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PCCE NEWSLETTER
The leadership of the Palliative Care Center of Excellence was very excited to celebrate it’s one-year anniversary this October. We officially launched in October of 2012 and it has been a very busy and productive year. Thank you to everyone who has con-tributed and supported our center. We look forward to more opportunity and growth in the months to come! We were, however, deeply saddened by the news of Dr. Stu Far-ber’s illness. Stu, the developer and director of UWMC Pallia-tive Care Services and the Chair of the Clinical Operations for the Center, was diagnosed recently with Acute Myelogenous Leukemia. In light of his uncertain near future, he has taken an immediate medical leave of absence, and it is not clear if he will be returning to work. We deeply appreciate all of the work, wis-dom, and gifts Stu has given us, including the clinical programs he has built and his phenomenal teaching over the years. He has a caring bridge site: http://www.caringbridge.org/visit/stuartfarber. The PCCE Education Operations has been very busy and we are looking forward to three important events on December 6th and 7th. First, we are jointly hosting a training seminar entitled, “Conducting Difficult Conversations” with the Department of Pediatrics, which will present a model for training post-graduate medical trainees in end-of-life communication. Second, our newly formed PCCE Community of Educators is holding it’s first retreat to brainstorm ideas to develop palliative care educa-tion. Third, Dr. Mitchell Levy will be conducting a seminar on mindfulness and communication entitled, “Let’s Talk About Dying.” This workshop will be Friday evening, December 6th and Saturday, December 7th and offer CME, CNE and CEU credit for Social Workers. Details about each event are below and include links to our flyers and instructions on how to RSVP. The PCCE Clinical Operations team has been meeting monthly working towards standardizing and expanding palliative care ser-vices at all of the UW Medicine clinical sites. The four goals of the Clinical Operations are: 1) Develop and implement standards of a palliative care consultation service, both inpatient and outpa-tient; 2) Develop a palliative care quality dashboard and quality metrics for both primary and specialty palliative care at UW Med-icine; 3) Create screening programs to identify patients with un-met palliative care needs in a routine way; and 4) Achieve Joint Commission Advanced Certification in Palliative Care at each site. The PCCE Research Operations continues to conduct monthly research seminars and works-in-progress sessions. We also held our first Palliative Care Research Think Tank on October 31st, which was a huge success. We gathered a large, interdisciplinary group of researchers and system-atically brainstormed future palliative care research ideas and ways to implement and fund these ideas. This first Think Tank focused on acute care. We look forward to holding another think tank early in 2014 focused on disparities in palliative care and will keep everyone posted on details. The PCCE has also created a Community Advisory Board. This Board serves as a place for people in our community who have had experiences with serious illness either personally or through a loved one and have a passion for palliative care to share their experiences and give our Center feedback on how the development of palliative care impacts the lives of patients and family mem-bers. If you know of anyone who you think would be interested in joining this important group, please contact us at [email protected] for more information. As we complete our first successful year, we are looking forward with anticipation to the years to come and have developed three main goals for the next three years and the future of the Palliative Care Center of Excellence: 1) Advance the quality of primary and specialty palliative care across UW Medicine and affiliated clinical sites; 2) Advance the quality and quantity of palliative care research and increase the number of palliative care researchers at the University of Washington thereby establishing the University of Washington as one of the top institutions nationally in pallia-tive care research, and 3) Advance the quality and quantity of clinical education offerings in pallia-tive care across the educational and clinical sites at the University of Washington thereby estab-lishing the University of Washington as one of the top institutions nationally in palliative care clin-ical education. As always, thank you for your support and interest in the Palliative Care Center of Excellence. We welcome your feedback and look forward to your participation in the ongoing development of our Center and in providing excellent care to all patients with serious illness and their families.
J. Randall Curtis, MD, MPH
Director, UW Palliative Care Center of Excellence A. Bruce Montgomery – American Lung Association Endowed Chair in
Pulmonary and Critical Care Medicine
www.uwpalliativecarecenter.org
A Message from the Director December 2013
If you have questions, comments or would like to be removed from our mailing list, email us at
Visit our website at: www.uwpalliativecarecenter.com
Palliative Care: Helping Patients Improve
Quality of Life
The Palliative Care Center of Excellence and the University of Washington Marketing Depart-ment recently worked together to produce this excellent video describing the benefits of pallia-tive care through the stories of two patients and their families. Click on the image below to view this video:
Newsletter Spotlight
Ardith Doorenbos, PhD, RN, FAAN, Associate Professor in the University of Washington School of Nursing, and Co-Chair of the UW Palliative Care Center of Excellence Research Op-erations was recently voted in as Co-Chair of the Expert Panel on Palliative & End of Life Care of the American Academy of Nursing. The Academy serves the public and the nursing profession by advancing health policy and prac-tice through the generation, synthesis, and dissemination of nursing knowledge. Every day across America, the Academy and its members create and execute knowledge-driving and policy-related initiates to drive reform of America's healthcare system. The Expert Panel on Palliative and End-of-Life Care identifies and disseminates the public poli-cy priorities for clinical care, research and education related to palliative and end of life care. This includes legislation related to advanced care planning, importance for and recognition of the need for and coverage of hospice and palliative care its role in health care reform.
Ardith Doorenbos voted in as Co -chair of the Palliative & End of Life Care Expert Panel of the American Academy of Nursing
PCCE Members Bibliography
*Articles listed are 2013 publications in peer-reviewed journals and book chapters. If you have an article you would like to have featured, please email [email protected]. Bays AM, Engelberg RA, Back AL, Ford DW, Downey L, Shannon SE, Doorenbos AZ, Edlund B, Christianson P, Arnold RW, O'Connor K, Kross EK, Reinke LF, Feemster LC, Edwards K, Alexander SC, Tulsky JA, Curtis JR. Interprofessional Communication Skills Training for Seri-ous Illness: Evaluation of a Small-Group, Simulated Patient Intervention. J Palliat Med. 2013 Nov 1. [Epub ahead of print] Bensink, M. E., Eaton, L. H., Morrison, M. L., Cook, W. A., Curtis, J. R., Kundu, A., Gordon, D. B., & Doorenbos, A. Z. (2013). Cost-effectiveness analysis for nursing research. Nursing Research, 62, 279–285. Collinge W, Kahn J, Walton T, Kozak L, Bauer-Wu S, Fletcher K, Yarnold P, Soltysik R. Touch, Caring, and Cancer: randomized controlled trial of a multimedia caregiver education program. Support Care Cancer. 2012 Dec 21. [Epub ahead of print] PubMed PMID: 23262808. Doorenbos, A. Z., Juntasopeepun, P., Eaton, L. H., Rue, T., Hong, E., & Coenen, A. (2013). Palliative care nursing interventions in Thailand. Journal of Transcultural Nursing, 24(4), 332-339. Kozak L, Vig E, Simmons C, Eugenio E, Collinge W & Chapko M. (2013) A Feasibility Study Of Caregiver-Provided Massage As Supportive Care In VA Cancer Patients. J. of Supportive Oncology, 2013Aug [Epub ahead of print]. Kross EK, Engelberg RA, Downey L, Cuschieri J, Hallman MR, Longstreth WT Jr, Tirschwell DL, Curtis JR. Differences in end-of-life care in the ICU across patients cared for by medicine, surgery, neurology and neurosurgery physicians. Chest. 2013 Oct 10. doi: 10.1378/chest.13-1351. [Epub ahead of print] Meins, A. & Doorenbos, A. Z. (2013). Healthcare provider, educator, and … ethnographer? Community health nurses as applied ethnographers in Tamil Nadu, India. Sri Ramachandra Nursing Journal, 5, 4-6. Murphy, A., Siebert, K., Owens, D., & Doorenbos, A. Z. (2013). Healthcare utilization by pa-tients whose care is managed by a primary palliative care clinic. Journal of Hospice and Pallia-tive Nursing, 15(7), 372-379. Ralston-Wilson, J., Tseng, A., Oberg, E., Sasagawa, M., Doorenbos, A. Z., Kundu, A. (2013). Utilization of acupuncture therapy among pediatric oncology patients at a tertiary care pediatric hospital. Alternative and Integrative Medicine, 2, 129. Doi:10.4172/2327-5162.10000129 Rosenberg AR, Wolfe J, Bradford M, Shaffer M, Yi-Frazier J, Curtis JR, Syrjala KL, Baker KS. Resilience and psychosocial outcomes of caregivers of children with cancer; Pediatric Blood and Cancer; [Epub ahead of print]; Nov 19, 2013; PMID 2424926 Sprung CL, Danis M, Iapichino G, Artigas A, Kesecioglu J, Moreno R, Lippert A, Curtis JR, Meale P, Cohen SL, Levy MM, Truog RD. Triage of intensive care patients: Identifying agree-ment and controversy. Intensive Care Medicine 2013 Nov;39(11):1916-1924. PMID: 23925544
Tsou AY, Creutzfeldt CJ, Gordon JM. The good doctor: professionalism in the 21st century. Handb Clin Neurol. 2013;118:119-32. doi: 10.1016/B978-0-444-53501-6.00009-3. PMID: 24182371 [PubMed - in process] Van Hyfte G & Kozak L and Lepore M. (2013). Administration and Utilization of complemen-tary and Alternative Medicine in Illinois Hospice and Palliative Care Organizations. Am J Hosp Palliat Care. 2013 Aug 12. [Epub ahead of print] PubMed PMID: 23943631.
Wittenberg-Lyles E, Goldsmith J, Oliver DP, Demiris G, Kruse RL, Van Stee S. Exploring oral literacy in communication with hospice caregivers. J Pain Symptom Manage. 2013 Nov;46(5):731-6.
PCCE Community of Educators Retreat—December 6th
Palliative Care Center of Excellence Education Retreat Date: Friday, December 6
th, 2013
Time: 1pm-5pm Location: Harborview Medical Center, R & T Building, Auditorium Who is welcome: Anyone interested in palliative care education We want to remind everyone about the Palliative Care Center of Excellence Education Retreat on the afternoon of December 6th, 2013. We will start the afternoon off with an update on cur-rent endeavors by the Educational Operations of the Palliative Care Center of Excellence and innovative practices in adult learning. We will then be dividing into the following breakout ses-sions a) primary palliative care education for UW trainees, b) primary palliative care education for practicing providers and c) specialty palliative care education. We will close the afternoon by coming back together as a larger group to create a roadmap for palliative care training. The aims of this retreat include establishing a repository of information about current education-al resources for those that are looking for ways to integrate palliative care education now, identi-fying areas of need and opportunity for future educational programming, brainstorming innova-tive ways to expand the reach of palliative care education, and lastly creating working groups to carry these ideas forward. All are welcome so please pass along this invitation to anyone who you think may be interested in attending. You may RSVP to this event by sending an email to [email protected]. Sincerely, Caroline Hurd, MD Sarah Shannon, PhD, RN Co-Chair of Educational Operations Co-Chair of Educational Operations UW Palliative Care Center of Excellence UW Palliative Care Center of Excellence Click on the image below for a PDF of the event flyer.
PCCE Members Research Survey—Share your Research Progress!
The PCCE has developed a Research Survey to collect information about ongoing and recently completed research projects of its members. The purpose of our survey is to facilitate collabora-tion among members of the palliative care community, and to track the progress of palliative care research in our region. We also hope that access to this data will encourage robust future research in palliative medicine.
Complete instructions on completing the survey are available now on our PCCE website: http://www.uwpalliativecarecenter.com/research-survey.html
Please take a few minutes to visit the site and tell us more about your palliative care research!
Conducting Difficult Conversations: Best Practices for Training Clinicians
The Palliative Care Center of Excellence and the Department of Pediatrics are hosting a free seminar entitled “Conducting Difficult Conversations: Best Practices for Training Clinicians” on Friday, December 6th from 8:00am-12:00pm at the Harborview Medical Center Research & Training Building Auditorium. Giving serious news to patients or family members is one of the most difficult communication skills in medicine. Unfortunately, most medical trainees get very little formal instruction in ef-fectively communicating these high-stakes scenarios. Fewer still have the opportunity to prac-tices skills away from the bedside. Join us as we survey best practices for training residents and present a model for resident in-struction across disciplines at UW Medicine. Featured Guest Speaker: Dr. Janet Serwint Professor of Pediatric Residency Program Johns Hopkins University All are welcome! Please RSVP by sending an email to Ann Marshand at [email protected]. Jointly sponsored by: Harborview Medical Center Department of Pediatrics and the UW Palliative Care Center of Excellence. Please click on the image below for a PDF of the event flyer.
Let’s talk about dying—PCCE Hosts a December 6 -7 Educational Workshop
On December 6th and 7th, the PCCE will hold a workshop featuring Dr. Mitchell Levy, Profes-sor of Medicine and Chief, Division of Pulmonary, Critical Care and Sleep Medicine at the Alpert Medical School at Brown University. The workshop is entitled, “Let’s talk about dying: Applying lessons from mindfulness to improve the quality of end-of-life care. ” This workshop is designed for medical professionals, care-givers, and family members assisting end-of-life patients. Participants will explore how aspects of the practice of meditation can help to develop insightful communication skills necessary for working with patients and families facing death. The program is designed to bring together a wide variety of participants--including practicing physicians, house-staff, nurses, social workers, lay caregivers, and others who are actively in-volved or concerned with end-of-life situations and decision-making. December 6th, 7:00pm—9:00pm and December 7th, 8:30am—5:00pm COST: $50 including lunch, $25 for Students $50 additional for CME/CNE/CEU credit To RSVP, send an email to [email protected] Mitchell M. Levy, MD, is Professor of Medicine and Chief, Division of Pulmonary, Critical Care, and Sleep Medicine at the Alpert Medical School at Brown University; and Director of the Medical Intensive Care Unit at Rhode Island Hospital. He is also an acharya (senior teacher) in the Shambhala Buddhist tradition. Dr Levy’s work in the field of palliative care draws on the Buddhist tradition to improve and deepen the communication and compassion skills of medical, psychological, and education professionals. “At no time do your words as a healthcare profes-sional have more profound influence on patients, family, and colleagues than when providing end-of-life care.” Objectives: Upon completion of this program, the participant should be able to:
Utilize new listening skills during discussions about end of life care
Utilize mindfulness techniques for improving communication with patients and families in end-of-life care situations
Enhanced skills for approaching and overcoming obstacles to good end of life care in the ICU and other clinical settings – discomfort associated with death and grief; heightened emotion, and avoidance behavior.
Routine use of a check-list, or script for family meetings around end-of-life decisions. The University of Washington School of Medicine is accredited by the Accreditation Council for Continuing Medical Education to provide continuing medical education for physicians. The University of Washington School of Medicine designates this live activity for a maximum of 8.5 AMA PRA Category 1 Cred-its™. Physicians should claim only the credit commensurate with the extent of their participation in the activity. *Sponsored by the University of Washington and the UW Pallia-tive Care Center of Excellence Click on the image below for a PDF of the seminar flyer.
