eurordis-rare-diseases-europe documents

The Value of Online Communities
Health & Medicine The Value of Online Communities
Results of a survey on the role of Patient Groups in Research and their priorities for the future
Health & Medicine Results of a survey on the role of Patient Groups in Research and their priorities for the future
Session 25 antoni_montserrat
Health & Medicine Session 25 antoni_montserrat
Using the internet to search for clinical trial information
Health & Medicine Using the internet to search for clinical trial information
Workshop 6 - "BURQOL-RD"
Health & Medicine Workshop 6 - "BURQOL-RD"
Session 3 yann_le_cam
Documents Session 3 yann_le_cam
Workshop 2 - "Presentation of the concept, definitions and terminology"
Health & Medicine Workshop 2 - "Presentation of the concept, definitions and terminology"
Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"
Health & Medicine Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"
Workshop 6 - "Case study: Italian Training for MDs,"
Documents Workshop 6 - "Case study: Italian Training for MDs,"
FDA Social Media Hearing Part 15 Summary
Documents FDA Social Media Hearing Part 15 Summary
Workshop 7 - "Brainstorming & Policy Development session: Prevention"
Health & Medicine Workshop 7 - "Brainstorming & Policy Development session: Prevention"
Surveys and polls: The RareConnect.org Experience
Health & Medicine Surveys and polls: The RareConnect.org Experience
Rare disease day 2011 highlights
Health & Medicine Rare disease day 2011 highlights
Workshop 5 - "Feedback from the 15 National Conferences on social aspects"
Documents Workshop 5 - "Feedback from the 15 National Conferences on social aspects"
Workshop 5 - "The Norwegian Model"
Documents Workshop 5 - "The Norwegian Model"
Workshop 6 - "Training package on RD for medical students"
Documents Workshop 6 - "Training package on RD for medical students"
Workshop 7 - "Prevention in the Spanish National Plan for Rare Diseases"kshop 7 - Brainstorming & Policy Development session: Prevention
Health & Medicine Workshop 7 - "Prevention in the Spanish National Plan for Rare Diseases"kshop 7 - Brainstorming & Policy Development session: Prevention
AMWS CINCA
Documents AMWS CINCA
NOMID Alliance
Documents NOMID Alliance
Searching for quality information via pubmed and other sources
Health & Medicine Searching for quality information via pubmed and other sources
Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EURORDIS
Documents Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EURORDIS