Shire Funding Disclosure Report 2012 - takeda.com...Shire Funding Disclosure Report Shire Funding Disclosure Report 2012 | March 2013 Table of contents Updated March 2013 ... Oct-12

Shire Funding Disclosure Report 2012March 2013

1

Shire.com > Responsibility > Community connections > Patient organisations and grants

Shire Funding Disclosure Report

Shire Funding Disclosure Report 2012 | March 2013

Table of contents Updated March 2013

Argentina .......................................................................................2

Australia .........................................................................................3

Austria ............................................................................................5

Belgium ..........................................................................................6

Brazil...............................................................................................7

Canada .........................................................................................10

Columbia......................................................................................11

Czech Republic ...........................................................................12

Denmark ......................................................................................13

Estonia .........................................................................................14

France ..........................................................................................15

Germany ......................................................................................17

Greece ..........................................................................................19

Ireland ..........................................................................................20

Italy ...............................................................................................21

Japan ............................................................................................23

Latvia ............................................................................................24

Mexico ..........................................................................................25

Netherlands .................................................................................26

Poland ..........................................................................................27

Portugal .......................................................................................28

Russia...........................................................................................29

Spain.............................................................................................30

Sweden ........................................................................................33

Switzerland ..................................................................................34

Turkey ...........................................................................................35

USA ...............................................................................................37

Shire Funding Disclosure Report 2012 | Argentina | March 2013 2



Date Organisation Description of the activity/purpose ARS

Oct-12 Asociación Distrofia Muscular Grant to provide support for patients affected by neuromuscular diseases 15,000.00

Mar-12 Asociacion De Pacientes De Enfermedades Lisosomales De La Republica Argentina Grant to provide support for patients affected by lisosomal diseases 30,000.00

Apr-12 BŃai B´Rith Argentina Support to the main activities of the institution (medicines donation, wheelchair donation) 66,000.00

Apr-12 Centro Médico Roca - San Martin De Los Andes Grant to purchase medical equipment: pump for infusion 12,015.00

May-12 Asociacion De Pacientes De Enfermedades Lisosomales De La Republica Argentina Grant to provide support for patients affected by lisosomal diseases 30,000.00

May-12 Asociacion De Pacientes De Enfermedades Lisosomales De La Republica Argentina Grant to provide support for patients affected by lisosomal diseases 20,000.00

May-12 Asociacion Estudios Y Difusion De Enfermedades Lisosomales Medical / HCP Group Support - Grant for educational events and trainings on LSD diseases 125,000.00

May-12 Fundacion Enhue Para La Ayuda De Pacientes Con Enfermedades Huerfanas Grant for educational events and trainings on LSD diseases 200,000.00

May-12 Asociacion Argentina De Angioedema Hereditario Grant for educational events and trainings on LSD diseases 24,000.00

Jun-12 Ciperca Grant to purchase medical equipment: pump for infusion 11,963.00

Jun-12 Fundacion Enhue Para La Ayuda De Pacientes Con Enfermedades Huerfanas Grant for educational events and trainings on LSD diseases 200,000.00

Jul-12 Asociacion Cooperadora Hospital De Clinicas Grant for educational events and trainings on LSD diseases 4,000.00

Jul-12 BŃai B´Rith Argentina Donation to support main activities of the institution (medicines donation, wheelchair donation) 66,000.00

Jul-12 Asociacion De Pacientes De Enfermedades Lisosomales De La Republica Argentina Grant to provide support for patients affected by lisosomal diseases 10,000.00

Jul-12 Asociacion Estudios Y Difusion De Enfermedades Lisosomales Medical / HCP Group Support - Grant for educational events and trainings on LSD diseases 125,000.00

Aug-12 Fundacion Enhue Para La Ayuda De Pacientes Con Enfermedades Huerfanas Grant for educational events and trainings on LSD diseases 500,000.00

Oct-12 Asociacion Estudios Y Difusion De Enfermedades Lisosomales Medical / HCP Group Support - Grant for educational events and trainings on LSD diseases 125,000.00

Oct-12 Asociación Distrofia Muscular Grant to provide support for patients affected by neuromuscular diseases 30,000.00

Oct-12 BŃai B´Rith Argentina Donation to support main activities of the institution (medicines donation, wheelchair donation) 66,000.00

Nov-12 Fundacion Ciencias Exactas Grant for LSD diagnosis research 140,250.00

Nov-12 Fundacion Enhue Para La Ayuda De Pacientes Con Enfermedades Huerfanas Grant for educational events and trainings on LSD diseases 350,000.00

Dec-12 Fundacion Enhue Para La Ayuda De Pacientes Con Enfermedades Huerfanas Grant for educational events and trainings on LSD diseases 350,000.00

Dec-12 Asociación Distrofia Muscular Grant to provide support for patients affected by neuromuscular diseases - IIR Study Dr. Politei 102,314.10

Dec-12 BŃai B´Rith Argentina Donation to support main activities of the institution (medicines donation, wheelchair donation) 30,000.00

Dec-12 Fundacion Cutis Sponsorship for activities of the dermatology unit around LSD diseases 15,000.00

Dec-12 Academia Nacional De Medicina Grant to purchase equipment: desk computer (administrative) 3,000.00

Nov-12 Asociacion Estudios Y Difusion De Enfermedades Lisosomales Medical / HCP Group Support - Grant for educational events and trainings on LSD diseases 125,000.00

Dec-12 Asociación Distrofia Muscular Grant to provide support for patients affected by neuromuscular diseases - IIR Study Dr. Politei 102,519.55

Argentina

Shire Funding Disclosure Report 2012 | Australia | March 2013 3



Australia

Date Organisation Description of the activity/purpose AUS

Jan-12 Australian & New Zealand Society of Nephrology "ANZSN - Educational Partner 2012 Grant / To assist the ANZSN in their educational programs for 2012, including: Annual Scientific Meeting

international speakers and educational content to the renal community, in addition to providing travel grant support to their membership. “

30,000.00

Jan-12 Australian & New Zealand Society of Nephrology ANSZN - Sustaining member 2012/To support the Annual Sicentific Meeting and the Nephrology and Transplantation Update Course 10,000.00

Jan-12 The Prince Wales Hospital (prof. Zoltan Endre) Unrestricted Educational Grant to Prince of Wales Hospital / To support the educational and research programs of the Nephrology Department at

Prince of Wales Hospital. This grant will assist in further developing the established educational and research programs at the Nephrology Department

20,000.00

Jan-12 Prof. Michael Suranyi PACE - Renal Master Class Educational Meeting in Madrid, Spain, 17-18 Feb 2012 / The Renal Master Class aims to educate physicians with state

of the art information and perspectives about the optimal management of patients with CKD. The meeting includes lectures, clinical debates and

practical workshops. The business case is in support of supporting 3 Australian Nephrologists to attend the meeting.

7,977.90

Feb-12 Prof.Luka Kairatis PACE - Renal Master Class Educational Meeting in Madrid, Spain, 17-18 Feb 2012 / The Renal Master Class aims to educate physicians with state

of the art information and perspectives about the optimal management of patients with CKD. The meeting includes lectures, clinical debates and

practical workshops. The business case is in support of supporting 3 Australian Nephrologists to attend the meeting.

3,735.48

Feb-12 HAE Australia HAE Australia 2012 Grant / Financial grant for organizing Patient Day Meeting on 31st March 2012 10,000.00

Mar-12 Kidney Health Australia KHA - CARI 2012 annual sponsorship / Annual sponsorship for Kidney Health Australia for the ongoing development and maintenance of the CARI

Guidelines

20,000.00

Mar-12 Ms. Jody Holmes Sponsorship to Jody Holmes to attend Home Therapies Conference in Sydney Mar 14-16, 2012 / To provide continuing education in Nephrology 858.87

Apr-12 Renal Society of Australasia Limited - NSW/ACT branch RSA NSW Branch Gold Sponsorship for 2012/ Continuing education in CDK MBD 1,000.00

Apr-12 University of Western Sydney (Prof. Connie Katelaris) EAACI Travel Grant Request - UWS / To support the presentation of an abstract at EAACI- this abstract is from a research project funded by Shire 5,000.00

Apr-12 Australian & New Zealand Society of Nephrology Bronze sponsorship of Home Therapies Dialysis Meeting 14-16 Mar, 2012 5,000.00

Apr-12 Renal Society of Australasia Limited Bronze sponsorship of RSA Conference 30 May - 2 Jun, 2012 8,090.91

May-12 GE Society of Queensland Gold Sponsorship of 16th Annual Coolum Update, 9-11 June, 2012 / continuing education in Gastroenterology 5,000.00

May-12 Westmead Hospital (Dr Michel Tchan) Grant for Westmead LSD program / Provide unrestricted grant to develop LSD clinic in Hospital (funding for part-time nurse to assess patients for LSD) 18,000.00

Jun-12 Dr. Subramanian Karthik Kumar Unrestricted Grant for Dr. Kumar / This unrestricted travel grant will assist Dr Kathik Kumar (Nephrologist, Central Coast, NSW) in attending the

ASN(American Society of Nephrology) Board Review Course that is being held in San Francisco, 25-31 Aug, 2012

5,000.00

Jun-12 ASCIA - WA Branch Platinum Sponsorship of 2012 ASCIA Western Australian Immunology Meeting at Perth Zoo, 28 Jul, 2012 / Continuing education in Immunology 1,000.00

Jun-12 "L & R Contract Business Services Pty Ltd (Faculty of Child and Adolescent Psychiatry)” Bronze Sponsorship of Faculty of Child and Adolescent Psychiatry Bi National Meeting, 2-5 Oct, 2012 4,000.00

Jun-12 HAA APSTH 2012 (HSANZ ANZSBT ASTH) Sponsorship of 2012 Annual Scientific Meeting of the HSANZ / to support the annual congress of the HSANZ and enhance the QUM 11,500.00

Jul-12 Southern Health (Dr. Anouk Dev) Educational Grant to Monash Medical Centre - Dr. Patrick Wilson / Support of Endoscopy Fellow Dr. Patrick Wilson Oct 2012 - Oct 2013/ This covers

Monash & dandenong endoscopy which represents 2 of the largest endoscopy units in VIC

9,000.00

Aug-12 Dr Michael James Desmond Sponsorship Dr. Desmond attendance for early program and kidney week program in San Diego Oct 30 - Nov 4, 2012 for educational purposes 820.00

Shire Funding Disclosure Report 2012 | Australia | March 2013

Shire Funding Disclosure Report | Australia continued


4

Date Organisation Description of the activity/purpose AUS

Aug-12 ASCIA Sponsorship of ASCIA ASM 2012 HAE Breakfast Symposium/ Support the education of Immunologist on HAE via Sponsorship of an ASCIA run

breakfast symposium 7 Sep, 2012 in NZ

5,000.00

Aug-12 Riverview College Foundation Support of the Riverview Bursary Program 4th donation for 2011 & 1~3 Donation for 2012 20,000.00

Sep-12 Crohn's & Colitis Australia (a charitable institution) CCA Sponsorship of IBD Nurse Funding Report / support the funding of a report into the value of IBD Nurses 20,000.00

Sep-12 Northern Health Northern Hospital IBD Nurse Grant / support IBD Nurse 10,000.00

Sep-12 SMILE Foundation Donation for SMILE Foundation Gala night 2,500.00

Sep-12 SMILE Foundation Donation Smile Ball Charity Auction 1,005.99

Oct-12 LandCare Australia Donation for Corporate Volunteer Day - Shire community service day on 17th Sep'12 1,000.00

Nov-12 "Queensland Government, Queensland Health - Logan Hospital” Logan Hospital IBD Nurse Sponsorship / support IBD Nurse 10,000.00

Nov-12 The University of Sydney (Prof D Harris) Sponsorship Dr. Harris attendance for early program and kidney week program in San Diego Oct 30 - Nov 4, 2012 for educational purposes 240.00

Nov-12 Carol Harmer Donation - Shire Brave Award winner (Carol Harmer) 13,500.00

Dec-12 Government of Western Australia DOH IBD Nurse Support for Transition Patients (Child to Adult)/to improve patient management of IBD 10,000.00

Dec-12 "Central Adelaide Local Health Network (Royal Adelaide Hospital Renal Nutrition)” 2013 Renal Nutrition Program sponsorship/ to assist the post grad renal nutrition learning program for dietitians through sponsorship support of face

to face meeting in 2013, 7-11 Feb, 2013./ There will be no promotion to dietitians at this meeting

3,000.00

Dec-12 Central Adelaide Local Health Network (A/Prof Kym Bannister) CKD/Dialysis Preceptorship/ This is an agreement letter outlining a preceptorship in CKD/Dialysis for Shire employees. The aim of the preceptorship

is to provide attendees with a broad understanding of patient management within the daily practice and forms part of the employee's continuing

education. The preceptorship is intended to enable healthcare professionals to share their knowledge, to enhance awareness of Chronic Kidney

Disease and Dialysis while promoting the Quality Use of Medicines

5,000.00

Dec-12 Western Desert Nganampa Walytja Grant of Western Desert Nganampa Walytja Palyantjaku Tjutaku Aboriginal Corporation (WDNWPT) ‘Purple Truck’ project in Central Australia/ To

financially support the Western Desert Nganampa Walytja Palyantjaku Tjutaku Aboriginal Corporation (WDNWPT) ‘Purple Truck’ project in Central

Australia that helps remote indigenous Australians to get people home to remote NT,WA and SA communities and receive haemodialysis

30,000.00

May-12 Gastroenterological Society of Australia Dinner sponsorship for Int'l org for the Study of IBD, Melbourne Austr, 31MAR2012 22,000.00

Shire Funding Disclosure Report 2012 | Austria | March 2013 5



Date Organisation Description of the activity/purpose EUR

Mar-12 Gesellschaft für MuKoPolySaccharidosen und ähnliche Krankheiten, Breitenbach Donation for statutory aims of the association 5,000

Jul-12 Österreichische Gaucher Gesellschaft, Hagenberg, Austria Donation for statutory aims of the association 2,000

Aug-12 Medizinische Universität Graz, Graz, Austria Donation for unrestricted clinical research 25,000

Sep-12 Paracelsus Medizinische Privatuniversität, Salzburg Donation for personal and non personal costs 65,000

Oct-12 Forum Seltene Krankheiten e.V., Innsbruck Donation supporting Rare Disease Awareness Event 500

Oct-12 Verein zur Förderung der wissenschaftlichen Aktivitäten an der kinderinternen Abteilung

des SMZ Ost, Wien, Austria

Donation for statutory aims of the association 500

Nov-12 Verein zur Förderung d. ambulanten Kinderheilkunde Wiens, Wien Donation for statutory aims of the association 3,500

Dec-12 HAE Selbsthilfegruppe Austria, Niederwaldkirchen Donation for statutory aims of the association 1,000

Austria

Shire Funding Disclosure Report 2012 | Belgium | March 2013 6




Jul-12 Gamian-Europe, Brussels BE Corporate Membership 4,900.00

Jul-12 Gamian-Europe, Brussels BE Supporting Meeting/young people's Mental Health 5,000.00

May-12 International Society of Nephrology, Brussels BE Corporate Membership 20,000.00

Belgium

Shire Funding Disclosure Report 2012 | Brazil | March 2013 7



Brazil

Date Organisation Description of the activity/purpose BRL

Jan-12 Associação Maria Vitória - AMAVI Support to healthcare activities and services to associates 18,000.00

Jan-12 Academia Brasileira de Neurologia (ABN) Support of "XXX Congresso Brasileiro de Neurologia - Goiânia 2012" 21,600.00

Feb-12 Fundação Médica do Rio Grande do Sul Support to develop healthcare activities and services to associates 123,542.90

Feb-12 Instituto de Neurociências Integradas Sponsorship to Event: "8° Congresso Brasileiro de Cérebro, Comportamento e Emoções" 168,500.00

Mar-12 Associação Paulista dos Familiares e Amigos dos Portadores de Mucopolissacaridoses Partial support to the APMPS Annual Project (2012) 144,000.00

Mar-12 Associação Brasileira de Portadores de Doença de Fabry e Familiares - ABRAFF Support to develop healthcare activities, services to associates and implement projects for 2012 162,500.00

Apr-12 Associação Brasileira de Neurologia e Psiquiatria Infantil e Profissões Afins - ABENEPI Sponsorship to Event: "Simpósio Internacional da ABENEPI Nacional, Capítulo Paulista e Núcleo Campinas: Saúde mental do escolar: reflexões

e evidências científicas"

4,800.00

Apr-12 Sociedade de Pediatria do Distrito Federal Sponsorship to Event: "XI Congresso da Sociedade de Pediatria do Distrito Federal" 6,000.00

Apr-12 Associação Brasileira de Alergia e Imunologia - ASBAI Sponsorship to Event: "XXXIX Congresso Brasileiro de Alergia e Imunopatologia" 48,000.00

Apr-12 Fundação Faculdade de Medicina Sponsorship to Event: "Congresso de Clínica Psiquiátrica - Como a ciência transformará a clínica do futuro" 52,250.00

Apr-12 Associação Piauiense de Fabry - ASPIF/PI Support projects for 2012 210,000.00

Apr-12 Centro de Estudos Olinto de Oliveira Support to course: "Treinamento profissional especializado de atividades teóricas e práticas voltadas a assistência a pacientes com

Mucopolissacaridose"

50,528.00

Apr-12 Associação Baiana dos Familiares e amigos dos portadoresde Mucopolissacaridose Charity work and implementation of projects for 2012 46,000.00

Apr-12 Associação Alagoana dos familiares e amigos dos portadores de Mucopolissacaridose

- AAMPS

Support of MPS Health Services 22,000.00

May-12 Associação Brasileira de Genética Médica Sponsorship to Event: "XXIV Congresso Brasileiro de Genética Médica" 50,000.00

May-12 Associação Cearense de profissionais atuantes em doenças genéticas, pacientes

familiares e voluntários - ACDG

Support of MPS Health Services 30,000.00

May-12 Instituto de Genética e Erros Inatos do Metabolismo - IGEIM Support to develop healthcare activities and services to associates 207,000.00

May-12 Associação de Psiquiatria do Rio Grande do Sul - APRS Sponsorship to Event: "25° Ciclo de Avanços em Clínica Psquiátrica" 5,000.00

May-12 A Casa de Nossa Senhora da Paz - Ação Social Franciscana Sponsorship to Event: "XXX Semana Médica - Urgências e Emergências" 2,000.00

May-12 Associação Brasileira de Psiquiatria Support of the "XXX Congresso de Psiquiatria" 42,120.00

May-12 Instituto Glia - Consultoria em Neurociências LTDA Sponsorship to Event: "Aprender Criança 2012" 62,000.00

Jun-12 Associação Catarinense de MPS - ACAMU Support of MPS Health Services 7,500.00

Jun-12 Associação Natalense de MPS Support of MPS Health Services 10,000.00

Jun-12 Fundação Médica do Rio Grande do Sul Sponsorship to Program of attention deficit/hiperactivity (PRODAH) 50,000.00

Shire Funding Disclosure Report 2012 | Brazil | March 2013

Shire Funding Disclosure Report | Brazil continued


8


Jun-12 Associação Brasileira de Alergia e Imunologia - Regional Espírito Santo Sponsorship to Event: "VI Simpósio Alergia ASBAI Regional ES" 2,000.00

Jun-12 Sociedade Mineira de Cardiologia Sponsorship to Event: "XXII Congresso da Sociedade Mineira de Cardiologia" 5,000.00

Jun-12 SORES - Sociedade de Reumatologia do Espírito Santo Sponsorship to Event: "XXIX Congresso Brasileiro de Reumatologia" 40,500.00

Jun-12 Santa Casa de Misericórdia da Bahia Sponsorship to Event: "Meeting de saúde e tecnologia" 25,000.00

Jun-12 Associação Brasileira de Neurologia e Psiquiatria Infantil e Profissões Afins - ABENEPI Sponsorship to Event: "VI Congresso Carioca da ABENEPI-RJ" 15,000.00

Jul-12 Associação Brasileira de pacientes portadores da doença de Fabry e familiares - ABRAFF Support Fabry disease Health Services 180,180.00

Jul-12 Associação Brasileira de Portadores de Angiodema Hereditário - ABRANGHE Support to HAE disease Health Services 10,000.00

Jul-12 Instituto Canguru Support of Rare Disease Health Services 5,000.00

Jul-12 Instituto Roberto Giugliani - Para o Desenvolvimento da Genética na Medicina Support Campaign "Brasil na Holanda" 20,000.00

Aug-12 Sociedade Brasileira de Neurologia Infantil Sponsorship to Event: "7° Congresso da Sociedade Brasileira de Neurologia Infantil" 50,000.00

Aug-12 Sociedade Pernambucana de Psiquiatria Sponsorship to Event: "XXIX Jornada Pernambucana de Psiquiatria" 6,700.00

Sep-12 Associação Mineira de Mucopolissacaridose Support of MPS Health Services 15,000.00

Sep-12 Associação Beneficente B'Nai B'Rith de São Paulo Develop initiatives to education in human rights 274,659.00

Sep-12 Associação Catarinense de Psiquiatria - ACP Sponsorship to Event: "XI Jornada Catarinense de Psiquiatria" 6,000.00

Sep-12 Associação Psiquiátrica do Espírito Santo - APES Sponsorship to Event: "VIII Jornada Sudeste de Psiquiatria" 4,000.00

Sep-12 Núcleo de Psiquiatria do Estado do Ceará - NUPEC Sponsorship to Event: "IX Congresso NUPEC - Uma Rede de assistência em Psiquiatria/Saúde Mental" 3,000.00

Oct-12 Associação Maria Vitoria - AMAVI Support to HAE diasease Health Services 20,000.00

Oct-12 Fundação médica do Rio Grande do Sul Support to MPS Health Services 249,161.10

Oct-12 Fundação Ulbra Educational support to cientific initiation project of Fabry disease 12,840.00

Oct-12 Associação Pernanbucana de MPS Breno Bloise de Freitas Support for home Health Services 15,000.00

Oct-12 Instituto de Genética e Erros Inatos do Metabolismo - IGEIM Support for biochemical diagnoses tests made by LEIM in 2012 and molecular analyzes in 2011 and first trimestre of 2012 58,570.00

Oct-12 Associação Pró-Neuropediatria do Hospital de Clínicas Sponsorship to Event: "Simpósio Internacional de Neurociência" 10,000.00

Oct-12 Sociedade Mineira de Pediatria Sponsorship to Event: "Simpósio Erros Inatos do Metabolismo" 6,000.00

Oct-12 Visa Turismo Viagem LTDA Sponsorship to Event: "VI Encontro de neuro-ortopedia e reabilitação na infância e na adolescência" 3,000.00

Nov-12 Associação Brasileira e Déficit de Atenção - ABDA Support for carrying out activities of training healthcare professionals, participation in events regarding ADHD, ADHD disclosure in the media,

meetings with governments, municipalities, consensus and national and international congresses

130,000.00

Nov-12 Associação Cearense de profissionais atuantes em doenças genéticas, pacientes


Sponsorship to Event: "III Congresso Norte Nordeste de Genética Médica" 20,000.00

Nov-12 Associação Baiana dos Familiares e amigos dos portadoresde Mucopolissacaridose Sponsorship to Event: "III Simpósio do Serviço de Genética Médica do Hospital Universitário Professor Edgar Santos" 4,500.00

Nov-12 Sociedade Brasileira de Cardiologia Sponsorship to Event: "22° Congresso Brasileiro de Cardiologia Pediátrica" 5,000.00

Dec-12 Fundação ABC Material support for implementing the central infusion for treating metabolic diseases 10,000.00

Dec-12 Associação Paulista de Mucopolissacaridose Support to infusion center in Santos (São Paulo), for the campaign "eu luto pela vida", visit project for center infusion, and support participation

on CNS and rare diseases group

84,400.00

Dec-12 Instituto Roberto Giugliani Educational Grant 5,000.00

Shire Funding Disclosure Report 2012 | Brazil | March 2013

Shire Funding Disclosure Report | Brazil continued


9


Dec-12 Instituto de Genética de Erros Inatos do Metabolismo-IGEIM Support to educational program to review retrospective data from MPS disease 18,000.00

Dec-12 Instituto Roberto Giugliani para o Desenvolvimento da Genética na Medicina Support to III Workshop of Lysosomal Diseases and VIII Advanced Course regarding Dignostic and Treatment of Metabolic Diseases 79,000.00

Dec-12 Associação Cearense de profissionais atuantes em doenças genéticas, pacientes


Support to develop healthcare activities and services for genetic diseases 10,000.00

Dec-12 Associação Alagoana dos familiares e amigos dos portadores de Mucopolissacaridose

- AAMPS

Support to develop Health Services 27,550.00

Dec-12 Associação Piauiense de Fabry - ASPIF/PI Support Fabry Health Services 58,800.00

Dec-12 Instituto Roberto Giugliani para o Desenvolvimento da Genética na Medicina Sponsorship to Event: "Simpósio MPS Sul 2012" 25,000.00

Dec-12 Associação Baiana dos Familiares e amigos dos portadoresde Mucopolissacaridose Support to healthcare activities and services 45,000.00

Shire Funding Disclosure Report 2012 | Canada | March 2013 10



Date Organisation Description of the activity/purpose CAD

Feb-12 Afeas Provinciale 2012 unrestricted grant 10,000.00

Feb-12 Kidney Foundation Canada 2012 grant - Kidney Stories of Hope 20,000.00

Mar-12 Panda Mauricie 2012 unrestricted grant 20,000.00

Apr-12 Fondation du CHUQ 2012 grant - Laboratoire histomorphométrie 10,000.00

May-12 Let's Talk Science 2012 unrestricted grant 5,000.00

Jun-12 LDAA - Calgary Chapter 2012 unrestricted grant 6,500.00

Aug-12 The Hospital for Sick Children 2012 unrestricted grant 25,000.00

Sep-12 Fondation du CHUQ 2012 grant - Kilimanjaro project 10,000.00

Oct-12 MUHC - IBD Research Team 2012 grant - Webinars 5,000.00

Nov-12 CDHF 2012 grant - Webinars 40,000.00

Dec-12 CDHF 2012 grant - UC fact sheet 25,000.00

Dec-12 CDHF 2012 grant - Nurses Report Card 95,000.00

Jul-12 CADDAC 2012 grant - ADHD Awareness Week 80,000.00

Canada

Shire Funding Disclosure Report 2012 | Columbia | March 2013 11



Columbia

Date Organisation Description of the activity/purpose COP

Feb-12 Acopel Rare Diseases day 2,000,000.00

Nov-12 Acopel Patient Support / advocacy 6,200,000.00

Dec-12 Acopel Patient Support / Disease Awareness 45,000,000.00

Mar-12 Apego Patient Support /Advocacy/ Disease Awareness 133,611,000.00

Sep-12 Apego Educational activity 1,947,080.00

Dec-12 Apego Patient Support / Advocacy/Disease Awareness 109,000,000.00

Mar-12 Colombia Saludable Patient Support / Education to patients/ Advocacy 96,090,750.00

Aug-12 Colombia Saludable Advocacy 3,000,000.00

Dec-12 Colombia Saludable Education to patients/ Advocacy 60,000,000.00

Sep-12 Fecoer Global disease day 5,500,000.00

Dec-12 Fecoer Advocacy / Education to patient associations 88,500,000.00

Nov-12 Fundis Educational activity (logistics) 1,050,000.00

Dec-12 Fundis Advocacy / Disease awareness 72,750,000.00

Dec-12 Ispor Educational grant 11,200,000.00

Dec-12 Humberto Da Silva Ven Patient Support / Disease Awareness 25,000,000.00

Dec-12 Cigh Wiñay Peru Patient Support / Disease Awareness 71,618,400.00

Dec-12 Asoc Colombiana de Genética Humana Educational grant 14,170,200.00

Dec-12 Provida Charitable / Community donation 115,000.00

Shire Funding Disclosure Report 2012 | Czech Republic | March 2013 12



Czech Republic

Date Organisation Description of the activity/purpose CZK

May-12 Charles University Prague, I. Medical faculty funding of organization of symposium ESID, especially to support the participation of invited foreign speakers, 14 - 15 May 2012, Prague 50,000.00

May-12 META - sdružení pacientů se stůádavými onemocnůními, o.s. funding of patient organization META for patients with LSD. 200,000.00

V.12 Spoleůnost pro mukopolysacharidosu support of MPS Health Services 100,000.00

Jun-12 Sdružení na pomoc chronicky nemocným důtem - Klub AA Homolka support of increasing the quality of life for chronically sick children suffered by allergies and immunodeficiencies 20,000.00

Dept. of Allergology and Immunology Medical Faculty of the Charles University Pilsen support of Hospital Health Services 100,000.00

Sep-12 Czech Rare Deisease Association support of Rare Disease Health Services 100,000.00

Dec-12 Dept. of Pediatrics and Adolescent Medicine, First Faculty of Medicine, Charles University

in Prague and General University Hospital

financial support for two electrophoretic power supplies (PowerPac Universal Power supply, Bio-Rad) 100,000.00

Dec-12 Dept. of Pediatrics and Adolescent Medicine, First Faculty of Medicine, Charles University

in Prague and General University Hospital

grant for Rare Disease Therapy chair 120,000.00

Oct-12 Fakultní nemocnice Hradec Králové grant for Rare Disease Clinic improvements 100,000.00

Sep-12 Masarykova univerzita, Institut biostatistiky a analýz financial support for existitng Database of Primary Immunodeficiency Disease in Czech republic, incl. HAE 100,000.00

Shire Funding Disclosure Report 2012 | Denmark | March 2013 13



Date Organisation Description of the activity/purpose DKK

Jan-12 Neurologisk selskab Sponsorship of Health Services activities 8,000.00

Jan-12 Neurologisk selskab Sponsorship of Health Services activities 12,000.00

Nov-12 DNPS (Medical Physchiatric Foundation) Sponsorship of Health Services activities 25,000.00

Jan-12 Dansk Neurologisk Selskap Sponsorship of Health Services activities 15,000.00

Jan-12 Rigshospitalet, Copenhagen, DK Research Grant, Dept. of Cardiology 265,000.00

Jan-12 Gaucher Danmark, Holbaek, DK Financial Support, Nordic Gauchers Disease Meeting 30,000.00

Feb-12 Rigshospitalet, Copenhagen, DK Supporting treatment of lysysomal storage disorders 20,000.00

Jun-12 Fabry Patientforeningen Danmark, Kolding, DK Funding Scandinavian meeting 39,200.00

Nov-12 Patientforeningen HAE Danmark, Hasselhager, DK Support HAE conference, Denmark 30,000.00

Denmark

Shire Funding Disclosure Report 2012 | Estonia | March 2013 14




Sep-12 Tartu University Hospital, Tartu, Estonia EE Educational Grant/ new disease dept 5,000.00

Oct-12 Tartu University Hospital, Tartu, Estonia EE Educational Grant/ Onclolgy 5,000.00

Estonia

Shire Funding Disclosure Report 2012 | France | March 2013 15



France


Sep-12 ASSOCIATION pour l'Information et la Recherche sur les maladies Rénales Génétiques

AIRG

Financial grant for organizing annual Day of association 5,000.00

Oct-012 Association des Patients de la Maladie de Fabry APMF Financial grant for production of awareness brochures (3/year), document for follow-up care, and creation of an interactive internet 35,000.00

Nov-12 Association des jeunes internites de Normandie Financial grant for organizing training "hérédité en scène" 1,000.00

Dec-12 ASSOCIATION Alliance Maladies Rares Strengthening and modernization of communications tools, complete revision social network site and creation, production of information movies

about the rare diseases with testimonies.

50,000.00

Dec-12 ASSOCIATION Vaincre les Maladies Lysosomales VML Inventory and realization of a directory of recognized centres (non hospitable institutes) in the support of patients suffering from a disease

lysosomales. Studies of the psychic suffering for better management of children patients

39,500.00

Dec-12 Universite victor Segalien Bordeaux 2 Financial grant for purchase of medical equipment for help projects to search about rare diseases 8,000.00

Oct-12 ASSOCIATION Vaincre les Maladies Lysosomales VML Financial grant for partial job for social assistant 20,000.00

Oct-12 Association des malades souffrant d'angiodèmes par déficit en C1 inhibiteur AMSAO Creation of web site 3,000.00

Dec-12 Association ALTE Financial grant for contribution for thrombocythemia research 3,000.00

Feb-12 ASSOCIATION OCEAN Financial donation for Health Services Support 3,000.00

Dec-12 ASSOCIATION TRANSFORME Financial Grants for organizing race for support transplant and dialysis Health Services 8,000.00

Feb-12 ASSOCIATION ANGEVINE Financial donation for Health Services 900.00

Feb-12 ASSOCIATION ADEREM Financial donation for Health Services 1,000.00

Sep-12 ASSOCIATION ARIT Financial donation for Health Services 8,536.82

Sep-12 ASSOCIATION TIRCEL Financial donation for Health Services 7,604.70

Nov-12 ASSOCIATION ADRINORD Sponsorship for organize animation " PTH chez les patients transplantés" 800.00

Feb-12 ASSOCIATION Limogeaude de Pédiatrie Médicale Financial donation for Health Services Support 1,500.00

Feb-12 ASSOCIATION HYPERSUPERS TDAH France Financial grant for screening, treatment and research. Promote social and educational integration of children and adults 6,000.00

Feb-12 ASSOCIATION TRANSFORME Financial Grants for organizing race for support transplant and dialysis patients 8,000.00

Mar-12 ASSOCIATION Neurologie de l'Enfant à Nantes Financial donation for Health Services 5,200.00

Apr-12 ASSOCIATION AFPSSU Financial grant for purchase of medical equipments, production of awareness brochures. 1,000.00

May-12 ASSOCIATION ESPACE-ADO 76 Financial donation for Health Services 500.00

May-12 ASSOCIATION AFDPPB Financial donation for Health Services 1,500.00

Nov-12 ASSOCIATION TDAH-PACA Financial donation for Health Services 1,500.00

Oct-12 ASSOCIATION des Patients Souffrants du Syndrome de l'Intestin I'Iritable APSSII financial donation for organizing patients meeting, web site and production of awareness brochures. 5,000.00

Shire Funding Disclosure Report 2012 | France | March 2013

Shire Funding Disclosure Report | France continued


16


Oct-12 ASSOCIATION HYPERSUPERS TDAH France Financial grant for screening, treatment and research. Promote social and educational integration of children and adults 15,000.00

May-12 IACAPAP (child and adolescent psychiatry)- US Funding Congress in Paris, FR 20,000.00

Jun-12 HAEi, Nancy, FR Support HAEi awareness 175,000.00

Jun-12 HAEi, Nancy, FR Support HAEi Global Conference 125,000.00

Jun-12 Women Innovating Together in Healthcare Appel de cotisation 2012 5,000.00

Shire Funding Disclosure Report 2012 | Germany | March 2013 17




Mar-12 Epilepsie Bundes-Elternverband e.V. Support for Parents-Child-Weekend 500

May-12 Kompetenznetzwerk ADHS-MV e.V. Support parenting instruction 2,000

Jun-12 ADHS DEUTSCHLAND E.V. Support education and training for ADHD trainers 3,000

Jul-12 Elterninitiativefür das seelisch erkrankte und verhaltensauffällige Kind Thüringen e.V. Support information event for 20th anniversary 300

Jul-12 IMV Institut f. Medienverantwortung gUG Support for event on media utilization and addiction with ADHD 1,000

Sep-12 Medzinisch-Therapeutische Einrichtung gemeinnützige GmbH Support for set up of a new therapy room 1,000

Oct-12 Karlsruher Vereinigung zur Hilfe für psychisch kranke Kinder und Jugendliche e.V. Supporting aftercare of stationary ADHD treatment 300

Jan-12 Gesellschaft der Freunde der medizinischen Hochschule Hannover e.V., Hannover Donation supporting scientific research and other needs of young academics 5,000

Feb-12 Gaucher Gesellschaft Deutschland e.V. Donation for statutory aims of the association 10,000

Feb-12 Gesellschaft für Mukopolysaccharidosen e.V., Aschaffenburg Donation for statutory aims of the association 1,000

Mar-12 Förderverein der HNO-Klinik an der Medizinischen Hochschule Hannover e.V., Hannover Donation for statutory aims of the association 1,300

Mar-12 Morbus Fabry Selbsthilfegruppe e.V., Köln Donation for statutory aims of the association 10,000

Mar-12 Stiftung Präventive Pädiatrie, Mainz Donation for Villa Metabolica project 15,000

Apr-12 Gesellschaft für Mukopolysaccharidosen e.V., Aschaffenburg Donation for statutory aims of the association 12,500

Apr-12 HAE Vereinigung e.V., Aldenhofen Donation for statutory aims of the association 3,500

May-12 ASIM - Arbeitgemeinschaft für angeborene Stoffwechselstörungen in der Inneren

Medizin e.V., Hamburg

Donation for statutory aims of the association 1,500

Aug-12 JGU_Universitätsmedizin Mainz, Mainz Donation for funding medical equipment 5,000

Aug-12 Stiftung Präventive Pädiatrie, Mainz Donation for Villa Metabolica project 15,000

Aug-12 Stiftung Präventive Pädiatrie, Mainz Donation for Villa Metabolica project 15,000

Sep-12 Stiftung Präventive Pädiatrie, Mainz Donation for Villa Metabolica project 15,000

Oct-12 JGU_Universitätsmedizin Mainz, Mainz Donation supporting MPS Disease Awareness Project 12,000

Oct-12 tomorrow's child e.V., München Donation for statutory aims of the association 5,000

Nov-12 HAE Vereinigung e.V., Aldenhofen Donation supporting patient oedema calender 3,000

Nov-12 HAE Vereinigung e.V., Aldenhofen Donation for patient meeting 7,000

Dec-12 ADHS Deutschland e.V. Support for a project relating to telephone consultation for patients 2,500

Dec-12 Universitätsklinikum Münster, Münster Donation for co-funding of medical staff 30,000

Germany

Shire Funding Disclosure Report 2012 | Germany | March 2013

Shire Funding Disclosure Report | Germany continued


18


Feb-12 DEUTSCHE NIERENSTIFTUNG Membership fee 2,400

Nov-12 DEUTSCHE NIERENSTIFTUNG Donation for charity event DGFN 7,750

Feb-12 GESCHÄFTSSTELLE DGFN Membership Fee 3,000

Mar-12 Dialysesportgruppe Bischofswerda Donation for Health Services support 500

Jun-12 Landesverband Niere e.V. Brandenburg Donation for Health Services support 3,000

Nov-12 Landesverband Niere e.V. Brandenburg Community Landesverband Niere 1,250

Nov-12 BUNDESVERBAND NIERE E.V. Donation for charity event DGFN 2012 3,100

Nov-12 Stiftung Lebendspende Donation for charity event DGFN 2012 4,200

Nov-12 Förderverein Palliativstation Donation for Health Services support 1,000

Jan-12 BBNK Membership Fee 6,000

Feb-12 DCCV E.V. DEUTSCHE MORBUS CROHN/COL Donation for Health Services support 390

Apr-12 UNICEF DEUTSCHLAND Donation for Greeting cards project 54

Shire Funding Disclosure Report 2012 | Greece | March 2013 19




Feb-12 PanHellenic Alliance of Rare Diseases (PESPA) Charitable donation for the participation of PESPA at the World Rare Diseases Day 5,000.00 ů

Feb-12 Hellenic Nephrological Society Participation at the 17th Panhellenic Congress of Nepfrology 5. 000 + VAT

Mar-12 Democretus University of Trace Participation at the 9th Congress of Nepfrology 3,075.00 ů

May-12 Special Account for Research Grand of University of Thesalia Role of genetics disorders in genes coding for enzymes in the bradykynin kallikrein pathway in the clinical presentation of HAE and the

manifestation of secondary angioedema

18,000.00 ů

Jul-12 "Solidarity" Hellenic Association of Gaucher Patients Charitable donation for the various needs & operating expenses of the Association( psychological support at the patients) 8,000.00 ů

Aug-12 Special Account for Research Grand of the Aristotele University of Thessaloniki Role of ECM components in the aitiopathogenesis of MPS and other LSD's 8,500.00 ů

Sep-12 Hellenic Nephrological Society Participation at the Annual Seminar of the Nephrological Society 5.000 + VAT

Oct-12 PanHellenic Alliance of Rare Diseases (PESPA) Charitable donation to cover part of their expenses regarding the creation of new sub group of Patients Associations with rare diseases 5,000.00 ů

Nov-12 PanHellenic Alliance of Rare Diseases (PESPA) Support Europlan II Congress 5,000.00 ů

Greece

Shire Funding Disclosure Report 2012 | Ireland | March 2013 20




May-12 Children's University Hospital, Dublin IE Sponsorship of part-time Physiotherapist 15,000.00

Aug-12 Mater Miseracordiae University, Dublin, IE Supporting a Physician in the Adult Metabolic Unit 20,000.00

Aug-12 Children's University Hospital, Dublin IE Sponsorship of part-time Counsellor 25,000.00

Oct-12 Midwest Kidney Disease Research Education Fund, Univ of Limerick, IE Grant/Chronic Kidney disease surveillance system 4,000.00

Dec-12 Medical Research Charities Group, Dublin, IE Support Public Affairs and Advocacy 4,000.00

Jul-12 TCP Homecare Limited, Clondalkin, IE Supply two Epidural Pumps 5,740.00

Dec-12 TCP Homecare Limited, Clondalkin, IE Supply two Epidural Pumps 5,740.00

Ireland

Shire Funding Disclosure Report 2012 | Italy | March 2013 21




Jan-12 Univ.Degli Studi Roma "La Sapienza" Donation to create and manage the database for angioedema project 20,000.00

Jan-12 Univ. Di Pisa Neuroscienze Donation to support an evaluation in juvenile ischemic stroke patients 10,000.00

Jan-12 Universita' Di Cagliari Donation for an instrumentation 13,285.00

Jan-12 Universita' Umberto I Roma Donation for an instrumentation 9,270.00

Feb-12 Ail Firenze Support to a fund raising event 2,500.00

Feb-12 Ao Sant'anna Di Ferrara Support to a clinical study on dialitic patients 5,000.00

Feb-12 Fondazione S.M.E.M. Donation to partially support the creation of a data base for Fabry Disease Patients in Piemonte 20,000.00

Feb-12 Associazione A.I.P.A.F. Onlus Donation to support Rare Disease health issues 5,000.00

Feb-12 Associazione U.I.L.D.M. Onlus Donation to support Rare Disease health issues 500.00

Mar-12 Universita' Di Pisa - Dip Medicina Interna Support to a master in nutrition and diet in Nephrogy 7,500.00

Mar-12 Aifa Onlus Support to patient care and awareness on disease 20,000.00

Mar-12 Universita' Di Modena E Reggio Emilia- Dip Biomedica Support to research in CKD 4,000.00

Mar-12 Associazione A.A.E.E. Onlus Donation to support Rare Disease health issues 20,000.00

Mar-12 Alma Mater Studiorum Un. Di Bologna Donation to support lab activities at the neurological department 10,000.00

Apr-12 Ail Onlus Catania Support to patient care and awareness on disease 4,000.00

Apr-12 Ail Onlus Novara Support to patient care and awareness on disease 6,000.00

Apr-12 Aifa Onlus Lombardia Support to patient care and awareness on disease 5,000.00

Apr-12 Aid Web Org Onlus Donation to support a project to achieve the first portal on Rare Diseases in Italy 8,000.00

Apr-12 Associazione Gaucher Onlus Donation to support Rare Disease health issues 30,000.00

Apr-12 Associazione A.I.M.P.S. Onlus Donation to support Rare Disease health issues 5,000.00

Apr-12 Associazione G.I.P.F. Onlus Donation to support Rare Diseases 20,000.00

May-12 Ape Onlus Support to a scholarship in Haematology 3,000.00

May-12 Ass.Ne Monza E Brianza Bambino E La Sua Mamma Donation to support Paediatric Clinic 20,000.00

May-12 Associazione G. Dossetti Donation to support the Foundation 10,000.00

Jun-12 Fondazione Italiana Del Rene Support to clinical study on vitamin D use in Haemodialysis patients 30,000.00

Jun-12 Universita' Di Napoli- Dip Pscichiatiria E Neuropscihiatri Infantile Support to a scholarship in MPI 2,500.00

Jun-12 Univ.Di Verona Donation to support studies in Lysosomial Diseases 5,000.00

Italy

Shire Funding Disclosure Report 2012 | Italy | March 2013

Shire Funding Disclosure Report | Italy continued


22


Jul-12 Ircss Istituto Tumori Giovanni Paolo Ii Support to create a site on onco haematology diseases dedicated to patients and HP 3,000.00

Jul-12 Societa' Italiana Di Nefrologia Support to clinical study on vitamin D use in Haemodialysis patients 30,000.00

Jul-12 Associazione Cometa Onlus Donation to support Rare Disease health issues 12,000.00

Jul-12 Associazione U.M.A.R. Onlus Donation to support studies on Rare Diseases 5,000.00

Jul-12 Associazione G.I.P.F. Onlus Donation to achieve the print of the "FABRY DISEASE BOOK" 3,500.00

Jul-12 Fondazione Tender To Nave Italia Onlus Donation to support a Foundation project named Mare Nostrum 5,000.00

Sep-12 Fondazione Gimema Onlus Support to research for Haematology diseases 4,000.00

Sep-12 Associazione A.I.P.A.F. Onlus Donation to achieve the print of the "FABRY DISEASE BOOK" 3,500.00

Oct-12 Universita' Firenze- Dip. Area Critica Medico Chirurgica Support to create database for MPD 1,000.00

Oct-12 Fond. Casa Sollievo Della Sofferenza Donation to support studies on Rare Diseases 6,000.00

Nov-12 Amici Del Rene Onlus Support to patients care 2,000.00

Nov-12 Ospedale Terracina Donation for medical tools for nephrology division 2,808.00

Nov-12 Univ.Degli Studi Di Milano Donation to support tests on C1 INH deficiency 20,000.00

Dec-12 Ospedale Latina Donation for medical tools for nephrology division 2,400.00

Dec-12 Fondazione Aldo Torsoli Support to GI congress 5,000.00

Dec-12 Ail Onlus Reggio Calabria Support to patients care and awareness on disease 2,000.00

Dec-12 Hsos Onlus Ospedale Sacco Support to a research on CV risks 2,500.00

Dec-12 Avis Progresso Ematologico Onlus Support to patients care and awareness on disease 3,000.00

Dec-12 Tea Onlus Support to patients care and awareness on disease 2,500.00

Dec-12 Ail Onlus Bolzano Support to patient care and awareness on disease 5,000.00

Dec-12 Fondazione Dell'ospedale Salesi Onlus Donation to support Rare Diseases Centre 5,000.00

Dec-12 Univ. Di Firenze Dip. Scienze Donna E Bambino Donation to support Rare Diseases 5,000.00

Dec-12 Univ. Di Firenze Dip. Scienze Neurol. E Pediatriche Donation to support Rare Diseases 20,000.00

Oct-12 Ao Sant'anna Di Ferrara Support to a clinical study on dialitic patients 10,000.00

Oct-12 Universita degli Studi di Milano, Milan IT HAWK 2012 meeting support 18,150.00

Shire Funding Disclosure Report 2012 | Japan | March 2013 23



Date Organisation Description of the activity/purpose JPY

Sep-12 KAPUA HOUSE Sponsor LSD patient meeting 750,000.00

Sep-12 International Forum of Lysosomal Strage Diseases Sponsor The 4th International Forum of Lysosomal Strage Diseases - Dr. Yoshikatsu Eto 1,000,000.00

Sep-12 Japanese Society for Inherited Metabolic Diseases Sponsor Academic Congress (The 54nd Annual Meeting - Dr. Suzuki) 1,000,000.00

Dec-12 Jikei University Research Grant Program (Prof. Toya Ohashi) 1,500,000.00

Dec-12 Kitasato University Research Grant Program (Prof. Fumio Takada) 1,500,000.00

Japan

Shire Funding Disclosure Report 2012 | Latvia | March 2013 24



Date Organisation Description of the activity/purpose LVL

Dec-12 Latvijas Neiroimunologu asociacija Riga, Latvia LV General Grant in support of the Association 3,500.00

Latvia

Shire Funding Disclosure Report 2012 | Mexico | March 2013 25



Date Organisation Description of the activity/purpose MXP

Feb-12 Palito y Toto Piden un Deseo. A.C. Unrestricted grant to support patients 41,760.00

Feb-12 Palito y Toto Piden un Deseo. A.C. Unrestricted grant to support International rare disease day 30,000.00

Feb-12 Palito y Toto Piden un Deseo. A.C. Unrestricted grant to support the patients organization 40,600.00

Feb-12 MPS JAJAX A.C. Restricted Grant to Patients Support Program 300,000.00

Feb-12 MPS JAJAX A.C. Donation of Computing equipment 17,362.36

Apr-12 MPS JAJAX A.C. Restricted Grant to Patients Support Program 25,000.00

Apr-12 MPS JAJAX A.C. Unrestricted grant to support patients 82,500.00

May-12 MPS JAJAX A.C. Restricted Grant to Patients Support Program 300,000.00

Jul-12 MPS JAJAX A.C. Restricted Grant to Patients Support Program 300,000.00

Aug-12 Asociacion Gaucher de Mexico, A.C. Unrestricted grant to support patients 95,000.00

Aug-12 MPS JAJAX A.C. Restricted Grant to Patients Support Program 300,000.00

Sep-12 Asociacion Gaucher de Mexico, A.C. Unrestricted grant to support patients 65,000.00

Sep-12 Asociacion Gaucher de Mexico, A.C. Restricted Grant to Patients Support Program 3,716.00

Oct-12 MPS JAJAX A.C. Donation of Infusion Lines 70,000.00

Oct-12 MPS JAJAX A.C. Unrestricted grant to support patients 180,000.00

Nov-12 Asociacion Gaucher de Mexico, A.C. Restricted Grant to Patients Support Program 150,000.00

Dec-12 Asociacion Gaucher de Mexico, A.C. Restricted Grant to Patients Support Program 230,000.00

Dec-12 Asociacion Mexicana de Pediatria, A.C. Book edition - Inborn errors of metabolism 304,000.00

Dec-12 MPS JAJAX, A.C. Restricted Grant to Patients Support Program 500,000.00

Dec-12 Asociacion Mexicana de Enfermedades Lisosomales Unrestricted grant to support the asociation 119,648.19

3,154,586.55

Mexico

Shire Funding Disclosure Report 2012 | Netherlands | March 2013 26




Jan-12 NOVARTIS PHARMA BV Sponsoring 5de hematologie awareness activities 4,000.00

Dec-12 V&VN DIALYSE EN NEFROLOGIE Sponsoring Fosrenol awareness activities 5,000.00

Jan-12 VU MEDISCH CENTRUM Sponsoring SOOPF Resolor awareness activities 100,000.00

Feb-12 ERASMUS MC Sponsoring XAGRID awareness activities 500.00

Feb-12 CONGRESS CARE Sponsor ELAPRASE awareness activities 1,900.00

Feb-12 VKS Sponsoring to MPS diseases awareness activities 18,000.00

Feb-12 TiPharma DDRMD Study 15,000.00

Mar-12 M.G. Bouwman Sponsoring Study for REPLAGAL 750.00

Mar-12 Nederlandse Vereniging voor Kinderneurologie Sponsoring NVKN event 500.00

Mar-12 W.Y. Yuen Sponsoring Junctional epidermolysis bullosa 250.00

Mar-12 ESN Sponsoring Standruimte Voorjaarsvergadering 4,000.00

May-12 AMC Medical Research BV Grant SPHINX Project 30,432.00

Sep-12 NVVHAOQO Sponsoring nieuwsbrief 500.00

Sep-12 NVKN Sponsoring of awareness activities 800.00

Jun-12 METAKIDS Sponsoring Metatour of Health issues awarness materials 15,052.00

Feb-12 Public Affiares Sponsoring awareness activities 595.00

Jul-12 ERASMUS MC Sponsoring awareness activities 200.00

Mar-12 ERASMUS MC Sponsoring Elaprase awareness activities 2,995.00

Jun-12 VKS, Zwolle NL Sponsorship International MPS symposium 100,000.00

Netherlands

Shire Funding Disclosure Report 2012 | Poland | March 2013 27



Date Organisation Description of the activity/purpose PLN

Feb-12 Foundation: Fundacja na rzecz osób chorych na Mukopolisacharydozů "Umieů Pomagaů" Financial aid for organizing exhibition (Day of Rare Diseases) in Warsaw of photographs of people suffering from genetic diseases. Objective: To

raise awareness (educate) about genetic diseases among people.

1,799.50

May-12 Patient Society: Stowarzyszenie Chorych na (MPS) Mukopolisacharydozů i Choroby

Rzadkie

Financial aid for organizing conference in Cedzyna. The conference organized by the PO to be participated by patients, their families, healthcare

professionals. Objective: Education of health care providers, enhancing and maintaining patient care; sharing experience between patients and

their families; enhancing access to treatment; to increase awareness about rare diseases.

60,000.00

Poland

Shire Funding Disclosure Report 2012 | Portugal | March 2013 28



Portugal


Jan-12 Forum Hematologico Participation on Haematologic journeys 500.00

Jan-12 Forum Hematologico Participation on Haematologic journeys 500.00

Jan-12 Liga Amigos serviço cardiologia Participation on cardiology journeys XXVII 2,000.00

Feb-12 Livraria Cient Med Porto Grant for publication 144.34

Mar-12 Ricardo e Vaz Grant for Vitrine 208.11

Mar-12 APADR Grant for Conference 29-02-2012 300.00

Apr-12 ASIC Participation on Seminar 13 and 14 April 2012 500.00

May-12 APDL Grant for APDL 5,750.00

May-12 APPT21 Grant for Conference Evora 2,500.00

May-12 FEDRA Grant Patient Group support 3,000.00

May-12 Ass.Form.Nefrologia Garcia Orta Participation on symposia rare diseases 1,000.00

Sep-12 RARISSIMAS Grant for the 10th anniversary commemoration 6,900.00

Sep-12 Liga Amigos serviço cardiologia Participation on cardiology journeys XXVII 1,500.00

Sep-12 Centro de Histocompatibilidade do Centro Research for Genetic Analyses 14,000.00



Oct-12 AFNHGO Participation on symposia rare diseases 1,000.00

Oct-12 Centro de Histocompatibilidade do Centro Grant for Scientific analysis 14,000.00

Oct-12 S.Port.Cardiologia Grant for miocardiopaties register 5,000.00

Oct-12 SPH Grant for conference 3,500.00

Oct-12 SPH Grant for scientific price 3,500.00

Oct-12 SPH Grant for conference 1,000.00

Nov-12 Centro de Histocompatibilidade do Centro Grant for scientific article acquisition 250.00

Dec-12 AIDFM Grant for investigation - Rare diseases 2,500.00

Shire Funding Disclosure Report 2012 | Russia | March 2013 29



Russia

Date Organisation Description of the activity/purpose RUB

Dec-12 GAOORDI Financial grant to support participation of GAOORDI in the Round Table on Rare Diseases in Komi 26,000.00

Sep-12 International Charity Public organisation - Hunter syndrome Core Funding grant 809,096.00

Sep-12 Russian Union of Patients with Rare Diseases/SPIPORZ Core Funding grant 3,034,110.00

Shire Funding Disclosure Report 2012 | Spain | March 2013 30



Spain


Aug-12 Caritas Madrid Funds of community events 3000

Feb-12 Fundacion Senefro World Kidney Day sponsorship: press conference and posters 1000

Nov-12 Fundacio D'investigaci Funds for investigation in renal disease - Hospital Son Espases 3000

Dec-12 Fund Renal Iñigo Alvare Funds to collaborate with the 5th "Taller salud y Bienestar" - F. Renal Iñigo Alvarez de Toledo 800

Jun-12 Fundacio Puigvert Funds for investigation in renal disease - Fundacion Puigvert 450

Nov-12 Fundacion Española Aparato Digestivo World Digestive Health Day Sponsorship 8000

Jan-12 Asoc Enfermos Crohn Y Financial support for coffee break at the association annual meeting 380

Sep-12 Fundacion Inv Biomedica Hp Princesa Research fund 10000

Nov-12 Accu Guipuzcoa Financial support for association annual meeting 650

Nov-12 Asoc Accu Campo De Gib Financial support for association annual meeting 800

Dec-12 Asoc Estudio, Invest Y Difusion Grant funding support 600

Dec-12 Fund Inv Biomedica Hosp Universitario 12 Grant funding support 2000

Dec-12 Fund Soc Vasco Navarra Scientific meeting of sociedad Vasco - Navarra de Pediatria November 9th 1,000.00

Jun-12 Fundacion Investig Y D Research Grant to Hospital Puerta de Hierro 6,000.00

Jun-12 Fundacio Puigvert Research Grant to Hospital Puigvert Nephrology department 2,500.00

Jul-12 Fun Geter Grup Est Enf Research Grant to Fundación GETER, Rare Disease Foundation 10,000.00

Jul-12 Fun Inv Biomedica Hosp Research Grant "Registro de Tumores" study 10,000.00

Jul-12 Fundacion Renal Jaume Research Grant to Hospital Arnau de Vilanova, Nephrology department 5,000.00

Jul-12 Inst Inv Sanit Fund J Research Grant to Hospital Torrecardenas, Pharmacy department 2,000.00

Jul-12 Fund Com Valenc Santos Research Grant for "Taller de Habilidades domesticas 2012" project 3,000.00

Jul-12 Fibao Research Grant to Hospital Torrecardenas, Nephrology department 2,500.00

Jul-12 Fund Gral Universidad Research Grant to "Utilidad de la bioimpedancia en los pacientes renales" project with Nephrology department Hospital Universitario de

Guadalajara

1,200.00

Aug-12 Asoc Castellano Leones Research Grant to Hospital del Bierzo Nephrology department 1,500.00

Sep-12 Inst Inv Biomedica Bel Research Grant to Pharmacy department Bellvitge hospital 5,000.00

Sep-12 Fund Inst D'inv En Cie Research Granto to Hospital German Trias i Pujol 5,000.00

Oct-12 Fund Catalana De Nefro Research Grant to Hospital del Mar, Nephrology department 4,000.00

Shire Funding Disclosure Report 2012 | Spain | March 2013

Shire Funding Disclosure Report | Spain continued


31


Oct-12 Inst Inv Biomedica Bellvitge Research Grant to Hospital Universitario de Bellvitge, "desarrollo experimental de un SIRNa project 9,000.00

Oct-12 Fund Miguel Servet Research Grant to Nephrology department Hospital de Navarra 4,000.00

Nov-12 Asoc Farnac Hosp Mejor Research Grant to Hospital de Alicante, Pharmacy department 2,500.00

Dec-12 Asoc Serv Medic Intern Research Grant to Hospital de Elda, Pharmacy Department 1,500.00

Dec-12 B2b Salud S.L. Research Grant to Plataforma Integrada de Compras y Servicio B2B 2,500.00

Dec-12 Asoc Farnac Hosp Mejor Research Grant to Hospital de Alicante, Pharmacy department 2,000.00

Jun-12 Sociedad Canaria De Pe Meeting IX Reunión del Grupo de Trabajo de Neuropediatría de la Sociedad Canaria de Pediatria de las Palmas. 1,500.00

Nov-12 Fund Inv Bio Hosp Niã‘O Research Grant to Hospital Infantil Universitario Niño Jesus 5,000.00

Nov-12 Quirumed S.L. Scientific Material for Emergency department, Hospital Universitario La Paz 753.99

Jun-12 Fund. Mutua De Terrass Reserach Grant to Recogida de datos registro enfermedades lisosomales Project 3,000.00

Oct-12 Ordenica Sl Scientific Material for Internal Medicine department of Hospital Universitario de Santiago de Compostela 652.23

Oct-12 Fund Canaria De Invest Research Grant to Pharmacy department Hospital de Insular Materno Infantil de Gran Canaria (Dr Juan Carlos Perez Marin) 4,000.00

Oct-12 Asoc Ciencia Y Tecnolo Research Grant to Hospital Francesc de Borja, Pharmacy department 3,000.00

Nov-12 Fund Canaria De Invest Research Grant to Pharmacy department Hospital de Insular Materno Infantil de Gran Canaria (Dra Alicia Diez del Pino) 4,000.00

Nov-12 Asoc Arag Para El Prog Research Grant to Hospital Miguel Servet, Pharmacy department 3,000.00

Jan-12 Feder III Rare Disease Race 2012 7,000.00

Mar-12 Mps Espaã‘A Meeting: IV Congreso Nacional Medico Familiar dedicado a la Enf de FABRY 10,000.00

Nov-12 Airg - Espaã‘A Asoc.Inf 8 Annual Meeting AIRG 3,000.00

Nov-12 Mps Espaã‘A Grant MPS España magazine 3,000.00

Dec-12 Real E Ilustre Colegio Meeting: VI Congreso Internacional de EERR y Medicamentos Huérfanos 3,000.00

Sep-12 Mps Espaã‘A Meeting: VIII Congreso Internacional Cientifico Familiar MPS-Spain 10,000.00

Mar-12 Asoc Esp Angioedema Fa AEDAF Annual Meeting April 14th 2012 3,000.00

Apr-12 Asoc Esp Angioedema Fa Sponsorship AEDAF web page 708.00

Apr-12 Asoc Esp Angioedema Fa Sponsorship AEDAF web page 472.00

May-12 Asoc Esp Enfermos Y Fa AEEFEG Management Committee 2,000.00

Jul-12 Asoc Esp Enfermos Y Fa XIV Annual Meeting October 2012 20,000.00

Oct-12 Feder "Promocion y defensa de los derechos" Project 6,000.00

Nov-12 Feder IV Rare Disease Race 2013 7,000.00

May-12 Eunethydis Adhd Congress Funding Congress in Barcelona , Spain 180,000.00

Nov-12 Asoc De Alicante Defic Collaboration with their activities 200

Mar-12 Fund Compl Hospitalario Univ Investigation 1,400

May-12 Asoc Lorca Activa Tdah Collaboration with their activities 300

Shire Funding Disclosure Report 2012 | Spain | March 2013

Shire Funding Disclosure Report | Spain continued


32


Jun-12 Associa De Pares I Mares De Nens I Collaboration with their activities 2,000

Jul-12 Fundacion Educacion Activa Collaboration with their activities 5,620

Sep-12 Asociacion El Puente Tdah Collaboration with their activities 1,000

Oct-12 Federacion Esp Asoc Deficitit Collaboration with their activities 6,000

Oct-12 Fundacion Adana Collaboration with their activities 2,000

Dec-12 Asoc Deficit Atencion E Hiperac Gui Collaboration with their activities 300

Dec-12 Anhidacoruña Collaboration with their activities 600

Dec-12 Asoc Ayuda Deficit Atencion Con Mas Collaboration with their activities 300

Dec-12 Asoc Ayuda Deficit Atencion Con Mas Collaboration with their activities 500

May-12 Federacion Esp Asoc Deficitit Collaboration with their activities 10,000

Nov-12 Federacion Esp Asoc Deficitit Collaboration with their activities 5,000

Jun-12 Hospital Galdakao Book for Neurology department 306

Jun-12 Hospital Santiago de Compostela Book 136

Jul-12 Hospital Infantil Universitario Niño Jesus Book 136

Jul-12 Hospital Virgen de la Luz, Emergency dept. Book 241

Jul-12 Cardiology department of Hospital del Mar Scientific Material 847

Dec-12 Hospital Universitario de Ceuta, Hematology dept Scientific Material 376

Mar-12 Hospital Torrecardenas Research Grant to Hospital Torrecardenas, Nephrology department 2,000

Mar-12 Asociación Española de Gastroenterología Educational Grant for Gastro Meeting 109,000

Shire Funding Disclosure Report 2012 | Sweden | March 2013 33



Date Organisation Description of the activity/purpose SEK

Mar-12 Södersjukhuset Nordic MPN study group meeting 10,000.00

Mar-12 Södersjukhuset Nordic MPN study group meeting 10,000.00

Jan-12 Svensk Njurmedicinsk förening Swedish Kidney Foundation Scholarship 20,000.00

Sep-12 Regional Kidney Association Dalarna Regional Kidney meeting sponsorship 15,000.00

Sep-12 Aarhus Universitetshos Payment to a Medical University 5,593.05

Oct-12 Svensk Gastroenterologisk Förening Congress Meeting 40,000.00

Apr-12 MPS Society Society support 30,000.00

Apr-12 MPS Society Support annual meeting 30,000.00

Jun-12 Primär Immunbrist Orga Donation for health services support 10,185.00

Sweden

Shire Funding Disclosure Report 2012 | Switzerland | March 2013 34



Date Organisation Description of the activity/purpose CHF

Jan-12 Centre Hospitalier Universitaire Vaudois, Lausanne CH Unrestricted Educational Grant 55,000.00

Feb-12 Kinderspital, Zurich CH Supporting research into lysysomal storage disorders 60,000.00

Mar-12 Universitatpital, Zurich CH Unrestricted Grant - Research Staff Fabry 80,000.00

Apr-12 Kinderspital, Zurich CH Grant for MPS Study 20,000.00

Jun-12 Fabry Suisse, Oestwil an See, CH Sponsoring of patient association 10,000.00

Jun-12 VML Suisse, Attalens , CH General support for health services 5,000.00

Jun-12 Kinderspital, Zurich CH KISPI - SALS Grant - 2012 05 6,000.00

Oct-12 Centre Hospitalier Universitaire Vaudois, Lausanne CH Sponsoring a Fellowship 10,000.00

Oct-12 Centre Hospitalier Universitaire Vaudois, Lausanne CH Educational support/skeletal Dysplasia 10,000.00

Mar-12 Proraris, Vuarrens , CH Funding World Rare Disease Day event 10,000.00

Dec-12 Visions de Réel, Nyon CH Nyon Film Festival support 35,000.00

Feb-12 Ecole polytechnique, Lausanne, CH Sponsorship School of Life Sciences Summer School 9,600.00

Sep-12 EBD Group AG Sponsorship fee and provision of sponsor related serv - BIO Europe 2012, Hamburg 18,550.00

Sep-12 EBD Group AG Sponsorship fee and provision of sponsor related serv - BIO Europe Spring 2012 18,550.00

Switzerland

Shire Funding Disclosure Report 2012 | Turkey | March 2013 35



Date Organisation Description of the activity/purpose TRY

Sep-12 CEKO MEDİKAL SAN.TİC.LTD.ŞTİ. Kit and Instrument Donation for HAE C1q inhibitor testing 5638.2



Sep-12 CEKO MEDİKAL SAN.TİC.LTD.ŞTİ. Kit and Instrument Donation for HAE C1q inhibitor testing 379

Oct-12 INTERGEN GENETİK HASTALIKLARTANI MERKEZİ LTD.STİ, MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 11830.56

Oct-12 INTERGEN GENETİK HASTALIKLARTANI MERKEZİ LTD.STİ, MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 9610.19

Dec-12 INTERGEN GENETİK HASTALIKLARTANI MERKEZİ LTD.STİ, MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 7556.48

Dec-12 INTERGEN GENETİK HASTALIKLARTANI MERKEZİ LTD.STİ, MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 8629.63

Sep-12 INTERGEN GENETİK HASTALIKLARTANI MERKEZİ LTD.STİ, MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 7150

Sep-12 INTERGEN GENETİK HASTALIKLARTANI MERKEZİ LTD.STİ, MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 6783.33

Sep-12 CENTOGENE THE RARE DISEASE COMPANY,RD113 203097,17.09.2012, MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 5967.7

Jan-12 BİYOLOJİK BİLİMLER ARAT.GELŞ.VE ÜRT.A.Ş., MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 3310.91

Jan-12 BİYOLOJİK BİLİMLER ARAT.GELŞ.VE ÜRT.A.Ş., MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 538.91

Mar-12 BİYOLOJİK BİLİMLER ARAT.GELŞ.VE ÜRT.A.Ş., MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 434.58

Apr-12 BİYOLOJİK BİLİMLER ARAT.GELŞ.VE ÜRT.A.Ş., MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 309.11



Apr-12 BİYOLOJİK BİLİMLER ARAT.GELŞ.VE ÜRT.A.Ş., MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 220

Apr-12 BOME SAN.ÜRÜNLERİ DIŞ.TİC.LTD.ŞTİ, Guthrie Paper for Gazi Univ Screening Project 1422

May-12 BİYOLOJİK BİLİMLER ARAT.GELŞ.VE ÜRT.A.Ş., MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 2167.5

May-12 BİYOLOJİK BİLİMLER ARAT.GELŞ.VE ÜRT.A.Ş., MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 302.17

Jun-12 BİYOLOJİK BİLİMLER ARAT.GELŞ.VE ÜRT.A.Ş., Test Support for undiagnosed Cystinosis cases upon Physicians Request Letter 23475.56

Jun-12 BİYOLOJİK BİLİMLER ARAT.GELŞ.VE ÜRT.A.Ş., MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 298.35

Jul-12 BİYOLOJİK BİLİMLER ARAT.GELŞ.VE ÜRT.A.Ş., MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 148.54

Jul-12 BİYOLOJİK BİLİMLER ARAT.GELŞ.VE ÜRT.A.Ş., MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 331.35

Aug-12 PTMS EĞİTİM BİLİŞİM VE ORG.A.Ş., Logistic Support for Ethics Committee Dossier Submission for Screening Projects 2656.2

Oct-12 BİYOLOJİK BİLİMLER ARAT.GELŞ.VE ÜRT.A.Ş., MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 150.77

Turkey

Shire Funding Disclosure Report 2012 | Turkey | March 2013

Shire Funding Disclosure Report | Turkey continued


36

Date Organisation Description of the activity/purpose TRY

Nov-12 BİYOLOJİK BİLİMLER ARAT.GELŞ.VE ÜRT.A.Ş., MPS I,II and IV, Fabry, Gaucher, HAE Laboratory test support 3753.79

May-12 PTMS EĞİTİM BİLİŞİM VE ORG.A.Ş., "Logistic Support for Ethics Committee Dossier Submission for Screening Projects, Material Transfer, Site visit for sample collection” 2460

Jun-12 PTMS EĞİTİM BİLİŞİM VE ORG.A.Ş., "Logistic Support for Ethics Committee Dossier Submission for Screening Projects, Material Transfer, Site visit for sample collection” 260

Jun-12 PTMS EĞİTİM BİLİŞİM VE ORG.A.Ş., "Logistic Support for Ethics Committee Dossier Submission for Screening Projects, Material Transfer, Site visit for sample collection” 100

Jun-12 PTMS EĞİTİM BİLİŞİM VE ORG.A.Ş., "Logistic Support for Ethics Committee Dossier Submission for Screening Projects, Material Transfer, Site visit for sample collection” 9033.3

Jun-12 PTMS EĞİTİM BİLİŞİM VE ORG.A.Ş., "Logistic Support for Ethics Committee Dossier Submission for Screening Projects, Material Transfer, Site visit for sample collection” 3165.93

Oct-12 PTMS EĞİTİM BİLİŞİM VE ORG.A.Ş., "Logistic Support for Ethics Committee Dossier Submission for Screening Projects, Material Transfer, Site visit for sample collection” 810

Nov-12 PTMS EĞİTİM BİLİŞİM VE ORG.A.Ş., "Logistic Support for Ethics Committee Dossier Submission for Screening Projects, Material Transfer, Site visit for sample collection” 2520

Dec-12 PTMS EĞİTİM BİLİŞİM VE ORG.A.Ş., "Logistic Support for Ethics Committee Dossier Submission for Screening Projects, Material Transfer, Site visit for sample collection” 250

Shire Funding Disclosure Report 2012 | USA | March 2013 37



Date Organisation Description of the activity/purpose USD

Jun-12 American College of Medical Genetics 2012 Annual day of Caring Bike Sponsorship 3,000.00

Nov-12 AmeriCares Foundation Providing Life-Saving Medicines to patients with Gaucher Disease, Fabry Disease and Hunter Syndrome (MPS II) 75,000.00

Sep-12 AmeriCares Foundation Americares Airlift Benefit 20,000.00

Aug-12 Career Opportunities Through Educat Charitable Donation for Scholarship Program 10,000

Dec-12 Direct Relief International Mapping of Unmet Medical Need for Enzyme Replacement Therapy for Gabry, Gaucher, and MPS II 50,000.00

Dec-12 Emory University DBA Charitable Gift for Paul Fernhoff Endowment Fund 15,000.00

May-12 National Fabry Disease Foundation 2012 Charles Kleinschmidt Fabry Family Camp and Conference 45,000.00

Nov-12 National Tay-Sachs & Allied Diseases Association, Inc. 55 Years of Achievements: Leading the Fight; Bringing Treatments to Trial 2,500.00

Dec-12 RARE Project DBA Charitable Donation to support awareness activities 35,000

Dec-12 Project HOPE - The people to people foundation Donation - Egypt - Gaucher Disease Improvements 85,161.00

Jun-12 Central Manchester Foundation NHS Hospital Trust 12th International symposium on MPS and related diseases Noordwijkerhout, The Netherlands 791.00

Jun-12 Central Manchester University Hospitals NHS Foundation Trust 12th International symposium on MPS and related diseases Noordwijkerhout, The Netherlands 791.00

Dec-12 Children's Gaucher Research Fund FDA/EMA Drug Approval Development Plan for nGD 25,000.00

Feb-12 Courage to Make a Difference Raise medical awareness of Hunters (MPSII) disorder 4,000.00

Apr-12 Hereditary Angioedema Association HAEA awareness activities 250,000.00

Dec-12 Hereditary Angioedema Association HAEA awareness activities 250,000.00

May-12 National Fabry Disease Foundation Fabry awareness activities 50,000.00

Oct-11 American College of Medical Genetics Donation in support of rare diseases 75,000.00

Jan-12 National Gaucher Foundation Charitable Donation for Gaucher Awareness Month 10,000.00

Jan-12 National Organization for Rare Disorders (NORD) NORD Corporate Council Founders Circle 25,000.00

Jan-12 American College of Medical Genetics ACMG Foundation Corporate Partners Program 75,000.00

Jan-12 National MPS Society MPS Society Funding 55,800.00

Jan-12 Children's Rare Disease Network Champion of Hope Donation 13,500.00

Feb-12 Distance Learning Network, Inc. Support of educational activities 50,000.00

Feb-12 National Gaucher Foundation Charitable Donation to NGF 75,000.00

Feb-12 Children's Rare Disease Network Donation in support fo rare diseases 35,000.00

Mar-12 Make a Wish Foundation of Massachusetts Charitable Donation 100.00

USA

Shire Funding Disclosure Report 2012 | USA | March 2013

Shire Funding Disclosure Report | USA continued


38


Mar-12 National Organization for Rare Disorders (NORD) NORD Corporate Council Membership support 25,000.00

Mar-12 Patient Services Inc HAE Financial Assistance Donation 93,000.00

Apr-12 Hematology Oncology Managers Membership/Sponsorship Fee 7,500.00

Apr-12 Friends of Aiden Corporate Sponsorship for Run for Aiden - 5k walk/run 1,500.00

Apr-12 National Gaucher Foundation Charitable Donation for Gaucher research 75,000.00

Apr-12 National Gaucher Foundation American College of Medical Genetics Meeting Donation 5,000.00

Apr-12 National Organization for Rare Disorders (NORD) American College of Medical Genetics Meeting Donation 5,000.00

Apr-12 National MPS Society American College of Medical Genetics Meeting Donation 5,000.00

Apr-12 National MPS Society MPS Society Walk - Charitable Donation 1,500.00

Apr-12 Missouri Alliance for Home Care Sponsorship for Exhibit Space 850.00

Apr-12 Massachusetts General Hospital Corporate Contribution for MGH Palliative Marathon Fund 2,500.00

May-12 US Hereditary Angioedema Association Sponsorship of the 2012 HAEA's Patient Conferences 50,000.00

May-12 National Gaucher Foundation NGF Charitable Contribution 50,000.00

May-12 Aubrey Rose Foundation OnePath Charitable Contribution 15,000.00

May-12 Aubrey Rose Foundation OnePath Charitable Contribution 100,000.00

Jun-12 National Organization for Rare Disorders (NORD) Support of Partners in Progress event 30,000.00

Jun-12 American College of Medical Genetics ACMG 2012 Matching Gift Challenge 30,000.00

Jun-12 Making Precious Strides, Inc. Zachfest Sponsorship 1,000.00

Jun-12 Patient Services Inc HAE Financial Assistance Donation 70,000.00

Jul-12 Duke University Duke University Charitable Contribution 40,000.00

Jul-12 National Gaucher Foundation NGF Charitable Contribution - Go For Gaucher Walk 10,000.00

Jul-12 US Hereditary Angioedema Association Charitable Contribution (HAE) for rare disease awareness 7,500.00

Jul-12 National Home Infusion Association NHIA Sponsorship for rare disease awareness 15,000.00

Aug-12 National Organization for Rare Disorders (NORD) Support of Shire Hunter Financial Assistance Program 50,000.00

Aug-12 National Gaucher Foundation Funding of CARE Support Project 50,000.00

Aug-12 National MPS Society Support of Do It For Dan Fundraiser 1,000.00

Aug-12 National MPS Society Support of awareness event (walk/run) 500.00

Sep-12 The Assistance Fund, Inc HAE Financial Assistance Donation (HAE) 100,000.00

Sep-12 National MPS Society Support of Run for Erin event 1,000.00

Sep-12 EveryLife Foundation for Rare Diseases Support of Rare Voice Awards event 16,000.00

Sep-12 National Gaucher Foundation Support of NGF Auction (Gaucher) event 15,000.00

Oct-12 Congregation B'nai Torah Support of awareness event (BBQ) 5,000.00

Oct-12 Texas Lions Camp Lions Camp Donation (General) 1,000.00




39


Oct-12 National Gaucher Foundation Support of NGF CARE project 75,000.00

Oct-12 National MPS Society MPS Run for Their Lives 5K event 1,500.00

Oct-12 The Hole in the Wall Gang Camp Donation for educational activities 250.00

Dec-12 Newborn Foundation Funding of Health Services 2,500.00

Dec-12 The Assistance Fund, inc Funding of HAE Health Services 50,000.00

Feb-12 LEXINGTON PUBLIC SCHOOLS Charitable Donation 1,501.00

Aug-12 Massachusetts Biotechnology Charitable Donation 7,500.00

Jun-12 TOWN OF LEXINGTON Charitable Donation – community activities 4,000.00

Mar-12 TOWN OF LEXINGTON Charitable Donation – community activities 1,000.00

Aug-12 UNIVERSITY OF MASSACHUSETTS Donation to STEM Summits 2,500.00

Apr-12 AMERICAN DIABETES ASSOCIATION Charitable Donation 50.00

Apr-12 BB CATHOLIC Charitable Donation 100.00

Jul-12 Angel Flight of new England Inc In support of the 2012 Evening of Angels Gala 2,500.00

Jul-12 BOSTON BUSINESS JOURNAL INC Charitable Donation 6,000.00

Mar-12 BOSTON HEALTH CARE FOR THE HOMELESS Charitable Donation 2,500.00

Nov-12 BOSTON HEALTH CARE FOR THE HOMELESS Charitable Donation 2,500.00

Jan-12 CAMBRIDGE ARTS COUNCIL FUND Charitable Donation 500.00

Jul-12 CARY MEMORIAL LIBRARY FOUNDATION Charitable Donation 50,000.00

Jul-12 CITIZEN SCHOOLS, INC. Citizen Schools Charitable Donation 5,000.00

Feb-12 COMPANY ONE, INC Charitable Donation 2,500.00

Jul-12 Cooperative Elder Services Inc Donation to Elder Hot Meals Program 1,200.00

Sep-12 CRITTENTON WOMEN'S UNION INC Charitable Donation 15,000.00

Feb-12 FAMILIES OF SPINAL MUSCULAR DYSTROPHY Charitable Donation 500.00

Aug-12 JACKSON GABRIEL SILVER FOUNDATION Charitable donation 2,500.00

Mar-12 LEXINGTON EDUCATION FOUNDATION Charitable Donation 7,000.00

Apr-12 Lions Club of Lexington, Inc Donation for sponsorship of road race 195.00

Apr-12 March of Dimes Foundation Bronze Sponsorship for March for Babies 2,500.00

Oct-12 RARE Project DBA Charitable donation 1,500.00

Jun-12 SCIENCE FROM SCIENTISTS Charitable donation 7,500.00

Apr-12 Sino American Pharmaceutical Donation for sponsorship of annual conference 1,500.00

Oct-12 Teach For America, Inc. Charitable donation 5,000.00

Oct-12 The General Hospital Corporation Charitable donation 10,000.00

Aug-12 The Dystrophic Epidermolysis Res Charitable donation 2,500.00




40


Apr-12 DANA FARBER Charitable Donation 150.00

Dec-12 Heading Home Inc Charitable Donation 4,000.00

Jul-12 ARC SERVICE Charitable Donation 190.00

Apr-12 NFPA NATL FIRE Charitable Donation 141.45

Dec-12 Biomedical Science Careers Program Charitable Donation 10,000.00

Dec-12 BOSTON HEALTH CARE FOR THE HOMELESS Charitable Donation 10,000.00

Dec-12 Community Farms Outreach, Inc. Charitable Donation 10,000.00

Dec-12 Community Therapeutic Day School Charitable Donation 10,000.00

Dec-12 Cradles to Crayons Inc Charitable Donation 10,000.00

Dec-12 LEXINGTON SYMPHONY, INC Charitable Donation 10,000.00

Dec-12 MAKE A WISH FOUNDATION Charitable Donation 10,000.00

Dec-12 SPECIAL OLYMPICS MASSACHUSETTS Charitable Donation 10,000.00

Dec-12 Tufts Medical Center Inc Charitable Donation 10,000.00

Dec-12 YEAR UP, IN Charitable Donation 10,000.00

Jul-12 Upstate Medical University, Syracuse NY US Funding for SUNY Upstate Medical University Foundation 10,000.00

Jun-12 American Diabetes Assn. Support of the STEP OUT & WALK event 5,000.00

Jun-12 American Diabetes Assn. Support of the TOUR DE CURE event 5,000.00

Sep-12 Clairmont Girls Fastpitch Donation for Youth Activity; ASA Girls National Softball event 1,000.00

Oct-12 CURE Inc. Member Contribution 500.00

Dec-12 JDRF San Diego Support of SAN DIEGO WALK event 10,000.00

May-12 National Governors' Assoc Donation in support of the Corp Fellows Program 20,000.00

Apr-12 Patient Access Network Fndtn Donations to non-profit co-payment assistance organization 1,000,000.00

Sep-12 Texas Podiatric Medical Donation to 5K event in support of disease awareness 1,000.00

Oct-12 Washington Biotechnology Support of Medical Forum event 2,500.00

Mar-12 American Podiatric Medical Educational Grant 87,560.00

Mar-12 Cache Valley Speciality Hosp Educational Grant 5,000.00

Mar-12 Columbia University Educational Grant 20,000.00

Apr-12 Present LLC Educational Grant 16,666.00

Oct-12 Excela Health Westmoreland Educational Grant 1,000.00

Jun-12 Foundation for Podiatric Medicine Educational Grant 12,000.00

Dec-12 NACCME LLC Educational Grant 106,500.00






41


Aug-12 Present LLC Educational Grant 40,000.00

Sep-12 St Vincents Wound Educational Grant 5,000.00

Mar-12 The Ohio State University Educational Grant 10,000.00

Dec-12 University of Arizona Educational Grant 50,000.00

Oct-12 Wentworth Douglass Hospital Educational Grant 3,000.00

Jul-12 William L. Goldfarb Foundatn Educational Grant 850.00

Dec-12 Carl T Hayden Med Center Medical Grant for Podiatric Research 50,000.00

Jan-12 Tufts Medical Center Inc CEVR Membership Support 30,000.00

Jan-12 Friends of the World Food Program Donation to Horn of Africa region who were affected by a severe drought. 40,000.00

Jan-12 Arts & Business Council of Philadelphia Funding of Arts & Cultural activities 20,000.00

Jan-12 International Sports Outreach Support of youth athletics 3,500.00

Jan-12 ADAGP Charitable Foundation Support of GI research at CHOP 7,500.00

Jan-12 Philadelphia Orchestra Support of arts and cultural activities 25,000.00

Jan-12 Boys and Girls of Camden Support of underserved youth educational activities 10,000.00

Jan-12 Nashoba Learning Group Inc Full Court Charity Challenge in support of mental health research 4,000.00

Jan-12 Farleigh Dickinson University Support of educational activities; Shire scholarship program 50,000.00

Feb-12 WHYY Inc Educational Funding of the Barnes Documentary 15,000.00

Feb-12 Boys & Girls Club of Philadelphia Support of underserved youth; Learning Labs project 250,000.00

Feb-12 Philabundance Support of Food Drive activities 7,017.46

Feb-12 American Heart Association Health research donation 75.00

Mar-12 Shane Victorino Foundation Support of youth educational and health activities 50,000.00

Mar-12 Business Leadership Organized for Catholic Schools Support of youth education scholarship program 35,000.00

Mar-12 Biotechnology Industry Organization Support of industry and health awareness event 26,500.00

Mar-12 Philabundance Support of food drive event 1,000.00

Mar-12 Tredyffrin Township Support of Community Events 15,000.00

Mar-12 Pennsylvania Economy League Support of civic and economic activities; regional video project 2,500.00

Mar-12 Melmark Charitable Foundation Support of mental health educational activities 10,000.00

Apr-12 Cuddle My Kids Inc Support of health services 12,000.00

Apr-12 American Red Cross SEPA Disaster Relief Donation 20,000.00

Apr-12 University Health Services at Stony point, Inc Support of ADHD awareness and research activities 22,500.00

Apr-12 NAMI of Pennsylvania Montgomery Support of mental health awareness; Greater Philadelphia NAMI Walk 5,000.00

Apr-12 International Society for CNS Clinical Trials & Methodology Inc 2012 Sustaining Corporate Membership 50,000.00

Apr-12 Crohns & Colitis Foundation Boston Patient and Family IBD Symposia 1,500.00




42


Apr-12 Crohns & Colitis Foundation Crohn's & Colitis Patient Education Program 500.00

Apr-12 Crohns & Colitis Foundation Decades of progress in treatment and challenges in 500.00

Apr-12 Crohns & Colitis Foundation Empowering the IBD Patient - Portland 1,500.00

Apr-12 Crohns & Colitis Foundation Fresno Patient Education Program 1,000.00

Apr-12 Cedars Sinai Medical Center Inflammatory Bowel Disease Fellowship 90,000.00

Apr-12 Trustees of the University of Pennsylvania Inflammatory Bowel Disease Fellowship 86,796.00

Apr-12 The Cleveland Clinic Inflammatory Bowel Disease Fellowship Program 79,536.00

Apr-12 Attention Deficit Disorder Learning Styles and Strategies for Students with A 3,250.00

Apr-12 Crohns & Colitis Foundation Murrieta Patient Education Program 1,000.00

Apr-12 NAMI Greater Cleveland NAMI Greater Cleveland Annual Meeting & Awards Cer 250.00

Apr-12 NAMI North Carolina NAMI North Carolina Program Growth - Adolescents a 5,000.00

Apr-12 University of California Irvine Outpatient Management of GI/Hepatology Diseases 1,500.00

Apr-12 Southern Association of Medicaid Southern Association of Medicaid Pharmacy Administ 5,000.00

Apr-12 Crohns & Colitis Foundation 17th Annual Patient and Family Conference 5,000.00

Apr-12 American Academy of Child and Adolesce 2012 AACAP Research Initiative 25,000.00

Apr-12 NAMI Maryland 2012 Maryland NAMIWalks 1,000.00

Apr-12 Academy in Manayunk AIM Institute for Learning and Research 100,000.00

Apr-12 American Society of Hispanic Psychiatry Support of mental health services activities 37,500.00

Apr-12 CHADD Children and Adults * CHADD 114131 CHADD Regional Conference on ADHD 25,000.00

Apr-12 Crohns & Colitis Foundation Crohn's & Colitis Patient Education Program 2012 2,000.00

Apr-12 American Academy of Child and Adolesce Education Outreach Program for Child and Adolescent 20,000.00

Apr-12 Beacon College Inc Fourth Annual Beacon College Shimmer Gala 3,000.00

Apr-12 Philadelphia Health and Edu Corp Gastroenterology Fellowship Program 4,000.00

Apr-12 Gastro-Intestinal Research Gastro-Intestinal Research Foundation 51st Annual 15,000.00

Apr-12 Jewish Council for Youth Services JCYS Camp STAR 15,000.00

Apr-12 Crohns & Colitis Foundation Los Angeles IBD Conference 1,500.00

Apr-12 CHADD Children and Adults * CHADD 114131 Public Education Project on Individual and Family 150,000.00

Apr-12 Attention Deficit Disorders Assoc Survive and Thrive with ADHD 2,000.00

Apr-12 Virginia Psychological Association Virginia Psychological Association Spring Meeting 500.00

Apr-12 The Pennsylvania State University Advanced Practice Clinician Dinner Meeting: Update 1,000.00

Apr-12 American Psychiatric Foundation Foundation Benift 10,000.00

Apr-12 ADHD Aware 1st National ADHD Youth Leadership Summit 125,000.00

Apr-12 Tufts Medical Center Inc 2012 DDW - San Diego Fellow's Travel 1,250.00




43


Apr-12 CHADD Children and Adults * CHADD 114131 ADHD At Home, At Work, and In The Classroom 3,000.00

Apr-12 Crohns & Colitis Foundation Ask the Experts 1,000.00

Apr-12 Crohns & Colitis Foundation CCFA National Take Steps Sponsorship 150,000.00

Apr-12 Crohns & Colitis Foundation CCFA National Team Challenge Sponsorship 50,000.00

Apr-12 Crohns & Colitis Foundation Denver Spring Educational Symposium 4,500.00

Apr-12 Triangle Gut Club Mild-Moderate UC Management 10,000.00

Apr-12 NAMI Summit County NAMI Walk; mental health awareness 1,000.00

Apr-12 NAMI Greater Orlando, Inc NAMIWALKS, Changing Minds One Step At A Time 1,000.00

Apr-12 Children's Hospital of Philadelphia Pediatric Inflammatory Bowel Disease Fellowship Pr 75,000.00

May-12 Incite Inc DBA Point Taken Consulting Expenses Beth Rogers 671.70

May-12 Radnor High School Support of youth educational scholarship program 8,000.00

May-12 Team Laneybug Inc Support of youth community project 250.00

May-12 Rose Tree Media School District *Shire's Great Food Fight Recipient- PENNCREST HS 1,000.00

May-12 Rome Foundation 2012 Calendar Year Sponsorship; Grant 45,000.00

May-12 Crohns & Colitis Foundation CCFA Camp Oasis National Support 25,000.00

May-12 Crohns & Colitis Foundation CCFA National Day on the Hill 22,500.00

May-12 South Alabama Medical Fellow Travel to ACG Annual PG Course 4,000.00

May-12 Crohns & Colitis Foundation Nutrition and IBD 900.00

May-12 Crohns & Colitis Foundation Annual Boston Professional Dinner 1,500.00

May-12 Attention Deficit Disorder Real Life Management of Adult ADHD 3,500.00

May-12 Cleveland Clinic Florida Gastroenterology & Hepatology Symposium 2,500.00

May-12 National Alliance on Mental NAMIWalks Massachusetts 2012: The 9th Annual Ment 1,000.00

May-12 NAMI New Jersey Step Forward for Our Heroes- NAMI NJ 2012 Walk 1,000.00

May-12 Charlotte AHEC Update in Gastroenterology & Hepatology Conference 2,000.00

May-12 Greater Philadelphia Chamber of Commerce Support of civic and community project; Mayoral Luncheon Address 5,000.00

May-12 Washington University School of Medicine - St. Louis Inflammatory Bowel Disease 2,500.00

May-12 NAMI Support of National Alliance on Mental Illness 170,000.00

May-12 University of Washington The Best of DDW project 1,500.00

May-12 St. Francis Hospital & Medical Ctr The PPI non-responder project 750.00

May-12 American Gastroenterological Assoc AGA Research Foundation Corporate Roundtable 15,000.00

May-12 University of Southern California ADHD Educational Training for Youth Sports Coaches 250,000.00

May-12 NYU School of Medical NYU School of Medicine / ADHD Awareness and Screen 65,000.00

Jun-12 Los Angeles Alliance on Mental Illness NAMI Walk - Los Angeles County 1,000.00




44


Jun-12 American College of Neuropsychopharmacology Donation in support of membership operations 25,000.00

Jun-12 The Cleveland Clinic Foundation Intensive Review of Gastroenterology & Hepatology 2,000.00

Jun-12 CHADD Children and Adults * CHADD 114131 CHADD Annual Conference on ADHD 80,000.00

Jun-12 Yale University 7th Annual Yale Digestive Disease Week Review 1,500.00

Jun-12 Tejas Family Guidance Center ADHD in Children & Adolescents 1,500.00

Jun-12 Bridge of Life DaVita Medical Medical Mission-Kenya 5,000.00

Jun-12 CACLD - CT Association for Children Informational Programs/Advocacy Services 2,500.00

Jun-12 NAMI Greater Cleveland NAMIWalks for the Mind of America Greater Clevelan 1,000.00

Jun-12 Nami - Virginia NAMIWalks Virginia- Changing Minds...One Step at a 1,000.00

Jun-12 Florida Gastroenterologic Society Advances and Improvements in Gastroenterology and 1,900.00

Jun-12 Germantown Friends School Shire's Great Food Fight Recipient 1,000.00

Jun-12 National Alliance on Mental ADHD Awareness 1,666.00

Jun-12 Pennsylvania Environmental PEC Membership Contribution 2,000.00

Jul-12 University of California Irvine Community Youth Training and Parent Education 15,000.00

Jul-12 Holy Ghost Preparatory School Shire's Great Food Fight Recipient - 2012 5,000.00

Jul-12 Tennessee Society of Gastroenterology Nurses & Assoc TSGNA 31st Annual Educational Course 750.00

Jul-12 Crohns & Colitis Foundation 2012 President's Corporate Circle Membership 50,000.00

Jul-12 Thomas Jefferson University 32nd Annual Advances in Gastroenterology Conference 5,000.00

Jul-12 Logos Inc Logos School Program 20,000.00

Jul-12 Research Institute for Learning SMARTS Leadership and Mentoring Program 20,000.00

Jul-12 American Academy of Child and Adolesce 2012 AACAP Annual Meeting 50,000.00

Jul-12 Group for the Advancement Group for the Advancement of Psychiatry Fellowship 50,000.00

Jul-12 NAMI Inspiring Hope Through Research 15,000.00

Jul-12 The Philadelphia Education Fund Support of underserved youth education and mentoring program 12,500.00

Jul-12 Anderson University Abby Thompson - Scholarship Award Recipient 2,000.00

Jul-12 The Regents of the University Adam Redleaf - Scholarship Award Recipient 2,000.00

Jul-12 King's College Adam Wruck - Scholarship Award Recipient 2,000.00

Jul-12 University of Florida Alona Woodward - Scholarship Award Recipient 2,000.00

Jul-12 Georgia Southern University Andrew Hawkins - Scholarship Award Recipient 2,000.00

Jul-12 Bradley University Callie Lack - Scholarship Award Recipient 2,000.00

Jul-12 Irish American Business Support of Ambassador Awards program 10,000.00

Jul-12 Elizabethtown College Cole Goodman - Scholarship Award Recipient 2,000.00

Jul-12 Austin Community College Katelyn Simmons - Scholarship Award Recipient 2,000.00




45


Jul-12 Coastal Carolina University Matthew Moore - Scholarship Award Recipient 2,000.00

Jul-12 Florida Gulf Coast University Michael Danis - Scholarship Award Recipient 2,000.00

Jul-12 The George Washington University Tess Mulrean - Scholarship Award Recipient 2,000.00

Jul-12 Brigham Young University Tiffany Lamb - Scholarship Award Recipient 2,000.00

Aug-12 American College of Gastroenterology ACG 2012 Midwest Regional Course 1,750.00

Aug-12 Rowan University Olivia Langerhans - Scholarship Award Recipient 2,000.00

Aug-12 The Philadelphia Education Fund Celebration of Scholars Program 420.00

Aug-12 National Constitution Center Support of youth educational program & Liberty Medal project 10,000.00

Aug-12 Arkansas State University Alyson Routon - Scholarship Award Recipient 2,000.00

Aug-12 High Point University Cameron Litcher - Scholarship Award Recipient 2,000.00

Aug-12 Christopher Newport University Christian Hansen - Scholarship Award Recipient 2,000.00

Aug-12 Bridgewater College Dominee McNerney - Scholarship Award Recipient 2,000.00

Aug-12 Limestone College Dustin Martin - Scholarship Award Recipient 2,000.00

Aug-12 Ivy Tech community College Emily Parker - Scholarship Award Recipient 2,000.00

Aug-12 Coastal Carolina University Kelsey Peterson - Scholarship Award Recipient 2,000.00

Aug-12 Cabrini College Lauren Nickel - Scholarship Award Recipient 2,000.00

Aug-12 Macalester College Mariah Carray - Scholarship Award Recipient 2,000.00

Aug-12 Houghton College Michael Knapp - Scholarship Award Recipient 2,000.00

Aug-12 Flagler College Inc. Natalie Mardirossian - Scholarship Award Recipient 2,000.00

Aug-12 Marist College Paul McCusker - Scholarship Award Recipient 2,000.00

Aug-12 Corp of Gonzaga University Rachel Best - Scholarship Award Recipient 2,000.00

Aug-12 Board of Trustees Illinois State Univ Shannon Panzica - Scholarship Award Recipient 2,000.00

Aug-12 NAMI North Carolina The Next Steps...Where Do We Go From Here? NAMI N 1,000.00

Aug-12 Furman University Timothy Millison - Scholarship Award Recipient 2,000.00

Aug-12 The Ohio State University Alexander Teetor - Scholarship Award Recipient 2,000.00

Aug-12 Medaille College Brad Bauman - Scholarship Award Recipient 2,000.00

Aug-12 Tiffin University Charles Schneider - Scholarship Award Recipient 2,000.00

Aug-12 University of Tennessee, Chattanooga Christopher Earnhardt - Scholarship Award Recipient 2,000.00

Aug-12 The University of South Carolina Daniel Tache - Scholarship Award Recipient 2,000.00

Aug-12 Seattle University Emily Lord - Scholarship Award Recipient 2,000.00

Aug-12 Western Kentucky University Hannah Thomas - Scholarship Award Recipient 2,000.00

Aug-12 University of Arkansas, Fayetteville Isaac Thomas - Scholarship Award Recipient 2,000.00

Aug-12 Minnesota State College & University Jake Bailey - Scholarship Award Recipient 2,000.00




46


Aug-12 University of Wyoming James Kinsey - Scholarship Award Recipient 2,000.00

Aug-12 University of Wisconsin - Platteville Kadija Walusay - Scholarship Award Recipient 2,000.00

Aug-12 Samford University Meredith Wright - Scholarship Award Recipient 2,000.00

Aug-12 Virginia Polytechnic Institute Parker Old - Scholarship Award Recipient 2,000.00

Aug-12 Virginia Polytechnic Institute Peter Nelson - Scholarship Award Recipient 2,000.00

Aug-12 Stephen F. Austin State University Tyler Cardwell - Scholarship Award Recipient 2,000.00

Aug-12 Northwestern University Zachary Elvove - Scholarship Award Recipient 2,000.00

Aug-12 The Seiden Group Inc 2012 Brave Awards Translations Updates 490.15

Aug-12 University of North Carolina, Chapel Hill Meredith Morrow - Scholarship Award Recipient 2,000.00

Aug-12 University of North Carolina, Chapel Hill Molly Pfordresher - Scholarship Award Recipient 2,000.00

Aug-12 Crohns & Colitis Foundation CCFA - National Youth Leadership Council 20,000.00

Aug-12 Ohio Gastroenterology Society 2nd Annual Meeting 5,000.00

Aug-12 DePaul University Geena White - Scholarship Award Recipient 2,000.00

Aug-12 State University of New York, Stony Brook Joseph O'Hara - Scholarship Award Recipient 2,000.00

Aug-12 St. Ambrose University Bradley Szmurlo - Scholarship Award Recipient 2,000.00

Aug-12 American University Dominic Lese - Scholarship Award Recipient 2,000.00

Aug-12 Swarthmore College Shire ADHD Scholarship Award 2,000.00

Aug-12 Attention Deficit Disorder ADHD Awareness Week Contribution 1,666.00

Aug-12 Stevens Institute of Technology Brett Incollingo - Scholarship Award Recipient 2,000.00

Aug-12 Mississippi Psychological Mississippi Psychological Association Annual Conve 650.00

Aug-12 Indiana Psychiatric Society Prescribing Controlled Medications to Risky Popula 1,250.00

Aug-12 CHADD Children and Adults * CHADD 114131 ADHD Awareness Week, "Short Films for Short Attent 500.00

Sep-12 Florida Medical Quality 2012 Annual Forum-Go for the Gold in ESRD Care! 1,000.00

Sep-12 Mercer County Family Support Org CHADD Training 1,000.00

Sep-12 Mount Sinai School of Medicine 9th Annual IBD Course 1,500.00

Sep-12 NAMI Greater Cleveland Support and Education for ADHD 2,500.00

Sep-12 Kent State University Jacob McClellan - Scholarship Award Recipient 2,000.00

Sep-12 Oklahoma State University Jenna Murray - Scholarship Award Recipient 2,000.00

Sep-12 Western Illinois University Stephanie Williams - Scholarship Award Recipient 2,000.00

Sep-12 Alliance for the Mentally Ill of Chicago Support of mental health awareness - NAMI Walk Chicago 1,000.00

Sep-12 Virginia Psychological Association VPA Fall Convention 500.00

Sep-12 ADHD Aware 4th Annual Symposium on Attention-Deficit Hyperact 4,999.00

Sep-12 Tristan's Quest, Inc. Building Social and Emotional Competence in Children 5,000.00




47


Sep-12 Owen J. Roberts Scholl District Great Food Fight Recipient 10,000.00

Sep-12 Regents of the Univ of California Support of IBD Conference 2,004.00

Sep-12 Johns Hopkins University Support of 38th Annual GI Conference 2,500.00

Sep-12 Gastro-Intestinal Research GIRF Associates Board Fall Fundraiser 5,000.00

Sep-12 United Way of Chester County Support of families in need; Share the Warmth program 15,000.00

Sep-12 Crohns & Colitis Foundation Western PA/WV Patient and Caregiver IBD Education 1,145.00

Oct-12 The Cleveland Clinic Foundation Support of 48th Annual Gastroenterology event 2,000.00

Oct-12 Crohns & Colitis Foundation CCFA Webcast - IBD Decision Making 70,000.00

Oct-12 Crohns & Colitis Foundation Nutrition & IBD - Greater Cleveland 1,000.00

Oct-12 Crohns & Colitis Foundation Nutrition & IBD - Lexington KY 500.00

Oct-12 Texas Psychological Association Texas Psychological Association Annual Convention 2,500.00

Oct-12 Crohns & Colitis Foundation CCFA Webcast - IBD & Nutrition 80,000.00

Oct-12 Crohns & Colitis Foundation Support of IBD Conference 2,000.00

Oct-12 Crohns & Colitis Foundation Support of Advances in IBD Conference 10,000.00

Oct-12 Archdiocese of Philadelphia Great Food Fight Recipient-Winner (AB Wood) 1,000.00

Oct-12 The Regents of the University Support of IBD Conference 2,500.00

Oct-12 University of Southern Mississippi Ninth Annual ADHD and Related Concerns Conference 1,500.00

Oct-12 Crohns & Colitis Foundation Toque of the Town Benefit 5,000.00

Oct-12 Kentucky Counseling Association Kentucky Counseling Association Conference 1,000.00

Oct-12 National Committee for Quality NCQA's 7th Annual National Policy Conference 10,000.00

Oct-12 American Prof Society for ADHD APSARD Infrastructure Support 40,000.00

Oct-12 Florida Association of School Support of School Psychologists Conference 1,500.00

Oct-12 Kentucky Psychological Assoc Inc Support of annual KPA Convention 1,000.00

Oct-12 Indiana Psychological Association IPA 75th Anniversary Fall Conference 1,000.00

Nov-12 Univ of Mississippi Medical Center Support of national GI meeting 4,000.00

Nov-12 Phoenix Society of Gastroenterology Donation in support of Fellows Nite event 500.00

Nov-12 Montefieore Medical Center Support of 39th Annual GI Conference 5,500.00

Nov-12 North Carolina Chapter of Assoc of Pediatric Nurse Practitioners Support of the 19th Annual North Carolina NAPNAP Symposium 500.00

Nov-12 National Alliance on Mental ADHD Awareness Week - CHADD Montgomery County, MD 2,500.00

Nov-12 National Alliance on Mental ADHD Awareness Week - CORA Services 1,250.00

Nov-12 Brandywine Ballet Company Support of arts and cultural activities 10,000.00

Nov-12 ADHD Aware, Doylestown ADHD Awareness Week - ADHD Aware 1,250.00

Nov-12 CHADD Inc, Baltimore ADHD Awareness Week - CHADD Greater Baltimore 2,500.00




48


Nov-12 Chadd Montgomery County ADHD Awareness Week - CHADD Montgomery County, MD 2,500.00

Nov-12 CORA Services, Inc. ADHD Awareness Week - CORA Services 1,250.00

Nov-12 NAMI of Pennsylvania Montgomery ADHD Awareness Week - NAMI of PA 1,250.00

Nov-12 Special People in Northeast, Inc. ADHD Awareness Week - SPIN 1,250.00

Nov-12 CHADD of Northern Virgina ADHD Awareness Week - CHADD of Northern Virginia 2,500.00

Nov-12 American Gastroenterological Assoc AGA Research Endowment 100,000.00

Nov-12 International Sports Outreach Annual Holiday Donation (in lieu of team holiday parties) 5,000.00

Nov-12 Maria Pizzurro 2012 Shire Brave Award Recipient 13,500.00

Nov-12 Raul Navarro 2012 Shire Brave Award Recipient 13,500.00

Nov-12 Randall S. Gregory 2012 Shire Brave Award Recipient 13,500.00

Nov-12 Debra Frain 2012 Shire Brave Award Recipient 13,500.00

Nov-12 Patsy J. Fleckenstein 2012 Shire Brave Award Recipient 13,500.00

Nov-12 Brian Lee Burke 2012 Shire Brave Award Recipient 13,500.00

Nov-12 CHADD Inc, Landover ADHD Awareness Week - CHADD Chester County 1,250.00

Nov-12 CHADD Inc, Landover ADHD Awareness Week - CHADD Elkins Park 1,250.00

Nov-12 Massachusetts Association ADHD Awareness Week - MAMH 2,500.00

Nov-12 National Alliance on Mental ADHD Awareness Week - NAMI Mass 1,250.00

Nov-12 CHADD Inc, Landover ADHD Awareness Week - CHDD - Metrowest Chapter 2,500.00

Nov-12 Otis J. Williams Shire 2012 Brave Award Recipient 13,500.00

Nov-12 Chelsea Danyel Scheiber Shire 2012 Brave Award Recipient 13,500.00

Nov-12 Catherine O'Hare Shire 2012 Brave Award Recipient 3,400.00

Nov-12 William Alfred Dent Shire 2012 Brave Award Recipient 3,400.00

Nov-12 Mary K. Sweeney Shire 2012 Brave Award Recipient 3,400.00

Nov-12 Daniel B. Steckman Shire 2012 Brave Award Recipient 3,400.00

Nov-12 Mark S. Jubinville Shire 2012 Brave Award Recipient 3,400.00

Nov-12 Lower Merion School District Shire's Great Food Fight Recipient 1,000.00

Nov-12 CHADD Inc ADHD Awareness Week 2,500.00

Nov-12 Academy in Manayunk ADHD Awareness Week - Academy in Manayunk 1,250.00

Nov-12 CHADD Inc ADHD Awareness Week - CHADD Newark 1,250.00

Nov-12 CHADD Inc ADHD Awareness Week - CHADD, San Diego 10,000.00

Nov-12 National Alliance on Mental ADHD Awareness Week - NAMI Greater Boston 1,250.00

Nov-12 NAMI Maryland ADHD Awareness Week - NAMI Maryland 2,500.00

Dec-12 American College of Gastroenterology ACG Education Universe Training for Fellows 175,000.00




49


Dec-12 USF Health Professions Support of the GI unit at the University of South Florida 1,500.00

Dec-12 ADAGP Charitable Foundation Donation in support of GI Unit at CHOP 7,500.00

Dec-12 Johns Hopkins University Support of the 13th Annual Gastroenterology and Hepatology 5,000.00

Dec-12 Crohns & Colitis Foundation CCFA National Take Steps Sponsorship 160,000.00

Dec-12 American Red Cross Donation in support of Hurricane Sandy Disaster Relief 25,000.00

Dec-12 Americares Foundation Inc Donation in support of Hurricane Sandy Disaster Relief 25,000.00

Dec-12 Renaissance Academy Charter School Shire's Great Food Fight Recipient 1,000.00

Dec-12 Johns Hopkins University Support of Advances in Inflammatory Bowel Disease event 12,750.00

Dec-12 Attention Deficit Disorder ADD Education and Advocacy 18,500.00

Dec-12 Academy in Manayunk Support of mental health and youth educational event 10,000.00

Dec-12 Central Pennsylvania Society for CCFA Support of pateitn education and awareness event 2,500.00

Dec-12 Chester County SPCA Charitable Donation to Chester County SPCA 500.00

Dec-12 Pennsylvania Environmental Council Support of environmental awareness activities; annual meeting 3,000.00

Dec-12 The Philadelphia Education Fund Support of educational activities; Ed Fund Basketball Tournament 10,000.00

Dec-12 Nashoba Learning Group Inc Support of mental health awareness and research activities 4,000.00

Dec-12 Philadelphia Schools Project Support of underserved youth education activities 25,000.00

Dec-12 Massachussetts Biotechnology Council Sponsorship of BioPharm America 2012 15,000.00

Dec-12 National Multiple Sclerosis Society Women Against MS 1,000.00

Dec-12 Dysautonomia Youth Network Support of awareness, pateitn support and research 5,000.00

Dec-12 Chester County Economic Development Council Donation to support the Public Safety Training Facility for First Responders 100,000.00

Documents

Shire Funding Disclosure Report 2012 - takeda.com...Shire Funding Disclosure Report Shire Funding Disclosure Report 2012 | March 2013 Table of contents Updated March 2013 ... Oct-12