Pisa Parkinson Association is a small Association,

born in March 2017, with about 70 members, but

many people contact us by phone and email

In summary, these are our primary goals:

● bring out the needs of people with Parkinson's (patients

and their families)

● offer information and sharing (Parkinson Desk, mailing list,

website, Facebook, etc.)

● interact with local and regional Health Authorities.

Our website

www.associazionepisaparkinson.it

Inform, Support, Help to live better with Parkinson's Disease

The Parkinson Center of the University

Hospital of Pisa

In Pisa we have a Center for the diagnosis and treatment of Parkinson's

Disease which combines excellence in the clinic and in research.

Many people come to Pisa from all over Italy with consequent problems

of work overload for the operators.

The Associations of Pisa, Livorno and Lucca have reported to the

regional authorities asking for a strengthening of the staff of specialists.

Parkinson's Associations ask specialists and family doctors to take on a

global, multidisciplinary approach: to cure the patient and not just the

disease only and build a health and social assistance network.

Taking charge:an integrated network around the patient

PDTA Neurologo

Servizi territoriali

ASL

Medico di

famiglia

Riabilitatore

Associazioni

Terzo Settore

e privati

ecc., ecc.

The patientat the center

Let us work together to build an integrated service network

This is the message we want to give

to our patients

● Even with Parkinson's, you can live well; there is no cure for

Parkinson's, but the quality of life can be preserved.

● Fight against the worst enemies: depression, a sedentary lifestyle,

isolation.

● Socialize, practice hobbies, cultivate your passions, etc.

● Adopt proper lifestyles:

- proper nutrition

- being active, but living quietly, avoiding stressful situations;

- set realistic goals

- make movement every day.

Depression is the most important factor

influencing the quality of life and health of

Parkinson’s patients.

Exercise program are an important therapy:

everyone with Parkinson’s Disease should be

exercising, starting as soon as possible after

the diagnosis.

Take care of yourself

and not only be cared

We should educate the patients to take care of

themselves with a targeted action plan.

Activities such as sport, walking, work in the gym,

breathing exercises, relaxation, meditation,

rehabilitation, occupational therapy, music therapy,

speech therapy, mutual aid groups, etc.) can delay

disability and slow down the loss of functionality.

With great savings for health spending!

The Little Vademecum to better face life with

Parkinson's Disease

With the Association of Livorno, we have written a small

leaflet, with advice and practical indications arising from

the direct experience of the patients, especially those

with many years of Parkinson's on their shoulders.

Our neurologists have offered us some valuable

suggestions and now they give it themselves to the

patients during the visit.

Useful tips on anti Parkinson drugs

How to fight Parkinson's disease

Winning behaviors against Parkinson's

Listening Desk-Counseling Desk

https://www.associazionepisaparkinson.it/eventi/sportello-counseling-per-i-malati-di-parkinson-e-per-i-loro-familiari/

Free meetings for Parkinson's patients and their families with a professional counselor twice a month, on appointment.

Motivation Courses

on Wellness and

Health

with dr. Ferdinando

Regina, Doctor and

Psychotherapist

Periodic meetings organized with our

members, their families, friends and

the whole communityon various topics

Participation in events organized by the San Zeno Social Center

in Pisa

https://www.associazionepisaparkinson.it/eventi/circolo-tra-amici/

Circle among friends

Parkinson's at tableA lunch without protein is not a punishment!

Porta-party aproteico

https://www.associazionepisaparkinson.it/eventi/porta-party-aproteico-dellassociazione-pisa-parkinson/

We organize lunches where

everyone brings something

without protein

National Parkinson Day 2018

promoted by LIMPE-DISMOV

University Hospital of Pisa

Giornata Parkinson 2018 - Pisa

“Aiutiamo chi aiuta. I dubbi del caregiver”

Let's help those who help.

The caregiver's questions

Alberta Tellarini - Vice Presidente dell'Associazione Pisa Parkinson

https://www.associazionepisaparkinson.it/wp-content/uploads/2018/11/Giornata-Parkinson-2018-Pisa_Aiutiamo-chi-aiuta_I-dubbi-del-

caregiver_24novembre_Alberta-Tellarini.pdf

Participation in Conferences

Contacts with other Tuscan and National Parkinson's Associations.

Collaboration with the Technical Referent of Parkinson's Associations of Tuscany (a Parkinson's patient).

Joint documents of the Parkinson Associations of Pisa, Livorno and Lucca, sent to the local and regional Health Authorities.

We give advice on how to take medicines and on unavailability and shortage of drugs

https://www.associazionepisaparkinson.it/farmaci/irreperibilita-ricorrente-dei-

farmaci-anti-parkinson-alcuni-consigli-utili/

https://www.associazionepisaparkinson.it/?s=emergenza+sinemet

https://www.associazionepisaparkinson.it/farmaci/mai-piu-senza-farmaci-anti-

parkinson-delibera-approvata-dalla-giunta-regionale-della-toscana/

Adapted physical activity

Parkinson Lab

a more intense

physical activity

with the use of

treadmill tools,

exercise bikes,

ecc.

Associazione Sportivo Dilettantistica SportivaMente – Pisahttps://www.facebook.com/SportivaMentePisa/

Associazione Promozione Sociale La Tartaruga – Pisahttps://www.facebook.com/Associazione LaTartaruga/

Rehabilitative and

postural

gymnastics in

water

(individual activity

or in small groups)

Biodanza for people with Parkinson's in Pisa con Cristina Vannini

Cristina Vanninicon Rolando Toro

https://ilcerchiodell

avita.it/biodanza-

per-parkinsoniani-

e-loro-caregivers/

Physical activity even in summer

swimming pool

gym with tool workshop

Motor activity is a real good drug

that has no side effects.

Sports Therapy in Pisa:

a Project co-financed by the Tuscany Region.

Sport Therapy

- Boxing without

contact

- Pilates

-Nordic Walking

-Walking groups

-Intensive tools

Laboratory.

Proposing

subject:

La Tartaruga

Partner:

Associazione Pisa

Parkinson

AllenaMente (Train the brain)Mental gymnastics for Parkinson and Dementia(neuromotor and cognitive stimulation activity)

Parkinson's presents continuous

challenges

In Pisa we have one of the many Parkinson's patients facing incredible

challenges: this summer Sandro Paffi, 58, diagnosed in 2014, made a

motorcycle trip from Pisa to the Transfagarasan in Romania.

Other patients, not Pisans, have crossed Lake Iseo (Brescia) or the

Strait of Messina, and so on.

What is interesting is not the challenge itself, but the psycho-

physical preparation that preceded it.

This is the example they give to their brothers: a strong motivation

and an intense physical exercise to fight the disease.

The trip of Sandro Paffi from Pisa to Romania

30 giugno - 6 luglio 2019

Sandro challenges Parkinson's

https://www.facebook.com/Sandro-sfida-il-Parkinson-1988655294774998/

Itinery of Sandro from Pisa to Romania

Transfagarasan: the most beautiful highway in Europe

Sandro Paffi exercising in the

gym

(four times a week)

He also practices

Muay Thai Boxing

https://www.associazionepisaparkinson.it/movimento/come-affrontare-il-parkinson-in-palestra/

How to deal with Parkinson in the gym

Outdoor activities

This year, for the young and newly diagnosed patients, we

will organize small excursions with Sandro Paffi in the Pisan

Mountains on rough and uneven paths with ups and downs.

In the photo: a 76-year-old patient (diagnosis 2014) facing

an uphill walk.

We have found great benefits from this activity.

The daily challenges of Parkinson's patients

But in their daily life Parkinson's patients face challenges that are no

less important and difficult and we are collecting their testimonials

through our website in Section: A friend writes to us ....

https://www.associazionepisaparkinson.it/ci-scrive/ci-scrive-unamica_io-le-mie-

sfide-e-il-parkinson/

Me, my challenges and Parkinson's

A word of hope

Let us seek help and sharing:

this is a battle that we cannot fight alone.