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Global Learning Conference 2016 Schedule
Thursday, July 14, 2016
12 noon – 6:30 pm
Registration Key Ballroom Foyer
Hospitality Suite and Relaxation Room Armistead & Pickersgill
4:00 – 6:30 pm
Exhibits on Display Key Ballroom Foyer
1:30 – 2:30 pm
Vascular EDS Discussion Group Key Ballroom 12
3:00 – 4:00 pm
General Session: Vascular EDS
Dr. Peter Byers Key Ballroom 5-8
4:00 – 5:00 pm
General Session: Rarer Types EDS
Dr. Clair Francomano Key Ballroom 5-8
3:00 – 5:00 pm
Junior Zebras programming (See page 9 for more details)
Key Ballroom 3 and 4
5:00 – 7:00 pm
Welcome Reception with ExhibitorsSponsored by Bauerfeind
Key Ballroom Foyer
Friday, July 15, 2016
7:30 am – 6:00 pm
Registration Key Ballroom Foyer
Visit with Exhibitors
Hospitality Suite and Relaxation Room Armistead & Pickersgill
8:00 am – 5:10 pm
Junior Zebras programming (See page 9 for more details)
Key Ballroom 3 and 4
8:15 – 8:30 am
Welcome and Introduction Key Ballroom 5 – 8
8:30 – 9:30 am
General Session: Classical EDS
Dr. Clair Francomano
9:35 – 10:35 am
General Session: Hypermobile EDS
Dr. Howard Levy
10:35 – 11:05 am
Morning Break and Visit with Exhibitors Sponsored by EDSawareness.com and New York Institute of Technology
Key Ballroom Foyer
11:05 am – 12:05 pm
General Session: The Natural History of Hypermobile EDS
Prof. Rodney Grahame
Key Ballroom 5 – 8
Global Learning Conference 2016 Schedule
12:05 – 1:30 pm
Lunch & General Session: Oral Manifestations of EDS Sponsored by Silver Ring Spllints
Dr. John Mitakides Key Ballroom 5 – 8
1:35 – 2:35 pm
General Session:Orthopaedic Issues in EDS
Dr. William Ericson
2:35 – 3:05 pm
Afternoon Break and Visit with ExhibitorsSponsored by EDSawareness.com and New York Institute of Technology
Key Ballroom Foyer
3:05 – 4:05 pm
General Session: Gastrointestinal Involvement in EDS
Prof. Qasim Aziz Key Ballroom 5 – 8
4:10 – 5:10 pm
General Session: Physiotherapy Management and Care
Dr. Leslie Russek
5:30 – 6:30 pm
Roundtable Discussion: Young Adults
Key Ballroom 12
7:00 pm Issues with My Tissues (Director’s Cut)
Lara Bloom Key Ballroom 5 – 8
Saturday, July 16, 2016
7:30 am – 3:00 pm
Registration Key Ballroom Foyer
Visit with Exhibitors
Hospitality Suite and Relaxation Room Armistead & Pickersgill
8:00 am – 3:00 pm
Junior Zebras programming (See page 10 for more details)
Key Ballroom 3 and 4
8:00 – 8:15 am
Welcome and Announcements Key Ballroom 5 – 8
8:15 – 9:15 am
General Session: Neurology in EDS
Dr. Fraser Henderson
9:20 – 10:20 am
General Session: Pain in EDS
Dr. Pradeep Chopra
10:20 – 10:50 am
Morning Break and Visit with ExhibitorsSponsored by EDSawareness.com and New York Institute of Technology
Key Ballroom Foyer
10:50 – 11:50 am
General Session: Autonomic Dysfuction and Chronic Fatigue in EDS
Dr. Alan Pocinki Key Ballroom 5 – 8
Global Learning Conference 2016 Schedule
11:55 am – 12:55 pm
General Session: Mast Cell and Allergy in EDS
Dr. Anne Maitland Key Ballroom 5 – 8
1:00 – 2:00 pm
Networking Lunch
2:00 – 3:00 pm
Discussion Groups(Limited capacity, first-come, first-served)
Classical EDS Key Ballroom 10
Parents Key Ballroom 11
Spouses/Caregivers Key Ballroom 12
4:30 – 6:30 pm
Zebra Rally
HILTONCONV.CTR.
CAMDENYARDS HARBOR
W. PRATT
W. LOMBARD
W. CAMDEN
W. CONWAY
E. PRATT
RAIL
USS CONSTELLATION
NATION
AL AQUARIUM
S. HOWARD
S. SHARP
S. CHAR:LES
LIGHT ST.
S. CALVERT
HOPKINS
S. HANOVER
SOUTH ST.
COMM
ERCE
FOUNTAIN
Zebra Rally1. About 4:00 pm, exit Hilton and turn right (heading east) on Pratt St.2. Continue on Pratt and cross Light St.3. Walk across plaza (fountain on right) and cross street.4. Rally is between the shopping malls, near the harbor’s edge.
The trip takes under 15 minutes. Rally begins at 4:30 pm. For Google Map directions, visit http://bit.ly/2016RallyMap
The rally will be attended by people living with EDS from around the globe, as well as their families and friends. Local elected o�cials and key EDS medical experts will be present to make remarks, and several EDS patients will share their stories.
Global Learning Conference 2016 Schedule
Junior ZebrasKids Program in Key Ballroom 3Teens Program in Key Ballroom 4
Thursday, July 14, 2016
KIDS PROGRAM TEENS PROGRAM
3:00 – 3:30 pm
Introductions and Icebreaker Game
Introductions and Icebreaker Game
3:30 – 5:00 pm
Picture and Video Scavenger Hunt and EDS Awareness Video Planning
Picture and Video Scavenger Hunt and EDS Awareness Video Planning
5:00 – 7:00 pm
Welcome Reception with family (Key Ballroom Foyer)
Friday, July 15, 2016
KIDS PROGRAM TEENS PROGRAM
8:00 – 8:50 am
Coping Tips with Doctors and Medical Procedures Brittany Krauth, Certified Child Life Specialist, Johns Hopkins Children’s Center
Advocating Through Social Media Shira Strongin, Creator of Sick Chicks
9:00 – 9:50 am
Rehearsal for EDS Awareness Video
Coping Tips with Doctors and Medical Procedures Brittany Krauth, Certified Child Life Specialist, Johns Hopkins Children’s Center
10:00 – 10:35 am
Circle Time – Q&A Discussion Barby Halstead-Worrell
Rehearsal for EDS Awareness Video
10:35 – 11:05am
Morning Break with family (Key Ballroom Foyer)
11:05 am –12 noon
EDS-Appropriate Movement Kathy Zonarich, PT
Group Q&A Discussion Barby Halstead-Worrell
12:05 – 1:30 pm
Lunch and General Session (with family, Key Ballroom 5 – 8): Oral Manifestations of EDS, Dr. John Mitakides
1:35 – 2:35pm
Making Invisible Illnesses Visible Victoria Graham, Miss White Oak 2016
EDS-Appropriate Movement Kathy Zonarich, PT
2:35 – 3:05 pm
Afternoon Break with family (Key Ballroom Foyer)
Global Learning Conference 2016 Schedule
KIDS PROGRAM TEENS PROGRAM
3:05 – 4:00 pm
Picture and Video Scavenger Hunt (continued)
Raising Awareness in Our Communities and Advocating in Our Government Lara Bloom and Shane Robinson CAE, Co-Executive Directors of The Ehlers-Danlos Society
4:00 – 4:50 pm
Ask an EDS Expert… Dr. Heidi Collins
Picture and Video Scavenger Hunt (continued)
4:50 – 5:10 pm
Circle Time Group Discussion
Saturday, July 16, 2016
KIDS PROGRAM TEENS PROGRAM
8:00 – 8:50 am
Yes We Are Zebras, but We Still Have a Voice Clara Lemarr, CEO Founder of The Clara Lemarr Foundation
Ask an EDS Expert… Dr. Heidi Collins
9:00 – 9:50 am
Circle Time – Discussion Barby Halstead-Worrell
Yes We Are Zebras, but We Still Have a Voice Clara Lemarr, CEO & Founder of The Clara Lemarr Foundation
9:50 – 10:20 am
Final Rehearsal for EDS Awareness Video
Group Q&A Discussion Barby Halstead-Worrell
10:20 – 10:50 am
Morning Break with family (Key Ballroom Foyer)
10:50am – 12 noon
Filming the EDS Awareness Video Scavenger Hunt Wrap-Up and Final Rehearsal for EDS Awareness Video
12 noon – 1:00 pm
Scavenger Hunt Wrap-Up Filming the EDS Awareness Video
1:00 – 2:00 pm
Networking Lunch with family (Key Ballroom 5 — 8)
2 – 3:00 pm Junior Zebra Party (Third floor, Tubman)
Junior Zebra Party (Third floor, Carroll)
4:30 – 6:30 pm
Zebra Rally with family
Global Learning Conference 2016 Schedule
910
1112
7
8
5
6
123
4
N
N
N
BA
ABC
WEST
WESTB U I L D I N G
B U I L D I N G
1FLOOR
2FLOOR
WESTB U I L D I N G
3FLOOR
EASTB U I L D I N G
REGISTRATION DESK
DIAMOND TAVERNJOHNSONJIMMYJOHN’S
PEALE
RUTHLATROBE
PARKING GARAGE
GIFT SHOP
MAIN ENTRANCE - PRATT STREET
CAMDEN STREET
LOBBY BAR
KEY BALLROOM FOYER
KEY BALLROOM 5-8
PICKERSGILLARMISTEAD
Registration . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Key Ballroom FoyerHospitality Suite/Relaxation Room . . . . . . . . . . . . . . . . . . . . . . . . . . . Armistead/PickersgillAll sessions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Key Ballroom 5-8Junior Zebras (Kids). . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Key Ballroom 3 Saturday Party, 2-3 pm . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . TubmanJunior Zebra (Teens) . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Key Ballroom 4 Saturday Party, 2-3 pm . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . CarrollVascular EDS Discussion Group (Thursday). . . . . . . . . . . . . . . . . . . . . . . . . . Key Ballroom 12Discussion Groups (Saturday): Classical EDS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Key Ballroom 10 Parents . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . Key Ballroom 11 Spouses/Caregivers. . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . KeyBallroom 12
ATM ESCALATOR STAIRS ELEVATOR RESTROOMS
Schedule and room assignments may change.
TUBMANCARROLL
