Programs & Resources Guide, summer 2013

Programs & Resources Guide

Spring/Summer 2013

Youth CampA memorable week in Amery,

Wis., for youth affected by MS.

Priority issues in MS advocacyLearn about the four areas

of focus for the 2013 legislative session.

PlusFind MS programs in your

community, a listing of local clubs, groups and exercise

classes, and ongoing resources and services available anytime.

JOIN THE MOVEMENT®

Youth in the MS movement

The National MS Society understands that youth and teens with a connection to MS have unique experiences, and we recognize the importance of connecting them to other young people who share similar experiences. Because of this, we offer a number of ways for youth to get involved, meet peers, gain support and have fun.

Joining the movement to end MS doesn’t have to be scary, and it doesn’t require a huge commitment. Below are just a few

examples of programs in which youth and teens can participate:

n MS Youth Camp — a weeklong adventure at YMCA Camp Icagohowan in Amery, Wis. (see page 4)

n Team of the Future — a chapterwide, super team made up of Walk MS teams led by young adults ages 13 to 18

n Teen Council — a group of 13 to 18 year olds who have MS or are related to a person with MS and are interested in raising awareness about MS

Prefer to do things as a whole family? Consider attending a family program together! Family programs are a great introduction to the National MS Society and will give you and your child(ren) a chance to meet others in a fun and casual setting.

If you’re interested in learning more about youth and family programs, contact Krista at [email protected] or 800-582-5296 (option 2).

Krista Harding, Family and Youth

Programs Coordinator

Programs & Resources GuidePrograms & Resources Guide is a free publication of the National MS Society 200 12th Ave. S.Minneapolis, MN [email protected] Editors Maggie FlanaganSteve Korngable

Chapter PresidentHolly Anderson

Promising treatments for MS Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. The National MS Society’s medical advisors recommend that people with MS talk with their health care professionals about using these medications and about effective strategies and treatments to manage symptoms. If you or someone you know has MS, please visit nationalMSsociety.org or call 800-582-5296 to learn more.

Sponsorship of Society programs or events does not connote the National Multiple Sclerosis Society recognizes superiority in products or services provided by the sponsoring entity over other entities providing like or similar products or services.

MOVING IS WHO WE ARE

JOIN THE MOVEMENT®

Table of contentsFeatured programsYouth Camp 4Priority issues in MS advocacy 5

Iowa programs 6–8

Minnesota programs 9–19

North Dakota programs 20–22

South Dakota programs 23–25

Anywhere programs 26–28

Resources and financial assistance 29–32

In 2006, Connor Harthorn attended Youth Camp. At 12 years old, being away from home for a week with people he didn’t know seemed daunting. As it turned out, he loved Youth Camp, his first real interaction with the National MS Society.

Now 18, Connor has come back to Youth Camp every year and plans to return this summer as a counselor in training. Connor said, “I continued to go because I enjoy getting to know other kids whose parents have MS.”

Three of his younger siblings have followed in his footsteps, each attending every year since they were old enough to apply, while the fourth anxiously awaits his turn.

Connor has since participated in a number of other Society youth, teen and family programs, like Teen Council, Teen Crew and Teen Summits. Through these programs, Connor has gained a number of close friends who understand where he’s coming from and share similar experiences related to having a parent who lives with MS.

Connor said, “Attending Society events gives you opportunities to talk to people, but it also gives you an option to do fun things to get your mind off of MS.”

Teen programs foster friendships and more

Connor Harthorn

FEATURE PROGRAM

June 17–22 n Amery, WI

Do you know a child entering grades four through 12 who has a parent with MS or lives with someone with MS? Now in its 14th year, Youth Camp brings together youth from across the chapter and beyond for a week of summertime fun, memory-making and personal growth.

Youth Camp spans an entire island on the edge of beautiful Lake Wapogasset at YMCA Camp Icaghowan in Amery, Wis. Campers enjoy a variety of activities, such as:

n swimming; n horseback riding;n high ropes; n canoeing; n disc golf; n campfires; and n MS education.

Teens age 18 who have graduated from high school can apply to be counselors in training.

Space is limited. Applications must be received by May 1.

Program fee$175 per child. Fee adjustments are available upon request. Do not send a check at this time. Upon acceptance, you’ll receive a billing invoice.

QuestionsFor more information, contact Krista at 612-335-7937 or [email protected].

Youth CampExperience a week of fun and adventure with other young people affected by MS.

To apply

Applications are available online at MSsociety.org and due by May 1. To request a hard-copy application, contact Krista at 612-335-7937 or [email protected].

Completing an application doesn’t guarantee acceptance. Applications are reviewed to determine if medical and safety needs can be met. Upon acceptance, you’ll receive more detailed information and a billing invoice.

4 National Multiple Sclerosis Society

FEATURE PROGRAM

At the Upper Midwest Chapter, we relentlessly advocate for policies and research essential to

people living with MS. Below are issues we’re monitoring during the 2013 legislative session.

On behalf of more than 17,000 people living with MS in Iowa, Minnesota, North Dakota, South Dakota, and portions of Wisconsin and Nebraska, the Upper Midwest Chapter advocates for the following priorities at the legislative level.

n Support MS research: We advocate for scientific and medical research that could stop the progression of MS, restore function and end MS forever. We support efforts to expand such research and oppose efforts that would hinder the ability to free the world from MS.

n Protect programs for people living with MS: We work to limit and reverse the impact of state budget cuts on people living with MS and advocate for appropriations for human services, education, housing, public transportation and other programs that benefit people with MS and other disabilities and chronic disease.

n Advocate for accessible, affordable and quality health care: We support initiatives that expand coverage, improve quality, increase access to care and provide greater affordability for people living with MS. We monitor and engage in developing health reform proposals, seek to improve health care programs and oppose legislation that negatively impacts people living with MS.

n Reduce roadblocks to MS care: We support equitable and adequate coverage of medically necessary MS treatments, capping and reducing the out-of-pocket cost of MS care, eliminating specialty tiering and expanding prescription-assistance programs.

We need your story! As we advocate at the legislature, we want to learn about the barriers you and your family encounter in your health care, including access to MS disease-modifying medications. Your story helps us make a bigger impact at our state capitols. Contact Jenna at 612-335-7981 or [email protected] to share your story.

Priority issues in MS advocacyThe Upper Midwest Chapter names four areas of focus for the 2013 legislative session.

Join the Movement®

Learn more about how the National MS Society advocates for people with MS at MSsociety.org. Sign up for advocacy alerts, share your story, and join us in helping shape policy that affects us all.

phone 612-335-7900 or 800-582-5296 (v/tdd) • fax 612-335-7997 • MSsociety.org 5

Unless otherwise noted, you can register or RSVP for any of the programs listed below by visiting MSsociety.org and clicking “Chapter Calendar” on the upper left-hand side, or calling 800-582-5296 (option 1). All programs are free unless a fee is specified. Scholarships are available upon request for most programs that require a fee.

MS research symposiumApril 23, 5:30–7:45 p.m.Holiday Inn and Conference Center, 1220 First Ave., Coralville, IA

Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions answered by MS expert Dr. Claudia Lucchinetti from the Mayo Clinic Center for MS in Rochester, Minn. Plus, visit exhibitor tables to learn more about drug therapy options available to people with relapsing forms of MS. Attendees may check-in and enjoy appetizers from 5:30 to 6 p.m. The registration deadline is April 17.

Family ice cream socialSaturday, June 15, 1–3 p.m. Greenwood Park Open Shelter 2, 4500 Grand Ave., Des Moines, IA

Join us for an afternoon of fun at Greenwood Park! Meet other families affected by MS while enjoying ice cream and the nearby wading pool. Family outings are for families with children under age 18 who have MS or who have a parent or guardian with MS. They are intended for immediate family only. This includes two-parent families, single-parent families and domestic-partner families. The registration deadline is June 7.

Youth Camp June 17–22YMCA Camp Icaghowan, 899 115th St., Amery, WI

Now in its 14th year, Youth Camp brings together young people entering grades four through 12 who live with someone who has MS for a week of summertime fun, memory-making and personal growth. YMCA Camp Icaghowan spans an entire island on the edge of beautiful Lake Wapogasset where campers can enjoy a variety of activities, such as swimming, high ropes and horseback riding. Applications are available at MSsociety.org. Program fee is $175 per child; fee adjustments are available upon request. Requests for travel assistance can be made with applications and will be considered on a case-by-case basis. For more information or to request an application, contact Krista at 612-335-7937 or [email protected]. Applications must be received by May 1.

Iowa programs

IOWA


IOWA

Facetime at Mercy Ruan Multiple Sclerosis CenterSecond Thursday of the month, 11:30 a.m. – 1 p.m.Mercy Medical Center, 1111 Sixth Ave., Des Moines, IA

Complimentary light lunch provided.

May 9 TBD

June 13 TBD

July 11 TBD

RSVPs are appreciated, but not required. Contact Valerie Stickel-Diehl, R.N., M.S., M.S.C.N. at 515-358-0002 or [email protected].

Clubs and groupsJoin an MS club or group to connect with other people affected by MS, enjoy lively discussions, learn valuable information and ways to overcome challenges, have fun and be inspired. Read about groups and clubs that are moving forward together, and find a club or group in your community that’s right for you.

BurlingtonThird Saturday of the month 10 a.m. – noon, Burlington Public Library Laurie, 319-754-0407

CarrollFirst Tuesday of the month 6 p.m., Swan House Tina, 712-792-4777

Cedar Falls/WaterlooThird Thursday of the month 6:30 p.m., Covenant Medical Center Shirl, 319-235-8946

Cedar RapidsThird Sunday of the month 2 p.m., Mercy Hospital Kathy, 319-373-5390

ClintonThird Tuesday of the month 6:30 p.m., Mercy Medical Center, Boardroom, South Campus Tami, 563-357-4884

Council BluffsThird Tuesday of the month 7 p.m., United Methodist Church Jerry, 712-366-9569

DavenportSecond Tuesday of the month 6:30 p.m., Genesis East Heart Building Karen, 309-736-0738

Des MoinesThird Sunday of the month 2 p.m., Walnut Ridge at Clive David, 515-556-5338

Des Moines Caregivers GroupSecond Monday of the month 7 p.m., West Des Moines Public Library Larry, 515-989-9234

Des Moines Couples GroupThird Saturday of the month 10 a.m., St. Mary of Nazareth Church Kelli, 515-963-7788


IOWA

Des Moines Men’s GroupMeets quarterly Various times and locations Ken, 515-999-9186

Des Moines Phone GroupSecond Thursday of the month 10 a.m., toll-free: 866-906-9995 Passcode: 828172 Rita, 515-480-3870

Des Moines Women’s Luncheon GroupSecond Tuesday of the month 11:30 a.m., location varies Annie, 515-724-2641

Dubuque First Tuesday of the month 6:30 p.m., Mercy Hospital Susie, 563-581-1284

Dubuque (for people living with progressive MS)First Tuesday of the month 1:30 p.m., Finley Hospital, Bartels & Butler Room Sandra, 563-582-5815

Fort DodgeFirst Monday of the month 7 p.m., St. Olaf Lutheran Church Sheila, 515-576-1860 Marc, 515-955-5814

Iowa CityThird Thursday of the month 6:30 p.m., Coralville Public Library Emily, 214-677-5733

Iowa City Caregivers GroupFirst Monday of the month 7 p.m., Iowa City Public Library Larry, 515-989-9234

KnoxvilleThird Monday of the month 6:30 p.m., Seventh Day Adventist Church Melinda, 641-670-0994

Mason CityFourth Sunday of the month 2 p.m., Bethlehem Lutheran Kathy, 641-454-2953

OskaloosaSaturday following the third Tuesday of the month 10 a.m., Mahaska County Hospital Lin, 641-295-2030

Sioux CityFirst Saturday of the month 1:30 p.m., CNOS Clinic Janet, 605-217-2726


MINNESOTA


Research updateSaturday, May 18, 10:30 a.m.Oakdale Library, 1010 Heron Ave. N., Oakdale, MN

Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions addressed by MS specialist Dr. Yelena Usmanova from the Minneapolis Clinic of Neurology. To RSVP, contact Samantha at 651-735-0190.

Facetime with Dr. Yelena UsmanovaQuarterly, 5:30 p.m.Minneapolis Clinic of Neurology, 3400 W. 66th St., Edina, MN

May 2 Current therapy options for multiple sclerosis

For more information, contact the Minneapolis Clinic of Neurology at 952-920-7200.

Minimize your risk of fallsThursday, May 2, 7 p.m.Access North, 606 NW Fifth St., Brainerd, MN

Saturday, July 20, 10:30 a.m.Oakdale Library, 1010 Heron Ave. N., Oakdale, MN

Due to mobility issues and other symptoms, people with MS are at a significant risk for falls. Although completely eliminating falls may be unrealistic, many of them occur under predictable circumstances. Megan Frost, P.T., will discuss key risk factors that contribute to falls and steps that can be taken to minimize or eliminate them. To RSVP for Brainerd, contact Jasmine at [email protected] or 218-839-1774. To RSVP for Oakdale, contact Samantha at 651-735-0190.

Minnesota programs


MINNESOTA

Care partner happy hour social Wednesday, May 29, 6–8 p.m.Green Mill Restaurant and Bar, 1000 Gramsie Road, Shoreview, MN

MS care partners are invited to enjoy complimentary appetizers and meet other care partners who understand the experience of caring for someone who has MS. Beverages must be purchased by attendees. There is no fee for this program. Registration is appreciated but not required.

20s and 30s social outing June 1, 10:30 a.m. – 12:30 p.m. Minnesota Zoo, Green Acres picnic area, 13000 Zoo Blvd., Apple Valley, MN

Enjoy a day at the Minnesota Zoo while picnicking and socializing with other people in their 20s and 30s who share MS-related experiences. Enjoy good food, make friends and have fun! The picnic, along with a bean bag tournament and face painting, will be from 10:30 a.m. to 12:30 p.m. in the Green Acres picnic area, but guests can enjoy the zoo attractions for the entire day. Friends and family are invited. Zoo admission, parking and food and beverages during the picnic are provided by the Noran Neurological Clinic. The registration deadline is May 23.

Research updateSaturday, June 8, 10:30 a.m.Sumner Library, 611 Van White Memorial Blvd., Minneapolis

Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions addressed by MS specialist Dr. Gareth Parry from the University of Minnesota MS Center. To RSVP, contact Samantha at 651-735-0190.


MINNESOTA


Youth Camp brings together young people entering grades four through 12 who live with someone who has MS for a week of summertime fun, memory-making and personal growth. YMCA Camp Icaghowan spans an entire island on the edge of Lake Wapogasset where campers can enjoy a variety of activities, such as swimming, high ropes and horseback riding. Applications are available at MSsociety.org. Program fee is $175 per child; fee adjustments are available upon request. Requests for travel assistance can be made with applications and will be considered on a case-by-case basis. For more information or to request an application, contact Krista at 612-335-7937 or [email protected]. Applications must be received by May 1.

MS Day CentersActivities at MS Day Centers help adults with MS remain active and independent and can maintain and improve physical strength, emotional health and overall quality of life. Centers also assist family members and care partners by providing respite, support and resources. Each day center offers unique programs and services, but most provide:

n educational and exercise programs;n socialization activities;n health and wellness education;n creative arts; andn much more.

Fairview MS Achievement CenterMonday through Friday, 10 a.m. – 3:30 p.m. 2200 University Ave., Ste. 140, St. Paul, MN (612-672-2815)

MS Center at Opportunity MattersTuesdays, 2–4 p.m.; Thursdays 3–4 p.m. (Resource Center) 701 23rd St. S., Sartell, MN (320-240-1990)

MS Achievement CenterSaturdays, 9 a.m. – 3 p.m. Benedictine Health Center, 935 Kenwood Ave., Duluth, MN (218-733-2254)

For more information, please visit MSsociety.org and search “day program,” or call a center directly at the number provided.


MINNESOTA

Industry partner programsThe National MS Society partners with many companies to provide educational opportunities

about multiple sclerosis. Details about these industry programs are provided for your information.

Has multiple sclerosis affected you or someone you care for?Sponsored by Acorda Therapeutics®, Inc.

Thursday, May 16, 6 p.m.Ray J’s American Grill, 9854 Norma Lane, Woodbury, MN

Wednesday, May 22, 6 p.m.Bucca Di Beppo, 12650 Elm Creek Blvd., Maple Grove, MN

Tuesday, May 28, 6 p.m.Amore Victoria Ristorante, 1601 W. Lake St., Minneapolis, MN 55408

Attend a free and interactive event featuring Dr. Gareth Parry, a leading MS expert, to learn more about a therapeutic treatment option for MS. Food will be provided. Space is limited, so reserve your spot today! Program is free. To register, call 800-397-8082 or visit LiveAmpyraEvent.com.

Facetime with Dr. Jonathan CalkwoodMonthly, 6:30–8 p.m.The Minneapolis Clinic of Neurology, 4225 Golden Valley Road, Golden Valley, MN

Tuesday, April 23: Understanding the immune system in MS

Tuesday, May 7: Oral treatments for disease management in MS

Thursday, June 13: Coping strategies, developing resilience

Tuesday, July 9: Boost your cognitive efficiency

For more information, contact the Schapiro Center for MS at 763-302-4199.


MINNESOTA


CLUBS

Book clubs

Apple ValleyFirst Friday of the month 10 a.m., Barnes & Noble Cindy, 952-891-5249

DuluthFourth Tuesday of the month 11 a.m., Barnes & Noble Betsy, 218-724-9075

Maple GroveFourth Monday of the month 10 a.m., Barnes & Noble Mary, 763-420-4562

MahtomediFourth Tuesday of the month 6 p.m., Perkins Maplewood Judy, 651-488-4454

MinneapolisThird Wednesday of the month 7 p.m., Kingsley Commons Pat, 612-521-4654

RosevilleFirst Tuesday of the month 10 a.m., Barnes & Noble Har Mar Darr, 612-874-9019 or Lisa, [email protected]

Social gatherings

Arrowhead regionMeeting monthly at regional restaurant Mary, 218-827-8327

Burnsville/Apple ValleyThird Thursday of the month Noon, Perkins Restaurant, Apple Valley Mike, 952-898-2857

Forest Lake areaFourth Thursday of the month 6:30 p.m., restaurant varies Susan, 651-464-1043

New Brighton/St. AnthonyFourth Tuesday of the month 6 p.m., Christ the King Lutheran Church, New Brighton Rick, 612-791-6473

New UlmSecond Monday of the month 11 a.m., Perkin’s Restaurant Sue, 507-359-4345

GROUPS

CogniFitness

MinneapolisFirst Tuesday of the month 2 p.m., Turtle Bread Company Casey, 612-722-5548

For artists, crafters and writers with MS

MS Art & Crafts Interest GroupFirst Saturday of the month 11 a.m., D’Amico & Sons Café, Roseville Donna, 612-280-0786

For care partners

Men’s Care Partner BreakfastThird Saturday of the month 10 a.m., Pippin’s Restaurant, Roseville Dan, 651-779-9435

Perham Care PartnersLast Tuesday of the month 1 p.m., Calvary Lutheran Church Colleen, 218-758-2502


St. Louis Park Care PartnersThird Wednesday of the month 6:30 p.m., St. Louis Park City Hall Bobbie, 651-223-9858

Women Care PartnersThird Saturday of the month 11 a.m., Baker’s Square, Maplewood Jenny, 763-862-0145

For couples

Couples in their 20s and 30sSecond Saturday of the month 1–3 p.m., Courage Center, Golden Valley Kim & Tony, 763-245-3945

Stillwater CouplesSecond Saturday of the month Noon, Courage St. Croix, Stillwater Dan & Jean, 651-779-9435

For deaf and hard of hearing

Deaf MS GroupThird Saturday of the month, 10 a.m., Wentworth Library, West St. Paul Colleen, [email protected],651-714-2314 v/caption-call

For GLBT

St. Paul GLBT (for GLBT living with MS)First Tuesday of the month 6 p.m., Metropolitan Center for Independent Living, St. Paul Corbett, 651-603-2028

For men

Metro Area It’s Just Breakfast (with the guys)First Saturday of the month 10 a.m., Famous Dave’s, Calhoun SquareSecond Wednesday of the month 10 a.m., restaurant varies Rick, 612-791-6473

For moms with young children

Moms with Young ChildrenFirst Monday of the month 6:30 p.m., Patrick’s Bakery & Café, Edina Jennifer, 952-412-1291

For primary-progressive MS

Primary-progressive MSFirst Saturday of the month Noon, Fabulous Ferns, St. Paul Joia, 651-261-3633

For people of color

Metro MS Group for People of ColorSecond Saturday of the month 10:30 a.m., Sumner Library, Minneapolis Linda, 612-290-9515

For people mildly affected by MS or recently diagnosed

Southwest Metro MS Group for Mildly AffectedThird Saturday of the month 10 a.m., United Methodist Church, Eden Prairie Lisa, 952-934-2296

South Metro Recently to Five Years DiagnosedLast Wednesday of the month 6:30 p.m., Split Rock Grille, Bloomington Carol, 612-310-0070

For professionals

Let’s Lunch: Professionals Living with MSThird Saturday of the month 11 a.m., Chatterbox Pub, St. Paul Becky, 651-292-4193

MINNESOTA


MINNESOTA

For women

Maplewood Women’s Peer Support GroupSecond Thursday of the month 1 p.m., Gustavus Adolphus Lutheran Church Joan, 651-426-3220

General groups

Albert LeaSecond Monday of the month 7 p.m., Grace Lutheran Church Cindy, 507-461-3648

AlexandriaSecond Monday of the month 4:30 p.m., St. Mary’s Office Building (No meetings Dec. – Mar.) Kathryn, 320-762-2320

BloomingtonFirst Thursday of the month 7 p.m., Nativity of Mary Church (south door entrance) (No meetings January or July) Carol, 952-884-2747

BrainerdFirst Thursday of the month 7 p.m., Access North Jasmine, 218-839-1774

BuffaloThird Monday of the month Noon, United Methodist Church Colleen, 763-682-2167

Burnsville/Apple ValleyFirst Tuesday of the month 6:30 p.m., Fairview Ridges Education Center, Burnsville Mike, 952-898-2857

CambridgeThird Thursday of the month 7 p.m., Cambridge Medical Center Bob, 763-270-0678

CanbySecond Thursday every other month, April – Dec., 3:30 p.m., Sanford Canby Medical Center Peggy, 507-223-7277

CloquetFourth Monday of the month 3 p.m., Cloquet Gospel Tabernacle Karen, 218-464-7690

ChaskaThird Tuesday of the month 12:30 p.m., Chaska Library Mary, 952-556-5599

Coon Rapids North SuburbanSecond Wednesday of the month 6:30 p.m., Coon Rapids City Center Renee, 763-757-4650

DuluthFirst Tuesday of the month 11:30 a.m. (Bring a bag lunch) Bethany Baptist Church Bev, 218-624-1212

Excelsior/MinnetonkaSecond and fourth Saturdays of the month 10 a.m., Knewtson Health Group Building, Excelsior Denise, 952-474-2960

FaribaultThird Tuesday of the month 6 p.m., Buckham Memorial Library Kurt, 507-210-1853

Fergus FallsSecond Wednesday of the month 11:30 a.m., United Church of Christ Connie, 218-736-7285

Forest Lake areaSecond Thursday of the month 6:30 p.m., The Meadows for Assisted Living Susan, at 651-464-1043

Grand RapidsSecond Thursday of the month 12:30 p.m., St. Joseph Church Sally, 218-326-1371


MINNESOTA

HibbingLast Thursday of the month 1 p.m., Open Door Church Corry, 218-262-1364

HutchinsonSecond Monday of the month 6:45 p.m., Christ the King Lutheran Church Ann, 320-894-7896

Inver Grove Heights/ West St. PaulFirst Monday of the month 5:30 p.m., Emma Krumbee’s Restaurant, IGH (No meetings Dec. – Feb.) LaDonna, 651-450-6230

Little Falls/PierzFirst Wednesday of the month 1 p.m., Bethel Lutheran Church, Little Falls Rita, 320-632-5679

LuverneThird Thursday of the month 7:30 p.m., Rock County Family Services Chuck, 605-582-2309

MankatoFor more information, contact Jeff at 612-335-7951 or [email protected].

Maple GroveSecond Saturday of the month 10 a.m., St. Joseph the Worker Church Diane, 763-425-8346

MinneapolisLast Saturday of the month 10 a.m., Kingsley Commons Beth, 612-529-0651

MonticelloThird Wednesday of the month 6 p.m., Monticello Hospital Jane, 763-295-8103

New PragueFirst Tuesday of the month 6:30 p.m., Mayo Health Center (No meetings Dec. – Feb.) Adele, 952-688-8068

OakdaleThird Saturday of the month 10:30 a.m., Oakdale Library Samantha, 651-735-0190

PerhamLast Tuesday of the month 1 p.m., Calvary Lutheran Church Colleen, 218-758-2502

PrincetonThird Saturday of the month 10 a.m., Fairview Northland Regional Hospital Laurie, 763-389-4225

Redwood Falls/BelviewThird Thursday of the month 7:30 p.m., Redwood Area Hospital (No meetings Nov. – Feb.) Kathy, 507-641-2555

RochesterThird Wednesday of the month 7 p.m., Meadow Lake Senior Living Geri, 507-288-6255

RosevilleSecond Thursday of the month 6:45 p.m., Roseville City Hall Robin, 651-647-0809

ShoreviewSecond Wednesday of the month Noon, STEP Physical Therapy Mary Jo, 651-653-5844

StaplesSecond Thursday of the month 3:30 p.m., Lakewood Care Center (No meetings June – Aug.) Angela, 320-594-6377

St. Cloud, 20s and 30sLast Thursday of the month, 6:30 p.m., restaurant varies Dennis, 320-237-5447 or [email protected]


MINNESOTA

St. CloudSecond Wednesday of the month 5 p.m., St. Cloud Public Library (No meetings June – Aug.) Betsy, 320-253-5421

St. Paul Care to ShareSecond Wednesday of the month 7 p.m., Macalester Plymouth Church Mary Lynn, 651-644-1429

SuperiorSecond Tuesday of the month 6 p.m., Superior Public Library Pam, 715-394-6958

WasecaThird Tuesday of the month 7 p.m., Waseca Medical Center Cindy, 507-461-3648

Wayzata/PlymouthFirst Thursday of the month 1 p.m., restaurant varies, Richie 763-670-9114

WillmarFirst Tuesday of the month 7 p.m., Bethesda Nursing Home (No meetings Jan. – Mar.) Teresa, 320-235-7499

Windom/Cottonwood CountyThird Wednesday of the month 7 p.m., ALC Lutheran Church Lois, 507-831-3256

Woodbury A.M.Second Thursday of the month 9:30 a.m., King of Kings Lutheran Church Jeanine, 651-757-6152

Woodbury P.M.Fourth Tuesday of the month 7 p.m., St. Ambrose of Woodbury Jeanine, 651-757-6152


MINNESOTA

ExerciseStudies show physical activity not only improves your overall health and well-being, but also can help manage many MS symptoms. Move forward by finding an exercise program in your community.

Water exercise

Albert LeaFamily YMCA Susie, 507-373-8228 T/W/R, 1–1:45 p.m.

BurnsvilleMinnesota Valley YMCA Lori, 952-435-9022 T/R, 9–9:45 a.m.

Detroit LakesDetroit Lakes Community & Cultural Center Leslie, 218-844-4221 T/R, 9–10 a.m.

Eden PrairieCommunity Center Beth, 952-949-8447 M/W, 10:30–11:30 a.m.

Elk RiverFamily YMCA Jennifer, 612-618-9445 T/R, 11 a.m.

Grand RapidsItasca County Family YMCA Sue, 218-327-1161 M/W/F, 9:30–10:25 a.m.

Inver Grove HeightsThe Grove Amy, 651-554-3420Shallow water T/R, 10 a.m.Deep water M/W, 7:15 p.m. Call for more options.

MankatoMankato Family YMCA Joy, 507-345-9813 W, 5–6 p.m.

MarshallMarshall Area YMCA Cindy, 507-532-9622 M, 4:30–6 p.m.

New HopeNorthwest YMCA Pauline, 763-592-5518 T/R, 11 a.m.–noon

OsakisClub Galeon Tony, 320-859-6280 T/R, 11 a.m.

PerhamCommunity Center Marie, 218-346-7222 T/R, 8:30-9:30 a.m. W, 11–11:45 a.m.

St. CloudFamily YMCA Celeste, 320-253-2664 M/W/F, 9:30–10:30 a.m.

St. PaulJewish Community Center Stacey, 651-255-4762 T/R, 9:50–10:35 a.m.

StillwaterCourage St. Croix Joanie, 651-439-8283 T/R, 10–11 a.m.

VirginiaMesabi Family YMCA Jana, 218-749-8020 T/R, 1–2 p.m.

WaconiaSafari Island Sara, 952-442-0695 M/W/F, 8:30 a.m.

WillmarKandiyohi County Area YMCA Christy, 320-222-9622Shallow water M-F, 8:30–9:30 a.m.Deep water M/W/F, 9:30–10:30 a.m.Shallow/deep combo M/W, 5:30–6:30 p.m.


MINNESOTA

WoodburySoutheast Area YMCA Lisa, 651-739-6589 T, 11:15 a.m.–noon.

Feldenkrais lessonsFeldenkrais Method is a form of exercise that aims to reduce pain in movement and promote general well-being.

St. Louis ParkLennox Community Center Linda, 952-928-6419 R, 6:35–7:35 p.m.; M, 7–8 p.m.

Tai Chi

BurnsvilleDiamondhead Education Center Linda, 651-686-0335 W, 11 a.m.–noon

Inver Grove HeightsThe Grove Amy, 651-554-3420 W, 10 a.m.; F, 9:30 a.m.

MankatoV.I.N.E. Summit Center, Karen, 507-345-5262 T, 3:30–4:30 p.m.

St. PaulFairview MS Achievement Center Casey, 612-672-2815 T/F, 9-10 a.m.

Yoga

BemidjiDionne’s OM Yoga Studio Dionne, 218-766-9262 T, 8-9 a.m.; S, 9:30–10:30 a.m.

DuluthBenedictine Health Center Jarod, 218-733-2254 W, 10:30 a.m.

Eden PrairieEden Prairie Community Center Beth, 952-949-8447 F, 10:30–11:15 a.m.

Grand RapidsMN United Methodist Church Geri, 218-259-9804 T, Noon

MankatoOld Main Village Karen, 507-345-5262 T/R, 9 a.m.

MinneapolisKingsley Commons Mary, 651-690-1850 T/F, 10:30 a.m.

Uptown YWCA Lisa, 612-822-3504 T/F, Noon

St. PaulFairview MS Achievement Center Casey, 612-672-2815 T, 9-10 a.m.

StillwaterCourage St. Croix Joanie, 651-439-8283 W, 10 a.m.; R, 6:30–7:30 p.m.

Group exercise

HutchinsonPhysical Rehabilitation Center Dave, 320-484-4414 M/W, 9:30-10:30 a.m.

North OaksVillage Center Megan, 651-766-0080 M/W, 11–11:45 a.m.

M= Monday R = Thursday T = Tuesday F = Friday W= Wednesday S = Saturday



MS research symposiumSaturday, May 18, 9:30–11:45 a.m.Doublewood Inn and Conference Center, 1400 E. Interchange Ave., Bismarck, ND

Learn about the latest, nationally recognized multiple sclerosis research projects and therapies, and have your questions answered by MS expert Dr. Susan Scarberry, medical director at the Sanford MS Center in Fargo, N.D. In addition, learn about clinical trials in which people with MS can participate and what to expect from the experience. Plus, visit exhibitor tables to learn more about drug therapy options available to people with relapsing forms of MS. Check-in and continental breakfast will be from 9:30 to 10 a.m. Program is free. The registration deadline is May 13.

Minimize your risk of fallsWednesday, May 15, 7 p.m. Medcenter Outpatient Building, 414 N. Seventh St., Bismarck

Due to mobility issues and other symptoms, people with MS are at a significant risk for falls. Although completely eliminating falls may be unrealistic, many of them occur under predictable circumstances. Most falls can be prevented by identifying key risk factors and taking steps to minimize or eliminate them. Join us for this informative DVD program and guest speaker Annie McKittrick Crary, O.T.R./C.H.T. To RSVP, contact Judy at 701-226-0199; or Susan at 605-988-5200 or [email protected].

North Dakota programs

NORTH DAKOTA


NORTH DAKOTA




NORTH DAKOTA

Clubs and groupsJoin an MS club or group to connect with other people affected by MS, enjoy lively discussions, learn valuable information and ways to overcome challenges, have fun and be inspired. All programs are free unless otherwise noted. Read about groups and clubs that are moving forward together, and find a club or group in your community that’s right for you.

Bismarck, MandanThird Wednesday of the month 7 p.m., Medcenter One Outpatient Services Center (enter door 20) Judy, 701-220-4181

BottineauFirst Tuesday of the month 4:30 p.m., St. Andrews Hospital Amy, 701-228-3665

DickinsonSecond Tuesday of the month 1:15 p.m., St. Luke’s Home Tom, 701-225-5103

Fargo/Moorhead Last Thursday of the month Noon, Fryn Pan Restaurant DeeAnne, 701-361-6915

Fargo (for newly diagnosed)First Thursday of the month 6 p.m., restaurant location varies monthly Jennifer, 218-329-0805

Fargo/Moorhead Care Partner GroupThird Tuesday of the month 7 p.m., Hope Lutheran Church Vonda, 701-866-9373

Grand ForksSecond Thursday of the month 7 p.m., North Dakota Association for the Disabled Lee, 701-787-5164

JamestownSecond Tuesday of the month 6:30 p.m., St. Paul’s United Methodist Church (No meetings June – Aug.) Denise, 701-769-2529

MinotSecond Wednesday of the month 7 p.m., Trinity St. Joseph’s Hospital Donna, 701-837-0824

WillistonSecond Thursday of the month 6:30 p.m., Gramma Sharon’s Restaurant LaWanda, 701-570-0194


BismarckYoga and You Gentle Yoga M/W/F, 11 a.m.

Yoga and You Adaptive Yoga W/S, 9 a.m. Brenda, 701-255-8499



SOUTH DAKOTA


Youth CampJune 17–22YMCA Camp Icaghowan, 899 115th St., Amery, WI


South Dakota programs


SOUTH DAKOTA


AberdeenSecond Saturday of the month 11 a.m., Mother Joseph Mano Retirement Community (No meetings June – Aug.) Cathie, 605-225-0724

Aberdeen SAMSFirst and third Saturday of the month 10 a.m., First United Methodist Church Lois, 605-225-7190

BrookingsFirst Monday of the month 7 p.m., Brookings Hospital (No meetings June – Aug.) Jon, 605-691-1355

HuronSecond Thursday of the month Time and location varies Brenda, 605-354-2783

MitchellSecond Saturday of the month 10 a.m., Zion Lutheran Church Brian, 605-770-7097

Rapid City Lunch BunchTime and restaurant varies Jolene, 605-341-7622

Sioux FallsThird Friday of the month Times vary, National MS Society office Susan, 605-988-5200

SpearfishSecond Friday of the month 10 a.m., Spearfish Recreation Center Liz, 605-644-8921

WatertownFourth Tuesday of the month 7 p.m., Lake Area Tech Institute Tawnya, 605-881-3171 Suzanne, 605-520-5596

WinnerThird Monday of the month 6:30 p.m., United Methodist Church Doris, 605-835-8945


SOUTH DAKOTA


Land-based strengthening

Dakota DunesCenter for Neurosciences, Orthopedics and Spine Janet, 605-217-2770 Land-based strengthening M/W, 5:30 p.m.

Sioux FallsAccessible Wellness Program Kevin, 605-328-1870 Accessible equipment, fitness trainers

Yoga

Rapid CityFitness Plus Laura, 605-721-5959 Adaptive yoga W, 10:30 a.m.; S, 10:45 a.m.

Water exercise

Sioux FallsDow Rummel Village Wellness Center Melissa, 605-575-0193Water walking T, 9–9:30 a.m.; R, 8–8:30 a.m.Neuro fit T/R, 2:30–3 p.m.Aqua Chi M, 8:30–9:15 a.m.Adaptive yoga R, 6:30–7:30 p.m.



Children & Teens with MSChildren and Teens with MS is a support and education network for children and teens with MS and their families. For more information, visit nationalMSsociety.org and search “Pediatric MS Support Group.” To register for the network, call 800-344-4867 or email [email protected].

Knowledge is PowerKnowledge is Power is a free, at-home educational series for people who are newly diagnosed and their family members. The multi-week program provides literature with up-to-date information about multiple sclerosis. To learn more or participate, call 800-582-5296 (option 1).

Person-to-PersonThe MS Person-to-Person program pairs people with multiple sclerosis with others living with the disease or with people who know a great deal about it. Person-to-Person can also connect care partners with others who can relate to their experiences. Enjoy a one-on-one connection — over the phone, email or in person — with someone who understands the challenges of the disease. To learn more or participate, contact Connie at 612-335-7964 or [email protected].

Midwest Teleconference SeriesEach month, an MS specialist provides up-to-date information on a specific topic in a one-hour teleconference format. Empower yourself with education from the comfort of your own home for free. To learn more or register, visit MSsociety.org and search “Midwest Teleconference Series;” or call 800-582-5296 (option 1).

Monday, May 13, 2013, 7–8 p.m. C.T.“It’s not just in your head,” with Dr. Julie Bobholz, Ph.D., neuropsychologist, Aurora BayCare Clinic

Monday, June 10, 7–8 p.m. C.T.“My family has MS” with Dr. Rosalind Kalb, National MS Society

Monday, July 8, 2013, 7–8 p.m. C.T.“Wake up!” with Douglas Schell, MS-certified nurse, MidAmerica Neuroscience Institute

This program is supported by educational grants from

Anywhere programs

ANYWHERE


ANYWHERE

MS ConnectionMake meaningful connections and access the most up-to-date resources.Multiple sclerosis destroys connections. It disconnects the mind from the body and people from each other. But what if we could defy this disease with the very thing it seeks to destroy: connections. Would we share more knowledge? More questions? More answers? More hope? Maybe, by connecting enough small victories, we could win some really big ones.

MS Connection — a new online community that’s all about making meaningful connections when, where and how you want — provides easy access to the best content and resources the MS community can bring you. You’ll learn about the topics that are most important to you, connect with people you want to connect with and have expert MS information right at your fingertips.

Visit MSconnection.org, complete your community profile, find new connections, join and start groups and discussions and more.

If you have any questions, please contact us at [email protected].

MS Learn OnlineMS Learn Online, a Society internet program, is a convenient way to learn about multiple sclerosis. View new or archived programs on a wide variety of topics such as information for people newly diagnosed, basic facts about MS, symptom management, employment, intimacy, care partners, progressive MS and more. Registration is not required.

To view a listing of topics and links, visit MSsociety.org and search “MS Learn Online.”

My Life, My MS, My DecisionsThis series of online classes will help you boost your decision-making power. Sometimes it can feel like other people are making your decisions for you — these classes keep you in the driver’s seat. For more information, visit nationalMSsociety.org and search “My Life, My MS, My Decisions,” or call 800-344-4867 (option 1).

MS KILLSCONNECTION

CONNECTIONKILLS MS

> <


ANYWHERE

MS Next Step®

This multi-media program (DVDs, PDFs, booklets, etc.) is designed to answer questions that are commonly asked immediately following a diagnosis. If you’re just beginning your search for information about multiple sclerosis; wondering how the diagnosis may affect you; or considering issues like disclosure, treatment strategies and working with your health-care team, MS Next Step® could be an invaluable resource. If you’re newly diagnosed and would like to receive a copy of MS Next Step®, call 800-344-4867 (option 1) or email [email protected].

You CAN!You CAN! is an online resource brought to you with the help of Can Do Multiple Sclerosis (formerly The Heuga Center for Multiple Sclerosis) as a reminder that despite the challenges MS may bring, you have a whole life to live. Can Do Multiple Sclerosis teaches people with MS to focus on what they can do instead of what they cannot, empowering them to live fuller, more productive lives. For more information, visit nationalMSsociety.org and search “You Can!”


RESOURCES AND SERVICES

The National MS Society addresses the challenges of each person whose life is affected by multiple sclerosis and helps them stay independent and connected. The services and financial assistance programs listed below are available at any time to any person with a clinical diagnosis of MS who’s registered with the Upper Midwest Chapter.

For more information or to request an application for the services below, call 800-582-5296 (option 1).

ResourcesMS Navigators®

Contact an Upper Midwest Chapter MS Navigator® — social workers who can help guide you through the many obstacles that can result from an MS diagnosis. This includes understanding health insurance; finding affordable, accessible housing; guiding you through the process of applying for Social Security benefits; and more. Navigators will support you from diagnosis through all the various changes that occur as you move forward living with MS.

Lending LibraryThe National MS Society provides access to accurate, current and comprehensive information for people with MS, for free! Browse books, videos, DVDs and audio recordings. We mail any library items you choose. Even returning your library materials is easy; we prepay the postage! To view and request items in the Lending Library, visit MSsociety.org and search “Lending Library.” If you have questions about the Lending Library, please call 800-582-5296 (option 1).

Equipment loan programThe Society provides short-term loans for various types of medical equipment and devices. Try out equipment before making an important purchase or simply borrow equipment to address a temporary need related to the unpredictable nature of MS. Equipment and devices include (but are not limited to): manual and power wheelchairs, hospital beds, patient lifts, walkers and scooters.

Resources and financial assistance



MS ClassifiedsMS Classifieds is a virtual marketplace to buy, sell and donate mobility and assistive devices. The National MS Society, Upper Midwest Chapter does not endorse or guarantee any products or services listed on this website. Visit MSClassifieds.org to place your item for sale or to donate. If you’re interested in acquiring an item on MSClassifieds.org, you must contact the seller directly.

Phone consultationsPhone consultations are free and by appointment only. Consultations include family attorney consultations; employment consultations; tips on interviewing, resumes and more; employment discrimination/private disability consultations; and financial planning consultations. Call 612-335-7938 to schedule an appointment.

Newly diagnosed consultations: Call 612-335-7938 to schedule a face-to-face or phone consultation with an MS Navigator®. Some evening and Saturday times are available.

Financial assistanceLiving with multiple sclerosis can mean unexpected and ongoing financial difficulties for you and your family. The National MS Society, Upper Midwest Chapter is here to make sure that doesn’t stop you from moving forward. We provide financial grants that can assist with securing medical equipment, daily living aids, funds for household chores, counseling, emergency assistance and more.

How it worksAn MS Navigator® will talk you through the process and send you an application and/or referrals for eligible aids or service providers in your area. They’ll also help you evaluate other options you may have.

We can help cover the cost of products, such as:

n Scooters, power chairs, walkers and other mobility devices;

n Cooling vests, air conditioners and other cooling aids;

n Ramps, grab bars, bath safety products and other home modifications;

n Auto modifications such as hand controls and lifts;

n Tools and devices to simplify day-to-day tasks;

n Exercise equipment; and

n Much more.



We can also help with the cost of services that make life easier, such as:

n Mental health counseling;

n Transportation to and from medical appointments;

n Home assessments to increase safety and accessibility;

n Respite care services (a break for unpaid caregivers);

n Yard maintenance, snow removal and light housekeeping;

n Exercise and wellness classes and opportunities;

n College scholarships for people with MS and their children; and

n Many more.

To learn more, contact us at 800-582-5296 or [email protected], or visit the Financial Assistance Web pages at MSsociety.org.


Investing now is a promising way to ensure a secure financial future. Why not invest in a future free from MS at the same time? Through a charitable gift annuity with the National MS Society, you can make a gift that pays you a fixed amount each year for life and offers great tax benefits.

Join the Movement®

Make a charitable gift annuity to the Society today. For more information, contact Jennifer at 612-335-7965 or [email protected].

Tracey, diagnosed in 2005.

INVEST IN YOUR FUTURE. INVEST

IN OURS.

Walk to create a World free of multiple sclerosis

BE INSPIRED. GET CoNNECTED. WAlk MS.Walk MS is an experience unlike any other — a day to come together, to celebrate the progress we’ve made and to show the power of our connections.

Join other people in your community to raise critical funds to support cutting-edge research and life-changing programs.

Invite friends, family and neighbors to one of 33 walks in the Upper Midwest Chapter area this April and May. Can’t make it? Register as a “virtual walker” and help end MS forever, no matter where you are.

RegISteR & StARt fUndRAISIng todAy: myMSwalk.org or 800-582-5296

Evelyn, diagnosed in 2008

Documents

Programs & Resources Guide, summer 2013