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Join t he #RareRevolut ion
www.rarerevolutionmagazine.com
unique visitor
3.7K (per wk)
@RareRevolutionM
80k reach per month
@RareRevolutionMagazine
Reach over 100k
@RareRevolutionMagazine/@RebeccaStewar t
1186 followers
Page views
8.8K (per wk)
RARE Readership2,922 online magazine readers
(growth approx 300 new per month)
Media Kit
MEDIA/PRESS KITPAGE 1
The #RareRevolution
RARE Revolution www,rarerevolutionmagazine.com
RARE REVOLUTION Magazine is the brain child of Nicola Miller and Rebecca Stewart. These sisters came together in 2012 to form Teddington Trust, a registered charity dedicated to supporting patients and families affected by the rare genetic disorder Xeroderma Pigmentosum, after Nicola's son was diagnosed with the condition aged just 13 months old.
Over the past four years they have worked seamlessly together to execute innovative health, well-being and educational projects for XP patients as well as a dedicated patient liaison service. Their Little Ted patient resource was awarded with the British Medical Association Patient Information Award for Children 2015 which they have since expanded upon to develop a national Little Ted goes to School... primary school education resource teaching key issues such as inclusion, genetics and sun safety for all and their Little Ted and friends animation, designed to explain the condition of XP to young patients and their peers. www.teddingtontrust.com.
Their writing has featured in the Huffington Post, British Dermatology Nursing Journal, BBC, Fox News, STV, Metro, The Telegraph, Daily Mail, CIAT Journal and a number of local Newspapers.
Frustrated with the lack of opportunities available to promote RARE disease charity work, raise awareness, recruit potential funders and sponsors and to find relevant research and products, they decided to embark on providing a new platform for all rare disease champions to be heard.
Thus the Rare Revolution was born.
Meet the RR Editorial TeamNicola Miller is a parent of a RARE child, co-founder of the rare disease patient support charity Teddington Trust and active RARE advocate.
Nicola is the author and creator of BMA Award winning Little Ted and is passionate about better representation for RARE diseases across all walks of life.
Rebecca Stewart is the co-founder of the RARE disease charity, Teddington Trust.
She is an accomplished writer with regular features in local press and online.
She is a RARE Auntie and strong advocate for the condition of xeroderma pigmentosum and the wider RARE community.
Find us on Facebook & Twi tter
@RareRevolutionMagazine @RareRevolutionM
Features/Content:
Media/PR & Adver tising:
adver [email protected]
www.r arerevolutionmagazine.com
Publication timetable:
PAGE 2
Free - Quar ter ly - DigitalRARE Revolution Magazine
The vision of this free subscription, quarterly digital magazine is to provide a platform for rare disease patients, advocacy groups and charities to have their voices heard. To tell their difficult and inspiring stories, to raise awareness for their conditions and to shout about the work and support they provide.
We hope it will become a place where the best medical minds and clinical programmes can talk about their research, recruit case studies, volunteers, advertise their events and look for potential partners. It will feature articles of exceptional interest and quality, crafted in a way to maximise accessibility to our readers.
We are providing a Charity Membership Scheme and are offering Advertising opportunities to relevant companies providing services, products, pharmaceuticals and research opportunities to the rare community.
RARE Revolution www.rarerevolutionmagazine.com
2016/2017
- Aut um n 2016RARE Education
- Wint er 2016Ultra-RARE
- Spr ing 2017 (March)
RARE Responsibility Why corporate should choose Rare?
- Sum m er 2017 (June)
RARE Skin - Aut um n 2017 (Sept)
RARE Technology- Wint er 2017 (Dec)
RARE Minds
RARE Readership
Our readership is a mix from all walks of life, they comprise rare disease patients, families, advocates and charities. Clinical, medical, political and industry professionals.
As part of our planned marketing strategy to enable rare education and awareness outside of the field of rare, in 2017 we will be looking to build our readership from the corporate and general public.
As a new venture, our analytics are limited to our two released issues. However, what we can tell is that the balance of male and female readers is equal. That 2/3rd of our readers are aged 18-34 years old and the remaining over 35 years and readership is growing daily for our fledgling publication.
We have established an international readership and are read across the globe, with the UK and USA having the highest reader numbers.
Regular features:- RARE Inspiration- Charity Spotlight- Clinical Spotlight- Patient Voice- Letters/Blog page- International News- Expert advice- #RareReflections column
MEDIA/PRESS KIT
PAGE 3
What our readers have to say...
RARE Revolution www.rarerevolutionmagazine.com
The Muscle Help Foundation - 12 September at 20:00 · Our CEO Michael McGrath has been featured in the 1st edition of Rare Revolution Magazine!
?In helping to raise real and hopefully lasting awareness of RARE diseases, this special launch edition of Rare Revolution Magazine is not only packed with information but its story-telling style is engaging, informative and inspirational. To be featured is an honour. Providing a platform that not only gives hope but also stimulates interest and broadens knowledge is refreshing. I am proud to be part of this growing community of RARE advocates that not only care but also want to champion change ? bring on the #RareRevolution!? Michael McGrat h
Climb Hq "Congratulations on the first issue of Rare Revolution magazine, we have forwarded to all our members. A fantastic resource for patients, families, professional and everyone affected by rare disease. We look forward to reading more from you!"
Sam Falsetti "@RareRevolutionM thanks for putting together the first #raredisease magazine, launch issue is spectacular!"
"Just finished reading the first issue of @RareRevolutionM - this should be given to every family at time of a #raredisease diagnosis"
David Hanson MP "@RareRevolutionM @UKParliament should get Rare Disease parly group to email to all MPs"
Flóra Raf fai "Really enjoying @RareRevolutionM - this issue focuses on the educational challenges faced by #raredisease families"
Andrew Douglas @Parallel London "Thank you - wishing you every success with the launch - love the 1st edition #Revolutionaries"
The CATS Foundat ion "Check out the impressive new Rare Revolution Magazine! It has some fantastic articles, including an interview with Students 4 Rare Disease which is a group we are involved with. You can sign up for the magazine on their website!"
MEDIA/PRESS KIT
PAGE 4
RARE Revolution www.rarerevolutionmagazine.com
New for 2017 we have launched two exposure packages, platinum and gold. These are a cost effective way of maximising exposure within the magazine and really engaging with your target audience.
As a content driven magazine we are limiting the number of packages we accept in a year and these will be granted to services and products which we feel align with our readership.
Every package purchased is m anaged personally by our Account Manager and packages are individually t ai lored t o suit your business needs t o m axim ise value. All packages are also backed up by social m edia. Packages run for a fu l l 12 m ont hs f rom sign-up/
Media Par tner ingRare Exposure Packages
GOLD Package £4,500
Meet our friends in the corporate world who are doing their bit to support our #RareRevolut ion .
Genetic Insider specialises in bringing professionals together through outstanding business conferences and intelligence (BI). They believe that their work providing targeted networking is instrumental for the Genetics industry to produce innovation, growth and new business opportunities. They then find thought leaders with the right answers to address them. The objective is to enable fast industry growth ? with less risk
The RareBase Networking Portal, links people and companies throughout the world with an interest in rare and paediatric diseases.
Rarem ark?s m ission is t o t ransform one m il l ion l ives in rare disease Raremark keeps families updated with the latest research, treatments in development and enables them to share their valuable experience to help others. They also help people affected by a rare disease be found and
heard by the people developing new treatments.In rare disease, one of the biggest challenges in bringing a new treatment to the community is finding the right people to help develop it. Raremark is an independent company that helps to bridge that gap between families and industry.
Conference Series LLC announce the ?3rd Annual Congress on Rare Diseases and Orphan Drugs? along with Editorial Board Members, External Scientific Association, Researchers, Academicians, and Pharmaceutical Market Leaders around the globe, on Oct ober 30-Novem ber 1, 2017 San Ant onio, USA. The main theme of the conference is ?Platform to share new treatments and research for Rare Diseases?.
To discuss m edia par t ner ing oppor t unit ies please get in t ouch.
- Company bio/advertorial to be featured in 1 x Rare Revolution publication
- 3 x full page adverts over 3 editions of Rare Revolution
- Digital advert (for 3 month block) - 20% off NRG Collective content, copy and
design services
- Company bio/advertorial to be featured within 1 x Rare Revolution Magazine and our websit e blog
- 4 x fu l l page adver t s over 4 edit ions of Rare Revolut ion
- Digital advert (For 3 month block) - Presence on Rare Revolut ion Websit e
(For 3 m ont h Block) - Pr ior it y special locat ions in m agazine - 20% off NRG Collective content, copy and
design services
PLATINUM Package £6,000
Not e: We have a separate scheme for not-for-profit organisations. We also offer one-off
advert spaces, and our rates are appended to this document for your convenience.
MEDIA/PRESS KIT
PAGE 6
RARE Revolution www.rarerevolutionmagazine.com
Char ity Membership We are passionate about providing RARE charities with a platform to share and promote the work that they tirelessly do for their own RARE communities. This quarterly magazine is a FREE subscription resource to all its readership to ensure access to all.
We want to build strong and lasting relationships with RARE charities and support groups so that we can work together to make the voice of this collective community heard and provide them with valuable content.
Join our m em bership schem e
Our membership/affiliation scheme is open to any charity or not-for-profit organisation that operates with a charitable purpose for the rare disease community.
Mem bership benef it s
Feat ures: As members we want to showcase your work and services and give you a platform to have your say. (membership will ensure one guaranteed article per year)
Adver t isem ent s: Need runners or cyclists or hosting a fundraising event? Launching a big campaign? Your membership allows you to advertise up to two events per year. (4 x adverts a year for band 4 members)
Mem bers direct ory: Your charity logo with hyperlink will feature on our members page across all four editions making sure new patients and beneficiaries can always find you
Online: Your logo and details will be listed on the 'Rare Revolut ionar ies' page on our website with hyperlinks
Our vision for char i ties
1. Bring about far reaching change in attitudes and perceptions of RARE
2. Ensure that the people within this community and their stories are told in their own voice
3. Champion hard working and essential charitable networks and services
4. Promote cross-charity collaboration
Membership grades/fees
- Band 1: £30.00Annual turnover <£60k
- Band 2: £80.00Annual turnover £60k-£350k
- Band 3: £175.00Annual turnover£350k - £1.5m
- Band 4: £285.00Annual turnover> £1.5m
MEDIA/PRESS KIT
CharityMember Directory
Find us on Facebook and Twi tter
@RareRevolutionMagazine - @RareRevolutionM
Features/Content:
Media/PR and Adver tising:
adver [email protected]
www.r arerevolutionmagazine.com
Join the #RareRevolution and help us tur n the tide for RARE
To find out about our Char ity Members Scheme and benefits visit:
www.rarerevolutionmagazine.com/char ities
RARE Revolution Magazine is publ ished by NRG Col lective
