10
VOLUME V I ISSUE I Winter 2010 Coordinator Lisa A. Brovold Nebraska Chapter Mary Egger, President Mary Jane Petersen, Secretary Bev Baker, Treasurer ——————————— Parkinson’s Progress report is published quarterly as an information guide only. The newsletter does not serve as legal or medi- cal advice. Inside this issue: Parkinson’s Awareness 1 Walk-a-thon and 2 Golf Tournament 3 3rd Annual North Platte 4 Education Calendar 4 Low Blood Pressure And Parkinson’s disease 5 Gifts 6 Gifts 7 fyi 8 The Parkinson’s Com- munity Loses a Leader 8 A Place to Belong 9 Save the Date 10 NEBRASKA APDA INFORMATION AND REFERRAL CENTER Parkinson’s Progress report A P R I L Did you know… Nebraska has the highest prevalence per capita for Parkinson’s disease in the world? Did you know… Nebraska along with South Dakota, North Dakota, Minnesota and Iowa are in the “Heartland Hub” of the top five states for the disease? Did you know… Nebraska was the first state to have a Parkinson’s registry? Did you know… WE CAN MAKE A DIFFERENCE BY GETTING INVOLVED! Several mayors throughout Nebraska are declaring April as “Parkinson’s Awareness Month” for their city by signing a proclamation and presenting it to the local support group. You are welcome to participate by attending these presentations. More information about Awareness activities will be found on our website, www.parkinsonsne.org under events. COLUMBUS —Thursday, March 11 at 1:3pm; Columbus Community Hospital, 3rd Fl. FAIRBURY—Completed in February HASTINGS—Monday, March 22nd at 7pm; 220 N. Hastings Avenue LINCOLN— MAYORAL - Friday, April 16 at 10:30am; 555 S. 10th Street, Rm. 208 LINCOLN— GOVERNOR - Weds., April 7 at 10:30am; Warner Chamber, State Capital, 2nd Floor NORFOLK—Monday, April 5th at 5:30pm; 309 Madison Avenue; Council Chamber NORTH PLATTE—Thursday, March 25 at 8:00am; City Hall, 211 W. 3rd Street OMAHA—Tuesday, April 13 at 9:30am; City Hall, 1819 Farnam Street, 3rd Floor PAPILLION—Tuesday, April 6th at 7:00pm; 122 East Third Street RALSTON—Tuesday, April 6th at 7:00pm; City Hall, 5500 S. 77 Street SPENCER—Wednesday, April 7th at 7pm; City Hall, 208 W. Vinton Street

Parkinson’s Progress report · Mary Egger, President Mary Jane Petersen, Secretary Bev Baker, Treasurer ——————————— Parkinson’s Progress report is published

  • Upload
    others

  • View
    2

  • Download
    0

Embed Size (px)

Citation preview

Page 1: Parkinson’s Progress report · Mary Egger, President Mary Jane Petersen, Secretary Bev Baker, Treasurer ——————————— Parkinson’s Progress report is published

VOLUME V I ISSUE I Winter 2010

Coordinator Lisa A. Brovold

Nebraska Chapter

Mary Egger, President Mary Jane Petersen,

Secretary Bev Baker, Treasurer

——————————— Parkinson’s Progress report is published quarterly as an information guide only. The newsletter does not serve as legal or medi-cal advice.

Inside this issue: Parkinson’s Awareness 1

Walk-a-thon and 2

Golf Tournament 3

3rd Annual North Platte 4

Education Calendar 4

Low Blood Pressure And Parkinson’s disease

5

Gifts 6 Gifts 7 fyi 8 The Parkinson’s Com-munity Loses a Leader

8

A Place to Belong 9

Save the Date 10

NEBRASKA APDA

INFORMATION AND

REFERRAL CENTER

Parkinson’s Progress report A P R I L

Did you know… Nebraska has the highest prevalence per capita for Parkinson’s disease in the world?

Did you know… Nebraska along with South Dakota, North Dakota, Minnesota and Iowa are in the “Heartland Hub” of the top five states for the disease?

Did you know… Nebraska was the first state to have a Parkinson’s registry?

Did you know…

WE CAN MAKE A DIFFERENCE BY GETTING INVOLVED! Several mayors throughout Nebraska are declaring April as “Parkinson’s Awareness Month” for their city by signing a proclamation and presenting it to the local support group. You are welcome to participate by attending these presentations. More information about Awareness activities will be found on our website, www.parkinsonsne.org under events. COLUMBUS —Thursday, March 11 at 1:3pm; Columbus Community Hospital, 3rd Fl. FAIRBURY—Completed in February HASTINGS—Monday, March 22nd at 7pm; 220 N. Hastings Avenue LINCOLN— MAYORAL - Friday, April 16 at 10:30am; 555 S. 10th Street, Rm. 208 LINCOLN— GOVERNOR - Weds., April 7 at 10:30am; Warner Chamber, State Capital, 2nd Floor NORFOLK—Monday, April 5th at 5:30pm; 309 Madison Avenue; Council Chamber NORTH PLATTE—Thursday, March 25 at 8:00am; City Hall, 211 W. 3rd Street OMAHA—Tuesday, April 13 at 9:30am; City Hall, 1819 Farnam Street, 3rd Floor PAPILLION—Tuesday, April 6th at 7:00pm; 122 East Third Street RALSTON—Tuesday, April 6th at 7:00pm; City Hall, 5500 S. 77 Street SPENCER—Wednesday, April 7th at 7pm; City Hall, 208 W. Vinton Street

Page 2: Parkinson’s Progress report · Mary Egger, President Mary Jane Petersen, Secretary Bev Baker, Treasurer ——————————— Parkinson’s Progress report is published

2 E V E N T S

Walk-A-Thon

Hand in Hand, Linking Lives for Parkinson’s

The American Parkinson Disease Association (APDA) Nebraska Chapter is sponsoring a series of statewide fundraising events during the month of April to highlight Parkinson’s Awareness Month. “Nebraska has the highest number of citizens per capita with Parkinson's Disease in the nation, which is why raising public awareness through education is a priority,” Lisa Brovold, coordinator for the APDA Information and Referral Center, noted. “Among the neurological diseases, Parkin-son’s is second only to Alzheimer’s in occurrence and it affects more people than multiple sclerosis, muscular dystrophy and Lou Gehrig’s’ disease (ALS) combined.” Parkinson’s Awareness Month is highlighted by the third annual Hand in Hand, Linking Lives for Parkinson's event, an evening fundraising event scheduled for April 24, 2010, at the Embassy Suites in La Vista. The evening will include a formal dinner, live and silent auction, and raffle. All funds raised will stay in Nebraska and directly benefit the organiza-tion’s educational and support group initiatives. The Honorary Chairs are Joan Squires and Thomas Fay. This year, the 2010 honoree will be Kenneth Follett, MD, PhD, Chief of the Section of Neurosurgery for the University of Nebraska Medical Center. Dr. Follett has been instrumental in the medical management of Parkinson’s Disease through the Deep Brain Stimulation surgical procedure, as well as his participation in Parkinson’s research. In addition to the Hand in Hand event held in Omaha, events will be held across the state. “We hope gatherings such as these will grow each year, and become annual events,” Brovold added. “With 1.5 million people in the U.S affected by Parkinson’s, the need to raise public awareness of the disease through the work of the Ne-braska APDA Chapter and Information & Referral Center as well as the local support groups has never been greater.” For more information, please contact the Nebraska Chapter office at (402) 392-2732.

Hand In Hand

Form

A Team

Have Some Fun!

REGISTRATION FORM TO BE MAILED IN APRIL

Walk-A-Thon MILLER’S LANDING

At the Riverfront

Sunday, June 6, 2010 Registration at 12 Noon Walk begins at 1:00pm

Page 3: Parkinson’s Progress report · Mary Egger, President Mary Jane Petersen, Secretary Bev Baker, Treasurer ——————————— Parkinson’s Progress report is published

3 E V E N T S Golf Tournament

SAVE THE DATE! Saturday, June 26, 2010

Parkinson’s Golf Invitational Tournament HiMark Golf Course

Lincoln, Nebraska

Registration: 10am Mega Putt: 11:15am

Starting Tee Times: 11:30am Buffet, Auction and Raffle: 5pm

SPONSORSHIP REGISTRATION

Yes, I/we would like to support the 2010 Parkinson’s Invitational Golf Tournament. Please find our check enclosed that will match our sponsorship selection. □ CORPORATE SPONSOR: $ 650 □ TEAM SPONSORSHIP: $ 500 Attach list of team members to registration. □ EVENT HOLE SPONSOR: $ 160 □ INDIVIDUAL ENTRY: $ 125 SPONSOR CONTACT NAME: __________________________________ ADDRESS: ___________________________________________________ CITY, STATE, ZIP: ____________________________________________ PHONE: ___________________CELL: ___________________________ EMAIL: ______________________________________________________

PLEASE MAKE CHECK PAYABLE TO:

“Creighton University - APDA”

MAIL REGISTRATION FORM AND CHECK TO: MS. LISA A. BROVOLD

APDA INFORMATION AND REFERRAL CENTER 601 NORTH 30TH STREET, SUITE #2902B

OMAHA, NE 68131

Page 4: Parkinson’s Progress report · Mary Egger, President Mary Jane Petersen, Secretary Bev Baker, Treasurer ——————————— Parkinson’s Progress report is published

4 E D U C A T I O N

THIRD ANNUAL PARKINSON’S SYMPOSIUM:

“BACK TO THE BASICS” Sandhills Convention Center

2102 South Jeffers North Platte, Nebraska We are excited to present the Third Annual Parkinson’s Symposium! A unique sympo-sium focusing on the basics of the disease, diagnosis and management will take place on Friday, May 21, 2010 in North Platte, Nebraska. An exciting forum of speakers will be lectur-ing to both medical professionals and community participants. One conference setting will host physicians, nurses, pharmacists, physical, occupational and speech therapists, while another conference will target patients, spouses, family and caregivers. Dr. Katherine Widnell, a Movement Disorder Specialist from Wichita, Kansas, will instruct the attendees on the clinical diagnosis, UPDRS and other Parkison’s scales and treatment of the disease. The host moderator and neurologist, Dr. Jose Cardenas will address the vari-ous imposters and impersonators of Parkinson’s disease since it is misdiagnosed one out of five times. Dr. Maureen Leehey, Movement Disorder Specialist from Colorado will discuss the non-motor symptoms associated with the disease but not always recognized. A special First Person Parkinson’s panel comprised of four people with Parkinson’s at different stages of the disease will complete the program.

Look for the brochure in April!

NORTH PLATTE

PARKINSON’S

SYMPOSIUM

Date/Time Spring/Summer Event Monday, April 19 1:15pm

Parkinson’s Empowerment Program (PEP) Teleconference

“Preparing a Personal Health Record” Theresa Rihanek, RHIA

Contact (866) 626-7347 or online at www.parkinsonsne.org

Friday, May 21 All Day

Third Annual Parkinson’s Symposium “Back to the Basics”

Sandhills Convention Center North Platte, Nebraska

Contact (866) 626-7347 or go online to www.parkinsonsne.org

Monday, July 19 1:15pm

Parkinson Empowerment Program Teleconference:

“Dental Care Issues” John Shaner, DDS

Contact (866) 626-7347 or online at www.parkinsonsne.org

Page 5: Parkinson’s Progress report · Mary Egger, President Mary Jane Petersen, Secretary Bev Baker, Treasurer ——————————— Parkinson’s Progress report is published

5 E D U C A T I O N

     The nervous  system of  the body  is very complex.   Of course, we know  that  the central nervous system, of which the brain is a part, is affected in Parkin‐son’s disease.   But the effects go beyond the changes  in movement  and  posture  that we  easily  recognize.    An‐other part of the nervous system  that  is responsible  for controlling  functions of  the body  that are generally not voluntary  (heart  rate,  digestion,  salivation,  perspiration etc.)  can  also  be  affected.   When  that  happens,  some patients with  Parkinson’s  disease  find  themselves  dizzy because of changes in their blood pressure.  In some per‐sons  the blood pressure drops  too  low and may predis‐pose them to injury secondary to falls.  This problem oc‐curs with higher frequency in older patients.        There  are  three  types  of  low  blood  pressure  (also called  “hypotension”)  that  may  occur  in  persons  with Parkinson’s disease.   The first type  is related to changes in  position.    Most  of  us  have  experienced  that  light‐headed feeling when we stand up from a sitting or  lying position too quickly.  This can occur more frequently and symptoms can be more pronounced  in a Parkinson’s pa‐tient who has changes to the part of the nervous system that helps regulate blood pressure.   Normally,  the body is able to compensate for positional changes by  increas‐ing heart‐rate  and  changing  the  tone of  the blood  ves‐sels.   When  this doesn’t happen  adequately,  the blood pools  low  in  the  body,  and  the  organs  (including  the brain)  temporarily  get  less  blood  and  oxygen.    This causes  symptoms  such  as  dizziness,  bodily  dissociation (when a person feels like they are not in their body), dis‐tortions  in  hearing,  lightheadedness,  headache, blurred or  dimmed  vision  (possibly  to  the  point  of momentary blindness),  numbness/tingling  and  in  extreme  cases fainting.   For persons who experience frequent dizziness when  they  change  position,  the  obvious  recommenda‐tion is to make sure that those changes are made slowly, and  in  stages  to  give  the  body  time  to  adjust  to  the change in blood flow direction that occurs.       The second common cause of  low blood pressure  in persons with Parkinson’s disease  is  ingesting  food.   Be‐lieve  it or not,  simply eating a meal can cause a  signifi‐cant enough decrease in blood pressure to pre‐dispose a person to falling and injury.  In people who have Parkin‐son’s  disease,  this  type  of  low  blood  pressure  occurs more  commonly  than  the  positional  type  described above.    In fact, half of the cases of unexplained fainting in  Parkinson’s  patients  are  due  to  blood  pressure changes related to the ingestion of food!  The reason this 

occurs  is  that  after  a meal  is  eaten,  the  body  sends  a large amount of blood to the  intestines to aid  in the di‐gestive  process.    This  happens  normally  in  the  Parkin‐son’s  patient,  but  the  ability  of  the  body  to  make changes  to  compensate  for  that  shunting  of  the  blood away  from  other  organs  is  impaired,  so  dizziness  and other symptoms of low blood pressure occur.  There are several strategies to help alleviate symptoms.  The first is to  change  the make‐up  of  the meal  to make  sure  that both  the  fat  content and  the  carbohydrate  content  are relatively  low.   Another  recommendation  is  rather  than sitting down to 2 or 3 large meals, eat smaller quantities of food throughout the day.  Both of these strategies de‐crease the incidence of low blood pressure.      The  third  cause  of  low  blood  pressure  is  the  use  of medications  used  to  treat  Parkinson’s  disease.    Several drugs,  including  levodopa,  have  been  shown  to  cause decreases  in  blood pressure  in  certain  individuals.    If  a new drug has recently been added to the patient’s regi‐men,  or  if  the  dose  of  a  drug  was  increased  and  the symptoms of  low blood pressure started soon after,  it  is possible  that  symptoms  could  be  alleviated  simply  by decreasing  the dose or  substituting another medication that does not cause the same side‐effects in a particular person.      The  good  news  is  that  even  though  a drop  in blood pressure  in  Parkinson’s  patients  is  relatively  common, there is no need to be alarmed unless symptoms are pre‐sent and hard  to control.   Even  if  taking blood pressure readings  before  and  after  a meal  or while  a  person  is standing versus sitting or lying down causes a noticeable change in blood pressure, unless the patient can feel the change and it puts them at risk, there is no need to inter‐vene.    If  symptoms are present,  there are  some  simple changes that can be made to try to alleviate them.        For instance,  increasing  sodium  and  water  intake, mild  or moderate  exercise  (heavy  exercise  can make  the  situa‐tion worse), avoidance of alcohol, avoidance of warm or humid weather and elevating the head of the bed are all options that may help.   There are also medications that have been used for patients whose symptoms are more severe, including midodrine (which causes the blood ves‐sels  to constrict  thereby  increasing pressure) and  fludri‐cortisone (which increases blood volume).         Make sure that any symptoms are confirmed to be due to  low blood pressure before making any of the changes above by seeing a health care provider.       

Low Blood Pressure and Parkinson’s Disease Michele Faulkner, Pharm.D

Page 6: Parkinson’s Progress report · Mary Egger, President Mary Jane Petersen, Secretary Bev Baker, Treasurer ——————————— Parkinson’s Progress report is published

6 G I F T S Memorial: Alan Glasnapp Maxine Skattebo Andrew “Les” Nelson Alan & Barbara Hove Beverly Eastberg Dona Neary Gerald & Florence Allen Geralene Corbin Gordon & Sharon McDonald Gregg Larsen Joseph & Susan Taylor Julie Duncan Larry & Judy Webster Lawrence & Joyce Jacobsen Malcolm & Linda Watt O. W. Olson Patsy Jo Nelson Phyllis Preble Richard & Trudy Ortlieb Steven & Patty Parks Thomas & Donna Webster Timothy & Cindy Burns Tom & Marlene Adamson Darold & Virginia Nelson Betty Bell David & Kathleen Foster M. K. Kruse Michael Bolinger Betty Knaup John & Jayne Jones Bill Mullenax Amy Huck Bill Watson Stephen & Brenda Curran Bob Bathke Todd & Dianne Titze Brad Kelly Velma Kelly Charles Ray Ann Trickler-Wessel Caren Grandgenett & Family Carl & Betty Johnson Carmen & Fredric Kraub Clifford Neuroth Dale & Marilyn Wood David & Beverly Danbom Don & Rose Edwards Donna Delsing Joni Jaspersen Family Dorothy Ray Doug & Marti Cullan Gary & Jo Buchheif Gary & Kathy Getterl Gerald Goetzinger Greg & Margaret Hansen Barbara Messersmith Jack & Rhonda Manning

James C. Ray Jeremy & Lilly Velotta Ken & Linda Luce Kendall Packard Lee & Barb Nessersmith Lorence & Eleanor Phillips Pat & Pat McMahon Perry Britsch Phyllis Worley Randy & Lori Danner Robert & Jennifer Nichols Roger & Kathy Gaertig Steve & Sally Engelhaupt Sue Madsen Thompson Family Tressa Duncan Virginia Wagner Bob & Beverly Crownover Chet Albright Marilyn Albright Classtol “Ed” Watson Grameray Hills Retirement Acklie Charitable Founda-tion Clyde Riggs Andrew & Nevabelle Howe Berendina Eman Bruce Levi & Kaye Wild Maude Riggs Maurietta Schoolfield Roger & Martha Tweedy Ross & Yvonne Gibbons Ruth Jones Darrel Ahlschwede David & Nyla Helge Dr. John P. Tiedeman Allen & Theresa Maxwell Alta Sharp Brian & Bev O’hara CUMC Service League Doris Ellen Nurre Dorothy Wagner Dr. Scott & Marjorie Di Lorenzo Gary & Krista Nelson Joan Mares Judy Cheever Julie & Charles Burt Kathleen & Jan De Roos Larry & Sharon Walsh Robert & Mary Lueder Sid & Dawn Dinsdale Steve & Debra Murray William & Maureen Johnson Eunice Hingst Alvin Hingst Fred Schweigart Karen Fetters Gail Porter

Gary & Rose Hoffman Rita M. Porter & Family George Warnsholz Dellene Miller Leona Warnsholz Merlin & Mary Heinselman William & Brenda Cohn Hayne Hatson Kay Lynn & John Goldner Helen Shamblen Baird Holm LLP Joe & Gay Filler Pamela Christiansen Sharon Peterson Steve & Ann Schmidt Jack Dixon Bowen & Caroline Taylor Dean & Christine Dutter Georgia Lambert Unity Lodge #18 Free & Accepted Masons Jim Smutny Henry & Marjorie Lorenz Norma Waller Joan Dalton Gary & Ellen Batenhorst George & Marcia Bergstrom Myron & Harriet Marko Sally Clayman Tom & Suzy Elkins Virginia Curley Joe Wolfson Leona Wolfson John Bartos Mrs. Leanore Bartos Kent Paul Kratz Alan & Sandra Thelen Alfred & Ann Longo Connie & Bob Bowen Denise Miller Ellen Batenhorst Jack Jackson Trust James & Judy Cunningham Jim & Esther Wax Judy Buono Kathleen & Jan De Roos Kathleen Thamm Kenneth & Jacqueline Kluck Mike & Lorraine Mc Laughlin Omaha Douglas Federal Credit Union Patrick Roddy Paul & Cheryl Elofson Paul Kratz Richard & Nathalie Hart Rollin & Virginia Olds Ronald Brown Rosemary Zukaitis Sharon Zadina

Page 7: Parkinson’s Progress report · Mary Egger, President Mary Jane Petersen, Secretary Bev Baker, Treasurer ——————————— Parkinson’s Progress report is published

7 G I F T S Robert Speich Donald & Dolores Finch Elizabeth Nielsen Jack & Colleen Moreland Margaret Speich Maurice & Maxine Stout Robert & Jeanette Knobel Sharon Andersen Roscoe Richards Neta Johnson Sam Stoll Gary & Deanna Hedman Miriam Dokken Telecom Pioneers Denver PAC Stanley M. Heng Allan & Mardell Hergenrader Bill & Pat Kuehn Bob & Marlene Roberts Dennis & Marina Barrett Fred & Connie Gustin Gary & Vera Salmon James & Gladys Meyer John & Anne Hibbing Kenneth & Mary Meyer Larry & Norma Schenkel Marlene & Bob Roberts Michael & Lea Kinnison Paul Thoren Ray & Beth Dittmer Stephen & Elaine Robinson Susan & Glen Baade Waldon & JoAnn McNaught Walt & Carol Zink Steve Revord Todd & Dianne Titze Teeter Gregory & Laura Garrett Vernon Plager Betty Hodtwalker Dennis & Beth Flynn Dennis & Elizabeth Klawonn Deon & Susan Bahr Don & Linda Nelson Laurie McEntarffer Michele Smith Milton & Holly Rogge Richard & Geraldine Bohling Ruby Plager Steve & Lori Cartagena William & Pamela Siefert

Walter & Marjorie Gillen Gregory & Kathleen Bartels Lavone Ricklefs Richard & Bonnie Boyer Leonard Leffers Kendall & Linda Christensen Marlene Potts Lowell Turner Barbara Masilko Dianne Desler Joe & Jo McCartney Leanna M. Jones Ralph R. Burrell Margaret Behrens Ron & Maxine Kantor Marge Walstrom Irma Rosberg Marianna Jensen Todd & Dianne Titze Marilyn White Ken & Mary Frank Lincoln benefit Life Company Marjorie Lewis Don & Kathy Vojtech Mary Hunter Bonna Richard Mary Jo Torring Conrad & Lucille Nelson Dean & Charlotte Sunde Erik Torring James & Diane Parks Joseph & Barbara Kenney Larry & Ramona Swett Lyle & Sharon Reed Melvin & Barbara Dodenhof Ronald & Francia Witt Sharon Dunham Ted & Vickie Dunham Thomas & Susan Tiehen William & Nancy Holloran Winnie Vanfleet MaryAnn Junge Dan & Dalene Aydelott Mazie Nuzum Neta Johnson Milton Brigham Barbara Berg Weldon Sleight Neils Wodder Ron & Maxine Kantor Ray Aldrich CDR & Mrs. Brian Clark Robert Conklin Ray & Nellie Faye Hagberg Robert Q. Stierle Darold & Virginia Nelson

Virginia Broad Sally Farnham Wayne M. Watson Seldin Company William Mangen Steve & Esther Scarpello Honorariums: Dick Danielson Jackie Danielson Donna Lathan National Indemnity Company Jeannine Upchurch Ron & Maxine Kantor Judy Johnson Neta Johnson Phil & Bonnie Sykes Jean Preston Donations: Annette Dorheim Arthur Laursen Brian & Christine Reilly Brian & Janet Clark Bridgette Torring Catherine Goaley Cherri Wegner Clair Duval D. G. & Marie Kleinschmidt Darlene Bart David & Betty Baxter David & Marjorie Gell Deborah Grant Dennis & Lorene Lanham Don & Lori Moldenhauer Don & Nedra Wilcox Donna Grant Doyle & Peggy London Elizabeth Ryan Estella Perkins Eustis Community Chest Frank & Betty Coppola Gary & Lois Burger Glenn Stippich Hamilton Manor Henry & Jean Krug Inez Mortensen J. Duane Swanson Jack & Marg Burt James & Claire Hampton James Mallory Jan Dudley Jean Varallo

Page 8: Parkinson’s Progress report · Mary Egger, President Mary Jane Petersen, Secretary Bev Baker, Treasurer ——————————— Parkinson’s Progress report is published

8

Powerful Tools for Caregivers

Powerful Tools for Caregivers is an educa-tional program designed to provide caregiv-ers with tools useful for taking care of them-selves. During six weekly sessions partici-pants will learn how to reduce stress, balance life, make tough decisions, improve self confi-dence, better communicate their feelings and locate helpful resources. When a caregiver takes care of themselves, the care receiver also benefits. The sessions are free of charge. For information on dates of sessions call Executive Services Corps: 402-522-7934

New Group in Seward, Nebraska

Beginning Tuesday, March 23rd, a new sup-port group will be available in Seward, Ne-braska. Beth Block and Jean Prochnow will be co-facilitating the group. The meeting will be held at the Greene House on 600 Church Street. You can contact Beth Block at (402) 634-9111 for more details. There are areas all over Nebraska that do

not have any Parkinson’s representation. If you are interested in starting up a Parkinson’s support group in your area, contact Lisa Brovold at the Parkinson’s Center (866) 626-7347.

f.y.if.y.if.y.i

G I F T S Donations: Jeannie Gospodarski John & Barbara Carey John & Elizabeth Mack John & Sharleen Ragsdale Joseph & Luann Warth Karen Deaver Karen Marek Kathy Hunke Keith & Donna Frederick Legacy Estates Leola Knudsen Lois & Dean Willoughby Loyal & Lorene Quandt Lucy Mora Lynne Nevin Mabel Shafer

Mark Deras Martin Wiedenman Mary Ann Krzemien Mary Meints Matthew & Natalie Rademacher Melvin & Charlotte Timm Merlin & Beverly Brown Michael & Mildred Burger Michael & Robynn Ewing Miller Park Women’s Golf Nadine Frost Paul & Christine Sevener Paul & Jacqueline Anderson Paula Spanke Phil & Bonnie Sykes Richard & Barbara Dienstbier Richard & Janice

Moldenhauer Richard & Karol Kubat Robert & Bonnie Smola Roger & Mary Chisholm Stephanie Howard Stuart & Carol Leonard Thomas & Christan Murray Thomas & Melissandra Prohaska Thomas & Audrey Mcaloon Tom & Lisa Wurtz Truist United Way of The Midlands Wanda Klawonn William & Juanita Moore William Coats Sr. William Etmund William Welch Willie Padgett

Gianpaola Maestrone, DVM, known to all in the American Parkinson Disease Association (APDA) as Paul, died suddenly on October 5 on Staten Island. Dr. Maestrone was APDA’s director of scientific and medical affairs for 21 years. “Dr. Maestrone brought a wealth of knowledge and dedication to the position,” said APDA president Joel A. Miele, Sr., PE. “He was a Fulbright Scholar, industry research leader, and holder of four U.S. patents before joining our organization and immediately put his talents and creativity to work to expand and strengthen it.” Under Dr. Maestrone’s direction, APDA created nine Centers for Advanced Research, 60 Information and Referral Centers, expanded its support group network to more than 1,000 and funded millions of dollars in Parkinson’s disease research and patient/caregiver support and education programs. Dr. Maestrones’ interests were global in scope. At the time of his death, he was president of the World Parkinson Disease Association, which he created in 1998. One of his proudest awards came in 2005 when the Italian town of Vigevano presented him its emeritus Citizen Medal for his contributions to the people with Parkinson’s disease. He leaves his wife of 53 years, Sophia, a son and two daughters, seven grandchildren and two great grand-children.

Reprinted with permission for National APDA

The Parkinson’s Community Loses a Leader

Page 9: Parkinson’s Progress report · Mary Egger, President Mary Jane Petersen, Secretary Bev Baker, Treasurer ——————————— Parkinson’s Progress report is published

9 A Place to Belong... Adams Karma Boddy - Co-Facilitator Diane Nieveen - Co-Facilitator Gold Crest Retirement Center 200 Levi Lane (402) 988-7115 3rd Tuesday at 6:30pm Beatrice Harold Brown – Facilitator Good Samaritan 1306 S. 9th Street (402) 228-2680 1st Monday at 10am Broken Bow Glenda Ward - Facilitator Prairie Pioneer Center 1314 South “B” Street (308) 872-3974 2nd Thursday at 7pm Columbus Virgil Chochon – Facilitator Columbus Community Hospital 4600 38th Street (402) 564-1438 2nd Thursday at 1:30pm Fairbury Lana Likens – Facilitator Jefferson Community Health Ctr. 2200 “H” Street (402) 729-3351 1st Monday at 10am Gering-Scottsbluff Jack & Donna Johnson-Facilitators Northfield Villa 2550 21 Street (308) 235-2513 4th Wednesday at 2pm Grand Island Connie Van Wie - Co-Facilitator Charlotte Brown - Co-Facilitator 1st Presbyterian Church 2103 West Anna Street (308) 382-3713/384-5997 3rd Sunday at 2pm Hastings Flossie Saathoff - Facilitator First St. Paul Lutheran 918 W. 4th Street (402) 462-9970 4th Wednesday at 2pm

Kearney Andy & Nevabelle Howe – Facilitators First United Methodist Church 4500 Linden Drive (308) 234-1570 2nd Tuesday at 2pm Lincoln Judy Johnson – Facilitator Madonna Rehab Center 54 and South Streets (402) 435-8946 4th Sunday at 2pm McCook Wally & Gloria Gummere – Facilitators Community Hospital 1301 E. “H” Street (308) 276-2651 3rd Monday at 1pm Nebraska City Kim Meredith Morton House 1500 14th Avenue (402) 873-5551 Call for date/time Norfolk Phil & Bonnie Sykes – Facilitators Lutheran Hospital Nebraska Rm. 2700 Norfolk Avenue (402) 371-6613 1st Tuesday at 2pm North Platte Carolyn Fear – Facilitator First United Methodist Church 1600 W. “E” Street (308) 534-7404 1st Monday at 7pm Omaha Ron & Maxine Kantor – Facs. Creighton Univ. Med. Center 601 N. 30 Street, Dining Rms A-C (402) 393-9169 3rd Thursday at 11:30am Carepartner’s Gathering Mary Mick - Facilitator APDA Nebraska Chapter Office 501 N. 87 Street, Suite 207 (402) 449-4535 2nd Wednesday at 10am Early Onset Katie Domayer – Co-Facilitator Colleen Wuebben - Co-Facilitator (402) 551-0602/397-0327 Call for day/time

Evening Lisa Brovold APDA Nebraska Chapter office 501 N. 87 Street, Suite 207 (402) 449-4535 4th Tuesday at 6:30pm Sioux City, Iowa Marilee Lynn - Facilitator Sioux Land Senior Center Hamilton Blvd & West 4 Street (712) 389-2954 3rd Monday at 1pm Seward Beth Block/Jean Prochnow Greene House 600 Church Street (402) 643-9111/643-2505 4th Tuesday at 10am Spencer Ray & Nellie Faye Hagberg–Facilitators Our Savior Lutheran Church 101 S. Whipple (402) 589-1576 3rd Tuesday at 2:30pm Wallace Karen Gibson—Co-Facilitator Karen Goucher—Co-Facilitator United Methodist Church 118 S. Wallace (308) 387-4580/387-4221 3rd Monday at 7pm York Rita Maloley – Facilitator York General Hospital 2222 Lincoln Avenue (402) 362-0440 3rd Tuesday at 2pm Exercise Only – Omaha Melanie Clark, RPT – Co-Facilitator Linda Fuchs, RPT – Co-Facilitator St. Leo’s Church, 102 and Blondo (402) 391-4052 or 553-8242 Every Tuesday at 11am Fitness Works Jacey Gengenbach, NSCA - CPT 1032 S. 74th Plaza (402) 934-8881 Monday: 12pm - 1pm* Tuesday: 6pm - 7pm* Saturday: 9am - 10am* * $10 charge/session

Page 10: Parkinson’s Progress report · Mary Egger, President Mary Jane Petersen, Secretary Bev Baker, Treasurer ——————————— Parkinson’s Progress report is published

10

601 North 30th Street Suite 2902B

Phone: 866-626-PDIR (7347)

Fax: 402-449-4278 E-mail:

[email protected]

NEBRASKA APDA

Information and Referral Center

SAVE THE DATE

Dedicated to ease the burden and find the cure

APDA Nebraska Chapter

501 N. 87th Street Suite 207

Omaha, NE 68114 (402) 392-APDA (2732)

[email protected]

All memorials/donations are tax deductible. Checks should be made payable to the APDA Nebraska Chapter and sent to this address.

www.parkinsonsne.org

SATURDAY, APRIL 24 6:00pm

Hand in Hand, Linking Lives for Parkinson’s

Fundraising Event Embassy Suites, LaVista, Nebraska

****************

FRIDAY, MAY 21 Sandhills Convention Center

THIRD ANNUAL PARKINSON’S SYMPOSIUM:

Back to the Basics