MINIMAL DATA SET FOR QUITLINES North American Quitline Consortium Annual Meeting May 2005 NORTH AMERICAN QUITLINE CONSORTIUM

MINIMAL DATA SET

FOR QUITLINES

North American Quitline Consortium Annual MeetingMay 2005

NORTH AMERICAN QUITLINE CONSORTIUM

MDS Working Group

Eric Auguston Sharon Campbell Sharon Cummins Donna Czukar Corrine Husten Anne Joseph Ann Malarcher Paul McDonald

Deborah Ossip-Klein Joanne Pike Abby Rosenthal Jessie Saul Barbara Schillo Donna Vallone Susan Zbikowski

Plus many other volunteers

WHY A MINIMAL DATA SET?

Quitlines are new …

Few answers to operational questions

Hard to determine what contributes to success Different definitions of caller, smoker, quitter Different measures of quit rates Different follow-up periods Different numerators and denominators

Comparing and learning from other quitlines very difficult

What can a Minimal Dataset do?

1. Facilitates performance monitoring and operational management

2. Makes comparisons possible

3. Allows for better understanding of quitlines

What Else?

Provide stakeholders with a standard approach to reporting quitline performance,

Provide researchers with common indicators to conduct descriptive and comparative research.

STEPS IN DEVELOPMENT 2001

2003

2003 - 2004

Feb 12, 2005

May 2005

Sept 2005

Need for Common Evaluation Framework – Phoenix Quitline Conf.

NAQC establishes MDS Working Group (became the Evaluation and Research Group)

Consultation with Quitline Stakeholders Identify Existing Indicators & Measures

Finalize and Sign Off Use of MDS in European Quitline Network

Study

Roll-out and testing by quitlines

Implementation across NA

Principles

1. Not impose undue burden on quitlines

2. Feasible to collect and report

3. Meaningful, valid and reliable

4. Tied to decision making and performance indicators

Four Questions All Quitlines Ask

1. Who uses (and doesn’t use) quitlines?

2. How do we best promote quitlines?

3. What proportion of smokers in the target population does the quitline reach?

4. Are quitlines effective and for whom?

Domains included in MDS

Awareness of quitline

Reach and Utilization

Caller characteristics

Tobacco Behaviours

Satisfaction with service

Service Delivery (intervention provided)

Components of Minimal Data Set

1. Quitline Survey

2. 15 Intake Questions

3. 11 Follow-up Questions

4. Optional Questions

5. Guidelines for Tracking

6. Technical Documents and Assistance

Quitline Survey

Standardized description of quitline service model, operational aspects of quitline, staffing, eligibility criteria, interventions, promotion.

Allows understanding of differences in service models that may influence quitline performance

See: 2004 Survey Results www.naquitline.org

Intake Questions

Reason for Call (quit, stay quit, information)

How Caller Heard about Quitline

Who Calls (tobacco user, proxy, referral, first time or repeat; caller demographic characteristics)

Tobacco behaviors (type, amount of tobacco, level of addiction, intent to quit next 30 days)

7 month Follow-Up Questions

Caller satisfaction Tobacco behaviors (type, amount of tobacco, level of

addiction). Will be able to calculate if callers switch type of tobacco used between first call and follow-

up

Quit attempt (for 24 hours)

Quit Rates (7 day, 30 day point prevalence, prolonged abstinence)

Use of other cessation aides

Tracking Data

Date and Type of First Call

Intervention Provided

Vendor / Operator

Evaluator

Follow-up Period

First callIntake +/-Counsel

Intervention- Counseling Reactive Proactive-Referral-Self-help- NRT

Follow-Up-Reduce-Switch-Quit Attempt-Quit Rate-Satisfaction

X XDay One

One Month Six Months

. . . . . . . . . . . . . . . . . . . . . . . . . . . . Seven Months

Quitline collects Evaluator collects

Repeat Callers

Jan Feb Mar Apr May Jne Jly Aug Spt Oct Nov Dec Jan Feb Mar Apr

x1 FU

x3

x2 x2

x1

Each Caller should be in denominator only once per 12 month period

FU

Definitions (examples)

Counseling: Caller centered, tailored to person, in depth, motivational interaction

Information: objective, neutral information about consequences of smoking, cessation methods, referrals.

First Call: caller speaks to quitline staff, includes screening or intake interview. Does not include voice message.

Challenges Balance service delivery with data collection Comparison of current and historical results

with MDS results

Benefits Better understanding of quitlines Ability to learn from others

Next Steps

Presentation to North American Quitlines Implementation team

Technical Assistance Timeline for implementation – September 2005

Go !! Report, Review, Adjust (in Dec 2005)

Acknowledgements

Members of MDS Working Group

Health Canada

American Legacy Foundation

National Cancer Institute

Contact Information

Members of MDS Working Group

c/o Linda Bailey, Executive Director, NAQC

Email: [email protected]

Website. : www.naquitline.org