Action for M.E. and the Association of Young

People with M.E.

Survey 2008

Part 3Your Current GP and

Your M.E.

Part 3: Your Current GP and Your M.E.

Question 15. When was the last time you saw your GP about your M.E.?

0 - 1 month (598)2 - 6 months (758)6 months - 1 years (433)I no longer see my GP about my M.E. (815)I no longer see my GP at all (50)I am not registered with a GP (2)Over a year but I have an appointment (31)

Severity of M.E. now v last time you saw your GP

When was the last time you saw your GP about your M.E.?

At the moment 0-1 month 2-6 months 6 months - 1 year

1 no longer see my GP about

my M.E.

I no longer see my GP at all

I am not registered with

a GP

Over a year but I have an

appointmentTotal

Bedbound 30 (27.27%) 27 (24.55%) 23 (20.91%) 0 (0.00%) 20 (18.18%) 9 (8.18%) 1 (0.91%) 110

Housebound 183 (24.05%) 234 (30.75%) 130 (17.08%) 1 (0.13%) 189 (24.84%) 13 (1.71%) 11 (1.45%) 761

Mobile over short distances 293 (24.73%) 355 (29.96%) 184 (15.53%) 1 (0.08%) 322 (27.17%) 15 (1.27%) 15 (1.27%) 1185

Near-normal life 84 (13.93%) 135 (22.39%) 94 (15.59%) 0 (0.00%) 274 (45.44%) 12 (24.49%) 4 (0.66%) 603

Total 590 (22.19%) 751 (28.24%) 431 (16.21%) 2 (0.08%) 805 (30.27%) 49 (1.84%) 31 (1.17%) 2659

Part 3: Your Current GP and Your M.E.

Question 16. How would you describe your current GP with regard to your M.E.?

Very supportive (621)Supportive (1069)Unsupportive (285)Well informed (49)Less informed than s/he could be (482)Not informed (140)

GP Description : By Country

CountryVery

supportive Supportive Unsupportive Well informed Less informed Not informedSurvey

Responses

England 474 (23.37%) 820 (40.43%) 228 (11.24%) 40 (1.97%) 359 (17.70%) 107 (5.28%) 2028

Northern Ireland

5 (21.74%) 10 (43.48%) 3 (13.04%) 0 (0.00%) 3 (13.04%) 2 (8.70%) 23

Scotland 34 (27.42%) 51 (41.13%) 9 (7.26%) 2 (1.61%) 26 (20.97%) 2 (1.61%) 124

Wales 19 (22.62%) 38 (45.24%) 6 (7.14%) 0 (0.00%) 19 (22.62%) 2 (2.38%) 84

Total 532 (23.55%) 919 (40.68%) 246 (10.89%) 42 (1.86%) 407 (18.02%) 113 (5.00%) 2259

GP Description : By NHS Region

NHS Region Very supportive Supportive Unsupportive Well informed Less informed Not informed Survey Responses

East Midlands 43 (22.88%) 84 (44.68%) 15 (7.98%) 7 (3.72%) 37 (19.68%) 2 (1.06%) 188

East of England 76 (24.92%) 118 (38.69%) 32 (10.49%) 8 (2.62%) 51 (16.72%) 20 (6.56%) 305

Guernsey (and Sark)

0 (0.00%) 0 (0.00%) 0 (0.00%) 0 (0.00%) 1 (50.00%) 1 (50.00%) 2

Isle of Man 1 (100.00%) 0 (0.00%) 0 (0.00%) 0 (0.00%) 0 (0.00%) 0 (0.00%) 1

Jersey 4 (66.67%) 1 (16.67%) 0 (0.00%) 0 (0.00%) 1 (16.67%) 0 (0.00%) 6

London 39 (20.86%) 83 (44.39%) 20 (10.70%) 1 (0.53%) 38 (20.32%) 6 (3.21%) 187

North East 8 (16.00%) 22 (44.00%) 9 (18.00%) 1 (2.00%) 7 (14.00%) 3 (6.00%) 50

North West 45 (22.06%) 71 (34.80%) 32 (15.69%) 5 (2.45%) 35 (17.16%) 16 (7.84%) 204

South Central 47 (26.26%) 73 (40.78%) 17 (9.50%) 5 (2.79%) 29 (16.20%) 8 (4.47%) 179

South East Coast 52 (23.85%) 89 (40.83%) 29 (13.30%) 3 (1.38%) 38 (17.43%) 7 (3.21%) 218

South West 92 (23.59%) 152 (38.97%) 43 (11.03%) 4 (1.03%) 72 (18.46%) 27 (6.92%) 390

West Midlands 32 (20.39%) 65 (41.40%) 16 (10.19%) 3 (1.91%) 29 (18.47%) 12 (7.64%) 157

Yorkshire and the Humber

35 (24.82%) 62 (43.97%) 15 (10.64%) 3 (2.13%) 21 (14.89%) 5 (3.55%) 141

Total 474 (23.37%) 820 (40.43%) 228 (11.24%) 40 (1.97%) 359 (17.70%) 107 (5.28%) 2028

GP Service : By Country

CountryBest

possibleGood Fair Poor Very poor

Survey Responses

England360

(19.42%)398

(21.47%)459

(24.76%)327

(17.64%)310

(16.72%)1854

Northern Ireland

4 (21.05%) 9 (47.36%) 3 (15.79%) 0 (0.00%) 3 (15.79%) 19

Scotland 28 (24.35%) 24 (20.87%) 22 (19.13%) 21 (18.26%) 20 (17.39%) 115

Wales 14 (18.42%) 18 (23.68%) 20 (26.32%) 10 (13.16%) 14 (18.42%) 76

Total406

(19.67%)449

(21.75%)504

(24.42%)358 (17.34)

347 (16.81%)

2064

GP Service : By NHS Region (England)

NHS Region Best possible Good Fair Poor Very poor Survey Responses

East Midlands 32 (18.39%) 38 (21.84%) 49 (28.16%) 31 (17.82%) 24 (13.79%) 174

East of England 56 (20.29%) 58 (21.01%) 79 (28.62%) 38 (13.77%) 45 (16.30%) 276

Guernsey (and Sark) 0 (0.00%) 0 (0.00%) 0 (0.00%) 0 (0.00%) 1 (100.00%) 1

Isle of Man 1 (100.00%) 0 (0.00%) 0 (0.00%) 0 (0.00%) 0 (100.00%) 1

Jersey 3 (60.00%) 0 (0.00%) 1 (20.00%) 0 (0.00%) 1 (20.00%) 5

London 35 (20.59%) 32 (18.82%) 47 (27.65%) 38 (22.35%) 18 (10.59%) 170

North East 7 (16.28%) 9 (20.93%) 8 (18.60%) 9 (20.93%) 10 (23.26%) 43

North West 34 (18.09%) 43 (22.87%) 41 (21.81%) 33 (17.55%) 37 (19.68%) 188

South Central 35 (20.71%) 38 (22.49%) 44 (26.04%) 28 (16.56%) 24 (14.20%) 169

South East Coast 36 (18.56%) 37 (19.07%) 46 (23.71%) 40 (20.62%) 35 (18.04%) 194

South West 74 (20.33%) 77 (21.15%) 83 (22.81%) 61 (16.76%) 69 (18.96%) 364

West Midlands 25 (17.99%) 28 (20.14%) 32 (23.02%) 29 (20.86%) 25 (17.99%) 139

Yorkshire and the Humber 22 (16.92%) 38 (29.23%) 29 (22.31%) 20 (15.38%) 21 (16.15%) 130

Total 360 (19.42%) 398 (21.47%) 459 (24.76%) 327 (17.64%) 310 (16.72%) 1854

Part 3: Your Current GP and Your M.E.

Question 17. Because of your M.E., have you ever received or requested a home visit from any of the

following?

GP

Specialist doctor

Nurse

Occupational therapist

Physiotherapist

0 250 500 750 1,000

Received Requested and received Requested but refused

Comments and Queries

You can send any comments, queries or questions about this survey to :-

E-mail : survey2008@afme.org.uk

Action for M.E. Website : www.afme.org.ukAYME Website : www.ayme.org.uk

Thank You !!

Thank you for watching this presentation.

Thanks also go to the many people who participated in this survey.