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The Plymouth Laryngectomy Club (PLC ) is an Affiliated Member of: The National Association of Laryngectomy Clubs (NALC )
In Association with Macmillan Cancer Support
Registered Charity Number: 273635
Our Funder: Macmillan Cancer Support
A Member of The Plymouth Third Sector Consortium (PTSC )
Patrons & Medical Advisors : Mr. W.M. BRIDGER, FRCS - Consultant ENT Surgeon,
Mr. Tass MALIK, BSc FRCS (Gen), FRCS (ORL H&N) - Consultant Otolaryngologist, Head & Neck / Thyroid Surgeon, Derriford Hospital, Plymouth.
The Plymouth Laryngectomy Club (PLC ) A Charitable Support Group for Plymouth Cancer Laryngectomees
The Voice of PLCJuly - August 2011
Address: c/o 80 Warleigh Avenue, PLYMOUTH, PL2 1DH, Devon, UK
Mobile: 07745819828 (text only ) Email: [email protected] Website: http://plymouthlc.webs.com
FOREWORD BY THE SECRETARYWritten by Geoffrey N. Read
Dear Friends & Supporters!
Ted, our Chair, welcomed everyone to our July 2011 Meeting
and thanked them all for attending. Ted then explained that
Maggie1
and Julia2
had agreed to run our Club Meetings until
further notice and this had been accepted by the Committee
(Ted, Geoff & Jean).
Ulla ROHRBECK from HEIMOMED UK was our Guest Speaker
who gave us a Talk about the products made by her
Company. Julia thanked Ulla on behalf of us all, not just for
her presentation but also for the donation of a decorative
mug towards our Raffle Prizes!
We should like to thank our newest member, Rosemarie, for
very kindly providing a tray of tasty pastries for our
sustenance during the meeting!
Further details of our meeting are explained later in this
Newsletter.
Best Wishes
Geoff
1Clinical Specialist Nurse, ENT, Derriford Hospital.
2Speech & language Therapist, ENT, Derriford Hospital.
EDITORIAL COMMENT
NTERNET Links. If you’re reading this on-line and come
across words with blue lettering that are underlined,
then you can click on these links and be taken directly to
another site for more information on that particular topic.
Put your cursor over the link, hold down the Control (Ctrl)
Key and click! Ed.
GREETINGS!
EW Friends & Members.
New Friend. Mr. Alan PEACEY has become a Friend of PLC.
Alan is a British Laryngectomee living in Norway. Further
details are shown on our website. Please also read theLetters to the Editor!
New Member. We welcomed Ms. Rosemarie STEPHENS
who was attending her first PLC Meeting, and also her guest,
Dave. Rosemarie showed some photographs relating to the
Alzheimer’s Charity that she is involved with.
EST Wishes to the Secretary of PLC, Geoff READ, for
his birthday on Sunday, 10th
July 2011.
ANY Happy Returns to Ms. Rosmarie STEPHENS for
her Birthday on Saturday, 16th
July 2011. Rosemarie
is now a full Member of PLC. Happy Birthday Rosemarie!
And finally...
APPY Anniversary to Christine
and Jim REID for Sunday, 10th
July
2011. Congratulations to you both!
THE PLC JULY 2011 MEETING
UR July 2011 Meeting took place at the Mustard Tree
Cancer Support Center at Derriford Hospital on Monday,
4th
July 2011 at 11 a.m. There were 13 individuals in
attendance including three Friends and one Guest.
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Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only )
or email: [email protected], or go to PLC website at http://plymouthlc.webs.com2
OMMITTEE Meetings. The Committee (that’s Ted, Geoff
and Jean) are well overdue a meeting. Meetings are
usually held fairly frequently in an attempt to resolve matters
prior to monthly Club Meetings. However, Geoff has had
difficulties talking lately so it’s been necessary to put
things on hold for a little while. A meeting will be called as
soon as Geoff is able to talk!
NTERTAINMENTS Member. Organising our meetings
and social events is taking up more and more of Geoff’s
time. At our June 2011 Meeting, Members agreed that the
Committee should have a fourth member: An Entertainments
Member to organise the Club’s social diary. No volunteers
were forthcoming at the June or July 2011 Meetings so
Members are asked to give this some thought!
UNDING. Geoff will be making a bid to various funders in
the near future. However, before making a bid Geoff will
need to know specifically what the Club needs the funds for.
This might include the cost of printing our Newsletters,
Postage, etc. Or it could be to fund a special trip perhaps,
such as our Christmas Dinner or a Pantomime? Or it might be
to finance our proposed Goody Bags project. No specificsuggestions were forthcoming at the May, June or July 2011
Meetings. Geoff needs Members to make some suggestions
at the August 2011 Meeting so do please give this some
thought! In the meantime, Geoff has applied for a Setting-up
Grant from the National Association of Laryngectomee Clubs
(NALC ).
OODY Bags Project. The Speak Easy Club in Cornwall
have given us this idea and supplied us with information
of what is required. This project was mentioned very briefly
at the July 2011 Meeting and Members agreed to it some
further consideration at the August 2011 Meeting and tothink about the cost. This would be a delightful project for
one of our Members to take on. Interested? Please contact
Geoff!
EMBERSHIP Status. Our current Membership Status
is shown in the table below:
POSTAL EMAIL TOTAL
Confirmed Members: 9 8 17
Prospective Members: 0 0 0
Confirmed Friends: 8 20 28
Prospective Friends 0 3 3
TOTALS: 17 31 38
RESCRIPTION items. Maggie explained that all medical
supplies obtained from Countrywide Supplies Ltd.,
Heimomed UK or elsewhere, were prescription items and as
such were budgeted for from each local GP’s purse. Patients
must be registered with their local Allied Health Professional
( for our Club Members, this would normally be Maggie or
Julia) before ordering anything from any company. Julia
stated that Base Plates from Platon Medical Supplies Ltd.
were professionally preferred.
Patients should never order a different item just to try it! But
should always consult with Maggie or Julia prior to ordering
anything different. If in doubt, always consult Maggie or Julia
first.
AFFLE. Ted ran the July 2011 Raffle and the results were:
1st
Prize: Ron: Tin of Biscuits.
2nd
Prize: Ron: But he put it back!
Julia: 4-piece set of Drinking Mugs.
3rd
Prize: Rosemarie: Heroes Chocolates
4th
Prize: Percy: Tin of Biscuits.
5th
Prize: Maggie: Jar of Coffee (which Maggie
promptly donated to the Tree!).6
thPrize: Eileen: Decorative Mug (kindly donated
by Ulla of HEIMOMED UK ).
Ron will therefore provide the prize for the August Raffle!
UPPORTING Role of the Club. After receiving advice from
Maggie who explained the Confidentiality Rules,
Members agreed that the onus should be on individual Club
Members to let the medical authorities (the Ward Staff,
Maggie or Julia) know if they would like to receive a visit from
another Club Member should they have occasion to be in an
in-patient at Derriford Hospital. Alternatively, let another of
our Club Members know! It’s up to YOU!
REASURER’S Report. Jean reported that she was
holding £48.30 and the remainder was held in the
Club’s Bank Account. The accounts are open to view by
any Club Member at any time on application to Jean.
THE PLC FORECAST OF EVENTS
ALENDAR of Events. A copy of the Club’s Calendar of
Events, including Future Entertainments for the next 12
months or so, is available on our Club’s website. Please keep
yourselves up-to-date by taking an occasional peek!UGUST 2011 PLC Meeting. Monday, 1
st August 2011:
The PLC Club Meeting starts at the Mustard Tree
Cancer Support Centre at 11 a.m. There will be a Talk by
our Guest Speaker, Miles WILLIAMS from Platon Medical.
EPTEMBER 2011. Monday, 5th
September 2011: The
PLC Club Annual General Meeting starts at the Mustard
Tree Cancer Support Centre at 11 a.m. After the meeting
there will be a Talk by our Guest Speaker, Charles
HANDLEY from Countrywide Supplies Ltd.
EPTEMBER 2011. Wednesday, 14th
September2011:
The Speak Easy Club in Cornwall has made a bookingfor Wednesday, 14
thSeptember 2011 at Devoran, near
Truro for a Soup & Sandwich lunch and has invited PLC
Members to join them. Members of the Speak Easy Club
will arrange to meet anyone travelling by train or bus at
Truro. Anyone wishing to attend should notify Geoff as
soon as possible. The last date for names will be Monday,
1st
August 2011 (the August 2011 Meeting).
EPTEMBER 2011. MINI-BUS Trip. Ted will be organising a
mini-bus trip from Plymouth to Dartmeet for a Cream
Tea sometime in September 2011. Rosemarie and Dave
said they could book a mini-bus on favourable terms which
could carry up to 14 passengers. Please book your place
with Ted now to avoid disappointment!
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Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only )
or email: [email protected], or go to PLC website at http://plymouthlc.webs.com3
CTOBER 2011: Friday, 7 th
October 2011: Laryngectomee
Study Day. This event is still in the planning stages and
is being organised by Julia and Maggie. Please make a note
of this event in your diaries as we have cancelled our normal
October 2011 Club Meeting!
OVEMBER 2011: Monday, 7 th
November 2011: John
MCKENNA of Colebrook Housing Carers has kindly
accepted our invitation to be our Guest Speaker.
LIFTS TO THE HOSPITAL
RITISH Red Cross in Plymouth. Remember what was
said about possibly being able to get a lift to Derriford
Hospital for an operation? I tried it and was informed that
it’s only for out-patients and the infirm! I duly informed the
Sister on Erme Ward who seemed somewhat surprised! Oh
well!
Submitted by Geoffrey N. READ
PENINSULAR CANCER NETWORK
ENINSULAR Cancer Network (PCN ) Allied Health
Professional ( AHP ) Rehabilitation Group. Geoff READ
attended a meeting at the PCN Offices at Dartington on
Thursday, 30th
June 2011 as a Plymouth Patient. Julia
POCKETT was also in attendance as an AHP. The next meeting
is scheduled for Thursday, 1st
December 2011. If anyone
should wish to have further details then do please contact
Geoff.
THE HEAD & NECK CANCER GROUP OF
HEREFORD & WORCESTER
HIS Group has kindly sent PLC a copy of their published
book entitled Soups & Puddings. Geoff is passing a copy of
this book around to Members on a loan basis. If anyone
wishes to have a copy of their own they can purchase one
from for a suggested minimum donation of £2. Funds raised
contribute towards productions costs of the booklet and to
the treatment of patients at the Head & Neck Cancer Unit,
Beech Ward, Worcestershire Royal Hospital. Please contact
Geoff for further information.
THE SPEAK EASY CLUB CORNWALL
EWSLETTER. Geoff has received the June 2011
edition of their newsletter on Tuesday, 21st
June 2011
and emailed it out to those Members who are on-line.
Those not on-line can ask Geoff for a hard copy.
The Memory Conservatory is a self-funded group
for Alzheimer's disease sufferers who meet at
Chaplins Superstore in Plympton.
They have created a garden enabling sufferers and
carers to enjoy the open air, and activities such as
singing old time songs and dancing.
LETTERS TO THE EDITOR
Dear Geoff,
I should be grateful if you would relay the following message
to the Members, Friends and Supporters of PLC:
I’ve just joined the Plymouth Laryngectomy Club as a Friend.
I am an ex-British serviceman living in Oslo, Norway and am
now employed as a long-distance truck-driver.
I had my laryngectomy in February 2010 but as I’m a youngman of 50 I must continue working until I am 67 years
young!
I use a Provox Prosthesis and have done since the operation.
My laryngectomy was not the result of cancer so I didn't have
radio or chemo therapy. However the full laryngectomy
operation was the same as for cancer patients!
I would be very happy to hear from anyone who wishes to
communicate via email.
Regards,
Alan D PEACEY
Editorial Note: Alan has sent us the story of his operation
and this is available on our website. Ed.
NEWS & CURRENT EVENTS
DISCLAIMER
Please note that the views and opinions expressed in this section are
not necessarily those held by the PLC Committee nor its Members.
UNDRAISING Chief Sian Boosts Cancer Support Team.
This article was published in the Plymouth Herald on
Monday, 20th
June 2011:
MACMILLAN Cancer Support has named the newest member
of its local team.
Sian HARRIS has become the Fundraising Manager for
Plymouth, North Devon & the Tamar Valley. Leaving her post
in Gloucestershire, Sian has moved back to the area she said
she came to know and love while studying for a degree in
social policy at the University of Plymouth.
Suzie WARREN, Area Fundraising Manager for Devon &
Cornwall, said: "Sian is a valuable and welcome addition to
our team, particularly during this, our double anniversary
year. Macmillan Cancer Support is celebrating the centenary
of its founding and the 21
st
birthday of its World's BiggestCoffee Morning event on Friday, 30th
September 2011."
ARDEN Concert. The Memory Conservatory welcomes
you all to an Open Air Garden Concert with the City of
Plymouth Concert Band at Chaplins Superstore in Plymouth
from 2 until 5 p.m. on Saturday, 23rd
July 2011. The price
includes a Cream Tea with Langage Farm Clotted Cream, Tea,
Coffee and Soft Drinks. Bumper Raffle Tickets will be on sale
at £1 each.
Please book your tickets by telephoning (01752) 344923 or
you can pick up tickets on the day at the gate.
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Contact The Voice of PLC Newsletter Editor Geoff Read on (01752) 563800 or 0774581928 (text only )
or email: [email protected], or go to PLC website at http://plymouthlc.webs.com4
WON'T LET Cancer Destroy My Appetite For Life: Bon
viveur Danny BAKER is hauntingly candid on earning
millions and living on handouts.
There was a two-page spread
published in the Daily Mail by
Simon HATTENSTONE on Saturday,
18th
June 2011:
What would be the cruelest trick to
play on a man who talks for a living
and loves his food?It's nine months since Danny
BAKER was diagnosed with cancer
of the mouth and throat. His fans
knew something was up... there
were replacement presenters on his
six BBC radio slots each week for starters. But he never
announced what exactly was wrong. After all, Baker's never
been big on self-pity.
You can read the complete article by clicking on this link.
The Plymouth Laryngectomy Club
(PLC )
is a Charitable Support Group.
PLC aims to offer support and care
to the laryngectomees
and their carers and families.
PLC also encourages understanding
and support by the public.
ACKNOWLEDGMENT
And, just for those who may not be aware...
Laryngectomy is the removal of the larynx and separation
of the airway from the mouth, nose and oesophagus. TheLaryngectomee breaths through the neck, a stoma. It is
done in the cases of laryngeal cancer. However, many
laryngeal cancer cases are now treated only with
radiation and chemotherapy, or other laser procedures,
and Laryngectomy is performed when those treatments
fail to conserve the larynx.
If you’re a Laryngectomee you would be most
welcome to come along on your own or with
your partner and / or Carer.
Come join us!
Our Members and Friends meet on
the first Monday of every month.
Do please see our website
for further details.
I
Our grateful thanks to :
THE PLYMOUTH DIOCESEhttp://www.plymouth-diocese.org.uk/
for their assistance
in reproducing copies
of this newsletter.
