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what’s in a name?
cavernoma
cavernous angioma
cavernous haemangioma
cerebral cavernous malformation
CCM
a cluster of abnormal blood vessels in the brain or spinal cord
discovery of cavernoma
Magnetic Resonance Imaging Scan
frequency
1 in 600 affected asymptomatically
1 in 400,000 affected symptomatically
asymptomatic discovery as a result of MRI testing for other conditions
symptomatic discovery as a result of haemorrhages, seizures,
headaches, imbalance, slurred speech and double vision
Genetic Alliance UK Facilitating Networks
Project and CA UK
Guidelines for the management of cerebral cavernous malformations
presented by
Dr Rustam Al-Shahi Salman
The 7th Annual Pathobiology of
CCM Scientific Workshop Angioma Alliance
Genetic Alliance UK
Cavernoma Alliance UK
Dolce Chantilly Hotel
Friday November 18th 2011
should CCM be managed that has caused only one seizure?
Should CCM be managed in mothers before, during and
after birth?
this research would be impossible without the help of
Genetic Alliance UK, Facilitating Networks
Krystle Kontoh
Information Booklets & Leaflet
Symptomatic Cavernoma
Incidental Cavernoma
Genetics of Cavernoma Information Leaflet
Thank You!