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Tomasz SzelagowskiGeneral Director
Federation of Polish Patients
The role of patients and patients' organisations in the
facilitation of necessary changes in current healthcare
delivery systems in Europe
November 10, 2012. Malta.
Patients’ voice
Independent, non-governmental umbrella organization
VISION: High-quality, patient-centered, equitable healthcare for all patients
MISSION: To provide a strong and united patients’ voice –> patients at the centre of EU health policy & programs
Strategic goals
• Equal access to healthcare• Patients’ involvement• Patients' perspective• Sustainable patient organisations• Patient unity
Meaningful involvement
• Build capacity• Strengthen our policy impact• Develop the patients’ evidence-base• Extend our membership• Build powerful communications and
partnerships• Diversify the funding base
• Lack of equal and timely access to treatment per se
• Limited and unequal access to modern treatment
• Increased patients’ financial burden (co-payments)
• Restricted access to relevant information
• Lack of life-long range of services and support for patients with chronic diseases
• Lack of thorough information on the possibilities for treatment abroad
Common concerns
Building the PatientPartnerNetwork for CCM
Since then… in Poland
• White Summit 2008 HealthCare System Reform
• Around country seminars 2007; 2009
•Pilot projects 2011
• Joint action on Public Health Act 2011/2012
• FPP position in White Paper on AHA 2012
• Advances on the empowerment model and health literacy
Health Literacy in summary
University Collage Dublin 2011
Since then… in Europe• Substantive EPF Position - Transparency Directive
• Major Conference in Sofia, September 2012 – Health Inequalities in the New MS and the Candidate Countries
• The European Patient Academy on TherapeuticInnovation, EUPATI
• Patient Involvement in HTA – EPF studies
• Advances on the ‘ empowerment model’ and health literacy
Patients voice
Governance perspective
Creation of multistakeholder hybrid organisations and initiatives
New multilateralism
Today‘s minister of health has a dual responsibility:to promote his or her country‘s health and…to advance the health interests
of the European and global community.
prof. dr. Ilona Kickbusch …at EHFG/WHS
• Better recognition of the potential of patients’ organizations (PO)
• Joint projects with PO to be set-up
• Open communication among all stakeholders
Design - Implement - Manage TOGETHER
Building the PatientPartnerNetwork for Quality and
Safety
Visit us at: www.federacjapp.
pl