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Vol. 5 Issue 4 October 2013 - March 2014
News & Events 2-3• GoverningBodyMeeting• NationalConsultativeMeetingand
ThematicGroupMeeting• PresentationofAwardsforTB
Champion2014
• Meetings&AwarenessRallytoobserveWorldTBDay
• AnessaycontestforschoolstudentstosensitizethemonTB
World TB Day-2014 3-4
Advocacy Corner 5• PTCClettertopoliticalparties
forinclusionofTBinElectionPoliticalManisfesto
Case Study 5• Revive
Success Story 5• Unused Fund used for TB
Awareness
Committed 6• ARoleModelforSputumCollection
andTransportProgramme
Last Words 6
APRIL – JUNE 2013
Follow your Partnership on
Facebook, Twitter and
www.tbpartnershipindia.org
Few words from the Chairman of PTCC Dr. S.N.Misra
The Partnership, now formally registered as a society, brings together over 170 member organisations on a common platform, to support and strengthen India’s efforts to control tuberculosis (TB). The Partnership includes various organisations, all dedicated to the fight against TB with each member organisation bringing specific expertise to the table, in a range of technical and programmatic areas to empower individuals and communities affected by TB. In the years since its inception, the Partnership has been a hub for disseminating information, creating visibility for India’s national TB program, responding to TB related challenges and providing support to various stakeholders. For those of us who have witnessed the growth of the Partnership, the formal registration of the Partnership has been a proud and privilege moment for all of us and we hope the miles ahead of us will be less daunting, as 170+ institutions will now work together for a common cause of eliminating Tuberculosis.
The Partnership for TB Care and Control is proud to announce its registered avatar from June 2013. The hard work of all of its partners in contributing to the Memorandum of Association and Constitution of the society has paid off and a proud moment for all its members as the registration was received by the Governing Body. Kudos to its members with special mention of the Governing Body, the CEO Dr. Darivianca E. Laloo & Ms. Meenu Sharma from Secretariat and the lawyer Mr. Sharad Kumar (CII) who made this happen.
In this edition we focused case studies and success stories on the dread of drug resistant TB and how civil society members have helped MDR-TB patients and the communities.
We share a joint advocacy effort on civil society demanding transparency and uninterrupted supply of TB medicines.
We hope you enjoy reading and look forward to your active contribution in the future.
Happy reading…
Expert Speak 3
News 4
Case Studies
Committed
6
7
Advocacy Corner 5
Events 5
• Drug resistant TB is one of the top concerns for public health - Dr. J.N. Banavaliker
• Technology and Tuberculosis
• Global Coalition of TB Activists Launched
• TB awareness programme in MP & UP
• Civil society demands transparency and uninterrupted supply of TB medicines
• Hope for a MDR-TB patient
• Bringing a defaulter back in line
• Counselling and emotional support works wonders
• Showing the light to other Rural Health Care Provider
• From patient to provider
From our desk
Vol. 5 Issue 2 April – June 2013
Follow your Partnership onFacebook, Twitter and
www.tbpartnershipindia.org
Welcome to our New PartnerMaduraiMeenakshiChokkandarFoundation(MMCF),TamilNadu
Greetings Everyone!
Welcome to Partners Speak!
Wearedelightedtobringbacktoyouthiseditionof partners speak after a gap of some months.Following registration as a SocietyPTCChasbeenputtingit’steamtogetherandwehavebeenworkingonimportantimprovementsandnewfeaturestoourknowledgesharingplatform.
ThisisanopportunitytoshareourownexperiencesofeffectivecollaborationtofightTB,aswellasgaininsightfromourcolleaguesaroundtheworld.Inthissectionwe provide a snapshot of PTCC activities,amixofpartnernewsacross India,observanceofWorldTBDay,casestudyandhighlightsfromsuccessstoriesfromthefield.Wehaveincludedanewsection“Tearitout”toeducatethecommunityabouttheinfectioncontrolandthespreadofTB.Ouraimistopromoteawarenessabouttuberculosis,includingtheimportanceofgettingtested,TBfacts,myths,coughhygiene, freedomfromTB,aboutDOTSandmanymore.
Jointhepartnership,spreadTBawareness,linkupwiththeNationalTBProgramme,shareexperiencesand good practice. Get involved to make adifference!
Wehopeyouenjoyreadingandlookforwardtoyouractivecontributiontoourfuturesuccess.
Dr. S.N. Misra, ChairPartnership for TB Care and Control
FROM OUR DESK
www.tbpartnershipindia.org
News & Events
PARTNERSSPEAk
2 www.tbpartnershipindia.org
National Consultative Meeting and Thematic Group MeetingOn 28th and 29th March, Partnership for TBCare and Control held’s its NationalConsultativeMeetingofPartnersandThematicGroupMeetinginChennai,TamilNadu.
Developing a common understanding andagreement among the key stakeholdersin TB Care and Control is crucial to thePartnership’s strategy. The National Meetingof the Partnership is the general assemblywhere partners chalk out strategies and gainownershipofthePartnership. It is a platformtointroducepartnerstooneanotherandshareexperiences.
The meeting saw representation from civilsocietypartners,communityrepresentative,TBExperts,whocametogethertoengagepartnersthroughthematicgroupsfor identifying issuesand suggesting solutionstoaddresstheissues.AndhelpthePTCC statefocalpointstosettheagenda for their respectivestatesandfinalizea work plan for each state according theissues highlightedby the thematic groups.Presentations fromeachthematicgroup(PPM,Women&ChildhoodTB,ServiceDelivery,TB-HIV,
Operations Research and Advocacy) identifiedthegaps,possible solutionsandaction pointsfor PTCC member organisations.
Partnerswererequestedtobringposterswhichdescribed their work and also outlined whatthey would do to advocate for TB Care andControl. The poster sessionwasverysuccessfulwith more than 50 posters being submittedand explained to the panel of judges - Dr.Langkham,Dr.SubashYadavandDr.S.N.Misra.TheawardforthebestposterswenttoREACH,DAUDandIDF.
Governing Body MeetingThe 4th Governing BodyMeeting ofGoverningMemberswas held on 17th February 2014at NewDelhiTBCentre,JawaharLalNehruMarg,NewDelhi.DiscussionPointsincludedpreparationfortheGlobalFundNewFundingProposal,updatesonthemeetingsattendedby themembers, and various other issues like settingupofPTCCoffice,memberships,staffrecruitmentetc.
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Showcasing the challenges and gaps with respect to PTCC’s 6 thematic area and its impact on Key Affected Populations
with possible solutions
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Poster Presentation - Partner explaining their work and what they do to advocate for TB Care and Control
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National Consultative Meeting of Partnersin Chennai on 28-29 March, 2014
www.tbpartnershipindia.org3www.tbpartnershipindia.org
OCTOBER2013-MARCH2014
Presentation of Awards for TB Champion 2014ThePartnershiphasbeensupportedbyDrMadhukarPaiAssociateProfessor,McGillUniversityandGlobalHealthStrategiestoawardindividualsandorganizationswhohavedoneoutstandingworkforTBcontrolandcareandsupportforpatientsasTBChampionsoftheyear.
TheawardsfortheTBChampionsoftheyear2013-2014weregivenattheNationalConsultativemeeting at a special session. The chief guestwasMrN. Ravi, Editor, TheHindu newspaper,Chennai, who felicitated the champions and gave the awardswhich carried a cash prize ofRs.50000andacitation.
For the individual category, the award was shared by Shri Gautam Roy and Shri GautamMajumdar- Panchayat Pradhans from West Bengal. They were nominated by Dr BanditaSengupta,CareWBfortheirinitiativeinprovidingnutritionalsupportandlivelihoodforover100TBpatients.
IntheInstitutioncategory,JanSwathyaSahyog,agrassrootorganizationworkinginChhattisgarh,nominatedbyDr.MadhukarPaifortheirgrassrootsworkrepresentingpatients’rightstobetterTBcareservices.
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World TB Day - 2014
Meetings & Awareness Rally to observe World TB DayAnawarenessmeetingwasorganizedatAshaDeepFoundation(ADF)inGhaziabad,UttarPradeshon24thMarch2014.Themeetingwas attended by 360 communitypeopleandschoolchildren.Dr. SunilHamilton,MedicalOfficer,ADFenlightenedtheparticipantsonthegenesisofWorldT.B.day, types of T.B., prevention,diagnosis andtreatmentofT.B.,DOTSprogramme, Statistics of T.B. deathsin India,governmentTBprogrammes,healthproblems related to T.B andrelation between HIV/AIDS and T.B.There was an experience sharingsessionby patients currently undertreatmentandcuredpatients.Queriesbytheparticipantswereansweredbydoctors. Rev. H.k. Chetty, Director,ADF, motivated the participantsand asked the community people tocomeforwardandsupporttheStopTBCampaign.AmassawarenessrallywasalsoorganizedinShahidNagarCommunity,Ghaziabad.Morethan700communitypeople,schoolchildrenand
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Community Awareness Meeting on World TB Day
www.tbpartnershipindia.org
PARTNERSSPEAk
4 www.tbpartnershipindia.org
An essay contest for school students to sensitize them on TBIndian Development Foundation(IDF) plans to reach millions ofpeoplethroughschools/educationalinstitutions / business houses /NGOs/ Trusts/CommunityGroups/Banks / Co-operative Societies /insurancecompaniesandmanyotherpubliccontactsinIndiatocreateTBawareness.
IDF- AP Chapter in Association withJointDirector(TB)&StateTBControlOfficeAssociationorganisedanessaycontestintherun-uptotheWorldTBDay.Morethan500childrenfrom32schools across Andhra Pradesh haveparticipatedintheessaycontest.Thethemewas“StopTB:TBAnywhereisEverywhere”
The awards to the winner werepresented by the guest of honorSri. Ajay Sawhney, IAS, PrincipalSecretary to the Government,Health, Medical and FamilyWelfare,GoAP.Theotherdignitarieswere Smt. Y.V. Anuradha, IAS,Commissioner, Public Health & Family Welfare, GoAP, Dr. B. kishore, IAS, ProjectDirector, APSACS, GoAP, Dr. Buddha Prakash M. Jyoti, IAS, Mission Director, NRHM,GoAP,Dr.S.Arunakumari,DirectorofPublicHealth&ViceChairman,STBCSandDr.T.RaniSamyukta,JointDirector(TB)&MemberSecretary,STBCS.
Submitted by: Indian Development Foundation
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ADF Staff participated in the rally.The participants included T.B.patients who are under treatment,recoveredpatients, familymembers,other community people, schoolchildren and adolescents from thecommunity. The rally was flaggedoff by Dr. Sunil Hamilton, MO, ADFand Rev. H k Chetty, Director, ADF.TB awareness slogans were chantedand flash cards were displayed.Handbillswerealsodistributedtotheparticipants and community people. Submitted by: Asha Deep Foundation
An Awareness Rally to observe World TB Day
Winner receiving prize
Winner of TB essay contest
www.tbpartnershipindia.org
Success Story
RamwapurVillage is situated inPipraichblockofGorakhpurdistrict inU.P.Mr.Manojkumar,Gram-PradhanofthisvillagealongwithMr.kamlapatiVishwakerma,AxshyaProjectCoordinatorfromDaudMemorial Christian Gramin Vikas Samiti (DMCGVS) designed and printed handbillsgivingTBmessagesandraisingawarenessinthevillage
TheGramPradhamallowedtheuseofun-usedfundsforsupportingandpromotingTBawarenessandcontrolthroughprintingofhandbills.
ThesehandbillsweregiventoVHNSCCommitteemembersfordistributioninthevillage.
Submitted by: DMCGVS
Unused Fund used for TB Awareness
5www.tbpartnershipindia.org
OCTOBER2013-MARCH2014
Advocacy CornerPTCC letter to political parties for inclusion of TB in Election Political ManisfestoA background note on TB and letters wassent to 58 national and regional politicalparties toprioritizeTBastheypreparetheirpoliticalmanifestos.Apressreleasewassentout as well with responses from 5-6 localand internationaldailies.Thisinitiativewastaken up by Partnership for TB Care andControl, with the support of Global HealthStrategies (GHS)andunder theguidanceofMr Chapal Mehra, Advisory Board Member,PTCCandFormerDirector,GHS.
Case StudyReviveYogendra Prasad, 52yrs, is a habitant ofvillagePosandaPSHilsaofdistrictNalandainBihar.Hisfamilywasverypoor.Hemovedto Gurgaon in search of work and startedworking in awork shed.Hewas diagnosedTBandvisitednearbyhospitalsandprivateclinics forhis treatment.No signsof reliefwere seen and he could not walk or eatby the end. His family decided to takehim back to his hometown as they had nomoneyforhistreatmentsandhishealthwasdeteriorating.
MrArvindPaswanandMritunjayPdVerma,Axshya Program Coordinators were co-ordinating community meeting in villagePosanda.Prasad’syoungerbrothernarratedthem his brother’s ill health and familydifficulties. Prasad was diagnosed TB.Sputumtestshowedpositiveandtheresultwas3+positive.
Hewasfortunate.HewasregisteredunderRNTCPandputonDOTStreatment.HetookmedicinesregularlyasperdirectiongivenbySmtChampaDevi,hisDOTSprovider.
Heunderwent treatment foreightmonths.He is now completely cured and works toearnalivingforhimselfandforhisfamily.
Yogendra Prasad now says “I thank LokSevashramChiksauraandMAMTAforbringingmylifeback”
Submitted by: Lok Sevashram Chiksaura
Committed
PARTNERSSPEAk
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Last WordsThePartnershipforTBCareandControlbringstogethercivilsocietyacrossIndiaonacommon
platform to strengthen and support the National TB Control efforts. Add your voice to our
efforts.ContactMs.MeenuSharma,[email protected]
A Role Model for Sputum Collection and Transport Programme
kannod is a town in Dewas district in the state of Madhya Pradesh.
kannodTBUnitconsistsoftwoblocks-kannodandkhategaoncovering
populationaround5,75,000.Themainlivelihoodoptionsforthemasses
areagriculture,forestproducts.ScheduledTribeandScheduledCaste
peopleare themajoritygroups.Manyof thevillagesarecutoffwith
the main infrastructure facilities such as road, health facilities, and
electricitysupply.kannodTBunitis140kMsawayfromtheDistrictTB
Unit.IntherainyseasonmanyofthevillagesandPanchayatsarecut
offduetothefloodinNarmadaRiver.5DMCsarefunctionalunderthe
kannodTBUnit.
ASRASamajikLokkalyanSamitiandBharatAbhuidya,AXSHYAPartnersofCHAIareimplementing
theactivitiesinthekannodTBUnit.Providingaccesstohigh-qualitytreatmentforalldiagnosed
casesofTBwasabig challenge.The sputumcollectionand transport incentiveprogramme
startedinkannodinMarch2012.
Ms.LataYadav,35yrsisaRNTCPTrainedRuralHealthCareProvider.InthemonthofNovember
2013inkannodTBUnitwiththeeffortsofMs.LataYadavandCHVsdiagnosed130TBsymptomatic
and14foundNewSmearPositive.DuringtheDistrictRNTCPmonthlymeetingheldinDecember
2013,Dr.ShivendraMishra,DistrictTBcongratulatedherandextendedsupportformaximising
theresultsincomingdays.
EncouragingcommunityDOTwithenhancedincentivesandMs.Yadav’seffortscontributeina
bigwayinthefightagainstTB,andencourageallofustocontributetothebestofourtostop
TBandbecommitted.
Submitted by: ASRA
Ms. Lata Yadav
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Vision & Mission
Disclaimer: The information and views expressed in the newsletter is of the authors only. Partnership for TB Care and Control does not take responsibility for any of the views expressed here.We would like to thank all our partners for sharing their stories, information and news.
Printed and published by Partnership for TB Care and Control, India
For more information contact us at: Partnership for TB Care and Control (PTCC)
Plot No-2, A-3, Local Shopping Centre, Janakpuri, New Delhi- 110058, India
Email: [email protected], [email protected]
States Partners
PTCC Partners - Nationwide
21 States/180 partnersAndaman & Nicobar 1
Andhra Pradesh 11
Assam 3
Bihar 12
21 States/180 partners
Delhi 28
Goa 1
Haryana 4
Jharkhand 3
Karnataka 3
Kerala 1
Madhya Pradesh 17
Maharashtra 12Maharashtra 12
Meghalaya 1
Odisha 13
Punjab 4
Rajasthan 1Rajasthan 1
Tamil Nadu 34
Tripura 1
Uttar Pradesh 19
Uttarakhand 8Uttarakhand 8
West Bengal 3
TOTAL 180
PTCC Partners - Nationwide
States Partners Andaman&Nicobar
1
AndhraPradesh 11Assam 3Bihar 12Delhi 28Goa 1Haryana 4Jharkhand 3karnataka 3kerala 1MadhyaPradesh 17Maharashtra 12Meghalaya 1Odisha 13Punjab 4Rajasthan 1TamilNadu 34Tripura 1UttarPradesh 19Uttarakhand 8WestBengal 3TOTAL 180
21States/180partners
Vision:IndiafreeofTB
Mission:● LeadadvocacyeffortsfortherightsofeveryindividualaffectedbyTB
● FacilitateuniversalaccesstoqualityservicesofTBcareandcontrol
● Engageallsectorsandallsectionsofpopulation
