"The Strategic Planning for Autism in Europe: Past, Present and Perspectives "

"The Strategic Planning for Autism in Europe: Past, Present and Perspectives".

NUI Galway, Ireland, January 2012.

" The Autism Spectrum Disorders research in Ireland".


What is eapha? eapha is the European Autism Public Health Alliance of stakeholders working to create a European public health plan for autism.

Visioneapha aims to transform the lives of persons with autism, their families and carers by providing a plan of action and an ongoing forum for parents’ organisations, academic institutions and public health agencies to share knowledge, experience and skills and to promote advocacy for the needs of people with autism.

Missioneapha’s mission is to design and promote a public health planning framework in order to achieve the long term vision of transforming the lives of persons with autism, their families and carers in Europe.


ASDs as common conditions:Better identification and expanded definition or a true increase? Creates great concern about causesResearch takes time and money – families are dealing with ASDs now!Increases in people needing services strains already taxed educational and service systemsspecial education costs or residential care costLifetime support usually neededNeed for family support systems Need for professional training and resources

Impact on Society


How much Autism is there?

CDC reported 1:110 children at 8 years old European population 2010= 500000000European estimated ASD rate= 5000000 Affected population 5%= 25,000,000Population size Belgium & Netherland Social Mortality Rate Indicator?

European Autism Action 2020: A Strategic Public Health Plan

60% Co-financed by DG SANCO European Commission

Programme of Community Action in the Field of Public Health (2003-

2008)

Duration: 34 monthsTotal Cost: € 796,757.00Started January 2006Ending October 2008

European Autism Information System EAIS-Project

First Public Health program (2003 – 2008) European Autism Information System (EAIS project) main results:

• eapha (European Parliament October 2007 EAA )• European Protocol for Autism Spectrum Disorder Prevalence (EPAP) • Protocol for estimating the economic impact of ASD• Harmonized Manual for early detection on ASD• European population based surveillance on ASD• Distance learning platform proposal



60% Co-financed by EAHC Programme of Community Action

in the Field of Public Health (2008-2013)

Duration: 27 monthsTotal Cost: € 547,372.74Started January 2008Ending March 2010

European Nework of Surveillance on risk factors for Autism and

Cerebral Palsy ENSACP


Second Public Health program (2008 – 2013) European Network for Surveillance of risk factor on Autism and Cerebral Palsy (ENSACP) Project main results:

• Literature review on perinatal risk factors on ASD and CP• Literature review on biomarkers for ASD and CP • Manual for harmonization of perinatal risk factors on ASD and CP• Manual for harmonization of biomarkers on ASD and CP• Protocols for analytical studies on ASD and CP


Consultation Process 3rd Panel of Experts Meeting

Sub-regional meetings (Budapest, Palma de Mallorca)

Online process

European Autism Action 2020 (EAA2020) Dublin on 29th November.


COUNTRY FACT

France Packing (wet sheets from refrigerator) Predominance of psychoanalytical model

(confusion in diagnosis, mistrusting attitude toward parents, inefficient costly therapeutic measures, no progress)

Croatia Early intervention programmes started only 4 years ago

Only small number of people with ASD are integrated in regular schools with support

Some people with ASD are in institutions for people with MR

Only residential care for 12 adults in the whole country (parent’s association created)

People are still in schools after the age of 21 years because there is no adult care

Autism doesn’t exist in the legislative Ministry of Health (only in Education)


Estonia No ADOS-GOnly since 2006, special support to ASD children in education and only in larger citiesNo manuals on teaching children with AutismSlovenia First Centre for Autism in 2005 (parents received no support at that time)LatviaFirst diagnosis in 2006 (before then only MR, Schizophrenia)No special program for ASD in special schools, not well categorized in schools yet (mental delay group). No integration.Only for the last 3 years drugs have ceased to be the main treatment for ASD No services for AdultsDiagnosis at 3-4 years


"The Strategic Planning for Autism in Europe:Past, Present and Perspectives".



Public health interpretation standard of care on ASD in Europe; global economic crisis; political commitment.

"The Strategic Planning for Autism in Europe: Past, Present and Perspectives"


Thank you!

NUI Galway, Ireland, January 2012.

" The Autism Spectrum Disorders research in Ireland".

Documents

"The Strategic Planning for Autism in Europe: Past, Present and Perspectives "