23 Research Data ThingsResearch Data Coordinator

Katina Toufexis

Licensing data for reuse

Consider this scenario:

You’ve found a dataset you (or your client) are interested in.

You’ve downloaded it.

Excellent!

But do you know what you (or your client) can and cannot do with the data?

The answer lies in data licensing. Licensing is critical to enabling data to be

reused and cited.

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https://www.youtube.c

om/watch?v=SHR1EJ

0kQ3g

Dr Ross Wilkinson,

Executive Director of

ANDS

Licensing data for reuse

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AusGOAL (Australian Governments Open Access and Licensing Framework) is:

• An open access and licensing framework based on the international suite of

Creative Commons licences.

• Designed to help select the least restrictive licence to apply to published

datasets and other works

• A common approach to data licensing across research and government.

• Recommended licensing system for data publishing for ANDS partners. See

AusGOAL - ANDS Guide.

• Research data licensing FAQs.

Licensing data for reuse

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Licensing data for reuse

RDM Toolkit

http://guides.is.

uwa.edu.au/c.

php?g=325196

&p=2633029

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Summary of

permissions

given by CC

licenses

Note:

AusGOAL also

offers a

restrictive

license option.

Licensing data for reuse

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Software licences

• AusGOAL provides guidance on software licensing, and recommends BSD 3

Clause Licence as its most preferred open source software license. See

AusGOAL software licensing

Licensing data for reuse

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FAQs

http://www.ausgoal.gov.au

/research-data-faqs

Licensing data for reuse

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Meetup

Licensing data for reuse

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Meetup

Licensing data for reuse

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ANDS Webinars

Dr Kevin Cullen UNSW Diane Peters, Dr Matthew Todd

General Counsel for

Creative Commons

Licensing data for reuse

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Easy Access IP

- Dr. Kevin Cullen

UNSW

Licensing data for reuse

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Australian Government Public Data Policy Statement

Licensing data for reuse

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Licensing data for reuse

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Sharing Sensitive Data

Two major categories of sensitive data are:

Human data (eg health and personal data, secret or sacred practices); or

Ecological data (may place vulnerable species at risk).

Given the nature of this type of data, you might expect that it can’t be shared

and reused. But in many cases, it can be.

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Sharing Sensitive Data

One example where sensitive data is shared in RDA:

Pregnancy and Lifestyle dataset

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Sharing Sensitive Data

Another example where

sensitive data is shared in RDA:

1. Australian Longitudinal Study

on Women's Health

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Sharing Sensitive Data

How do you share sensitive data?

1. De-identify datasets

2. Publish a description (metadata only)

3. This video…

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Sharing Sensitive Data

A risky business... or is it? The benefits of publishing sensitive data in a

snapshot - Prof Michael Martin (ANU) talks about risk versus benefit of

sharing sensitive data

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Sharing Sensitive Data

ANDS Guide to publishing and sharing sensitive data

Outlines best practice for the publication and sharing of sensitive research

data in the Australian context.

• confidentialising your human and sensitive ecological data

• what's legal

• what to include in a consent form requesting data publication and sharing

• sharing sensitive data that you did not collect

• making data discoverable: metadata

• conditional access to data: what is it; how do I do it?

• licensing your data

• depositing your data

• a comprehensive guide on most things you need to know about publishing

sensitive data.

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Sharing Sensitive Data

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Sharing Sensitive Data

Funders

Responsible sharing of sensitive data is required or encouraged by peak bodies

and leading publishers in human research. Check out:

• Section 3.2.2 of the NHMRC National Statement on Ethical Conduct in Human

Research.

• ARC Discovery Program Funding Rules - applicants must now outline plans

for the storage, access and reuse of data.

• Wellcome Trust joint statement on data sharing - to which NHMRC is a

signatory.

Publishers

• PLOS journals policy on making all data available.

• Nature publishing group journals require supporting data to be available to

editors and reviewers at the time of submission, preferrably via public

repositories.

Guidance from Funders and Publishers

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Sharing Sensitive Data

Imagine you are either a researcher or a participant in a health data

survey:

Participant: what questions might you first ask the researcher about

intended sharing and reuse of the survey data?

Researcher: What responses would you need to prepare to anticipate

participants questions about publishing “their data for all the world to see”?

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Sharing Sensitive Data

How we manage sensitive data through its lifecycle?

Who has a role in ensuring sensitive data is appropriately managed and

shared?

These are critical issues in ensuring sensitive data can be shared.

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Sharing Sensitive Data

Guidelines for the Ethical Use of Digital

Data in Human Research

(produced by Melbourne University and

the Carlton Connect Initiative).

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Sharing Sensitive Data

The UK Anonymisation Network (UKAN) has developed a one hour online

course based on the Anonymisation Decision-making Framework.

You don’t need any previous experience in data analysis to do the course.

http://theodi.github.io

/ukan-course/#0.1

Contacts

Contact UWA 23 Things Coordinators:

Caroline Clark

caroline.clark@uwa.edu.au

Nola Steiner

nola.steiner@uwa.edu.au

Katina Toufexis

katina.toufexis@uwa.edu.au