare

Management Lecture Series for ASU and currently

continues in that position.

Nine months after retiring, Jo was diagnosed with

Parkinson’s disease. At the time, she was walking four

miles a day for exercise. She soon discovered the

Parkinson’s exercise class at Cooper Aerobics Center in

Dallas. After joining the class, Jo learned about DAPS from

Mary Ellen Malone, who has since then also joined the

DAPS Board.

Jo enjoys playing basketball with her Parkinson’s buddies.

She continues to walk four miles a day and belongs to a

book club. Jo is very proud of her 34-year marriage to her

wonderful husband, Bert. Jo says, “He’s a real keeper.”

Jo’s mother was a nurse for 38 years in charge of disaster

drills – a real extrovert. Her father worked on the Burlington

Northern Railroad as a mechanic on the night shift in

Nebraska – a real introvert. Jo has one sister and three

brothers who claim that Jo is the alpha female. In the

time that I’ve come to know Jo, I’d have to agree with

her siblings.

Jo likes to implement new ideas such as giving annual

DAPS memberships as Christmas and birthday gifts to her

siblings. Stemming from her experience in healthcare, she

has lots of ideas about how physicians can encourage their

PD patients to join support groups.

Jo is going to be a valuable asset to the DAPS Board of

Directors. She has already taken on the responsibility of

coordinating a community day with DAPS for Vizient, the

company from which she retired. This will be a Parkinson's

awareness event designed to highlight the work that DAPS

does as well as to encourage more people with Parkinson's

to take advantage of the services and programs that

DAPS provides.

As Jo says, “You can confide in the people who have

Parkinson’s and know they care about you. They can laugh

with you too – and there’s a whole lot of shaking going on.”

Jo Klein

by Fred Ransdell

PAGE 4 · DAPS · MARCH 2017

MEMORIALS · HONORS · DONATIONS

JANUARY 2017

In memory of John Roger Hirl

From: Mr. & Mrs. Harry Bartley

Lorraine & Bob Chillemi

Pat & Dave Darnell

Sue & Ronnie Fender

Mark & Estelle Fleischman

David L. Hinshaw

Nancy & Jack Hurst

Duaine Ivy

Don Nebhan

Julie & Butch Polasek

John Stuart

The Atlanta Crew—Hannah, Lauren,

Kristen, Jessica, Megan, Izzy,

Rebecca, Glenn, Brian, Matt, Jose

Southwest Bank

In memory of Maxine Rose Musgrave

From: Lewis & Judy Brewer

Franklin Christie

Loree & Wayne Conrad

Charlotte & David Echols

Real & Muff Musgrave

Bob & Dottie Vlach

In memory of Bob Neely

From: Deborah Class of Lake Pointe Church

@ White Rock Campus

In memory of Bob Shaddox

From: Barry & Pat Goukler

In memory of Joseph & Helen Swiff,

their son, Harry, and his wife Reba

From: Joseph and Helen Swiff Memorial Fund

of the Dallas Jewish Community

Foundation

In memory of Liener Temerlin

From: Margie Landau

In memory of Terry Locklear, Sr.

From: Jerry & Brenda Cockes

Lisa & Kevin McMillen

Dottie Watts

In memory of Cip Muñoz

From: Mike & Donna Miles

In memory of Barbara Stewart

From: Mike & Donna Miles

In memory of Jack P. Harris

From: Jerry & Brenda Cockes

In memory of Jackie Hickman

From: Jerry & Brenda Cockes

In memory of Ernie Martin

From: Jerry & Brenda Cockes

In memory of Lee Brummel

From: Jerry & Brenda Cockes

In memory of James M. Harned

From: Jerry & Brenda Cockes

In honor of William (Bill) Armstrong’s

70th birthday

From: Deborah Bowles

In honor of Wayne & Joan Flatt

From: Kathy Messina & Gary Goodwin

In honor of all people living with Parkinson’s

From: Dennis & Gloria Verbeek

Donation to DAPS

From: Dusty Berry book sales

Richard Coldwell

My Trang Nguyen

William R. Phillips

Paul Salzberger

Mary Stewart & Jim Ramsey

Thomas Thorpe

Laura Crawford via ExxonMobil Auction

Event and EFCC Corporate Match

#GivingTuesday Facebook fundraisers

(Network for Good)

January General Membership Meeting

attendees

DAPS at Lake Pointe Church at

White Rock (Dallas)

DAPS at Preston Hollow (Dallas)

DAPS McKinney January meeting

attendees

MARCH 2017 · DAPS · PAGE 5

About

Memorials, Honors, and Donations

Flowers fade within days. Memorial tributes to DAPS

have a lasting effect, funding our more than 25

Parkinson’s exercise, speech, and support groups

and education programs.

Your generous donations will be listed in our DAPS

newsletter. Both you and your honoree will receive

letters of acknowledgement and thanks, but the

dollar amount will be included in your letter only for

tax purposes.

Send these special tributes to the DAPS office, with

instructions regarding who the donation is in honor of

or in memory of and who should be recognized as

the donor.

You may also make memorial donations at

www.daps.us. Just click the Honors & Memorials

button on the right side.

Ian Andersen

Sarah Atwood

Larry & Jana Barker

Dusty Berry

Edna Buentipo

John & Wanda Call

Larry Christensen

Christian Clausen

Leo & Eddi Dagley

Gene & Linda Dieringer

Jill Dominguez

Raul Dominguez

Liza Farrow-Gillespie

Bentley Foster

Barbara Glass

Barry & Pat Goukler

Ann Heidger

Harold Kellogg

Jo Klein

Leon & Marilyn Levin

Chip & Ginny Melara

Pam & Matt Michel

Donna Miles

Mike Miles

Carlie Moe

Susan Norvell

Tom & Ceil Pajda

Sandi Pautler

Fred Ransdell

Jackie Reis

Holly Scott

Terry Spear

Marilyn Stewart

Jim Struble

Joyce Susman

Chad Swank

Linda & Mike Swanson

Kyle Wayne Thomason

Cindy Weatherall

Diana Winkelmann

Greg Wood

GEMs are donors who

Give Every Month.

Our GEMs are very valuable!

Sign up on the DAPS website.

1 exercise class session

2 speech therapy class sessions

12 Dance for Movement Disorders Classes

12 care partner support group sessions

12 General Membership Meeting room fees

$5.00

$15.00

$25.00

$50.00

$100.00

...will provide for this each year:

Your monthly

donation

of this amount...

Membership Renewal Update

There have been many questions recently about

when memberships must be renewed. Memberships

expire one year from the date of your last payment.

Reminders are emailed 3 weeks before renewals

expire. If we have no email address on file, then a

reminder letter is mailed. However, because of some

changes to our system, some reminders have not

gone out. If you have a question about the status of

your membership, please call the DAPS office at

972-620-7600 and we will be glad to look that up for

you!

Also, if you are a GEM (Giving Every Month),

you will no longer receive membership renewal

reminders. As long as you remain a GEM, your

membership will remain active. If you are not a

GEM but would like to become one, go to

bit.ly/DAPSGEM and sign up today!

PAGE 6 · DAPS · OCTOBER 2014 PAGE 6 · DAPS · MARCH 2017

Pssst…

On March 3, 1847—170 years ago—a boy was born in

Edinburgh, Scotland. Twenty-nine years later,

Alexander Graham Bell spoke to his assistant in the

next room on a brand new device called a telephone.

“Mister Watson, come here; I want you.”

Who could have imagined that today we would be

calling, texting, tweeting, taking pictures, playing

games, shopping, navigating, and so on with mobile

telephones?

Sometimes I think that we have almost forgotten the

original intent and the most valuable use of the phone.

We first replaced talking with texting, and then, in a

strange twist, made it possible to speak your message

into the phone and have it transmitted as text. Well, I

get it. Sometimes a text conversation is more

convenient than a phone conversation, and I have

dictated my share of texts.

It’s amazing to think that all this started with a simple

call and invitation from one person to another to join

them in the next room.

If you’re reading this, you are at least familiar with what

I call, “One of Dallas’s best kept secrets.” I’m talking

about DAPS. We don’t really want to be a secret, and

fortunately, the word is getting out. DAPS is

empowering people affected by Parkinson’s disease

to live active and fulfilling lives.

So, will you join me this month by calling someone and

telling them about DAPS? Invite someone to join you

for exercise, a support group meeting, the March

General Membership Meeting, or our upcoming

Parkinson’s Awareness Luncheon. Some secrets are

best shared.

Kindest regards,

A message from Mike Miles

Executive Director

Positive Phase 3 Clinical Trial

Results For Inhaled Levodopa

On February 9, 2017, Acorda Therapeutics announced

positive results from the Phase III trial of CVT-301, an

inhalable form of levodopa. This new form of levodopa

is being studied as a treatment for “off” periods in

people with Parkinson’s disease (PD). Of the

approximately one million people in the USA and

1.2 million in Europe diagnosed with PD, about

35% experience “off” periods in which symptoms of

PD re-emerge before it is time for the next oral dose

of carbidopa/levodopa.

Oral medication absorbed through the digestive tract is

associated with a slow and variable onset of action

before reaching the brain. However inhaled treatments

enter the body through the lungs and reach the brain

shortly thereafter.

The ARCUS® inhaler developed by Acorda is passive

and breath actuated. The user only needs to breathe

in; no pump or other coordinated actuation is required.

Using this platform, a precise dose of a dry powder

form of levodopa is delivered to the lung. In the Phase

III trial of CVT-301, people with Parkinson's who

experienced "off" time had greater improvement in

their motor symptoms when they were treated with the

study drug compared to those who took the placebo.

The trial also demonstrated the drug was safe.

The Michael J. Fox Foundation (MJFF) funded earlier

work on this drug by biotech Civitas before it was

acquired by Acorda. Todd Sherer, PhD, CEO of MJFF

says, “This potential new treatment for the

management of re-emergent symptoms will address an

unmet need for many patients and families.”

CVT-301 will now complete long-term safety testing in

two other ongoing studies. Based on that information,

Acorda plans to submit a New Drug Application (NDA)

to the Food and Drug Administration later this year.

Sources:

http://bit.ly/MJFF_Inhaled_Levodopa

http://bit.ly/AcordaCVT301_PressRelease

http://www.acorda.com/products/arcus-technology

MARCH 2017 · DAPS · PAGE 7

NON-CONTACT BOXING

FOR PARKINSON’S DISEASE

Title Boxing Club of Allen

300 N. Greenville Ave.

214-644-2640

allen-greenville.titleboxingclub.com

Tuesday/Thursday..10:30 to 11:30 am

Wednesday...8:15 to 9:15 pm

Saturday...10:15 to 11:15 am

DAPS has partnered with

Title Boxing of Allen to obtain

reduced rates. Learn more about

the program at FreeMotionPD.com.

DAPS’ NO-CHARGE

exercise · speech therapy · support groups

CARROLLTON:

Grace Lutheran Church

1200 E. Hebron Pkwy. (972-492-4474)

Group Exercise:

Wednesday...10:00 to 11:00 am

Speech Therapy:

Wednesday…11:00 to 11:45 am

DALLAS:

Finley Ewing Cardiovascular &

Fitness Center, Studio 3

5721 Phoenix Drive (214-345-7074)

Dance for Movement Disorders:

Tuesday…2:00 to 3:15 pm

Thursday...2:00 to 3:15 pm

Lake Pointe Church at White Rock

9150 Garland Rd. (214-324-1425)

Dance for PD®:

Wednesday...9:30 to 10:30 am

Speech Therapy:

Wednesday...10:30 to 11:15 am

Partners-in-Care Group:

Wednesday...10:15 to 11:15 am

Preston Hollow United Methodist

Church

6315 Walnut Hill Lane (214-363-4393)

Speech Therapy:

Tuesday...11:30 am to 12:30 pm

Group Exercise:

Tuesday...10:30 to 11:30 am

Thursday...10:30 to 11:30 am

DUNCANVILLE:

Trinity United Methodist Church

1302 S. Clark Rd. (972-296-2155)

Speech Therapy:

Thursday...1:00 to 1:45 pm

Group Exercise:

Monday...12:00 to 1:00 pm

No class last Monday of the month

Thursday...2:00 to 3:00 pm

Support Meeting:

Last Monday...6:00 to 8:00 pm

Partners-in-Care Group:

3rd Thursday...1:00 to 2:00 pm

Dance for PD®:

Monday...10:30 to 11:30 am

No class last Monday of the month

GARLAND:

South Garland Baptist Church

1330 E. Centerville Rd. (972-271-5428)

Group Speech:

1st & 3rd Monday… 9:30 to 10:15 am

Thursday… 9:30 to 10:15 am

Group Exercise:

Monday...10:30 to 11:30 am

Thursday...10:30 to 11:30 am

Discussion Group:

Monday...9:30 to 10:30 am

Partners-in-Care Group:

Thursday...10:30 to 11:30 am

IRVING:

MacArthur Hills Sr. Living

1295 Kinwest Pkwy. (469-251-4349)

Group Exercise:

Tuesday...10:00 to 11:00 am

Friday...10:00 to 11:00 am

MESQUITE:

Mesquite Rehabilitation Institute

1023 North Belt Line Rd.

(972-216-2400)

Speech Therapy: Tuesday...9:30 to 10:00 am

Group Exercise:

Tuesday...10:00 to 11:00 am

PLANO:

Custer Road United Methodist

Church

6601 Custer Road (972-618-3450)

Speech Therapy:

Thursday...11:00 to 11:45 am

Group Exercise:

Monday...9:45 to 10:45 am

Thursday...9:45 to 10:45 am

Partners-in-Care Group:

Monday...9:45 to 10:45 am

RICHARDSON:

Arapaho United Methodist Church

1400 W. Arapaho Rd. (972-231-1005)

Group Exercise:

Tuesday...10:00 to 11:00 am

Friday...9:45 to 10:45 am DAPS at Duncanville

Celebrates 10th Anniversary

Monday, March 27...6 to 8 pm

Speaker: Nirav Pavasia, MD

Trinity United Methodist Church

1302 S. Clark Rd. (972-296-2155)

There will be a snack supper at 6 pm.

Dr. Pavasia will speak at 7 pm.

Dr. Pavasia is a

Movement Disorder

Specialist at

Neurology

Consultants of Dallas.

NEW SWIMMING CLASS! *

Grace Presbyterian Village

550 E. Ann Arbor Ave.

Dallas, TX 75216 (214-376-1701)

2nd & 4th Friday...10 to 11 am

at the Hillcrest Spa pool.

* This class was developed by

physical therapists.

Non-Profit

Organization

U.S. POSTAGE

PAID

Dallas, TX

Permit No. 3255

RETURN SERVICE

REQUESTED

Dallas Area Parkinsonism Society

6370 LBJ Freeway, Suite 170

Dallas, Texas 75240

(972) 620-7600

MARK YOUR CALENDAR

march general meeting Monday, March 13 - 1:00 p.m.

Speaker: Paul Markowitz

Topic: Navigating the Senior Care Maze

open board meeting

Monday, March 20 - 11:00 a.m. Please call the DAPS office for details.

next month Monday, April 3 - 12:30 p.m.* (Activity Center)

Parkinson’s Awareness Month Luncheon

RSVP by 12 noon on Friday, March 31.

* Please note this is the 1st Monday and earlier time.

daps mckinney

Tuesday, March 21 - 10:00 a.m.

Speaker: Sandi Pautler

Topic: Cruising with Parkinson ’s

Come hear about Sandi’s recent cruise and learn

helpful tips for international travel with PD.

next month in mckinney

Tuesday, April 18 - 10:00 a.m.

Speaker: Barb Mack

Topic: Exercise for PD

All General Membership Meetings are held at University Park

United Methodist Church, 4024 Caruth Blvd., Dallas, TX 75225.

For more information, call 972-620-7600.

DAPS McKinney meets on the 3rd Tuesday of every month at

St. Gabriel the Archangel Church, 110 St. Gabriel Way, McKinney,

TX 75070. Email mckinney@daps.us for more information.

disclaimer: The contents or opinions expressed in this Newsletter are those of the individual writers or presenters and do not constitute an endorsement or approval by DAPS staff. Please consult your personal physician regarding your individual medical problems.

For change of address or corrections, please indicate the changes on this page and mail it to DAPS, or email: daps@daps.us

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