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WHATEVER IT TAKESto Beat Parkinson’s®
ABOUT THE FOUNDATION
Founded in 1957, the National Parkinson
Foundation (NPF) is a leading, national
organization with an extensive network of
chapters, support groups, and our global
Centers of Excellence. Unique among the
national Parkinson’s organizations, NPF
is the only organization with a singular
focus on improving the quality of care
in Parkinson’s disease. NPF has funded
more than $180 million in research,
education and support services.
NPF programs touch more
than one million people a
year through our network
of United States chapters,
support groups, patient
conferences, and
our online resource,
Parkinson.org.
NPF’s Centers of Excellence
are leading medical centers
around the globe that excel in
research, care and community outreach,
delivering care to more than 50,000
Parkinson’s patients.
ANNUAL REPORT | 2013
The mission of the
National Parkinson
Foundation (NPF) is
to improve the quality of
Parkinson’s care through
research, education
and outreach.
CEO’S MESSAGE
This past year has been marked
by the launch of even more NPF
programs for people living with
Parkinson’s and their families. We
truly believe that all people deserve
access to expert Parkinson’s care
and information no matter who
they are, where they live or how
much money they have.
It is a lifelong commitment to the
underserved that has been a strong
tenet of our retiring Chairman of
the Board, Dr. Bernard Fogel. For
six years, Dr. Fogel led the Board as a strong advocate of our mission to focus on improving the lives
of patients today. As a former medical school dean, Dr. Fogel worked tirelessly and with a big heart
to open doors in his extensive network. He has cared deeply, and no task was too big or too small to
engage his prodigious energy. His passion to help—and help mightily—stemmed from seeing his own
father struggle with the disease for decades.
Now he passes the Chairman’s baton to John Kozyak. Both of John’s parents have Parkinson’s and
he has seen firsthand the difference that education and support can make in the ability to live a better
life now and he is strongly committed to the cause. A prominent attorney with a national profile, John
too has a history of interest in the underserved, and single-handedly runs a highly-regarded minority
mentoring foundation in South Florida.
As president and CEO, it has been my honor to work side-by-side with wonderful leaders such as
Dr. Bernard Fogel and John Kozyak. Together, on behalf of the million Americans with Parkinson’s
and their families, we are committed to doing whatever it takes to beat Parkinson’s.
Warm Regards,
Joyce Oberdorf
President and CEO
2WHATEVER IT TAKES to Beat Parkinson’s®
John Kozyak, Joyce Oberdorf and Dr. Bernard Fogel
Over our history of six decades, NPF has maintained
a steady commitment to eliminating Parkinson’s-
related disparities in health care. In partnership with
NPF’s Chapters and Centers of Excellence across the United
States, NPF has developed materials and resources to respond to
the diverse needs of all people who are affected by Parkinson’s disease.
In 2013, NPF brought the lifesaving messages of the successful Aware in Care campaign
to underserved communities by providing thousands of free hospitalization kits in low health
literacy English and Spanish versions. Since the inception of the campaign, 31,500 kits have
been distributed to help people get better care in a hospital.
NPF is working with five Centers of
Excel lence to expand outreach to ethnic
communities: Johns Hopkins University
in Baltimore, Baylor College of Medicine
in Houston, University of Pennsylvania in
Philadelphia, Barrow Neurological Institute
in Phoenix and Georgetown University
Hospital in Washington, D.C.
The Aware in Care campaign to the
underserved was made possible by the
generous support of Medtronic Philanthropy.
The overall Aware in Care program is also
supported by the generous contributions
of its lead sponsor, the Edmond J. Safra
Philanthropic Foundation, and The Eleanor
M. and Herbert D. Katz Family Foundation.
Learn more about the campaign at www.awareincare.org.
3
WHATEVER IT TAKES to Beat Parkinson’s®
ANNUAL REPORT | 2013
4
“ The unfortunate reality in our country
is that many people remain isolated and
unable to access services in the healthcare
system at large. NPF is working to ensure
that everyone—regardless of who they are,
where they live, what language they
speak or how much money
they have – receives much-
needed Parkinson’s
resources. ”
OUTREACH TO THE UNDERSERVED
Becky Dunlop, RN
— Nurse Coordinator for the Johns Hopkins Parkinson’s
Disease and Movement Disorders Center,
an NPF Center of Excellence
{
“ We’re changing the way that
Parkinson’s disease is managed
by bringing care directly to the
patients, and we wouldn’t be able to
do this without the support of NPF. ”
NARROWING THE GAP IN CARE }
5 WHATEVER IT TAKES to Beat Parkinson’s®
Ray Dorsey, MD — University of
Rochester, an NPF Center
of Excellence
ANNUAL REPORT | 2013
H alf the people in the world with Parkinson’s
disease are suffering needlessly because they
aren’t receiving care from a neurologist.
Dr. Ray Dorsey has found that usually the problem isn’t that
patients won’t see a specialist; it’s that they can’t. Rather than
asking older individuals with a disabling condition to drive across
their state to an urban medical center, he is working with NPF to prove that
great care can be delivered to patients in their homes.
New technology is making this possible through telemedicine—using computers to connect
doctors and patients. It’s not just distance that separates patients from specialists: caregivers
need time off from work for appointments, increasing disability makes travel harder – and
travel can be expensive. A video call with
your doctor from your home can make
accessing great care so much easier.
For the current study, Dorsey partnered
with NPF to lead a team of investigators
from across the NPF Center of Excellence
network to show that his expert care model
can scale to nationwide delivery. Patient
recruitment for the program from NPF
Centers began in early 2014.
This pilot program will compare specialist
telemedicine to the care people receive in
their own communities. The goal is to prove
that people with Parkinson’s can get expert
care via “virtual house calls,” making it easier for people all over the world to receive quality
Parkinson’s care. Focused on engaging and empowering patients, this program won a multi-
year $1.7 million research award from the Patient-Centered Outcomes Research Institute (PCORI).
6
For more information, visit www.parkinson.org/telemedicine.
NPF is dedicated to developing new concepts and
technologies that engage people in their own care.
In 2013, NPF launched a first-of-its-kind app,
Parkinson’s Central, for people with Parkinson’s and their
loved ones. Now, anyone with a smartphone can directly access
the Parkinson’s-related information they need, where and when they need it.
Parkinson’s Central was developed as part of NPF’s overall vision to meet an ever-increasing
demand for online health information and to help people with Parkinson’s now. The tool is
yet another way in which NPF is using technology and innovation—on top of multiple social
media tools—to help people diagnosed with Parkinson’s regain control of their life.
Parkinson’s Central is
the second free app that
NPF has released; the
Parkinson’s Toolkit,
which launched in 2011,
is an app designed for
health care professionals.
Parkinson’s Central was
made possible by the
generous support of
donors like you as well as
Teva CNS and AbbVie.
For more information on the app, visit www.parkinson.org/parkinsonscentral.
7
WHATEVER IT TAKES to Beat Parkinson’s® 8
“ Easy to use and easy to read,
Parkinson’s Central is a veritable
encyclopedia of Parkinson’s issues,
not only regarding the treatment
of the disease, but as a guidebook
for positive and high-quality
living with Parkinson’s. ”
EDUCATION AT YOUR FINGERTIPS{
James Morgan
— member of NPF’s South Florida Advisory
Council, who was diagnosed with Parkinson’s disease
five years ago
ANNUAL REPORT | 2013
WHATEVER IT TAKES to Beat Parkinson’s®
NPF : 2013 THE YEAR IN NUMBERS
S U P P O R T E D O U R M I S S I O N T O I M P R O V E T H E Q U A L I T Y O F C A R E F O R P E O P L E L I V I N G W I T H P A R K I N S O N ’ S
56,000 DONORS
7,500PATIENTS
ENROLLED IN NPF’S PARKINSON’S
OUTCOMES PROJECT, THE LARGEST
CLINICAL STUDY OF PARKINSON’S,
AT 20 NPF CENTERS OF EXCELLENCE
TRAINED SPECIALISTS AT
OUR TOLL-FREE HELPLINE,
13,000 CALLERS
11,100 FREE, LIFE-SAVING
AWARE IN CARE KITS WERE DISTRIBUTED T O H E L P P E O P L E G E T B E T T E R C A R E I N A H O S P I T A L
1-800-4PD-INFO,
PROVIDED VITAL
COUNSELING TO
9
ANNUAL REPORT | 2013
P A R K I N S O N . O R G — T H E G O - T O
R E S O U R C E O N T H E W E B — H A D
UNIQUE VISITS FROM MORE THAN
1 million PEOPLE
N P F ’ S V I B R A N T ONLINE COMMUNITY E N G A G E D W I T H F A N S M O R E T H A N
50 MILLION TIMES
10
P A R T I C I P A T E D I N N P F ’ S M O V I N G
D A Y ® I N 1 9 L O C A T I O N S A C R O S S
THE USA, RAISING CRITICAL
AWARENESS OF THE DISEASE
I N L O C A L C O M M U N I T I E S
20,000 WALKERS
FROM AROUND THE WORLD TUNED
I N T O E I G H T F R E E W E B I N A R S
HOSTED BY PARKINSON’S EXPERTS
8,500 PEOPLE
O F O U R F R E E E D U C A T I O N A L M A N U A L S
O N 1 0 D I F F E R E N T T O P I C S A N D N P F ’ S
N E W S L E T T E R ( T H E P A R K I N S O N R E P O R T )
M A I L E D T O H O M E S A C R O S S A M E R I C A
210,000 COPIES
SERVED THROUGH THE
NPF CHAPTER NETWORK
100,000 PEOPLE
GIFTS OF $250,000 AND ABOVEEstate of Donald L. Allred
Estate of Jack Roth
Edmond J. Safra Philanthropic Foundation
Harcourt M. and Virginia W. Sylvester Foundation
Jerome A. Yavitz Charitable Foundation, Inc.
GIFTS OF $100,000 TO $249,999Trust of Arlene M. Bevilacqua
Estate of Viola B. Cayea
Trust of Edna Cottun
The Hansen Trust
Estate of Dianne Kuhrt
Jerry M. Lindzon
Medtronic Foundation
NPF South Palm Beach County
Parkinson’s Unity Walk
Estate of John R. Peters
Estate of Carol C. Price
UCB, Inc.
GIFTS OF $50,000 TO $99,999
Jacob C. Arant, Sr.
Estate of Liesel Brown
Trust of Rex A. and Josephine S. Collins
Rollin M. Gerstacker Foundation
Estate of Dorothy M. Holeton
The Don A. Hunziker Memorial Foundation
The Eleanor M. and Herbert D. Katz Family Foundation, Inc.
Trust of Robert E. Neill
Parkinson Foundation of the National Capital Area
Right at Home, Inc.
Solomon Family Foundation
Teva Neuroscience, Inc.
US WorldMeds
Estate of Rose Vosbigian
GIFTS OF $20,000 TO $49,999
Andrew B. and Mona Albert
The Applebaum Foundation
AbbVie Neurosciences
Leo M. Amoroso
Terry and Regina Armstrong Family Charitable Foundation
The Jane H. Berktold Parkinson Fund
Bloomfield Family Foundation
Trust of Ricki Fountain
Community Health Charities
Medtronic, Inc.
NPF Central & Southeast Ohio
NPF Georgia
NPF Orange County California
NPF Western New York
NPF Western Pennsylvania
The Oreffice Foundation
The Parkinson Council
Trust of Harold J. and Phyllis A. Schwend
Estate of Ruby Stevens
Estate of Edward C. Stevenson
The Diller-Von Furstenberg Family Foundation
The National Parkinson Foundation gratefully acknowledges
all of the people who made a donation of $1,000 or
more between July 1, 2012 and June 30, 2013. It is the
thoughtfulness of these supporters that allows us to educate and assist people in communities across the country
about Parkinson’s disease. We thank them for their dedicated support.
THANK YOU !
11 WHATEVER IT TAKES to Beat Parkinson’s®
GIFTS OF $10,000 TO $19,999
Anonymous
Karl Albert
Trust of Rita Alexander
Bruce H. Bryant
Paul and Pearl Caslow Foundation
Chelsea Therapeutics
Dr. and Mrs. Lynn and Kate Christianson
W. G. Christianson Foundation
Robert and Joanne Crown Income Charitable Fund
Mr. and Mrs. Charles M. Eldridge
Ross S. Evans
Five Millers Family Foundation, Inc.
Estate of Kathleen Greenler
Estate of Theodore R. Grimes
Beulah Mae Jones-Mitchell
Katten, Muchin, Zavis, Rosenman Foundation, Inc.
Marian S. and Frederic T. McAuslan Endowment Fund
The McCamish Family Charitable Fund
NPF Greater Rochester
NPF Heartland
NPF Central Savannah River Area
Peachtree House Foundation
Beth Kobliner Shaw and David E. Shaw
Estate of Rosario Simon
Alan M. Slewett
Dr. and Mrs. Enrique J. Sosa
Degna Spoldi Private Family Foundation
Estate of the Reverend Donald Van Dreser
Estate of Shirley M. Welchko
Otto C. Winzen Memorial Advised Fund of the Catholic Community Foundation
Mary Ellen and Bruce Wisnicki
GIFTS OF $1,000 TO $9,999
Anonymous (18)
Abbott Laboratories Employee Giving Campaign
Ellen and David A. Abramson
Kathleen S. and Jeffrey J. Abrash
Erwin Aderhold
Emily and Richard Alexander
Malik Ali
Victor M. Almeida
Ame Foundation, Inc.
American Parkinson Disease Association
Paul E. Andrews, Jr.
Ashland Foundation
Associated Electrics, Inc.
Isabel L. Bader
Dexter F. Baker
Ed Baker
James J. Baker
Dorothy M. Ball
Marcia V. and R. Franklin Balotti
Francine Barbe
John E. and Nellie J. Bastien Memorial Foundation
Ben Bauer
Claire Beekman
Patricia and Gardner Bemis Fund of The Minneapolis Foundation
Lisa D. Bertani
Blank Charitable Foundation, Inc.
Estate of Ada Bloom
Blue Cross and Blue Shield of Illinois
BMO Harris Bank
Estate of Elaine D. Bohanon
James Bosshart
Colonel Conrad Boterweg
Roxanne Brandt
Charles Bray
Jeffrey W. Breeser
Elizabeth and William F. Broll
Lewis D. Brounell Charitable Trust
David Browdy
William E. Brown
Linda G. Brown
Donald Burns
Miss Harryette Campbell
Mr. and Mrs. Michael Cannizzo
Gary O. Caris
Jeff Carson
Rolando Castellanos
CBS Radio
Tammi and Craig E. Chalfie
The Chalfont Foundation
Jill Chalsty
Ellen M. Chen
12
ANNUAL REPORT | 2013
Chernega Family Fund
Chicago Park District
Chinowth Charitable Lead Trust
Michael Chipman
Douglas R. Clovis
John P. Clulow Fund
Stephen Cohen
Judith E. Cohen
Toby Cohn
Community Health Charities of Florida
Community Health Charities Minnesota
Community Health Charities Of NY, Inc.
Gordon Crawford
Crawford Group Sotheby’s International Realty
Mary J. and Neil Crosby
Candace Cummings
Daluge Family Fund
Rodger L. and Gloria F. Daniels Charitable Foundation
The Daus Family Foundation
Davit Charitable Fund
Deer Lodge Centre
DeFreitas Family Charitable Gift Fund
Delouri Farms, Inc.
Charles H. Denny, III Charitable Trust
Joe Derosa
Designs by Pegasus, Inc.
Willa Ruth Deveny
Estate of Thelma L. De Vorss
Kathryn and Ernest Dibenedetto
Harriet Ford Dickenson Foundation
DLC Empire, LLC
Jeanette and Ron Doggett
Donate For A Cause, Inc.
Mark Duffy
Baxter and Deon Dunaway Trust
Sue Dupuis
Lois W. Dyk
Eagan Family Foundation, Inc.
Brian D. Eckhart
Linda Ellis
Dr. and Mrs. Robert and Janet Ettleman
Eveready Battery Company, Inc.
Helen and Charles Fedalen, Jr.
The Felterman Foundation
Estate of Robert Ferguson
Jane Feldman Fields
The Fisher Family Foundation
James A. Fletcher
Meg Fletcher
Dr. and Mrs. Bernard J. and Judith Fogel
Kathleen Fones
Rudolph and Hilda U. Forchheimer Foundation, Inc.
Margaret and David A. Fort
Anne Fortney Riddell
Estate of Evelyn Foust
Judy Freeman
Sarah Friar
Friends and Colleagues at Naval Reactors
Madelon and Roger R. Fross
Cynthia E. Fruchtman
Karen and Todd Fruen
Edward G. and Catherine M. Galante
Robert Gathman
GE Foundation
GE Healthcare
Cheryl and Richard K. Gelber
Margaret and John Gergich
Charles B. Gilbert Foundation, Inc.
Judith S. Gillies
James Gillis
The Gerald and Deanne Gitner Charitable Fund
Carol Glickenhaus
The GMK Family Fund
Richard A. Goldstein
Dr. Moses and Beatrice Goodman Fund
Nancy Gordon
Gary J. Gorton
May Gossett
Peter M. Gotsch
Elizabeth and Douglas T. Granat
Nancy and Kenneth Granat
Sulu and Gary Grant
Carole Gray
Garland and Agnes Taylor Gray Foundation
Lisa Griffin
Emily and Peter Gross
The Robert and Lynne Grossman Family Foundation
Vincent Gubin Giving Account
Joyce C. Gumm
Jack Guthrie
Violet Haelterman
Hahn Loeser and Parks LLP
Estate of Ruth F. Hall
Mr. and Mrs. Jack Harter
John A. Hash, Jr.
Hawaii Community Foundation
13 WHATEVER IT TAKES to Beat Parkinson’s®
Health Care Service Corporation
Melissa Hefner
Johannes H. Heister
Herbert Kay Parkinson Chapter
Estate of Robert P. Herzog
Marilyn and Donald Hibbert
John J. Hoffee
H. Randolph Holder
Roy L. Holt
Donald W. Homan
Estate of Jacqueline Hood
Nancy Hopkins Reilly
Vicki S. Horning
Paul Huston
IAP Worldwide Services
Interpublic Group
Denise and Barry R. Jackson
Robert F. Jeppesen
Fern I. Jewell
Holly and Dare Johnson
Burton and Rose Kahn Family Foundation
Sue Kamp
Kaplan Family Charitable Fund
Phyllis and Eli Katz
Keen, Inc.
Patricia Keenan
The Kerler Family Gift Fund
The Kinetics Foundation
Arnold S. Kling
James T. Knowles
Michael A. Kolodny
Savas Konstantinides
Estate of Roman Kowalski
John W. Kozyak and Barbara Silverman
Jackie Kropman
Kazuko and Ken-Ichi Kubota
Alfred P. Kuehlewind
John C. Kupetz
Esther Lam
Betty and Robert L. Lambert
Edgar R. Larsen
Margaret H. Larsen
Estate of Dessie L. Latham
Lawrence Livermore National Laboratory
Helen and Yum Cheung Lee
Rita A. Lehnert
William R. Leighton, Jr., MD
Leon Lemon
Francis and Gertrude Levett Foundation
Joyce and Sidney Levine
Juliana Li
Elizabeth Liacos
Life Care Centers of America, Inc.
The William and Nancy Lifland Fund
Trust of Marilyn L. Lindsay
John T. Loftus
James L. Long
Jane P. Long Fund
Darlene D. Lowe
Mr. and Mrs. Hugh Lowenstein
Lower Shore Parkinson’s Support Group
Jack MacAllister
Magnakron Corporation
Kristin Maguire
Allan Maier
Bernard Malberg, MD
John Jay Mann Foundation
Janet L. and David Mannheim
John F. Manning, Jr.
James A. Marino and Deborah Wright
Dana and Timothy E. Martorella
Thomas F. Masat
Mrs. Flora E. Mason
Asha P. and Pankah V. Master
Brooke Mastrorio
Joan S. Mathews
Nina Matis
Max Gruber Foundation
Lorie Mayer
Frances P. McCarey
Paul McCaul
Marsha and Robert E. McCleary
McClelland Family Foundation
Estate of Brooks McClure
Charles H. McCrea
James and Marie McCurdy Family Charitable Trust
The McCutcheon Foundation
Keri McGinness
Gustaf Westfeldt McIlhenny Family Foundation
Tim McKay
Angela and Paul McPhail
Charles H. McPherson, Sr.
Kay and George Meadors
Mr. and Mrs. John T. Mendel
Mid Cities Jewish Community Center
Wayne F. Miller
Miller Realty Family Philanthropic Fund
William D. Minaghan
Alan B. Mirken
Samuel Mohabir
Robert A. Moore
Judith M. Moss
Sherri Mowery
Timothy Murphy
Joan M. Naughton
Neuroscience Consultants, LLC
Pamela and Andrew Newton
Nickels and Dimes Incorporated
Estate of Lloyd O. Nielson
Robert Nolan
Ann-Mari Nordgren
Jean F. Norfleet
Noritake Co. Inc.
Noven Pharmaceuticals, Inc.
NPF Kingdor Bahamas
NPF North Florida
NPF South Dakota
Betty C. O’Connell
Michael G. O’Hare
OnMessage, Inc.
Lisa Orberg
Claire E. Orner
Estate of Sheila K. Orr
Marianne and Edward P. Petrosky
Leslie Peverall
Dr. Lincoln N. Pinsky
Robert J. Pilska
Larry Plocheck
John D. Pope
Fayga and Elliot Press Advised Fund
Lawrence Puckett
Rocco V. Pugliese
Quad Partners LLC
14
ANNUAL REPORT | 2013
Rand-Hager Family Charitable Fund
RCL Fund of The Greater Cincinnati Foundation
Sharron G. Reiss and Mike Miller
Mardell L. and Paul Remick
Cheryl Remmert
Richard Family Foundation, Inc.
Kirk B. Richardson
William F. Ringier
River Terminal Development Company
Roasters Deli Enterprises, Inc.
Teresa K. Rogers
Gerry and Robert R. Rosenberg
Ellen R. Rosenthal
The Rosie’s Charitable Fund
Maureen F. and Paul H. Roskoph Philanthropic Fund
Regina M. Rubenstein
Arthur Rubin
The Helena Rubinstein Philanthropic Fund
M. Jacki and Jim Rupert
David H. Rutchik
Thomas A. Ryan
Sackets Harbor Parkinson’s Action Committee
Hellyn L. Sarek
W. S. Scharff Family Foundation
Liz Schaub
Dr. and Mrs. Martin Schechter
Mr. and Mrs. Don Schneider
Schoenstadt Family Foundation
Blair W. Schultz
Gloria M. Scott
Elizabeth Scrivner
Hermina and Ronald Seiden
Honorable Patricia A. Seitz and Mr. Alan G. Greer
Heidi Shafranek
The Shanken Family Foundation
Ronald Sherman
Barbara and Michael Sherman
Anne N. Sherr
SHURE, Inc.
Virginia C. Simmons
Warren Single
Carl Singmaster
Paul G. Smith
Edward W. Smith, Jr. Foundation
Martin H. Snitzer
Carol and Nelson Soggs
The Solana At Cinco Ranch
Diane and Eric F. Sombers
Jim Soong
Paul Spandikow
Peggy and John H. Speaker
SPX Foundation
Sylvia M. Stafford
Simon Stanaway
Jerry N. Steinbaum
The Diane F. Stephens 2004 Charitable Trust
Jennifer Stettner
Audrey and John Stratman
Nancy Sully
Jeff Sultan
Estate of Vera Sunday
Franklin Surnamer
Svoboda, Collins Management LLC
James Syltie
Mark A. Tancil
Tate Enterprises
Troy W. Tegeler
Templeton Family Fund
Michael Thiel
The James and Patricia Tolley Charitable Gift Fund
Trukenbrod Family Foundation
Trustmark National Bank
Tubular Textile Machinery, Inc.
Betty and John W. Turner
Richard H. Tyler
United Way Of Central Maryland
University of Toledo
Marcello Vaccaro
Whitney and Russell Van Nuis
Trust of Patience A. Van Peenan
Thomas A. Verrill
Milton and Miriam Waldbaum Family Foundation
Yuchun Wang
Ira D. Warner
Steven D. Watts
The Weeden Foundation
Edward L. and Sheila Rabb Weidenfeld
Edward M. Weil
Estate of Norman Wexler
Dr. Jessica White and Mr. Christopher White
Michael Wilderman
John I. Williams, Jr.
Elizabeth R. Williams Trust
Robert F. Williams Trust
Anthony L. Wilner
Sherryl A. Woods
Phyllis I. Wormwood Fund
Polly P. Wright
Marilyn and Richard Wurzburger
Donald G. Wylin
Steve Yonker
Tim Zeller
Zissu Family Foundation
Lynn and Donald Zucker
Matthew Zucker
Eleanor and Leo Zucker Family Foundation
Zynga.org
15 WHATEVER IT TAKES to Beat Parkinson’s®
ANNUAL REPORT | 2013
Legacy society members are a select group of donors who have recognized the National Parkinson Foundation in their wills, trusts, estates and other planned gifts. Their generosity and forethought will help thousands
of Parkinson’s patients live better lives in the years to come. We would like to recognize the following Legacy Society members:
E. Richard and Meme Alhadeff
Leo M. Amoroso
Helen C. Avchin
Eugene M. Bane Charitable Trust
Wendy and A. Jeffrey Barash
Virginia C. Barrett
Ben Berkowitz
Leonard Bielski
Connie Bierlein
Deborah L. Boyer
Jean Bressler
Maida Burka
Tom Campbell
Lewis F. and Mildred E. Collier
Richard and Susan Comeau
Robert A. M. Coppenrath
Deloris T. Crews
Thomas Curtis
Burke and Rena Dambly
Esther Danielson
Mary Dexter
Mary Jean Elioff
James A. Enloe, Sr.
Alvin Gardner
Dr. Moses and Beatrice Goodman Fund
Genie B. Hollen
Ida Hutzler Charitable Trust
Edward Jervey
Rachel K. Johnson
Yetta Kaemmer
Barry Kaye
Heinrich E. Kolbel
Marjorie R. Korach
Hanes Lassiter
Dorothy Marienau
Erna Mayer
James & Marie McCurdy Family Charitable Trust
John McConeghy
Karen A. Moschetto
Anna Nalbandian
Kimrey and Beverly Newlin
Ruth Orfield
Margaret Paul
Anne Romanello
Kim and Susan Schrotenboer
Centre Unversaw
Miguel Vargas
Dorothy Vaughn
Michael L. & Antoinette H. Wilkerson
Allen Home Care
Megan Bateman
Bay Area Golf for Parkinson’s
Body In Balance Physical Therapy LLC
Madison Brown
Kevin Burkart
Amy Cantu
Suzanne Castor
Catch The Cure
Church Pension Group Services Corp.
Linda Cibula
Danielle Classey
Aaron Cohn
Kimberly Curtis-Scheer
Dixie Exterminating Company, Inc.
Berry Dunn
Seth Dunn
Flat Creek Baptist Church
Fountain City Wesleyan Church
Foutty & Foutty, LLP
Garden of Life LLC
Brice Holland
Norman Hunneyman
Allison Kallevig
Eric Kaplan
Keenan Antiques
John D. Kelly III Memorial Logan House 5K
Kids Play For Good LLC
Michelle Kravat
P.D. Love
Elliot Lowenthal
Lubeck Community Baptist Church
Kristen Maguire
Debbie and Alexandra Marsek
McKeen & Associates, P.C.
Mer Rouge Community Chest
Katie Meyers
Jim Morris
Sarah Nedde
Network For Good
New Haven Elementary School
Michael Pearson
Donna Peterson
Melissa Phillips
Premier Beverage
Pura Vida Bracelets
Heidi Rosenberg
Saint Matthew Catholic Church
Sarah Schramm
Donna Smith
John Swartz
Tiana Tallant
The Johnson Chamber of Commerce
Thurmont Middle School
Chris and Megan Tidmore
Upson-Lee High School
Vanderbilt University Medical Center
Virginia Farm Bureau Mutual Insurance
Washington Lake Combined Charities
White & Case, LLP
Willard Public Library
Matthew Wukovitz
Every year, our Team Hope members take the lead in creating unique ways to build awareness of Parkinson’s disease and raise funds for the National Parkinson Foundation.
The list below acknowledges the community fundraisers that took place between July 1, 2012 and June 30, 2013. We would like to extend our sincerest gratitude for their creativity, energy and commitment.
NATIONAL PARKINSON FOUNDATION
LEGACY SOCIETY
NATIONAL PARKINSON FOUNDATION
TEAM HOPE FUNDRAISERS
16
Interest Income
Special Events
Legacies and bequests
Private and Corporate
Legacies & Bequests
33% | $ 3,256,678
Private &Corporate
59% | $ 5,925,502
Special Events 1% | $ 103,520 Interest Income
& Realized Gains 7% | $ 665,129
CHAAPTER SERVICES
PUBLIC EDUCATION
RESEARCH
PATIENT CARE SERVICES
Patient Care Services
39% | $ 3,063,313
Research15% | $ 1,217,968
Public Education29% | $ 2,261,109
Chapter Services17% | $ 1,308,362
Interest income & Realized Gain
REVENUES BY CATEGORY | 2012-2013
Total Year-End Assets $ 17,106,602
Total Operating Expenses 100.0% | $ 10,691,552
Subtotal Mission-Related73.5% | $ 7,850,752
Fundraising 18.0% | $ 1,929,693
General & Administration8.5% | $ 911,107
Total Revenue$ 9,950,829
EXPENSES BY CATEGORY | 2012-2013
As illustrated below, the National Parkinson Foundation directed 74% of its 2012–2013 spending on mission-related activities and 26% on fundraising and management combined.
17
FINANCIAL HIGHLIGHTS
WHATEVER IT TAKES to Beat Parkinson’s®
An Independent Member of Baker Tilly International
MIAMI 1001 Brickell Bay Drive, 9th Floor, Miami FL 33131 | T 305 373 5500 F 305 373 0056 | www.mbafcpa.comFORT LAUDERDALE 301 East Las Olas Boulevard, 4th Floor, Fort Lauderdale, FL 33301 | T 954 760 9000 F 954 760 4465
INDEPENDENT AUDITOR’S REPORT
To the Board of Directors National Parkinson Foundation, Inc.
We have audited the accompanying financial statements of National Parkinson Foundation, Inc. (the “Foundation”), which comprise the statements of financial position as of June 30, 2013 and 2012, and the related statements of activities, functional expenses and cash flows for the years then ended, and the related notes to the financial statements.
Management’s Responsibility for the Financial Statements Management is responsible for the preparation and fair presentation of these financial statements in accordance with accounting principles generally accepted in the United States of America; this includes the design, implementation, and maintenance of internal control relevant to the preparation and fair presentation of financial statements that are free from material misstatement, whether due to fraud or error.
Auditor’s Responsibility Our responsibility is to express an opinion on these financial statements based on our audits. We conducted our audits in accordance with auditing standards generally accepted in the United States of America. Those standards require that we plan and perform the audit to obtain reasonable assurance about whether the financial statements are free from material misstatement.
An audit involves performing procedures to obtain audit evidence about the amounts and disclosures in the financial statements. The procedures selected depend on the auditor’s judgment, including the assessment of the risks of material misstatement of the financial statements, whether due to fraud or error. In making those risk assessments, the auditor considers internal control relevant to the entity’s preparation and fair presentation of the financial statements in order to design audit procedures that are appropriate in the circumstances, but not for the purpose of expressing an opinion on the effectiveness of the entity’s internal control. Accordingly, we express no such opinion. An audit also includes evaluating the appropriateness of accounting policies used and the reasonableness of significant accounting estimates made by management, as well as evaluating the overall presentation of the financial statements.
We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our audit opinion.
OpinionIn our opinion, the financial statements referred to above present fairly, in all material respects, the financial position of the Foundation as of June 30, 2013 and 2012, and the changes in its net assets and its cash flows for the years then ended in accordance with accounting principles generally accepted in the United States of America.
Ft. Lauderdale, Florida September 10, 2013
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ANNUAL REPORT | 2013
OFFICERS
John W. Kozyak, Esq.* Chairman of the Board
Bernard J. Fogel, MD* Past Chairman
Paul F. Oreffice* Chairman Emeritus
Andrew B. Albert* Vice Chairman
E. Richard Alhadeff, Esq.* Vice Chairman, Secretary
Martin L. Solomon* Treasurer
MEMBERS
Daniel Arty, CPA*
A. Jeffrey Barash, Esq.
J. Gordon Beckham, Jr.
Marshall R. Burack, Esq.
Carmen Y. Cartaya, Esq.*
Patricia de Stacy Harrison
Alessandro Di Rocco, MD
Harold P. Kravitz, Esq.*President Emeritus
Honorable Shelley J. Kravitz
Timothy Martorella
Gail Milhous
Roberto Palenzuela
Katharine F. Roberts
Alan M. Slewett
Enrique J. Sosa, PhD*
Senator Paul B. Steinberg, Esq.
Bruce Wisnicki*
EMERITUS BOARD
Edythe Kay-Marsa
Harold P. Kravitz, Esq.*President Emeritus
Jo Ann Pepper Oreffice
Robert H. Traurig, Esq.
* Member of the Executive Committee
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NPF BOARD OF DIRECTORS
The National Parkinson Foundation is privleged to have an outstanding and dedicated group of
volunteers who generously donate their time and talents by serving on the NPF Board of Directors.
Without their selfless efforts, the work of the foundation would not be possible.
Joyce A. OberdorfPresident and Chief Executive Officer
Michael S. Okun, MD National Medical Director
Ariel Y. Deutch, PhD Chair, Clinical & Scientific Advisory Board
Jill DavidsonVice President, Finance & Administration
Amy GrayVice President, Chapter Relations and Community Partnerships
Leilani PearlVice President, Marketing and Communications
Peter Schmidt, PhDVice President, Research and Professional Programs, Chief Information Officer
Darcy TaylorVice President, Constituent Relations
Jorge Zamudio, MDSenior Director, Patient Services
Robert G. ShawSenior Director, National Signature Events
20
SENIOR PROFESSIONALS
WHATEVER IT TAKES to Beat Parkinson’s®
ANNUAL REPORT | 2013
21 WHATEVER IT TAKES to Beat Parkinson’s®
ANNUAL REPORT | 2013
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PEOPLE WHO MOVE CHANGE THE WORLD.
Taking place in cities across the United States,
Moving Day® is your chance
to speak up about Parkinson’s disease and move others to take
action. It is a movement for change — towards more awareness,
more funding, and more understanding of a disease that affects
so many of our family and friends. Every move you make and
every penny you raise brings us closer to beating Parkinson’s!
Find a Moving Day® walk near you at www.npfmovingday.org.
JOIN MOVING DAY®, A WALK FOR PARKINSON’S!
22
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The Whatever It Takes to Beat Parkinson’s campaign is a national symbol
for living well with Parkinson’s; it highlights the many ways that you can
fight the disease. Show your support for NPF and learn how to beat
Parkinson’s at the same time with our new line of custom merchandise.
Learn more about the campaign at www.parkinson.org/whateverittakes.
SHOP ONLINE AT WWW.PARKINSON.ORG/STORE
ENGAGE with the Parkinson’s community and the National Parkinson Foundation on social media.
200 S.E. First Street, Suite 800, Miami, FL 33131
800.4PD.INFO (473-4636)
www.parkinson.org