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Opportunity for Choice in the National Down’s Syndrome Screening Programme (NDSSP) Presented by: Nancy L. Chung

Opportunity for Choice in the National Down’s Syndrome Screening Programme (NDSSP) Presented by: Nancy L. Chung

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Page 1: Opportunity for Choice in the National Down’s Syndrome Screening Programme (NDSSP) Presented by: Nancy L. Chung

Opportunity for Choice in the National Down’s Syndrome Screening Programme (NDSSP)

Presented by:

Nancy L. Chung

Page 2: Opportunity for Choice in the National Down’s Syndrome Screening Programme (NDSSP) Presented by: Nancy L. Chung

The partners

Page 3: Opportunity for Choice in the National Down’s Syndrome Screening Programme (NDSSP) Presented by: Nancy L. Chung

The NHS FASP

• Established in 1996.

• National lead for antenatal screening for chromosomal and structural abnormalities.

– Down’s syndrome screening– 18+0-20+6 week ultrasound scan

• Accessibility• Equality• Quality• Choice

Page 4: Opportunity for Choice in the National Down’s Syndrome Screening Programme (NDSSP) Presented by: Nancy L. Chung

Down’s syndrome screening

Page 5: Opportunity for Choice in the National Down’s Syndrome Screening Programme (NDSSP) Presented by: Nancy L. Chung

Commissioning tool

Women with singleton pregnancy at 10 weeks

Spontaneous miscarriage before screening offered

Offered screening

Spontaneous miscarriage

Spontaneous miscarriage

Accept screening test

Decline screening test

High risk result

Low risk result

Down’s birth

Other birth

Go to 1

Accept CVS or amniocentesis

Decline CVS or amniocentesis

Positive test

Negative test

No procedural related miscarriage

Procedural related miscarriage

Go to 1

Accept TOP

Decline TOP

Go to 1

TOP

Live Birth

1

Go to 1

10-14/16 weeks

10 weeks To term

Page 6: Opportunity for Choice in the National Down’s Syndrome Screening Programme (NDSSP) Presented by: Nancy L. Chung

NHS FASP benefits

Page 7: Opportunity for Choice in the National Down’s Syndrome Screening Programme (NDSSP) Presented by: Nancy L. Chung

PenTAG benefits

(Peninsula Collaborations for Leadership in Applied Health Research and Care)

Page 8: Opportunity for Choice in the National Down’s Syndrome Screening Programme (NDSSP) Presented by: Nancy L. Chung

Associate benefits

Health economics

Modelling

UK health care system

Page 9: Opportunity for Choice in the National Down’s Syndrome Screening Programme (NDSSP) Presented by: Nancy L. Chung

Conclusion

• Project is now in the pilot phase.

• Overwhelmingly positive response.

• Interest in sharing the tool and transfer to other UK screening programmes.

• National and international interest in the project.

• Setting FASP as an innovator.

Page 10: Opportunity for Choice in the National Down’s Syndrome Screening Programme (NDSSP) Presented by: Nancy L. Chung

Nancy L. Chung, BSc (Kinesiology), MBA, MHSA

NHS FASP Innovation CentreRennes DriveUniversity of ExeterExeterDevonEX4 3AG

[email protected]

Thank you

http://fetalanomaly.screening.nhs.uk/

http://sites.pcmd.ac.uk/pentag/main.php?c=welcome