Quantified Self - Self Tracking and the Future of Health Apps

C. Gurrin, F. Hopfgartner & J. Walsh (22 June 2016)

The Quantified SelfSelf Tracking and the Future of Health Apps

http://bit.ly/1sNpvaC

Cathal Gurrin (Dublin City University) - @cathal

Frank Hopfgartner (University of Glasgow) - @okapiBM25

John Walsh (Smart Insights Lab) - @johnmwalsh_com


Agenda

• Setting the scene (30 minutes)• Passive Self Tracking, a Look Forward- Cathal Gurrin• Digital Health 2020 – Frank Hopfgartner• Security, Privacy & Data Governance – John Walsh

• Panel Debate – The Potential of Self Tracking (30 minutes)


Passive Self Tracking, a look forwardDr Cathal Gurrin (@cathal)

Dublin City University, Ireland


Dr Cathal Gurrin (@cathal)Senior Lecturer at Dublin City UniversityPrincipal Investigator at the Insight Centre for Data Analytics

Lifelogger – Researcher - Educator


Now,wecancaptureourwholelivesindata




Quantified-Self tracking…numbers&data


Takingittothenextstep…lifelogging




Alloflifeexperiencecapturedandstored…








Here is my Lifelog….


0

500

1000

1500

2000

2500

3000

3500

2005 2006 2007 2008 2009 2010 2011 2012 2013 2014 2015

External Sources

Information

Activities

Biometrics

DigitalSensors(Video)

DigitalSensors(Audio)

DigitalSensors(Image)

Growing Exponentially








Our data-rich and data-driven future is an inevitability… we will live longer, healthier and more

enriched lives because we have the personal data about ourselves


Lifelogging will create a whole new set ofopportunities & challenges forindustry and society… but

This is private data

Issues around privacy expectations are not understood

Data security is vital to get right

Who can access the data (now and post-life)?


Digital Health 2020Dr Frank Hopfgartner (@okapiBM25)

University of Glasgow, Scotland, UK


AfewwordsaboutmeResearch on Information Access

Systems, Quantified Self, Lifelogging

Lecturer(AssistantProfessor)inInformationStudies(Glasgow)

PhDinInformationRetrieval(UniversityofGlasgow)

Past:VariouspositionsinBerlin(TUB),Dublin(DCU),Berkeley(ICSI),andLondon(QMUL)


What is The Quantified Self?

The Quantified Self is about incorporating self-trackingtechnologies to monitor our activities.


What’s in it for you?

It’s all about understanding yourself and your lifestyle via stats and numbers.


What’s in it for others?

It’s all about understanding the customer and their lifestyle via stats and numbers.

Health Insurance companies are interested

NHS are interested and providing devices


Why does it work?

Data supports us to reflect on our activities and behaviors.


Why is it getting popular?

Wearables, cheap sensors and mobile applications are getting affordable and easy to use.


Recording my activities

Image:mobarger@

flickr(CreativeCommons)


Recording how I feel

http://measuredme.com/


Recording what I eat

Aizawa,Kiyoharu, Maruyama,Yutu,Li, He,andMorikawa, Chamin. “FoodBalanceEstimation byUsingPersonalDietrary Tendencies inaMultimedia FoodLog."IEEETransactions onMultimedia, 15(8):2176-2185, 2013.

Semantic Gap

http://foodlog.jp/

http://mealsnap.com/


Join the QS Movement


Security, Privacy & Data GovernanceJohn Walsh (@johnmwalsh_com)

Smart Insights Lab, Belgium


So, Welcome to a brand new worldSurgeryRemotesurgery

Emergency careAmbulances equipped with IoT devices for quicker diagnosis

FirefightingQuickerandinformativeresponsetofiresbasedonlivedatafeeds

Law enforcementCreate awareness and monitor abuse of power

RetailingTarget shoppers with specific services & promotions

EntertainmentTailored services to customers (Disney MagicBand)

ElectionsUseofGoogleGlass

- Implantables

- Ingestables

- Biohacking

Nextgeneration:


My Data

Travel

Social

Health Finance

News Opinion

YouaremorethanthesumofyourData

Entertainment Business Hobbies


Quantified Self data is revealingTraditionalpersonalinformation QuantifiedSelfData

Who?

NameAddress

BirthDate Gender

What?When?Where?Why?Howmuch?Feeling?

GPS

BPM

Sleeppattern

MoodExercise

Contactsin/out

Experiences

Weight

Sugarlevels

Sexstats

PlaceofBirth


The Risks

• Unaware of what information you are producing & is being consumed• Unaware of the effects of the « smart data » connect• Identity Theft• Profiling• Locating a User and cyber stalking• Responsibility• Corporate use and abuse of data• Undervalueing our own Data• Become immune • …


Key areas of Concern

TheQuantified

Self

Governance

PrivacySecurity

Rules,Processes&Behaviours


What to do?

RejectDenial Gowiththeflow Educate

EducateLegislateRegulate


General Data Protection Regulation (GDPR)

• Replacing the outdated 95/46/EC

• Formally approved in May 2016 and directly applicable

• Coming into force May 2018


GDPR – Key elements

• Accountability• Privacy by Design• Consent• Expanded territorial reach• Sanctions• Data Breech Notification• Data Protection Officers• Data Processors• One Stop Shop• Enhanced Data Subject Rights

TheQuantified

Self

Gover-nance

PrivacySecurity


Where are we willing to go …

• Privacy vs. ConvenienceØ So what is our Privacy worth to us?

Custom

ercentricity

LossofPrivacyInspiredbyChrisDancy


Points of attention

• Can we learn from our mistakes?

• Focus on « End of the Food Chain » analytics without installing a « privacy and security » by design in place early on

• Legal Compliance is the Floor, not the Ceiling. How can we think ethically?

• Build Trust: Data + Transparency = Trust


Looking onwards and Upwards

• Take Charge• Time to reflect and renegociate the bargins with OUR data• Be proactive with new technology• Think of our future infrastructures & the values it should

embody• Balance the value of our data to society vs personal nature• Privacy comprimise vs. Convenience• Awareness of extending surveillance and its impact on society• Stay Alert



Thank YouCathal Gurrin (Dublin City University) - @cathal

Frank Hopfgartner (University of Glasgow) - @okapiBM25

John Walsh (Smart Insights Lab) - @johnmwalsh_com

Self Improvement

Quantified Self - Self Tracking and the Future of Health Apps