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Full Terms & Conditions of access and use can be found at http://www.tandfonline.com/action/journalInformation?journalCode=wsmh20 Download by: [blake glomb] Date: 02 February 2016, At: 06:58 Social Work in Mental Health ISSN: 1533-2985 (Print) 1533-2993 (Online) Journal homepage: http://www.tandfonline.com/loi/wsmh20 Perception of Mental Health Services among Black Americans Gina B. Gaston PhD, LCSW, Tara R. Earl MSW, PhD, Aslihan Nisanci MSW, MA & Blake Glomb BA To cite this article: Gina B. Gaston PhD, LCSW, Tara R. Earl MSW, PhD, Aslihan Nisanci MSW, MA & Blake Glomb BA (2016): Perception of Mental Health Services among Black Americans, Social Work in Mental Health, DOI: 10.1080/15332985.2015.1137257 To link to this article: http://dx.doi.org/10.1080/15332985.2015.1137257 Accepted author version posted online: 01 Feb 2016. Submit your article to this journal View related articles View Crossmark data

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Full Terms & Conditions of access and use can be found athttp://www.tandfonline.com/action/journalInformation?journalCode=wsmh20

Download by: [blake glomb] Date: 02 February 2016, At: 06:58

Social Work in Mental Health

ISSN: 1533-2985 (Print) 1533-2993 (Online) Journal homepage: http://www.tandfonline.com/loi/wsmh20

Perception of Mental Health Services among BlackAmericans

Gina B. Gaston PhD, LCSW, Tara R. Earl MSW, PhD, Aslihan Nisanci MSW, MA& Blake Glomb BA

To cite this article: Gina B. Gaston PhD, LCSW, Tara R. Earl MSW, PhD, Aslihan Nisanci MSW, MA& Blake Glomb BA (2016): Perception of Mental Health Services among Black Americans, SocialWork in Mental Health, DOI: 10.1080/15332985.2015.1137257

To link to this article: http://dx.doi.org/10.1080/15332985.2015.1137257

Accepted author version posted online: 01Feb 2016.

Submit your article to this journal

View related articles

View Crossmark data

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Perception of Mental Health Services among Black

Americans

Corresponding Author:

Gina B. Gaston, PhD, LCSW

Assistant Professor

University of Illinois at Chicago

Jane Addams College of Social Work

1040 West Harrison, (M/C 309)

Chicago, Illinois 60607

[email protected]

Tara R. Earl, MSW, PhD

ICF International, Public Health and Survey Research, 3 Corporate Boulevard Northeast #370,

Atlanta, United States

[email protected]

Aslihan Nisanci, MSW, MA

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PhD Student

University of Illinois at Chicago

Jane Addams College of Social Work

1040 West Harrison, (M/C 309)

Chicago, Illinois 60607

[email protected]

Blake Glomb, BA

MSW Student

University of Illinois at Chicago

Jane Addams College of Social Work

1040 West Harrison, (M/C 309)

Chicago, Illinois 60607

Abstract

As the Black Americans’ population becomes more diverse, it is important to extrapolate

differences amongst individuals who have historically been grouped as Black or African

American in the literature. This review systematically explores differences in the perceptions of

mental health services among Black Americans of African American, African, and Caribbean

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Black descent. Thirty studies were included in the analysis. The paucity of literature limited the

author’s ability to identify themes substantial themes for Africans and Caribbean Blacks, stigma,

discrimination, and racism mired the perceptions of mental health services for African

Americans. The findings underscored the need for more research to be able to adequately

identify and better understand important and nuanced differences in perceptions of mental health

within the Black American population. Implications for how to better serve Black Americans

through social work practice, intervention and prevention are discussed.

Keywords: African Americans, Africans, Caribbean Blacks, perceptions, mental health services,

stigma, discrimination, racism, Black Americans, Social work

INTRODUCTION

As the American population becomes more diverse, acknowledging important cultural

differences and perceptions of care amongst subgroups of people of African descent becomes

paramount (Lincoln, Chatters, Taylor, & Jackson, 2007; U.S. Census, 2011). Identifying as

“Black” in the United States can include a heritage of Caribbean or West Indian, African, or

another non-American descent. For the purposes of this paper, we focus on African Americans,

Africans and Caribbean Blacks. Collectively, Black Americans alone—not including Blacks of

multiple races—encompass about 13.2% of the U.S. population (U.S. Census 2014). Albeit not

easy to discern, within the Black American population, approximately 1.6 million (4%) identify

as being African (e.g. Ghanaian or Kenyan) and 1.7 million (4.4%) report as being of Caribbean

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Black decent (e.g., Haitian or Jamaican) (American Community Survey; Logan & Deane, 2003;

Migration Policy Institute, 2012).

While significant differences between African Americans and Caribbean Blacks on measures of

physical health have been widely reported (Singh & Siahpush, 2002; Read, Emerson, Taylor,

2005; Read, & Emerson, 2005), considerably less is known about variations in mental health,

despite a small, yet growing, body of evidence (Earl & Williams, 2008; Jackson et al., 2007). In

order to ensure equitable access to adequate care for Black Americans, it is important to

understand the complex role culture and diversity play within race. These factors impact how

symptoms of mental illness are expressed, understood and ultimately diagnosed (Earl, Fortuna,

Gao, Williams, Neighbors, Takeuchi, & Alegría, 2014). Understanding the impact of a person’s

cultural background on their perceptions about mental health treatment is especially important

given that, for some, seeking mental health care may not be something with which they are

familiar (World Health Organization, 2011); Migration Policy Institute, 2012; Miranda et al.,

2005). For example, as a result of the earthquake that crippled Haiti in 2010, the dearth of mental

health services and infrastructure within the country was brought to national attention and in

Africa less than 1% of the total healthcare budget is allocated to mental health (Bird et al., 2010).

Social workers comprise nearly half of the behavioral health care workforce therefore it is

essential for them to be trained in specialized skills to provide evidence-based behavioral health

services (Rosen, 2003; Walrath et al., 2006) that facilitate mental health care among this diverse

population. While there are common experiences across the Black American community, there is

also a great deal of heterogeneity that requires social workers and other mental health service

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providers to understand and be able to provide high quality care that is appropriately tailored to

the unique needs of their patients (Rosen, 2003).

SYSTEMTIC LITERATURE REVIEW APPROACH

In an effort to help the field better understand and disentangle important differences in

perceptions of mental health care within the Black American population We systematically

reviewed the literature using Medline, PsychInfo, Academic Search Complete, PubMed, Ebsco,

and Social Work Abstracts. Our search was guided by a combination of key words that focused

on mental health care, patient perceptions of mental health care and ethnic variations of Black

Americans. We specifically sought to include peer-reviewed articles because these are more

widely reviewed to inform clinical practice and service delivery. We included a broad range of

articles that were published between 2002 and 2014 and emphasized care and perceptions of

American and/or foreign-born Blacks who resided in the states. Examples of key words included,

mental health, perceptions of care and/or treatment, mental health, mental health communication,

patient and provider communication, culture competence, trauma, clinical encounter, and

communication styles. In order to discuss literature that represented the diversity within the

Black American population, we looked for articles that used the terms like, African American,

Black, African, Haitian, Jamaican, Dominican, Trinidad and Tobago, Afro Caribbean, Caribbean

Black, immigrant, and refugee.

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ANALYSIS STRATEGY

We used a three-step process to identify the studies that met our inclusion criteria. The

first step involved examining all studies that were (1) published in peer-reviewed journals, (2)

that were specifically focused on mental health, (3) recruited African Americans, Africans,

and/or Caribbean Black participants, and (4) included African and Caribbean Blacks (foreign- or

U.S.–born) who lived in the United States at the time of the study. Any differences between

foreign-born and U.S.–born Africans and Caribbean Blacks will be identified. Studies were

excluded from the review if results were not reported separately by race and nationality of the

participants. A total of 560 studies were reviewed. See Table 1 for the total number of studies

reviewed by population. Upon further examination, a total of 278 out of 560, met possible

inclusion in the study.

We were interested exclusively in studies that met at least one of two search criteria. Studies

must have examined: (1) the perceptions of mental health services among specific African and

Caribbean Black groups, and/or (2) the perceptions of mental health services among African

Americans. The review was expanded to include peer-reviewed studies published from January

2002 and December 2014.

The second step involved reviewing and employing thematic analysis of the 278 studies. Two

members of the team conducted independent reviews of the literature using the specified key

words as a guided framework. Matrixes were constructed and used by the researchers in order to

allow for study comparison and identification of emergent themes. The matrixes included the

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author(s), date of publication, methodology used, study participants inclusive of racial/ethnic

groups and nationality, location of the study to ensure individuals living in the U.S. were the

subject of the study, results, and study recommendations. The team members met weekly to

review and discuss their independent findings until they reached consensus.

Matrixes were then compiled and categorized according to African American, Caribbean Black,

and African participants. In the end, we found 30 studies that met the inclusion criteria. Twenty-

three of the studies examined African Americans’ perceptions of mental health care. See Table 2

for studies examining African Americans’ perceptions of mental health services. Two studies

examined perceptions of mental health services among Caribbean Blacks. Two studies examined

perceptions of mental health services among Africans living in the United States. Three studies

included mixed populations. See Table 3 for Caribbean Black, African, and mixed population

perceptions. The final step involved using the matrixes to identify emergent themes. Two raters

(the principal author and the PhD student) were used to identify themes. Raters independently

reviewed each study, wrote notes regarding possible themes, and met twice weekly until there

was agreement about emergent themes. The total review process took approximately 6 months to

complete.

EMERGENT THEMES

Two primary themes emerged that seemed to best describe the perceptions of mental health care

within the literature. The themes were: (1) perceptions that influenced service use and (2)

perceptions related to barriers to mental health help-seeking. Subthemes for African American

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participants are also displayed in Table 2. Subthemes and themes could not be identified for

African and Caribbean Blacks due to the paucity of studies found.

RESULTS

Overall, as shown in Tables 2 and 3, of the 30 studies reviewed, 23 focused on African

Americans, 2 focused Africans, 2 focused on Caribbean Blacks, and 3 included a combination of

Black Americans. There were a number of studies that met the inclusion criteria, informed

perceptions about mental health service use, discussed “African Americans” or “Blacks”, but did

not identify or discuss ethnicity or country of origin. Therefore, we present the findings in an

order that aligns with the number of available articles that were reviewed for each of the three

subgroups of Black Americans.

Perceptions of African American

Service Use and Access. African Americans’ negative perception of mental health and the

mental health system was identified as a barrier to service use. Their experiences of societal

discrimination may lead to skepticism and distrust of the mental health system (Copeland &

Snyder, 2010; Earl, Alegría, Mendieta, & Linhart, 2011). We identified three reasons for varying

service use among African Americans. A client’s trust in their provider was one important

reason; a service provider’s competence was a second theme found in the review and a client

feeling that they were respected by their provider were all common themes in service use among

African Americans.

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The importance of trust and comfort with the provider were common reasons across various

studies (Earl et al., 2011; Leis, Mendelson, Perry, & Tandon, 2011; Lindsey & Marcell, 2012;

Thompson, Dancy, Wiley, Perry, & Najdowski, 2011; Ward, 2005). African Americans

identified several dimensions of trust including the need for providers to be nonthreatening and

reassuring. It was important that providers be emotionally and personally accessible. Having

similar spiritual beliefs would also help the client trust their provider. Participants also preferred

their provider to have professional credibility, which was defined as having expertise, fame, and

being the same race (Mishra, Lucksted, Gioia, Barnet, & Baquet, 2009).

Ward (2005) found that clients were constantly evaluating the practitioner’s effectiveness on the

basis of years of education, training, and experience working with African Americans.

Confidentiality-related concerns negatively influenced client-provider relationships (Leis et al.,

2011; Lindsey & Marcell, 2012; Thompson et al., 2011). Findings indicate that clients were

concerned that the information they disclosed in therapy could be used against them in the court,

especially when treatment was court-mandated (Ward, 2005).

The desire to be respected and understood by the provider was a common theme across studies

(Copeland & Snyder, 2010; Earl et al., 2011; Leis et al., 2011; Mulvaney-Day, Earl, Diaz-

Linhart, & Alegria, 2011). For example, African American women were concerned that

clinicians would not understand the unique societal challenges they encountered (Copeland &

Snyder, 2010). In their analysis of African American, Latino and White patients’ preferences for

relational styles in encounters with mental health providers, Mulvaney-Day et al. (2011) found

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that African American clients specifically emphasized the provider’s listening skills. They

wanted to be understood and were appreciated as experts of their lived experiences.

Barriers to Mental Health Help-Seeking. After further examination, four subthemes were

identified as barriers to mental health help seeking: stigma; structural barriers such as poverty,

racism, discrimination; reliance on other coping mechanisms; and fear (Brown et al., 2010;

Barksdale & Molock, 2009; Conner et al., 2010a; Copeland & Snyder, 2011; Lindsey & Marcell,

2012; Leis et al, 2011; Mishra, Lucksted, Gioia, Barnet, & Baquet, 2009; Neighbors et al., 2009;

Richman, Kohn-Wood, & Williams, 2007; Thompson et al., 2011; Ward, Clark, & Heidrich,

2009; Ward & Heidrich, 2009).

Among structural barriers, African American women identified poverty, lack of health insurance,

unemployment, housing issues, and low education as barriers to mental health service use (Ward

et al., 2009). Copeland and Snyder (2010) found that low-income women were not seeking

mental health treatment largely because of economic stressors and stress from conflicting roles in

their lives. Richman et al. (2007) explored the impact of race, discrimination, and racial identity

on mental health service use among African Americans. They found that past discrimination and

identity were more important than education and income in explaining disparities in mental

health service use.

The perception of racism and stigma were also identified as major barriers to seeking mental

health information and services (Conner et al., 2010b; Mishra et al., 2009). Brown et al. (2010)

found that African Americans reported more negative attitudes toward mental health treatment

than Whites. Both African Americans and Whites internalized stigma, which led to negative

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attitudes about mental health. One study found that among African American women,

internalized stigma and not the perception of mental illness by their community was a major

factor influencing help-seeking (Ward & Heidrich, 2009). On the other hand, among young

African American males, negative community beliefs about mental health care were barriers to

seeking treatment (Lindsey & Marcell, 2012). Among African Americans in their late

adolescence, family norms toward mental health treatment were the strongest predictor of help-

seeking intentions (Barksdale & Molock, 2009).

Cultural perceptions that African Americans are “strong” and do need mental health treatment

was another barrier. Lindsey and Marcell (2012) found that young adult African American males

were engaging coping activities in isolation or were engaging in negative coping mechanisms

such as drug use instead of seeking mental health treatment. Ward et al. (2009) found that

African American women were not seeking help because of their belief that Black women “had

to be strong,” or because they believed that they could handle it on their own. Women were

relying on their informal support groups, religious coping, reading, normalizing mental health

problems, and/or denying mental health issues altogether. An analysis of the National Survey of

American Life (NSAL) documented that African American older adults underutilized mental

health services but may be due to a variety of reasons (Neighbors et al., 2009). For example,

cultural perceptions that African Americans are “strong” and do need mental health treatment

was a barrier. Additional contributors were the belief that depression was normal and that

seeking treatment was a sign of weakness (Conner et al., 2010).

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Fear also appeared to hinder access to mental health services for African Americans (Copeland

& Snyder, 2011; Leis et al, 2011; Lindsey & Marcell, 2012; Thompson et al., 2011). The fear of

breached confidentiality emerged as a barrier to treatment-seeking for young adult males in a

study by Lindsey and Marcell (2012). Women may also have unique fears, such as the fear of

losing their children should they seek treatment (Copeland & Snyder, 2011). Another concern

noted across studies was the negative attitude toward psychotropic drugs (Leis et al., 2011);

including fear of overmedication (Copeland & Snyder, 2011) or of side effects (Thompson et al.,

2011).

Perceptions of Caribbean Blacks

Examining a sample of 150 Haitian immigrants living in the United States, Schwartz, Bernal,

Smith, and Nicolas (2012) found that Haitians were more likely to seek help from family rather

than mental health professionals. Jackson et al. (2007) found that Spanish-speaking Haitians

were more likely to report satisfaction with mental health than respondents from the English-

speaking Caribbean.

Perceptions of Africans

Piwowarczyk et al. (2014) examined both concepts of mental illness in addition to attitudes and

beliefs about treatment and potential barriers to seeking mental health treatment among a sample

(n= 296) of Congolese and Somali men and women in the U.S. They found that mental health

concerns were often first dealt within the family. Commonly, faith based coping methods were

used to address mental health issues. Also, the role of formalized mental health was not well

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understood, intact, participants were hesitant to seek services due to issues such as stigma.

Through a phenomenological study by Ezeobel, Malecha, Landrum & Symes, (2010), which

examined perceptions of depression among 19 Nigerian women living in the U.S., stigma was

associated with seeking mental health services. They avoided such stigma by relying more on

religious coping mechanisms. Seeking mental health services was stigmatizing when specifically

being diagnosed with depression. Many participants reported being isolated from family after

being diagnosed with depression due to stigma. DeJesus and Earl (2014) explored the

perceptions of the quality of mental health care among Brazilians and Cape Verdeans. Cape

Verdean is located off the coast of Africa. Focus groups of 24 Brazilians and 24 Cape Verdeans

who received outpatient mental health treatment in the U.S. found that aspects of mental health

care were linked to psychosocial and environmental factors.

DISCUSSION

Given the potential depth and breadth of the ways in which culture can mediate the expression of

what might be considered psychotic-like experiences, the accuracy of diagnosis and efficacy of

treatment for psychotic disorders depends on the recognition of potential racial, ethnic and

cultural variations and influences on symptom presentation. Not attending to socio-cultural

influences, limits diagnostic accuracy and the quality of psychiatric care for those who are most

in need. The systematic review suggests that social workers must be aware of the myriad of

perceptions associated with barriers to mental health care among African Americans, Africans,

and Caribbean Blacks. For African Americans, perceptions about mental health services

appeared to be associated with two major themes—mental health help-seeking and service use.

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Barriers to service use and help-seeking for African Americans were associated with perceived

discrimination and racism in care, distrust, and practitioner factors such as the perception of

practitioner expertise and the perceived quality of their listening skills. The review also revealed

additional perceptions that specifically affected help-seeking among African American women

such as their own stress and the belief that seeking treatment was a reflection of personal

weakness. Limitations to this study include the lack of research exploring the perceptions of

mental health services among Africans and Caribbean Blacks is the significant gap in literature.

The limited amount of studies, which focused on specific groups of Africans and Caribbean

Blacks living in the U.S. coming from different cultural backgrounds are not available and

therefore a limitation to this study. The few studies found that explored the topic of mental health

services perceptions among Africans and Caribbean Blacks revealed some similarities among

African Americans, but also highlight cultural differences that require additional attention. It is

important for additional research to also extrapolate perceptions of mental health among Africans

from various countries

Implications for Social Work Practice, Intervention and Prevention

Diversity, Culture and Practice

Discrimination and racism increase African Americans’ and Caribbean Blacks’ risk for mental

health problems (Clark, Salas-Wright, Vaughn, & Whitfield, 2014) and adversely affect their

access to mental health care (Conner et al., 2010; Mishra et al., 2009; Richman et al., 2007). The

perception of discrimination and racism in mental health services for African Americans

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appeared to be a significant barrier to care. While the relationship between discrimination and

racism was less clear among Africans and Caribbean Blacks, social workers and other mental

health professionals should be cognizant of the experiential and historical differences that may

influence these perceptions.

Research suggests that the perception of discrimination and racism by African Americans stems

from a history of racism and discriminatory health and medical research practices inclusive of

medical experimentation in slavery, involuntary family planning sterilization, and the Tuskegee

Syphilis Study, which revealed unethical medical practices conducted by the United States

Public Health Service (Boulware et al., 2003; Washington, 2006). It is this legacy of

maltreatment that may influence perceptions of distrust, racism, and discrimination about mental

health by some African Americans. African Americans integrate experiences from previous

social or clinical interactions to appraise current clinical encounters (Earl et al., 2011) and

transfer experiences of perceived discrimination and racism to future relationships with

providers.

The relationship between perceived discrimination and satisfaction with mental health is less

clear for Caribbean Blacks. Jackson et al. (2007) found that Spanish-speaking Caribbean Blacks

and Haitian respondents are more satisfied with mental health and medical services than are

respondents from predominantly English-speaking parts of the Caribbean. In a seminal study

conducted by Eaton and Garrison (1992) it found that Haitians reported more discrimination and

less satisfaction with mental health and with life in the U.S. than Cuban refugees. The study

examined differences in psychopathology and use of the mental health system among 952 Cuban

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and Haitian refugees living in Florida. Additional research is needed to explore the possible

impact of discrimination and racisim on mental health services use among Caribbean Blacks and

Africans living in the U.S.

The review revealed one study conducted by Jackson et al. (2007), which found both African

Americans and Caribbean Blacks utilized formal mental health infrequently, but U.S.–born

individuals were more likely to receive care than first-generation immigrants. There is also a

need to explore the phenomenon of “the immigrant paradox” for Caribbean immigrants.

According to the immigrant paradox, the longer the immigrants stay in the U.S., the more mental

health problems they have (Suarez-Orozco, Todorova, & Qin, 2006). The relationship between

the generation status of immigrants on their perceptions and use of mental health status should be

further investigated. Miranda, Siddique, Belin, and Kohn-Wood (2005) found that Black women

born outside the United States (in Africa or the Caribbean) were less likely to screen positive for

depression. However, the longer they lived in the United States, the more likely they were to

screen positive for depression. Social workers should be aware of the impact of immigration on

the mental health risk of Caribbean Blacks. Additionally, more needs to be known about the

impact of immigration on mental risk and access among Africans living in the U.S. as well.

Social workers must pay attention to structural racism, its implications, and underlying

ideologies that foster discrimination against individuals (Viruell-Fuentes, Miranda, &

Abdulrahim, 2012). Social workers are mental health providers and can act as conduits and

facilitators of communication between patients and providers (Gaston, Gutierrez, & Nisanci,

2014). They should actively engage in dialogue with their clients and health care professionals in

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their practice settings about the everyday realities of African, African American, and Caribbean

Black clients that include experiences of racial discrimination and oppression.

The most salient cultural barrier found was stigma attached to mental health problems and

treatment among African Americans, Africans, and Caribbean Blacks. Research suggests that

stigma related to accessing and engaging in mental health treatment often discourages patients

from pursuing care (Hine, Howell, & Yonkers, 2008; Corrigan, 2004). Stigma is a well-

documented barrier for African Americans’ access to mental health care (Brown et al., 2010;

Conner et al., 2010b; Mishra et al., 2009). The pressure to be “strong” may be one factor that

perpetuates mental health stigma among African American women. For example, Ward et al.

(2009) found that the normalization of challenging life conditions and community pressure to be

a “strong Black person” decrease African Americans’ awareness of their need for treatment.

Social workers can challenge such issues related to stigma by educating clients and the

community about mental health (Kohli, 2012; Mishra et al., 2008). Secondly, attempting to

integrate family and other sources of support will aid in the treatment process (Schwartz, Bernal,

Smith, Nicholas, 2014). Educating clients and their support system can also serve to address

potential barriers to treatment (Kohli, 2012). Finally, social workers can also work individually

with clients to deconstruct narratives and reduce self-blame about mental health issues related to

maneuvering significant structural barriers such as poverty, lack of community resources,

unemployment/underemployment, and discrimination (Corrigan, 2004; Kohli, 2012; Misra,

2008; Mulvaney-Day, 2011).”

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It would also be important for scholars to explore whether a similar phenomenon exists among

Caribbean Blacks. To date, there is a paucity of research on Caribbean Blacks’ perceptions of

mental health and U.S.–based mental health services, even though they are the largest Black

immigrant population. We found no information on mental health perceptions among individuals

from Jamaica, the Dominican Republic, Trinidad and Tobago, and only two studies on those

from Haiti. Although it is unclear if this preference is related to stigma, one study on Haitians

residing in the United States shows that they prefer to seek assistance from family versus mental

health professionals, (Schwartz et al., 2012). Nadeem, Lange, Edge, Fongwa, Belin, & Miranda

(2007) found that, among a sample of 15,383 immigrant and U.S.–born Black and Latina

women, African and Caribbean immigrants were more likely to worry about stigma related to

mental health care. This raises concerns of stigma being an issue for Caribbean Blacks.

Some international studies also support this idea and associate stigma with reduced mental health

access among Caribbean’s. Youssef, Bachew, Bodie, Leach, Morris, and Sherma (2012) studied

knowledge and attitudes about mental illness among a sample of 673 individuals from university

campuses in Jamaica, Barbados, and Trinidad and Tobago and found that stigma is associated

with being diagnosed with schizophrenia and substance abuse. These findings suggest that

educational campaigns may be needed to reduce stigma and discrimination for individuals with

certain mental health issues. Similarly, Arthur, Hickling, Hickling-Robertson, Haynes-Robinson,

Abel, and Whitney (2010) in a study of 126 socioeconomically diverse individuals from

Kingston, Jamaica, found that barriers to mental health include perceptions of stigma, negative

associations of mental illness with “madness,” and avoidance. More research needs to explore if

stigma affects mental health use among Caribbean Blacks living in the U.S.

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The literature revealed only two studies on African immigrant perceptions of mental health in the

United States. While themes could not be generated, stigma appeared to influence perceptions of

mental health services (Ezeobele, 2010; Piwowarczyk et al., 2014). Similarly, in an international

study conducted in South Africa, Egbe et al (2014) found among a sample of 77 South African

mental health services users that stigma was perpetuated by family members, friends, employers,

community leaders and health providers. The authors suggested that mental health services

aimed at treating this population should integrate the patient’s support system and teach the

patient how to deal with internalized stigma. It is important for additional research to extrapolate

perceptions of mental health among Africans from various countries. The African continent is

rich in diversity; researchers and social workers need to continue to explore the specific needs of

African immigrants from specific countries.

Conclusion

It is important for social workers to help create an environment where mental health perception

barriers can be addressed by engaging in culturally specific practice. Multilayered and complex

factors appear to affect African Americans,’ Africans, and Caribbean Blacks’ access to and use

of mental health services. Diversity within the Black population calls for additional research that

explores perception barriers about mental health among African Americans, Africans, and

Caribbean Blacks. The increasing recognition of culture as an important factor in public health

and communication has the potential to contribute to the development of new and more effective

strategies to help eliminate health (Kreuter & McClure, 2004) and behavioral health disparities.

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Of concern was the limited number of studies that focused on specific groups of Africans and

Caribbean Blacks living in the U.S. Social workers need to be aware that African and Caribbean

clients might be coming from different cultural backgrounds and may be facing challenges that

stem from immigrant status and history. Behavioral health specialists should be clinically

trained, bi-lingual, and culturally competent social workers or psychologists (Manoleas, 2008).

In the end, the paucity of research that extrapolates intra-group diversity among Black

Americans in the U.S. underscores the need for a deeper understanding of this complex interplay

of attitudes, barriers, and other forces influencing perceptions of mental health services and

subsequent access to care.

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Table 1—Total of Number of Studies Reviewed,

Population

Total Number

of Studies

Reviewed

Studies Meeting

Search Criteria

Total included in the

Review

African Americans 345 197 23

Caribbean Blacks 121 42 2

Africans 38 7 2

Mixed Population 56 32 3

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Table 2—Summary of Studies that Explore African American Perceptions of Mental Health, 2002-2014

Study Research

Focus

Research

Design

Sample

Size

Population Key Findings Subthemes

Alvidrez

et. al.

2010

Examine

whether

stigma and

other

concerns

about

entering

treatment

had an

impact on

engagement

and service

use across 3

months.

Quantitative

42

African

Americans

African

American men

and those with

more education

perceived more

stigma in

mental health

care. However,

perceived

stigma was not

related to

treatment

engagement.

Discrimination

Stigma

Peer/Family

Support

Mistrust

Racism

Economic

stress

Barksdale

and

Examine

whether

Cross-

sectional

219 African

Americans

Individually,

peer and family

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Molock,

2009

perceived

negative

peer and

family

norms

about help

seeking

influence

help-

seeking

intentions.

internet

survey

norms were

related to help-

seeking

intentions.

Individuals

with higher

negative family

norms had

lower help-

seeking

intention scores

(strongest

predictor).

Family

influence is a

unique

predictor for

African

Americans.

Brown et. Examine

level of

Telephone 449 African

American

The

internalization

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al. 2010 depressive

symptoms,

stigma and

treatment

related

attitudes

and

behaviors.

survey

and

White.

of stigma is key

in the

development of

negative

attitudes

toward mental

health

treatment

among African

Americans.

Conner

et. al.

2010

Explore

attitudes

and beliefs

about

depression

and mental

health

treatment.

Qualitative

42 Older

adult

African

Americans

Barriers to

treatment were

perceptions of

depression

(“this is

normal”, not

recognizing

symptoms), the

African

American

experience

Discrimination

Stigma

Peer/Family

Support

Mistrust

Racism

Economic

stress

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(racism,

discrimination),

treatment

weakness and

last resort, and

negative

beliefs.

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Table 2—Summary of Studies that Explore African American Perceptions of Mental Health, 2003-2013

Study Research

Focus

Research

Design

Sample

Size

Population Key Findings Subthemes

Conner

et al.,

2010

Examine

older adult

African

Americans

with

depression

perceptions

of barriers to

seeking

mental

health

treatment.

Qualitative 37 African

American

older

adults

Participants

reported fear of

stigma, mistrust

of mental health

treatment, lack

of access, sense

of being too old

to seek

treatment, and

the lack of

recognition of

mental health

symptoms due

to persistent

stress in the

community were

barriers to

Discrimination

Stigma

Peer/Family

Support

Mistrust

Racism

Economic

stress

Subthemes

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mental health

treatment

seeking.

Discrimination

Stigma

Peer/Family

Support

Mistrust

Racism

Economic

stress

Copeland

and

Snyder

2011

Explore

barriers to

mental

health care

among

women that

sought care

for their

children, but

not

themselves.

Qualitative 64 African

American

women

Barriers to

seeking mental

health treatment

was the fear of

losing their

children,

economic

stressors, and

beliefs that

providers were

not trustful and

would

overmedicate

them.

Earl et.

al. 2011

Explore the

initial

interpersonal

Qualitative 25 African

American

patients

Patients have

previous within

and outside

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interactions

between

African

American

patients and

their non-

African

American

mental

health

providers.

and their

non-

African

American

providers

treatment

experiences

(discrimination,

mistrust, and

stereotyping)

that can lead to

healthy cultural

paranoia

(caution and

skepticism).

Facilitators of

good

interactions

were discussed.

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Table 2—Summary of Studies that Explore African American Perceptions of Mental Health, 2003-2013

Study Research

Focus

Research

Design

Sample

Size

Population Key Findings Subthemes

Hines-

Martin et.

al. 2003

Examine

the barriers

to mental

health care

service use

among

low-

income

African

Americans.

Qualitative 24 African

Americans

Individual

barriers were

fear, denial,

economic, and

values.

Environmental

barriers were

family issues,

community,

and resources.

Institutional

barriers were

time,

limitations,

gatekeepers

and rules.

Discrimination

Stigma

Peer/Family

Support

Mistrust

Racism

Economic

stress

Subthemes

Discrimination

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Leis et. al.

2011

Explore

perceptions

of mental

health

services

and its

effect on

service use

among

clients

from a

home

visiting

program.

Qualitative 64 African

Americans

Overall,

perceptions of

mental health

services were

negative.

Negative

perceptions

included

beliefs that

providers gave

medications

without

listening,

concerns about

confidentiality,

suspicion

about

psychotherapy

and

psychotropic

drugs.

Stigma

Peer/Family

Support

Mistrust

Racism

Economic

stress

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Leis, J. A.,

Mendelson,

T., Perry,

D. F., and

Tandon, D.

T., 2011

Explore

perceptions

of mental

health

services as

a barriers

to use

among

perinatal

African

American

women.

Qualitative 38

clients

26

staff

African

American

women

Perceptions of

mental health

were negative

with many

participants

believing that

stigma, lack of

confidentiality,

psychotropic

medication,

and

questionable

effectiveness

of

psychotherapy

was significant

barriers to

mental health

treatment

seeking.

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Table 2—Summary of Studies that Explore African American Perceptions of Mental Health, 2003-2013

Study Research

Focus

Research

Design

Sample

Size

Population Key

Findings

Subthemes

Lindsey

and

Marcell,

2012

Explore

African

American

males’

perceptions

of help-

seeking for

mental

health.

Qualitative 27 Young

adult

African

American

men

Barriers to

mental

health

seeking were

engaging in

coping

activities in

isolation, at

the social

level (drug

use), and

negative

community

beliefs about

mental

health.

Discrimination

Stigma

Peer/Family

Support

Mistrust

Racism

Economic

stress

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Mishra et.

al. 2009

Better

understand

mental and

illness

information

and service

delivery

preferences.

Qualitative 42 African

Americans

Providers

should be

non-

threatening,

credible,

accessible,

and

incorporate

spirituality in

treatment.

Stigma and

perceptions

of racism as

barriers to

seeking

treatment.

Mulvaney-

Day et. al.

2011

Examine

preferences

for

relational

Qualitative 51 African

American,

Latino,

and White.

No primary

differences

in major

preferences

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styles in

encounters

with mental

health

providers

among a

diverse

sample.

among

ethnic

groups.

However,

African

American

patients

believed it

was

important to

be

understood

and

respected as

experts.

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Table 2—Summary of Studies that Explore African American Perceptions of Mental Health,

2003-2013

Study Research

Focus

Research

Design

Sample

Size

Populatio

n

Key Finding Subthemes

Murry,

Heflinger

, Suiter,

and

Brody,

2011

Examine

perception

s about

mental

health and

help-

seeking

among

rural

families of

adolescent

s with

mental

illness

Mixed

method

163

(survey)

21

(qualitativ

e

interviews

)

African

American

mothers

Preferences

for social

support were

family,

religious

institutions,

and school.

Stigma and

cultural

mistrust were

barriers to

help seeking.

Discriminatio

n

Stigma

Peer/Family

Support

Mistrust

Racism

Economic

stress

Subthemes Neighbor Examine Quantitativ 55 Older Mental health

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44

s et. al.

2009

mental

health

services

utilization.

e African

American

s

services were

underutilized.

Those who

were 65 and

older were

less likely to

receive

mental health

or general

medical

treatment

compared to

those under

the age of 65.

Participants

with a high

school

education or

higher were

more likely to

use mental

health

Discriminatio

n

Stigma

Peer/Family

Support

Mistrust

Racism

Economic

stress

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45

services.

Newhill

and

Harris,

2007

Explore

how

African

American

consumers

of mental

health

perceive

and

experience

disparities

in

accessing

and

utilizing

mental

health

services.

Qualitative 35 African

American

men and

women

Participants

reported that

the fear of

stigma was a

barrier to help

seeking.

Suggestions

to ameliorate

this issue

would be for

practitioners

to outreach

and engage

pastors and

their

congregations

. Another

barrier was

the shortage

of African

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46

American

psychiatrists

and therapist.

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Table 2—Summary of Studies that Explore African American Perceptions of Mental Health, 2003-2013

Study Research Focus Research

Design

Sampl

e Size

Populatio

n

Key Findings Subthemes

Richman

et. al.

2007

Examine the

role of race,

discrimination

and racial

identity in

explaining

mental health

service

utilization.

Quantitativ

e

955

African

American

and

White

adults.

Past

discrimination

and identity

variables are

more

important than

structural

variables such

as education or

income in

explaining

mental health

utilization.

Discriminatio

n

Stigma

Peer/Family

Support

Mistrust

Racism

Economic

stress

Subthemes Sanders-

Thompso

n, Bazile,

Examine

beliefs

regarding

Qualitative 201 African

American

men and

Participants

associated the

term

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and

Akbar,

2004

psychotherapist

s,

psychotherapy,

and barriers to

seeking mental

health

treatment.

women psychotherapy

with stigma.

Psychologists

were perceived

to be White

male elitists

who were

unsympathetic,

uncaring, and

unavailable.

They preferred

the term

counseling.

Barriers to

treatment were

stigma,

financial costs,

and the lack of

recognition of

mental health

issues.

Discriminatio

n

Stigma

Peer/Family

Support

Mistrust

Racism

Economic

stress

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Thompso

n et. al.

2011

Explore

participants’

past experience

and satisfaction

with mental

health services.

Qualitative

40

African

American

s mothers

and their

youths.

About half of

the mothers

dissatisfied

with services.

Group and

family therapy

was positively

regarded.

Dissatisfaction

centered on

medication

concerns, lack

of

professionalis

m,

confidentiality,

and poor

quality

treatment.

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Table 2—Summary of Studies that Explore African American Perceptions of Mental Health, 2003-2013

Study Research

Focus

Research

Design

Sample

Size

Population Key Findings Subthemes

Thurston

and

Phares,

2010

Examine

the

influence of

parents’

gender,

race, and

mental

health on

perceived

barriers and

attitudes

about

treatment.

Quantitative

194

African

American

and White

parents.

White parents

were not

significantly

different in

child-related

attitudes.

White parents

did perceive

fewer barriers

to treatment

utilization for

themselves and

their children

than did

African

American

Discrimination

Stigma

Peer/Family

Support

Mistrust

Racism

Economic

stress

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51

parents. Discrimination

Stigma

Peer/Family

Support

Mistrust

Racism

Economic

stress

Ward

2005

Examine

African

American

client’s

subjective

experiences

in

counseling.

Qualitative

13 African

Americans

Participants

engaged in

continuous

assessment of

client-therapist

match

(salience of

Black identity,

confidentiality,

and similarity

in ideology

and

perspectives

about

parenting),

safety, and

previous

experience

working with

African

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Americans.

Ward

and

Heidrich

2009

Examine

beliefs

about

mental

illness,

coping

behaviors,

and

treatment

seeking.

Exploratory,

cross-

sectional

survey.

185 African

American

women

83% reported

feeling

comfortable

talking to a

mental health

professional.

60% would not

be

embarrassed if

friends knew

they were

seeking mental

health

treatment.

However,

stigma was

significantly

related to

treatment

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seeking.

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Table 2—Summary of Studies that Explore African American Perceptions of Mental Health, 2003-2013

Study Research

Focus

Research

Design

Sampl

e Size

Population Key Findings Subthemes

Ward et.

al. 2009

Examine

beliefs about

mental

illness,

coping

behaviors,

barriers to

treatment

seeking.

Qualitative 15 African

American

women

Individual

level barriers

were more

prevalent than

systemic

barriers.

Treatment-

seeking

barriers

included poor

access to care

(agency and

socioeconomic

issues),

stigma, and

lack of

awareness of

Discriminatio

n

Stigma

Peer/Family

Support

Mistrust

Racism

Economic

stress

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55

mental illness.

Ward,

Wiltshire

, Detry,

and

Brown,

2013

Examine

African

Americans’

beliefs about

mental

illness, help

seeking, and

coping

mechanisms

.

Quantitativ

e

272 African

American

men and

women

Participants

were not very

open to

acknowledgin

g

psychological

problems due

to stigma

concerns.

Participants

were

somewhat

open to

seeking help,

but preferred

religious based

coping

mechanisms.

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56

Williams

et al.,

2007

Examine the

prevalence

of

psychiatric

disorders

among

Black

Caribbean

immigrants

and African

Americans.

Quantitativ

e

6082 African

Americans

,

Caribbean

Black, and

non-

Hispanic

Whites.

Compared to

African

American

men,

Caribbean

Black men had

higher risk for

psychiatric

disorders.

Haitian and

Spanish men

had lower

odds for mood

disorders than

men from

English-

speaking

Caribbean.

Third

generation

Caribbean

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Blacks had

elevated rates

of psychiatric

disorders than

first and

second

generation.

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Table 3— African and Caribbean Black Perceptions of Mental Health Services in the United States, 2002-2014

Study Research

Focus

Research

Design

Sample

Size

Population Key Findings

Jackson et al.,

2007

Examine the

use and

correlates of

formal

psychiatric

services

between U.S

born and

immigrant

Caribbean

Blacks.

Quantitative 3570 Spanish-

speaking

Caribbean’s,

Haitians, and

English-

speaking

Caribbean’s.

Haitian

respondents were

more likely to

report satisfaction

for specialty

mental health and

African

Americans.

Caribbean Blacks

from English-

speaking

countries were

less likely than

those from

Spanish-speaking

Caribbean and

Haiti as less

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helpful.

Schwartz,

Bernal, Smith,

and Nicolas,

2012

Examines

help-seeking

patterns of

behavior

among

Haitian

immigrants

living in the

U.S.

Quantitative

150

Haitian

immigrants

living in the

U.S.

Participants were

least likely to go

to professionals

for mental health

services.

Participants relied

upon family or

relatives

regardless of the

problem.

Piwowarczky

et al., 2014

Examined

both concepts

of mental

illness in

addition to

attitude and

beliefs about

treatment and

barriers to

Mixed

methods

344 Congolese

and Somali

immigrants

Mental health

concerns were

often dealt with in

the family. Faith

based coping was

used to address

mental health

concerns.

Formalized

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seeking

treatment

among

Congolese

and Somali

men and

women living

in the U.S.

mental health

services in the

U.S. were not

well understood

by the sample.

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Table 3— African and Caribbean Black Perceptions of Mental Health Services in the United States, 2002-2014

Study Research Focus Research Design Sample

Size

Population Key Findings

Ezeobele

2010

Examined

perceptions of

depression

among Nigerian

immigrant

women living in

the U.S.

Phenomenological

study

19 Nigerian

immigrant

women

Stigma was a

major barrier to

seeking mental

health services.

Participants

reported being

isolated from

family after

being

diagnosed with

depression.

Religious

coping was

used more than

formalized

mental health

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services.

DeJesus

and Earl

2014

The aim of this

study was to

identify

indicators of

quality of mental

health care that

matter most to

two

underrepresented

immigrant

patient groups:

Brazilians and

Cape Verdeans.

Qualitative; focus

groups

24

Brazilians

and 24

Cape

Verdeans

Brazilians

and Cape

Verdeans

The

effectiveness of

mental health

care treatment

was related to

two categories

inclusive of the

therapeutic

relationship

and treatment

outcomes.

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