Who is AIHREA?aihrea.org/pdf/AIHREA2016AnnualReport.pdf · 2017-04-21 · style dance demonstration. We would like to thank Orlando Begay, Sara Bointy, Shelby Bointy, Steve Byington,

The American Indian HealthResearch & Education Alliance(AIHREA) is an alliance of organi-zations whose mission is to partnerand collaborate with AmericanIndian peoples, Nations, communi-ties, and organizations to improvethe physical, mental, emotional,and spiritual wellbeing of AmericanIndians throughout the UnitedStates through quality participatoryresearch and education. The threeprimary organizations involved areAIHREA, Inc. (the 501(c)3) not-for-profit organization associatedwith AIHREA), the Center forAmerican Indian CommunityHealth (CAICH) at the Universityof Kansas Medical Center, and theCenter for American IndianStudies (CAIS) at Johnson CountyCommunity College. We partnerand collaborate with numerousother organizations, conductingresearch with and providing servic-es to the American Indian commu-nity in the Heartland and aroundthe country. We use community-based participatory research(CBPR) in all of our studies.CBPR is a type of research thatinvolves community members in allparts of the research process.Almost 65% of our team membersare American Indians from manydifferent Nations across the UnitedStates. We are among the largestAmerican Indian research teams inthe country. In addition to healthand research, we value educationand want to increase the number ofAmerican Indians entering thehealth professions and conductinghealth research. To meet this goal,we have established an academicpipeline to improve the educational

AIHREA Collaborators:

attainment of all American Indians.We have scholarships available tohelp!

In Fall 2016, we started publish-ing a new electronic monthlynewsletter designed to keep every-one up-to-date on our latest news,events, and research. They are

available on our website. If youwant to receive our e-newsletter viaemail, please contact Jason Hale [email protected]. Do you have anevent coming up? Let us know sowe can tell people about it in ournewsletter!

Who is AIHREA?

American Indian Council, Inc. Blackfeet Community College Cheyenne River Sioux Tribe

Cheyenne River Sioux Tribe Title 1 Program Children’s Mercy Allergy and Immunology Research Lab

Children's Mercy Hospital Center for Environmental Health First Nations Student Association (University of Kansas)

Haskell Indian Nations University Iowa Tribe of Kansas and Nebraska

Kansas City Indian Center Kickapoo Diabetes Prevention Center

Kickapoo Head Start Kickapoo Health and Wellness Program

Kickapoo Tribe in Kansas Nakota Designs, Inc.

Notah Begay III FoundationPrairie Band Potawatomi Boys and Girls Club

Prairie Band Potawatomi Early Childhood Education Center Prairie Band Potawatomi Nation

Sac & Fox Nation of Missouri in Kansas and Nebraska Salish Kootenai College

Shakopee Mdewakanton Sioux Community

Cover Art: This beautiful photo of the storm clouds engulfing the Eagle Butte Powwow grounds during the AIHREAWopila Wacipi was taken by Matt Kleinmann.

1AMERICAN INDIAN HEALTH RESEARCH & EDUCATION ALLIANCE - Annual Report

AIHREA, Inc., is focused onproviding scholarship opportunitiesto American Indian students. Wehave been providing scholarships tocollege and graduate students whowish to enter careers in health andeducation for several years. AnnaCarson received an AIHREA schol-arship to attend classes at JCCCfor the Fall 2016 semester. Anna isinterested in the field ofAnthropology and working withIndigenous communities.

AIHREA, Inc., also providesscholarships to support young stu-dents at the University of KansasLanguage Acquisition Program(LAP) pre-school. LAP is alicensed preschool program thatuses the Early Literacy in Action:The Language Focused Curriculumfor Preschool, which fosters languageand early literacy skills throughnatural class activities and incorpo-rates instructional strategies thatare culturally-tailored to diverselearners. In 2016, we funded oursecond recipient of this scholarship,Carson Hagen, son of Colby andTyler Hagen. Carson is CrowCreek Sioux and Chickasaw. He iscurrently in his second semester atLAP and will start kindergarten inFall 2017. We are proud to saythat our scholarship was able tocover his entire tuition for Fall2016 and Spring 2017, giving himan excellent head start to hisschooling!

This year we are pleased toannounce the creation of the JCCCCenter for American IndianStudies Scholars program. Thisscholarship will fund one studentattending Johnson CountyCommunity College who aspires towork with American Indian or

AIHREA, INC., UPDATES

Top left: Carson Hagen, AIHREA scholarship recipient. Bottom left: Anna Carson,AIHREA scholarship recipient. Right: Natives with Skillz softball team winners.

Alaska Native peoples with 100%tuition and books for two yearsand a part time job for up to 20hours a week. If you are interestedin any of our scholarship programs,please visit www.aihrea.org!

This year we were able to spon-sor an All-Indian Softball team.The sponsorship helped with teamt-shirts and to cover tournamentfees. Based out of Lawrence, KS,the Natives with Skillz Softballteams traveled to Winnebago, NE,and Tahlequah, OK, to compete intwo tournaments. This year at theWinnebago tournament the men’s

team fought hard after losing theirfirst game and ended up in placing3rd overall. The co-ed team wentback and defended their title fromlast year and won the tournamentwith an undefeated record for the2nd year in a row. This year themen’s team traveled to Oklahomaand played in the CherokeeHoliday Tournament in Tahlequah.They finished 6th out of 22 teamsin a really tough tournament. We hope to be able to sponsormore teams like this in the futureto help improve the health ofNative people!

On December 10th we held ourfirst American Indian Culture Dayand Art Extravaganza at JohnsonCounty Community College. Theone-day event was designed to edu-cate the non-Native public aboutAmerican Indian cultures of thepast and present. We showed theaward winning, JCCC produced,film, Naz Bah Ei Bijei: The Heartof a Warrior, about the life ofNavajo Code Talker Samuel F.Sandoval.

We had several guests and staffmembers present lectures on a varietyof topics, including:

• African Americans and AmericanIndians: Dr. Crystal Lumpkins

• American Indian Women: Dr. Tai Edwards

• Contemporary Lakota Art: Isaiah Stewart

• Dakota Access Pipeline: Shelley Bointy

• The Paiute of California: Charley Lewis

• Lac Du Flambeau Culture: Steve Valliere

• Lakota Sweat Lodge: Ryan Goeckner

• Native Identity in Mexico: Dr. Brent Metz

• Powwows: Landri James• The Prairie Band Potawatomi:

Jason Hale• Native American Church:

Landri James• San Ildefonso Pottery:

Holly Milkowart• Star Quilts: Jordyn Gunville

Throughout the day we hadAmerican Indian arts and craftsvendors. Our annual Silent Auctionitems were set up along the perime-

ter of the main room for visitors todo some holiday shopping other-wise unavailable in the area.AIHREA staff members manned achildren’s craft table to assist themin making stockings and wrappedmedicine wheels.

There were also several culturaldemonstrations at the event. Wewere pleased to have Little Soldierjoin us as our drum for a powwowstyle dance demonstration. Wewould like to thank Orlando Begay,Sara Bointy, Shelby Bointy, SteveByington, JorJa Gunville, Landri

James, Canku OneStar, BJ Tapedo,and Brennah Wahweotten fordemonstrating their specific dancestyles. Many thanks to the HaskellHandgame Club for coming todemonstrate handgames to theaudience. Audience members wereable to join in as the game pro-gressed. Later in the day visitorswere able to welcome in the holidayseason with a visit from AmericanIndian Santa (Ed Smith). They werealso able to get their picture takenwith Santa in front of a tipi! Manythanks to all of our participants!

2 Annual Report - AMERICAN INDIAN HEALTH RESEARCH & EDUCATION ALLIANCE

The First Annual American Indian CultureDay and Art Extravaganza!

Top: Ed Smith, aka American Indian Santa, poses in front of a Christmastipi. Bottom left: Spectators from the public participate in a demonstrationhandgame. Botom right: Dr. Brent Metz of the University of KansasDepartment of Anthropology presents about Native identity in Mexico.


During a large needs assessmentwe conducted with urban and reser-vation communities in Kansas andMissouri, community membersidentified the need for culturallytailored cancer educational materi-als for American Indians. We decid-ed to begin with information aboutbreast cancer and drafted a series ofbrochures. We presented the draftsto community members at culturalevents for feedback. The brochure

content and pictures were edited byour current Susan G. Komen forthe Cure Master of Public Healthscholars to provide the most up-to-date information and pictures. Ourbreast cancer education brochuresinclude 5 topics: breast cancer facts,testing for breast cancer, what to doif you receive a positive test, malebreast cancer, and what to do whensomeone you love has breast cancer.Our next series focuses on similar

topics for colon cancer. We hopeto continue this new series, HealingOur Nations through Education, inthe coming years with more cancer-related topics, as well as otherhealth outcomes. If you are inter-ested in seeing our new brochures,check them out at our annual OurNations’ Energies Health andWellness Powwow or other events!

Healing Our Nations through Education: Our New Cancer Education Brochure Series

The AIHREA InternshipProgram had another great year! We welcomed three interns duringthe spring semester and ten internsover the summer.

Spring Interns• Klorissa Kavan – University of

Missouri Kansas City • Kyra Zimmer – University of

Missouri Kansas City • Tori Couts – University of Kansas

Summer Interns • Angela Sas - Johnson County

Community College • Alexandria Knauss - Johnson

County Community College• Anna Carson - Kansas State

University • Aspen Bell, Eastern Shoshone and

Northern Arapaho – University ofKansas

• Cate Heil - University of KansasMedical Center

• Christiana Haswood, Navajo –Arizona State University

• Clara Martin – Boston University • Dasy Resendiz - University of

Kansas • Jordan Shephard - University of

Kansas • Oliver Doerr - University of

Missouri Kansas City

AIHREA interns were paired witha mentor who guided them on severalresearch, education, and service proj-ects throughout the 8-week summerprogram. Interns also developedhealthy relationship, nutrition, socialmedia bullying, and first aid presen-tations. These presentations as wellas college prep educational sessionswere provided for Native communi-ties targeting youth.

Interns attended lectures, engagedin professional development work-shops, and received instruction andguidance from KUMC and JCCCfaculty and staff in the academicdisciplines of American IndianStudies, anthropology, medicine,public health, and statistics. Theyalso received instruction on con-ducting ethical academic researchwith Native communities and howto develop scholarly presentationsand posters. Interns were exposedto the cultural diversity of severaltribal Nations and spent a signifi-cant amount of time in the com-munity. The Cheyenne River Sioux

Tribe in South Dakota, the PrairieBand Potawatomi Nation andKickapoo Tribe in Kansas, as well asthe Native community in Lawrencewelcomed interns and providedvaluable experiences within theircommunities.

The fourth year of communityservice, outreach, and research withthe Cheyenne River Sioux Tribe(CRST) in Eagle Butte, SouthDakota, began with a visit to theBadlands National Park. Internsand staff spent the week of June 26– July 1 providing health educationsessions, cultural education, art,and community service and


ANOTHER SUCCESSFUL YEAR FOR THE AIHREA INTERNSHIP

AIHREA interns learn about the Prairie Band Potawatomi Nation LanguageProgram at the Prairie Band Potawatomi Boys & Girls Club.


research with the CRST communi-ty and the Title I SummerRecreation Program. A new activi-ty this year was a basketball clinicled by former KU Basketball playerand now AIHREA affiliated teammember Matt Kleinmann, a mem-ber of the KU 2008 NationalChampionship team. AIHREA alsohosted our first CommunityResearch Forum Powwow with theCRST (the Wopila Wacipi) at thetraditional powwow grounds in

Eagle Butte. The interns played asignificant role throughout theweek and gained experiences to lasta lifetime.

The AIHREA Olympics returnedthis year. AIHREA team membersand interns spent the day compet-ing in a variety of athletic, trivia,and team building events at theAmbler Student Recreation FitnessCenter on the KU LawrenceCampus. The summer internshipconcluded with intern poster pre-

sentations. The event allowed family,friends, and KUMC and JCCC fac-ulty and staff members to learnabout their experiences and the workthey completed over the summer.

Top left: AIHREA interns Dasy Resendiz and Clara Martin provide healthy smoothies to a participant at ourCommunity Research Forum Powwow in Eagle Butte, SD. Top right: AIHREA interns Klorissa Kavan and KyraZimmer assist with a health fair for the Kickapoo Tribe in Kansas. Bottom left: AIHREA intern Christina Haswoodpresents her poster on the All Nations Snuff Out Smokeless program. Bottom right: AIHREA summer interns 2016 atthe Badlands National Park in South Dakota (Front, L-R: Alexandria Knauss, Angela Sas, Anna Carson, DasyResendiz; Back, L-R: Aspen Bell, Clara Martin, Christina Haswood, Oliver Doerr, Jordan Shephard, and Cate Heil).

The AIHREA O.N.E. (OurNations’ Energies) 10th AnnualPowwow was a huge success! Wehad a record number of singers anddancers from all over the UnitedStates and Canada. This yearAIHREA added split adult cate-gories (18-34 years and 35-54 years)

to the dance contest and a singingcontest. We also introduced a healthcontest to our screening clinic thatawarded 4 places to the adult divi-sion and 4 places to the youth divi-sion. To earn points, participantshad to get health screenings done,such as blood glucose and vision,

and had to answer health relatedquestions. This new part of ourevent was a huge success, with manyparticipants including dancers,singers, and spectators! We plan tocontinue this contest annually.


OUR NATIONS’ ENERGIES Powwow

HEAD STAFF:

Host Northern Drum:Youngbear – NorthDakota

Host Southern Drum: Wild Band of Comanches– Oklahoma

Head Dancers: Trae Little Sky – SouthDakota, and Laryn Oakes– Saskatchewan

MC’s: Lawrence Baker –North Dakota, and IsaiahStewart – Kansas

Arena Directors: Joe Bointy – Kansas, andChago Hale – Kansas

Head Dance Judges:Royce Kingbird –Minnesota, and Dr. ToniTsatoke-Mule – Oklahoma

AIHREA Princess: Paan Pai Roberts –Oklahoma

AIHREA Brave: HaGa Pelkey – Kansas

Dance Contest Winners:

Women’s Golden Age1st – Irene Oakes2nd – Denise OneStar3rd – Anna MaePushetonequa4th – Sharon Roberts

Men’s Golden Age1st – Jonathon Windy Boy2nd – Wayne Pushetonequa3rd – Joe Lafferty4th – Gary Richardson

Senior Women’s Buckskin1st – Danita Goodwill2nd – Orrie Little Sky3rd – Tahnee GrowingThunder4th – Denise Haury

Senior Women’s Cloth1st – Sandy Harris2nd – Dyanni Hamilton3rd – Felicia Littlecreek4th – Niki Baker

Senior Women’s Jingle1st – Grace Pushetonequa2nd – Rebecca Roberts3rd – Willow Abrahamson4th – Debbie Tsosie

Senior Women’s FancyShawl1st – Nahmi Lasley2nd – Crystal Cleveland3rd – Helena Tsosie4th – Leah Kingbird

Senior Men’s Traditional1st – BJ Haury2nd – Matt Littlecreek3rd – John Wright4th – Darrell Frank

Senior Men’s SouthernStraight1st – Everett Moore2nd – Juaquin Hamilton3rd – Redsky Wahpepah

Senior Men’s Grass1st – Lakota Clairmont2nd – George GrowingThunder3rd – Haga Cleveland4th – James Day

Senior Men’s Fancy1st – Michael Roberts2nd – Wayne Silas, Jr3rd – JR Lonelodge4th – Tyler Lasley

Senior Men’s Chicken1st – Marty Thurman2nd – CC Whitewolf3rd – Brady Tapedo4th – Jayme Bad Warrior

Jr. Women’s Buckskin1st – Alva Fiddler2nd – Anna Spottedwolf3rd – Randi Bird4th – Wakeah Jhane

Jr. Women’s Cloth1st – Amanda Harris2nd – Brittany Pelkey3rd – ElizabethNevaquaya4th – Sophia Thurman

Jr. Women’s Jingle 1st – Mallary Oakes2nd – Celine Favel3rd – Rebekah TateNevaquaya4th – Allison Powless

Jr. Women’s Fancy1st – Keya Clairmont2nd – Amber Cleveland3rd – Jocy Bird4th – Bobbi LynnFrederick

Jr. Men’s Traditional1st – Sidrick Baker, Jr.2nd – Wendall Powless3rd – John Richards4th – Reuban CrowFeather, Jr.


Jr. Men’s SouthernStraight1st – Chadrick Toehay2nd – George Miller

Jr. Men’s Grass1st – John Taken Alive2nd – Mason Kingbird3rd – Freddy Gipp4th – Slik Nez

Jr. Men’s Fancy1st – Darrell Hill2nd – Canku One Star3rd – Mitchell Baker4th – Terrance Cleveland

Jr. Men’s Chicken1st – Nelson Baker2nd – Ronnie Harris, III3rd – Orlando Begay4th – Kealan Hamilton

Girls’ Fancy and Jingle1st – Morning StarRoberts2nd – Micayla Silas3rd – Emma Kingbird4th – LenorePushetonequa

Girls’ Buckskin and Cloth1st – Wambli Little Sky2nd – Sparrow Little Sky3rd – Tylyn Thurman4th – Nichole Nordwall

Boys’ Fancy and Grass1st – Wanbli Clairmont2nd – Tyler Thurman3rd – JT Largo4th – Wakiyan Fiddler

Boys’ Traditional and Straight1st – Triston Lasley2nd – Jeffrey Lightfoot3rd – John HenryCummins4th – Kealan Hamilton

Drum Contest Winners1st – The Boyz2nd – Meskwaki Nation3rd – Haystack

Health Contest Winners

Adults1st – Grace Pushetonequa2nd – Mia Spoonhunter3rd – WaynePushetonequa4th – Trini Bird Necklace

Youth1st – Brooklyn Kingbird2nd – Will Hootan3rd – Kyle Miller4th – John Cummins

The Boyz, Drum Contest 1st place


OUR NATIONS’ ENERGIES Powwow

Wakeah Jhane, Jr. Women’s Buckskin, 4th place


Keya Clairmont, Jr. Women’s Fancy 1st place

Our fall powwow has a newname! In 2016, we introduced our newly named, EtkwagekMawttéshnowén Powwow, whichmeans Fall Gathering in thePotawatomi language. We decidedto use a Potawatomi name for the

event because the Prairie BandPotawatomi Nation has been ourhost for the event for the past twoyears and we plan to continue havingit on their lands. We are very grate-ful to them for all of their supportover the years. This year’s event was

the best ever, with more dancersand spectators than ever before! We are happy to provide this con-test powwow while telling peopleabout us and what we do.


Etkwagek Mawttéshnowén Powwow

HEAD STAFF:

Host Drum: Little Soldier – Kansas

Head Dancers:Paan Pai Roberts –Oklahoma, and MattSheka – Arizona

MC: Jason Hale – Kansas Arena Director: CharleyLewis – California

Dance Contest Winners

Women’s Golden Age1st – Karen Wahwasuck2nd – Jan Morris3rd – Angie Wahweotten

Men’s Golden Age 1st – Tim Robinson Sr.2nd – Tony Wahweotten 3rd – Chuck Bailey

Women’s Traditional 1st – Jamie Jon Whiteshirt

Women’s Jingle 1st – Rebecca Roberts2nd – Shay Crowfeather

Women’s Fancy1st – Bobbi LynnFrederick 2nd – BrennahWahweotten3rd – Alicia Scholfield

Men’s Traditional1st – Louis Antoine Sr. 2nd – Trilby Wahwasuck 3rd – Anthony Hale

Men’s Grass1st – Freddy Gipp 2nd – Orlando Begay3rd – Justis Wolfleader

Men’s Fancy1st – Canku OneStar

Girls’ Buckskin and Cloth1st – Alicia Robinson 2nd – Brenna Johnson 3rd – Tannis Simon

Girls’ Jingle and Fancy1st – Morning StarRoberts2nd – Shanokwe Price3rd – Sara Bointy

Boys’ Traditional andStraight 1st – Keesis Potts

Boys’ Grass and Fancy 1st – Knowee Potts 2nd – NahconbeWahwassuck 3rd – Lucas Crow Eagle

Hand Drum Winners1st – Anthony Hale 2nd – Trey Dupris3rd – Wesley Hale

Jeffrey Lightfoot, Boys Traditional/Straight 2nd Place


Tyler Thurman, Boys’ Grass/Fancy, 2nd place


RESEARCH RESULTS

Tobacco Health LiteracyAmerican Indians have the high-

est rate of commercial tobacco usein the US. Following our success-ful smoking cessation program, AllNations Breath of Life, we wantedto explore what American Indiancommunity members know aboutcommercial tobacco and the healtheffects of tobacco use. Health liter-acy is how well a person under-stands and uses health information.It includes how well someone canunderstand prose writing, numbers,and charts and graphs. We decidedto examine tobacco health literacyrather than just knowledge. We

began by creating a long form of atobacco health literacy survey, mak-ing sure to include questions relat-ed to health risks associated withtobacco use, addiction, cessation,environmental tobacco smoke, andcost. Team members created ques-tions and then had communitymembers and researchers take alook through to see if the questionswere appropriate and if they madesense. Based on this feedback, weshortened the survey to 25 ques-tions. We had 250 communitymembers take the survey and thenwe analyzed the data to see whichquestions were the best measure of

tobacco health literacy. Questionsthat were considered “good” werethose that not everyone got rightand not everyone got wrong. Thisallows us to have a good measure-ment of the range of tobacco healthliteracy. Using our analysis, wewere able to shorten the survey to12 questions. We gave this newsurvey to 120 community membersand are currently completing theanalysis on this new short formtobacco health literacy survey. Thissurvey will allow us to better tailoreducational components of ourtobacco related programs to whatour people know and don’t know.

Some examples of questions thatmade it into our short form tobaccohealth literacy survey. Do you know

the answers? Ask one of our team members at our next event

to find out!

Understanding Beliefs aboutAlcohol and Drug Use

From 2010 to 2011, we recruited364 American Indian participantsfrom Kansas and surrounding areasfor a short 20-minute survey. Thesurvey included questions about theparticipant’s general health, health-care, tobacco use, and diabetes self-management behaviors. The surveyalso asked questions about the par-ticipant’s views on alcohol and druguse among Native teenagers.Participants were asked how realis-tic it was for a teenager to: 1) notsmoke cigarettes, 2) not drink untilage 21, 3) never try marijuana, 4)never try illegal drugs, and 5) neveruse prescription drugs to get high.Results for these questions areshown in the table. The partici-pants were also asked to estimatethe number of Native teens and thenumber of Native people “out of10” who: 1) currently smoke ciga-rettes, 2) have ever tried marijuana,3) have ever tried illegal drugs, and4) have ever used prescription drugsto get high. The responses to thesequestions are shown in the graph.

Currently, we are recruiting par-ticipants for a more extensive sur-vey on mental health and drugaddictions. With this survey wehope to learn more about howthese topics affect American Indiancommunities and how we can bet-ter address them. If you would likemore information about these sur-veys or would be interested in par-ticipating please contact CharleyLewis at [email protected] or913-945-7821.



RESEARCH RESULTS (continued)

Food Security in NativeCommunities

Food security means people haveaccess at all times to enough foodfor an active and healthy life. A lackof food security or food insecuritycan negatively impact the health ofchildren, adolescents, and adults.Some evidence suggests that chil-dren are more likely to suffer fromchronic illnesses, acute illness, psy-chological problems and distress,when they come from a food inse-cure home (limited access to nutri-tionally adequate, culturally accept-able, safe food). Food insecuritymay contribute to overeating andobesity.

There is little research on foodsecurity in American Indian com-munities in the Midwest. We want-ed to learn about food security innearby communities and surveyed364 people to do so. Results fromthe survey grouped people into verylow food security, low food security,and high food security based onpoints from a food security scale.More participants with very lowfood security rated their generalhealth to be fair or poor (37.5%)compared to those participants whohad higher food security (23.68%).Participants with very low foodsecurity tended to have more chron-ic conditions diagnosed by their

health care provider, includingarthritis, cancer, depression, emphy-sema, and high cholesterol. Thetwo things that predicted low foodsecurity more than anything elsewere they type of insurance a personhad and the type of primary careprovider. People who have noinsurance or use the Indian HealthService for health care were morelikely to have low food security.People who have a physician provid-ing their primary care rather than anurse practitioner, physician’s assis-tant, or other type of provider weremore likely to have high food secu-rity. Answers to our food securityquestions by gender are in the table.

What Do Tribal College StudentsThink about Their Body Weight?

The rates of obesity in the UnitedStates have continued to increase.Obesity is a risk factor for heartdisease and type 2 diabetes.American Indians are 50% morelikely to be obese than non-Hispanic Whites. To better under-stand this striking disparity, wegathered information from tribalcollege students about what theythink about body weight and theirhealth behaviors related to weight.We surveyed 1,256 tribal collegestudents. We had three goals: 1) tounderstand the fruit/vegetableintake and what students did to bephysically active; 2) to understandwhat students believed their bodyweight to be and how accurate theirbelief was, and 3) to identify whatmight cause students to perceivetheir own weight as either higher orlower than their actual body weight.

We found that 68% of the tribalcollege students who completed oursurvey self-reported their BodyMass Index (BMI-a ratio of heightand weight) as obese or overweight.We also found that most of the par-ticipants did not eat the recom-mended number of servings of fruitand vegetables each day and werenot physically active for the recom-mended minutes per day. The bargraph shows the percent of partici-pants who did not meet the recom-mended fruit/vegetable intake orrecommended physical activity levels.

More research will need to beconducted to see how these find-ings compare to American Indiansin other communities. We plan towork with the University of Kansas

Medical Center Dietetics pro-gram to develop a positivebody image interventionfocused on holistic nutrition.Holistic nutrition includesconsciously eating healthyfoods that promote physicaland mental health, while supporting a strong immunesystem.



ONGOING RESEARCH

Understanding Breast CancerHealth Literacy

American Indian women tend tohave lower rates of getting mammo-grams. Because of this, many timesthey get diagnosed with breast can-cer at later stages of the diseasewhich are much more difficult totreat and more likely to lead todeath. We want more Nativewomen to get regular mammogramsand get diagnosed at earlier stages.

Health literacy or how a personunderstands and uses health infor-mation affects the health knowledgea person has, and how well he or sheis able to manage disease or get test-ed for a disease like breast cancer.We are trying to understand breastcancer health literacy levels ofAmerican Indian community mem-bers to see if there are things we cando to improve breast cancer healthliteracy and show women the impor-tance of getting regular mammo-grams. To do this, we are developinga survey that will measure breastcancer health literacy levels.

We have designed an initial versionof the survey with 20 questionsrelated to things that increase yourrisk for breast cancer, statistics aboutthe number of Native women diag-nosed with or dying from breastcancer, warning signs, and tests forbreast cancer. Examples of some ofthe questions in our survey are inthe table. We have had 200 partici-

pants answer the survey and are currently analyzing the data. Whenwe finish our analysis, we will shortenthe survey to between 6 and 10questions. We plan to use the surveyto determine breast cancer health lit-eracy levels in different communitiesso that we can develop appropriateprograms for education and breastcancer testing.

A community member takes our survey at one of our powwows.


Addiction in Native CommunitiesThere is little information avail-

able on American Indians regardingmental health and addiction dispari-ties and very little information onwhy this population has poorer out-comes compared to the general pop-ulation. In 2016, we started recruit-ing for a new cross-sectional surveyto fill this gap in information andallow us to develop programs tocombat these disparities. We will besurveying 1,000 American Indianadults over the course of this studyto get an idea about beliefs andbehaviors surrounding addiction andother mental health issues.

The survey is made up of a varietyof questions. In addition to stan-dard demographic information, thesurvey asks about mental health andsocial support. The survey also dealswith perceptions of illegal drugs andprescription drug use without a pre-

scription, and participant’s pastand/or current use of illegal andnon-prescribed drugs.

Any American Indian over the ageof 18 is eligible to participate in thissurvey. If you are interested in par-

ticipating or would like us to recruitat your event, please email the proj-ect manager, Ryan Goeckner, [email protected].

A community member takes our survey at one of our events.


ONGOING RESEARCH (continued)

Learning about Maternal & ChildHealth among Native People

AIHREA has started a newresearch focus in Maternal andChild Health. The overall goal ofthis research is to understand thepregnancy and birth experiences of American Indian women in thearea, as well as early infant health.This will be done by a cross-sec-tional survey completed by 200American Indian women who havegiven birth.

The survey will be administered at community events we host andshould take 30 minutes to com-plete. The survey is made up of avariety of questions, including stan-dard demographic information,questions to understand healthknowledge and behaviors duringpregnancy, health knowledge andbehaviors surrounding birth andthe immediate post-partum period,and basic health indicators ofAmerican Indian infants during thefirst year of life.

Any American Indian womanover the age of 18 who has had onecomplete birth cycle is eligible toparticipate in this survey. If you areinterested in participating or wouldlike us to recruit at your event,please email the project manager,Jordyn Gunville, [email protected].

Why welcome one new addition to AIHREA when you can welcome two?Introducing Cayden Star Man Lewis, son of AIHREA team members CharleyLewis and Aspen Bell.

The picture of Maternal and Child Health, big sister JorJa sits in Mom Jordyn’slap while welcoming baby Jarvis! Congratulations to AIHREA team memberJordyn Gunville on the newest addition to her family!


Reaching More Smokers with AllNations Breath of Life

You may be familiar with our suc-cessful quit smoking program, AllNations Breath of Life or ANBL.We are trying to bring this programto more people and have decided tocreate an individual version of theprogram that can be completed overthe telephone!

Program components include:

• American Indian facilitators • Culturally tailored educational

materials • Incentives • 12 individual phone sessions• 2 in-person sessions • Motivational text messaging

In order to participate, you must:

• Self-identify as American Indian • Age 18 or older• Smoke at least 1 cigarette per day• Be willing to participate in phone

calls for 6 months

If you are interested in quittingsmoking and would like to partici-pate in this program, please contactJason Hale at [email protected].

Telephone ANBL facilitator Aspen Bell is ready to take your call!


WHERE DOES THE MONEY GO?

We are often asked where all ofAIHREA’s grant and donationmoney goes and we do not want tohide this information. There areseveral categories of funding:

· Personnel Salaries – faculty andstaff (including fringe benefits)

· Consultant Costs – honorariumsand travel expenses forCommunity Advisory Boardmembers and scientific consult-ants

· Subcontracts – money that goesoutside of KUMC

· Travel – conferences (registrationfees & travel expenses), commu-nity events, health screeningevents, travel required for researchprojects (rental vehicles, mileage)

· Supplies – research project sup-plies or health screening items,office supplies, postage, comput-ers, AV equipment

· Scholarships – books, tuition,educational training, software

· Community Grants – grants tocommunity or student organiza-tions

· Community Events – powwows,booth rental, youth events, com-munity give-a-ways

· Other – building rentals forevents, postage, website fees, etc.

· Participant Incentives – gift cards,research participant payments

· Research Materials – quit smokingmedicine, health screening equip-ment

· Overhead Costs – administrationcost, lights, phone, copier, etc.

The majority of our grant dollarsgo to KUMC through theirResearch Institute, who managesthe money. The two graphs on thispage represent the percent of our

total $1,604,349 that goes to eachcategory. The first graph shows howour total dollars are spent, whichincludes 18% overhead. This 18%goes directly to KUMC for over-head costs; 90% of these dollars arenever seen by AIHREA. The other10% of them are used for thingslike phone bills, Internet connec-

tions, photocopy machine rental,etc., by AIHREA. These overheadcosts that go directly to institutionsare typical of most grants, includ-ing all grants funded by theNational Institutes of Health, ourprimary funder. The second graphshows our budget after the over-head and how we spend the money.


LIST OF PUBLICATIONS

Publications

Choi, WS, Nazir, N, Pacheco, CM, Filippi,MK, Pacheco, J, White Bull, J, Nance, C,Faseru, B, Greiner, KA, Daley, CM (2016)Recruitment and baseline characteristics ofAmerican Indian tribal college students par-ticipating in a tribal college tobacco andbehavior survey. Nicotine and TobaccoResearch 18(6):1488-93, ePub ahead ofprint, 5 October 2015.

Choi, WS, Beebe, LA, Nazir, N, Kaur, B,Hopkins, M, Talawyma, M, Shireman, TI,Yeh, HW, Greiner, KA, Daley, CM (2016)All Nations Breath of Life: A randomizedtrial of smoking cessation for AmericanIndians. American Journal of PreventiveMedicine, ePub ahead of print, 16 July2016.

Filippi, MK, Perdue, D, Hester, CM, Cully,A, Cully, L, Greiner, KA, Daley, CM(2016) Colorectal cancer screening prac-tices among three American Indian com-munities in Minnesota. Journal of CulturalDiversity 23(1):21-7.

Gibbs HD, Pacheco CM, Yeh HW, DaleyCM, Greiner KA, Choi WS (2016)Accuracy of weight perception amongAmerican Indian tribal college students.American Journal of Preventive Medicine,ePub ahead of print, 20 July 2016.

Wick J, Berry SM, Yeh, HW, Choi W,Pacheco C, Daley CM, Gajewski BJ (2016)A novel evaluation of optimality for ran-domized controlled trials. J Biopharm Stat13:1-14.

Daley CM, Daley SM, Nazir N, PachecoC, Filippi MK, Smith TE, McKinney D,Talawyma M, Gunville J, McCloskey C,Greiner KA, Choi WS (2017) Feasibility ofImplementing the All Nations Breath ofLife Culturally Tailored Smoking CessationProgram for American Indians in Multi-Tribal Urban Communities. Nicotine andTobacco Research, ePub ahead of print Feb 8.

Oral Presentations

Wilkie, C, Gunville, JA, Berryhill, K,Pacheco, JA, Daley, CM (2016) Breast can-cer health literacy. Susan G. Komen for theCure Annual GDTR Conference: Ft.Lauderdale, FL.

Smith, TE, Hale, JW, Gunville, JA, Daley,CM, Daley, SM (2016) AIHREAInternship. Indigenous People’s Day:Conversations about Colonialism andEducation: Kansas State University,Manhattan, KS.

Poster Presentations

Gunville, JA, Goeckner, RT, Hale, JW,Smith, TE, Nazir, N, Daley, SM, Choi,WS, Daley, CM (2016) All Nations Breathof Life: A culturally tailored smoking cessa-tion program for heterogeneous AmericanIndian communities. Ninth AmericanAssociation of Cancer Research Conferenceon the Science of Cancer Health Disparitiesin Racial/Ethnic Minorities and theMedically Underserved: Ft. Lauderdale, FL.

Lewis, CS, Hale, JW, Gockener, RT, Smith,TE, Valliere, S, Gunville, JA, Wilkie, C,Rollins, KL, Choi, WS, Daley, CM (2016)Creation of a culturally tailored quitsmokeless tobacco program for AmericanIndians. Ninth American Association ofCancer Research Conference on the Scienceof Cancer Health Disparities inRacial/Ethnic Minorities and the MedicallyUnderserved: Ft. Lauderdale, FL.

Pacheco, JA, Gunville, JA, Nazir, N, Smith,TE, Daley, SM, Choi, WS, Daley, CM(2016) Understanding predictors of smok-ing cessation in a culturally tailored smok-ing cessation program created for AmericanIndians. Ninth American Association ofCancer Research Conference on the Scienceof Cancer Health Disparities inRacial/Ethnic Minorities and the MedicallyUnderserved: Ft. Lauderdale, FL.

Goeckner, RT, Gunville, JA, Smith, TE,Nazir, N, Daley, SM, Choi, WS, Daley,CM (2016) Tobacco education sessions as arecruitment tool for a culturally tailoredsmoking cessation program for AmericanIndians: All Nations Breath of Life. NinthAmerican Association of Cancer ResearchConference on the Science of CancerHealth Disparities in Racial/EthnicMinorities and the Medically Underserved:Ft. Lauderdale, FL.

Gunville, JA, Lewis, CS, Berryhill, K,Wilkie, C, Pacheco, JA, Daley, CM (2016)Series of breast cancer brochures forAmerican Indians addressing breast cancerdisparities. Ninth American Association ofCancer Research Conference on the Scienceof Cancer Health Disparities inRacial/Ethnic Minorities and the MedicallyUnderserved: Ft. Lauderdale, FL.

Daley, CM, Berryhill, K, Hale, JW, Bointy,S (2016) Native American Weight LossMovement Evaluation. Susan G. Komenfor the Cure Annual GDTR Conference:Ft. Lauderdale, FL.

Gunville, JA, Lewis, CS, Berryhill, K, Wilkie,C, Pacheco, JA, Daley, CM (2016) Series ofbreast cancer brochures for American Indiansaddressing breast cancer disparities. Susan G.Komen for the Cure Annual GDTRConference: Ft. Lauderdale, FL.

Hale, JW, Gunville, JA, Daley, SM, Daley,CM, Choi WS (2016) An internship pro-gram for American Indian students.Annual Meeting of the American PublicHealth Association: Denver, CO.

Wilkie, C, Daley, CM, Goeckner, RT,Gusman, A, Filippi MK (2016) Mentalhealth needs assessment in an AmericanIndian community. Annual Meeting of theAmerican Public Health Association:Denver, CO.

Daley, CM, Berryhill, K, Hale, JW, Bointy,S (2016) Native American Weight LossMovement Evaluation. Annual Meeting ofthe American Public Health Association:Denver, CO.

Valliere, S, Lewis, CS, Rollins, K, Choi,WS, Daley, CM (2016) Development of aculturally tailored smokeless tobacco cessa-tion program. Annual Meeting of theAmerican Public Health Association:Denver, CO.

cen

ter

for american indian

studies

jo

hnson county

com

munity colleg

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Center for American IndianCommunity Health

University of Kansas Medical Center

Toll free 1-855-552-2424 or 913-588-0866

Center for American Indian StudiesJohnson CountyCommunity College913-469-8500Ex. 4570

CONTACT INFO:

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ter

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www.AIHREA.org

AMERICAN INDIAN HEALTH RESEARCH& EDUCATION ALLIANCE

Documents

Who is AIHREA?aihrea.org/pdf/AIHREA2016AnnualReport.pdf · 2017-04-21 · style dance demonstration. We would like to thank Orlando Begay, Sara Bointy, Shelby Bointy, Steve Byington,