Amniotic Banding/Missing Limb - Amniotic Banding/Missing Limb 7 . Arthrogryposis FACTS: ¢â‚¬¢ Arthrogryposis

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  • Amniotic Banding/Missing Limb

    FACTS: • When a baby is developing inside her mother, he or she

    is in a fluid filled “bag of waters” called the amniotic sac. This sac is made up of strong fibers that are usually hard to break. Sometimes, however, this sac will tear open, and the sticky strands can wrap around parts of the developing baby. When this happens amniotic banding can occur. The most common effect of amniotic banding is seen when the fibers wrap around the arms, legs, fingers or toes. The fibers cause a deep groove which looks like the baby has a tight rubber band on him or her. If the banding during development is severe, it may even cause the complete amputation of the limb.

    • Amniotic Band Syndrome is a common birth defect.

    Children with amniotic banding can have conditions such as missing limbs, fused fingers and toes, heman- giomas, club feet and cleft palate.

    • This is a randomly occurring defect; it is not genetic.

    It is not inherited from the parents, nor passed down to future children.

    • Sometimes tight banding can impair circulation, causing

    areas below the band to be inflamed or swollen. • There is no effect on intellect. Children with amniotic

    banding are normal in every other way.

    Amniotic banding can cause a child’s limbs

    to not develop correctly.

    Amniotic banding often looks like a rubber band is placed

    tightly on a child’s skin.

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  • • For missing limbs, fused digits, heman- gioma and cleft palate, please see the corresponding section in this manual for treatment options.

    • If a child has constriction bands on his or

    her body or extremities, please consult a physician. Impaired circulation can often be improved with surgery to release the bands. In rare cases amputation of a digit or limb may be the only option.

    My family loves me so much!

    Many forms of Amniotic Band Syndrome require

    no treatment at all.

    TREATMENT:

    Amniotic Banding/Missing Limb

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  • Arthrogryposis

    FACTS: • Arthrogryposis is characterized by multiple

    frozen joints and is usually diagnosed at birth. This condition has multiple causes and is extremely rare.

    • During pregnancy, motion of the fetus is

    essential for the normal development of a baby’s joints. Anything that restricts fetal movement causes extra tissues to gather around the joint. The joint then becomes difficult to move or frozen in place.

    • Conditions that decrease fetal movement

    include uterine malformations, having twins or triplets and inadequate amniotic fluid. The deformities are most severe at birth and do not progress.

    • Children born with this condition may have

    other joint and limb problems. • Children with this condition may also have a

    disorder of the nervous system or muscles.

    A child’s joints may be “frozen” in place.

    This condition most often affects the hands and feet.

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    • These children may have medical problems with the heart, lungs or kidneys.

    • Joints of the hands and feet are most

    often involved. • The muscle groups around these joints are

    often weak due to lack of movement. • These children usually have normal

    intelligence.

  • • Very gentle movement of the stiff limbs after birth and as the child grows improves motion of the limb. Joint manipulations during the first few months of life may produce considerable improvement.

    • The doctor may prescribe physical

    therapy to improve joint motion and to prevent muscle wasting.

    • Some children need splinting of the

    limbs, and others need surgery. • It is important for these children to be

    evaluated by a physician to determine if they have problems with the heart, lungs, kidneys or nervous system.

    • Many of these children are able to live

    active and happy lives.

    Many children can have very active lives!

    Very gentle movement of the joints may help.

    Arthogryposis

    TREATMENT:

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  • Brachial Plexus Injury

    FACTS: • This condition is caused by an injury

    during birth. The nerves and muscles of one side of the neck and arm are severely stretched and may tear.

    • It causes weakness or paralysis of the

    affected arm. • In some cases the injury will recover in

    three to six months if the arm is pro- tected from further damage. In many cases the damage may be permanent.

    • It affects only one arm and hand. If other

    parts of body are affected, consider other disorders.

    • Children are able to learn activities of

    daily living using one arm and are of normal intelligence.

    In some cases the damage isn’t permanent.

    Children with brachial plexus injury are

    of normal intelligence.

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  • • Wrap the infant with his or her weak arm across the upper abdomen and secure with a blanket. This holds the arm in proper position and prevents further injury.

    • Take care that the infant does not lay

    on the weak arm. • In an older infant or child, the sleeve of

    his or her clothing can be pinned across the lower chest.

    • Moving the arm and hand gently several

    times a day will prevent it from contracting and being further damaged.

    • Medical and surgical treatment may help

    in some cases. Please consult with a doctor familiar with this injury.

    Medical or surgical treatment may be

    needed.

    I can do ANYTHING!

    Brachial Plexus Injury

    TREATMENT:

    11

  • Cerebral Palsy

    FACTS: • Cerebral Palsy (CP) means difficulty with move-

    ment, muscle control and/or balance. • The child's muscles may be too stiff (high tone),

    too floppy (low tone) or both in different areas (trunk floppy, but tight limbs). Both arms and legs may be affected, or just the legs, or the arm and leg on one side of the body.

    • CP is caused by damage to the part of the brain

    that controls the muscles. The damage can happen before the baby is born, during birth or right after birth (especially if the baby is born too soon). It does not get worse over time. It is not contagious.

    • Most children with CP have normal intelligence.

    Some may have difficulty with speaking or eat- ing because the muscles in their mouths are affected, but they have normal understanding.

    • These children are at slightly higher risk for

    seizures, which can usually be controlled with medication. If the child has a seizure, see a doctor!

    Most children have normal intelligence even if they can’t speak clearly.

    Cerebral palsy affects a child's ability to

    use his or her muscles.

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  • • The brain damage cannot be treated, but the child's ability to take daily care of himself or herself can be improved.

    • Physical therapy, braces and other treat-

    ments can help the child be more inde- pendent.

    • Talk normally to the child and encourage

    him or her to be as independent as possible. These children are usually bright and eager.

    • Help the child with poor balance to sit

    securely by using chairs with arms, pillows, rolled up blankets, etc.

    • Gentle twisting and stretching can help the

    child with tight muscles move more easily. Softly bouncing the "floppy" child on your lap or a big ball before an activity can help him or her have more control.

    These children are usually bright and

    eager to learn!

    With therapy, children with CP can live happy and productive lives.

    Cerebral Palsy

    TREATMENT:

    13

  • FACTS: • Club foot is a condition that causes one

    foot (unilateral) or both feet (bilateral) to be twisted inward and often pointing downward.

    • The club foot does not form properly

    when the baby is growing in the womb. The affected foot is often smaller and the leg thinner than normal, which may not be as obvious if both feet are affected.

    • Club foot occurs more often in boys. • Children with club foot have normal

    intelligence and can lead active and normal lives

    • After treatment children can have

    healthy and pain-free feet and be able to wear regular shoes. They can walk, run, jump and play sports like other children.

    Club foot is a condition where a child’s foot appear “twisted.”

    With treatment children’s feet can become straight.

    Club Foot

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  • • A child born with a club foot should be seen by a doctor. There are several options for treatment.

    • One method of treatment involves a

    series of manipulations of the foot, which is held in place with a full leg plaster cast. This does not hurt the child. Each cast is left on for four to seven days as the muscles and ligaments relax and the bones grow into the corrected position. The doctor must be specially trained in this method.

    • Surgery is another method used

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