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DESIGNING FOR SURVIVALdeveloping healthcare apps for cancer survivors
Adrian Iacomi, UX Lead @adrianiacomi
photo by flickr.com/emagic
This is NOT a persona, but one of my best friend’s story
23 years oldred hair, quite tallstudent
linda-hop dancer, passionate about drawing, surfing, pasta, jazz and love cats
ELISE
illustration by flickr.com/giovana_milanezi
ELISE - THE REAL STORY
photos by stf-o, pustovit, benswing, denise_rowlands, scubasteveo, agecombahia, lfamily, worldbank, hawaii, brothers-brick.com, lilivc (on flickr.com)
Her good life as a student
surfing
friends
dancing
love
Treatment and surviving
Cancerdiscovery
tired
investigations
more investigations
tumor
surgery
chemotherapy
getting support surviving
same cancer formsame treatment
same doctor
just one survivor, out of five patients
no prior oncology knowledgeno special treatmentno access to specialistsmedical studentfather - doctor
photo by flickr.com/pustovit
THE NUMBERS1. 2012: 14.1 mil new cases, 8.2 mil deaths
2. developing world: 1/3 people will develop cancer during their lifetime
3. 1/9 people have a chance of a recurring cancer
4. 5 years time frame for surviving
5. 100+ forms of cancer, anybody can be affected
6. 1/3 of cancer forms can be detected early
THERE IS NO SILVER BULLET !
JUST THE UX PROCESSimage by flickr.com/dangergraphics
UX DESIGN PROCESS1. domain knowledge
2. identify stakeholders - stakeholders meetings
3. contextual interviews
4. create personas
5. user journey map
6. create mockups for internal usage
7. iterate: advanced working prototype [limited users] - usability testing - doctor’s feedback - design
8. paperwork and politics in parallel - to be able to test the app with patients and doctors
9. mass-market MVP test
DOMAIN KNOWLEDGE
just understanding chemotherapy it takes a lot
of time: patient, nurse and doctor’s perspective
photo by flickr.com/linusekenstam
IT’S ABOUT THE TEAM WORK
photo by flickr.com/brianneudorff
Doctors, nurses, other medical staff,Patients, Friends, FamilySupport groups, NGO
John, Doctor
STAKEHOLDERS MEETINGS
Ana, NurseElise, patient Mary, Elise’ mother Steve, MD
Carla, Hospital ManagerJake, Cancer Survivor
Kristy, NGO member
July, support group member
photo by flickr.com/clement127
Understand all your stakeholders
LACK OF INFORMATION & COMMUNICATION ISSUES
photo by flickr.com/choffee
Many times the patient feels left in the dark
MAJOR ISSUES1. no direct access to patients
2. doctors are hard to get
3. no user centred approach in design
4. the patient is not an active part
5. inefficient communication
6. high stress for doctors and patients
7. not enough timephoto by flickr.com/denise_rowlands
CONTEXTUAL INTERVIEWS
doctor
patient
do you have a good work/life balance?what is the missing communication link?what would you improve in the system?what is the patient not telling you?
what is her/his life?what is missing from the treatment?what are the greatest challenges?is there any family support?
photo by flickr.com/kbrookes
Understand both the doctor and the patient
PERSONAS
Steve, cancer survivor32 construction manager
iPhone, PM toolsi want an efficient tool
Elise, patient23, medicine student
HTC M9, Spotifybeing connected, music lover
Mike, family member57, math teacher
Samsung Mini, basic usageI loved my old Nokia
Paul, doctor43, oncology expert
Apple Tablet, medical toolstime is of the essence
photo by flickr.com/dangoodwin
USER JOURNEY
photo by flickr.com/clement127
Where is getting lost vital information?
LOW FI PROTOTYPES - INTERNAL USAGE
ADVANCED PROTOTYPES
SKETCHES
USER TESTS
The following slides are not available due to confidentiality reasons.
DESIGN CHALLENGES• time is of the essence - iterate fast, many times
• doctor’s opposition to change - must provide an easy to integrate solution
• doctors and patients want to test a real product - advanced prototype
• design process - lack of domain knowledge - work with an expert/doctor
• high level of stress in the system - patience and empathy
• access to patients - collaborating with a medical centre
Adrian Iacomi @adrianiacomi
Thank you :)
