portable consent 2.0: “consent as code”

!

EDM Forum 26 March 2014

requires multiple layers of

data interoperability.

1. legal

interoperability by blanket consent.

terms in blue pop up definitions

volunteer must click to proceed

all boxes must be checked

user experience “breadcrumbs”

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2. code is law. law is code.

templates for: genetic sequence

clinical labs self-tracking

EHR/PHR

view

model

“notwithstanding the foregoing”

collect syndicate use return

drag and drop language UX elements

implementation guides

templates for: genetic sequence

clinical labs self-tracking

EHR/PHR

view

model

controller?

controller?

3. interaction of controls on users with consent.

22memory triggers

plain language

action-based triggers

legally binding documents

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access to higher-level user powers after certification exams

rebalance the risks and rewards for digital distribution and reuse.

thank you. !

@wilbanks john.wilbanks@sagebase.org